Re: (unknown)

February 27, 2003

, let me jump right in here and apologise for my smart-mouthed

comment about nurses. Where would any of us be without the good

ones? (Like you, no doubt!)

All the best to you on Monday.

Sharon in Southern New Hampshire

Congenital scoliosis w/ spina bifida and other vertebral anomalies

1971 Harrington rod fusion, T5-L4, flatback, L5-S1 degeneration, etc.

> Kate,

>

> AMEN! Exactly what I was trying to say though you said it much

sweeter! I

> just have a smart mouth!

> Banner-Lach, RN, CCM, RN-WCCM

March 3, 2003

Dear Lynn

Greetings. I run a charity called PriMHE, which has a Journal for primary

care professionals

on mental health issues..so very interested in your Healthy Schools

work...from both children

and teachers mh aspects. Also just about to launch a CAMH in Primary Care

Journal. Please bear

this in mind as you work. We like to share good work and best practice

around the UK.

Very Best Wishes in your work

Manning

www.primhe.org

0780 1106 550

(unknown)

Hi

My background is health visiting, but just over two months ago I took on two

new posts. One is clinical development manager for education and training

within the clinical governance team TRYING to find my feet (!) and the other

is to 'job share' a post as healthy schools coordinator.

Given your details from a colleague in Berkshire and hope be involved in the

discussions!

Lynn

_________________________________________________________________

MSN Messenger - fast, easy and FREE! http://messenger.msn.co.uk

March 4, 2003

I can't tell you how much relief it is to dip in hot paraffin every evening.

Although I originally thought it did not have long-term relief--I have

changed my mind. Between wearing a magnetic copper bracelet and dipping

every evening--my finger joints have lost almost 100% of the pain and

stiffness. I got both for Christmas and can't tell which one has given

relief--or maybe it is a combination. Before this, snapping my fingers (my

usual discipline for classroom, pets or my own children) was excruciating.

Now is is almost pain free.

Ks Di

[ ] (unknown)

> Hi everyone. It has been awhile since I posted here. Have been on

> MTX for awhile now, but the highest dosage is too much for my liver;

> the tests come back above the allowed limits. SO when she <doctor>

> bumps the MTX down a bit, it isnt enough to keep the PA in check. In

> the last month, the PA moved into my hand and wrist, very quickly.

> I was rapidly losing my range of motion, and the pain was

> excruciating. It previously had only been in fingers. So, my rheumy

> decided to start me on remicade. My insurance approved it thank

> goodness. And I am happy to say that after the first treatment, I am

> using my hand again, with only minimal stiffness and slight

> discomfort if I push the limit of its use. I am very pleased with

> the results after one treatment.

>

> Seems like I have read in the archives here that its length of use is

> limited? After a period of time, it looses some of its

> effectiveness. Did I read that correctly?

>

> ON a side note, the nurse in my doctors office that gave me the

> infusion of remicade, has rheumatoid arthritis. She received her

> infusions through another doctor, and had a less than pleasant

> experience. So she strives to make her office there and the infusion

> of patients, as comfortable as possible. She had a candle going, and

> the relaxing music of Enya playing low in the background. And turned

> off the lights, with only window light to see by. And recliners to

> relax in. There was a television, with video taped movies to watch

> as well. It was very nice.

>

> Thank you all for your continued support and information here.

>

> Robbi

> Diagnosed with PA 2000

> Doctor: Laila Hassan

>

> Please visit our Psoriatic Arthritis Group's informational web page at:

> http://www.wpunj.edu/pa/ -- created and edited by list member

aka(raharris@...).

>

> In August 2001 list member Jack aka(Cornishpro@...) began to

conduct extensive research which he publishes as the Psoriatic Arthritic

Research Newsletter monthly in our emails and digest format. Many thanks to

Jack. Back issues of the newsletter are stored on our PA webpage.

>

> Also remember that the list archives comprise a tremendous amount of

information (Over two years of messages and answers).Feel free to browse

them at your convenience.

>

> Let's hear from some of you lurkers out there! If you have a comment or

question chances are there is a person who has been around a while who can

help you out with an educated guess for an answer. If not we can at least

steer you in the right direction with a good website to go to for the

answers.

>

> Blessings and Peace,

>

> Atwood-Stack, Founder

> Alan , Web & List Editor

> Jack , Newsletter Editor

> Pat Bias, List Editor

> Ron Dotson, List Editor

> and many others who help moderate (thank you!)

