Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 Jerry, I added your mother to my prayers. I hope she gets well soon. I'm sure she will have a good prognosis. Debbie (Tommy's Mom) > [Original Message] > From: <gefox@...> > < > > Date: 3/20/01 6:39:06 PM > Subject: [ ] (unknown) > > dear friends... i`m asking that you offer prayers for my > mother... i > took her to the hospital today...she has pulmonary edema from either > a > heart attack or heart failure and she is in coronary care. I know > that > prayers do work and I know that this group will help mom.. thanks > everyone... > love and serenity > jerry > > btw... i got back my second good report in row > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2001 Report Share Posted March 23, 2001 In a message dated 3/23/01 2:05:46 AM Eastern Standard Time, Zll51@... writes: << The Specific Carbohydrate Diet (SCD) is a strict grain-free, lactose- free, and sucrose-free dietary regimen intended for those suffering from Crohn's Disease, Ulcerative Colitis, Celiac Disease, IBD, and IBS. >> THANKS A MILLION ZOE. I have a nephew suffering from Crohns. I sent this to him. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 - You certainly have good reason to be confused, what with all the conflicting information you've been given. I think medical diagnosis is much like any other opinion-related exercise: put 5 specialists in any field - medical, economic, education, whatever - in a room, ask them all the same question, and you'll get 5 different answers back. Not knowing the details about your first MDs opinion as to what risks he perceived in the surgery (does he mean it's a risky procedure in general or that you have specific health issues that make it risky for you?), it's hard to address your need for advice on what to do. However, assuming he was not directing his risk-remarks to you specifically, I would say that while, yes, there are risks associated with everything we do, and surgery of any sort always has the potential of having something go wrong, it sometimes helps to look down the road and try to imagine what your life will be like if you never have the operation, or postpone it for a very long time. Never having the operation means always struggling to eat; never getting the best nutrition because your diet choices are made based on foods that are easy to swallow, not necessarily the most healthful foods to consume. Never having the operation or delaying it for an extended period of time means you run the risk of inducing so much trauma and stress to those body parts that any future surgery is automatically reduced in effectiveness because you have an organ that is weaker than it should be to preclude a positive outcome. If you've read past postings on this message board then you know that not everyone who undergoes the myotomy has a rousing success story to share. But then you also know that there are those among us who are big proponents of the myotomy because of how successful it was for us. Everybody - and every body - is different, so maybe the thing to do in your case is to find a doctor who can explain to you what conditions make someone likely to have a good - and bad - outcome. Doctors know what they're looking for in a candidate for surgery, and certainly with all the tests you've had, a new doctor should be able to look at your records and be able to determine your baseline condition relative to the benefits/risks of having the surgery. When I had mine (after the fact) my MDs told me not to expect a 100% return to my pre-achalasia days. My peristaltic action was lost and the myotomy could do nothing to change that. I was advised to eat in as upright a position as possible so as to let gravity help the food travel as straight a path as possible into my stomach. The symptoms such as chest pains that I had suffered would also not totally go away, but they would be reduced in frequency, duration and severity. This was good information to have, and armed with such realistic predictions, I remained calm when symptoms did re-appear, and grateful that I had far fewer problems than they led me to believe I might experience. I've rattled on long enough - hope this has given you some encouragement and insight. Please let us know how you continue to fare. Take care - Carol (unknown) > I'm not sure if any of my messages have been posted, > but here goes anyway. > > I have not tried Levsin, but thanks for the > information. I will ask my Doctor about it. He said > the only thing that might help would be nitroglycerin. > I tried it, but all it did was give me a headache. > > As for the spasm pains in the chest. I really thought > I was having a heart attack several times. They took > me to emergency a few times, but the ekg came back > normal. Quite by accident, I tried bread and water > one time and the pain stopped immediately. Now I tell > everyone to just have some bread and water. It's > better than prilosec or tums for that immediate > cessation of the spasms. > > My doctor told me in November that he had decided > against surgery because the risk exceeded the > benefits. In February, he called to tell me that I > was scheduled for surgery. Now I don't know what to > think. Why is he changing his mind so often! Does he > really think this will help? or is he trying to get > rid of a patient that he doesn't know what to do with? > I'm scared to death of the surgery. I've seen seven > different doctors (most through Kaiser), but after all > of their tests (they each want to run them for > themselves), they always conclude that I have > achalasia and end up suggesting surgery. It puzzles > me why they have such a hard time diagnosing the > problem in the first place, and then why they change > their minds about what to do with me. > > Any suggestions? > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 Me too! Mondays are like my "getting back to business" days, or my "normal" days Gee, I