Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 , If RSD is caught and treated EARLY there is a chance that it may be put into remission. There are no guarantees that this will happen, however, with no treatment there is next to no chance that it will go into remission on its own. I have known people who received treatment within 6 weeks and were put into remission and then again I know of a doctor who began receiving treatments 3 days after his injury but it still went full bloom and traveled from his wrist to his elbow. I was already under treatment for RSD in my right wrist when I injured my left ankle. Within 2 months it had spread to both feet and legs. Dorothy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2009 Report Share Posted January 19, 2009 Hello all, I was one of them that got treated EARLY and it spread so fast. so you are right when you say that sometimes it can go into remission but then again there is alot it dont. I new within one week from when I got hurt it was RSD now I live in so much pain and I have the scs inplant and pain meds. But with RSD we take it one day at a time. suzy > > , > If RSD is caught and treated EARLY there is a chance that it may be put into remission. There are no guarantees that this will happen, however, with no treatment there is next to no chance that it will go into remission on its own. I have known people who received treatment within 6 weeks and were put into remission and then again I know of a doctor who began receiving treatments 3 days after his injury but it still went full bloom and traveled from his wrist to his elbow. > > I was already under treatment for RSD in my right wrist when I injured my left ankle. Within 2 months it had spread to both feet and legs. > > Dorothy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 Hello! I am so sorry to hear of your horrible plight!! I can tell you what has worked for me for the past 26 years. If I had a bump or a sprain....I would literally call my phyiscal therapist before anyone else. If I go RIGHT into PT for my RSD, you can usually keep it from spreading. The longer you wait to be treated...with blocks, PT (espeically PT) the more you risk having it either spread or being irreversible. I have had several occassions where I went into remission (for very minor RSD flares) and for severe RSD I would keep it from spreading with PT. Mind you...the PT is extremely painful, but extremely needed. Here are some examples for you, hon. When I was about 17, I fell and twisted my ankle. I already had RSD...but I know going right into PT for five days a week instead of my normal three days, made the difference between it staying where it was and it spreading up my leg. When I was about 23, I fell down the steps and broke my ankle...the other ankle. I already had RSD there also....my Ortho Dr was one who did beleive in RSD (as there are STILL so many ignorant skeptical doctors even today). He knew if he casted my leg...the RSD would DEFINATELY spread...so He gave me a boot....to remove and to only use when walking. I also went into 5 day PT...the RSD did spread a wee bit...but I think it was from the minor fracture...since I went into PT immediately, and did not have it immobolized (which is a MAJOR NO NO with RSD, it didn't spread much, where if these things were not done correctly...it would of been all the way up my leg.) This one needs to be very wordy...sorry...it needs alot of explanation:: Now...this one talks about PREVENTION OF RSD..I was given a femoral block...for severe RSD of my right knee....after I had surgery on my knee that I HAD to have due to a significant tear, the RSD flew into the damned knee. AFter I was sent home, I STUPIDLY forgot about the block. (Mind you I have had over 180 blocks....I know how you need to stand...by keeping your knee bent...the moment you straighten your knee. you will fly to the ground....and that is exactly what I did) I fell right on top of my left wrist. It was severely fractured, displaced and dislocated. I am fortunate enough to have the most wonderful pain doc in the world. When I called him to let him know and in my panicked voice...told him of my fear of it spreading to my wrist even more...he told me that he was working on the floor and he would meet me in the ER. Here he came in from home to do the conscious sedation while they put the wrist back into place. He also did a block to prevent the RSD from getting worse in my arm and wrist. They did surgery that week, after the swelling had come down enough, and prior to the surgery, did yet another block to prevent the RSD from spreading worse from the surgery...which was a plate and 5 screws to keep