Guest guest Posted January 1, 2009 Report Share Posted January 1, 2009 Lottie, don't knw what happened, I lost the first email, so I'll try again. I just wanted to say, if it pops up, ignore it... two years ago I spent NY Eve in the hospital too, but I bet I had more fun than you did. My daughter and her husband came in at 11:30 pm with goodies, noisemakers, hats and a bottle of champagne, for me and my roomie, and we celebrated in style. The nurses and doctors laughed at the champagne bottle on the dresser in the morning, but we had a fun nite for two sick old broads! I hope they let you out of there today, I know you're not near a computer until they do. Not a good way to start the New Year, on the other hand , now that you got it out of your system, you can get on with living the good life? Happy New Year to you and Jimmy, may it end up way better than it started! blessings, Bobby From: ROBERTA DOYLE <rcd1929@...> Subject: [ ] (unknown) " " < > Date: Wednesday, December 31, 2008, 4:33 PM HAPPY NEW YEAR EVERY ONE, LOVE, BOBBY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2009 Report Share Posted January 2, 2009 Hi, , Welcome aboard. You do not need to freeze seeds that you get from Sprout People unless you can't use them with in about six months. If you have a cool dry place to store them, you'll be ok. Just keep the plastic bag that they came tightly closed. If you don't think that you will use them up right away, you can freeze them. Leave them in their bags and place inside of a quart mason jar. To sprout, take what you need put the seeds into your sprouter and leave them to come room temp. About two hours. Don't add water. Then process them as usual. ew (unknown) Date: Fri, 2 Jan 2009 16:32:20 -0800 (PST) Hi guys! I got my seeds today!!!!!!!!!!!!!!!!! I ordered from Sprout People and actually asked for a substitution for two of the samples and they threw in two extra pea samples. Now for my questions. Am I supposed to freeze them to kill any eggs? The broccoli is not Organic, what are your concerns about them not being Organic and how the toxins are usually concentrated in the sprout? Any suggestions for what to sprout first? I got the 20 sampler kit. Thanks! Smyrna, TN US Zone 6b Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2009 Report Share Posted January 2, 2009 From: tommy morrow <tommy02141@...>Subject: (unknown)bird mites Date: Friday, January 2, 2009, 5:11 PM Hey guys and gals I was wondering how many of you fellow members have these "lint ball" things on you and your cloths that bite you. And if you do I would like to hear your opinion on bird miteswhat these things are? tommy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2009 Report Share Posted January 4, 2009 Hi Donna: I couldn't find your group...what is the group about? Transition, I assume? Ellen Ellen Garber Bronfeld egskb@... (unknown) Hello Everyone, We have some very exciting news to announce, the PASSAGE web site is up and running. Please visit www.passagegroup.org. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2009 Report Share Posted January 7, 2009 I'm so sorry you are having so many problems. I spoke with a nurse last week who worked for a pain mgt doc and she told me they are having a lot of patients who received a SCS and their pain comes back within the year. Mine has helped me, but a lot of my pain has come back too. I also would like to hear from anyone on here who has the SCS and a pain pump and what you think of it. Take Care, B. in TEXAS ________________________________ From: tommy earles <workingguy@...> Stimulator Sent: Wednesday, January 7, 2009 2:17:34 PM Subject: (unknown) Hello, I haven't joined this group much. It is my husband that has the back problems with the spinal cord stimulator implanted about a year ago. He was hurt at work in 2003, had 2 surgeries and spinal fusion. A lot of nerve blocks and things. The fusion worked for about a month then physical therapy did him in. The stimulator worked down his leg, but not for his back. Now he is having the same pain as before, even in his leg and foot, even the Percocet isn't working. I get aggravated with it all. Then I feel bad. I have back problems too, and fibromyalgia, try to work and take care of kids and I don't have any insurance to even see a doctor. It took us 3 years to get social security, then another 8 months before we knew for sure we could spend it because the lawyer said it was calculated wrong. They still haven't added the kids on yet. Our lawyer messed up the lawsuit from the company--didn' t get some paper in on time, so we got nothing from that. We just spent all day at the hospital for a myelogram and ct scan. Is there any reason why the spinal cord stimulator has stopped working? Do any of you recommend the pain pump? Any suggestions on where to go