Re: (unknown)

January 1, 2009

Lottie, don't knw what happened, I lost the first email, so I'll try again.

I just wanted to say, if it pops up, ignore it... two years ago I spent NY Eve

in the hospital too, but I bet I had more fun than you did. My daughter and her

husband came in at 11:30 pm with goodies, noisemakers, hats and a bottle of

champagne, for me and my roomie, and we celebrated in style. The nurses and

doctors laughed at the champagne bottle on the dresser in the morning, but we

had a fun nite for two sick old broads!

I hope they let you out of there today, I know you're not near a computer until

they do. Not a good way to start the New Year, on the other hand , now that you

got it out of your system, you can get on with living the good life? Happy New

Year to you and Jimmy, may it end up way better than it started! blessings,

Bobby

From: ROBERTA DOYLE <rcd1929@...>

Subject: [ ] (unknown)

" " < >

Date: Wednesday, December 31, 2008, 4:33 PM

HAPPY NEW YEAR EVERY ONE, LOVE, BOBBY

January 2, 2009

Hi, , Welcome aboard. You do not need to freeze seeds that you get

from Sprout People unless you can't use them with in about six months. If

you have a cool dry place to store them, you'll be ok. Just keep the

plastic bag that they came tightly closed. If you don't think that you

will use them up right away, you can freeze them. Leave them in their

bags and place inside of a quart mason jar. To sprout, take what you need

put the seeds into your sprouter and leave them to come room temp. About

two hours. Don't add water. Then process them as usual.

ew

(unknown)

Date: Fri, 2 Jan 2009 16:32:20 -0800 (PST)

Hi guys!

I got my seeds today!!!!!!!!!!!!!!!!! I ordered from Sprout People

and actually asked for a substitution for two of the samples and they

threw in two extra pea samples.

Now for my questions.

Am I supposed to freeze them to kill any eggs?

The broccoli is not Organic, what are your concerns about them not

being Organic and how the toxins are usually concentrated in the

sprout?

Any suggestions for what to sprout first? I got the 20 sampler kit.

Thanks!

Smyrna, TN

US Zone 6b

January 2, 2009

From: tommy morrow <tommy02141@...>Subject: (unknown)bird mites Date: Friday, January 2, 2009, 5:11 PM

Hey guys and gals I was wondering how many of you fellow members have these "lint ball" things on you and your cloths that bite you. And if you do I would like to hear your opinion on

bird miteswhat these things are? tommy

January 4, 2009

Hi Donna:

I couldn't find your group...what is the group about? Transition, I assume?

Ellen

Ellen Garber Bronfeld

egskb@...

(unknown)

Hello Everyone,

We have some very exciting news to announce, the PASSAGE web site is up and

running. Please visit www.passagegroup.org.

January 7, 2009

I'm so sorry you are having so many problems. I spoke with a nurse last week

who worked for a pain mgt doc and she told me they are having a lot of patients

who received a SCS and their pain comes back within the year. Mine has helped

me, but a lot of my pain has come back too. I also would like to hear from

anyone on here who has the SCS and a pain pump and what you think of it.

Take Care,

B. in TEXAS

________________________________

From: tommy earles <workingguy@...>

Stimulator

Sent: Wednesday, January 7, 2009 2:17:34 PM

Subject: (unknown)

Hello, I haven't joined this group much. It is my husband that has the back

problems with the spinal cord stimulator implanted about a year ago. He was

hurt at work in 2003, had 2 surgeries and spinal fusion. A lot of nerve blocks

and things. The fusion worked for about a month then physical therapy did him

in. The stimulator worked down his leg, but not for his back. Now he is having

the same pain as before, even in his leg and foot, even the Percocet isn't

working. I get aggravated with it all. Then I feel bad. I have back problems

too, and fibromyalgia, try to work and take care of kids and I don't have any

insurance to even see a doctor. It took us 3 years to get social security, then

another 8 months before we knew for sure we could spend it because the lawyer

said it was calculated wrong. They still haven't added the kids on yet. Our

lawyer messed up the lawsuit from the company--didn' t get some paper in on

time, so we got nothing from

that. We just spent all day at the hospital for a myelogram and ct scan. Is

there any reason why the spinal cord stimulator has stopped working? Do any of

you recommend the pain pump? Any suggestions on where to go from here? Thank

you for listening and any response will be appreciated.

January 7, 2009

,

I think that everyone here basically knows that my experiences with the pump

have been terrific. When I received my pump, 16 years ago, my doctor at that

time said that although he felt the SCS worked extremely well for upper

extremity pain but that it was his exerience that it did not give long lasting

relief for lower extremity pain. He said that although it would work initially,

that in too many cases that relief did not last long term.

