Re: (unknown)

[Guest guest]

Me too, although I think at least for , Granny's right, it's

just becoming a teenager (since I don't have any boys, I don't know how

they act at this age, but am quite familiar with 13 year girls!)

gets teary eyed about the littlest things, cries easily, runs

to her room and slams the door, and backtalks EVERYTHING! Even

something little like " don't forget to close your bedroom door " get a

nasty " well, I'm not the one who opened it " (which is ridiculous, she

has her own room and no one else goes in there!). Contrary about

everything, argues about everything, screams at siblings (occasionally,

but never in the past.) Trying to be sneaky, especially with food (What

are you eating? Nothing. Why are your hands behind your back? They're

not. Really?) Arrrgggggghhhh Where did my sweet go? But,

her big sister came around, I'm guessing will too, just taking

more time at this stage, since it seems like every stage takes longer!

Certainly the stress and uncertainty is probably making things worse for

Austin, so hopefully as the new school year goes on, and he gets more

settled, things will improve a little. You guys have been through a

lot, which would challenge any kid, but it sounds like you've got a good

thing going for your family right now! Also, I'm guessing Austin's twin

is not acting so teenager ish? I don't know what others found with

sibs, but compared to 's friends, is a delightful teen (not

perfect, but when I hear what other moms say about their high school

girls......). When started acting more teen-like,

seemed to get better quickly... not sure if she saw how silly it all

was, saw my frustration and rose to the occasion, or what. Plus, I

think having a sib with DS has made her a little more grounded than some

of her friends, so overall, her behavior at 's age was

better... don't think 's is worse because of the DS, but

's was better!

I agree with whomever said the teen TV shows are full of bad

attitude..... we've seen this year so many phrases that I know come

staight from the TV... when she was younger, it was cute, and we were

happy that she was recall these things and using them appropriately.....

not so cute anymore! When she said " you are ruining my life " I knew.......

mom to (almost 15), (12 DS), and Sammy (11 tomorrow!)

On 9/3/2010 6:57 AM, kym mac wrote:

>

> Beth,

>

> ((((hugs))) I await responses with baited breath. is just starting

> some of this behavior too. He is 13 1/2 years old. He's been less patient

> and more moody for a while, but now there is door slamming, some yelling,

> and this is so not like him.

>

> Anxious to hear what others have to say.

>

> Kym...mom to five including (13 w/ DS)

>

> (unknown)

>

> Hey all...long time no see. I'm Beth, mom to Austin, 13/ds and Dakota, 13,

> nonds. My, has the list grown. At one time, before life got hectic, I was

> actively involved. I hope to be again. Not that life has settled down

> much,

> just changed. But last night, Austin had a major melt down, like never

> seen

> before, and I need some help. Please.

>

> I said big changes, and I meant that. The boys and I now live in the

> Florida

> Keys. Their father lives 5 hours away by car. I had major leg surgery in

> June,

> so the boys went to Indiana for a month, then spent 3 weeks with their

> dad

> while

> I recovered. To further add stress to Austin, I am a relationship with a

> great

> man, who is active with both boys, engages them in all we do, and we all

> live

> together. Its not perfect, but in all, it's going pretty well. New school

> too.

> So many changes for Austin, and I think he's having a really hard time

> with

> it

> all. His father hasn't called in two weeks.

>

> So, we were eating dinner. Austin started holding his fork like a shovel,

> getting food everywhere, putting feet on table, yeah, gotta love that

> flexibility...doing everything wrong that he can think of. Yes, i'm

> sure it

> was

> intentional. So, when Nick and I both told him to eat right, he got

> defiant.

> Ended up yelling, running to his room, trying to lock me out, and in

> this,

> he

> was mean. Down right mean. Never seen him like this. He made mention

> of his

> dad,

> and I think that's the major problem, but he would rant for a sec,

> then talk

> about aliens and his spiderman web, call 911 so he can get his

> web...etc. If

> it

> wasn't so frustrating and heartbreaking, I probably would have

> laughed...but

> it's not really funny.

>

> It's been building, starting with when asked to take out trash or help

> clean

> the

> pool he would say awe man, etc...steady backmouthing getting worse,

> now this

> melt down. Any insight would be welcomed. How do I connect with him? This

> morning he woke up aware of his actions, felt bad, apologized. And we know

> punishment like taking away video games for a week doesn't work, but

> how do

> I

> get him to understand that acting that way isn't appropriate? Oh, guys,

> help...

>

>

[Guest guest]

Beth my birthday twin. Its been awhile. You and the boys have been through a

lot. First of all the behaviors are

probably hormonal and he doesn't understand how to handle them. Which is kinda

what everyone else is saying. Second, since his

dad is not there, he is probably reacting to that. is 20 and still acts

out about Ralph not being there. So what I would suggest is therapy or

counseling which really helps deal with all the changes and frustrations.

Good luck. Keep us posted.

Sent via BlackBerry by AT & T

(unknown)

Hey all...long time no see. I'm Beth, mom to Austin, 13/ds and Dakota, 13,

nonds. My, has the list grown. At one time, before life got hectic, I was

actively involved. I  hope to be again. Not that life has settled down much,

just changed.  But last night, Austin had a major melt down, like never seen

before, and I need some help. Please.

