Guest guest Report post Posted November 27, 2010 Hi Judy,         I know how you feel, when I tell my doctor about something that is happening he will just look at me and say " That means the medicine is working but your bloodwork is looking good so keep it up " it makes me want to ask if he has ever been through this treatment. Right now my Hep C is showing as undetectable but I still have to complete the treatment and I'm down to my last 9 weeks. I still have alot of days where I'm sick and very lonely, I get alot of support from my family but they don't feel the same way that I do so they don't know. Right now I'm getting ready to go to stay at my mom's for a couple weeks because my daughter is getting married in a week and a half and still has alot to do, plus I don't care how sick the medicine makes me, I will be there even if they have to prop me up some how. LOL.     I hope everyone had a great thanksgiving, I had three and still have enough left overs for another one but I'm glad it's done I'm totally wore out and stuffed.  Goodnight to all and God Bless          Sheri ________________________________ From: judy pouncy <hootie069@...> none group <Hepatitis C > Sent: Sat, November 27, 2010 2:34:43 PM Subject: Re: Hep C  , Thank you for responding. I feel so alone sometimes sometimes I wonder if the doctor understands Hep C treatment God Bless. Judy ________________________________ From: susan cairns <sjcairns2004@...> hootie069@... Sent: Fri, November 26, 2010 6:12:17 PM Subject: Re: Hep C iam glad treatmentis going good for you i have been on 2 first one didn't work second one got my white count down to a 2 and they took me off said if i would of stayed on i could of died, now waiting for new one to come out i should know in 2 weeks what my viral load is. >From: judy pouncy <hootie069@...> >Subject: Hep C > " none group " <Hepatitis C > >Date: Friday, November 26, 2010, 4:16 PM > > > >Good afternoon. > >I went to the doctor and now I have finished >24 weeks and I have another 24 weeks. > >November was a bad month I went to the emergency Nov 3 and >got IV, potassium,nausea in the IV and I feel so much better >after that. They reduced in half my medication, maybe >that's why I feel better but since this treatment I lost >40 lbs. Anyone else having this problem. > >God Bless you all. Judy > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 27, 2010 Hi Judy,         I know how you feel, when I tell my doctor about something that is happening he will just look at me and say " That means the medicine is working but your bloodwork is looking good so keep it up " it makes me want to ask if he has ever been through this treatment. Right now my Hep C is showing as undetectable but I still have to complete the treatment and I'm down to my last 9 weeks. I still have alot of days where I'm sick and very lonely, I get alot of support from my family but they don't feel the same way that I do so they don't know. Right now I'm getting ready to go to stay at my mom's for a couple weeks because my daughter is getting married in a week and a half and still has alot to do, plus I don't care how sick the medicine makes me, I will be there even if they have to prop me up some how. LOL.     I hope everyone had a great thanksgiving, I had three and still have enough left overs for another one but I'm glad it's done I'm totally wore out and stuffed.  Goodnight to all and God Bless          Sheri ________________________________ From: judy pouncy <hootie069@...> none group <Hepatitis C > Sent: Sat, November 27, 2010 2:34:43 PM Subject: Re: Hep C  , Thank you for responding. I feel so alone sometimes sometimes I wonder if the doctor understands Hep C treatment God Bless. Judy ________________________________ From: susan cairns <sjcairns2004@...> hootie069@... Sent: Fri, November 26, 2010 6:12:17 PM Subject: Re: Hep C iam glad treatmentis going good for you i have been on 2 first one didn't work second one got my white count down to a 2 and they took me off said if i would of stayed on i could of died, now waiting for new one to come out i should know in 2 weeks what my viral load is. >From: judy pouncy <hootie069@...