>

March 4, 2003

Hi Lynn

I met with staff from the CAMHS unit in Suffolk yesterday and a good part of our conversation hinged around how teachers can get the information they need about all manner of mental health problems in school age children, perhaps even some form of checklist that helps to highlight concerns in the context of an individual child. As far as I understand it, teachers don't receive any training in the area of mental health of their pupils and many are left swinging with only their intuition and determination to rely on. School nurses are the most obvious and sensible arbiters in these situations, but again, provision and role definitions clearly differ across the country, with different communities and their needs to add to the mix. Healthy Schools seems like a good starting point for maximising the communication exchange, although I have to confess I'm ignorant about the role healthy schools plays. How much emphasis is there on mental health/behavioural problems and solutions is there in this initiative?

Fiona

PS: I'm a very interested non-professional, commissioning/managing editor for Child and Adolescent Mental Health in Primary Care journal and on a steep learning curve, therefore all information is very welcome.

From: " lynn torpey " <lynntorpey@...>

Reply-

Date: Sun, 02 Mar 2003 15:13:05 +0000

Subject: (unknown)

Hi

My background is health visiting, but just over two months ago I took on two

new posts. One is clinical development manager for education and training

within the clinical governance team TRYING to find my feet (!) and the other

is to 'job share' a post as healthy schools coordinator.

Given your details from a colleague in Berkshire and hope be involved in the

discussions!

Lynn

_________________________________________________________________

MSN Messenger - fast, easy and FREE! http://messenger.msn.co.uk

March 5, 2003

I shall be out of the university until Monday next, March 10th. If your message

is urgent

please contact either one of my colleagues, Frances Appleby on 0207-815-8014 or

n Frost

on 0207-815-8461

Betty

March 5, 2003

No

My address has changed.

Please reply to: mail@...

(unknown)

And this wasn't followed by an abreaction?

> Group:

>

> Tonight I had a client, who I see regularly,

start out wonderful.

As the

> segments progressed however, theta went up

and up and up. What could

> account for it? She says she just,

" Stares at the screen " Is she

going

> into some kind of a trance. Should I instruct

her to focus more? I

am

> doing C3/4 2 channel training.

>

> Any guidance?

>

> Mark

>

> ------ USFamily.Net <http://www.usfamily.net/info>

- Unlimited

Internet

> - From $8.99/mo! ------

March 6, 2003

In a message dated 3/6/2003 3:48:15 AM Eastern Standard Time,

costello@... writes:

> I can't tell you how much relief it is to dip in hot paraffin every evening.

I bought my daughter a paraffin fro Christmas for dry hands and have used it

myself several times. It is wonderful and really soothes my joints on my

hands especially where I hurt the most which is between my palm and lower

thumb.

Janet

March 6, 2003

I'd talk to Dr. G about changing the antiviral. My son and some others I

have heard had strange, rude temperment changed on Valtrex. The day we

switched to Famvir, the ugliness stopped.

Gaylen

March 7, 2003

Dear Senate,

Today the national drugs office (www.drugs.gov.uk)

have announced new funds for young people & drugs

and issued three official reports on vulnerable groups:

young offenders, care leavers and homeless young people.

Woody.

On Wed, 5 Mar 2003 21:12:30 -0000 Ruth Grant

<ruth@...> wrote:

> Re: (unknown)Hello Fiona,

> I am an HV and nurse member of a primary care trust: In that capacity I have

been sitting on interagency committees (inc LA and Edn) working towards

improving the emotional health of children in our area using the 'Healthy

Schools' strand. We are planning a number of initiatives using the Childrens

Fund monies from Government. The 'Healthy Schools' is an educative attempt at

integrating the health and social needs of the child with the principle role of

the school - to educate the child. This, therefore, has formal recognition and

is more easily timetabled and the school gains 'Brownie Points' for achieving

the various strands within it's curriculum. Ruth

> (unknown)

>

> Hi

> My background is health visiting, but just over two months ago I took on

two

> new posts. One is clinical development manager for education and training

> within the clinical governance team TRYING to find my feet (!) and the

other

> is to 'job share' a post as healthy schools coordinator.

> Given your details from a colleague in Berkshire and hope be involved in

the

> discussions!

