Information

[Guest guest]

Hello Connie,

If a child is implanted at 12 months, how can you communicate to find

out if he/she is hearing sounds important for speech and language

development? Larry

Re: information

>I have worked with children who were implanted before 12 months.

>

> --- connie mckinley <lovethatdrama@...> wrote:

>

>> i didnt know they did the surgery that young

>>

>> dithompson75 <dithompson75@...> wrote: Hello. My husband

>> and I have just through the evaluation process for

>> my daughter to recieve a CI. Maya is 2 1/2. I was wondering what

>> others thought of the implant. Also, she needs to have the tube in

>>

>> her ear removed and a tissue graft (tympanoplasty). Has anyone

>> else

>> had this done. What should I expect?? Thanks!

>>

>>

>>

>>

>>

>>

>>

>>

[Guest guest]

Welcome Connie!

Glad you can join us. I have just been approved for an implant but probably

won't have the surgery done until June (don't ask me!) So perhaps we might

have surgery around the same time? I am in Australia and it seems that the

process is faster in the US?

_____

From: [mailto: ] On Behalf Of

connie mckinley

Sent: Wednesday, 15 February 2006 8:49 AM

Subject: Re: Information

hi, i am in the begging stages of the long process of implaints... someone

gave me this chat room... hearexchange... then choose chat... ive chatted

with some really nice people who wil share stories

bakerfutureteacher <bakerfutureteacher@...> wrote: hi everyone my

name is and I am a Deaf education major. I have

to join this listserv for my Aural/Oral class and I would love to hear

your stories. I can't think of any specific questions i have to ask so

any information you have would be great....Thanks!!!

[Guest guest]

I had my first consultaton at Hopkins, land. I was just very impressed

how sincere and honest the audiologist was during the consultation

the MRI films that were done around thanksgiving did not give the doctor's

enough feedback on how the cochlea looks like so I am scheduled for a catscan on

2/28 at 7:30.

and Davies <prdavies@...> wrote:

Welcome Connie!

Glad you can join us. I have just been approved for an implant but probably

won't have the surgery done until June (don't ask me!) So perhaps we might

have surgery around the same time? I am in Australia and it seems that the

process is faster in the US?

_____

From: [mailto: ] On Behalf Of

connie mckinley

Sent: Wednesday, 15 February 2006 8:49 AM

Subject: Re: Information

hi, i am in the begging stages of the long process of implaints... someone

gave me this chat room... hearexchange... then choose chat... ive chatted

with some really nice people who wil share stories

bakerfutureteacher <bakerfutureteacher@...> wrote: hi everyone my

name is and I am a Deaf education major. I have

to join this listserv for my Aural/Oral class and I would love to hear

your stories. I can't think of any specific questions i have to ask so

any information you have would be great....Thanks!!!

[Guest guest]

Dr. Rutledge

(Private cell phone) 702-953-7066 or 702-215-9550

Email: Drr@...

CLOS West Office

98 E Lake Mead PKWY, Suite 302

, NV 89015,

Office Phone: 702-456-4643,

Personal fax: (909) 494-4290

Web site: http://clos.net

Information

Dr Rutledge.

Great news:

Five patient whit MGB in Cali Colombia.

Excellent evolution.,

Cero complications.

Two days hospital

IMB 40 to 48 kg/m2.

no expensive, price 6.700 dollars.

time surgery: 2 hrs.

cero intensive care.

only endoveins anesthesia.

only I use TYCO suturas.

I have 24 patients waiting for MGB

Thank you, my Great Master

--

_________________________________________________

Dr. del Castillo

Cirujano de la Universidad Nacional de Colombia Mini Bypass Gastrico (H.

Rose Dominical Hospital. Dr. Rutledge. Las Vegas ( U.S.A)).

CONTACTOS.

Clinica Nuestra Señora de los Remedios

Consultorios: 410 - 504

Tels: 661-16-51 - 660-67-53

Movil: 316-447-49-47

Beeper: tel: 665-66-66 cod: 6914

WEB.

cirujanos@... <mailto:cirujanos@...>

dr_delcastillo@... www.lobesidad.net

_________________________________________________

[Guest guest]

Had a bilateral knee replacement last Aug. Sure it is a little tougher for

us " two knees " BUT for me the pain was worst before than after. What my Dr.

told me was that where I was before the surgery would be about where I'd be

six weeks after. I was so much better after than that. As I've posted

before - even while I was in the hospital using the walker to head to the

bathroom - husband told me I was walking better than before.