I have only made one trip to the ER in all these years and was treated very

well. I think the doctor figured that if I had enough pain that I required a

pump that I was not drug seeking. I explained what caused my pain to elevate and

that my doctor was not available for added pain control. I was given an

injection and sent on my way. The doctor knew that my pain was severe enough

that she never even attempted to touch my legs and in fact ordered that nobody

touch my feet or legs.

As a whole I would say that my pain levels are at about a 2-3, sometimes less

sometimes a bit more. I have oral meds available but average about 2 per month.

Dorothy

January 7, 2009

Dear Yonie

Very happy to receive your response.

Do you mind sharing with me what do you do & what can we offer to parents of special children?

I wish to gather some parents to form a support group in JB. Any suggestions on what kind of activities we can do to help parents & their children?

A brief profile of the parents/children are:

1) 19 year old microcephaly - able to walk & chew solid food. mentally slow. Mum has worked very hard to help son throughout the journey.

2) 12 year old cerebral palsy - family is not well to do, child is neglected & unable to straighten body

3) 8 year old - due to genetic problem, mentally slow. started walking at age 3, began talking more fluently at age 7. supported by a very dedicated mum

4) 6 year old - born with a hole in the heart, mentally alert but unable to walk well

5) 7 year old - cerebral palsy. intelligent, but walking difficulty

6) 6 year old - cerebral palsy, walking difficulty

7) 3 year old - speech delayed

8) 3 year old - speech delayed

9) 2 months old - blind, seizures

10) 2 year old (my son) - blind, microcephaly, kernicterus, have not roll, crawl.

From: Yonie Yonie <yy2crazy2b@...>Subject: Re: (unknown) Date: Monday, December 29, 2008, 4:02 PM

Hi Cheryl!

I'm Yonie fm Singapore. I travel weekly to Johor Bahru for work & leisure.

Welcome to the group. At this moment I have not have any parents in Johor Bahru. Tried to bring awareness of this work there before but the respond isnt that great. Hopefully you could help to spread this beautiful work in Malaysia Johor Baru. We have Erlinda an Associate 2 in Kuantan doing this work.

You may write to me directly if you need more info.

Rgds

Yonie

From: Tan Cheryl <peckbuay (DOT) com>CHILDRENWITHCHALLEN GESGROUPS (DOT) COMSent: Saturday, December 27, 2008 4:59:56 AMSubject: [childrenwithchalle nges] (unknown)

Dear ALL

My son is 20.5 months old, born with severe jaundice, now kernicterus, microcephaly, blind (due to severe scarring in retina & micro-cornea) and global development delayed. At 2 months old, he was tested CMV positive. 5 months later I tested on myself, found CMV negative. Presently, he has not even roll and not to mention sitting & walking etc. Just wondering if any of you have/met any babies similar to mine? Apart from the OT & PT available at hospital, what are the other alternative treatments available? We're residing at Johor Bahru, Malaysia. I'd love to meet up with mothers of speacial needs in JB.

Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now!

January 7, 2009

Hi, !

You are most welcome to our group. I am so glad that you wrote in.

My name is Kathy G. I, along with Mike, own this group. Mike is the

founder and is a great and caring guy.

I have had RSD now for 26 years. I can relate to all your

frustrations....or maybe more of your hubbie's as I am the patient. I do see

what my hubbie

goes through though, and like you, he stays with me and helps me through it.

God bless you for staying by your husband's side. I say this only because my

first husband was an idiot and wanted a " normal life " . He left me after

five years of marriage. May he get warts in a bad place..lol

I have two stims...one for my arms, and one for my legs....I had a pump in ,

but had all sorts of problems with it. don't get me wrong...some folks

swear by their pump...but mine was just malfunctioning way too often. When my

pain pump was working properly, I loved it, as I didn't need to keep taking

pills, feel the nausea I do from the pills...not to mention the effects from

them. It was regulated by my PM and it was great. So...it might be an answer

for your hubbie.

All too often all this crap with the social security goes on. I am so sorry

that you had to go through it and are still doing so.

I am sorry to hear about your healt as well. Try to take as good of care as

you can of yourself. I know that may sound like finding a needle in a

haystack the size of Vermont....but you really need to try.

As for the spinal stim not working any longer, have you contacted the

company and spoken with a rep? If your rep meets your hubbie at the PM office,

they can investigate into why the stim is not working properly. I have had

this

done twice now...the first time, the wires had moved...I had them corrected

by a minor surgery and it was fine. The second time...it was the battery...I

have had my batteries changed a few times now.