> Lynn

>

> _________________________________________________________________

> MSN Messenger - fast, easy and FREE! http://messenger.msn.co.uk

>

March 7, 2003

I shall be out of the university until Monday next, March 10th. If your message

is urgent

please contact either one of my colleagues, Frances Appleby on 0207-815-8014 or

n Frost

on 0207-815-8461

Betty

March 7, 2003

Wow, , that's quite a story. I wonder how severe your scoliosis was,

because if it wasn't reasonably severe or progressing you MIGHT not have

needed surgery. I think it's more likely that your surgeon sincerely

believed to the best of his judgement that you were at significant risk for

progression to the point of extreme pain/disability. People have even died

because their rib cages twisted to the point where there was no room left

for their lungs. I've actually talked online to people who are on oxygen

therapy, and caught one " grapevine " mention of a guy who finally did die

from scoliosis, shockingly recently. This is a real disease. The study

you mentioned may be problematic in that the scoliosis patients studied

were probably left untreated surgically at the discretion of their

orthopedists, who would have determined that they didn't need surgery. I

can't say for sure, as I haven't seen it.

My family tree is full of scoliosis, so I've seen a range of severity. My

grandmother lived mostly in the pre-treatment era. She became

progressively more crooked until her death of cancer at age 86, so she did

live a long, full life, but as the deformity and age progressed so did her

unrelenting pain. Of stoic roots, she always remarked, " You learn to live

with it. " She was pretty visibly deformed, though.

My father and older half-sister and I all had fusions for our scoliosis, my

dad's at age 47, when he was in enough pain that he felt he needed it,

though I don't think it was progressing to the danger point. I'm the

oddball in the family. Mine is actually a different disease, congenital,

rather than idiopathic scoliosis. This means I was born with deformed

vertebrae which caused the whole spine to curve. There was no question

when my curvature progressed significantly during my pre-teen years that I

was one of the ones who could have died without a fusion. My younger

sister wore a brace for a couple of years, to get her through her

adolescent growth spurt, at which time it was decided that she'd do ok

without surgery. At age 42 she does look crooked in a bathing suit, but

she is otherwise quite normal and leads a very busy life as a professor and

mom. Is she better off than I? Undoubtedly. She was just lucky enough to

get a milder case.

Now, I do know about the frustration of losing your flexiblity. I was

fairly athletic for a child, considering how deformed I was, but I lost

most of my interest in physical activity after the surgery. I felt tired

and clumsy and off-balance, as I still do. It is now worse, as I've become

hunched over with " flatback " . I do think most of these doctors are

arrogant something-or-others, and that they do downplay the negative

effects of immobilizing the spine. But they also know how damaging

scoliosis can ultimately become, and that their technology limits them.

Fusion is the lesser of two evils.

I know exactly what you mean about cross-country skiing. Your body just

doesn't have the needed flexibility. I honestly think long fusions can

make many activities harder, even walking. Forget running with a fusion

which extends into the lumbar spine. (Yours may not; I don't know, But

your description of your waistline and inflexibility suggests it.) There

are forms of exercise which are more fusion-friendly. My 44-year-old,

flatback-affected knees can't do much biking any more, but I used to love

it. I still enjoy swimming, which I do with adaptations and with the

understanding that I'll never glide like a flexible-spined dolphin (or

human). And careful weight-training helps keep me strong. It's definately

more of an effort for us fusion patients to exercise, but I've suffered the

effects of a sedentary life in the past and learned my lesson.

I do wonder if you might actually be a candidate for some further surgery,

at least getting the whole stupid rod out. Don't even discuss this with a

doctor who is not a scoliosis specialist. They don't know hooey. Many

people have their original surgeries older than you, so that " nobody would

touch you " stuff is malarkey.

I am limited in what I can recommend doctor-wise, because you're in Canada.

Our Canadian scoli brethren do complain that they have difficulty finding

specialists in adult scoliosis and revision surgery. If money were no

object you could consult a top-notch US surgeon. I don't know the first

thing about working the Canadian system. But if you stick around you may

find fellow Canadian patients who can make recommendations.

You are right that people who have not been through this don't have a clue.