> >Subject: Hep C > " none group " <Hepatitis C > >Date: Friday, November 26, 2010, 4:16 PM > > > >Good afternoon. > >I went to the doctor and now I have finished >24 weeks and I have another 24 weeks. > >November was a bad month I went to the emergency Nov 3 and >got IV, potassium,nausea in the IV and I feel so much better >after that. They reduced in half my medication, maybe >that's why I feel better but since this treatment I lost >40 lbs. Anyone else having this problem. > >God Bless you all. Judy > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 27, 2010 The best thing for a doctor who seems unimformed is an informed patient. Go to www.hcvadvocate.org. Look for 'questions for Your Doctor " . Asking the doctor questions will get him/her researching to give you answers, if not....Fire the doctor and get another one. Glenn > > >From: judy pouncy <hootie069@...> > >Subject: Hep C > > " none group " <Hepatitis C > > >Date: Friday, November 26, 2010, 4:16 PM > > > > > > > >Good afternoon. > > > >I went to the doctor and now I have finished > >24 weeks and I have another 24 weeks. > > > >November was a bad month I went to the emergency Nov 3 and > >got IV, potassium,nausea in the IV and I feel so much better > >after that. They reduced in half my medication, maybe > >that's why I feel better but since this treatment I lost > >40 lbs. Anyone else having this problem. > > > >God Bless you all. Judy > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 27, 2010 The best thing for a doctor who seems unimformed is an informed patient. Go to www.hcvadvocate.org. Look for 'questions for Your Doctor " . Asking the doctor questions will get him/her researching to give you answers, if not....Fire the doctor and get another one. Glenn > > >From: judy pouncy <hootie069@...> > >Subject: Hep C > > " none group " <Hepatitis C > > >Date: Friday, November 26, 2010, 4:16 PM > > > > > > > >Good afternoon. > > > >I went to the doctor and now I have finished > >24 weeks and I have another 24 weeks. > > > >November was a bad month I went to the emergency Nov 3 and > >got IV, potassium,nausea in the IV and I feel so much better > >after that. They reduced in half my medication, maybe > >that's why I feel better but since this treatment I lost > >40 lbs. Anyone else having this problem. > > > >God Bless you all. Judy > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 27, 2010 The best thing for a doctor who seems unimformed is an informed patient. Go to www.hcvadvocate.org. Look for 'questions for Your Doctor " . Asking the doctor questions will get him/her researching to give you answers, if not....Fire the doctor and get another one. Glenn > > >From: judy pouncy <hootie069@...> > >Subject: Hep C > > " none group " <Hepatitis C > > >Date: Friday, November 26, 2010, 4:16 PM > > > > > > > >Good afternoon. > > > >I went to the doctor and now I have finished > >24 weeks and I have another 24 weeks. > > > >November was a bad month I went to the emergency Nov 3 and > >got IV, potassium,nausea in the IV and I feel so much better > >after that. They reduced in half my medication, maybe > >that's why I feel better but since this treatment I lost > >40 lbs. Anyone else having this problem. > > > >God Bless you all. Judy > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 27, 2010 The best thing for a doctor who seems unimformed is an informed patient. Go to www.hcvadvocate.org. Look for 'questions for Your Doctor " . Asking the doctor questions will get him/her researching to give you answers, if not....Fire the doctor and get another one. Glenn > > >From: judy pouncy <hootie069@...> > >Subject: Hep C > > " none group " <Hepatitis C > > >Date: Friday, November 26, 2010, 4:16 PM > > > > > > > >Good afternoon. > > > >I went to the doctor and now I have finished > >24 weeks and I have another 24 weeks. > > > >November was a bad month I went to the emergency Nov 3 and > >got IV, potassium,nausea in the IV and I feel so much better > >after that. They reduced in half my medication, maybe > >that's why I feel better but since this treatment I lost > >40 lbs. Anyone else having this problem. > > > >God Bless you all. Judy > > > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 28, 2010 Hi, Sheri. My white blood count is now 2 but before it has gone down to 1.8 and the doctor said all is fine. Blessings and prayers, Judy ----- Forwarded Message ---- From: Sheri Sheeder <sherisheeder@...