Guest guest Posted February 14, 2006 Report Share Posted February 14, 2006 Hello Connie, If a child is implanted at 12 months, how can you communicate to find out if he/she is hearing sounds important for speech and language development? Larry Re: information >I have worked with children who were implanted before 12 months. > > --- connie mckinley <lovethatdrama@...> wrote: > >> i didnt know they did the surgery that young >> >> dithompson75 <dithompson75@...> wrote: Hello. My husband >> and I have just through the evaluation process for >> my daughter to recieve a CI. Maya is 2 1/2. I was wondering what >> others thought of the implant. Also, she needs to have the tube in >> >> her ear removed and a tissue graft (tympanoplasty). Has anyone >> else >> had this done. What should I expect?? Thanks! >> >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2006 Report Share Posted February 14, 2006 Welcome Connie! Glad you can join us. I have just been approved for an implant but probably won't have the surgery done until June (don't ask me!) So perhaps we might have surgery around the same time? I am in Australia and it seems that the process is faster in the US? _____ From: [mailto: ] On Behalf Of connie mckinley Sent: Wednesday, 15 February 2006 8:49 AM Subject: Re: Information hi, i am in the begging stages of the long process of implaints... someone gave me this chat room... hearexchange... then choose chat... ive chatted with some really nice people who wil share stories bakerfutureteacher <bakerfutureteacher@...> wrote: hi everyone my name is and I am a Deaf education major. I have to join this listserv for my Aural/Oral class and I would love to hear your stories. I can't think of any specific questions i have to ask so any information you have would be great....Thanks!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2006 Report Share Posted February 14, 2006 I had my first consultaton at Hopkins, land. I was just very impressed how sincere and honest the audiologist was during the consultation the MRI films that were done around thanksgiving did not give the doctor's enough feedback on how the cochlea looks like so I am scheduled for a catscan on 2/28 at 7:30. and Davies <prdavies@...> wrote: Welcome Connie! Glad you can join us. I have just been approved for an implant but probably won't have the surgery done until June (don't ask me!) So perhaps we might have surgery around the same time? I am in Australia and it seems that the process is faster in the US? _____ From: [mailto: ] On Behalf Of connie mckinley Sent: Wednesday, 15 February 2006 8:49 AM Subject: Re: Information hi, i am in the begging stages of the long process of implaints... someone gave me this chat room... hearexchange... then choose chat... ive chatted with some really nice people who wil share stories bakerfutureteacher <bakerfutureteacher@...> wrote: hi everyone my name is and I am a Deaf education major. I have to join this listserv for my Aural/Oral class and I would love to hear your stories. I can't think of any specific questions i have to ask so any information you have would be great....Thanks!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2006 Report Share Posted August 16, 2006 Dr. Rutledge (Private cell phone) 702-953-7066 or 702-215-9550 Email: Drr@... CLOS West Office 98 E Lake Mead PKWY, Suite 302 , NV 89015, Office Phone: 702-456-4643, Personal fax: (909) 494-4290 Web site: http://clos.net Information Dr Rutledge. Great news: Five patient whit MGB in Cali Colombia. Excellent evolution., Cero complications. Two days hospital IMB 40 to 48 kg/m2. no expensive, price 6.700 dollars. time surgery: 2 hrs. cero intensive care. only endoveins anesthesia. only I use TYCO suturas. I have 24 patients waiting for MGB Thank you, my Great Master -- _________________________________________________ Dr. del Castillo Cirujano de la Universidad Nacional de Colombia Mini Bypass Gastrico (H. Rose Dominical Hospital. Dr. Rutledge. Las Vegas ( U.S.A)). CONTACTOS. Clinica Nuestra SeƱora de los Remedios Consultorios: 410 - 504 Tels: 661-16-51 - 660-67-53 Movil: 316-447-49-47 Beeper: tel: 665-66-66 cod: 6914 WEB. cirujanos@... <mailto:cirujanos@...> dr_delcastillo@... www.lobesidad.net _________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 Had a bilateral knee replacement last Aug. Sure it is a little tougher for us " two knees " BUT for me the pain was worst before than after. What my Dr. told me was that where I was before the surgery would be about where I'd be six weeks after. I was so much better after than that. As I've posted before - even while I was in the hospital using the walker to head to the bathroom - husband told me I was walking better than before. Since there isn't a " good " knee or leg, it is a little harder and you will get tired so rest often, take the pain med's, and use lots of ice. I had swelling - not that bad but it was there a lot, didn't help as I was moving around more than it is suggested but