from here? Thank you for listening and any response will be appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2009 Report Share Posted January 7, 2009 , I think that everyone here basically knows that my experiences with the pump have been terrific. When I received my pump, 16 years ago, my doctor at that time said that although he felt the SCS worked extremely well for upper extremity pain but that it was his exerience that it did not give long lasting relief for lower extremity pain. He said that although it would work initially, that in too many cases that relief did not last long term. I have only made one trip to the ER in all these years and was treated very well. I think the doctor figured that if I had enough pain that I required a pump that I was not drug seeking. I explained what caused my pain to elevate and that my doctor was not available for added pain control. I was given an injection and sent on my way. The doctor knew that my pain was severe enough that she never even attempted to touch my legs and in fact ordered that nobody touch my feet or legs. As a whole I would say that my pain levels are at about a 2-3, sometimes less sometimes a bit more. I have oral meds available but average about 2 per month. Dorothy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2009 Report Share Posted January 7, 2009 Dear Yonie Very happy to receive your response. Do you mind sharing with me what do you do & what can we offer to parents of special children? I wish to gather some parents to form a support group in JB. Any suggestions on what kind of activities we can do to help parents & their children? A brief profile of the parents/children are: 1) 19 year old microcephaly - able to walk & chew solid food. mentally slow. Mum has worked very hard to help son throughout the journey. 2) 12 year old cerebral palsy - family is not well to do, child is neglected & unable to straighten body 3) 8 year old - due to genetic problem, mentally slow. started walking at age 3, began talking more fluently at age 7. supported by a very dedicated mum 4) 6 year old - born with a hole in the heart, mentally alert but unable to walk well 5) 7 year old - cerebral palsy. intelligent, but walking difficulty 6) 6 year old - cerebral palsy, walking difficulty 7) 3 year old - speech delayed 8) 3 year old - speech delayed 9) 2 months old - blind, seizures 10) 2 year old (my son) - blind, microcephaly, kernicterus, have not roll, crawl. From: Yonie Yonie <yy2crazy2b@...>Subject: Re: (unknown) Date: Monday, December 29, 2008, 4:02 PM Hi Cheryl! I'm Yonie fm Singapore. I travel weekly to Johor Bahru for work & leisure. Welcome to the group. At this moment I have not have any parents in Johor Bahru. Tried to bring awareness of this work there before but the respond isnt that great. Hopefully you could help to spread this beautiful work in Malaysia Johor Baru. We have Erlinda an Associate 2 in Kuantan doing this work. You may write to me directly if you need more info. Rgds Yonie From: Tan Cheryl <peckbuay (DOT) com>CHILDRENWITHCHALLEN GESGROUPS (DOT) COMSent: Saturday, December 27, 2008 4:59:56 AMSubject: [childrenwithchalle nges] (unknown) Dear ALL My son is 20.5 months old, born with severe jaundice, now kernicterus, microcephaly, blind (due to severe scarring in retina & micro-cornea) and global development delayed. At 2 months old, he was tested CMV positive. 5 months later I tested on myself, found CMV negative. Presently, he has not even roll and not to mention sitting & walking etc. Just wondering if any of you have/met any babies similar to mine? Apart from the OT & PT available at hospital, what are the other alternative treatments available? We're residing at Johor Bahru, Malaysia. I'd love to meet up with mothers of speacial needs in JB. Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2009 Report Share Posted January 7, 2009 Hi, ! You are most welcome to our group. I am so glad that you wrote in. My name is Kathy G. I, along with Mike, own this group. Mike is the founder and is a great and caring guy. I have had RSD now for 26 years. I can relate to all your frustrations....or maybe more of your hubbie's as I am the patient. I do see what my hubbie goes through though, and like you, he stays with me and helps me through it. God bless you for staying by your husband's side. I say this only because my first husband was an idiot and wanted a " normal life " . He left me after five years of marriage. May he get warts in a bad place..lol I have two stims...one for my arms, and one for my legs....I had a pump in , but had all sorts of problems with it. don't get me wrong...some folks swear by their pump...but mine was just malfunctioning way too often. When my pain pump was working properly, I loved it, as I didn't need to keep taking pills, feel the