> Hepatitis C Sent: Sat, November 27, 2010 4:56:05 PM Subject: Re: Hep C Hi Judy,         I know how you feel, when I tell my doctor about something that is happening he will just look at me and say " That means the medicine is working but your bloodwork is looking good so keep it up " it makes me want to ask if he has ever been through this treatment. Right now my Hep C is showing as undetectable but I still have to complete the treatment and I'm down to my last 9 weeks. I still have alot of days where I'm sick and very lonely, I get alot of support from my family but they don't feel the same way that I do so they don't know. Right now I'm getting ready to go to stay at my mom's for a couple weeks because my daughter is getting married in a week and a half and still has alot to do, plus I don't care how sick the medicine makes me, I will be there even if they have to prop me up some how. LOL.     I hope everyone had a great thanksgiving, I had three and still have enough left overs for another one but I'm glad it's done I'm totally wore out and stuffed.  Goodnight to all and God Bless          Sheri ________________________________ From: judy pouncy <hootie069@...> none group <Hepatitis C > Sent: Sat, November 27, 2010 2:34:43 PM Subject: Re: Hep C  , Thank you for responding. I feel so alone sometimes sometimes I wonder if the doctor understands Hep C treatment God Bless. Judy ________________________________ From: susan cairns <sjcairns2004@...> hootie069@... Sent: Fri, November 26, 2010 6:12:17 PM Subject: Re: Hep C iam glad treatmentis going good for you i have been on 2 first one didn't work second one got my white count down to a 2 and they took me off said if i would of stayed on i could of died, now waiting for new one to come out i should know in 2 weeks what my viral load is. >From: judy pouncy <hootie069@...> >Subject: Hep C > " none group " <Hepatitis C > >Date: Friday, November 26, 2010, 4:16 PM > > > >Good afternoon. > >I went to the doctor and now I have finished >24 weeks and I have another 24 weeks. > >November was a bad month I went to the emergency Nov 3 and >got IV, potassium,nausea in the IV and I feel so much better >after that. They reduced in half my medication, maybe >that's why I feel better but since this treatment I lost >40 lbs. Anyone else having this problem. > >God Bless you all. Judy > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 28, 2010 Hi, Sheri. My white blood count is now 2 but before it has gone down to 1.8 and the doctor said all is fine. Blessings and prayers, Judy ----- Forwarded Message ---- From: Sheri Sheeder <sherisheeder@...> Hepatitis C Sent: Sat, November 27, 2010 4:56:05 PM Subject: Re: Hep C Hi Judy,         I know how you feel, when I tell my doctor about something that is happening he will just look at me and say " That means the medicine is working but your bloodwork is looking good so keep it up " it makes me want to ask if he has ever been through this treatment. Right now my Hep C is showing as undetectable but I still have to complete the treatment and I'm down to my last 9 weeks. I still have alot of days where I'm sick and very lonely, I get alot of support from my family but they don't feel the same way that I do so they don't know. Right now I'm getting ready to go to stay at my mom's for a couple weeks because my daughter is getting married in a week and a half and still has alot to do, plus I don't care how sick the medicine makes me, I will be there even if they have to prop me up some how. LOL.     I hope everyone had a great thanksgiving, I had three and still have enough left overs for another one but I'm glad it's done I'm totally wore out and stuffed.  Goodnight to all and God Bless          Sheri ________________________________ From: judy pouncy <hootie069@...> none group <Hepatitis C > Sent: Sat, November 27, 2010 2:34:43 PM Subject: Re: Hep C  , Thank you for responding. I feel so alone sometimes sometimes I wonder if the doctor understands Hep C treatment God Bless. Judy ________________________________ From: susan cairns <sjcairns2004@...