it didn't hurt that much so move I did. So ice, legs up, and do the exercises and you will be fine. My neighbor had bilateral two months later, she only used a walker for two weeks, then no cane even. Me I used a crane for until around six weeks out, then used it at trade shows or if I did alot of walking. Think that for me, the worry about the surgery, the unknown, the questions that most of us have/had was the worst part. The after was so much better than I thought it would be. Each day I'd be better, each day the exercises were easier and each day the pain was better instead of getting worst. Good luck and let us know if you have a specific question. Gloria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 --- adrienne.mckenna " <adrienne.mckenna@...> wrote: > > I am having a bilateral knee replacement done in about 3 weeks. I am > really anxious about it and wonder if any of you could share your > experiences. A friend suggested this group and I am hoping to hear In Joint Replacement , " > from you! > I had both knees replaced on Jan 23, 2004. It changed my life in a very positive way. The recovery was challenging but doable. The meds cut the pain way down. Good luck, God bless and think about the great things that you will do when you are no longer disabled. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2008 Report Share Posted February 11, 2008 Hi , Welcome to the list. One place you might want to start is the LPA website at www.lpaonline.org. You can find a lot of information there. Also, LPA has a community outreach program that is specifically designed for people with dwarfism to go into schools and talk to students and teachers about dwarfism. We have a community outreach coordinator for each half of the country. For the the East Coast, contact Barbara Spiegel at bspiegel@..., and for the West Coast, contact Ethan Crough at ecrough@.... Also, if you go to the LPA website and click on the " Officers and Contacts " link, you can find the nearest LPA chapter to your location. I will leave it to others to answer your initial questions, but feel free to email me or the aforementioned persons if you have any more questions. This list is not technically a part of LPA, but you will find the people here extremely helpful and informative. Regards, Bill Bradford LPA VP of Programs. On Feb 11, 2008 9:23 AM, House <srhh1982@...> wrote: > > > > > > > Hello, > My name is . I am a fifth grade teacher who has a > student this year, who has a form of dwarfism. Since I am not a person who > has dwarfism, I am trying to learn more about it. I hope you will feel > comfortable talking to me, and allowing me to ask questions, so I may learn. > This will really help me, especially since > I have never known anyone with dwarfism. > > I have made it a goal of mine, as a graduate research study > project, to learn more. I, not only, wanted to research the physical > aspects of dwarfism, but also, the social aspects. So if anyone would like > to add to my knowledge about what it is like to be a middle school student > with this condition, please feel free to > write and share your experiences with me. > > Some questions I'm wondering about right now are: Do people treat you > differently often? And if so, how do they treat you? Do you think it is > harder for boys or girls? Is there anything your teachers could have or > should have done differently in regards to your education? > > I will start with that, and if more questions arise, I hope you will not > mind if I post them. I really do appreciate anyone who is willing to take > the time to talk with me. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2008 Report Share Posted May 14, 2008 Thanks, Kathy. Ellen Ellen Garber Bronfeld egskb@... information Naperville is a long way for me, I am located in Southern IL, but I would hope any information about this matter or any others would be available on this site for me and others to find. I believe this is what this site is all about, INFORMATION, sharing that information, be it free or cost. We parents need to be more aware and get as envolved as we can to find out about anything that can make the lives of our sons and daughters better. I know it is a job, but it is one very worthwhile job, what better reward from a job could you have but to see your son and/or daughter get a life, a FULLER life, one that they deserve?!?!?! I am all for these items being shared on this site. Kathy Bissell Mother of Bellmann __________________________________________________________ Stay in touch when you're away with Windows Live Messenger. http://www.windowslive.com/messenger/overview.html?ocid=TXT_TAGLM_WL_Refresh_mes\ senger_052008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 Since I found out I had Hep C about 9mo. ago, I've been on a up and down roller coaster because of all the different things that one has to do after getting diognosed. The money is the biggest thing of all. If a person who already has