For the most part they can't handle the unvarnished truth. I am fortunate

to have a pretty good family support system, but still find the onlne

support indispensible. There are lots of friendly, understanding people

here who can't see what you look like but can relate to what you're

feeling. Occasionally a feisty member needs a gentle reminder that whining

and pity-parties are totally acceptable here, as is venting, etc. Please

continue to read, post, stay, share, and update us on the progress of your

self-care journey. You DO have a legitimate gripe as well as a nasty piece

of developmental bad luck. You are not alone.

Welcome, , and do keep us posted.

Sharon in southern New Hampshire :^)

Congenital scoliosis w/ spina bifida and other vertebral anomalies

1971 fusion T5 to L4 w/ single Harrington rod

Flatback, congenital thoracolumbar kyphosis, L5-S1 degeneration, etc.

At 09:52 PM 3/6/03 -0000, you wrote:

> Hello,

>

> my name is rachel and i am posting this message for no other reason

> than to vent. i have so many feelings bottled up inside me and there

> has never been anyone i could express them to because no one

> understands. people think you're overreacting and want you to calm

> down as fast as possible - kind of like deal with it and get over it.

> i've been trying for 16 years to 'get over it' but i'm stuck -

> psychologically and physically in one position. maybe if i write down

> a bit of my story here it will help - it's worth a try anyways. i

> don't care really how anyone reacts here because it's over the

> internet and sort of anonymous. if anybody judges me it won't matter.

> so, i want to tell a bit of my story - but anyone who reads further

> should be forewarned - what may follow is the account of someone who

> feels tremendous self pity and victimization.

>

> I had harrington rod surgery in 1987 when i was 14. the doctor

> claimed it was very important that i have this surgery and afterwards

> i would be able to live a normal life. after the surgery i wore a

> back brace for 7-8 months. when i came out of the back brace i was

> horrified. i looked way more deformed than before i went in for the

> surgery. i didn't know how to say this - so i concentrated on

> something 'little' like the portruding hardware from the middle of my

> shoulder blades. so the doctor took out some of my metal and

> shortened the rod. the metal still sticks out of back but it's not as

> obvious now (but i still hate it!). after the surgery whenever i

> looked in the mirror i would cry. after the surgery i had to try 100

> times harder to find clothes that 'fit'. i couldn't wear anything! my

> waist became very uneven and i always wore a sweater or something

> long to cover up my (now way) crooked body. Not being a brave person,

> not being a person who speaks up for herself - i wrote my doctor a

> few letters asking him questions. the first letter was responded to -

> the second one was ignored. then he moved away and i had nobody to

> ask - nobody to consult about my surgery. it's like ok - i'm going to

> ruin your life than i'm going to move away because you are 'cured'.

> so every day after that surgery i have been depressed. every day i

> wonder what it would be like to be in a different body. i have to

> admit - after reading some of your stories i have to say i am not in

> that much pain. i can tie my shoelaces. i can sit for a long period -

> if i find the right position. i can walk far although i can't seem to

> stand for a very long time. most of the pain i am in is

> psychological. i hate myself. i could never return to the sports i

> used to love before the surgery. every time i tried i would get hurt

> or sore or embarassed/humiliated. hmmm, having your entire spine

> attached to piece of metal affects your physical abilities - do the

> doctors know about this?

> i hate doctors. i think they are very very arrogant. i've moved

> around alot in the past year and have finally settled somewhere (i am

> a born and bred canadian) and i told him a little how i was feeling

> about my condition. i guess this latest sadness came about when i was

> taking X-Country ski lessons. i took 2 and then gave up. my body is

> so jerky and off balance how can i ever have the smooth glides of a X-

> Country skier. even the easiest sport is too much for me. and my

> doctor said the worst thing i could do is stop being active. he asked

> if i would continue X-Country skiing and i said NO. he wondered why?

> what is so difficult about it? how do i explain? my body is pathetic

> weak and useless? my body doesn't 'flow' like other peoples. i told

> him about my surgery and how i've never gotten over it, i told him

> how some screw or something is loose in my back. he said well

> probably no surgeon will touch you because of your age (ouch that

> really hurt since i am 29). so next week i will have a CAT scan or

> something and who knows what will happen out of that - probably

> nothing because that seems to be the way these things are treated -

> like nothing. especially in Canada. the dr recommended a physical

> therapist so i have seen one a few times. i don't feel like it's

> making me better (since my definition of better would be a different

> body) but i guess it's stopping me from getting worse.

