Re: (unknown)

[Guest guest]

doesn't like girls.

[Guest guest]

Dear Roline, If I were you, I'd seek an orthopedic MD with knowledge

about Scoliosis. It should be followed to plot patterns, such as

progression, nerve damagem etc. Personally, I went to the orthopedic

every two years since 19 years old, as directed, and it gave me peace of

mine, if nothing else.

--

Lana

**

****

********

---------------------------------

>RETURN MEMORIAL DAY TO MAY 30TH<

---------------------------------

********

****

**

[Guest guest]

he he

Re: [ ] (unknown)

doesn't like girls.

[Guest guest]

Andy you come off like a holier than thou asshole and I would bet my left arm before you were infected with HCV you were the same holier than thou asshole.

[ ] Re: (unknown)

These Challenges still face the recently diagnosed in 2003.A diagnosis of Hepatitis C often brings shock, confusion andindecision to those who learn of it, and may have suspected nothing.Questions abound. Should I accept treatment if it is offered? Should Iwait? Why does my Province offer to pay for treatment. What are theconsequences of treating now or waiting? Should I just try to livewith it? What might be the results or consequences of either decision?Can I pass this on to my wife or husband, children, or family? If so,how and how may I reduce the risks of it? What is the probable outcomefor me and/or my loved ones? Can the disease be cured? Can liverdamage be repaired or reversed? Can symptoms be relieved? What are thetreatments like? Are there side effects? Are the side effect risksworth possible benefits? Who is likely to benefit from treatment? Whomay be harmed by treatments? What are my treatment options? Should Iuse alternative or complimentary treatments, and if so, along withstandard treatments or in place of them? Where can I go for reliableinformation?Keep in mind the percentages of people who cleared the virus using aplacebo during stage II and III trials. Schering does not wish thisinfo to become public domain. The mind can often do the impossible andmuch research should be put into why these people and many childrenhave cleared the virus with no help from Pharmco's.Lastly, please encourage as when he is posting he is not outabusing his fellow citizens. Thus you have done your good deed for theday. Maybe saved someones life. Just think of all the situations wherewe have run into the 's of this world during our daily routine.Driving, at a supermarket or anywhere where yould expect commoncivility toward your fellow man, people like are there to shawus the light. For that we should be grateful.Andy ----- Original Message ----- > Aww, the poor hippie got her feelings hurt ... the Celestial Spirit(is that the one you see after taking some drugs).> > > > Assholes like you, pushing harmful drugs on sick people, belong in jail.> > People are not entitled to false opinions regarding advocationggiving someone harmful drugs. This is serious business. People can anddo get cancer from smkoing marijuana.> > > >

[Guest guest]

Hi Heidi, wow no symptoms until 41. You have done well buying that much time.

What type of hearing loss have you experienced?

Tom

[Guest guest]

hi tom,

well i did have symptoms (just didn't mention it.)i've had ear infections since i was a kid. but lately it's been more. you know, the draining ear and it's not very pleasant smelling. my left ear has more hearing loss than my right. i don't know how much is loct though. sometimes i hear a high pithched sound. so you know what that would be ? Thank you for answering my post. i'm really surprised at how many have this condition. wow! thanks again

heidi

Re: (unknown)

Hi Heidi, wow no symptoms until 41. You have done well buying that much time. What type of hearing loss have you experienced?Tom

[Guest guest]

" my left ear has more hearing loss than my right. i don't know how

much is loct though. sometimes i hear a high pithched sound. "

That's probably tinnitus. I have it in my right ear, it was worse

before I had surgery on that ear--it's not so loud now and it comes

and goes.

[Guest guest]

Dawnn,

Where are you at? I'm outside of Pittsburgh...lots of snow here too.

My goals for this challenge, whether attainable or not are:

Reduce scale weight by about 35 lbs.

Reduce body fat from 29% to 20% or better.

To eat clean healthy foods.

To get all my workouts in.

To have more self esteem

I'm 5'10 " and weight about 215 right now, I love exercise, I just also

love to cook, so I'm going to be cooking more healthful foods and

hopefully the whole family will jump on the bandwagon.

Thanks !!!

Dawn

(unknown)

Hi dawn.. dawnn here too... I was using Helenesbody4life for a few years

here but I am going touse my name from now on. I started today too but I

didn't really start with being stuck in the house. Tomorrow I will eat

clean

no matter if I am stuck here or not. I can't work out but a year ago I

wouldn't have used anything as an excuse. What are your goals for this

challenge?

Dawnn

(Helenesbody4life)

[Guest guest]

,

When you are training for Balance issues, you need to be aware of alpha

slowing, which your assessments indicated in this fellow. Training for

Balance would usually be P4/A2 alpha up (10-13 Hz) and theta down (3-9 Hz),

or alpha coherence between P3/A1 and P4/A2, with alpha defined as 10-13 Hz.

I always use either the Pitch sounds (if training one channel) or coherence

sounds, and I prefer to use them with headphones, using sounds like Bowed

Glass, Warm Pad, etc. Getting the client to let his mind be still is the

goal. I would often finish the session with 6-9 minutes of F3/A1 beta up

and alpha or theta down (depending on how well alpha blocks when eyes are

opened and tasks performed).

