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Jerry,

I added your mother to my prayers. I hope she gets well soon. I'm sure she

will have a good prognosis.

Debbie (Tommy's Mom)

> [Original Message]

> From: <gefox@...>

> < >

> Date: 3/20/01 6:39:06 PM

> Subject: [ ] (unknown)

>

> dear friends... i`m asking that you offer prayers for my

> mother... i

> took her to the hospital today...she has pulmonary edema from either

> a

> heart attack or heart failure and she is in coronary care. I know

> that

> prayers do work and I know that this group will help mom.. thanks

> everyone...

> love and serenity

> jerry

>

> btw... i got back my second good report in row

>

>

>

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In a message dated 3/23/01 2:05:46 AM Eastern Standard Time,

Zll51@... writes:

<<

The Specific Carbohydrate Diet (SCD) is a strict grain-free, lactose-

free, and sucrose-free dietary regimen intended for those suffering

from Crohn's Disease, Ulcerative Colitis, Celiac Disease, IBD, and

IBS. >>

THANKS A MILLION ZOE. I have a nephew suffering from Crohns. I sent this to

him.

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- You certainly have good reason to be confused, what with all the

conflicting information you've been given. I think medical diagnosis is

much like any other opinion-related exercise: put 5 specialists in any

field - medical, economic, education, whatever - in a room, ask them all the

same question, and you'll get 5 different answers back.

Not knowing the details about your first MDs opinion as to what risks he

perceived in the surgery (does he mean it's a risky procedure in general or

that you have specific health issues that make it risky for you?), it's hard

to address your need for advice on what to do. However, assuming he was not

directing his risk-remarks to you specifically, I would say that while, yes,

there are risks associated with everything we do, and surgery of any sort

always has the potential of having something go wrong, it sometimes helps to

look down the road and try to imagine what your life will be like if you

never have the operation, or postpone it for a very long time. Never having

the operation means always struggling to eat; never getting the best

nutrition because your diet choices are made based on foods that are easy to

swallow, not necessarily the most healthful foods to consume. Never having

the operation or delaying it for an extended period of time means you run

the risk of inducing so much trauma and stress to those body parts that any

future surgery is automatically reduced in effectiveness because you have an

organ that is weaker than it should be to preclude a positive outcome.

If you've read past postings on this message board then you know that not

everyone who undergoes the myotomy has a rousing success story to share.

But then you also know that there are those among us who are big proponents

of the myotomy because of how successful it was for us. Everybody - and

every body - is different, so maybe the thing to do in your case is to find

a doctor who can explain to you what conditions make someone likely to have

a good - and bad - outcome. Doctors know what they're looking for in a

candidate for surgery, and certainly with all the tests you've had, a new

doctor should be able to look at your records and be able to determine your

baseline condition relative to the benefits/risks of having the surgery.

When I had mine (after the fact) my MDs told me not to expect a 100% return

to my pre-achalasia days. My peristaltic action was lost and the myotomy

could do nothing to change that. I was advised to eat in as upright a

position as possible so as to let gravity help the food travel as straight a

path as possible into my stomach. The symptoms such as chest pains that I

had suffered would also not totally go away, but they would be reduced in

frequency, duration and severity. This was good information to have, and

armed with such realistic predictions, I remained calm when symptoms did

re-appear, and grateful that I had far fewer problems than they led me to

believe I might experience.

I've rattled on long enough - hope this has given you some encouragement and

insight. Please let us know how you continue to fare.

Take care -

Carol

(unknown)

> I'm not sure if any of my messages have been posted,

> but here goes anyway.

>

> I have not tried Levsin, but thanks for the

> information. I will ask my Doctor about it. He said

> the only thing that might help would be nitroglycerin.

> I tried it, but all it did was give me a headache.