the bone aligned. Because of his quick thinking...and the PT (though agonizing as it was ) kept the RSD from spreading any worse in to the wrist. NOW, I MUST TELL YOU....NOT EVERYONE WILL BE AS LUCKY AS I HAVE BEEN. I can attest to this just by my left foot and ankle. It is the worst case of RSD that I have ever had, witnessed or known about in the past 26 years. I have had the docs at Hopkins, mayo clinic clevleand clinic and jefferson all strongly suggest amputation...which is not suggested lightly. I had been seeling a doctor for nine years who I trusted to do the right thing by me. He misdiagnosed me....I begged him, pleaded with him to put me into PT for RSD, but he refused...telling me that it was ligament damage. I really do beleive that if I had the treatment that I needed early enough...my ankle and foot would NEVER of been this bad.....but I can't prove it...so I am stuck with the problem and the doctor...well, I hope and pray that he listens to his next patient better than he listened to me. I know that he didn't mean to hurt me. I know that he is good man...but he really did hurt me. Everyone's body is different. We all respond to things differently, that is true...but the one thing that I have come to KNOW as a fact that if you catch RSD in the VERY early stages, you have a better chance at keeping it in the early stages and not the worst stages, where things are hopeless. I am so sorry that it took them so long to help you out. I can't say for sure if earlier intervention would of prevented the RSD...but after you had it, it may very well of stopped it from going into worse stages. Do you have a pain management doctor now? What does he/she say about this? What does she/he propose you to do regarding your RSD treatments? ARe you in PT? Are you able to do any water therapy...this is also a GREAT therapy for RSD...if you can tolerate it. I have tried so many times in the past 7 1/2 years...and each and every time I pass out due to the pain. Bummer, huh? Do you have a stim..or a pain pump, and if not, are you thinking about having one implanted? I know these are hard and scary decisions to make...but you are not alone....you have the full backing of your group....we are here for eachother all the time...I know that I have been helped by so many of the great folks in this group...and I have come to love them and call them friends. Please know that I am here for you and anyone day or night...I have a cell phone for the group....you can call me any time...I may not be able to take your call then...but I promise to call back within 24 hours. If I don't call back, it is only due to me being in the hospital. You can reach me @ _eyes4Lenny@..._ (mailto:eyes4Lenny@...) or _KGAvi@..._ (mailto:KGAvi@...) or (215) 783-9066 Mike and I own the group. Mike is the founder and owner of this incredible group of awesome, funny and kind-hearted folks. Mike is a real great man, and it is a priviledge to call him friend. We have many moderators. They are true gems to Mike and I. They really help us out so much! Each and every one has a heart of gold, and I thank them for their loyalty to the group and their committment to the members. Gentle hugs to you and all, Love, Kathy G. Co-Owner **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 Hi, Suzy, Unfortuantely, RSD is like that. It really is a beast. I was lucky when I was younger and had remission in my left knee and wrist...this was only due to me going to PT for 5 days a week for several weeks at a time. Not everybody is the same. Dorothy is so right.....sometimes we catch a break...but sometims not...you can still do everything right...and still wind up with horrendous RSD. I wish you well and hope you are doing ok. Take care kathy G. Co-Owner **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 I had a very high ris pregnancy and many many ultrasounds. I had more ultrasounds with ended up getting an emergency c but Josh has apraxia. I think you were wondering if there could be a connection. Hope this helps. Charlotte **************From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news. (http://aol.com?ncid=emlcntaolcom00000023) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 - type in 'whiplash compensation' into Google - there is a lot of help out there, and lawyers who claim no win no fee. Luv - Sheila Are there any solicitors/legal people out there who know if you can claim for aggravated thyroid damage, that is on top of an existing illness? My insurers are going to claim against the guy who hit my car for the whiplash injury but I'm going to be very unhappy indeed if this accident has put back my hypo t recovery....just as I was beginning