I said big changes, and I meant that. The boys and I now live in the Florida

Keys. Their father lives 5 hours away by car. I had major leg surgery in June,

so the boys went to Indiana for a month, then spent 3 weeks with their dad while

I recovered. To further add stress to Austin, I am a relationship with a great

man, who is active with both boys, engages them in all we do, and we all live

together. Its not perfect, but in all, it's going pretty well. New school too.

So many changes for Austin, and I think he's having a really hard time with it

all. His father hasn't called in two weeks.

So, we were eating dinner. Austin started holding his fork like a shovel,

getting food everywhere, putting feet on table, yeah, gotta love that

flexibility...doing everything wrong that he can think of. Yes, i'm sure it was

intentional. So, when Nick and I both told him to eat right, he got defiant.

Ended up yelling, running to his room, trying to lock me out, and in this, he

was mean. Down right mean. Never seen him like this. He made mention of his dad,

and I think that's the major problem, but he would rant for a sec, then talk

about aliens and his spiderman web, call 911 so he can get his web...etc. If it

wasn't so frustrating and heartbreaking, I probably would have laughed...but

it's not really funny.

It's been building, starting with when asked to take out trash or help clean the

pool he would say awe man, etc...steady backmouthing getting worse, now this

melt down. Any insight would be welcomed. How do I connect with him? This

morning he woke up aware of his actions, felt bad, apologized. And we know

punishment like taking away video games for a week doesn't work, but how do I

get him to understand that acting that way isn't appropriate? Oh, guys, help...

[Guest guest]

Welcome to puberty!  That said...it's not easy and all the changed in his life

have got to have made everything tht much worse.  Having been through puberty

with 4 now my advicde it " stick to itivness "   Keep talking...talking,..talking

to him and stand firm.  I don't know where Austin is at developmentally but I

would require respect from him.  Tell him he is allowed to be angry but give

him a way to do that.  Punching bag...etc.   And punish him according to his

develomental age.  If that is at like an 8 year old level take...say...the

television away from him or something he really loves.  Micah is 10 and we

still do time outs because they work for him.  He sits and 'thinks' then we

have another talk.  I know it is tough and I am not looking forward to it yet

again.  Can't even contemplate Micah with his tiny stature going through

puberty.

 

Loree

(unknown)

  Hey all...long time no see. I'm Beth, mom to Austin, 13/ds and Dakota, 13,

nonds. My, has the list grown. At one time, before life got hectic, I was

actively involved. I  hope to be again. Not that life has settled down much,

just changed.  But last night, Austin had a major melt down, like never seen

before, and I need some help. Please.

I said big changes, and I meant that. The boys and I now live in the Florida

Keys. Their father lives 5 hours away by car. I had major leg surgery in June,

so the boys went to Indiana for a month, then spent 3 weeks with their dad while

I recovered. To further add stress to Austin, I am a relationship with a great

man, who is active with both boys, engages them in all we do, and we all live

together. Its not perfect, but in all, it's going pretty well. New school too.

So many changes for Austin, and I think he's having a really hard time with it

all. His father hasn't called in two weeks.

So, we were eating dinner. Austin started holding his fork like a shovel,

getting food everywhere, putting feet on table, yeah, gotta love that

flexibility...doing everything wrong that he can think of. Yes, i'm sure it was

intentional. So, when Nick and I both told him to eat right, he got defiant.

Ended up yelling, running to his room, trying to lock me out, and in this, he

was mean. Down right mean. Never seen him like this. He made mention of his dad,

and I think that's the major problem, but he would rant for a sec, then talk

about aliens and his spiderman web, call 911 so he can get his web...etc. If it

wasn't so frustrating and heartbreaking, I probably would have laughed...but

it's not really funny.

It's been building, starting with when asked to take out trash or help clean the

pool he would say awe man, etc...steady backmouthing getting worse, now this

melt down. Any insight would be welcomed. How do I connect with him? This

morning he woke up aware of his actions, felt bad, apologized. And we know

punishment like taking away video games for a week doesn't work, but how do I

get him to understand that acting that way isn't appropriate? Oh, guys, help...

[Guest guest]

Set boundaries now, otherwise you will end up with a young adult very

stubborn and determine to do what he wants. I can't remember Trent ever

throwing a major hissy fit except when he came home from a school trip where

he had been exposed to another young person with major behavioural issues.

How did I handle these out of the blue things, firstly I didn't react at the

time (or at least didn't try to) unless it was something like slamming a

door. Door slamming is something I will not tolerate and would make him go

back and enter the room appropriately. After he had calmed down I would

talk to him saying something on the lines, how I was disappointed/did not

like the way he did xyz and if he wanted me to do whatever with him (ie

drive him to bowling) he had to think about what he was doing.

Trent will also at times not use his cutlery properly - clasping his knife

and fork as if he has cp. We usually just remind him to hold them properly,

sometimes just mentioning his name is enough.

I don't think you achieved anything by following him into his room, if

anything you probably made him more upset. I personally would have let him

go, continued eating my meal and cleaned up either putting his meal aside or

throwing it out (depending on my mood).

I suppose one way to try and figure out how to help him and you - think

how you would like to be treated under the circumstances. I am also

wondering if Nick hadn't commented would Austin have reacted the same, to

Austin (as with any kid) , Nick is a 'nothing' and has no rights to say

anything. Nick has to be Austin's friend not a disciplinarian - that is

your job. Also, if Austin was to see Nick more as a friend, a quick

comment from Nick such as 'hey mate that isn't the way we do things' may

work better than him seeing another adult picking on him.