Since there isn't a " good " knee or leg, it is a little harder and you will

get tired so rest often, take the pain med's, and use lots of ice. I had

swelling - not that bad but it was there a lot, didn't help as I was moving

around more than it is suggested but it didn't hurt that much so move I did.

So ice, legs up, and do the exercises and you will be fine. My neighbor had

bilateral two months later, she only used a walker for two weeks, then no

cane even. Me I used a crane for until around six weeks out, then used it at

trade shows or if I did alot of walking.

Think that for me, the worry about the surgery, the unknown, the questions

that most of us have/had was the worst part. The after was so much better

than I thought it would be. Each day I'd be better, each day the exercises

were easier and each day the pain was better instead of getting worst.

Good luck and let us know if you have a specific question.

Gloria

[Guest guest]

--- adrienne.mckenna " <adrienne.mckenna@...> wrote:

>

> I am having a bilateral knee replacement done in about 3 weeks. I am

> really anxious about it and wonder if any of you could share your

> experiences. A friend suggested this group and I am hoping to hear In

Joint Replacement , "

> from you!

>

I had both knees replaced on Jan 23, 2004. It changed my life in a very

positive way. The recovery was challenging but doable. The meds cut the

pain way down. Good luck, God bless and think about the great things

that you will do when you are no longer disabled.

[Guest guest]

Hi ,

Welcome to the list. One place you might want to start is the LPA

website at www.lpaonline.org. You can find a lot of information

there. Also, LPA has a community outreach program that is

specifically designed for people with dwarfism to go into schools and

talk to students and teachers about dwarfism. We have a community

outreach coordinator for each half of the country. For the the East

Coast, contact Barbara Spiegel at bspiegel@..., and for the

West Coast, contact Ethan Crough at ecrough@.... Also, if you

go to the LPA website and click on the " Officers and Contacts " link,

you can find the nearest LPA chapter to your location.

I will leave it to others to answer your initial questions, but feel

free to email me or the aforementioned persons if you have any more

questions. This list is not technically a part of LPA, but you will

find the people here extremely helpful and informative.

Regards,

Bill Bradford

LPA VP of Programs.

On Feb 11, 2008 9:23 AM, House <srhh1982@...> wrote:

>

>

>

>

>

>

> Hello,

> My name is . I am a fifth grade teacher who has a

> student this year, who has a form of dwarfism. Since I am not a person who

> has dwarfism, I am trying to learn more about it. I hope you will feel

> comfortable talking to me, and allowing me to ask questions, so I may learn.

> This will really help me, especially since

> I have never known anyone with dwarfism.

>

> I have made it a goal of mine, as a graduate research study

> project, to learn more. I, not only, wanted to research the physical

> aspects of dwarfism, but also, the social aspects. So if anyone would like

> to add to my knowledge about what it is like to be a middle school student

> with this condition, please feel free to

> write and share your experiences with me.

>

> Some questions I'm wondering about right now are: Do people treat you

> differently often? And if so, how do they treat you? Do you think it is

> harder for boys or girls? Is there anything your teachers could have or

> should have done differently in regards to your education?

>

> I will start with that, and if more questions arise, I hope you will not

> mind if I post them. I really do appreciate anyone who is willing to take

> the time to talk with me.

>

>

[Guest guest]

Thanks, Kathy.

Ellen

Ellen Garber Bronfeld

egskb@...

information

Naperville is a long way for me, I am located in Southern IL, but I would hope

any information about this matter or any others would be available on this site

for me and others to find. I believe this is what this site is all about,

INFORMATION, sharing that information, be it free or cost. We parents need to be

more aware and get as envolved as we can to find out about anything that can

make the lives of our sons and daughters better.

I know it is a job, but it is one very worthwhile job, what better reward from

a job could you have but to see your son and/or daughter get a life, a FULLER

life, one that they deserve?!?!?!

I am all for these items being shared on this site.