Many of your findings are indicative of a " tired " brain, which is often the

outcome of Balance problems. I would focus on getting the alpha and alpha

coherence up in the back (in the higher end of the alpha band) and moving

activation forward to the left frontal with beta training. Also, if he

liked the training from T6 or M2 to Fp1, do some of that at the beginning of

a session to help quiet the racing mind.

Pete

(unknown)

I am stuck with a 44 year old male client. He describes having a

high stress job with the UAW. He came in with issues of depression,

lack of energy, difficulty prioritizing time and organizing tasks,

impatience with others. He only rated 12 items a 2 and the rest 1. He

does not relate to any early abuse issues.

In October I did an original assessment that showed:Frontal T/B

resting in range, T/B challenge high; A/T resting low; L hemisphere

over R and frontal alpha imbalance - Frontal midline: very slow

alpha - Sensorimotor cortex: left more power; T/B ratio failure to

activate; A/T low; poor alpha blocking under challenge; within range

otherwise - Occipital: T/B fails to activate; A/T EC low; A/T

activation within range; peak alpha frequency slow; - Parietal:

hemispheres balanced; T/B resting in range; A/T resting low; A/T EO

low; peak alpha frequency slow - Temporal: L hemisphere power over R

I decided this was a balance issue. Beta coherence was not an issue.

He had low alpha so I trained P4 with no effect and did beta C3 with

no effect other than both protocals tended to put him to sleep.

In Jan I did another assessment that showed: Frontal T/B resting

high; A/T resting low; Beta balance R activation over L; Beta Balance

parietal activation over frontal; all other areas in range - Frontal

midline: low levels of High Beta; Occipital activation over Frontal

Beta balance and very slow alpha - Sensorimotor Cortex: R activation

over L; A/T resting ratio low; other areas within range - Occipital:

T/B EO low; T/B fails to activate; A/T activation low alpha

differential; A/T EC low; slow alpha frequency - Parietal: balanced;

A/T resting low; slow alpha peak frequency - Temporal: all in range.

Coherance Values may be the issue:

Oct D T A Jan D T A

frontal ec 42 18 10 55 37 10

frontal eo 44 26 5 50 34 4

tsk 50 32 5 59 35 6

central ec 19 18 24 33 19 18

eo 17 15 2 30 18 2

tsk 42 27 2 29 19 .9

parietal ec 14 17 27 30 17 14

eo 17 16 5 30 17 4

tsk 25 18 4 35 18 2

temporal ec 8 6 12 29 10 10

eo 6 2 .5 24 13 2

He is taking Wellbutrin and that was increased the end of December.

On time in mid December he reported clarity of thinking using F3(A1)

beta up, but had no response in subsequent trainings doing the same.

One time in mid Jan I had tried Fp1(T6) increase 12-15 and he felt a

slight " breath of fresh air " . Otherwise he has not reported feeling

anything change. In writing this up, I noticed the coherence issue.

What would you suggest?

Also what response would I be looking for with balance issues. With

Tone there is a definite response I get from clients. I do not hear

any immediate response with alpha or beta training with clients yet

you say to try out different areas until I get a good response.

Thanks for the help.

[Guest guest]

what is tinnitus? does it have to do with ctoma?

Re: (unknown)

"my left ear has more hearing loss than my right. i don't know how much is loct though. sometimes i hear a high pithched sound."That's probably tinnitus. I have it in my right ear, it was worse before I had surgery on that ear--it's not so loud now and it comes and goes.

[Guest guest]

Pete:

When I originally trained with you, I had the impression that the best

setting for Theta was 2.5 to 6.5. Have you changed your mind to 3-9?

Mark

My address has changed. Please reply to: <mailto:mail@...>

mail@...

(unknown)

I am stuck with a 44 year old male client. He describes having a

high stress job with the UAW. He came in with issues of depression,

lack of energy, difficulty prioritizing time and organizing tasks,

impatience with others. He only rated 12 items a 2 and the rest 1. He

does not relate to any early abuse issues.

In October I did an original assessment that showed:Frontal T/B

resting in range, T/B challenge high; A/T resting low; L hemisphere

over R and frontal alpha imbalance - Frontal midline: very slow

alpha - Sensorimotor cortex: left more power; T/B ratio failure to

activate; A/T low; poor alpha blocking under challenge; within range

otherwise - Occipital: T/B fails to activate; A/T EC low; A/T

activation within range; peak alpha frequency slow; - Parietal:

hemispheres balanced; T/B resting in range; A/T resting low; A/T EO

low; peak alpha frequency slow - Temporal: L hemisphere power over R

I decided this was a balance issue. Beta coherence was not an issue.

He had low alpha so I trained P4 with no effect and did beta C3 with

no effect other than both protocals tended to put him to sleep.

In Jan I did another assessment that showed: Frontal T/B resting

high; A/T resting low; Beta balance R activation over L; Beta Balance

parietal activation over frontal; all other areas in range - Frontal

midline: low levels of High Beta; Occipital activation over Frontal

Beta balance and very slow alpha - Sensorimotor Cortex: R activation

over L; A/T resting ratio low; other areas within range - Occipital:

T/B EO low; T/B fails to activate; A/T activation low alpha

differential; A/T EC low; slow alpha frequency - Parietal: balanced;

A/T resting low; slow alpha peak frequency - Temporal: all in range.