insurance, things are alot easier to make decissions on than a person who don't have any. I unfortunatly fall into the non insured catagory but have been able to find out somethings that might help someone else here thatĀ has the same problem. First thing medications, all pharmaceutical companys have programs to help people that can't afford their medicines. There is also a web site that you can go to, type in the name of your meds and they help you find the company or organization that has programs to get your meds free or at a very low cost, this includes all medications. The site isĀ www.pparx.orgĀ Ā I have had great success with this site. It's Free Ā Also there is a company called Xubex that most of their genaric medicines are $20 or $30 for a three month supply. I have checked this company out with the BBB and it is rated the highest rating that the BBB gives a company. Check it out it's worth it. The second thing Dr. bills, most dr. offices have a program that go by your income for costs, of course they don't tell you about itĀ ( you have to ask ) and if they don't they may know a program that can help. Also the department of human service has a progam that after you have already got a huge hospital bill that if you quilify your bill is concidered forgiven and will be valid for a year to take care of further expences but only for that year. Hospitals also have what is called a hardship program that takes care of a outstanding debt. These things have to be asked for, they will not offer them to you. The key to getting the help you need is ASKING and research. As for me, I will be starting treatment within a couple weeks. Even though I have been newly diognosed we have figured out that I have had hep c for about 25yrs, getting it from a transfusion I got when my youngest daughter was born but just became active in the last five years. It's not something they regularly test for and because one dr. noticed a blood count that wasn't right decided to do the extra test. I have good days and I have bad days, some days I'm in bed all day. Other dr's couldn't figure out why I was always sick and never took the time to do that one test. I've done the biopsy and have regular visits with the liver specialist and my regular dr. When I start the medication I will be on the max dosage so this should be interesting to say the least. They say everyone handles it different so I listen to what everyone says about their experiance but take it day by day. I hope the information that I have given can help someone even if it's just to hear my experiance. I know it does me good to talk about it to someone. If anyone wants to talk, I'm on facebook under sheri sheeder and on my space under sheri105. I don't work cause of being sick all the time so I'm on the computer alot. Thanks, SheriĀ ( aka) Spots Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 Since I found out I had Hep C about 9mo. ago, I've been on a up and down roller coaster because of all the different things that one has to do after getting diognosed. The money is the biggest thing of all. If a person who already has insurance, things are alot easier to make decissions on than a person who don't have any. I unfortunatly fall into the non insured catagory but have been able to find out somethings that might help someone else here thatĀ has the same problem. First thing medications, all pharmaceutical companys have programs to help people that can't afford their medicines. There is also a web site that you can go to, type in the name of your meds and they help you find the company or organization that has programs to get your meds free or at a very low cost, this includes all medications. The site isĀ www.pparx.orgĀ Ā I have had great success with this site. It's Free Ā Also there is a company called Xubex that most of their genaric medicines are $20 or $30 for a three month supply. I have checked this company out with the BBB and it is rated the highest rating that the BBB gives a company. Check it out it's worth it. The second thing Dr. bills, most dr. offices have a program that go by your income for costs, of course they don't tell you about itĀ ( you have to ask ) and if they don't they may know a program that can help. Also the department of human service has a progam that after you have already got a huge hospital bill that if you quilify your bill is concidered forgiven and will be valid for a year to take care of further expences but only for that year. Hospitals also have what is called a hardship program that takes care of a outstanding debt. These things have to be asked for, they will not offer them to you. The key to getting the help you need is ASKING and research. As for me, I will be starting treatment within a couple weeks. Even though I have been newly diognosed we have figured out that I have had hep c for about 25yrs, getting it from a transfusion I got when my youngest daughter was born but just became active in the last five years. It's not something