Re: (unknown)

[Guest guest]

Actually its much better if the posts are NOT trimmed, otherwise it can be hard to follow the discussion.(in my opinion, =-)....Kathleen

(unknown)

For moderation - Please ask your group members to trim their post when replying and to change subject line heading when the discussion drift on the other issues. Simple net courtesy, is it not? whay

[Guest guest]

I agree, especially with high volume lists, you have no idea what someone is responding to. You can also check the online, instead of having emails directly, the discussions are easy to follow also, any message you click on will have all responses listed below.LinnOn Aug 29, 2010, at 11:57 AM, Kathleen Blake wrote:

Actually its much better if the posts are NOT trimmed, otherwise it can be hard to follow the discussion.(in my opinion, =-)....Kathleen

(unknown)

For moderation - Please ask your group members to trim their post when replying and to change subject line heading when the discussion drift on the other issues. Simple net courtesy, is it not? whay

[Guest guest]

Hi Karla,

Thank you so much for the information.  Tomorrow my cousin is going to send me

all of her medical records so at least I can bring them to be seen before I have

them fly out.  I really want them to come to Los Angeles to get her checked,

since the Doctors in Italy have convinced them it is not Autism, eventhough she

has all of the signs.  I will definitely look into the UCLA Autism clinic. 

Thank you for the information.

Antonella

From: wiersmak <wiersmak@...>

Subject: [ ] (unknown)

Date: Sunday, August 29, 2010, 4:49 PM

 

If you're looking for an assessment, UCLA has an Autism Evaluation Clinic that

is very good. They are really thorough. Not cheap, but for my son, the

assessment gave us a very detailed picture of his problem areas and different

options to adressess them.

http://www.semel.ucla.edu/autism/clinic

The Autism Research Institute is another good resource. http://www.autism.com/.

The ATEC checklist is available, as are some of thier articles, in italian. The

are based out of San Diego. There is also a list of DAN Drs overseas, 3 or 4 in

Italy. http://www.autism.com/pro_danlists_results.asp?International=true

Karla

>

> Hi,

> My cousins live in Italy and have a 7year little girl. All these years the

doctors have not diagnosed why she is not speaking. They have told them that it

might be a genetic disease from a long lost family member. Chiara has all the

symptons of Autism, but the Doctors have convinced them that she is not

autistic. I want them to come to Los Angeles to have her tested and start

getting proper care. I guess what I am asking is if anyone has any advise for

us on how to get her proper help.

>

> Thanks,

> Antonella

>

[Guest guest]

Thank you for the info.  I am having in translated so they can take the test.

Antonella

From: TJ Werth <tj_werth@...>

Subject: Re: [ ] (unknown)

Date: Sunday, August 29, 2010, 9:47 AM

 

You can take an ATEC test online. The parents just answer the questions.

You get

a score at the end and a scale for scoring.

Google or it and it is free.

TJ

________________________________

From: Antonella <abravata75@...>

Sent: Sat, August 28, 2010 8:38:07 PM

Subject: [ ] (unknown)

Hi,

My cousins live in Italy and have a 7year little girl. All these years the

doctors have not diagnosed why she is not speaking. They have told them that it

might be a genetic disease from a long lost family member. Chiara has all the

symptons of Autism, but the Doctors have convinced them that she is not

autistic. I want them to come to Los Angeles to have her tested and start

getting proper care. I guess what I am asking is if anyone has any advise for

us on how to get her proper help.

Thanks,

Antonella

[Guest guest]

Hi,

Thank you very much for all of the information.  I think you are so right in

saying that it is doubtful that they will get proper help in Italy for her. 

They have already convinced them that it is not Autism.  I am not a Dr, but I

read about it and she has all of the symptons.  They are willing to do whatever

it takes and I am going to do what I can from here.  He is going to send me all

of her medical information and once I translate them I will see if I can make an

appointment to meet with someone.  Thank you again for all the great

information.

Antonella

From: Haven DeLay <hdelay@...>

Subject: Re: [ ] (unknown)

Date: Sunday, August 29, 2010, 5:04 AM

 

I think California would be one of the best places to be able to get her

help. Contact the Autism Research Institute and look for a list of DAN!

physicians in your area. Dr. Jaquelyn McCandless is in California, I

believe. TACA (Talk About Curing Autism) is very active in California and

their website can give you a wealth of knowledge, as well.