>

> As for the spasm pains in the chest. I really thought

> I was having a heart attack several times. They took

> me to emergency a few times, but the ekg came back

> normal. Quite by accident, I tried bread and water

> one time and the pain stopped immediately. Now I tell

> everyone to just have some bread and water. It's

> better than prilosec or tums for that immediate

> cessation of the spasms.

>

> My doctor told me in November that he had decided

> against surgery because the risk exceeded the

> benefits. In February, he called to tell me that I

> was scheduled for surgery. Now I don't know what to

> think. Why is he changing his mind so often! Does he

> really think this will help? or is he trying to get

> rid of a patient that he doesn't know what to do with?

> I'm scared to death of the surgery. I've seen seven

> different doctors (most through Kaiser), but after all

> of their tests (they each want to run them for

> themselves), they always conclude that I have

> achalasia and end up suggesting surgery. It puzzles

> me why they have such a hard time diagnosing the

> problem in the first place, and then why they change

> their minds about what to do with me.

>

> Any suggestions?

>

> __________________________________________________

>

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Me too! Mondays are like my "getting back to business" days, or my "normal" days :) Gee, I thought I was the only one who looked forward to them :)

~~

Free day is over. My digestive system does not agreewith free days. I have to run to the bathroom 4-5times after 3 pm. This happens every Sunday. I takeit as a sign to keep on the BFL path. I just wish mydigestive system would agree. Does this happen toanyone else? I have to say I love Monday... andstarting the BFL routine all over again.

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Me too! Mondays are like my "getting back to business" days, or my "normal" days :) Gee, I thought I was the only one who looked forward to them :)

~~

Free day is over. My digestive system does not agreewith free days. I have to run to the bathroom 4-5times after 3 pm. This happens every Sunday. I takeit as a sign to keep on the BFL path. I just wish mydigestive system would agree. Does this happen toanyone else? I have to say I love Monday... andstarting the BFL routine all over again.

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Count it in the calories, make sure you get your protein and back off the

carbs to adjust for the extra fat to the extent your calories are to high.

That would be my approach.

-

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In a message dated 03/22/2001 3:28:53 PM Pacific Standard Time,

wayneyp@... writes:

> . Didn't seem to

> think my pain was that bad. I left the office in

> tears though. He told me I had no swelling either.

>

Reminds me of the time the nurse at the hospital told me to stap panting,

that my contraction was over .......Wonder how she knew ????

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People are dumb huh? I hate that I know more of what

is wrong than the dr. does. I had a list of problems

for him and he ignored half or more of it. But he did

give me the enlightening fatc that because there was

no swelling it might just might be another thing

instead of returning ra. As in fibromyalgia or

something else that's non-inflammatory. Does any of

y'all kids have pain but no swelling? I have always

been that way (I called my Mom to ask her if I was

correct even).

--- AplBlssm@... wrote:

> In a message dated 03/22/2001 3:28:53 PM Pacific

> Standard Time,

> wayneyp@... writes:

>

>

> > . Didn't seem to

> > think my pain was that bad. I left the office in

> > tears though. He told me I had no swelling

> either.

> >

>

> Reminds me of the time the nurse at the hospital

> told me to stap panting,

> that my contraction was over .......Wonder how she

> knew ????

>

>

> [Non-text portions of this message have been

> removed]

>

>

=====

I'm not under the alkafluence of inkahol that some thinkle peep I am.

__________________________________________________

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MY daughter will have pain in joints that are and are not swollen. This

joints stiffen up to. The term is Arthalgia, according to her pediatrician.

Also you can have referred pain or deferred pain. The event can be a knee,

but your ankle hurts. Pain is decided by the patient, not the care giver.

Sometimes the care giver can't detect the swelling, it cvan be very mild.

Good Luck SHU

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SHU

that is what is listed on some of melissas papers

severe Arthalgia and another paper listed

polyarthritis another paper is listed as juvenile

rhuematoid arthritis and connective tissue disease

seems like all the same thing or related to me

Robbin

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I like the chocolate fudge the best out of the Myoplex Lite bars and I'm not really a chocolate lover. Another option is to get a high protein bar and add a carb to it such as a piece of fruit. Be sure to check the calories in it though...some of them are huge! You may only need to eat half of it.