they regularly test for and because one dr. noticed a blood count that wasn't right decided to do the extra test. I have good days and I have bad days, some days I'm in bed all day. Other dr's couldn't figure out why I was always sick and never took the time to do that one test. I've done the biopsy and have regular visits with the liver specialist and my regular dr. When I start the medication I will be on the max dosage so this should be interesting to say the least. They say everyone handles it different so I listen to what everyone says about their experiance but take it day by day. I hope the information that I have given can help someone even if it's just to hear my experiance. I know it does me good to talk about it to someone. If anyone wants to talk, I'm on facebook under sheri sheeder and on my space under sheri105. I don't work cause of being sick all the time so I'm on the computer alot. Thanks, SheriĀ ( aka) Spots Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 Since I found out I had Hep C about 9mo. ago, I've been on a up and down roller coaster because of all the different things that one has to do after getting diognosed. The money is the biggest thing of all. If a person who already has insurance, things are alot easier to make decissions on than a person who don't have any. I unfortunatly fall into the non insured catagory but have been able to find out somethings that might help someone else here thatĀ has the same problem. First thing medications, all pharmaceutical companys have programs to help people that can't afford their medicines. There is also a web site that you can go to, type in the name of your meds and they help you find the company or organization that has programs to get your meds free or at a very low cost, this includes all medications. The site isĀ www.pparx.orgĀ Ā I have had great success with this site. It's Free Ā Also there is a company called Xubex that most of their genaric medicines are $20 or $30 for a three month supply. I have checked this company out with the BBB and it is rated the highest rating that the BBB gives a company. Check it out it's worth it. The second thing Dr. bills, most dr. offices have a program that go by your income for costs, of course they don't tell you about itĀ ( you have to ask ) and if they don't they may know a program that can help. Also the department of human service has a progam that after you have already got a huge hospital bill that if you quilify your bill is concidered forgiven and will be valid for a year to take care of further expences but only for that year. Hospitals also have what is called a hardship program that takes care of a outstanding debt. These things have to be asked for, they will not offer them to you. The key to getting the help you need is ASKING and research. As for me, I will be starting treatment within a couple weeks. Even though I have been newly diognosed we have figured out that I have had hep c for about 25yrs, getting it from a transfusion I got when my youngest daughter was born but just became active in the last five years. It's not something they regularly test for and because one dr. noticed a blood count that wasn't right decided to do the extra test. I have good days and I have bad days, some days I'm in bed all day. Other dr's couldn't figure out why I was always sick and never took the time to do that one test. I've done the biopsy and have regular visits with the liver specialist and my regular dr. When I start the medication I will be on the max dosage so this should be interesting to say the least. They say everyone handles it different so I listen to what everyone says about their experiance but take it day by day. I hope the information that I have given can help someone even if it's just to hear my experiance. I know it does me good to talk about it to someone. If anyone wants to talk, I'm on facebook under sheri sheeder and on my space under sheri105. I don't work cause of being sick all the time so I'm on the computer alot. Thanks, SheriĀ ( aka) Spots Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 Since I found out I had Hep C about 9mo. ago, I've been on a up and down roller coaster because of all the different things that one has to do after getting diognosed. The money is the biggest thing of all. If a person who already has insurance, things are alot easier to make decissions on than a person who don't have any. I unfortunatly fall into the non insured catagory but have been able to find out somethings that might help someone else here thatĀ has the same problem. First thing medications, all pharmaceutical companys have programs to help people that can't afford their medicines. There is also a web site that you can go to, type in the name of your meds and they help you find the company or organization that has programs to get your meds free or at a very low cost, this includes all medications. The site isĀ www.pparx.orgĀ Ā I have had great success with