Coherance Values may be the issue:

Oct D T A Jan D T A

frontal ec 42 18 10 55 37 10

frontal eo 44 26 5 50 34 4

tsk 50 32 5 59 35 6

central ec 19 18 24 33 19 18

eo 17 15 2 30 18 2

tsk 42 27 2 29 19 .9

parietal ec 14 17 27 30 17 14

eo 17 16 5 30 17 4

tsk 25 18 4 35 18 2

temporal ec 8 6 12 29 10 10

eo 6 2 .5 24 13 2

He is taking Wellbutrin and that was increased the end of December.

On time in mid December he reported clarity of thinking using F3(A1)

beta up, but had no response in subsequent trainings doing the same.

One time in mid Jan I had tried Fp1(T6) increase 12-15 and he felt a

slight " breath of fresh air " . Otherwise he has not reported feeling

anything change. In writing this up, I noticed the coherence issue.

What would you suggest?

Also what response would I be looking for with balance issues. With

Tone there is a definite response I get from clients. I do not hear

any immediate response with alpha or beta training with clients yet

you say to try out different areas until I get a good response.

Thanks for the help.

[Guest guest]

It depends on the brain you are training. I would use 2-6 or 2.5-6.5 for

clients with lots of theta and delta. The 3-9 frequency is for those who

have slowing in alpha. We are training up the top half of the band (10-13

hz) and training down the bottom half (8-9 hz, combined with theta.

Pete

(unknown)

I am stuck with a 44 year old male client. He describes having a

high stress job with the UAW. He came in with issues of depression,

lack of energy, difficulty prioritizing time and organizing tasks,

impatience with others. He only rated 12 items a 2 and the rest 1. He

does not relate to any early abuse issues.

In October I did an original assessment that showed:Frontal T/B

resting in range, T/B challenge high; A/T resting low; L hemisphere

over R and frontal alpha imbalance - Frontal midline: very slow

alpha - Sensorimotor cortex: left more power; T/B ratio failure to

activate; A/T low; poor alpha blocking under challenge; within range

otherwise - Occipital: T/B fails to activate; A/T EC low; A/T

activation within range; peak alpha frequency slow; - Parietal:

hemispheres balanced; T/B resting in range; A/T resting low; A/T EO

low; peak alpha frequency slow - Temporal: L hemisphere power over R

I decided this was a balance issue. Beta coherence was not an issue.

He had low alpha so I trained P4 with no effect and did beta C3 with

no effect other than both protocals tended to put him to sleep.

In Jan I did another assessment that showed: Frontal T/B resting

high; A/T resting low; Beta balance R activation over L; Beta Balance

parietal activation over frontal; all other areas in range - Frontal

midline: low levels of High Beta; Occipital activation over Frontal

Beta balance and very slow alpha - Sensorimotor Cortex: R activation

over L; A/T resting ratio low; other areas within range - Occipital:

T/B EO low; T/B fails to activate; A/T activation low alpha

differential; A/T EC low; slow alpha frequency - Parietal: balanced;

A/T resting low; slow alpha peak frequency - Temporal: all in range.

Coherance Values may be the issue:

Oct D T A Jan D T A

frontal ec 42 18 10 55 37 10

frontal eo 44 26 5 50 34 4

tsk 50 32 5 59 35 6

central ec 19 18 24 33 19 18

eo 17 15 2 30 18 2

tsk 42 27 2 29 19 .9

parietal ec 14 17 27 30 17 14

eo 17 16 5 30 17 4

tsk 25 18 4 35 18 2

temporal ec 8 6 12 29 10 10

eo 6 2 .5 24 13 2

He is taking Wellbutrin and that was increased the end of December.

On time in mid December he reported clarity of thinking using F3(A1)

beta up, but had no response in subsequent trainings doing the same.

One time in mid Jan I had tried Fp1(T6) increase 12-15 and he felt a

slight " breath of fresh air " . Otherwise he has not reported feeling

anything change. In writing this up, I noticed the coherence issue.

What would you suggest?

Also what response would I be looking for with balance issues. With

Tone there is a definite response I get from clients. I do not hear

any immediate response with alpha or beta training with clients yet

you say to try out different areas until I get a good response.

Thanks for the help.

[Guest guest]

Got it - thanks

My address has changed. Please reply to: <mailto:mail@...>

mail@...

(unknown)

I am stuck with a 44 year old male client. He describes having a

high stress job with the UAW. He came in with issues of depression,

lack of energy, difficulty prioritizing time and organizing tasks,

impatience with others. He only rated 12 items a 2 and the rest 1.

He

does not relate to any early abuse issues.

In October I did an original assessment that showed:Frontal T/B

resting in range, T/B challenge high; A/T resting low; L hemisphere

over R and frontal alpha imbalance - Frontal midline: very slow

alpha - Sensorimotor cortex: left more power; T/B ratio failure to

activate; A/T low; poor alpha blocking under challenge; within range

otherwise - Occipital: T/B fails to activate; A/T EC low; A/T

activation within range; peak alpha frequency slow; - Parietal:

hemispheres balanced; T/B resting in range; A/T resting low; A/T EO

low; peak alpha frequency slow - Temporal: L hemisphere power over R

I decided this was a balance issue. Beta coherence was not an issue.

He had low alpha so I trained P4 with no effect and did beta C3 with

no effect other than both protocals tended to put him to sleep.