nausea I do from the pills...not to mention the effects from them. It was regulated by my PM and it was great. So...it might be an answer for your hubbie. All too often all this crap with the social security goes on. I am so sorry that you had to go through it and are still doing so. I am sorry to hear about your healt as well. Try to take as good of care as you can of yourself. I know that may sound like finding a needle in a haystack the size of Vermont....but you really need to try. As for the spinal stim not working any longer, have you contacted the company and spoken with a rep? If your rep meets your hubbie at the PM office, they can investigate into why the stim is not working properly. I have had this done twice now...the first time, the wires had moved...I had them corrected by a minor surgery and it was fine. The second time...it was the battery...I have had my batteries changed a few times now. This group is full of wonderful, caring, fun-loving folks. I know that more people will be answering your post. Please write anytime. have your hubbie write also. I know it sounds like a cliche...but we are really like a family here. Take care and good luck, . Gentle hugs, kathy G. Co-Owner **************New year...new news. Be the first to know what is making headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 i hope and other members will start contributing. This is noble cause to help each other. Saleem From: jennifer johnston <bulldoggergal@...>Subject: [ ] (unknown) Date: Wednesday, January 7, 2009, 8:10 PM OK...you guys are making me crazy!!! I've been a part of this group for a while but really haven't seen any posting and was about to totally give up until...tonight there are not only a whole lot of posts...but posts from familiar people.I had to keep switching back to another group on HepC and looking to see if the names were the same...and they were.I thought I was losing my mind until PeachStatePam talked about being on many at once. Then...and only then...did I realize that this was indeed the "dead" group I thought it was....I now realize that I am actually NOT losing my mind! All of that being said...COOL! Another HepC group with good info and chit chat that I can lurk in... I had something to say but then ya'll said it all before I could so...Carry on! xoxoxo, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 You sound like I am on the wrong side. Please explain where you picked up the idea that I have something to fear. Jim ________________________________ From: mike yadon <mikeyadon@...> Vaccinations Sent: Friday, January 9, 2009 12:38:36 PM Subject: (unknown) And what about the fact that Polio is a made up disease. An excuse for the reaction to the massive amount of ddt in bug sprays. just like hiv/aids is fake. once you start to peel away the layers, you begin to understand what is really going on here. culling of the human race based on the belief of the elite that the world would be a better place when populated by 80% less. SO MANY DISEASES WE see today are just a reflection of total body burden. nothing more, nothing less. if you are too afraid to currently see it, be brave, because soon enough this house of cards is going to fall and those responsible will be hauled off to prison. > > To understand any controversial subject, one needs to read both sides from the main players, the people who were actually in the arena at the time the controversy took place. This is especially true about vaccines. Only by knowing the past and comparing it to the present " opinion " can one decide what is true and what is not. > Most people believe that polio was eradicated by Salk's vaccine. And based on that belief the whole vaccine argument rest.. In other words if Salk's vaccine wiped out polio, then today's vaccines must also prevent disease. So if one finds out that Salk's vaccine did not eradicate polio and that Salk's plan was based on his own theory of cause and effect, which also was diametrically opposed to the leading polio " experts " of the time, then one is liable to understand that if the polio vaccine did not prevent polio then by the same principle no vaccine will prevent any disease. > > I have just finished a book. Breakthrough, the saga of Jonas Salk by , written in 1966 after the polio fiasco was over. He interviewed Salk, O'Connor and all the main players in person. You will read the truth about this most unscientific experiment that cost 11 kids to die and over 200 more to become paralyzed. If you are one who is trying to educate people not to vaccinate, you need to read this book. > > Punch in used books, there are lots of copies available for 8 or 9 dollars. > > Jim > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 I don't think Mike's post was meant to rebutt yours, Jim, but more to validate and add to what you wrote, offering yet another factoid. I think when he says " if you are too afraid to currently see it, be brave, because soon enough this house of cards is going to fall and those responsible will be hauled off to prison. " , he is using it as a blanket " you " , meaning the entire population of sheeple, not you in particular. Just my take on the post... On Fri, Jan 9, 2009 at 12:33 PM, Jim O <jimokelly@...