As Austin's father hasn't called in a couple of weeks, could Austin phone

him? Does it have to be a one way thing? Trent loves to keep in touch with

his siblings and will often phone them just for a quick chat or for me to

chat and him to listen in - a great way for him to find out lots about what

is going on in the family.

I hope my thoughts have helped you a little - the main thing is stay calm

and remember to treat Austin as the teenager he is.

Keep smiling

Jan, mother of Trent 26yo w/Ds from the LandDownUnder

From: [mailto: ] On Behalf

Of Beth Jackman

Sent: Friday, 3 September 2010 10:53 PM

Subject: (unknown)

Hey all...long time no see. I'm Beth, mom to Austin, 13/ds and Dakota, 13,

nonds. My, has the list grown. At one time, before life got hectic, I was

actively involved. I hope to be again. Not that life has settled down much,

just changed. But last night, Austin had a major melt down, like never seen

before, and I need some help. Please.

I said big changes, and I meant that. The boys and I now live in the Florida

Keys. Their father lives 5 hours away by car. I had major leg surgery in

June,

so the boys went to Indiana for a month, then spent 3 weeks with their dad

while

I recovered. To further add stress to Austin, I am a relationship with a

great

man, who is active with both boys, engages them in all we do, and we all

live

together. Its not perfect, but in all, it's going pretty well. New school

too.

So many changes for Austin, and I think he's having a really hard time with

it

all. His father hasn't called in two weeks.

So, we were eating dinner. Austin started holding his fork like a shovel,

getting food everywhere, putting feet on table, yeah, gotta love that

flexibility...doing everything wrong that he can think of. Yes, i'm sure it

was

intentional. So, when Nick and I both told him to eat right, he got defiant.

Ended up yelling, running to his room, trying to lock me out, and in this,

he

was mean. Down right mean. Never seen him like this. He made mention of his

dad,

and I think that's the major problem, but he would rant for a sec, then talk

about aliens and his spiderman web, call 911 so he can get his web...etc. If

it

wasn't so frustrating and heartbreaking, I probably would have laughed...but

it's not really funny.

It's been building, starting with when asked to take out trash or help clean

the

pool he would say awe man, etc...steady backmouthing getting worse, now this

melt down. Any insight would be welcomed. How do I connect with him? This

morning he woke up aware of his actions, felt bad, apologized. And we know

punishment like taking away video games for a week doesn't work, but how do

I

get him to understand that acting that way isn't appropriate? Oh, guys,

help...

[Guest guest]

No chelator is mild in a toxic child and should always to dosed according to half life which for DMPS is every 8 hours. TD DMPS is good stuff in my opinion but only 8 hourly round the clock, we give at 8.00am, 4.00pm and midnight to work around school days.

The danger comes from mobilising metals and not having enough chelator in the bloodstream to carry them away. Dosing other than 8 hourly is risking redistribution of metals, maybe to worse places than where they started. Most doctors are unaware of this including ones calling themselves DAN's. Excellent support and files section at these groups

RecoveryFromAutism/

http://home.earthlink.net/~moriam/

I'm an old timer with chelation, if I am talking with forked tongue please ask more questions

Mandi in Dorset

In a message dated 05/09/2010 23:00:44 GMT Daylight Time, sindhukan@... writes:

sorry to get back late, YES, the dosing is suggested by our doctor. Do you think dosing is not right? how this dose can be dangerous? What is the right dosage for TD-DMPS?, doctor told us that its a mild form of DMPS with glutathione. Any suggestion wii be helpful

[Guest guest]

sorry to get back late, YES, the dosing is suggested by our doctor. Do you think dosing is not right? how this dose can be dangerous? What is the right dosage for TD-DMPS?, doctor told us that its a mild form of DMPS with glutathione. Any suggestion wii be helpful

Thanks for replying, her x fragile came out negative. She has lot of antimony toxicity in her blood and very few good bacteria.

Hmm this is interesting as I've been a tooth grinder for sometime now and my hairtest showed high antimony as well.

She is on mild TD-DMPS,

i dont understand how is TD-DMPS mild? Which dose is this please? Has to be taken every 8 hours.

glutathione,probiotics,prebiotics and nutritional supplements.

Have any of the supplements that you give your daughter changed since the teeth grinding issue came up? Some patients react badly to glutathione and need milk thistle or something more gentle instead. Could you list what she is on and the doses please?"children with starving brains" has excellent supplement mineral levels for autistics. However the DAN! protocol is less effective than the AC one which i have been following for the past 3 months.

Just because your child is non verbal doesn't mean the professionals have to pass her off as being unable to communicate. Non verbal communication does exist, the bruxism for example is communicating something to you.Are you on a b12 protocol? Some parents find that helps their kids to speak. For me it helped me find the words and remember what i was going to say (so i interrupted less) than pre b12.-- is

[Guest guest]

On 5 September 2010 23:00, Sindhu Kan <sindhukan@...> wrote:

sorry to get back late, YES, the dosing is suggested by our doctor. Do you think dosing is not right? how this dose can be dangerous? What is the right dosage for TD-DMPS?,  doctor told us that its a mild form of DMPS with glutathione. Any suggestion wii be helpful

** You haven't mentioned what dosage of TD-DMPS your daughter is on. The timing is wrong (has to be every 8 hours) whether the dosage is right depends on the patient.