My husband was never non-supportive but I think he was leary that it would work. Now, he's the biggest fan of BFL although he doesn't do it himself. I'm hoping for those of you with unsupportive spouses, once they see that it really works and you are really committed AND that it doesn't have to cost a lot of money, maybe they'll come around.

Congratulations on the awesome progress you've made!!

Sara

I've been getting this list in the digest form and love reading it every night.You all have so much information to share and help keep me on track.I don't post because I usually don't have much time due to a heavy workload and crazy home life.This is week 7 unofficially and week 6 officially for me.I have lost 10 lbs total and gone from 32.5% body fat to 23.5%.Is this even possible?Seems incredible,but I have muscles I never had before.Like a few others my hubby was very unsupportive at first(I have been on so many diets) but this week he started BFL himself after seeing these weeks of motivation and I'm still getting up to workout everyday.The funny thing is that his first day he was having trouble with the flies so I showed him how to do them and the weight he was using was too light for me! It was funny to see the look on his face when I did 12 easily after he was struggling through them.(he had to drop his weight down a little to do them right)Talk about motivating,lol.I am switching jobs,so I will be having less time to eat and prepare meals during the day.I was wondering which of the myoplex bars taste the best?Would like to try some,the shakes are not as portable.Thanks for your help.

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I like the chocolate fudge the best out of the Myoplex Lite bars and I'm not really a chocolate lover. Another option is to get a high protein bar and add a carb to it such as a piece of fruit. Be sure to check the calories in it though...some of them are huge! You may only need to eat half of it.

My husband was never non-supportive but I think he was leary that it would work. Now, he's the biggest fan of BFL although he doesn't do it himself. I'm hoping for those of you with unsupportive spouses, once they see that it really works and you are really committed AND that it doesn't have to cost a lot of money, maybe they'll come around.

Congratulations on the awesome progress you've made!!

Sara

I've been getting this list in the digest form and love reading it every night.You all have so much information to share and help keep me on track.I don't post because I usually don't have much time due to a heavy workload and crazy home life.This is week 7 unofficially and week 6 officially for me.I have lost 10 lbs total and gone from 32.5% body fat to 23.5%.Is this even possible?Seems incredible,but I have muscles I never had before.Like a few others my hubby was very unsupportive at first(I have been on so many diets) but this week he started BFL himself after seeing these weeks of motivation and I'm still getting up to workout everyday.The funny thing is that his first day he was having trouble with the flies so I showed him how to do them and the weight he was using was too light for me! It was funny to see the look on his face when I did 12 easily after he was struggling through them.(he had to drop his weight down a little to do them right)Talk about motivating,lol.I am switching jobs,so I will be having less time to eat and prepare meals during the day.I was wondering which of the myoplex bars taste the best?Would like to try some,the shakes are not as portable.Thanks for your help.

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Hi !! great progress youre making! Congrats!

You asked about bars, I like to use the myoplex low carb bars...they only have 3 g's of carbs, 30g protein, and 1g sugar....they have 6 g's fat, but I think thats pretty similar to all the bars.... I like to take a piece of fruit and eat for my carb for that meal, so I feel more full :)

My favs are lemon cheesecake, and apple cinnamon :)

Blessings,

~~

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My son has not had any swelling just quite a bit of pain. The dr told me he

definitely had jra (positive test results) and that there is not always

swelling. Sometimes I wonder if these drs ever research all the info.

Michele

Re: (unknown)

People are dumb huh? I hate that I know more of what

is wrong than the dr. does. I had a list of problems

for him and he ignored half or more of it. But he did

give me the enlightening fatc that because there was

no swelling it might just might be another thing

instead of returning ra. As in fibromyalgia or

something else that's non-inflammatory. Does any of

y'all kids have pain but no swelling? I have always

been that way (I called my Mom to ask her if I was

correct even).