> Pain ? physical pain? i have a little. nothing severe just a dull

> ache in my right shoulder, and hips. it's something that drugs have

> helped a little.

> so that is a part of my story. i have absolutely let scoliosis and

> the surgery i've had for it rule/ruin me. recently i read about a 50

> year university of Iowa study that followed people with scoliosis who

> ere left untreated. well guess what? these people were a little

> uncomfortable with their appearance but overall were happy and

> healthy. looking back at the life i've lead and knowing what i know

> now i would never have had that stupid surgery. i would tell that 13

> year old girl - scoliosis, so what? you will look better and be

> healthier and happier without surgery - don't bother. but i can't do

> that. so what can i do? i have no clue. i feel somewhat hopeless.

> i feel like i've been frozen in time mentally and physically for 15

>

March 8, 2003

Dear ,

Could you give us some more information about your scoliosis? Do you know

how many degrees you still have? When you say you are crooked and bent out

of shape, how do you mean it? I know these are painful things to talk about

but please try to explain a little more about your body. Also (I am NOT a

doctor, so take what I'm saying with a big grain of salt) - you might

consider asking your doctor for an antidepressant - this may help you get

" unstuck " so you can go on and make some decisions about what to do. Have

you tried some sort of water-therapy? Like simple exercises or just

swimming backstroke?

Also, if you really hate your body image so much, perhaps you should

consider seeing another scoliosis specialist and find out if he/she can DO

something. Body image is still an issue with me (I'm 58) so I certainly

understand how you must feel at your young age. Also, I had my first op

when I was 33, and I have heard of people in their 70s having scoli ops, so

I don't think age is really a problem.

Please, don't worry about venting or feeling sorry for yourself - that's

what this list is for! Good luck and keep writing.

March 8, 2003

Could they also please list the heavy metals and pesticides on the outside

packaging of our food. Iwould like to know for example how much

organosphosphates are covering the leaves of the Boston lettuces. And it

would be nice to see in black and white how much mercury is in the tin of

tuna.

[ ] (unknown)

http://abcnews.go.com/wire/US/ap20030308_620.html

FDA Proposes Standards for Supplements

FDA Proposes Standards to Cut Fraud, Contamination of Dietary

Supplements

The Associated Press

WASHINGTON March 8 -

Millions of users of St. 's wort, calcium and other dietary

supplements may soon know for sure they're getting what they pay for:

The government proposed the first manufacturing standards for the $19

billion supplement industry in an attempt to cut fraud and

contamination.

There still will be no guarantee that the pills and powders deliver

the health benefits advertised or are even safe to swallow. Unlike

drugs, supplements can be sold without any scientific proof of safety

or effectiveness.

But the Food and Drug Administration's long-awaited factory rules,

proposed Friday, aim to ensure that the ingredients and dosages

promised on a supplement's bottle really are contained inside without

dangerous contaminants like bacteria and brain-damaging lead that

have been found in some.

Today, this is " a buyer-beware market, " said FDA Commissioner Mark

McClellan. " Millions of Americans use dietary supplements every day,

and we need to make sure they're getting the products they pay

for ... that are accurately labeled and free from contaminants. "

There are more than 1,000 makers of dietary supplements, products

that range from mainstream vitamins to herbs to controversial

hormones and stimulants. Ephedra an herbal stimulant blamed for

dozens of heart attacks, strokes and deaths is the most notorious,

drawing an FDA warning last week.

Supplement makers are exempt from most safety oversight, thanks to a

1994 law. Nor has there even been federal quality control: Over and

over in recent years, scientists and consumer groups have uncovered

fraud when testing various types and brands.

The FDA cited a bee product found to be contaminated with lead, and a

brand of folic acid required during pregnancy to reduce birth defects

that contained only a third of the promised dose, meaning women

consumed too little for protection.

In another example, California researchers tested 12 different

bodybuilding supplements and found only one contained the amount of

androstenedione or related ingredients promised on the bottle. Far

worse, one brand illegally contained testosterone, a controlled

substance that should be sold only with a prescription.

The new manufacturing standards aim to prevent such problems with,

among other things, certain quality-control steps that require

company testing of ingredients and finished products to verify purity

and dose. Also required are improvements in labeling and ways to

handle consumer complaints.

The FDA characterized the rules as a mix of standards now required

for foods and for over-the-counter drugs such as aspirin.