This group is full of wonderful, caring, fun-loving folks. I know that more

people will be answering your post. Please write anytime. have your hubbie

write also. I know it sounds like a cliche...but we are really like a

family here.

Take care and good luck, .

Gentle hugs,

kathy G.

Co-Owner

**************New year...new news. Be the first to know what is making

headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)

January 8, 2009

i hope and other members will start contributing. This is noble cause to help each other. Saleem

From: jennifer johnston <bulldoggergal@...>Subject: [ ] (unknown) Date: Wednesday, January 7, 2009, 8:10 PM

OK...you guys are making me crazy!!! I've been a part of this group for a while but really haven't seen any posting and was about to totally give up until...tonight there are not only a whole lot of posts...but posts from familiar people.I had to keep switching back to another group on HepC and looking to see if the names were the same...and they were.I thought I was losing my mind until PeachStatePam talked about being on many at once. Then...and only then...did I realize that this was indeed the "dead" group I thought it was....I now realize that I am actually NOT losing my mind! All of that being said...COOL! Another HepC group with good info and chit chat that I can lurk in... I had something to say but then ya'll said it all before I could so...Carry on! xoxoxo,

January 9, 2009

You sound like I am on the wrong side.

Please explain where you picked up the idea

that I have something to fear.

Jim

________________________________

From: mike yadon <mikeyadon@...>

Vaccinations

Sent: Friday, January 9, 2009 12:38:36 PM

Subject: (unknown)

And what about the fact that Polio is a made up disease. An excuse

for the reaction to the massive amount of ddt in bug sprays.

just like hiv/aids is fake.

once you start to peel away the layers, you begin to understand what

is really going on here.

culling of the human race based on the belief of the elite that the

world would be a better place when populated by 80% less.

SO MANY DISEASES WE see today are just a reflection of total body

burden. nothing more, nothing less.

if you are too afraid to currently see it, be brave, because soon

enough this house of cards is going to fall and those responsible

will be hauled off to prison.

>

> To understand any controversial subject, one needs to read both

sides from the main players, the people who were actually in the

arena at the time the controversy took place. This is especially true

about vaccines. Only by knowing the past and comparing it to the

present " opinion " can one decide what is true and what is not.

> Most people believe that polio was eradicated by Salk's vaccine.

And based on that belief the whole vaccine argument rest.. In other

words if Salk's vaccine wiped out polio, then today's vaccines must

also prevent disease. So if one finds out that Salk's vaccine did not

eradicate polio and that Salk's plan was based on his own theory of

cause and effect, which also was diametrically opposed to the

leading polio " experts " of the time, then one is liable to understand

that if the polio vaccine did not prevent polio then by the same

principle no vaccine will prevent any disease.

>

> I have just finished a book. Breakthrough, the saga of Jonas Salk

by , written in 1966 after the polio fiasco was over.

He interviewed Salk, O'Connor and all the main players in person. You

will read the truth about this most unscientific experiment that cost

11 kids to die and over 200 more to become paralyzed. If you are one

who is trying to educate people not to vaccinate, you need to read

this book.

>

> Punch in used books, there are lots of copies available for 8 or 9

dollars.

>

> Jim

>

January 9, 2009

I don't think Mike's post was meant to rebutt yours, Jim, but more to

validate and add to what you wrote, offering yet another factoid. I

think when he says " if you are too afraid to currently see it, be

brave, because soon enough this house of cards is going to fall and

those responsible will be hauled off to prison. " , he is using it as a

blanket " you " , meaning the entire population of sheeple, not you in

particular.

Just my take on the post...

On Fri, Jan 9, 2009 at 12:33 PM, Jim O <jimokelly@...> wrote:

> You sound like I am on the wrong side.

> Please explain where you picked up the idea

> that I have something to fear.

>

> Jim

January 9, 2009

Exactly. Thanks . Sorry for the confusion, Jim.

>

> I don't think Mike's post was meant to rebutt yours, Jim, but more to

> validate and add to what you wrote, offering yet another factoid. I

> think when he says " if you are too afraid to currently see it, be

> brave, because soon enough this house of cards is going to fall and

> those responsible will be hauled off to prison. " , he is using it as a

> blanket " you " , meaning the entire population of sheeple, not you in

> particular.

>

> Just my take on the post...

>

January 9, 2009

No problem.

I have been doing polio research for several years because I was 13 during

the field trials of 1954. I knew that I was not given the shot and never got

polio.

I then learned that 40 million other kids of that era never got shots and never

got polio.