> hootie069@... Sent: Fri, November 26, 2010 6:12:17 PM Subject: Re: Hep C iam glad treatmentis going good for you i have been on 2 first one didn't work second one got my white count down to a 2 and they took me off said if i would of stayed on i could of died, now waiting for new one to come out i should know in 2 weeks what my viral load is. >From: judy pouncy <hootie069@...> >Subject: Hep C > " none group " <Hepatitis C > >Date: Friday, November 26, 2010, 4:16 PM > > > >Good afternoon. > >I went to the doctor and now I have finished >24 weeks and I have another 24 weeks. > >November was a bad month I went to the emergency Nov 3 and >got IV, potassium,nausea in the IV and I feel so much better >after that. They reduced in half my medication, maybe >that's why I feel better but since this treatment I lost >40 lbs. Anyone else having this problem. > >God Bless you all. Judy > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 28, 2010 Hi, Sheri. My white blood count is now 2 but before it has gone down to 1.8 and the doctor said all is fine. Blessings and prayers, Judy ----- Forwarded Message ---- From: Sheri Sheeder <sherisheeder@...> Hepatitis C Sent: Sat, November 27, 2010 4:56:05 PM Subject: Re: Hep C Hi Judy,         I know how you feel, when I tell my doctor about something that is happening he will just look at me and say " That means the medicine is working but your bloodwork is looking good so keep it up " it makes me want to ask if he has ever been through this treatment. Right now my Hep C is showing as undetectable but I still have to complete the treatment and I'm down to my last 9 weeks. I still have alot of days where I'm sick and very lonely, I get alot of support from my family but they don't feel the same way that I do so they don't know. Right now I'm getting ready to go to stay at my mom's for a couple weeks because my daughter is getting married in a week and a half and still has alot to do, plus I don't care how sick the medicine makes me, I will be there even if they have to prop me up some how. LOL.     I hope everyone had a great thanksgiving, I had three and still have enough left overs for another one but I'm glad it's done I'm totally wore out and stuffed.  Goodnight to all and God Bless          Sheri ________________________________ From: judy pouncy <hootie069@...> none group <Hepatitis C > Sent: Sat, November 27, 2010 2:34:43 PM Subject: Re: Hep C  , Thank you for responding. I feel so alone sometimes sometimes I wonder if the doctor understands Hep C treatment God Bless. Judy ________________________________ From: susan cairns <sjcairns2004@...> hootie069@... Sent: Fri, November 26, 2010 6:12:17 PM Subject: Re: Hep C iam glad treatmentis going good for you i have been on 2 first one didn't work second one got my white count down to a 2 and they took me off said if i would of stayed on i could of died, now waiting for new one to come out i should know in 2 weeks what my viral load is. >From: judy pouncy <hootie069@...> >Subject: Hep C > " none group " <Hepatitis C > >Date: Friday, November 26, 2010, 4:16 PM > > > >Good afternoon. > >I went to the doctor and now I have finished >24 weeks and I have another 24 weeks. > >November was a bad month I went to the emergency Nov 3 and >got IV, potassium,nausea in the IV and I feel so much better >after that. They reduced in half my medication, maybe >that's why I feel better but since this treatment I lost >40 lbs. Anyone else having this problem. > >God Bless you all. Judy > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 28, 2010 Hi, Sheri. My white blood count is now 2 but before it has gone down to 1.8 and the doctor said all is fine. Blessings and prayers, Judy ----- Forwarded Message ---- From: Sheri Sheeder <sherisheeder@...> Hepatitis C Sent: Sat, November 27, 2010 4:56:05 PM Subject: Re: Hep C Hi Judy,         I know how you feel, when I tell my doctor about something that is happening he will just look at me and say " That means the medicine is working but your bloodwork is looking good so keep it up " it makes me want to ask if he has ever been through this treatment. Right now my Hep C is showing as undetectable but I still have to complete the treatment and I'm down to my last 9 weeks. I still have alot of days where I'm sick and very lonely, I get alot of support from my family but they don't feel the same way that I do so they don't know. Right now I'm getting ready to go to stay at my mom's for a couple weeks because my daughter is getting married in a week and a half and still has alot to do, plus I don't care how sick the medicine makes me, I will be there even if they have to prop me up some how. LOL.     