thought I was the only one who looked forward to them ~~ Free day is over. My digestive system does not agreewith free days. I have to run to the bathroom 4-5times after 3 pm. This happens every Sunday. I takeit as a sign to keep on the BFL path. I just wish mydigestive system would agree. Does this happen toanyone else? I have to say I love Monday... andstarting the BFL routine all over again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 Me too! Mondays are like my "getting back to business" days, or my "normal" days Gee, I thought I was the only one who looked forward to them ~~ Free day is over. My digestive system does not agreewith free days. I have to run to the bathroom 4-5times after 3 pm. This happens every Sunday. I takeit as a sign to keep on the BFL path. I just wish mydigestive system would agree. Does this happen toanyone else? I have to say I love Monday... andstarting the BFL routine all over again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 Count it in the calories, make sure you get your protein and back off the carbs to adjust for the extra fat to the extent your calories are to high. That would be my approach. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 In a message dated 03/22/2001 3:28:53 PM Pacific Standard Time, wayneyp@... writes: > . Didn't seem to > think my pain was that bad. I left the office in > tears though. He told me I had no swelling either. > Reminds me of the time the nurse at the hospital told me to stap panting, that my contraction was over .......Wonder how she knew ???? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 People are dumb huh? I hate that I know more of what is wrong than the dr. does. I had a list of problems for him and he ignored half or more of it. But he did give me the enlightening fatc that because there was no swelling it might just might be another thing instead of returning ra. As in fibromyalgia or something else that's non-inflammatory. Does any of y'all kids have pain but no swelling? I have always been that way (I called my Mom to ask her if I was correct even). --- AplBlssm@... wrote: > In a message dated 03/22/2001 3:28:53 PM Pacific > Standard Time, > wayneyp@... writes: > > > > . Didn't seem to > > think my pain was that bad. I left the office in > > tears though. He told me I had no swelling > either. > > > > Reminds me of the time the nurse at the hospital > told me to stap panting, > that my contraction was over .......Wonder how she > knew ???? > > > [Non-text portions of this message have been > removed] > > ===== I'm not under the alkafluence of inkahol that some thinkle peep I am. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 MY daughter will have pain in joints that are and are not swollen. This joints stiffen up to. The term is Arthalgia, according to her pediatrician. Also you can have referred pain or deferred pain. The event can be a knee, but your ankle hurts. Pain is decided by the patient, not the care giver. Sometimes the care giver can't detect the swelling, it cvan be very mild. Good Luck SHU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 SHU that is what is listed on some of melissas papers severe Arthalgia and another paper listed polyarthritis another paper is listed as juvenile rhuematoid arthritis and connective tissue disease seems like all the same thing or related to me Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 I like the chocolate fudge the best out of the Myoplex Lite bars and I'm not really a chocolate lover. Another option is to get a high protein bar and add a carb to it such as a piece of fruit. Be sure to check the calories in it though...some of them are huge! You may only need to eat half of it. My husband was never non-supportive but I think he was leary that it would work. Now, he's the biggest fan of BFL although he doesn't do it himself. I'm hoping for those of you with unsupportive spouses, once they see that it really works and you are really committed AND that it doesn't have to cost a lot of money, maybe they'll come around. Congratulations on the awesome progress you've made!! Sara I've been getting this list in the digest form and love reading it every night.You all have so much information to share and help keep me on track.I don't post because I usually don't have much time due to a heavy workload and crazy home life.This is week 7 unofficially and week 6 officially for me.I have lost 10 lbs total and gone from 32.5% body fat to 23.5%.Is this even possible?Seems incredible,but I have muscles I never had before.Like a few others my hubby was very unsupportive at first(I have been on so many diets) but this week he started BFL himself after seeing these weeks of motivation and I'm still getting up to workout everyday.The funny thing is that his first day he was having trouble with the flies so I showed him how to do them and the weight he was using was too light for me! It was funny to see the look on his face when I did 12 easily after he was struggling through them.(he had to drop his weight down a little to do them right)Talk about motivating,lol.I am switching jobs,so I will be having less time to eat and prepare meals during the day.I was wondering which of the myoplex bars taste the best?Would like to try some,the shakes are not as portable.Thanks for your help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 I like the chocolate fudge the best out of the Myoplex Lite bars and I'm not really a chocolate lover. Another option is to get a high protein bar and add a carb to it such as a piece of fruit. Be sure to check the calories in it though...some of them are huge! You may only need to eat half of it. My husband was never non-supportive but I think he was leary that it would work. Now, he's the biggest fan of BFL although he doesn't do it himself. I'm hoping for those of you with unsupportive spouses, once they see that it really works and you are really committed AND that