I then began to investigate to discover it was a hoax. The reason I suggested

that book is because the author is biased in favor of Salk, BUT he interviews

all the other experts who disagreed with Salk. In short any one who has info on

the polio scam can get the info right from the horses mouth on just what all the

scam involved. my theory is when you have the evidence of those that support

vaccine and it clearly shows how stupid they are, then you can shoot down their

theories with their own words and have a better chance of converting them over

to our side.

I will mention I haven't been this interested in a book for a long time. It put

a lot of the pieces of the puzzle in place for me. I had a hard time putting it

down. And I should mention it is not for beginners. You need some knowledge of

the salk hoax to read between the lines..

As far as some people going to jail, the sooner the better.

Jim

________________________________

From: mike yadon <mikeyadon@...>

Vaccinations

Sent: Friday, January 9, 2009 3:27:16 PM

Subject: Re: (unknown)

Exactly. Thanks . Sorry for the confusion, Jim.

>

> I don't think Mike's post was meant to rebutt yours, Jim, but more to

> validate and add to what you wrote, offering yet another factoid. I

> think when he says " if you are too afraid to currently see it, be

> brave, because soon enough this house of cards is going to fall and

> those responsible will be hauled off to prison. " , he is using it as a

> blanket " you " , meaning the entire population of sheeple, not you in

> particular.

>

> Just my take on the post...

>

January 9, 2009

Sounds like what I was thinking, a bit; I was going to ask, what's the harm in

NOT getting vaccinated? Just curious as to what their " argument " is. I wasn't

impressed with what was said on the Amazon group of a few weeks ago, but I

figure if I know what their argument is, I will better be able to

understand/make a decision for myself. So far, I have decided NOT to vaccinate

this one that is due to be born any day now. But every once in a while, you are

struck with the fear that has been driven into your brain all your life.

~~

> From: Jim O <jimokelly@...>

> Subject: Re: Re: (unknown)

> Vaccinations

> Date: Friday, January 9, 2009, 3:53 PM

> No problem.

>

> I have been doing polio research for several years because

> I was 13 during

> the field trials of 1954. I knew that I was not given the

> shot and never got polio.

> I then learned that 40 million other kids of that era never

> got shots and never got polio.

> I then began to investigate to discover it was a hoax.

> The reason I suggested that book is because the author is

> biased in favor of Salk, BUT he interviews all the other

> experts who disagreed with Salk. In short any one who has

> info on the polio scam can get the info right from the

> horses mouth on just what all the scam involved. my theory

> is when you have the evidence of those that support vaccine

> and it clearly shows how stupid they are, then you can shoot

> down their theories with their own words and have a better

> chance of converting them over to our side.

> I will mention I haven't been this interested in a

> book for a long time. It put a lot of the pieces of the

> puzzle in place for me. I had a hard time putting it down.

> And I should mention it is not for beginners. You need some

> knowledge of the salk hoax to read between the lines..

>

> As far as some people going to jail, the sooner the better.

>

> Jim

>

> ________________________________

> From: mike yadon <mikeyadon@...>

> Vaccinations

> Sent: Friday, January 9, 2009 3:27:16 PM

> Subject: Re: (unknown)

>

> Exactly. Thanks . Sorry for the confusion, Jim.

>

> >

> > I don't think Mike's post was meant to rebutt

> yours, Jim, but more to

> > validate and add to what you wrote, offering yet

> another factoid. I

> > think when he says " if you are too afraid to

> currently see it, be

> > brave, because soon enough this house of cards is

> going to fall and

> > those responsible will be hauled off to prison. " ,

> he is using it as a

> > blanket " you " , meaning the entire population

> of sheeple, not you in

> > particular.

> >

> > Just my take on the post...

> >

>

January 9, 2009

Thanks Roz!

________________________________

From: Roz Burton <divasinstylz@...>

Sent: Thursday, January 8, 2009 2:59:38 PM

Subject: (unknown)

Hi to all I have a template that makes all size boxes. It is easy and simple.

All you have to do is enter the size of the box you want length, width, height

and print. The link in posted in my group

Roz B

January 10, 2009

, you will also be struck by fear once your mommy hormones kick in, and

more than once. Be ready, because even the strong among us have given in when

the pressure starts.

It is VERY difficult to shake our " training. " Once that switch is flipped

though, when you understand vaccines don't even work, it will get much easier.

Hope all goes smoothly with the birth!

Winnie

Re: (unknown)

> >

> > Exactly. Thanks . Sorry for the confusion, Jim.