I hope everyone had a great thanksgiving, I had three and still have enough left overs for another one but I'm glad it's done I'm totally wore out and stuffed.  Goodnight to all and God Bless          Sheri ________________________________ From: judy pouncy <hootie069@...> none group <Hepatitis C > Sent: Sat, November 27, 2010 2:34:43 PM Subject: Re: Hep C  , Thank you for responding. I feel so alone sometimes sometimes I wonder if the doctor understands Hep C treatment God Bless. Judy ________________________________ From: susan cairns <sjcairns2004@...> hootie069@... Sent: Fri, November 26, 2010 6:12:17 PM Subject: Re: Hep C iam glad treatmentis going good for you i have been on 2 first one didn't work second one got my white count down to a 2 and they took me off said if i would of stayed on i could of died, now waiting for new one to come out i should know in 2 weeks what my viral load is. >From: judy pouncy <hootie069@...> >Subject: Hep C > " none group " <Hepatitis C > >Date: Friday, November 26, 2010, 4:16 PM > > > >Good afternoon. > >I went to the doctor and now I have finished >24 weeks and I have another 24 weeks. > >November was a bad month I went to the emergency Nov 3 and >got IV, potassium,nausea in the IV and I feel so much better >after that. They reduced in half my medication, maybe >that's why I feel better but since this treatment I lost >40 lbs. Anyone else having this problem. > >God Bless you all. Judy > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 19, 2012 most CFS specialists would do it without asking but everyday doctors probably wouldn't... ________________________________ From: grammie2304 <sarawilliams.williams@...> Sent: Saturday, May 19, 2012 8:11:00 AM Subject: Hep C Â I am NOT the medical mind most of you have----------that said, new report suggests seniors get tested for Hep C. Is that test a normal one, which our doctors do on routine?----meaning our CFS MD's. OR is it something we need to ask for? God Bless, Sara Quote Share this post Link to post Share on other sites
Guest guest Report post Posted May 19, 2012 Hi,  I am hcv positive, dx'd in 2002.  Baby boomers have the highest rates of hcv, though older seniors are very underdiagnosed.  The screening test for Hep c did not come out until 1992 so you might be at risk if you have had:  A blood transfusion prior to 1992.  Shared needles for intravenous drug use (even one incident) years ago  Shared straws for inhaling cocaine  Had body piercings or tattoos with nonsterile equipment  Had hemodialysis  Had frequent exposure to blood products (due to hemophilia, chronic renal failure, chemotherapy, organ transplantation, or any other reason  Had a needle sticking incident (health care workers at high risk)  Used an infected person's toothbrush, razor, or other item that had blood on it  Engaged in high-risk sexual behavior, such as having multiple partners and using no protection    I would urge everyone to get tested. Hep C usually has no symptoms until it is advanced. I probably contracted it in the early 70's from IV drug use, but did not have any symptoms or  problems until 2002, when I was diagnosed. BTW, I had extreme fatigue when I was dx'd.   I've been using 3 mg. Low Dose Naltrexone, along with supplements and diet to treat my HCV and have had great results. Viral load dropped from 2 million to 11,000-44,000 and liver enzymes normal.  I chose not to do the current interferon/protease inhibitor treatment and am waiting for the non-side-effect/100% successful stuff down the line. But I plan on taking LDN for the rest of my life.  Nola Chris  http://nolahepper.blogspot.com/2010/06/treating-hepatitis-c-with-low-dose.html Hep C  I am NOT the medical mind most of you have----------that said, new report suggests seniors get tested for Hep C. Is that test a normal one, which our doctors do on routine?----meaning our CFS MD's. OR is it something we need to ask for? God Bless, Sara Quote Share this post Link to post Share on other sites