Kathy Bissell

Mother of Bellmann

__________________________________________________________

Stay in touch when you're away with Windows Live Messenger.

http://www.windowslive.com/messenger/overview.html?ocid=TXT_TAGLM_WL_Refresh_mes\

senger_052008

[Guest guest]

Since I found out I had Hep C about 9mo. ago, I've been on a up and down roller

coaster because of all the different things that one has to do after getting

diognosed. The money is the biggest thing of all. If a person who already has

insurance, things are alot easier to make decissions on than a person who don't

have any. I unfortunatly fall into the non insured catagory but have been able

to find out somethings that might help someone else here that  has the same

problem.

First thing medications, all pharmaceutical companys have programs to help

people that can't afford their medicines. There is also a web site that you can

go to, type in the name of your meds and they help you find the company or

organization that has programs to get your meds free or at a very low cost, this

includes all medications.

The site is  www.pparx.org   I have had great success with this site. It's Free

 Also there is a company called Xubex that most of their genaric medicines are

$20 or $30 for a three month supply. I have checked this company out with the

BBB and it is rated the highest rating that the BBB gives a company. Check it

out it's worth it.

The second thing Dr. bills, most dr. offices have a program that go by your

income for costs, of course they don't tell you about it ( you have to ask ) and

if they don't they may know a program that can help. Also the department of

human service has a progam that after you have already got a huge hospital bill

that if you quilify your bill is concidered forgiven and will be valid for a

year to take care of further expences but only for that year. Hospitals also

have what is called a hardship program that takes care of a outstanding debt.

These things have to be asked for, they will not offer them to you. The key to

getting the help you need is ASKING and research.

As for me, I will be starting treatment within a couple weeks. Even though I

have been newly diognosed we have figured out that I have had hep c for about

25yrs, getting it from a transfusion I got when my youngest daughter was born

but just became active in the last five years. It's not something they regularly

test for and because one dr. noticed a blood count that wasn't right decided to

do the extra test. I have good days and I have bad days, some days I'm in bed

all day. Other dr's couldn't figure out why I was always sick and never took the

time to do that one test. I've done the biopsy and have regular visits with the

liver specialist and my regular dr. When I start the medication I will be on the

max dosage so this should be interesting to say the least. They say everyone

handles it different so I listen to what everyone says about their experiance

but take it day by day.

I hope the information that I have given can help someone even if it's just to

hear my experiance. I know it does me good to talk about it to someone. If

anyone wants to talk, I'm on facebook under sheri sheeder and on my space under

sheri105. I don't work cause of being sick all the time so I'm on the computer

alot.

Thanks,

Sheri  ( aka) Spots

[Guest guest]

Since I found out I had Hep C about 9mo. ago, I've been on a up and down roller

coaster because of all the different things that one has to do after getting

diognosed. The money is the biggest thing of all. If a person who already has

insurance, things are alot easier to make decissions on than a person who don't

have any. I unfortunatly fall into the non insured catagory but have been able

to find out somethings that might help someone else here that  has the same

problem.

First thing medications, all pharmaceutical companys have programs to help

people that can't afford their medicines. There is also a web site that you can

go to, type in the name of your meds and they help you find the company or

organization that has programs to get your meds free or at a very low cost, this

includes all medications.

The site is  www.pparx.org   I have had great success with this site. It's Free

 Also there is a company called Xubex that most of their genaric medicines are

$20 or $30 for a three month supply. I have checked this company out with the

BBB and it is rated the highest rating that the BBB gives a company. Check it

out it's worth it.

The second thing Dr. bills, most dr. offices have a program that go by your

income for costs, of course they don't tell you about it ( you have to ask ) and

if they don't they may know a program that can help. Also the department of

human service has a progam that after you have already got a huge hospital bill

that if you quilify your bill is concidered forgiven and will be valid for a

year to take care of further expences but only for that year. Hospitals also

have what is called a hardship program that takes care of a outstanding debt.

These things have to be asked for, they will not offer them to you. The key to

getting the help you need is ASKING and research.

As for me, I will be starting treatment within a couple weeks. Even though I

have been newly diognosed we have figured out that I have had hep c for about

25yrs, getting it from a transfusion I got when my youngest daughter was born

but just became active in the last five years. It's not something they regularly

test for and because one dr. noticed a blood count that wasn't right decided to

do the extra test. I have good days and I have bad days, some days I'm in bed

all day. Other dr's couldn't figure out why I was always sick and never took the

time to do that one test. I've done the biopsy and have regular visits with the

liver specialist and my regular dr. When I start the medication I will be on the

max dosage so this should be interesting to say the least. They say everyone

handles it different so I listen to what everyone says about their experiance

but take it day by day.