In Jan I did another assessment that showed: Frontal T/B resting

high; A/T resting low; Beta balance R activation over L; Beta

Balance

parietal activation over frontal; all other areas in range - Frontal

midline: low levels of High Beta; Occipital activation over Frontal

Beta balance and very slow alpha - Sensorimotor Cortex: R activation

over L; A/T resting ratio low; other areas within range - Occipital:

T/B EO low; T/B fails to activate; A/T activation low alpha

differential; A/T EC low; slow alpha frequency - Parietal: balanced;

A/T resting low; slow alpha peak frequency - Temporal: all in range.

Coherance Values may be the issue:

Oct D T A Jan D T A

frontal ec 42 18 10 55 37 10

frontal eo 44 26 5 50 34 4

tsk 50 32 5 59 35 6

central ec 19 18 24 33 19 18

eo 17 15 2 30 18 2

tsk 42 27 2 29 19 .9

parietal ec 14 17 27 30 17 14

eo 17 16 5 30 17 4

tsk 25 18 4 35 18 2

temporal ec 8 6 12 29 10 10

eo 6 2 .5 24 13 2

He is taking Wellbutrin and that was increased the end of December.

On time in mid December he reported clarity of thinking using

F3(A1)

beta up, but had no response in subsequent trainings doing the same.

One time in mid Jan I had tried Fp1(T6) increase 12-15 and he felt a

slight " breath of fresh air " . Otherwise he has not reported feeling

anything change. In writing this up, I noticed the coherence issue.

What would you suggest?

Also what response would I be looking for with balance issues. With

Tone there is a definite response I get from clients. I do not hear

any immediate response with alpha or beta training with clients yet

you say to try out different areas until I get a good response.

Thanks for the help.

[Guest guest]

In a message dated 2/20/2003 5:18:26 AM Pacific Standard Time,

aries_gurl29@... writes:

> Even though I am

> on meds I am still always tired and sluggish. They tell me that I'm at the

>

> right dosage but I don't feel " right " . Does anyone have any suggestions?

>

Dear Aries,

Well, it's just a thought, but I am aware that a curious aspect of 's

Thyroid Syndrome is that it often develops after surgery (or childbirth).

Since you mention you were fine until after the tonsillectomy, WTS might be

something to check out! It could be that all this time you've just needed

help to restart your ability to convert T4 to T3. They have a list of

symptoms at the website, instructions for taking your temperature, doctors

referral, information about what WTS is. Here's the link:

<A HREF= " www.wilsonssyndrome.com. " >www.wilsonssyndrome.com.</A>

Good luck!

in LA

[Guest guest]

Curt,

I live here in the Triad and I do not know of one, but I would be willing

to start one. If you are interested I will get a location and set up a

date and time. Just give me the word or email me privately and we are a

go with the two of us until some more join.

Debbie

250/157

7/9/02

________________________________________________________________

Sign Up for Juno Platinum Internet Access Today

Only $9.95 per month!

Visit www.juno.com

[Guest guest]

Crystal

Hello there, I hope you will find the support you need here , know you can vent

at any time I know that is the thing one needs at time and please do not let

anybody get you down about your weigth, I know what that is like , been there ,

had that done on me even now adays still , keep in mind that they just have no

clue and that you need support to help you , you do not need other people

talking down on you for anything , you are a human being that is in tittle for

respect and all that just like anybody else..

I know it is hard to deal with all this but keep in mind it is best to focus on

positive anyway;))

I know about being the odd one out at school , I never fitted in because I was

different then the rest but now a days , if people do talk down on me I stand up

and smack it back at them , or tell them they are just to ignorant to understand

so I will not give them more amo to use ,and keep in mind people that talk down

on others ,.. their ways of acting towards others does say more about them then

it ever will say about you,..

A big hug and smile from Holland

Liefs(love)

Annemie

----- Oorspronkelijk bericht -----

Van: Crystal Grant

Aan: hypothyroidism

Verzonden: donderdag 20 februari 2003 14:16

Onderwerp: (unknown)

Hi All,

I'm new to this message board so I don't even know if I'm doing it

correctly.

I was diagnosed with hypothyroidism about a year and a half ago. I was

devestated. I was average until I got my tonsils out when I was 5 or 6 and

then I started to gain weight. Through school I was always bigger then the

other kids but not by much. To me I looked like a whale. In grade 8 I ate

rice cakes and veggies and exercised everyday. I starved myself and it

didn't make me feel better at all. Through highschool I was still big and

now I am huge! Unlike alot of you, I am an overeater, emotional eater...

whatever you want to call it. I'm big into the sweets... anything chocolate

and I'm there. Here is the problem. I can't find the time or the money to

join a gym. It's absolutely freezing outside to walk in. Even though I am

on meds I am still always tired and sluggish. They tell me that I'm at the

right dosage but I don't feel " right " . Does anyone have any suggestions?