this site. It's Free Ā Also there is a company called Xubex that most of their genaric medicines are $20 or $30 for a three month supply. I have checked this company out with the BBB and it is rated the highest rating that the BBB gives a company. Check it out it's worth it. The second thing Dr. bills, most dr. offices have a program that go by your income for costs, of course they don't tell you about itĀ ( you have to ask ) and if they don't they may know a program that can help. Also the department of human service has a progam that after you have already got a huge hospital bill that if you quilify your bill is concidered forgiven and will be valid for a year to take care of further expences but only for that year. Hospitals also have what is called a hardship program that takes care of a outstanding debt. These things have to be asked for, they will not offer them to you. The key to getting the help you need is ASKING and research. As for me, I will be starting treatment within a couple weeks. Even though I have been newly diognosed we have figured out that I have had hep c for about 25yrs, getting it from a transfusion I got when my youngest daughter was born but just became active in the last five years. It's not something they regularly test for and because one dr. noticed a blood count that wasn't right decided to do the extra test. I have good days and I have bad days, some days I'm in bed all day. Other dr's couldn't figure out why I was always sick and never took the time to do that one test. I've done the biopsy and have regular visits with the liver specialist and my regular dr. When I start the medication I will be on the max dosage so this should be interesting to say the least. They say everyone handles it different so I listen to what everyone says about their experiance but take it day by day. I hope the information that I have given can help someone even if it's just to hear my experiance. I know it does me good to talk about it to someone. If anyone wants to talk, I'm on facebook under sheri sheeder and on my space under sheri105. I don't work cause of being sick all the time so I'm on the computer alot. Thanks, SheriĀ ( aka) Spots Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 sheri,i just wanted to tell you that im here for ya,after you start treatment...wish you all the best during thiat time!!! From: Sheri Sheeder <sherisheeder@...> Subject: Information Hepatitis C Date: Monday, February 22, 2010, 11:32 PM ĆĀ Since I found out I had Hep C about 9mo. ago, I've been on a up and down roller coaster because of all the different things that one has to do after getting diognosed. The money is the biggest thing of all. If a person who already has insurance, things are alot easier to make decissions on than a person who don't have any. I unfortunatly fall into the non insured catagory but have been able to find out somethings that might help someone else here thatĆĀ has the same problem. First thing medications, all pharmaceutical companys have programs to help people that can't afford their medicines. There is also a web site that you can go to, type in the name of your meds and they help you find the company or organization that has programs to get your meds free or at a very low cost, this includes all medications. The site isĆĀ www.pparx.orgĆĀ ĆĀ I have had great success with this site. It's Free ĆĀ Also there is a company called Xubex that most of their genaric medicines are $20 or $30 for a three month supply. I have checked this company out with the BBB and it is rated the highest rating that the BBB gives a company. Check it out it's worth it. The second thing Dr. bills, most dr. offices have a program that go by your income for costs, of course they don't tell you about itĆĀ ( you have to ask ) and if they don't they may know a program that can help. Also the department of human service has a progam that after you have already got a huge hospital bill that if you quilify your bill is concidered forgiven and will be valid for a year to take care of further expences but only for that year. Hospitals also have what is called a hardship program that takes care of a outstanding debt. These things have to be asked for, they will not offer them to you. The key to getting the help you need is ASKING and research. As for me, I will be starting treatment within a couple weeks. Even though I have been newly diognosed we have figured out that I have had hep c for about 25yrs, getting it from a transfusion I got when my youngest daughter was born but just became active in the last five years. It's not something they regularly test for and because one dr. noticed a blood count that wasn't right decided to do the extra test. I have good days and I have bad days, some days I'm in bed all day. Other dr's couldn't figure out why I was always sick and never took the time to do that one test. I've done the biopsy and have regular visits with the liver specialist and my regular dr. When I start