In many ways, the DAN protocol helped our son, but as far as chelation goes,

if it is needed, You would get Dr. Andy Cutler's book and do the AC

Protocol. Don't waste time and money doing it IV. Our son had reactions to

that protocol.

But for testing and a getting started and finding some support for what is

going on, you can consult a DAN physician.

I doubt this family can get any help in Italy for this. There may be other

types of doctors there who are open-minded and willing to help. Perhaps

someone on this list would know of one.

Our son improved a great deal with dietary and supplementary intervention.

He was completely non-verbal and now has receptive, expressive, and

reciprocal speech. He is almost eleven, though his speech and emotional

level are probably at age six. Our son continues to improve. When we begin

chelation again, it will be with the AC protocol.

When are son regressed, all the mainstream physicians we saw tried to steer

us away from autism and what the real problem was. If the signs and

symptoms are there, then in it probably autism. the earlier the parents

begin interventions, the better. We started interventions when our son was

two, and he is now high functioning.

Hope this helps.

[Guest guest]

Hi, Antonella.

You don't have to translate the ATEC. The Italian version is here:

Modulo di Valutazione per il Trattamento dell'Autismo

http://www.autism.com/tran_it_atec.asp

Regards,

Ann

>

> From: TJ Werth <tj_werth@...>

> Subject: Re: [ ] (unknown)

>

> Date: Sunday, August 29, 2010, 9:47 AM

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

>

>

> You can take an ATEC test online. The parents just answer the questions.

You get

>

> a score at the end and a scale for scoring.

>

> Google or it and it is free.

>

> TJ

>

>

>

> ________________________________

>

> From: Antonella <abravata75@...>

>

>

>

> Sent: Sat, August 28, 2010 8:38:07 PM

>

> Subject: [ ] (unknown)

>

>

>

> Hi,

>

> My cousins live in Italy and have a 7year little girl. All these years the

>

> doctors have not diagnosed why she is not speaking. They have told them that

it

>

> might be a genetic disease from a long lost family member. Chiara has all the

>

> symptons of Autism, but the Doctors have convinced them that she is not

>

> autistic. I want them to come to Los Angeles to have her tested and start

>

> getting proper care. I guess what I am asking is if anyone has any advise for

>

> us on how to get her proper help.

>

>

>

> Thanks,

>

> Antonella

>

>

>

>

[Guest guest]

>>Sometimes you don't see the benefit of AIT for a few weeks or even months. Teeth grinding maybe low minerals I think but mind is foggy on that

Mandi x

Hi,

My 3 1/2 year old daughter who is diagnosed with autism, grinds her teeth quite frequently andclose her ears while watching some tv programmeat the same time make some sound to avoid hearing or watching the programme. We finished AIT(auditory integration treatment) from sound learning centre couple of days back, but nothing seems to be working.

[Guest guest]

>>Sometimes you don't see the benefit of AIT for a few weeks or even months. Teeth grinding maybe low minerals I think but mind is foggy on that

Mandi x

Hi,

My 3 1/2 year old daughter who is diagnosed with autism, grinds her teeth quite frequently andclose her ears while watching some tv programmeat the same time make some sound to avoid hearing or watching the programme. We finished AIT(auditory integration treatment) from sound learning centre couple of days back, but nothing seems to be working.

[Guest guest]

Antonella,

I have a friend who lives in Rome, she is married to anitalian guy. They are

recovering their 6 yo kid through a detox treatment designed by an alternative

MD there. Please wait a little, I talked to her mother today and she is

confirming me her e-mail address by this friday the latest. I already tried to

contact her but the mail bounces back. Both mother and grandmother talked about

the great improvement this kid has done under the care of this MD, his program

includes dietary intervention, homeopathy and different therapies... I don't

know all the details, I know it is a tailor-made approach.

I'll write back as soon as I hear from my friend....