-- is

[Guest guest]

  I hate those meltdowns! I have 6 sons; 23, 22, 18,16,13,9 and 2 girls ; ages 6

and 4 {DS}. Meltdowns have happened to us with each 13 year old and I expect it

now. We have moved around alot since my husband was military during most of our

marriage. After he retired out of the military we still had to move around for

different jobs/ promotions and my baby daughters health as well. Moves are

always hard on families and a nightmare for teenagers. First their hormones are

all over the place and their bodies are changing constantly from one extreme to

the next. Moving complicates everything and brings out alot of feelings that a

13 year old boy may not khow to express. Also your son is having to get use to a

new family member and a new school/ home/ town/ kids. Of course, divorce is

really hard on teenagers as well. Most children tend to blame themselves for

their parents divorce. Also, your son might be having problems with the fact

that his dad doesn't

contact him on a regular bases. Everything rolled into one and that creates a

meltdown in the teenage brain. He gave you an apology and thats huge since he

realizes that he wasn't right. All you can do is try to be there for him and

talk with him about all these new things that are happening in his life right

now. Keep him as busy as you can; every teenage boy needs to be busy. I enrolled

my teenagers in karate classes or soccer teams and baseball/ basketball/

football/ wrestling. Anything thats gives them a " release " of all their extra

energy/ anger or whatever else might be bothering them. This really helps them

alot; all teenage boys need this. It keeps their mind focused and it keeps their

body busy which is important at this age. Most sports except children with down

syndrome. My boys enjoyed Karate the most and it helped them learn to be

patient, kind and mostly it helped them feel good about everything around them.

The uniforms are usually free

and the cost is cheap compared to most sports. There were a few boys with down

syndrome as well and they loved it.

When my son's had their meltdowns I would usuallly leave them alone for awhile.

I learned early on that screaming at them makes things alot worse for everybody.

Then I would sit my teenager down for a heart-to-heart talk. Most teen boys have

a hard time expressing themselves [like most men so I guess they don't grow out

that] so I would ask basic questions and go from there. Be simple so you or your

teen don't get overwhelmed. Let him know that it unacceptable to have a meltdown

and its time to learn how to control himself before it becomes a common

accurance. This might take time but it is important. My boys took a while to

learn how to prevent a meltdown before it happens. My 13 year old had a few but

is catching on to the fact that it isn't accepted. I don't punish for meltdowns

since they are so rare but I do make myself known that it is not a good thing,

for sure. I hope everything calms down and your boys enjoy their new home once

everybody gets

settled in.

[Guest guest]

we live in ca, how old is westley, logan is 15. he is a sophomore in the special ed day class. i see you are in illinois, but maybe they could be facebook friends. logan has a face book page, and u can instant message on facebook too and send email. just let me know. thanks candy-logans facebook is under logan crouch in visalia ca

From: "angelsue7725@..." <angelsue7725@...>Autism and Aspergers Treatment Sent: Wed, September 1, 2010 6:11:56 AMSubject: Re: Re: (unknown)

Candy my son Westley is into the exact same things and had the same thing happen with his best friend he moved a half hour away and wes just doesn't seem to want to make a new friend he just wants gage to move back maybe we should try to get them writing or something, where do you live we live in freeport, illinois Sent on the Sprint® Now Network from my BlackBerry®

From: marilyn <onebusytwinmom@...>

Sender: Autism and Aspergers Treatment

Date: Wed, 1 Sep 2010 04:37:50 -0700 (PDT)

<Autism and Aspergers Treatment >

ReplyAutism and Aspergers Treatment

Subject: Re: Re: (unknown)

That's really fascinating, Bill. My son is SUCH a videogame lover. What you stated makes perfect sense.

Marilyn

From: Bill <nasonbill@...>Autism and Aspergers Treatment Sent: Wed, September 1, 2010 6:20:00 AMSubject: Re: (unknown)

Gaming is such an attraction for these children for three main reasons. One, it is one thing that helps them feel really "competent." In a world that is filled with so many things they don't feel competent doing, it is very attractive. Two, it doesn't involve face to face regulating. Three, it is very stimulating to the executive functioning part of the brain.> > > >> > > >> Does anyone in this group live in Visalia Ca or somewhere nearby. My> > > >> son is 15 and wants desperately to find someone who understands him> > > >> and what he is going thru everyday. He has "normal friends", but > > they> > > >> just are not close, more like aquaintances who tolerate him, they > > are> > > >> nice boys, but he has

no "real" friends. Thanks> > > >>> > > >> > >> >> >> >>

[Guest guest]

If you can get a prescription for it, there is a sulfa eye drop my eye doctor prescribed... it worked for me. Don't have the name of it any more, but an opthomologist would know. I begged him for it and he gave in. Gave me one bottle only. Maybe Google sulfa eye drops. (unknown)

Hi everyone..I'm happy to be a part of this group,everyone seems to be on my same page although this is a sad reality for the moment I am okay knowing that now maybe I can get some thoughts on how to rid myself of the bugs/insects/micro bugs/micro insects/bio insects/ALIENS.Not sure what to call this.I purchased a product via the internat called cedar-al,Ishampooed the carpet sprayed myself and surroundings all day long and for about 3-4 days all of the crawling around my ears and face stopped so now its coming back again slowing.I guess i just have to keep on spraying and spraying.I do have a question about bugs in my eyelashes..how to treat this area??Thanks for your time,kaline