> wrote: > You sound like I am on the wrong side. > Please explain where you picked up the idea > that I have something to fear. > > Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 Exactly. Thanks . Sorry for the confusion, Jim. > > I don't think Mike's post was meant to rebutt yours, Jim, but more to > validate and add to what you wrote, offering yet another factoid. I > think when he says " if you are too afraid to currently see it, be > brave, because soon enough this house of cards is going to fall and > those responsible will be hauled off to prison. " , he is using it as a > blanket " you " , meaning the entire population of sheeple, not you in > particular. > > Just my take on the post... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 No problem. I have been doing polio research for several years because I was 13 during the field trials of 1954. I knew that I was not given the shot and never got polio. I then learned that 40 million other kids of that era never got shots and never got polio. I then began to investigate to discover it was a hoax. The reason I suggested that book is because the author is biased in favor of Salk, BUT he interviews all the other experts who disagreed with Salk. In short any one who has info on the polio scam can get the info right from the horses mouth on just what all the scam involved. my theory is when you have the evidence of those that support vaccine and it clearly shows how stupid they are, then you can shoot down their theories with their own words and have a better chance of converting them over to our side. I will mention I haven't been this interested in a book for a long time. It put a lot of the pieces of the puzzle in place for me. I had a hard time putting it down. And I should mention it is not for beginners. You need some knowledge of the salk hoax to read between the lines.. As far as some people going to jail, the sooner the better. Jim ________________________________ From: mike yadon <mikeyadon@...> Vaccinations Sent: Friday, January 9, 2009 3:27:16 PM Subject: Re: (unknown) Exactly. Thanks . Sorry for the confusion, Jim. > > I don't think Mike's post was meant to rebutt yours, Jim, but more to > validate and add to what you wrote, offering yet another factoid. I > think when he says " if you are too afraid to currently see it, be > brave, because soon enough this house of cards is going to fall and > those responsible will be hauled off to prison. " , he is using it as a > blanket " you " , meaning the entire population of sheeple, not you in > particular. > > Just my take on the post... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 Sounds like what I was thinking, a bit; I was going to ask, what's the harm in NOT getting vaccinated? Just curious as to what their " argument " is. I wasn't impressed with what was said on the Amazon group of a few weeks ago, but I figure if I know what their argument is, I will better be able to understand/make a decision for myself. So far, I have decided NOT to vaccinate this one that is due to be born any day now. But every once in a while, you are struck with the fear that has been driven into your brain all your life. ~~ > From: Jim O <jimokelly@...> > Subject: Re: Re: (unknown) > Vaccinations > Date: Friday, January 9, 2009, 3:53 PM > No problem. > > I have been doing polio research for several years because > I was 13 during > the field trials of 1954. I knew that I was not given the > shot and never got polio. > I then learned that 40 million other kids of that era never > got shots and never got polio. > I then began to investigate to discover it was a hoax. > The reason I suggested that book is because the author is > biased in favor of Salk, BUT he interviews all the other > experts who disagreed with Salk. In short any one who has > info on the polio scam can get the info right from the > horses mouth on just what all the scam involved. my theory > is when you have the evidence of those that support vaccine > and it clearly shows how stupid they are, then you can shoot > down their theories with their own words and have a better > chance of converting them over to our side. > I will mention I haven't been this interested in a > book for a long time. It put a lot of the pieces of the > puzzle in place for me. I had a hard time putting it down. > And I should mention it is not for beginners. You need some > knowledge of the salk hoax to read between the lines.. > > As far as some people going to jail, the sooner the better. > > Jim > > > > > > > > > ________________________________ > From: mike yadon <mikeyadon@...