to get my life back as well ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009  Just a warning. Be careful with the no win no fee situation. Read your contract with them very carefully. Very often their 'fee' means just that. It does not mean the expenses (disbursements) they have. If you win they will get their disbursements and expenses from the other side. If they do not win, you do not have to pay their fee, but you may have to pay for their 'out of pocket' expenses and depending on how long the case is, how much it was contested, whether expert witnesses need to be called (and their expenses and fees paid) etc. Does the car insurance cover legal fees - that might be the best way to go. Lilian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Where is Sen. Stone from? Chante, if you are from MD I am as well. I'd be happy to share my story. I went to DC about 4 yrs. ago armed with lots of research, papers, info and books by Dr. Shoemaker. Met with an aide to Congressman Ruppersberger but never heard anything from them. Sue > Hello All, This is the feed back from Senator Stone's wife. We listened to the hearing in our office. The committee seemed to be quite supportive of this legislation Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 Thanks, I'll make sure to get in contact with him!! I got sick from a moldy school (private) in MD that is still open. Thanks, Sue >> Senator Stone is from land and the more letters and stories he hears the better. Here is his contact information and you can call the number to verify thanks. Senate Judicial Proceeding Committee, 11 Bladen Street, 2 West Bldg., plis, MD 21401. JoAnne, Legislative Assistant 410-841-3587 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 Senator Stone is from land and the more letters and stories he hears the better. Here is his contact information and you can call the number to verify thanks. Senate Judicial Proceeding Committee, 11 Bladen Street, 2 West Bldg., plis, MD 21401.  Please let me know that you received this email. Thanks, JoAnne, Legislative Assistant  410-841-3587 ________________________________ From: " ssr3351@... " <ssr3351@...> Subject: Re: [] (unknown) Where is Sen. Stone from? Chante, if you are from MD I am as well. I'd be happy to share my story. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2009 Report Share Posted January 30, 2009 Hi Patti,  Dr. Cortes is my dr at MDACC. It is an awesome place and has kept me on the right drug to keep me in chronic phase. I am now in my 4th clinical trial, HHT. But waiting for the ariad phase II to open up. My next appt is next Friday and every 28 days for now. I will keep checking for your updates to see if you make it to Mdacc. Or feel free to email me privately if you have any questions. There are more patients in this group that go to MDACC. It's a popular cancer center.  God Bless, Jackie Schneider From: PATRICE SIMBULAN <psimbulan@...> Subject: [ ] (unknown) Date: Sunday, January 25, 2009, 9:02 PM I am taking Sprycel and fatigue is my biggest issue. I cut my dose to 50 mg daily and I still have terrible fatigue. I just have to take vacations from the drug from time to time to try to feel better but as soon as I go back to taking my 50 mg daily it all returns. My onc is hesitant to reduce my dose anymore. The Sprycel has kept me PCRU since 10/07 so I guess I shouldn't complain but it would great to have a better QOL. My onc wants me to go to MD for a consult with Dr. Cortes to see what he says. I may do that this Spring. In the meantime I just try to cope. Patti S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 You seem to have got through OK now Louise Lilian (unknown) Hi Sheila. I have been trying to send email, but it wont let me in, It wont ven let me rejoin, HELPPPPPPPPPP Love Louise Coase Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 Hi Louise, This one arrived OK. Subject: (unknown) Hi Sheila. I have been trying to send email, but it wont let me in, It wont ven let me rejoin, HELPPPPPPPPPP Love Louise Coase. E-mail message checked by Spyware Doctor (6.0.0.386) Database version: 5.11660 http://www.pctools.com/spyware-doctor-antivirus/ __._,_.___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 No idea why it won't let you in Louise - however, I see that you have posted today. Let me know if you have written anything that hasn't come through to the message board. If this turns out to be a problem, the easiest thing to do is to simply reregister and then I will remove your old registration details. thyroid treatment Any problems just shout. Luv - Sheila Hi Sheila. I have been trying to send email, but it wont let me in, It wont ven let me rejoin, HELPPPPPPPPPP Love Louise Coase. J Coase 01223 870575 Office 07889 654142 Mobile 2a Queens Close Harston Cambridge CB2 5QL E-mail message checked by Spyware Doctor (6.0.0.386) Database version: 5.11660 http://www.pctools.com/spyware-doctor-antivirus/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 your welcome! ________________________________ From: " ssr3351@... " <ssr3351@...