>From: " Monroe " Reply-hypothyroidism To:

>Subject: RE: Diet and exercise suggestions for Charmaine

>Date: Thu, 20 Feb 2003 00:32:52 -0500

>

>I'm impressed! Seventeen years old and you already know what it's taken me

>29 years to learn and what some people are still trying to learn. Someone

>will be lucky to have you as a nutritionist or personal trainer someday. I

>know I refuse to go to a nutritionist again because the last two told me

>that I needed to eat more fruit, more potatoes, cereal, milk. I can't

>imagine! The only other comment I have about you post is that many " older "

>(meaning many of us who haven't seen our teenage years in more than five

>years) people with hypo might have trouble even doing 30 minutes of cardio

>a day. For those of you who are nodding your head in agreement right now,

>rest assured, if you start out even going 15 minutes a day and just add 5

>minutes every few days you'll be able to work your way up there. Another

>thing that really helped me when I was only able to do 20 minutes at a time

>was interval training. I would start out with a slow walk on the treadmill

>for five minutes to warm up and then up the pace just a notch for one

>minute, up again for a minute and so on. I would up my intensity at the end

>of every minute ten times. By the tenth interval I was going as fast as I

>could go, really pushing myself to the limit and then I'd drop back down to

>my initial pace and start over again and work my way back up. You can do it

>as many times as you want, but it's a great workout. It enabled me to

>increase my stamina more in three days than just fast walking did in a

>month.

>

>

>

>

>

> Diet

>and exercise suggestions for Charmaine

>

>

>

>Currently I'm studying to become a nutritionist and personal trainer, so

>hopefully some of my advice can help you.

>

>

>

_________________________________________________________________

MSN 8 with e-mail virus protection service: 2 months FREE*

http://join.msn.com/?page=features/virus

[Guest guest]

Annemie..what a beautiful name!!!:)

Ok,I have been on Thyrolar for 3months now and I just went to see my Dr.

and asked that he put me on Armour to see if there is a difference in

the two.I will keep all posted!!!

Deneen:)

[Guest guest]

Hi,. Sorry to hear about your daughter Brittany. Not sure how much

help I can be, but I do know that rhuematic fever often follows strep

throat if it is not treated. Sometimes, kids don't even have a very sore

throat. My older dd had strep many times and luckily we caught it and

she never developed rheumatic fever, just scarlet. So with the sore

throat and all, it could be that Brittany has that. The morning

stiffness you describe and the joint pain is rather typical of jra. When

they did the blood test did they determine her rh or ana factor? My son

with jra is rh negative but ana positive. Neither confirms or rules out

jra, just kind of gives some info. About the Naproxen. My son also had

the bad stomach pains from NSAIDS of that type and was put on Celebrex.

It helped a lot. He no longer has the stomach pains and so doesn't need

the Zantac. One less med is a good thing in my opinion. So if your

daughter is to be kept on that for any length of time, perhaps you could

ask for a switch? The big problem with this disease is that there is no

clear cut test to take to see if you have it or don't. Most of the time

the drs go by a group of symptoms - A.M. stiffness, swelling in certain

joints, things like that - which can mimic other diseases. My son limped

for over 7 months before the real diagnosis was made and the proper meds

started. Hopefully, you will get answers soon. Sorry I couldn't help a

whole lot, but welcome to the group and ask any questions you have. I'm

sure someone will be able to help, Michele (mom to 15, pauci jra &

spondylitis)

(unknown)

Well I'm not sure where to start. My daughter Brittany is 12. One

morning shortly after X-mas she woke up crying and said that her

ankle popped. It immediately started swelling and what I thought was

also bruised. We took her downstairs and elevated her foot and put

ice packs on it. She was laid up all weekend with it. Come the

following Monday she was still limping but went to school anyway.

After that for about on and off for a couple of weeks she was waking

up stiff and sore and had been telling me that her fingers, wrists,

and knees were hurting. I got her into our family m.d. and he

ordered blood test to check for arthritis. The tests came back and

we were still waiting on another one, meanwhile he was pretty sure it

was jra-but was waiting on that other test to see if it was rhuematic

fever. A couple of days later that test turned up positive and he

was sure Brittany had rhuematic fever, but was still sending her to a

rhuematologist. We went to him and he did all the exams and

questioned her father and me and diagnosed her w/jra. He called a

childrens hospital in Indy and got us in there the same day. We

arrived there and Brittany had to go through everything that she had

earlier that day and the same questions. The ped rhuem. also thinks

that is the rhuematic fever and started on Naproxen and Pencillin

shots. He also noted that if she responed to the Naproxen with 3-5

days that we could probably write it off as Rhuematic Fever. She did

respond all the swelling was just about gone and she was walking

pretty much back to normal the following weekend. By Sunday night,

which i was still giving her the Naproxen and everything was fine.

She went to bed that night, got sick to her stomach, vomitted and she

tripped and fell on her way back to bed. She didn't call for me and

I was unaware of what was going on until we woke that Monday morning

which was Feb 10. Brittany told me she had a sore throat, told me

what had happened and it was like we were back to square one again.

I took her to the doc and he prescribed Amoxillin and informed that

any kind of infection will cause this fever to flare up. It is now

Feb 20 she is on another antibotic for another sore throat and she is

still limping and has a lot of swelling on her knee. Each morning

she is still waking up stiff and she tells me her arms are hurting.

I still have her on the Naproxen and I'm beginning to think she has

jra. If anyone out there has had an experience with this, please

write me and tell me what to expect. The Naproxen was causing

heartburn so the ped. rhuem. put her on over-the-counter Zantac once

a day. Now Brittany is having stomach pain that will last about 10

minutes at a time about 2-3 times a day. I have given her milk to

take with the Naproxen and always make sure she eats with it. Her

next appt is March 6.

Thanks for hearing me.