Isa

Enviado desde mi oficina móvil BlackBerry® de Telcel

[ ] (unknown)

Hi,

My cousins live in Italy and have a 7year little girl. All these years the

doctors have not diagnosed why she is not speaking. They have told them that it

might be a genetic disease from a long lost family member. Chiara has all the

symptons of Autism, but the Doctors have convinced them that she is not

autistic. I want them to come to Los Angeles to have her tested and start

getting proper care. I guess what I am asking is if anyone has any advise for

us on how to get her proper help.

Thanks,

Antonella

[Guest guest]

My son has had those issues and giving dose of IV Lasix post infusion has

prevented the migraine and 'the shakes' he was getting from his infusions.

mom to 8 years old in CT

<http://www.connexintl.com/>

________________________________

From: [mailto: ] On Behalf Of Piper

Redman

Sent: Monday, August 30, 2010 5:16 PM

Subject: (unknown)

My daughter had the same issue with migraines and her neurologist gave her

Dihydrogotamine ( " DHE " ) (we take it in a pill form now but when on IVIG it was

an injectable form into a bag of saline during infusion with Zofran to assist

with nausea). My daughter is taking sub-q now and still has to take the DHE

even with sub-q. Hope this helps!

[Guest guest]

My son has had those issues and giving dose of IV Lasix post infusion has

prevented the migraine and 'the shakes' he was getting from his infusions.

mom to 8 years old in CT

<http://www.connexintl.com/>

________________________________

From: [mailto: ] On Behalf Of Piper

Redman

Sent: Monday, August 30, 2010 5:16 PM

Subject: (unknown)

My daughter had the same issue with migraines and her neurologist gave her

Dihydrogotamine ( " DHE " ) (we take it in a pill form now but when on IVIG it was

an injectable form into a bag of saline during infusion with Zofran to assist

with nausea). My daughter is taking sub-q now and still has to take the DHE

even with sub-q. Hope this helps!

[Guest guest]

>>How often does she get this DMPS?

Mandi x

In a message dated 31/08/2010 08:17:19 GMT Daylight Time, sindhukan@... writes:

She is on mild TD-DMPS

[Guest guest]

>>How often does she get this DMPS?

Mandi x

In a message dated 31/08/2010 08:17:19 GMT Daylight Time, sindhukan@... writes:

She is on mild TD-DMPS

[Guest guest]

Hyperacusis (distress at loud noises) is sometimes a sign of specific conditions assopciated with autism - syndrome (where it is a sign of abnormal calcium metabolism) and fragile-X syndrome where it seems to be a sign of abnormal potassium signalling in neurons. Has she been tested for these?Bruxism (tooth-grinding) can also be a sign of abnormal sensory processing.Hope this helps.KenFrom: Sindhu Kan <sindhukan@...>Subject: (unknown)Autism Treatment Date: Monday, 30 August, 2010, 22:13

Hi,

My 3 1/2 year old daughter who is diagnosed with autism, grinds her teeth quite frequently andclose her ears while watching some tv programmeat the same time make some sound to avoid hearing or watching the programme. We finished AIT(auditory integration treatment) from sound learning centre couple of days back, but nothing seems to be working.

[Guest guest]

Hyperacusis (distress at loud noises) is sometimes a sign of specific conditions assopciated with autism - syndrome (where it is a sign of abnormal calcium metabolism) and fragile-X syndrome where it seems to be a sign of abnormal potassium signalling in neurons. Has she been tested for these?Bruxism (tooth-grinding) can also be a sign of abnormal sensory processing.Hope this helps.KenFrom: Sindhu Kan <sindhukan@...>Subject: (unknown)Autism Treatment Date: Monday, 30 August, 2010, 22:13

Hi,

My 3 1/2 year old daughter who is diagnosed with autism, grinds her teeth quite frequently andclose her ears while watching some tv programmeat the same time make some sound to avoid hearing or watching the programme. We finished AIT(auditory integration treatment) from sound learning centre couple of days back, but nothing seems to be working.