the medication I will be on the max dosage so this should be interesting to say the least. They say everyone handles it different so I listen to what everyone says about their experiance but take it day by day. I hope the information that I have given can help someone even if it's just to hear my experiance. I know it does me good to talk about it to someone. If anyone wants to talk, I'm on facebook under sheri sheeder and on my space under sheri105. I don't work cause of being sick all the time so I'm on the computer alot. Thanks, SheriĆĀ ( aka) Spots Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 sheri,i just wanted to tell you that im here for ya,after you start treatment...wish you all the best during thiat time!!! From: Sheri Sheeder <sherisheeder@...> Subject: Information Hepatitis C Date: Monday, February 22, 2010, 11:32 PM ĆĀ Since I found out I had Hep C about 9mo. ago, I've been on a up and down roller coaster because of all the different things that one has to do after getting diognosed. The money is the biggest thing of all. If a person who already has insurance, things are alot easier to make decissions on than a person who don't have any. I unfortunatly fall into the non insured catagory but have been able to find out somethings that might help someone else here thatĆĀ has the same problem. First thing medications, all pharmaceutical companys have programs to help people that can't afford their medicines. There is also a web site that you can go to, type in the name of your meds and they help you find the company or organization that has programs to get your meds free or at a very low cost, this includes all medications. The site isĆĀ www.pparx.orgĆĀ ĆĀ I have had great success with this site. It's Free ĆĀ Also there is a company called Xubex that most of their genaric medicines are $20 or $30 for a three month supply. I have checked this company out with the BBB and it is rated the highest rating that the BBB gives a company. Check it out it's worth it. The second thing Dr. bills, most dr. offices have a program that go by your income for costs, of course they don't tell you about itĆĀ ( you have to ask ) and if they don't they may know a program that can help. Also the department of human service has a progam that after you have already got a huge hospital bill that if you quilify your bill is concidered forgiven and will be valid for a year to take care of further expences but only for that year. Hospitals also have what is called a hardship program that takes care of a outstanding debt. These things have to be asked for, they will not offer them to you. The key to getting the help you need is ASKING and research. As for me, I will be starting treatment within a couple weeks. Even though I have been newly diognosed we have figured out that I have had hep c for about 25yrs, getting it from a transfusion I got when my youngest daughter was born but just became active in the last five years. It's not something they regularly test for and because one dr. noticed a blood count that wasn't right decided to do the extra test. I have good days and I have bad days, some days I'm in bed all day. Other dr's couldn't figure out why I was always sick and never took the time to do that one test. I've done the biopsy and have regular visits with the liver specialist and my regular dr. When I start the medication I will be on the max dosage so this should be interesting to say the least. They say everyone handles it different so I listen to what everyone says about their experiance but take it day by day. I hope the information that I have given can help someone even if it's just to hear my experiance. I know it does me good to talk about it to someone. If anyone wants to talk, I'm on facebook under sheri sheeder and on my space under sheri105. I don't work cause of being sick all the time so I'm on the computer alot. Thanks, SheriĆĀ ( aka) Spots Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 sheri,i just wanted to tell you that im here for ya,after you start treatment...wish you all the best during thiat time!!! From: Sheri Sheeder <sherisheeder@...> Subject: Information Hepatitis C Date: Monday, February 22, 2010, 11:32 PM ĆĀ Since I found out I had Hep C about 9mo. ago, I've been on a up and down roller coaster because of all the different things that one has to do after getting diognosed. The money is the biggest thing of all. If a person who already has insurance, things are alot easier to make decissions on than a person who don't have any. I unfortunatly fall into the non insured catagory but have been able to find out somethings that might help someone else here thatĆĀ has the same problem. First thing medications, all pharmaceutical companys have programs to help people that can't afford their medicines. There is also a web site that you can go to, type in the name of your meds and they help you find the company or organization that has programs to get your meds free or at a very low