To leave this mailing list, send request to:

-unsubscribe

[Guest guest]

Dear , You have come to the right place for questions. We have lots

of experience here. n's arthritis started with a sore throat. She has

systemic, and everytime it starts to act up she gets a sore throat. We call

it the arthritis sore throat. It can really come and go. It may come

everyday, but only in the morning, etc,etc.

The morning stiffness is very common and one of the main symptoms of jra.

Jra can also move around. Each day a different joint may bother n, and

then with other kids it may settle in particular joints. As you probably

already know, there are basically three different types jra. Ask the doctor

about the blood test. The rh factor, the ANA, the sed rate, and the c

reactive protein. All of those can be indicators of jra. Jra can be hard

to diagnose, and many of us took many months to get a diagnosis and only

after several mis-diagnosis. Good luck and welcome. Ask away with

questions for most likely someone here has experienced it. (n,

14, systemic)

(unknown)

> Well I'm not sure where to start. My daughter Brittany is 12. One

> morning shortly after X-mas she woke up crying and said that her

> ankle popped. It immediately started swelling and what I thought was

> also bruised. We took her downstairs and elevated her foot and put

> ice packs on it. She was laid up all weekend with it. Come the

> following Monday she was still limping but went to school anyway.

> After that for about on and off for a couple of weeks she was waking

> up stiff and sore and had been telling me that her fingers, wrists,

> and knees were hurting. I got her into our family m.d. and he

> ordered blood test to check for arthritis. The tests came back and

> we were still waiting on another one, meanwhile he was pretty sure it

> was jra-but was waiting on that other test to see if it was rhuematic

> fever. A couple of days later that test turned up positive and he

> was sure Brittany had rhuematic fever, but was still sending her to a

> rhuematologist. We went to him and he did all the exams and

> questioned her father and me and diagnosed her w/jra. He called a

> childrens hospital in Indy and got us in there the same day. We

> arrived there and Brittany had to go through everything that she had

> earlier that day and the same questions. The ped rhuem. also thinks

> that is the rhuematic fever and started on Naproxen and Pencillin

> shots. He also noted that if she responed to the Naproxen with 3-5

> days that we could probably write it off as Rhuematic Fever. She did

> respond all the swelling was just about gone and she was walking

> pretty much back to normal the following weekend. By Sunday night,

> which i was still giving her the Naproxen and everything was fine.

> She went to bed that night, got sick to her stomach, vomitted and she

> tripped and fell on her way back to bed. She didn't call for me and

> I was unaware of what was going on until we woke that Monday morning

> which was Feb 10. Brittany told me she had a sore throat, told me

> what had happened and it was like we were back to square one again.

> I took her to the doc and he prescribed Amoxillin and informed that

> any kind of infection will cause this fever to flare up. It is now

> Feb 20 she is on another antibotic for another sore throat and she is

> still limping and has a lot of swelling on her knee. Each morning

> she is still waking up stiff and she tells me her arms are hurting.

> I still have her on the Naproxen and I'm beginning to think she has

> jra. If anyone out there has had an experience with this, please

> write me and tell me what to expect. The Naproxen was causing

> heartburn so the ped. rhuem. put her on over-the-counter Zantac once

> a day. Now Brittany is having stomach pain that will last about 10

> minutes at a time about 2-3 times a day. I have given her milk to

> take with the Naproxen and always make sure she eats with it. Her

> next appt is March 6.

>

> Thanks for hearing me.

>

>

>

>

> To leave this mailing list, send request to:

> -unsubscribe

>

>

[Guest guest]

,

Well,,,your story sounds,oh too familiar. My son started pretty much

the same way. I was wondering if they did an ASO Titre on your daughter?

That is pretty much the best indicator(as far as I know) of rheumatic

fever. Logan's was 1280 the first time we went in (normal being anywhere

between 1-200) they feel that Logan has " reactive arthritis " ,,,that is

caused by the strep,,,that also caused the rheumatic fever. When you see

the rheumy,,ask if they feel it is rheumatic fever,,and what her ASO

Titre is,,,,if it is rheumatic fever,she will need to see a

cardiologist,,to make sure there isn't any heart damage. I don't want to

scare you,,,just to prepare you. Logan has never had any heart

damage,(although he has a coil in his heart for an unrelated problem),,we

just saw the cardiologist yesterday,,and everything is still fine.

If they feel that your daughter has rheumatic fever,,is it from

strep?You mentioned a sore throat,,was it strep or just sore? My son is

also on Penicillin everyday,and Naproxen. He is apparently immune to the

Penicillin,now,,,because he keeps getting strep,,,so they are removing

his tonsils and adenoids on March 7.

I hope you get some answers,,we have been dealing with this for a year

and 3 months,,,and I feel no closer to having all the answers,than I did

when we started. Its really confusing when they say he has reactive

arthritis,,but everything that I read says that reactive arthritis only

lasts for 6 weeks,at the most.

Good Luck

Kim and Logan 5 poly

[Guest guest]

Kim,

thanks so much for writing back. I'm not sure if they did an ASO Titre on Brittany. I do know that they did an EKG and an ultra sound on her heart and everything came back normal. I'm keeping a log of all of her symptons from day to day and I will make a note to ask about the ASO Titre when we go back to ped. rhuem. When she was first diagnosed, our m.d. did link it back to when I had her in his office for a strep throat back in December so he does feel it was caused by strep. The last couple of times she has had a sore throat there has been no signs of strep.