> > Vaccinations > Sent: Friday, January 9, 2009 3:27:16 PM > Subject: Re: (unknown) > > > Exactly. Thanks . Sorry for the confusion, Jim. > > > > > > I don't think Mike's post was meant to rebutt > yours, Jim, but more to > > validate and add to what you wrote, offering yet > another factoid. I > > think when he says " if you are too afraid to > currently see it, be > > brave, because soon enough this house of cards is > going to fall and > > those responsible will be hauled off to prison. " , > he is using it as a > > blanket " you " , meaning the entire population > of sheeple, not you in > > particular. > > > > Just my take on the post... > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 Thanks Roz! ________________________________ From: Roz Burton <divasinstylz@...> Sent: Thursday, January 8, 2009 2:59:38 PM Subject: (unknown) Hi to all I have a template that makes all size boxes. It is easy and simple. All you have to do is enter the size of the box you want length, width, height and print. The link in posted in my group Roz B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2009 Report Share Posted January 10, 2009 , you will also be struck by fear once your mommy hormones kick in, and more than once. Be ready, because even the strong among us have given in when the pressure starts. It is VERY difficult to shake our " training. " Once that switch is flipped though, when you understand vaccines don't even work, it will get much easier. Hope all goes smoothly with the birth! Winnie Re: (unknown) > > > > > > Exactly. Thanks . Sorry for the confusion, Jim. > > > > > > > > > > I don't think Mike's post was meant to rebutt > > yours, Jim, but more to > > > validate and add to what you wrote, offering yet > > another factoid. I > > > think when he says " if you are too afraid to > > currently see it, be > > > brave, because soon enough this house of cards is > > going to fall and > > > those responsible will be hauled off to prison. " , > > he is using it as a > > > blanket " you " , meaning the entire population > > of sheeple, not you in > > > particular. > > > > > > Just my take on the post... > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2009 Report Share Posted January 11, 2009 Dear Tan,and other mothers, I have a daughter that is 17 months with spastic quadriplegic CP. She also is not rolling, or crawling. We are lucky her cognition is not impaired . We have spent the first year of her life doing the standard Physical Therapy (PT), Occupational Therapy (OT) routine at a local hospital. I found their methods were well intentioned , however, it felt like they were addressing a shark wound with a band aid and I my instincts kept telling me there has to be MORE that can be done. I really felt like we were losing time. There are a couple of therapies that we started doing this past year that may help your son. I researched these methods at length before trying them and after exhausting all the conventional methods. I have not found any other methods as progressive as these. I am hoping this may spare any parent some valuable time, should they be relevant to their children. The first is ABR, Advanced Bio-mechanical Rehabilitation, it is a therapy that invloves rehabilitating the soft muscles of the body. The therapy is passive (requires no action on the part of your child, except to be still) while the parents are trained to apply the therapy on them. I wil tell you that it is time consuming, however, there is nothing that produces the results this therapy does, It will actually change the shape of your childs body over time (for the better) and help restore the much needed muscle tone their organs and soft tissue need to hold themselves up. The inventor is Leonid Blyum and I believe most families from the pines go to the Singapore location. You can find them at www.miraclekidz.com, you can slo go to www.blyum.com for more info. Leonid does not believe in PT and OT, he is against any therapies that put premature stress on a childs body (I.E: standers, walkers) He believes it speeds up the road to deformities. His principle is simple, if your body/muscles do not have the strength to perform a task like , walking reaching, crawiling, even sitting, then the muscles must first be rehabiltitated. I welcome you to join the ABR support groups on ( there are two for Asia and the US)and write to the parents using this therapy. There are some who have been doing it far longer than I that can tell you the results they have seen. The speed at which you can see results varies from child to child, but results are measurable