> >

> > >

> > > I don't think Mike's post was meant to rebutt

> > yours, Jim, but more to

> > > validate and add to what you wrote, offering yet

> > another factoid. I

> > > think when he says " if you are too afraid to

> > currently see it, be

> > > brave, because soon enough this house of cards is

> > going to fall and

> > > those responsible will be hauled off to prison. " ,

> > he is using it as a

> > > blanket " you " , meaning the entire population

> > of sheeple, not you in

> > > particular.

> > >

> > > Just my take on the post...

> > >

> >

January 11, 2009

Dear Tan,and other mothers,

I have a daughter that is 17 months with spastic quadriplegic CP. She also is not rolling, or crawling. We are lucky her cognition is not impaired . We have spent the first year of her life doing the standard Physical Therapy (PT), Occupational Therapy (OT) routine at a local hospital. I found their methods were well intentioned , however, it felt like they were addressing a shark wound with a band aid and I my instincts kept telling me there has to be MORE that can be done. I really felt like we were losing time.

There are a couple of therapies that we started doing this past year that may help your son. I researched these methods at length before trying them and after exhausting all the conventional methods. I have not found any other methods as progressive as these. I am hoping this may spare any parent some valuable time, should they be relevant to their children.

The first is ABR, Advanced Bio-mechanical Rehabilitation, it is a therapy that invloves rehabilitating the soft muscles of the body. The therapy is passive (requires no action on the part of your child, except to be still) while the parents are trained to apply the therapy on them. I wil tell you that it is time consuming, however, there is nothing that produces the results this therapy does, It will actually change the shape of your childs body over time (for the better) and help restore the much needed muscle tone their organs and soft tissue need to hold themselves up. The inventor is Leonid Blyum and I believe most families from the pines go to the Singapore location. You can find them at www.miraclekidz.com, you can slo go to www.blyum.com for more info. Leonid does not believe in PT and OT, he is against any therapies that put premature stress

on a childs body (I.E: standers, walkers) He believes it speeds up the road to deformities. His principle is simple, if your body/muscles do not have the strength to perform a task like , walking reaching, crawiling, even sitting, then the muscles must first be rehabiltitated. I welcome you to join the ABR support groups on ( there are two for Asia and the US)and write to the parents using this therapy. There are some who have been doing it far longer than I that can tell you the results they have seen. The speed at which you can see results varies from child to child, but results are measurable and achievable. this is not a "wishful" thinking kind of therapy, where you "Hope" it will work. It really does work, it just depends on your child and your dedication to doing the therapy that dictates how quickly your kid progresses.

The second therapy we found that is a movement therapy is Anat Baniel Method, (www.anatbanielmethod.com). I like it because it also has similar thinking to Leonid's which is that if you are "stressing" the body, you are not really helping it physically and in Anat's therapy, her principle is that you are not helping the childs congnitive ability to learn how to move. Her therapy is focused on finding opportuinties for the brain to make Body/ mind connections through movement. She beleives the brain has the ability to rewire itself and through movement, the mind can re-learn how to move. She has some really good information videos on U-tube, you can google her there. Her site is loaded with info. What I love is that the kids really look like they are enjoying the movement. I found that so refreshing and it really makes sense for the kids, Anat says, if you are in discomfort, (which our

kids usually are if they are not moving) then your brain can only focus on the discomfort and not on the movement you are trying to get them to absorb and integrate. If you are happy/comforatble while someone is trying to teach you movements, you will most likeley retain that information. I really apprectiate her logic. I took my little one to Conductive Education, (a therapy from Hungary), and Hanna would scream for the whole two hours with her eyes shut. It was like torture for her and I would ask myself, "what could she be learning, screaming like that". When they told me "Don't worry , She'll get used to the therapy and will get better at it! " I realized what she was learning was that in order to move, she would need to deal with being constantly uncomfortable and in pain. Before we get to a point where that may end up being the case, I believe there are other, better methods to try first.

The other things I do with Hanna may be therapeutic for her but they are really about us having fun. I take her to a local hospital's rehabilitation swimmimg pool. It is for people needing physical rehab from the hospital, but our doctor gave us a script and I can take her on my own for three dollars a visit. Other children have OT there so there are water toys and anything I need to play with her in the water. She has High muscle tone so the warm water is fabulous for her. Without having to deal with gravity for a while is really fun and relaxing for her so we do that a couple of times a week. She also loves to swing in my lap at the park. Both activities are actually great sensory input for her as well as fun. That's the rule in our house "Having fun". I try to make sure the atmosphere in the house in not all about "Fixing" Hanna. She seems to really appreciate that and I find her much more eager to participate and try new things now that we

have stopped the OT, PT and Conductive ED.