--- AplBlssm@... wrote:

> In a message dated 03/22/2001 3:28:53 PM Pacific

> Standard Time,

> wayneyp@... writes:

>

>

> > . Didn't seem to

> > think my pain was that bad. I left the office in

> > tears though. He told me I had no swelling

> either.

> >

>

> Reminds me of the time the nurse at the hospital

> told me to stap panting,

> that my contraction was over .......Wonder how she

> knew ????

>

>

> [Non-text portions of this message have been

> removed]

>

>

=====

I'm not under the alkafluence of inkahol that some thinkle peep I am.

__________________________________________________

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That's what I am begining to wonder. If drs think

that no swelling mean no pain no anything then they

need to do some research. I am glad I'm not the only

one. I verified what I thought with both my mom and

older sister. I never had any swelling when I was

younger.

=====

I'm not under the alkafluence of inkahol that some thinkle peep I am.

__________________________________________________

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> Hi !! great progress youre making! Congrats!

> You asked about bars, I like to use the myoplex low carb

bars...they only have 3 g's of carbs, 30g protein, and 1g

sugar....they have 6 g's fat, but I think thats pretty similar to all

the bars.... I like to take a piece of fruit and eat for my carb for

that meal, so I feel more full :)

> My favs are lemon cheesecake, and apple cinnamon :)

> Blessings,

> ~~

> --------------------------------------------------------------------

------------

Lemon cheesecake...MMMMMMMM...It can't be as good as it

sounds,lol.Thanks I think I'll try this one.

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Wynette

s joints will hurt no swelling at all she dont say much about it

unless i touch to see how the joint feels to me also sometimes her joints

look puffy but she just says they are ok i have notice since shes been in

this last flair

when she writes and does her homework her hands and wrists will swell

and sometimes the elbow

i think if the dr would do a pinpoint pressure test without swelling they

would see the joints hurt still the swelling i believe is a reaction the

body has to protect that joint

like when you bump your head a knot forms or when you hit your arm or leg

its reaction is to swell to help with healing or just to protect that area

the dr should be more careing towards patients

when melissa or anyone hurts and they tell me all i know is they are hurting

pain dont show up like a bruise to be seen by everyone

its hard to understand until you live with it or have someone who has it

Robbin

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Well it is good to know I'm not a freak and have no

swelling when everyone else does. My dr seems to

think no swelling= no jra or ra. Now i als have the

task of fighting aboslutely wonderful lab results.

They are all perfectly normal.

--- Robbin40@... wrote:

> Wynette

> s joints will hurt no swelling at all she

> dont say much about it

> unless i touch to see how the joint feels to me

> also sometimes her joints

> look puffy but she just says they are ok i have

> notice since shes been in

> this last flair

> when she writes and does her homework her hands and

> wrists will swell

> and sometimes the elbow

> i think if the dr would do a pinpoint pressure test

> without swelling they

> would see the joints hurt still the swelling i

> believe is a reaction the

> body has to protect that joint

> like when you bump your head a knot forms or when

> you hit your arm or leg

> its reaction is to swell to help with healing or

> just to protect that area

> the dr should be more careing towards patients

> when melissa or anyone hurts and they tell me all i

> know is they are hurting

> pain dont show up like a bruise to be seen by

> everyone

> its hard to understand until you live with it or

> have someone who has it

> Robbin

>

=====

I'm not under the alkafluence of inkahol that some thinkle peep I am.

__________________________________________________

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Yes, I saw it earlier today. I think this is so ridiculous. What is sad is

that someone is going to believe it.

<<Have you all seen this junk?

Can breastfeeding raise your baby's risk of heart disease later in life?>>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

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In a message dated 3/28/01 4:56:29 PM Eastern Standard Time,

carriebeary77@... writes:

<< > Can breastfeeding raise your baby's risk of heart disease later in

> life? >>

It isn't breastfeeding that is causing heart disease, it's going from eating

a perfect food such as breastmilk to spending the rest of your life eating

deep-fried cow. YUCK! Breastmilk is *THE* perfect food, so if any food is

causing heart disease, it's all the crap Americans eat after weaning from the

breast.