The rules are open for public comment for three months. Final

regulations are expected next year, and manufacturers then would have

time to start complying up to three years for the smallest companies.

McClellan promised inspections of supplement factories, with special

focus on " potential bad actors, " to ensure compliance.

Until now, only a small portion of the supplement industry has

followed voluntary quality standards. Some companies paid for

programs, run by such organizations as the U.S. Pharmacopeia, that

did spot-testing to certify a product contained the ingredients

advertised.

Some supplement makers have long lobbied for the standards, required

under the 1994 supplement law, by arguing that less reputable

competitors were harming the whole industry.

" The responsible manufacturers are happy to comply " with FDA's

standards, said Hathcock of the Council for Responsible

Nutrition, which represents 80 companies that follow voluntary

quality standards.

The rules will force bad manufacturers to " get in line or get out of

business, " he said.

Consumer groups also welcomed the standards.

The proposal is " a step in the right direction, " said Bruce

Silverglade of the Center for Science in the Public Interest, which

has pushed FDA to crack down on fraudulent and dangerous supplements.

But the rules won't ensure a supplement is completely safe, just that

it has no impurities, Silverglade cautioned.

Consumers " can know it has the strength per dose of whatever

ingredient it is they're ingesting, but it could still be harmful to

them, " agreed Janelle Mayo Duncan of Consumers Union, which wants

more stringent regulation to bar risky supplements.

=======================================================

March 8, 2003

I think mostly it is all synthetic T4 hormone in Europe right? But very

slowly natural thyroid meds are becoming available, thanks to anti-aging

docs like Thierry Hertoghe in Belgium. Sorry I can't give you any names of

European meds. Nature-throid and bio-throid are supposed to be available in

Europe. have you looked at www.armourthyroid.com ?

>

> ----- Oorspronkelijk bericht -----

> Van: Annemie

> Aan: hypothyroidism

> Verzonden: zaterdag 8 maart 2003 15:14

> Onderwerp: Re: (unknown)

>

> Thank you

> I wanted to ask is there anybody that has a list of medication they use

for hypothyroidism that has names they use for example in europe to names

they have for meds in the us??? It is confusing to see all those names and

having no clue what type of meds that is other then for the thyroid, can

anybody tell me about the ingredients in the meds and the names??

> liefs

> Annemie

> ----- Oorspronkelijk bericht -----

> Van: jezebel56@...

> Aan: hypothyroidism

> Verzonden: donderdag 20 februari 2003 23:30

> Onderwerp: Re: (unknown)

>

> Annemie..what a beautiful name!!!:)

> Ok,I have been on Thyrolar for 3months now and I just went to see my Dr.

> and asked that he put me on Armour to see if there is a difference in

> the two.I will keep all posted!!!

> Deneen:)

>

March 8, 2003

Annemie

this is a good dutch site

http://www.hypomaarniethappy.nl/

I hope this help

Liefs Wienny

[a dutch woman also :-)]

>

> I think mostly it is all synthetic T4 hormone in Europe right? But

> very

> slowly natural thyroid meds are becoming available, thanks to

> anti-aging

> docs like Thierry Hertoghe in Belgium. Sorry I can't give you any

> names of

> European meds. Nature-throid and bio-throid are supposed to be

> available in

> Europe. have you looked at www.armourthyroid.com ?

> >

> > ----- Oorspronkelijk bericht -----

> > Van: Annemie

> > Aan: hypothyroidism

> > Verzonden: zaterdag 8 maart 2003 15:14

> > Onderwerp: Re: (unknown)

> >

> > Thank you

> > I wanted to ask is there anybody that has a list of medication they

> use

> for hypothyroidism that has names they use for example in europe to

> names

> they have for meds in the us??? It is confusing to see all those names

> and

> having no clue what type of meds that is other then for the thyroid,

> can

> anybody tell me about the ingredients in the meds and the names??

> > liefs

> > Annemie

> > ----- Oorspronkelijk bericht -----

> > Van: jezebel56@...

> > Aan: hypothyroidism

> > Verzonden: donderdag 20 februari 2003 23:30

> > Onderwerp: Re: (unknown)

> >

> > Annemie..what a beautiful name!!!:)

> > Ok,I have been on Thyrolar for 3months now and I just went to see

> my Dr.

> > and asked that he put me on Armour to see if there is a difference

> in

> > the two.I will keep all posted!!!