The last thing I found is the Masgutova Method, which is how I found this blog. I do not know very much about it and I am going to meet Svetlana masgutova at the end of January when she will be seeing Hanna. We decided to check it out because the Anat Baniel therapist we are seeing says it is equally as good as Anats therapy, that she likes using both of them in unison and that: if she had to choose one over the other, she couldn't.

That's everything.

I hope there is something of value for you in this info and wish you well in your search for better therapies for your child.

.

From: Tan Cheryl <peckbuay@...>CHILDRENWITHCHALLENGESGROUPS (DOT) COMSent: Friday, December 26, 2008 2:59:56 PMSubject: (unknown)

Dear ALL

My son is 20.5 months old, born with severe jaundice, now kernicterus, microcephaly, blind (due to severe scarring in retina & micro-cornea) and global development delayed. At 2 months old, he was tested CMV positive. 5 months later I tested on myself, found CMV negative. Presently, he has not even roll and not to mention sitting & walking etc. Just wondering if any of you have/met any babies similar to mine? Apart from the OT & PT available at hospital, what are the other alternative treatments available? We're residing at Johor Bahru, Malaysia. I'd love to meet up with mothers of speacial needs in JB.

January 12, 2009

Dear ,Thank you for your wonderful summaries. I look forward to your response about MMRI approach when you have the opportunity after working with Svetlana. Regards,From: Simko <christinasimko@...>To:

Sent: Sunday, January 11, 2009 3:33:11 PMSubject: Re: (unknown)

Dear Tan,and other mothers,

I have a daughter that is 17 months with spastic quadriplegic CP. She also is not rolling, or crawling. We are lucky her cognition is not impaired . We have spent the first year of her life doing the standard Physical Therapy (PT), Occupational Therapy (OT) routine at a local hospital. I found their methods were well intentioned , however, it felt like they were addressing a shark wound with a band aid and I my instincts kept telling me there has to be MORE that can be done. I really felt like we were losing time.

There are a couple of therapies that we started doing this past year that may help your son. I researched these methods at length before trying them and after exhausting all the conventional methods. I have not found any other methods as progressive as these. I am hoping this may spare any parent some valuable time, should they be relevant to their children.

The first is ABR, Advanced Bio-mechanical Rehabilitation, it is a therapy that invloves rehabilitating the soft muscles of the body. The therapy is passive (requires no action on the part of your child, except to be still) while the parents are trained to apply the therapy on them. I wil tell you that it is time consuming, however, there is nothing that produces the results this therapy does, It will actually change the shape of your childs body over time (for the better) and help restore the much needed muscle tone their organs and soft tissue need to hold themselves up. The inventor is Leonid Blyum and I believe most families from the pines go to the Singapore location. You can find them at www.miraclekidz. com, you can slo go to www.blyum.com for more info. Leonid does not believe in

PT and OT, he is against any therapies that put premature stress

on a childs body (I.E: standers, walkers) He believes it speeds up the road to deformities. His principle is simple, if your body/muscles do not have the strength to perform a task like , walking reaching, crawiling, even sitting, then the muscles must first be rehabiltitated. I welcome you to join the ABR support groups on ( there are two for Asia and the US)and write to the parents using this therapy. There are some who have been doing it far longer than I that can tell you the results they have seen. The speed at which you can see results varies from child to child, but results are measurable and achievable. this is not a "wishful" thinking kind of therapy, where you "Hope" it will work. It really does work, it just depends on your child and your dedication to doing the therapy that dictates how quickly your kid progresses.

The second therapy we found that is a movement therapy is Anat Baniel Method, (www.anatbanielmetho d.com). I like it because it also has similar thinking to Leonid's which is that if you are "stressing" the body, you are not really helping it physically and in Anat's therapy, her principle is that you are not helping the childs congnitive ability to learn how to move. Her therapy is focused on finding opportuinties for the brain to make Body/ mind connections through movement. She beleives the brain has the ability to rewire itself and through movement, the mind can re-learn how to move. She has some really good information videos on U-tube, you can google her there. Her site is loaded with info. What I love is that the kids really look like they are enjoying the movement. I found that so refreshing and it really makes sense for the kids, Anat says, if you

are in discomfort, (which our

kids usually are if they are not moving) then your brain can only focus on the discomfort and not on the movement you are trying to get them to absorb and integrate. If you are happy/comforatble while someone is trying to teach you movements, you will most likeley retain that information. I really apprectiate her logic. I took my little one to Conductive Education, (a therapy from Hungary), and Hanna would scream for the whole two hours with her eyes shut. It was like torture for her and I would ask myself, "what could she be learning, screaming like that". When they told me "Don't worry , She'll get used to the therapy and will get better at it! " I realized what she was learning was that in order to move, she would need to deal with being constantly uncomfortable and in pain. Before we get to a point where that may end up being the case, I believe there are other, better methods to try first.