> Subject: Re: [] (unknown) Thanks, I'll make sure to get in contact with him!! I got sick from a moldy school (private) in MD that is still open. Thanks, Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 At 02:11 AM 1/21/2009, you wrote: >Thank you Sheri, you continue to be a light and a comfort while we >gain a handle on the fear. thank you and you are welcome Sheri > -------------------------------------------------------- Sheri Nakken, R.N., MA, Hahnemannian Homeopath Vaccination Information & Choice Network, Nevada City CA & Wales UK Vaccines - http://www.wellwithin1.com/vaccine.htm Vaccine Dangers & Childhood Disease & Homeopathy Email classes start February 18 & 19 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2009 Report Share Posted February 2, 2009 : Â I have been given several different protocols for the flushing of the pic lines: Â Option 1: Flush once a day with 20cc sodium chloride in each line whether you use the lines or not. Option 2: Flush the line after each infusion treatment and flush the one you don't use with 20cc sodium chloride as well (I have dual lines) Option 3: Also flush with 1cc - 5cc herparin Option 4: Do not flush with ANY herparin as it is a dangerous blood thinner. Â Because the different clinics have different tubes and needles, I am now doing my own thing, which is dependent on the supplies I was given by the generous nurse---something my former (fired) oncologist yanked away from me. She was pissed off I was doing these alternative therapies. I was told by a receptionist who answers phones at the R.N.'s clinic who did the pic line--- " Some mainstream docs will try to sabotage what you are doing because they are very angry with alternative approaches. " It certainly rang true when the oncologist left me in a position to not be able to clear and flush my lines. It takes a prescription to get these supplies. She left me in a very dangerous position. I am floored that she would do this. I even told the infusion clinic nurse that I would NOT self-inject if this is what it would take to get the supplies; instead, the option of getting supplies was yanked away from me. I am still blown away. All I am trying to do is explore options of saving my life from a not-to-good prognosis of inoperable lung cancer. It is beyond me what goes on in people's heads, but I am moving on and now have a fabulous new " Dream Team, " comprised of a Doctor of Ostepathy/oncologist, an anthroposophic medical doctor and a naturopath. But I will only being doing the Vitamin C, Ozone and perhaps mistletoe thru my lines. Sodium Bi-carbonate will not be a choice per Golden and Jim's warnings. Â From: son <turmeric4@...> Subject: [ ] (unknown) Date: Monday, February 2, 2009, 9:49 AM , " The problem is that the lines have to be flushed everyday. " I don't know where they came up with that. The pic lines need to be flushed every week, not day. I had a midline put in my arm, and on the week I didn't have chemo I had to come in and have it flushed. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Hi Dawn, First of all, hats off to you for stepping up to care for your sister. The questions/emotions you describe are exactly what most of us feel and fear -- how to do all of what we feel compelled to do for our loved ones, whilst maintaining our own lives, marriages/relationships, physical and emotional health, etc? Yes, there are MANY rewards that we receive from our special children or sibs. But it's tough, too. Absolutely, any housing/caregiving arrangements would have to be agreed to and written down -- like in my hubbie's law business, where he creates 'partnership agreements' everyday for business people. It would have to be a contract. Thanks for sharing your thoughts. L. (unknown) Hi, I think of the housing idea, and my first thought is: " who is responsible? " A perfect example could be: my sister gets an overdose of seizure medication (toxic) and has to be taken to the hospital. Someone would have to provide answers and preventative solutions for this to not happen again. What protection do the caregivers have against other caregivers? Would people be sued personally? What if one caregiver doesn't hold up their end of the deal? If I were to get involved with any living situation with any other family, I