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Weaken a baby's heart?!?!? Yeah, as if.

Heart disease runs in my family, unfortunately, and if my kids are

gonna get something, it's not gonna be because I breastfeed them.

How stupid.

~

Texas

--- Lashanna Small <lashannasmall@...> wrote:

> .

> Have you all seen this junk?

>

> Can breastfeeding raise your baby's risk of heart disease later in

> life?

>

> Breastfeeding for more than four months may weaken your baby's heart,

>

> according to a controversial new study published in the March 17

> issue of

> the British Medical Journal. But many doctors and lactation experts

> are

> crying foul, saying that the study was funded by the formula industry

> and

> was expressly designed to undermine the evidence that breast milk is

> best

> for your baby. Extensive studies have shown that breastfed babies are

>

> healthier than their formula-fed peers: They get fewer earaches,

> colds,

> allergies, and stomach infections.

>

__________________________________________________

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In a message dated 3/29/01 3:30:12 PM Eastern Standard Time,

jfcanfield@... writes:

<< The opening

words of Dr. B. Spock 's third revision of his world-famous book Baby

and Child Care are ' YOU KNOW MORE THAN YOU THINK YOU DO ! A few

pages later he says ,

Love and enjoy your children for what they are , for what they look

like, for what they do , and forget about the qualities that they

don't have ... >>

Irma,

How nice! Why have I always heard he was a quack? I never read any of his

books. Maybe I should! LOL Thanks

Gail

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Penny,

According to a talk at one of the OC Conferences, the medications with

the fewest side effects are Luvox and Prozac. I think I would start with one

of those.

jackie

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Penny,

My son is 17 and was diagnosted just two months ago, they put him on 50 mgs.

of Zoloft and one month later doubled it. He has no no trouble, except some

tiredness. He says it really has helped him to fight off his compulsions.

And I have seen a big difference, too. I have heard many thought that have

gone through many until they found one that works. Good Luck, do as much

reading and researching on OCD as you can and read up and listen to others

opinions on meds. But, the final decision is between you, your daughter and

doctor. Good Luck,

R.

(unknown)

Hi everyone! I have only posted a couple of times.back when I

first

suspected that my 6-yr. old daughter, (Jodi) had OCD. That was about

a month ago. Since then we have had an appt. with a therapist and

yesterday our first appt. with the psychiatrist. It was the

strangest meeting I have ever been part of. Which leads to my

question.which drug to start my daughter on? The doc. and us

agree

that Jodi may be helped by medication. The doc. asked me which one I

wanted to put her on. She wouldn't recommend one over another.

She

just handed us a bunch of pamphlets (published by drug companies) and

said to read these and if we decide to go ahead with medication to

call her office and she would call in the prescription of our

choice. None of the pamphlets pacifically stated about the use in

children. Zoloft was the only one that mentioned dosage for

children, in the fine print.

Now don't get me wrong.she did seem to know about OCD and she

was

very good talking with Jodi. I told her that I had never prescribed

a medication before and my husband and I would have to discuss this

and do some research before making a decision. The doc. said that

all of the 5 drugs used to treat OCD were the same. I asked her

which one she would give her own child? She said Prozac. I asked

why that one? She stated that it had been used the longest to treat

OCD. I asked if any of drugs had been approved by the FDA for use in

children? She said, no. From everything that I have read this

isn't

true. I understand that it may take along time, of trial and error,

to find one that will be most beneficial. Learning to deal with OCD

and all that comes with it is overwhelming enough. How do I decide

which one to choose? I would appreciate any and all comments on where

to start.

Thanks,

Penny

You may subscribe to the OCD-L by emailing listserv@... . In the

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