> > Deneen:)

> >

March 8, 2003

In a message dated 09/03/2003 01:40:49 GMT Standard Time, streetshell@...

writes:

> Does anyone know about the Edelson Center in Atlanta? Any

> information would be greatly appreciated.

> Michele

>

Its VERY expensive

Mx

March 9, 2003

on 9/3/03 12:38 PM, fightforc at streetshell@... wrote:

> Does anyone know about the Edelson Center in Atlanta? Any

> information would be greatly appreciated.

> Michele

>

March 9, 2003

Dear Sharon,

I just had to tell you that you wrote a really beautiful letter to . It was informative, supportive - everything this site is supposed to be!

Carol

March 9, 2003

Thanks for the feedback:))

I will go and have a look thank you:)

liefs

Annemie

----- Oorspronkelijk bericht -----

Van: cyberwoman

Aan: hypothyroidism

Verzonden: zaterdag 8 maart 2003 22:36

Onderwerp: Re: (unknown)

Annemie

this is a good dutch site

http://www.hypomaarniethappy.nl/

I hope this help

Liefs Wienny

[a dutch woman also :-)]

>

> I think mostly it is all synthetic T4 hormone in Europe right? But

> very

> slowly natural thyroid meds are becoming available, thanks to

> anti-aging

> docs like Thierry Hertoghe in Belgium. Sorry I can't give you any

> names of

> European meds. Nature-throid and bio-throid are supposed to be

> available in

> Europe. have you looked at www.armourthyroid.com ?

> >

> > ----- Oorspronkelijk bericht -----

> > Van: Annemie

> > Aan: hypothyroidism

> > Verzonden: zaterdag 8 maart 2003 15:14

> > Onderwerp: Re: (unknown)

> >

> > Thank you

> > I wanted to ask is there anybody that has a list of medication they

> use

> for hypothyroidism that has names they use for example in europe to

> names

> they have for meds in the us??? It is confusing to see all those names

> and

> having no clue what type of meds that is other then for the thyroid,

> can

> anybody tell me about the ingredients in the meds and the names??

> > liefs

> > Annemie

> > ----- Oorspronkelijk bericht -----

> > Van: jezebel56@...

> > Aan: hypothyroidism

> > Verzonden: donderdag 20 februari 2003 23:30

> > Onderwerp: Re: (unknown)

> >

> > Annemie..what a beautiful name!!!:)

> > Ok,I have been on Thyrolar for 3months now and I just went to see

> my Dr.

> > and asked that he put me on Armour to see if there is a difference

> in

> > the two.I will keep all posted!!!

> > Deneen:)

> >

March 9, 2003

Gracia

thanks for trying and sending me the site i will surely have a look;)))

liefs

Annemie

----- Oorspronkelijk bericht -----

Van: Gracia

Aan: hypothyroidism

Verzonden: zaterdag 8 maart 2003 17:00

Onderwerp: Re: (unknown)

I think mostly it is all synthetic T4 hormone in Europe right? But very

slowly natural thyroid meds are becoming available, thanks to anti-aging

docs like Thierry Hertoghe in Belgium. Sorry I can't give you any names of

European meds. Nature-throid and bio-throid are supposed to be available in

Europe. have you looked at www.armourthyroid.com ?

>

> ----- Oorspronkelijk bericht -----

> Van: Annemie

> Aan: hypothyroidism

> Verzonden: zaterdag 8 maart 2003 15:14

> Onderwerp: Re: (unknown)

>

> Thank you

> I wanted to ask is there anybody that has a list of medication they use

for hypothyroidism that has names they use for example in europe to names

they have for meds in the us??? It is confusing to see all those names and

having no clue what type of meds that is other then for the thyroid, can

anybody tell me about the ingredients in the meds and the names??

> liefs

> Annemie

> ----- Oorspronkelijk bericht -----

> Van: jezebel56@...

> Aan: hypothyroidism

> Verzonden: donderdag 20 februari 2003 23:30

> Onderwerp: Re: (unknown)

>

> Annemie..what a beautiful name!!!:)

> Ok,I have been on Thyrolar for 3months now and I just went to see my Dr.

> and asked that he put me on Armour to see if there is a difference in

> the two.I will keep all posted!!!

> Deneen:)

>

March 9, 2003

Hey, thanks for the encouragement, Carol. You made my day!