and achievable. this is not a "wishful" thinking kind of therapy, where you "Hope" it will work. It really does work, it just depends on your child and your dedication to doing the therapy that dictates how quickly your kid progresses. The second therapy we found that is a movement therapy is Anat Baniel Method, (www.anatbanielmethod.com). I like it because it also has similar thinking to Leonid's which is that if you are "stressing" the body, you are not really helping it physically and in Anat's therapy, her principle is that you are not helping the childs congnitive ability to learn how to move. Her therapy is focused on finding opportuinties for the brain to make Body/ mind connections through movement. She beleives the brain has the ability to rewire itself and through movement, the mind can re-learn how to move. She has some really good information videos on U-tube, you can google her there. Her site is loaded with info. What I love is that the kids really look like they are enjoying the movement. I found that so refreshing and it really makes sense for the kids, Anat says, if you are in discomfort, (which our kids usually are if they are not moving) then your brain can only focus on the discomfort and not on the movement you are trying to get them to absorb and integrate. If you are happy/comforatble while someone is trying to teach you movements, you will most likeley retain that information. I really apprectiate her logic. I took my little one to Conductive Education, (a therapy from Hungary), and Hanna would scream for the whole two hours with her eyes shut. It was like torture for her and I would ask myself, "what could she be learning, screaming like that". When they told me "Don't worry , She'll get used to the therapy and will get better at it! " I realized what she was learning was that in order to move, she would need to deal with being constantly uncomfortable and in pain. Before we get to a point where that may end up being the case, I believe there are other, better methods to try first. The other things I do with Hanna may be therapeutic for her but they are really about us having fun. I take her to a local hospital's rehabilitation swimmimg pool. It is for people needing physical rehab from the hospital, but our doctor gave us a script and I can take her on my own for three dollars a visit. Other children have OT there so there are water toys and anything I need to play with her in the water. She has High muscle tone so the warm water is fabulous for her. Without having to deal with gravity for a while is really fun and relaxing for her so we do that a couple of times a week. She also loves to swing in my lap at the park. Both activities are actually great sensory input for her as well as fun. That's the rule in our house "Having fun". I try to make sure the atmosphere in the house in not all about "Fixing" Hanna. She seems to really appreciate that and I find her much more eager to participate and try new things now that we have stopped the OT, PT and Conductive ED. The last thing I found is the Masgutova Method, which is how I found this blog. I do not know very much about it and I am going to meet Svetlana masgutova at the end of January when she will be seeing Hanna. We decided to check it out because the Anat Baniel therapist we are seeing says it is equally as good as Anats therapy, that she likes using both of them in unison and that: if she had to choose one over the other, she couldn't. That's everything. I hope there is something of value for you in this info and wish you well in your search for better therapies for your child. . From: Tan Cheryl <peckbuay@...>CHILDRENWITHCHALLENGESGROUPS (DOT) COMSent: Friday, December 26, 2008 2:59:56 PMSubject: (unknown) Dear ALL My son is 20.5 months old, born with severe jaundice, now kernicterus, microcephaly, blind (due to severe scarring in retina & micro-cornea) and global development delayed. At 2 months old, he was tested CMV positive. 5 months later I tested on myself, found CMV negative. Presently, he has not even roll and not to mention sitting & walking etc. Just wondering if any of you have/met any babies similar to mine? Apart from the OT & PT available at hospital, what are the other alternative treatments available? We're residing at Johor Bahru, Malaysia. I'd love to meet up with mothers of speacial needs in JB. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2009 Report Share Posted January 12, 2009 Dear ,Thank you for your wonderful summaries. I look forward to your response about MMRI approach when you have the opportunity after working with Svetlana. Regards,From: Simko <christinasimko@...