I hope the information that I have given can help someone even if it's just to

hear my experiance. I know it does me good to talk about it to someone. If

anyone wants to talk, I'm on facebook under sheri sheeder and on my space under

sheri105. I don't work cause of being sick all the time so I'm on the computer

alot.

Thanks,

Sheri  ( aka) Spots

[Guest guest]

Since I found out I had Hep C about 9mo. ago, I've been on a up and down roller

coaster because of all the different things that one has to do after getting

diognosed. The money is the biggest thing of all. If a person who already has

insurance, things are alot easier to make decissions on than a person who don't

have any. I unfortunatly fall into the non insured catagory but have been able

to find out somethings that might help someone else here that  has the same

problem.

First thing medications, all pharmaceutical companys have programs to help

people that can't afford their medicines. There is also a web site that you can

go to, type in the name of your meds and they help you find the company or

organization that has programs to get your meds free or at a very low cost, this

includes all medications.

The site is  www.pparx.org   I have had great success with this site. It's Free

 Also there is a company called Xubex that most of their genaric medicines are

$20 or $30 for a three month supply. I have checked this company out with the

BBB and it is rated the highest rating that the BBB gives a company. Check it

out it's worth it.

The second thing Dr. bills, most dr. offices have a program that go by your

income for costs, of course they don't tell you about it ( you have to ask ) and

if they don't they may know a program that can help. Also the department of

human service has a progam that after you have already got a huge hospital bill

that if you quilify your bill is concidered forgiven and will be valid for a

year to take care of further expences but only for that year. Hospitals also

have what is called a hardship program that takes care of a outstanding debt.

These things have to be asked for, they will not offer them to you. The key to

getting the help you need is ASKING and research.

As for me, I will be starting treatment within a couple weeks. Even though I

have been newly diognosed we have figured out that I have had hep c for about

25yrs, getting it from a transfusion I got when my youngest daughter was born

but just became active in the last five years. It's not something they regularly

test for and because one dr. noticed a blood count that wasn't right decided to

do the extra test. I have good days and I have bad days, some days I'm in bed

all day. Other dr's couldn't figure out why I was always sick and never took the

time to do that one test. I've done the biopsy and have regular visits with the

liver specialist and my regular dr. When I start the medication I will be on the

max dosage so this should be interesting to say the least. They say everyone

handles it different so I listen to what everyone says about their experiance

but take it day by day.

I hope the information that I have given can help someone even if it's just to

hear my experiance. I know it does me good to talk about it to someone. If

anyone wants to talk, I'm on facebook under sheri sheeder and on my space under

sheri105. I don't work cause of being sick all the time so I'm on the computer

alot.

Thanks,

Sheri  ( aka) Spots

[Guest guest]

Since I found out I had Hep C about 9mo. ago, I've been on a up and down roller

coaster because of all the different things that one has to do after getting

diognosed. The money is the biggest thing of all. If a person who already has

insurance, things are alot easier to make decissions on than a person who don't

have any. I unfortunatly fall into the non insured catagory but have been able

to find out somethings that might help someone else here that  has the same

problem.

First thing medications, all pharmaceutical companys have programs to help

people that can't afford their medicines. There is also a web site that you can

go to, type in the name of your meds and they help you find the company or

organization that has programs to get your meds free or at a very low cost, this

includes all medications.

The site is  www.pparx.org   I have had great success with this site. It's Free

 Also there is a company called Xubex that most of their genaric medicines are

$20 or $30 for a three month supply. I have checked this company out with the

BBB and it is rated the highest rating that the BBB gives a company. Check it

out it's worth it.

The second thing Dr. bills, most dr. offices have a program that go by your

income for costs, of course they don't tell you about it ( you have to ask ) and

if they don't they may know a program that can help. Also the department of

human service has a progam that after you have already got a huge hospital bill

that if you quilify your bill is concidered forgiven and will be valid for a

year to take care of further expences but only for that year. Hospitals also

have what is called a hardship program that takes care of a outstanding debt.

These things have to be asked for, they will not offer them to you. The key to

getting the help you need is ASKING and research.