cost, this includes all medications. The site isĆĀ www.pparx.orgĆĀ ĆĀ I have had great success with this site. It's Free ĆĀ Also there is a company called Xubex that most of their genaric medicines are $20 or $30 for a three month supply. I have checked this company out with the BBB and it is rated the highest rating that the BBB gives a company. Check it out it's worth it. The second thing Dr. bills, most dr. offices have a program that go by your income for costs, of course they don't tell you about itĆĀ ( you have to ask ) and if they don't they may know a program that can help. Also the department of human service has a progam that after you have already got a huge hospital bill that if you quilify your bill is concidered forgiven and will be valid for a year to take care of further expences but only for that year. Hospitals also have what is called a hardship program that takes care of a outstanding debt. These things have to be asked for, they will not offer them to you. The key to getting the help you need is ASKING and research. As for me, I will be starting treatment within a couple weeks. Even though I have been newly diognosed we have figured out that I have had hep c for about 25yrs, getting it from a transfusion I got when my youngest daughter was born but just became active in the last five years. It's not something they regularly test for and because one dr. noticed a blood count that wasn't right decided to do the extra test. I have good days and I have bad days, some days I'm in bed all day. Other dr's couldn't figure out why I was always sick and never took the time to do that one test. I've done the biopsy and have regular visits with the liver specialist and my regular dr. When I start the medication I will be on the max dosage so this should be interesting to say the least. They say everyone handles it different so I listen to what everyone says about their experiance but take it day by day. I hope the information that I have given can help someone even if it's just to hear my experiance. I know it does me good to talk about it to someone. If anyone wants to talk, I'm on facebook under sheri sheeder and on my space under sheri105. I don't work cause of being sick all the time so I'm on the computer alot. Thanks, SheriĆĀ ( aka) Spots Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 sheri,i just wanted to tell you that im here for ya,after you start treatment...wish you all the best during thiat time!!! From: Sheri Sheeder <sherisheeder@...> Subject: Information Hepatitis C Date: Monday, February 22, 2010, 11:32 PM ĆĀ Since I found out I had Hep C about 9mo. ago, I've been on a up and down roller coaster because of all the different things that one has to do after getting diognosed. The money is the biggest thing of all. If a person who already has insurance, things are alot easier to make decissions on than a person who don't have any. I unfortunatly fall into the non insured catagory but have been able to find out somethings that might help someone else here thatĆĀ has the same problem. First thing medications, all pharmaceutical companys have programs to help people that can't afford their medicines. There is also a web site that you can go to, type in the name of your meds and they help you find the company or organization that has programs to get your meds free or at a very low cost, this includes all medications. The site isĆĀ www.pparx.orgĆĀ ĆĀ I have had great success with this site. It's Free ĆĀ Also there is a company called Xubex that most of their genaric medicines are $20 or $30 for a three month supply. I have checked this company out with the BBB and it is rated the highest rating that the BBB gives a company. Check it out it's worth it. The second thing Dr. bills, most dr. offices have a program that go by your income for costs, of course they don't tell you about itĆĀ ( you have to ask ) and if they don't they may know a program that can help. Also the department of human service has a progam that after you have already got a huge hospital bill that if you quilify your bill is concidered forgiven and will be valid for a year to take care of further expences but only for that year. Hospitals also have what is called a hardship program that takes care of a outstanding debt. These things have to be asked for, they will not offer them to you. The key to getting the help you need is ASKING and research. As for me, I will be starting treatment within a couple weeks. Even though I have been newly diognosed we have figured out that I have had hep c for about 25yrs, getting it from a transfusion I got when my youngest daughter was born but just became active in the last five years. It's not something they regularly test for and because one dr. noticed a blood count that wasn't right decided to do the extra test. I have good days and I have bad days, some days I'm in bed all day. Other dr's couldn't figure out why I was always sick and never took the time to do that one