[Guest guest]

you know me cheap cheap cheap:) Wonder if MSM eye drops would help that is

a sulfur eye wash. thanks for bring this to my attention will try before bed

tonight instead of sole:) Be sure you have MSM crystal not powder I buy mine at

the feed store.

http://www.msmpure.com/msm_eye_solution.htm

http://www.fuzing.com/vli/003258854274/Serendipity-Colloidal-Zinc_MSM-Eye-Drops

http://www.kornax.com/Merchant2/MSM_Drops.htm

>

> If you can get a prescription for it, there is a sulfa eye drop my eye doctor

prescribed... it worked for me. Don't have the name of it any more, but an

opthomologist would know. I begged him for it and he gave in. Gave me one

bottle only. Maybe Google sulfa eye drops.

>

>

>

> (unknown)

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Hi everyone..I'm happy to be a part of this group,everyone seems to be on my

same page although this is a sad reality for the moment I am okay knowing that

now maybe I can get some thoughts on how to rid myself of the bugs/insects/micro

bugs/micro insects/bio insects/ALIENS.Not sure what to call this.

> I purchased a product via the internat called cedar-al,Ishampooed the carpet

sprayed myself and surroundings all day long and for about 3-4 days all of the

crawling around my ears and face stopped so now its coming back again slowing.I

guess i just have to keep on spraying and spraying.

> I do have a question about bugs in my eyelashes..how to treat this area??

>

> Thanks for your time,

> kaline

>

[Guest guest]

I think it would be hard to titrate how much of the sulfa goes into purified water - plus for the eyes it has to be completely sterile too... the drops were from the opthalmologist's office, let's see if I can find them... nope, couldn't find it, but I don't think I would put MSM in the eyes... I don't think you are cheap Marie! What is sole? Is that salt? (unknown)> > > > > > > > > > > > > > > > Hi everyone..I'm happy to be a part of this group,everyone seems to be on my same page although this is a sad reality for the moment I am okay knowing that now maybe I can get some thoughts on how to rid myself of the bugs/insects/micro bugs/micro insects/bio insects/ALIENS.Not sure what to call this.> I purchased a product via the internat called cedar-al,Ishampooed the carpet sprayed myself and surroundings all day long and for about 3-4 days all of the crawling around my ears and face stopped so now its coming back again slowing.I guess i just have to keep on spraying and spraying.> I do have a question about bugs in my eyelashes..how to treat this area??> > Thanks for your time,> kaline>

[Guest guest]

I did and have used MSM in my eyes just tonight. Really quite simple, you can

also buy the pre made drops the FDA has lifted the ban:) Sole is salt including

links for all. And yes I am cheap

http://www.msmpure.com/msm_eye_solution.htm

http://www.alkalizingnutrition.com/Rich_Distributing_MSM/Rich-MSM-Water-Drops.ht\

ml

http://www.fuzing.com/qrx/zinc-with-msm-eye-wash

http://www.himalayancrystalsalt.com/sole-recipe.html

http://www.himalayancrystalsalt.com/sole-therapy.html

http://www.naturalhomecures.com/crystalsalt/recipes.html

>

>

> >

>

>

> > If you can get a prescription for it, there is a sulfa eye drop my eye

doctor prescribed... it worked for me. Don't have the name of it any more, but

an opthomologist would know. I begged him for it and he gave in. Gave me one

bottle only. Maybe Google sulfa eye drops.

>

>

> >

>

>

> >

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> >

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> > (unknown)

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> > Hi everyone..I'm happy to be a part of this group,everyone seems to be on my

same page although this is a sad reality for the moment I am okay knowing that

now maybe I can get some thoughts on how to rid myself of the bugs/insects/micro

bugs/micro insects/bio insects/ALIENS.Not sure what to call this.

>

>

> > I purchased a product via the internat called cedar-al,Ishampooed the carpet

sprayed myself and surroundings all day long and for about 3-4 days all of the

crawling around my ears and face stopped so now its coming back again slowing.I

guess i just have to keep on spraying and spraying.

>

>

> > I do have a question about bugs in my eyelashes..how to treat this area??

>

>

> >

>

>

> > Thanks for your time,

>

>

> > kaline

>

>

> >

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[Guest guest]

I learned something again from you Marie. I had no idea! I sure would try that to get rid of the mites in the eyes. (unknown)> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi everyone..I'm happy to be a part of this group,everyone seems to be on my same page although this is a sad reality for the moment I am okay knowing that now maybe I can get some thoughts on how to rid myself of the bugs/insects/micro bugs/micro insects/bio insects/ALIENS.Not sure what to call this.> > > > I purchased a product via the internat called cedar-al,Ishampooed the carpet sprayed myself and surroundings all day long and for about 3-4 days all of the crawling around my ears and face stopped so now its coming back again slowing.I guess i just have to keep on spraying and spraying.> > > > I do have a question about bugs in my eyelashes..how to treat this area??> > > > > > > > Thanks for your time,> > > > kaline> > > >>

[Guest guest]

I still see(; fine this morning:) Actually I have read that MSM is very good for

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> > > Hi everyone..I'm happy to be a part of this group,everyone seems to be on

my same page although this is a sad reality for the moment I am okay knowing

that now maybe I can get some thoughts on how to rid myself of the

bugs/insects/micro bugs/micro insects/bio insects/ALIENS.Not sure what to call

this.