As for me, I will be starting treatment within a couple weeks. Even though I

have been newly diognosed we have figured out that I have had hep c for about

25yrs, getting it from a transfusion I got when my youngest daughter was born

but just became active in the last five years. It's not something they regularly

test for and because one dr. noticed a blood count that wasn't right decided to

do the extra test. I have good days and I have bad days, some days I'm in bed

all day. Other dr's couldn't figure out why I was always sick and never took the

time to do that one test. I've done the biopsy and have regular visits with the

liver specialist and my regular dr. When I start the medication I will be on the

max dosage so this should be interesting to say the least. They say everyone

handles it different so I listen to what everyone says about their experiance

but take it day by day.

I hope the information that I have given can help someone even if it's just to

hear my experiance. I know it does me good to talk about it to someone. If

anyone wants to talk, I'm on facebook under sheri sheeder and on my space under

sheri105. I don't work cause of being sick all the time so I'm on the computer

alot.

Thanks,

Sheri  ( aka) Spots

[Guest guest]

sheri,i just wanted to tell you that im here for ya,after you start

treatment...wish you all the best during thiat time!!!

From: Sheri Sheeder <sherisheeder@...>

Subject: Information

Hepatitis C

Date: Monday, February 22, 2010, 11:32 PM

 

Since I found out I had Hep C about 9mo. ago, I've been on a up and down roller

coaster because of all the different things that one has to do after getting

diognosed. The money is the biggest thing of all. If a person who already has

insurance, things are alot easier to make decissions on than a person who don't

have any. I unfortunatly fall into the non insured catagory but have been able

to find out somethings that might help someone else here that  has the same

problem.

First thing medications, all pharmaceutical companys have programs to help

people that can't afford their medicines. There is also a web site that you can

go to, type in the name of your meds and they help you find the company or

organization that has programs to get your meds free or at a very low cost, this

includes all medications.

The site is  www.pparx.org   I have had great success with this site. It's

Free

 Also there is a company called Xubex that most of their genaric medicines are

$20 or $30 for a three month supply. I have checked this company out with the

BBB and it is rated the highest rating that the BBB gives a company. Check it

out it's worth it.

The second thing Dr. bills, most dr. offices have a program that go by your

income for costs, of course they don't tell you about it ( you have to ask )

and if they don't they may know a program that can help. Also the department of

human service has a progam that after you have already got a huge hospital bill

that if you quilify your bill is concidered forgiven and will be valid for a

year to take care of further expences but only for that year. Hospitals also

have what is called a hardship program that takes care of a outstanding debt.

These things have to be asked for, they will not offer them to you. The key to

getting the help you need is ASKING and research.

As for me, I will be starting treatment within a couple weeks. Even though I

have been newly diognosed we have figured out that I have had hep c for about

25yrs, getting it from a transfusion I got when my youngest daughter was born

but just became active in the last five years. It's not something they regularly

test for and because one dr. noticed a blood count that wasn't right decided to

do the extra test. I have good days and I have bad days, some days I'm in bed

all day. Other dr's couldn't figure out why I was always sick and never took the

time to do that one test. I've done the biopsy and have regular visits with the

liver specialist and my regular dr. When I start the medication I will be on the

max dosage so this should be interesting to say the least. They say everyone

handles it different so I listen to what everyone says about their experiance

but take it day by day.

I hope the information that I have given can help someone even if it's just to

hear my experiance. I know it does me good to talk about it to someone. If

anyone wants to talk, I'm on facebook under sheri sheeder and on my space under

sheri105. I don't work cause of being sick all the time so I'm on the computer

alot.

Thanks,

Sheri  ( aka) Spots

[Guest guest]

sheri,i just wanted to tell you that im here for ya,after you start

treatment...wish you all the best during thiat time!!!

From: Sheri Sheeder <sherisheeder@...>

Subject: Information

Hepatitis C

Date: Monday, February 22, 2010, 11:32 PM

 

Since I found out I had Hep C about 9mo. ago, I've been on a up and down roller

coaster because of all the different things that one has to do after getting

diognosed. The money is the biggest thing of all. If a person who already has

insurance, things are alot easier to make decissions on than a person who don't

have any. I unfortunatly fall into the non insured catagory but have been able

to find out somethings that might help someone else here that  has the same

problem.

First thing medications, all pharmaceutical companys have programs to help

people that can't afford their medicines. There is also a web site that you can

go to, type in the name of your meds and they help you find the company or

organization that has programs to get your meds free or at a very low cost, this

includes all medications.