would do it legally to protect everyone involved. My mom always said that I asked to many questions. Ha! Caring for someone is not easy at all. It is the hardest part of my life to sit down for a split second and ask myself " what is my life? " . So quickly the " my life " part has been taken out of the equation completely. Yes I would like to sit down alone for a night without the millions of thoughts " did I order all her medicine? " or " Does she realize what I give up in my life for her (my little sister)? " or " Will she ever understand or learn! " or " Is this the right thing! " I have to stay positive for both of us and completely realistic and covering all grounds before we step (to protect both of us). Good night Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Why do you have to flush your picc line daily? I only flushed mine 1x a week with saline and it worked fine. ~Amber -- Re: [ ] (unknown) : I have been given several different protocols for the flushing of the pic lines: Option 1: Flush once a day with 20cc sodium chloride in each line whether you use the lines or not. Option 2: Flush the line after each infusion treatment and flush the one you don't use with 20cc sodium chloride as well (I have dual lines) Option 3: Also flush with 1cc - 5cc herparin Option 4: Do not flush with ANY herparin as it is a dangerous blood thinner. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 Dawn, I don't know how Dr. G feels about other interventions. I know he is in favor of speech therapy. He just does not like ABA. Your counsel it good. My instincts tell me we are on the right track with our current home program. Sometimes all the differing opinions out there make it difficult to have confidence in decisions, though. Again, thank you for your insights. Martha From: [mailto: ] On Behalf Of Dawn Dolan Sent: Friday, January 30, 2009 1:09 PM Subject: [sPAM] (unknown) Martha, Is Dr. G opposed to all other interventions or just ABA? I feel if you had a stroke, there would be a medical component to address your recovery as well as other components needed to train and retrain your brain. I don't see how it could hurt unless overwheling him was the concern. I'm not sure how it could damage him?? Let your son be the barometer as to how much he can take. I think ABA can be good at helping your son properly execute the steps needed in potty training or other self help and coping skills. Someone is going to have to teach him this stuff and it seems helpful to have a trained professional spearhead the way in which to go about it and get the ball rolling for you. My son is currently doing in-home ABA which started this year at age 5. He does 10 hours. My concern was that it would be to rigid and formulaic and not address the actual areas where he needs help. So far, it's fine. We never really did all the drilling, but my son did not need that so much. He needs work on social and coping and some processing which they do through playbased activities. There is no perfect solution or quick fixes, but sometimes you get a good instructor that clicks with your child's personality and it just works. I hope that is the case for you! Don't be hard on yourself. You try it, and if it doesn't feel right, move on. But I feel time is of the essence. Early intervention is key. dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2009 Report Share Posted February 12, 2009 Push the seeds down. Get them submerged in the water. Even if they don't all submerge, they will probably still sprout. After the soak, they will be down against the others and then they will be ok. ew (unknown) Date: Thu, 12 Feb 2009 18:13:27 -0000 Don't know what's happening but it won't let me post a subject for this question. Re: Seeds floating to the top while I'm soaking them. I just got these beautiful radish sprout seeds. I put them in the water in my mason jar to soak overnight. I noticed that a LOT OF SEEDS are floating on the top. Now when I soak the broccoli seeds, the fenugreek and all my other seeds, well, there are SOME seeds that float to the top. I thought that I should just pick them out, (or collect them with a spoon) and toss them. For some reason, I believe that when you are soaking seeds and they float, that means they will not sprout. Am I incorrect in this assumption? But the radish seeds?. There are quite a bit floating. I just swirl the water and some of them sink. What does this all mean? Thanks much Melody -- Be Yourself @ mail.com! Choose From 200+ Email Addresses Get a Free Account at www.mail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2009 Report Share Posted February 12, 2009 (unknown) Date: Thu, 12 Feb 2009 18:13:27 -0000 Don't know what's happening but it won't let me post a subject for this question. Re: Seeds floating to the top while I'm soaking them. I just got these beautiful radish sprout seeds. I put them in the water in my mason jar to soak overnight. I noticed that a LOT OF SEEDS are floating on the top. Now when I soak the broccoli seeds, the fenugreek and all my other seeds, well, there are SOME seeds that float to the top. I thought that I should just pick them out, (or collect them with a spoon) and toss them. For some reason, I believe that when you are soaking seeds and they float, that means they will not sprout. Am I incorrect in this assumption? But the radish seeds?. There are quite a bit floating. I just swirl the water and some of them sink. What does this all mean? Thanks much Melody -- Be Yourself @ mail.com! Choose From 200+ Email Addresses Get a Free Account at www.mail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2009 Report Share Posted February 12, 2009 I am def wishing you the best of luck. We all know how hard those surgeries are on your body. Especially, the first two-three days. I will be thinking about you and praying for you!!! Stay Strong!!! April (unknown) Date: Thu, 12 Feb 2009 21:13:17 -0000 I will be having my 3rd lumbar surgery on the 17th in Albany NY . will be having another fusion along with some scar tissue removal . -- Email2me.... The email service that cares. It is FREE. http://www.email2me.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2009 Report Share Posted February 12, 2009 Hi KD, I came here for RA support. What I've gotten is so much more. There is much knowledge on this list, many good people willing to listen and share their own experiences, about anything that might help you. There's lots of humor to give you that smile when you need it, etc. I believe many of us on here have more than just RA. I just got dx'd with Fibro too. To me, it's just like, ok, add another one. Anyway, it covers so much more. RA can make you crazy sometimes....this list will keep you sane. Well, maybe, depends on who is writing and when...tee hee. Heidi in very windy Mass. I could lose power tonight and be scared! eek! _ In a message dated 2/12/2009 10:14:21 P.M. Eastern Standard Time, danielskathy@... writes: RA? SLE? Other? Interesting, I do not have a box to add a subject line. ? I was wondering if most members are here for RA support or SLE support or other afflictions? KD **************The year's hottest artists on the red carpet at the Grammy Awards. AOL Music takes you there. (http://music.aol.com/grammys?ncid=emlcntusmusi00000004) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2009 Report Share Posted February 12, 2009 Hi there, I haven't had my revision surgery yet, but am scheduled for June 3rd with Dr.Boachie. I wish you well and hope it doesn't take you too long to get your strength back in your legs. what did your surgery consist of? I have a Harrington Rod that he'll be removing...and then re-doing my fusion. When you're up to it, I'd like to hear how you're doing. You will be in my thoughts... lauren From: jdh3652 <jdh3652@...> Sent: Thursday, February 12, 2009 2:36:31 PMSubject: [ ] (unknown) I had surgery with Dr. Boachie on Jan. 21st. I stayed in the Hospital for Special surgery for about 8 days and then went to an acute rehab facility nearby. I had 3 hours of PT every day except on weekends. I had a lot of symptoms that came and went but the lasting one that is bothering me the most is the weakness I have in my legs. I have to wear a knee brace and use a walker to get around as well as the back brace that Dr. Boachie prescribed. Post surgery both my legs just buckled when I tried to stand. I am now 3 weeks out and I can stand w/o the brace as long as I can hold on to the walker but I don't dare try to walk w/o the brace as I am afraid my knee will collapse again. Dr. Boachie said it could take up to 4 months for the strength in my legs to fully return. Did anyone have a similar experience post-op? Right now I have to have help in order to stand and walk cause I can't put the knee brace on by myself because I am not allowed to bend. My husband has to help me put the knee brace on, then the back brace and then I have to use the walker to get around the house. I can't do stairs yet either. I am very happy with the way my back came out-I am standing very straight with no trace of the flatback I had before. I am worried about the strength in my legs returning but am trying to be patient. Anyone else out there have leg weakness post-op? Quote Link to comment Share on other sites More sharing options...
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