[Guest guest]

You should try to do a pure tone audiogram to see if she has a low decibel threshold at certain frequencies, meaning her ears will find them painfull

We actually bought an ex NHS one for £50 off internet

The Listening Programme is a good way to address the issues (if found) as it aims to smooth out the decibel/ frequency line (which ideally should be flat and identical for both ears)

Thanks

peter

Autism Treatment From: drken.aitken@...Date: Tue, 31 Aug 2010 06:34:09 +0000Subject: Re: (unknown)

Hyperacusis (distress at loud noises) is sometimes a sign of specific conditions assopciated with autism - syndrome (where it is a sign of abnormal calcium metabolism) and fragile-X syndrome where it seems to be a sign of abnormal potassium signalling in neurons. Has she been tested for these?

Bruxism (tooth-grinding) can also be a sign of abnormal sensory processing.

Hope this helps.

Ken

From: Sindhu Kan <sindhukan@...>Subject: (unknown)Autism Treatment Date: Monday, 30 August, 2010, 22:13

Hi,

My 3 1/2 year old daughter who is diagnosed with autism, grinds her teeth quite frequently andclose her ears while watching some tv programmeat the same time make some sound to avoid hearing or watching the programme. We finished AIT(auditory integration treatment) from sound learning centre couple of days back, but nothing seems to be working.

[Guest guest]

You should try to do a pure tone audiogram to see if she has a low decibel threshold at certain frequencies, meaning her ears will find them painfull

We actually bought an ex NHS one for £50 off internet

The Listening Programme is a good way to address the issues (if found) as it aims to smooth out the decibel/ frequency line (which ideally should be flat and identical for both ears)

Thanks

peter

Autism Treatment From: drken.aitken@...Date: Tue, 31 Aug 2010 06:34:09 +0000Subject: Re: (unknown)

Hyperacusis (distress at loud noises) is sometimes a sign of specific conditions assopciated with autism - syndrome (where it is a sign of abnormal calcium metabolism) and fragile-X syndrome where it seems to be a sign of abnormal potassium signalling in neurons. Has she been tested for these?

Bruxism (tooth-grinding) can also be a sign of abnormal sensory processing.

Hope this helps.

Ken

From: Sindhu Kan <sindhukan@...>Subject: (unknown)Autism Treatment Date: Monday, 30 August, 2010, 22:13

Hi,

My 3 1/2 year old daughter who is diagnosed with autism, grinds her teeth quite frequently andclose her ears while watching some tv programmeat the same time make some sound to avoid hearing or watching the programme. We finished AIT(auditory integration treatment) from sound learning centre couple of days back, but nothing seems to be working.

[Guest guest]

Last month we started with 5 drops for 3 days,then 11 days off, then 3 days 5 drops, yesterday i started with 10 drops for 2 weeks same amount then increase upto 15 drops.

After that We have to get her blood test done again to find out how much more antimony toxicity is left.

sindhu x

From: Mum231ASD@... <Mum231ASD@...>Subject: Re: (unknown)Autism Treatment Date: Tuesday, 31 August, 2010, 12:48 PM

>>How often does she get this DMPS?

Mandi x

In a message dated 31/08/2010 08:17:19 GMT Daylight Time, sindhukan@... writes:

She is on mild TD-DMPS

[Guest guest]

Hi Sindhu

Our child cant speak either - thats why we bought the equipment

You dont need them to speak to do the audiogram

You just watch their eyes and body and see if there is any movement or change (even if tiny) - then you know they have heard it

We repeated it lots of times on lots of different days to double check

Thats the only way you will find out if she has sensitivity and at which frequencies

Thanks

Autism Treatment From: sindhukan@...Date: Tue, 31 Aug 2010 12:47:05 +0530Subject: Re: (unknown)

Thanks for replying, her x fragile came out negative. She has lot of antimony toxicity in her blood and very few good bacteria. She is on mild TD-DMPS, glutathione,probiotics,prebiotics and nutritional supplements. We didnt get her checked up for burxism. At SLC they said since she ca'nt communicate there is no point in audiogram,so we dont know how to find what frequencies bothers her. Hope to get some way to sort this problem out.

Many thanks,

sindhu

From: Sindhu Kan <sindhukan@...>Subject: (unknown)Autism Treatment Date: Monday, 30 August, 2010, 22:13

Hi,

My 3 1/2 year old daughter who is diagnosed with autism, grinds her teeth quite frequently andclose her ears while watching some tv programmeat the same time make some sound to avoid hearing or watching the programme. We finished AIT(auditory integration treatment) from sound learning centre couple of days back, but nothing seems to be working.