The other things I do with Hanna may be therapeutic for her but they are really about us having fun. I take her to a local hospital's rehabilitation swimmimg pool. It is for people needing physical rehab from the hospital, but our doctor gave us a script and I can take her on my own for three dollars a visit. Other children have OT there so there are water toys and anything I need to play with her in the water. She has High muscle tone so the warm water is fabulous for her. Without having to deal with gravity for a while is really fun and relaxing for her so we do that a couple of times a week. She also loves to swing in my lap at the park. Both activities are actually great sensory input for her as well as fun. That's the rule in our house "Having fun". I try to make sure the atmosphere in the house in not all about "Fixing" Hanna. She seems to really appreciate that and I find her much more eager to participate and try new things now that we

have stopped the OT, PT and Conductive ED.

The last thing I found is the Masgutova Method, which is how I found this blog. I do not know very much about it and I am going to meet Svetlana masgutova at the end of January when she will be seeing Hanna. We decided to check it out because the Anat Baniel therapist we are seeing says it is equally as good as Anats therapy, that she likes using both of them in unison and that: if she had to choose one over the other, she couldn't.

That's everything.

I hope there is something of value for you in this info and wish you well in your search for better therapies for your child.

.

From: Tan Cheryl <peckbuay (DOT) com>CHILDRENWITHCHALLEN GESGROUPS (DOT) COMSent: Friday, December 26, 2008 2:59:56 PMSubject: [childrenwithchalle nges] (unknown)

Dear ALL

My son is 20.5 months old, born with severe jaundice, now kernicterus, microcephaly, blind (due to severe scarring in retina & micro-cornea) and global development delayed. At 2 months old, he was tested CMV positive. 5 months later I tested on myself, found CMV negative. Presently, he has not even roll and not to mention sitting & walking etc. Just wondering if any of you have/met any babies similar to mine? Apart from the OT & PT available at hospital, what are the other alternative treatments available? We're residing at Johor Bahru, Malaysia. I'd love to meet up with mothers of speacial needs in JB.

January 12, 2009

Well, for me since I am a sympathetic dominant type, I take lots of magnesium

and potassium. I take Ionic Fizz Magnesium because it gets right in my

bloodstream and I take double dose. Then I make sure I take 300 mg potassium

divided in the day to calm and uncramp my body.

It may not be the same for a Parasympathetic type because magnesium acidifies

their system. They tend to need lots of calcium. My husband and four children

are Parasympathetics and that was tested in our home....

Johanne

From: son

Sent: Sunday, January 11, 2009 7:07 PM

Subject: [ ] (unknown)

Johanne,

" Just make sure you take care of the cramping " . How do you do that?

What do you do to take care of it?

January 12, 2009

I also am grateful that you took the time to share your

information, and await word about ’s response to Svetlana’s work.

Peace,

Joni

From:

[mailto: ] On Behalf Of

Sent: Monday, January 12, 2009 10:24 AM

Subject: Re: (unknown)

Dear

,

Thank you for your wonderful summaries. I look forward to your response

about MMRI approach when you have the opportunity after working with Svetlana.

Regards,

From: Simko

<christinasimko@...>

Sent: Sunday, January 11, 2009 3:33:11 PM

Subject: Re: (unknown)

Dear Tan,and

other mothers,

I

have a daughter that is 17 months with spastic quadriplegic CP. She also

is not rolling, or crawling. We are lucky her cognition is not impaired .

We have spent the first year of her life doing the standard Physical Therapy

(PT), Occupational Therapy (OT) routine at a local hospital. I found their

methods were well intentioned , however, it felt like they were

addressing a shark wound with a band aid and I my instincts kept telling me

there has to be MORE that can be done. I really felt like we were losing time.

There are a couple of therapies that we started doing this past year that

may help your son. I researched these methods at length before trying them and

after exhausting all the conventional methods. I have not found any other

methods as progressive as these. I am hoping this may spare any parent some

valuable time, should they be relevant to their children.

The

first is ABR, Advanced Bio-mechanical Rehabilitation, it is a therapy that

invloves rehabilitating the soft muscles of the body. The therapy is

passive (requires no action on the part of your child, except to be

still) while the parents are trained to apply the therapy on them. I wil

tell you that it is time consuming, however, there is nothing that produces the

results this therapy does, It will actually change the shape of your childs

body over time (for the better) and help restore the much needed muscle tone

their organs and soft tissue need to hold themselves up. The inventor is Leonid

Blyum and I believe most families from the pines go to the Singapore

location. You can find them at www.miraclekidz. com, you can slo go to www.blyum.com for more info.