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> > > I purchased a product via the internat called cedar-al,Ishampooed the

carpet sprayed myself and surroundings all day long and for about 3-4 days all

of the crawling around my ears and face stopped so now its coming back again

slowing.I guess i just have to keep on spraying and spraying.

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[Guest guest]

I am surprised the school denied you help. My dd was just diagnosed with Aspergers and the response we got from the school was that "she is a strong student and can hold her own, but with the extra support we can give her she will do that much better." She mainly needs organizational and social assistance and they recognize that. But sorry, I have no homeschooling advice From: shirleycarter80@...Date: Tue, 7 Sep 2010 16:06:32 -0700Subject: ( ) (unknown)

Hi, My name is Shirley and my son's name is DJ. He's 12. He has Asperger's, capd, ocd and adhd. He's very bright so the school denied him assistance. I quit my job to homeschool and I can't say I really know what i'm doing. His dad doesn't help with this. He is in total denial. Any adivce would be appreciated. Shirley

[Guest guest]

The School cannot deny you help under the federal law IDEA....if there is a diagnosis then he has to be tested and if he is found not to have a learning disability he can still receive help under the Other health impairment section (OHI as it is known to the schools) And if he does not qualify for an IEP you can at least get a 504 and list as many accommodations as needed. My daughter has a 504 and it has really helped her.

My suggestion to you if you ever put him back in the public school system you need to request testing in writing and if they deny you ask for it in writing...they won't do it and they will test him. I can write a book on all of this but won;t take the time since he is home schooled ,,,,but it he ever goes back you need to familiarize yourself with your right under state and federal law...believe me they are hoping that you don't know your right so learn them!!

Vicki

-- ( ) (unknown)

Hi, My name is Shirley and my son's name is DJ. He's 12. He has Asperger's, capd, ocd and adhd. He's very bright so the school denied him assistance. I quit my job to homeschool and I can't say I really know what i'm doing. His dad doesn't help with this. He is in total denial. Any adivce would be appreciated. Shirley

[Guest guest]

There is a really good group called Homeschooling Aspies. It takes a few

days to get approved for membership and they request that you give detailed

information before you are approved but I have found it very informative. I am

not homeschooling right now but it is a possibility if my dd is bullied this

year like she was last year.

HTH,

>

>

> I am surprised the school denied you help. My dd was just diagnosed with

Aspergers and the response we got from the school was that " she is a strong

student and can hold her own, but with the extra support we can give her she

will do that much better. " She mainly needs organizational and social

assistance and they recognize that.

> But sorry, I have no homeschooling advice

>

>

> From: shirleycarter80@...

> Date: Tue, 7 Sep 2010 16:06:32 -0700

> Subject: ( ) (unknown)

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> Hi, My name is Shirley and my son's name is DJ. He's 12. He has

Asperger's, capd, ocd and adhd. He's very bright so the school denied him

assistance. I quit my job to homeschool and I can't say I really know what i'm

doing. His dad doesn't help with this. He is in total denial. Any adivce would

be appreciated. Shirley

>

[Guest guest]

Shirley,

I can't give you much advice about homeschooling either but I can tell you with

my 13 yr old Asperger/ADHD son I wouldn't try it. I personaly do not have the

patience. The school can not deny services like Vicki stated. And if they deny

testing him they have to put it in writing and you can request a due process

hearing if you don't agree. You can also have what is called a

psycho-educational evaluation done on your own (which is what the school is

suppose to do BEFORE they rule out elegibility). If your insurnace won't cover

it, check out research studies in your area. I'm near Nashville, TN and we got a

complete work up done on our son for free from Vanderbilt University's Autism

Research Center. It was great and the information we got was not just a

diagnosis but recommendations for us and the school on how to optimize his

educational and life experiences.

We took it to the school and they switched his special education elegibility

from " other health impaired " for his ADHD to " autism " .

You and your child have rights under IDEA and 504. I could go on and on but I

hope what I've told you helps. It hasn't been easy for us either, but the more

you know the better the journey. Knowledge is power.

Check out this website. It has an abundance of information.

http://www.wrightslaw.com/

The book that Pam and Pete wrote " From Emotions to Advocacy " and " Special

Education Law " will give you that knowledge.

The one below can help you find services, including advocacy, in your area.

http://www.yellowpagesforkids.com/

As for your husband, mine was kinda like that at first. But I didn't give up. I

read and read, then regurgitated the information to him. He use to never go to

IEP meetings or talk to the school on issues, etc. Now he goes to every meeting,

he e-mails, calls and visits the school all the time. Course he always checks

with me first because he isn't always as tactful as I try to be. A good book

if you can get your husband to read it is " Kids in the Syndrom Mix of ADHD, LD,

Asperger's...And More! " It's not a very thick book and it's written in layman's

terms.

Good luck!

>

> The School cannot deny you help under the federal law IDEA....if there is a

> diagnosis then he has to be tested and if he is found not to have a learning

> disability he can still receive help under the Other health impairment

> section (OHI as it is known to the schools) And if he does not qualify for

> an IEP you can at least get a 504 and list as many accommodations as needed.