it doesn't have to cost a lot of money, maybe they'll come around. Congratulations on the awesome progress you've made!! Sara I've been getting this list in the digest form and love reading it every night.You all have so much information to share and help keep me on track.I don't post because I usually don't have much time due to a heavy workload and crazy home life.This is week 7 unofficially and week 6 officially for me.I have lost 10 lbs total and gone from 32.5% body fat to 23.5%.Is this even possible?Seems incredible,but I have muscles I never had before.Like a few others my hubby was very unsupportive at first(I have been on so many diets) but this week he started BFL himself after seeing these weeks of motivation and I'm still getting up to workout everyday.The funny thing is that his first day he was having trouble with the flies so I showed him how to do them and the weight he was using was too light for me! It was funny to see the look on his face when I did 12 easily after he was struggling through them.(he had to drop his weight down a little to do them right)Talk about motivating,lol.I am switching jobs,so I will be having less time to eat and prepare meals during the day.I was wondering which of the myoplex bars taste the best?Would like to try some,the shakes are not as portable.Thanks for your help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 Hi !! great progress youre making! Congrats! You asked about bars, I like to use the myoplex low carb bars...they only have 3 g's of carbs, 30g protein, and 1g sugar....they have 6 g's fat, but I think thats pretty similar to all the bars.... I like to take a piece of fruit and eat for my carb for that meal, so I feel more full My favs are lemon cheesecake, and apple cinnamon Blessings, ~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 My son has not had any swelling just quite a bit of pain. The dr told me he definitely had jra (positive test results) and that there is not always swelling. Sometimes I wonder if these drs ever research all the info. Michele Re: (unknown) People are dumb huh? I hate that I know more of what is wrong than the dr. does. I had a list of problems for him and he ignored half or more of it. But he did give me the enlightening fatc that because there was no swelling it might just might be another thing instead of returning ra. As in fibromyalgia or something else that's non-inflammatory. Does any of y'all kids have pain but no swelling? I have always been that way (I called my Mom to ask her if I was correct even). --- AplBlssm@... wrote: > In a message dated 03/22/2001 3:28:53 PM Pacific > Standard Time, > wayneyp@... writes: > > > > . Didn't seem to > > think my pain was that bad. I left the office in > > tears though. He told me I had no swelling > either. > > > > Reminds me of the time the nurse at the hospital > told me to stap panting, > that my contraction was over .......Wonder how she > knew ???? > > > [Non-text portions of this message have been > removed] > > ===== I'm not under the alkafluence of inkahol that some thinkle peep I am. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 That's what I am begining to wonder. If drs think that no swelling mean no pain no anything then they need to do some research. I am glad I'm not the only one. I verified what I thought with both my mom and older sister. I never had any swelling when I was younger. ===== I'm not under the alkafluence of inkahol that some thinkle peep I am. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 > Hi !! great progress youre making! Congrats! > You asked about bars, I like to use the myoplex low carb bars...they only have 3 g's of carbs, 30g protein, and 1g sugar....they have 6 g's fat, but I think thats pretty similar to all the bars.... I like to take a piece of fruit and eat for my carb for that meal, so I feel more full > My favs are lemon cheesecake, and apple cinnamon > Blessings, > ~~ > -------------------------------------------------------------------- ------------ Lemon cheesecake...MMMMMMMM...It can't be as good as it sounds,lol.Thanks I think I'll try this one. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Wynette s joints will hurt no swelling at all she dont say much about it unless i touch to see how the joint feels to me also sometimes her joints look puffy but she just says they are ok i have notice since shes been in this last flair when she writes and does her homework her hands and wrists will swell and sometimes the elbow i think if the dr would do a pinpoint pressure test without swelling they would see the joints hurt still the swelling i believe is a reaction the body has to protect that joint like when you bump your head a knot forms or when you hit your arm or leg its reaction is to swell to help with healing or just to protect that area the dr should be more careing towards patients when melissa or anyone hurts and they tell me all i know is they are hurting pain dont show up like a bruise to be seen by everyone its hard to understand until you live with it or have someone who has it Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Robbin, I guess thay really are. That was a cute message Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Well it is good to know I'm not a freak and have no swelling when everyone else does. My dr seems to think no swelling= no jra or ra. Now i als have the task of fighting aboslutely wonderful lab results. They are all perfectly normal. --- Robbin40@... wrote: > Wynette > s joints will hurt no swelling at all she > dont say much about it > unless i touch to see how the joint feels to me > also sometimes her joints > look puffy but she just says they are ok i have > notice since shes been in > this last flair > when she writes and does her homework her hands and > wrists will swell > and sometimes the elbow > i think if the dr would do a pinpoint pressure test > without swelling they > would see the joints hurt still the swelling i > believe is a reaction the > body has to protect that joint > like when you bump your head a knot forms or when > you hit your arm or leg > its reaction is to swell to help with healing or > just to protect that area > the dr should be more careing towards patients > when melissa or anyone hurts and they tell me all i > know is they are hurting > pain dont show up like a bruise to be seen by > everyone > its hard to understand until you live with it or > have someone who has it > Robbin > ===== I'm not under the alkafluence of inkahol that some thinkle peep I am. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Yes, I saw it earlier today. I think this is so ridiculous. What is sad is that someone is going to believe it. <<Have you all seen this junk? Can breastfeeding raise your baby's risk of heart disease later in life?>> _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 In a message dated 3/28/01 4:56:29 PM Eastern Standard Time, carriebeary77@... writes: << > Can breastfeeding raise your baby's risk of heart disease later in > life? >> It isn't breastfeeding that is causing heart disease, it's going from eating a perfect food such as breastmilk to spending the rest of your life eating deep-fried cow. YUCK! Breastmilk is *THE* perfect food, so if any food is causing heart disease, it's all the crap Americans eat after weaning from the breast. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Weaken a baby's heart?!?!? Yeah, as if. Heart disease runs in my family, unfortunately, and if my kids are gonna get something, it's not gonna be because I breastfeed them. How stupid. ~ Texas --- Lashanna Small <lashannasmall@...> wrote: > . > Have you all seen this junk? > > Can breastfeeding raise your baby's risk of heart disease later in > life? > > Breastfeeding for more than four months may weaken your baby's heart, > > according to a controversial new study published in the March 17 > issue of > the British Medical Journal. But many doctors and lactation experts > are > crying foul, saying that the study was funded by the formula industry > and > was expressly designed to undermine the evidence that breast milk is > best > for your baby. Extensive studies have shown that breastfed babies are > > healthier than their formula-fed peers: They get fewer earaches, > colds, > allergies, and stomach infections. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2001 Report Share Posted March 29, 2001 In a message dated 3/29/01 3:30:12 PM Eastern Standard Time, jfcanfield@... writes: << The opening words of Dr. B. Spock 's third revision of his world-famous book Baby and Child Care are ' YOU KNOW MORE THAN YOU THINK YOU DO ! A few pages later he says , Love and enjoy your children for what they are , for what they look like, for what they do , and forget about the qualities that they don't have ... >> Irma, How nice! Why have I always heard he was a quack? I never read any of his books. Maybe I should! LOL Thanks Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2001 Report Share Posted March 29, 2001 Penny, According to a talk at one of the OC Conferences, the medications with the fewest side effects are Luvox and Prozac. I think I would start with one of those. jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2001 Report Share Posted March 29, 2001 Penny, My son is 17 and was diagnosted just two months ago, they put him on 50 mgs. of Zoloft and one month later doubled it. He has no no trouble, except some tiredness. He says it really has helped him to fight off his compulsions. And I have seen a big difference, too. I have heard many thought that have gone through many until they found one that works. Good Luck, do as much reading and researching on OCD as you can and read up and listen to others opinions on meds. But, the final decision is between you, your daughter and doctor. Good Luck, R. (unknown) Hi everyone! I have only posted a couple of times.back when I first suspected that my 6-yr. old daughter, (Jodi) had OCD. That was about a month ago. Since then we have had an appt. with a therapist and yesterday our first appt. with the psychiatrist. It was the strangest meeting I have ever been part of. Which leads to my question.which drug to start my daughter on? The doc. and us agree that Jodi may be helped by medication. The doc. asked me which one I wanted to put her on. She wouldn't recommend one over another. She just handed us a bunch of pamphlets (published by drug companies) and said to read these and if we decide to go ahead with medication to call her office and she would call in the prescription of our choice. None of the pamphlets pacifically stated about the use in children. Zoloft was the only one that mentioned dosage for children, in the fine print. Now don't get me wrong.she did seem to know about OCD and she was very good talking with Jodi. I told her that I had never prescribed a medication before and my husband and I would have to discuss this and do some research before making a decision. The doc. said that all of the 5 drugs used to treat OCD were the same. I asked her which one she would give her own child? She said Prozac. I asked why that one? She stated that it had been used the longest to treat OCD. I asked if any of drugs had been approved by the FDA for use in children? She said, no. From everything that I have read this isn't true. I understand that it may take along time, of trial and error, to find one that will be most beneficial. Learning to deal with OCD and all that comes with it is overwhelming enough. How do I decide which one to choose? I would appreciate any and all comments on where to start. Thanks, Penny You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Jule Monnens, Gail Pesses, Kathy , and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . Quote Link to comment Share on other sites More sharing options...
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