Leonid does not believe in PT and OT, he is against any therapies that put

premature stress on a childs body (I.E: standers, walkers) He believes it

speeds up the road to deformities. His principle is simple, if your

body/muscles do not have the strength to perform a task like , walking

reaching, crawiling, even sitting, then the muscles must first be

rehabiltitated. I welcome you to join the ABR support groups on ( there

are two for Asia and the US)and write to the parents using this therapy.

There are some who have been doing it far longer than I that can tell you the

results they have seen. The speed at which you can see results varies from

child to child, but results are measurable and achievable. this is not a

" wishful " thinking kind of therapy, where you " Hope " it

will work. It really does work, it just depends on your child and your dedication

to doing the therapy that dictates how quickly your kid progresses.

The second

therapy we found that is a movement therapy is Anat Baniel Method, (www.anatbanielmetho

d.com). I like it because it also has similar thinking to Leonid's

which is that if you are " stressing " the body, you are not really

helping it physically and in Anat's therapy, her principle is that you are not

helping the childs congnitive ability to learn how to move. Her therapy is

focused on finding opportuinties for the brain to make Body/ mind

connections through movement. She beleives the brain has the ability to rewire

itself and through movement, the mind can re-learn how to move. She has some

really good information videos on U-tube, you can google her there. Her site is

loaded with info. What I love is that the kids really look like they are

enjoying the movement. I found that so refreshing and it really makes sense for

the kids, Anat says, if you are in discomfort, (which our kids usually are if

they are not moving) then your brain can only focus on the discomfort and not

on the movement you are trying to get them to absorb and integrate. If you are

happy/comforatble while someone is trying to teach you movements, you will most

likeley retain that information. I really apprectiate her logic. I took my

little one to Conductive Education, (a therapy from Hungary), and Hanna would

scream for the whole two hours with her eyes shut. It was like torture for her

and I would ask myself, " what could she be learning, screaming like

that " . When they told me " Don't worry , She'll get used to

the therapy and will get better at it! " I realized what she was

learning was that in order to move, she would need to deal with

being constantly uncomfortable and in pain. Before we get to a point where that

may end up being the case, I believe there are other, better methods to try

first.

The other

things I do with Hanna may be therapeutic for her but they are really about us

having fun. I take her to a local hospital's rehabilitation swimmimg pool. It

is for people needing physical rehab from the hospital, but our doctor gave us

a script and I can take her on my own for three dollars a visit. Other children

have OT there so there are water toys and anything I need to play with her in

the water. She has High muscle tone so the warm water is fabulous for her.

Without having to deal with gravity for a while is really fun and relaxing for

her so we do that a couple of times a week. She also loves to swing in my lap

at the park. Both activities are actually great sensory input for her as well

as fun. That's the rule in our house " Having fun " . I try to

make sure the atmosphere in the house in not all about " Fixing "

Hanna. She seems to really appreciate that and I find her much more eager to

participate and try new things now that we have stopped the OT, PT and

Conductive ED.

The last thing

I found is the Masgutova Method, which is how I found this blog. I do not know

very much about it and I am going to meet Svetlana masgutova at the end of

January when she will be seeing Hanna. We decided to check it out because the

Anat Baniel therapist we are seeing says it is equally as good as Anats

therapy, that she likes using both of them in unison and that: if she had to

choose one over the other, she couldn't.

That's

everything.

I hope

there is something of value for you in this info and wish you well in your

search for better therapies for your child.

.

From: Tan Cheryl <peckbuay (DOT) com>

CHILDRENWITHCHALLEN GESGROUPS (DOT) COM

Sent: Friday, December 26, 2008 2:59:56 PM

Subject: [childrenwithchalle nges] (unknown)

Dear ALL

My son is 20.5 months old, born with severe jaundice, now

kernicterus, microcephaly, blind (due to severe scarring in retina &

micro-cornea) and global development delayed. At 2 months old, he was

tested CMV positive. 5 months later I tested on myself, found CMV negative.

Presently, he has not even roll and not to mention sitting & walking etc.

Just wondering if any of you have/met any babies similar to mine? Apart from

the OT & PT available at hospital, what are the other alternative

treatments available? We're residing at Johor Bahru, Malaysia. I'd love to

meet up with mothers of speacial needs in JB.

--- Get FREE High Speed Internet from USFamily.Net! ---

January 12, 2009

Hi, and welcome to this group,

I watched a video of Dr. Bihary about LDN and RA, where he said that RA is one of the diseases responding very well on LDN.

Sign In

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