> My daughter has a 504 and it has really helped her.

>

> My suggestion to you if you ever put him back in the public school system

> you need to request testing in writing and if they deny you ask for it in

> writing...they won't do it and they will test him. I can write a book on

> all of this but won;t take the time since he is home schooled ,,,,but it he

> ever goes back you need to familiarize yourself with your right under state

> and federal law...believe me they are hoping that you don't know your right

> so learn them!!

>

> Vicki

>

> -- ( ) (unknown)

>

>

>

>

> Hi, My name is Shirley and my son's name is DJ. He's 12. He has Asperger's,

> capd, ocd and adhd. He's very bright so the school denied him assistance. I

> quit my job to homeschool and I can't say I really know what i'm doing. His

> dad doesn't help with this. He is in total denial. Any adivce would be

> appreciated. Shirley

>

[Guest guest]

My now 13 yr old son, was on adderall at about 5 or 6. It didn't help at all.

Now he is on Stratera, which works best with his Aspergers and ADHD. He never

got a rash from it though. I would call or go see your doctor. It might not be

from the meds.

As for medication in general. Don't rule it out all together if the adderall

doesn't work. There are other medications he could take. You might have to go

back to the drawing board many times until you find what works as far as type of

medication and doseage.

I use to be very reluctant to give my son medication. But someone once explained

it to me like this.... " If your son's vision screening determined he needed

glasses would you not allow him to wear them? " Glasses for people are just a

" tool " to improve the quality of their life...they can see better. Medication

can help your son understand and learn better, which will improve the quality of

his life. You fear the risk of side effects but I would ask " If your son were

suddenly diagnosed with Astma, would you not give him medication for it? " You

just have to make sure the benefits out-weight the risks.

Also, like said. Medication is only one part of treatment. Behavior

therapy is crucial! Especially with PDD-NOS, he will have many social issues as

he gets older. Social skills groups and/or therepy is also very important. My

son being 13, is still having a difficult time making friends. He wasn't

diagnosed until he was 10 so we didn't have the benefit of an early diagnosis.

They just thought he had ADHD.

Anyway, sorry for the long e-mail... Good luck!...~ne

>

> Don't know about the rash but I would strongly encourage you to get him

some behavior therapy regardless if he's on meds or not.  I also only medicate

my son during the school week (no weekends/holidays) but when he was your son's

age, I got him into behavior therapy for three years which helped him and me

tremendously.  

>  

>

>

> " Over-optimism is waiting for you ship to come in when you haven't sent one

out. "

>

>

>

>

> ________________________________

> From: Leighanne Ratliff <a_cute_tx_cowgirl@...>

> children_with_autism

> Sent: Tuesday, November 25, 2008 10:16:20 PM

> Subject: ( ) (unknown)

>

>

> Hey everyone,

> My five year old son has PDD-NOS. He has also recently been diagnosed

with Inattentive ADHD. We are trying a med just to see if it helps or not. If it

doesn't help then we'll stop and try something non med related. He is currently

taking Adderall XR 5 mg capsules. He has been taking them since Sunday morning.

I only give it to him on the school days and let him go without it on the

weekends and school holidays. I have enlisted the help of his teacher to let me

know if it seems to be helping and if she thinks it makes him zombie or if she

notices any side effects. Last night while I was giving him a bath I noticed a

light red rash around his neck and shoulders and arms. I am wondering if he

might be allergic to this med. Does anyone else's child take Adderall XR? If

they do did they get a rash that went away with continuing treatment. If it

doesn't go way I will have to take him back to the doctor to have it looked at.

Anyway, any help would be

> greatly appreciated and as always is a big help.

>

>

>

> Leighanne

> (Mom to -5 with ADHD and PDD-NOS)

>

[Guest guest]

All,

I agree with Velvet. I was told the same thing many times. Definitely check with

the doctor. ~ne

> >

> > Don't know about the rash but I would strongly encourage you to get

> him some behavior therapy regardless if he's on meds or not.  I also

> only medicate my son during the school week (no weekends/holidays)

> but when he was your son's age, I got him into behavior therapy for

> three years which helped him and me tremendously.  

> >  

> >

> >

> > " Over-optimism is waiting for you ship to come in when you haven't

> sent one out. "

> >

> >

> >

> >

> > ________________________________

> > From: Leighanne Ratliff <a_cute_tx_cowgirl@>

> > children_with_autism

> > Sent: Tuesday, November 25, 2008 10:16:20 PM

> > Subject: ( ) (unknown)

> >

> >

> > Hey everyone,

> > My five year old son has PDD-NOS. He has also recently been

> diagnosed with Inattentive ADHD. We are trying a med just to see if

> it helps or not. If it doesn't help then we'll stop and try something

> non med related. He is currently taking Adderall XR 5 mg capsules. He

> has been taking them since Sunday morning. I only give it to him on

> the school days and let him go without it on the weekends and school

> holidays. I have enlisted the help of his teacher to let me know if

> it seems to be helping and if she thinks it makes him zombie or if

> she notices any side effects. Last night while I was giving him a

> bath I noticed a light red rash around his neck and shoulders and

> arms. I am wondering if he might be allergic to this med. Does anyone

> else's child take Adderall XR? If they do did they get a rash that

> went away with continuing treatment. If it doesn't go way I will have

> to take him back to the doctor to have it looked at. Anyway, any help

> would be

> > greatly appreciated and as always is a big help.