test. I've done the biopsy and have regular visits with the liver specialist and my regular dr. When I start the medication I will be on the max dosage so this should be interesting to say the least. They say everyone handles it different so I listen to what everyone says about their experiance but take it day by day. I hope the information that I have given can help someone even if it's just to hear my experiance. I know it does me good to talk about it to someone. If anyone wants to talk, I'm on facebook under sheri sheeder and on my space under sheri105. I don't work cause of being sick all the time so I'm on the computer alot. Thanks, SheriĆĀ ( aka) Spots Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2011 Report Share Posted January 6, 2011 I am having some trouble downloading 's articles to the files section...feel free to email me if you would like me to send them to you. Ellen Ellen Garber Bronfeld egskb@... Information The " Guidance " article is scheduled to be published by Exceptional Parent in February or March. That article and the other documents are for your up-loading and/or sharing as you desire. ______________ Rubin* ___________________________________ The Law Offices of Rubin & Associates Law practice limited to serving the future & legal planning needs of Illinois families of children & adults with intellectual disabilities, developmental disabilities, & /or mental illness... (E) brian@... (W) www.SNFP.net (O) 847-279-7999 (F) 847-279-0090 (TF) 866.TO.RUBIN Mail: 1110 West Lake Cook Road, Buffalo Grove, Illinois 60089-1997 * Member by invitation of SNA, the Special Needs Alliance. (SNA is the national non-profit association of experienced " Special Needs Planning " Attorneys. Rubin is a member of SNA's Board of Directors.) Click for more information. * Member of the Special Needs Law Steering Committee of NAELA, the National Academy of Elder Law Attorneys. Click for more information * Rubin has been awarded the dale Hubbell Peer Review Rating of AV Preeminent, the highest rating given. Click for more information *For more information about Rubin, please visit www.SNFP.net. Notices: 1. This message does not create an attorney-client relationship, and is not legal advice absent such a relationship with the recipient. This message may contain confidential information protected by the attorney-client and/or work product privilege. The information is only for the use of the intended recipient. If you are not such recipient, disclosure, copying, distribution or reliance upon this e-mail is strictly prohibited. If you have received this transmission in error, please notify The Law Offices of Rubin & Associates by e-mail and destroy the original message and all copies. 2. IRS CIRCULAR 230 NOTICE: TO THE EXTENT THAT THIS MESSAGE OR ANY ATTACHMENT CONCERNS TAX MATTERS, IT IS NOT INTENDED TO BE USED AND CANNOT BE USED BY A TAXPAYER FOR THE PURPOSE OF AVOIDING PENALTIES THAT MAY BE IMPOSED BY LAW. 3. Disclaimer Regarding Electronic Signature. If this communication concerns negotiation of a contract or agreement, electronic signature rules do not apply to this communication: contract formation in this matter shall occur only with manually-affixed original signatures on original documents. The Signature given hereon is not an electronic signature and is provided only for the purposes of providing information as to the identity of the sender and for no other purpose(s) whatsoever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2012 Report Share Posted May 8, 2012 What led you to the Mayo? Didn't you go through Minnesota Gastroenterology and their monopoly in GI care in the state? Steve > > > Good Morning everyone. I joined this group a few weeks back, and wow, I finally feel like I am not alone with this horrible disease. > > > > My issues started as a young child (I can remember eating and throwing up regularly as young as 5). When I was 25 my lungs were 3/4 full of food and finally a Dr. figured out I was throwing up and it was going into my lungs. I went to Mayo in Rochester where I had a few different surgeries, I think that HM you all talk about and they cut the muscle into my stomach, made me a new flapper to keep stomach acids down etc. > > > > Now 6 years later I started having food stick so I went back for testing (barium, EDG etc.) and they found that my esophogus is so stretched and worn out it is now deforming and looks like a sink drain. So it goes down then makes a sharp 90 degree corner then has another length to go before emptying into my stomach. (My esophogus measures at 8 mm, the average is 2 mm) > > > > They told me my only option is to have my esophogus removed and to move my stomach up into it's place!?! Anybody know anything about this? I might agree to such a major body transformation at 80 but I am only 32 and scared. Looking for advice. > > > > > > > Quote Link to comment Share on other sites More sharing options...
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