The site is  www.pparx.org   I have had great success with this site. It's

Free

 Also there is a company called Xubex that most of their genaric medicines are

$20 or $30 for a three month supply. I have checked this company out with the

BBB and it is rated the highest rating that the BBB gives a company. Check it

out it's worth it.

The second thing Dr. bills, most dr. offices have a program that go by your

income for costs, of course they don't tell you about it ( you have to ask )

and if they don't they may know a program that can help. Also the department of

human service has a progam that after you have already got a huge hospital bill

that if you quilify your bill is concidered forgiven and will be valid for a

year to take care of further expences but only for that year. Hospitals also

have what is called a hardship program that takes care of a outstanding debt.

These things have to be asked for, they will not offer them to you. The key to

getting the help you need is ASKING and research.

As for me, I will be starting treatment within a couple weeks. Even though I

have been newly diognosed we have figured out that I have had hep c for about

25yrs, getting it from a transfusion I got when my youngest daughter was born

but just became active in the last five years. It's not something they regularly

test for and because one dr. noticed a blood count that wasn't right decided to

do the extra test. I have good days and I have bad days, some days I'm in bed

all day. Other dr's couldn't figure out why I was always sick and never took the

time to do that one test. I've done the biopsy and have regular visits with the

liver specialist and my regular dr. When I start the medication I will be on the

max dosage so this should be interesting to say the least. They say everyone

handles it different so I listen to what everyone says about their experiance

but take it day by day.

I hope the information that I have given can help someone even if it's just to

hear my experiance. I know it does me good to talk about it to someone. If

anyone wants to talk, I'm on facebook under sheri sheeder and on my space under

sheri105. I don't work cause of being sick all the time so I'm on the computer

alot.

Thanks,

Sheri  ( aka) Spots

[Guest guest]

sheri,i just wanted to tell you that im here for ya,after you start

treatment...wish you all the best during thiat time!!!

From: Sheri Sheeder <sherisheeder@...>

Subject: Information

Hepatitis C

Date: Monday, February 22, 2010, 11:32 PM

 

Since I found out I had Hep C about 9mo. ago, I've been on a up and down roller

coaster because of all the different things that one has to do after getting

diognosed. The money is the biggest thing of all. If a person who already has

insurance, things are alot easier to make decissions on than a person who don't

have any. I unfortunatly fall into the non insured catagory but have been able

to find out somethings that might help someone else here that  has the same

problem.

First thing medications, all pharmaceutical companys have programs to help

people that can't afford their medicines. There is also a web site that you can

go to, type in the name of your meds and they help you find the company or

organization that has programs to get your meds free or at a very low cost, this

includes all medications.

The site is  www.pparx.org   I have had great success with this site. It's

Free

 Also there is a company called Xubex that most of their genaric medicines are

$20 or $30 for a three month supply. I have checked this company out with the

BBB and it is rated the highest rating that the BBB gives a company. Check it

out it's worth it.

The second thing Dr. bills, most dr. offices have a program that go by your

income for costs, of course they don't tell you about it ( you have to ask )

and if they don't they may know a program that can help. Also the department of

human service has a progam that after you have already got a huge hospital bill

that if you quilify your bill is concidered forgiven and will be valid for a

year to take care of further expences but only for that year. Hospitals also

have what is called a hardship program that takes care of a outstanding debt.

These things have to be asked for, they will not offer them to you. The key to

getting the help you need is ASKING and research.

As for me, I will be starting treatment within a couple weeks. Even though I

have been newly diognosed we have figured out that I have had hep c for about

25yrs, getting it from a transfusion I got when my youngest daughter was born

but just became active in the last five years. It's not something they regularly

test for and because one dr. noticed a blood count that wasn't right decided to

do the extra test. I have good days and I have bad days, some days I'm in bed

all day. Other dr's couldn't figure out why I was always sick and never took the

time to do that one test. I've done the biopsy and have regular visits with the

liver specialist and my regular dr. When I start the medication I will be on the

max dosage so this should be interesting to say the least. They say everyone

handles it different so I listen to what everyone says about their experiance

but take it day by day.

I hope the information that I have given can help someone even if it's just to

hear my experiance. I know it does me good to talk about it to someone. If

anyone wants to talk, I'm on facebook under sheri sheeder and on my space under

sheri105. I don't work cause of being sick all the time so I'm on the computer

alot.