I do hope that your son does get better and you will be getting more answers soon.

P.S. I'm so appreciative with the responses I'm getting!!

-----Original Message-----From: Kim D [mailto:smithkim@...]Sent: Thursday, February 20, 2003 3:14 PM Subject: Re: (unknown), Well,,,your story sounds,oh too familiar. My son started pretty muchthe same way. I was wondering if they did an ASO Titre on your daughter?That is pretty much the best indicator(as far as I know) of rheumaticfever. Logan's was 1280 the first time we went in (normal being anywherebetween 1-200) they feel that Logan has "reactive arthritis",,,that iscaused by the strep,,,that also caused the rheumatic fever. When you seethe rheumy,,ask if they feel it is rheumatic fever,,and what her ASOTitre is,,,,if it is rheumatic fever,she will need to see acardiologist,,to make sure there isn't any heart damage. I don't want toscare you,,,just to prepare you. Logan has never had any heartdamage,(although he has a coil in his heart for an unrelated problem),,wejust saw the cardiologist yesterday,,and everything is still fine. If they feel that your daughter has rheumatic fever,,is it fromstrep?You mentioned a sore throat,,was it strep or just sore? My son isalso on Penicillin everyday,and Naproxen. He is apparently immune to thePenicillin,now,,,because he keeps getting strep,,,so they are removinghis tonsils and adenoids on March 7. I hope you get some answers,,we have been dealing with this for a yearand 3 months,,,and I feel no closer to having all the answers,than I didwhen we started. Its really confusing when they say he has reactivearthritis,,but everything that I read says that reactive arthritis onlylasts for 6 weeks,at the most. Good Luck :)Kim and Logan 5 polyTo leave this mailing list, send request to: -unsubscribe

[Guest guest]

Thank you so much for the input. I'm making a list of what to ask about on Brittany's next appt with the ped. rheum.

-----Original Message-----From: WILLIAM PRICE [mailto:william.e.price@...]Sent: Thursday, February 20, 2003 3:10 PM Subject: Re: (unknown)Dear , You have come to the right place for questions. We have lotsof experience here. n's arthritis started with a sore throat. She hassystemic, and everytime it starts to act up she gets a sore throat. We callit the arthritis sore throat. It can really come and go. It may comeeveryday, but only in the morning, etc,etc.The morning stiffness is very common and one of the main symptoms of jra.Jra can also move around. Each day a different joint may bother n, andthen with other kids it may settle in particular joints. As you probablyalready know, there are basically three different types jra. Ask the doctorabout the blood test. The rh factor, the ANA, the sed rate, and the creactive protein. All of those can be indicators of jra. Jra can be hardto diagnose, and many of us took many months to get a diagnosis and onlyafter several mis-diagnosis. Good luck and welcome. Ask away withquestions for most likely someone here has experienced it. (n,14, systemic) (unknown)> Well I'm not sure where to start. My daughter Brittany is 12. One> morning shortly after X-mas she woke up crying and said that her> ankle popped. It immediately started swelling and what I thought was> also bruised. We took her downstairs and elevated her foot and put> ice packs on it. She was laid up all weekend with it. Come the> following Monday she was still limping but went to school anyway.> After that for about on and off for a couple of weeks she was waking> up stiff and sore and had been telling me that her fingers, wrists,> and knees were hurting. I got her into our family m.d. and he> ordered blood test to check for arthritis. The tests came back and> we were still waiting on another one, meanwhile he was pretty sure it> was jra-but was waiting on that other test to see if it was rhuematic> fever. A couple of days later that test turned up positive and he> was sure Brittany had rhuematic fever, but was still sending her to a> rhuematologist. We went to him and he did all the exams and> questioned her father and me and diagnosed her w/jra. He called a> childrens hospital in Indy and got us in there the same day. We> arrived there and Brittany had to go through everything that she had> earlier that day and the same questions. The ped rhuem. also thinks> that is the rhuematic fever and started on Naproxen and Pencillin> shots. He also noted that if she responed to the Naproxen with 3-5> days that we could probably write it off as Rhuematic Fever. She did> respond all the swelling was just about gone and she was walking> pretty much back to normal the following weekend. By Sunday night,> which i was still giving her the Naproxen and everything was fine.> She went to bed that night, got sick to her stomach, vomitted and she> tripped and fell on her way back to bed. She didn't call for me and> I was unaware of what was going on until we woke that Monday morning> which was Feb 10. Brittany told me she had a sore throat, told me> what had happened and it was like we were back to square one again.> I took her to the doc and he prescribed Amoxillin and informed that> any kind of infection will cause this fever to flare up. It is now> Feb 20 she is on another antibotic for another sore throat and she is> still limping and has a lot of swelling on her knee. Each morning> she is still waking up stiff and she tells me her arms are hurting.> I still have her on the Naproxen and I'm beginning to think she has> jra. If anyone out there has had an experience with this, please> write me and tell me what to expect. The Naproxen was causing> heartburn so the ped. rhuem. put her on over-the-counter Zantac once> a day. Now Brittany is having stomach pain that will last about 10> minutes at a time about 2-3 times a day. I have given her milk to> take with the Naproxen and always make sure she eats with it. Her> next appt is March 6.>> Thanks for hearing me.>> >>> To leave this mailing list, send request to:> -unsubscribe >>

[Guest guest]

Welcome, Ginger. I'm a " retired " RN myself (at the ripe old age of 31... that

was almost 6 years ago and I never plan on going back). I have 2 children 13

and 11. Both fully vaxed unfortunately... but I have had the opportunity

recently to refuse a tetanus shot for my dd when she went in for her required

sports physical for school. That felt good, but I'm sorry it came about 13

years too late for her and for my ds.