I just hope it helps .

:^)

At 10:24 AM 3/9/03 EST, you wrote:

> Dear Sharon,

>

> I just had to tell you that you wrote a really beautiful letter to

>. It was informative, supportive - everything this site is supposed

>to be!

> Carol

>

March 9, 2003

Thanks for posting this information Ron, I am quite familiar with it. I too

have IBS and as well as GERD...

Charmaine

http://www.npwa.freeserve.co.uk/IBS.html

" IRRITABLE BOWEL SYNDROME "

March 9, 2003

Raquel,

I don't have any answers for you but hope you keep coming back to this group to sound off. Good luck on the CAT scan. There are good docs out there but few understand the long term affects of the fusions or Harrington Rods.

God bless.

Joyce in Atlanta, GA

March 13, 2003

Some people have said that 348.9 Brain Disorder NOS gets quite a bit of

medical testing paid for. Since she's talking conduct problems, perhaps

she'd agree to a general brain disorder code? We've also had quite a bit

paid for using symptoms as codes. Not sure what his symptoms are but perhaps

you could list them so she could come up with something she'd feel

comfortable with. Sounds like it's time to find a new doc.

Gaylen

March 14, 2003

Hello,

One of the best combinations I've tried is the one supplied by

www.wholeapproach.com . I just had one of those zappers used on me by a

chiropractor because he tested me for viruses & determined that I had Epstein

Barre virus.

I had a terrible die-off but I'm starting to feel better now. I hope this will

do as he says & rid me of all viruses. I think I'm going to buy one of those

zappers to use myself whenever I want to, to rid my blood stream of yeast,

bacteria, & viruses. They cost under $100 and I'm fairly convinced they work

after my one experience with one.

Other things I've found helpful are colonics, hydrogen peroxide IV's,

breathing pure oxygen, putting a UV-C light in your heating/AC unit to kill

viruses, mold, bacteria in the air, lots of antioxidants, vitamins, minerals, &

fatty acids. I also eat no wheat, oats, milk, soy, sugar, aspartame, colorings,

preservatives.

I've also gone to a chiropractor to eliminate allergies. He does it by having

you hold a vial containing the substance then using an electronic device on

certain acupuncture points. You avoid the substance for 24 hours & you are no

longer allergic to it. It sounds wierd but it really really works.

Also I take 500 mg of grapeseed extract to protect my blood-brain barrier

which gets too permeable after the gut wall starts allowing things to pass

through it particularly yeast, & undigested proteins.

Good luck. Let me know when you find the ultimate cure cause I'm still

looking.

(unknown)

Hi

I'm new to the group, just joined today.

I'm hoping that by joining this help group I'm going to find a way

of controlling and beating this terrible condition which has made my

life hell.

I'm 33 years old and have been sufering for as long as I can

remember but over the last 4 or 5 years it has gradually worsened

with no help from prescription drugs or my GP who I'm sure is

convinced I'm a hypocondriac!

I've been sent for ultrasounds, laparoscopy's...the works and they

all come back as normal.

I've now got to the stage where I am getting recurring thrush every

6-8 weeks, my GP prescribes the usual pesarries, Diflocan tablets

(which my partner takes too) but it still comes back!

I've tried cutting out yeast products, I stopped drinking for 6

months, didnt eat bread, cut out sugar and it still came back!

I'm at my wits end now, I'm tired of being in pain, feeling sore and

bloated, tired, depressed, I have no sex drive now and at times I

have felt suicidal.

A friend thought I might be suffering from something like Irritable

bowel Syndrome and reading information on that condition pointed me

towards Candidiasis. I've read that this can spread to your gut,

bowel, joints etc and you end up with symptons very similar to IBS.

I've also been reading about various herbal products which I would

like to know if other people have used and whether they have had any

success?

Goldenseal root - this is available in my health store, I've seen it

recommended on several sites so I'm going to give it a try.

Threelac - I've been reading the most amazing testimony from a

couple who claim is has cured them...can this be true! Does anyone

know if it is available in the UK?

Sorry if I have waffled a bit but you can't imagine how pleased I am

to find I am not then only one going through this...I just hope this

is a means to an end.

Thanks

Celeste

Sign In

Re: (unknown)

Recommended Posts

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest

Share this post

Link to post

Share on other sites

Guest guest