Thanks,

Sheri  ( aka) Spots

[Guest guest]

sheri,i just wanted to tell you that im here for ya,after you start

treatment...wish you all the best during thiat time!!!

From: Sheri Sheeder <sherisheeder@...>

Subject: Information

Hepatitis C

Date: Monday, February 22, 2010, 11:32 PM

 

Since I found out I had Hep C about 9mo. ago, I've been on a up and down roller

coaster because of all the different things that one has to do after getting

diognosed. The money is the biggest thing of all. If a person who already has

insurance, things are alot easier to make decissions on than a person who don't

have any. I unfortunatly fall into the non insured catagory but have been able

to find out somethings that might help someone else here that  has the same

problem.

First thing medications, all pharmaceutical companys have programs to help

people that can't afford their medicines. There is also a web site that you can

go to, type in the name of your meds and they help you find the company or

organization that has programs to get your meds free or at a very low cost, this

includes all medications.

The site is  www.pparx.org   I have had great success with this site. It's

Free

 Also there is a company called Xubex that most of their genaric medicines are

$20 or $30 for a three month supply. I have checked this company out with the

BBB and it is rated the highest rating that the BBB gives a company. Check it

out it's worth it.

The second thing Dr. bills, most dr. offices have a program that go by your

income for costs, of course they don't tell you about it ( you have to ask )

and if they don't they may know a program that can help. Also the department of

human service has a progam that after you have already got a huge hospital bill

that if you quilify your bill is concidered forgiven and will be valid for a

year to take care of further expences but only for that year. Hospitals also

have what is called a hardship program that takes care of a outstanding debt.

These things have to be asked for, they will not offer them to you. The key to

getting the help you need is ASKING and research.

As for me, I will be starting treatment within a couple weeks. Even though I

have been newly diognosed we have figured out that I have had hep c for about

25yrs, getting it from a transfusion I got when my youngest daughter was born

but just became active in the last five years. It's not something they regularly

test for and because one dr. noticed a blood count that wasn't right decided to

do the extra test. I have good days and I have bad days, some days I'm in bed

all day. Other dr's couldn't figure out why I was always sick and never took the

time to do that one test. I've done the biopsy and have regular visits with the

liver specialist and my regular dr. When I start the medication I will be on the

max dosage so this should be interesting to say the least. They say everyone

handles it different so I listen to what everyone says about their experiance

but take it day by day.

I hope the information that I have given can help someone even if it's just to

hear my experiance. I know it does me good to talk about it to someone. If

anyone wants to talk, I'm on facebook under sheri sheeder and on my space under

sheri105. I don't work cause of being sick all the time so I'm on the computer

alot.

Thanks,

Sheri  ( aka) Spots

[Guest guest]

I am having some trouble downloading 's articles to the files

section...feel free to email me if you would like me to send them to you.

Ellen

Ellen Garber Bronfeld

egskb@...

Information

The " Guidance " article is scheduled to be published by Exceptional Parent in

February or March. That article and the other documents are for your up-loading

and/or sharing as you desire.

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[Guest guest]

What led you to the Mayo? Didn't you go through Minnesota Gastroenterology and

their monopoly in GI care in the state?

Steve

>

> > Good Morning everyone. I joined this group a few weeks back, and wow, I

finally feel like I am not alone with this horrible disease.

> >

> > My issues started as a young child (I can remember eating and throwing up

regularly as young as 5). When I was 25 my lungs were 3/4 full of food and

finally a Dr. figured out I was throwing up and it was going into my lungs. I

went to Mayo in Rochester where I had a few different surgeries, I think that HM

you all talk about and they cut the muscle into my stomach, made me a new

flapper to keep stomach acids down etc.

> >

> > Now 6 years later I started having food stick so I went back for testing

(barium, EDG etc.) and they found that my esophogus is so stretched and worn out

it is now deforming and looks like a sink drain. So it goes down then makes a

sharp 90 degree corner then has another length to go before emptying into my

stomach. (My esophogus measures at 8 mm, the average is 2 mm)

> >

> > They told me my only option is to have my esophogus removed and to move my

stomach up into it's place!?! Anybody know anything about this? I might agree to

such a major body transformation at 80 but I am only 32 and scared. Looking for

advice.

> >

> >

>

>

>