It's not easy, with a nursing background, to go this route, is it? People

automatically assume that since you're an RN that your for allopathy all the

way. Not for me anymore. Homeopathy is our life preserver these days! And boy

do I get alot of strange looks and some comments from people when I don't rush

my kids to the doctor for anything! : )

This is a great list. You're children are very fortunate to have a mom who is

willing to get out of the mold and seek alternative answers.

Again, welcome!

Kay

HI everyone....first my name is Ginger..im a registered nurse whos

gone on " break " from nursing since i got burned out from all the

beaurocratic political stuff going on in health care!....I am married

with four children

ages 14, 7 1/2, 3 1/2 and almost 3 months. My first child was

vaccinated

through her 5yr old shots....My second child received the first two

sets at

2 mos and 4 mos...both times he had to be rushed to the hospital from

what

i know were reactions to the vaccines. The pediatrician disagrees

with me

even though he turned blue and stopped breathing within 15 minutes

each

time! I havent vaccinated him since and havent vaccinated my younger

two

children. Nor do I plan to! I also know now that the health

problems

that my two older children have are as a result of immunizations

;-( Anyway....this is a brief into about me and my stand on

immunizations......I look forward to learning more from this group.

Sincerely,

Ginger

[Guest guest]

Hi Crystal, if you don't feel well then you aren't getting enough medicine

or the right medicine for you. Most of us have to educate and advocate for

ourselves. It doesn't make sense I know that the docs don't always know

too much. Look at

http://www.brodabarnes.org

http://www.armourthyroid.com

http://thyroid.about.com

Gracia

> Hi All,

>

> I'm new to this message board so I don't even know if I'm doing it

> correctly.

>

> I was diagnosed with hypothyroidism about a year and a half ago. I was

> devestated. I was average until I got my tonsils out when I was 5 or 6

and

> then I started to gain weight. Through school I was always bigger then

the

> other kids but not by much. To me I looked like a whale. In grade 8 I

ate

> rice cakes and veggies and exercised everyday. I starved myself and it

> didn't make me feel better at all. Through highschool I was still big and

> now I am huge! Unlike alot of you, I am an overeater, emotional eater...

> whatever you want to call it. I'm big into the sweets... anything

chocolate

> and I'm there. Here is the problem. I can't find the time or the money

to

> join a gym. It's absolutely freezing outside to walk in. Even though I

am

> on meds I am still always tired and sluggish. They tell me that I'm at

the

> right dosage but I don't feel " right " . Does anyone have any suggestions?

>

>

>

> >From: " Monroe " Reply-hypothyroidism To:

> >Subject: RE: Diet and exercise suggestions for Charmaine

> >Date: Thu, 20 Feb 2003 00:32:52 -0500

> >

> >I'm impressed! Seventeen years old and you already know what it's taken

me

> >29 years to learn and what some people are still trying to learn. Someone

> >will be lucky to have you as a nutritionist or personal trainer someday.

I

> >know I refuse to go to a nutritionist again because the last two told me

> >that I needed to eat more fruit, more potatoes, cereal, milk. I can't

> >imagine! The only other comment I have about you post is that many

" older "

> >(meaning many of us who haven't seen our teenage years in more than five

> >years) people with hypo might have trouble even doing 30 minutes of

cardio

> >a day. For those of you who are nodding your head in agreement right now,

> >rest assured, if you start out even going 15 minutes a day and just add 5

> >minutes every few days you'll be able to work your way up there. Another

> >thing that really helped me when I was only able to do 20 minutes at a

time

> >was interval training. I would start out with a slow walk on the

treadmill

> >for five minutes to warm up and then up the pace just a notch for one

> >minute, up again for a minute and so on. I would up my intensity at the

end

> >of every minute ten times. By the tenth interval I was going as fast as I

> >could go, really pushing myself to the limit and then I'd drop back down

to

> >my initial pace and start over again and work my way back up. You can do

it

> >as many times as you want, but it's a great workout. It enabled me to

> >increase my stamina more in three days than just fast walking did in a

> >month.

> >

> >

> >

> >

> >

> >

Diet

> >and exercise suggestions for Charmaine

> >

> >

> >

> >Currently I'm studying to become a nutritionist and personal trainer, so

> >hopefully some of my advice can help you.

> >

> >

> >

>

> _________________________________________________________________

> MSN 8 with e-mail virus protection service: 2 months FREE*

> http://join.msn.com/?page=features/virus

>

>

>

[Guest guest]

Relax , no offense taken. Just we have to be mindful of our tone

toward others. Of course you can show differernt sides to a subject and

should. That is what we are here for.As much information as possible.

But still, there are better ways to get your points across in a less

abrasive manner.Some words are more inflamatory than others. That is all

I am saying. We all must be aware of how we are coming across to others.

Blunt is OK in my books as long as it is tempered with compassion and

discernment.

________________________________________________________________

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