> >

> >

> >

> > Leighanne

> > (Mom to -5 with ADHD and PDD-NOS)

> >

>

[Guest guest]



Opt out? Unsubscirbe or go to no mail or digest?

Steph

(unknown)

i wish to opt out. can you please tell me what to do to stop all the email

[Guest guest]

The school cannot deny testing. If they do then you ask for that in writing and then they will have to pay to have your child tested outside the school (but believe me they will do it). If you have trouble with the school then call the school's department of special education. Due process is something you want to avoid because it is lengthy and you may need an attorney and you really want to try and work with the school as much as possible (no matter how bad you want to smack someone! ;0)

Here is a link the the federal law....THEY CANNOT DENY YOUR CHILD TESTING!!!!! Each state has their own interpretation of the law so go to your states department of education website and look under their laws to review. Then if you have questions call them and they can answer your questions and perhaps even refer you to an advocacy group in your area

http://idea.ed.gov/explore/home

I live in Indiana and here is a link to an advocacy group that I have worked with in the past and they have helped me tremendously. This is a link to their online training courses. Now mind you that this is INDIANA and each state will vary a little but this is a good explanation of how the system works. Create an account and watch the videos....have pen and paper ready and get ready to learn!

Vicki

-- ( ) (unknown)> > > > > Hi, My name is Shirley and my son's name is DJ. He's 12. He has Asperger's,> capd, ocd and adhd. He's very bright so the school denied him assistance. I> quit my job to homeschool and I can't say I really know what i'm doing. His> dad doesn't help with this. He is in total denial. Any adivce would be> appreciated. Shirley>

[Guest guest]

Schools can refuse to test kids. They would have to have a good reason and of course, you want to request their reason in writing and work from there. Get a good advocate. Seems like most of the time we hear about schools denying a need for services and not denying testing because the law requires them to test all kids suspected of having a disability. They can argue no disability exists, if they want, especially if a child is doing well in school overall. Schools can also deny services if they, again, can provide a good reason. If a child is doing well academically, it can be harder to secure services. If a child has a disability, it does not mean they will also receive services from the school. The IDEA does not require that every child with a disability receive an IEP. The child has to have a disability which adversely affects their ability to learn. All people with disabilities are covered under the Americans with Disabilities Act and so you could argue for a 504 plan if they are refusing an IEP. It really depends on what you want or feel your child needs as to how to handle this sort of thing. Getting a good advocate would help you make a plan and learn the rules. It gets tiring to have to spend so much time arguing semantics and minor details when the emphasis should be better spent on the child. Still, this is what we get with gov't bureaucracy. Some schools can be helpful and want to help kids, other schools are set up to make it holy war just to get qualified - some are in between.

Roxanna

"I

predict future happiness for Americans if they can prevent the government from wasting the labors of the people under the pretense of taking care of them." - Jefferson

( ) (unknown)

>

>

>

>

> Hi, My name is Shirley and my son's name is DJ. He's 12. He has Asperger's,

> capd, ocd and adhd. He's very bright so the school denied him assistance. I

> quit my job to homeschool and I can't say I really know what i'm doing. His

> dad doesn't help with this. He is in total denial. Any adivce would be

> appreciated. Shirley

>

[Guest guest]

Can you see if you have any e-schools in your state? We have several (ohio) and this is what I have done. My two ds's school online and have teachers and IEP's too. It might be a nice middle ground between public school and homeschool if you are lost.

Another thing is to reach out for therapies. If you can afford it, get a tutor who specializes in LD's and can help guide you and work with him. Get a speech eval and see if ST if something that would help with the CAPD.

Learn about the federal and state laws for the public school. Many people posted some good ideas - my personal favorite website for learning about special education is www.wrightslaw.com. You can learn so much there about the process. You can see if maybe you could go back to public school and force some help by knowing the laws and putting everything in writing. Still, it depends on how tough they want to be about it and how much energy you have to argue it.

There are so many good books out there these days on learning problems. You might go to amazon and search into whatever areas he is struggling the most with. It might surprise you to find a lot of information out there! My bigger problem anymore is figuring out what to read because there is so much information to choose from. Years ago, it was NOT like this at all! Also, there is a great website for LD's - www.ldonline.org They can really help you learn about LD's. I have also found a lot of information from the public library. I usually see books I want to read on amazon, search for that book on my library website and then put a hold on it. Usually within a week, they have it waiting for me. Unfortunately, I usually have 5 books waiting to be read at once. lol. But you do learn a lot!

The best idea, I think, would be to make a plan so that he is being educated in all subject material. If he is gifted, you can accelerate accordingly. Your state department of education website should list standards for each grade level as well. That can help you figure out what to teach. Also, there are books out there that do list what kids should know at each grade level. And someone mentioned a homeschool group. Those people would know a lot more about these things as well.

Roxanna

"I

predict future happiness for Americans if they can prevent the government from wasting the labors of the people under the pretense of taking care of them." - Jefferson

( ) (unknown)

Hi, My name is Shirley and my son's name is DJ. He's 12. He has Asperger's, capd, ocd and adhd. He's very bright so the school denied him assistance. I quit my job to homeschool and I can't say I really know what i'm doing. His dad doesn't help with this. He is in total denial. Any adivce would be appreciated. Shirley