[Guest guest]

Hi Sindhu,

did she get checked for syndrome? The gene locus is 7q11.23. There is typically a cardiac issue (SVAS), characteristic dental malformation, and short stature.

Hope this helps

Ken

From: Sindhu Kan <sindhukan@...>Subject: (unknown)Autism Treatment Date: Monday, 30 August, 2010, 22:13

Hi,

My 3 1/2 year old daughter who is diagnosed with autism, grinds her teeth quite frequently andclose her ears while watching some tv programmeat the same time make some sound to avoid hearing or watching the programme. We finished AIT(auditory integration treatment) from sound learning centre couple of days back, but nothing seems to be working.

[Guest guest]

Thanks a lot for the information, Now more queries arise,once we found the problamatic frequency level what is the next step to sort the problem? How much the equipment cost? details of the equipment? sources to buy it from? any specialist involvement required?

Please provide alll the information you know about this so that we can go ahead with this.

Many thanks,

sindhu

From: Sindhu Kan <sindhukan@...>Subject: (unknown)Autism Treatment Date: Monday, 30 August, 2010, 22:13

Hi,

My 3 1/2 year old daughter who is diagnosed with autism, grinds her teeth quite frequently andclose her ears while watching some tv programmeat the same time make some sound to avoid hearing or watching the programme. We finished AIT(auditory integration treatment) from sound learning centre couple of days back, but nothing seems to be working.

[Guest guest]

Syndrome is generally quite obvious physically, when stopped growing I thought he might have had it, everyone said small as he was they had never seen presentation look like , paed dismissed it instantly. Google on the internet and you should get websites with information and photo's.

Vicky In a message dated 31/08/2010 17:38:38 GMT Daylight Time, sindhukan@... writes:

Thanks ken for the information, i will definitely get her checked for williams syndrome. I had no clue about it. Thanks once again.

Sindhu x

[Guest guest]

>>A blood test won't tell you how much antimony is left I'm afraid.

DMPS should be given every 8 hours for it to be efficient and it takes much longer than that to chelate.

How was the antimony toxicity diagnosed?

Did she grind her teeth and cover her ears before the DMPS?

Mandi x

In a message dated 31/08/2010 15:09:25 GMT Daylight Time, sindhukan@... writes:

Last month we started with 5 drops for 3 days,then 11 days off, then 3 days 5 drops, yesterday i started with 10 drops for 2 weeks same amount then increase upto 15 drops.

After that We have to get her blood test done again to find out how much more antimony toxicity is left.

[Guest guest]

converging occlusally for retention.,On 27 August 2010 19:06, schibin thampy <kuriachan4u@...> wrote:

 

dear allam confused and saturated walls of amalgam are converging or diverging ?

sincerelyschibin

-- Regards,Dr Hufrish Taraporewala, BDSCosmetic Dentist & Sr. Health Communications Consultant, ORION PRPublic Relations Consultant, Mickey Mehta's HEALTH BEYOND FITNESS

Mobile No: 07817 311906Web-site: www.drhufrish.co.uk

[Guest guest]

If you read through the email chain you will see I have answered most of that already - we are not experts - we are parents doing the best we can - just like you

Autism Treatment From: sindhukan@...Date: Tue, 31 Aug 2010 17:02:08 +0530Subject: RE: (unknown)

Thanks a lot for the information, Now more queries arise,once we found the problamatic frequency level what is the next step to sort the problem? How much the equipment cost? details of the equipment? sources to buy it from? any specialist involvement required?

Please provide alll the information you know about this so that we can go ahead with this.

Many thanks,

sindhu

From: Sindhu Kan <sindhukan@...>Subject: (unknown)Autism Treatment Date: Monday, 30 August, 2010, 22:13

Hi,

My 3 1/2 year old daughter who is diagnosed with autism, grinds her teeth quite frequently andclose her ears while watching some tv programmeat the same time make some sound to avoid hearing or watching the programme. We finished AIT(auditory integration treatment) from sound learning centre couple of days back, but nothing seems to be working.