>To: Sent: Sunday, January 11, 2009 3:33:11 PMSubject: Re: (unknown) Dear Tan,and other mothers, I have a daughter that is 17 months with spastic quadriplegic CP. She also is not rolling, or crawling. We are lucky her cognition is not impaired . We have spent the first year of her life doing the standard Physical Therapy (PT), Occupational Therapy (OT) routine at a local hospital. I found their methods were well intentioned , however, it felt like they were addressing a shark wound with a band aid and I my instincts kept telling me there has to be MORE that can be done. I really felt like we were losing time. There are a couple of therapies that we started doing this past year that may help your son. I researched these methods at length before trying them and after exhausting all the conventional methods. I have not found any other methods as progressive as these. I am hoping this may spare any parent some valuable time, should they be relevant to their children. The first is ABR, Advanced Bio-mechanical Rehabilitation, it is a therapy that invloves rehabilitating the soft muscles of the body. The therapy is passive (requires no action on the part of your child, except to be still) while the parents are trained to apply the therapy on them. I wil tell you that it is time consuming, however, there is nothing that produces the results this therapy does, It will actually change the shape of your childs body over time (for the better) and help restore the much needed muscle tone their organs and soft tissue need to hold themselves up. The inventor is Leonid Blyum and I believe most families from the pines go to the Singapore location. You can find them at www.miraclekidz. com, you can slo go to www.blyum.com for more info. Leonid does not believe in PT and OT, he is against any therapies that put premature stress on a childs body (I.E: standers, walkers) He believes it speeds up the road to deformities. His principle is simple, if your body/muscles do not have the strength to perform a task like , walking reaching, crawiling, even sitting, then the muscles must first be rehabiltitated. I welcome you to join the ABR support groups on ( there are two for Asia and the US)and write to the parents using this therapy. There are some who have been doing it far longer than I that can tell you the results they have seen. The speed at which you can see results varies from child to child, but results are measurable and achievable. this is not a "wishful" thinking kind of therapy, where you "Hope" it will work. It really does work, it just depends on your child and your dedication to doing the therapy that dictates how quickly your kid progresses. The second therapy we found that is a movement therapy is Anat Baniel Method, (www.anatbanielmetho d.com). I like it because it also has similar thinking to Leonid's which is that if you are "stressing" the body, you are not really helping it physically and in Anat's therapy, her principle is that you are not helping the childs congnitive ability to learn how to move. Her therapy is focused on finding opportuinties for the brain to make Body/ mind connections through movement. She beleives the brain has the ability to rewire itself and through movement, the mind can re-learn how to move. She has some really good information videos on U-tube, you can google her there. Her site is loaded with info. What I love is that the kids really look like they are enjoying the movement. I found that so refreshing and it really makes sense for the kids, Anat says, if you are in discomfort, (which our kids usually are if they are not moving) then your brain can only focus on the discomfort and not on the movement you are trying to get them to absorb and integrate. If you are happy/comforatble while someone is trying to teach you movements, you will most likeley retain that information. I really apprectiate her logic. I took my little one to Conductive Education, (a therapy from Hungary), and Hanna would scream for the whole two hours with her eyes shut. It was like torture for her and I would ask myself, "what could she be learning, screaming like that". When they told me "Don't worry , She'll get used to the therapy and will get better at it! " I realized what she was learning was that in order to move, she would need to deal with being constantly uncomfortable and in pain. Before we get to a point where that may end up being the case, I believe there are other, better methods to try first. The other things I do with Hanna may be therapeutic for her but they are really about us having fun. I take her to a local hospital's rehabilitation swimmimg pool. It is for people needing physical rehab from the hospital, but our doctor gave us a script and I can take her on my own for three dollars a visit. Other children have OT there so there are water toys and anything I need to play with her in the water. She has High muscle tone so the warm water is fabulous for her. Without having to deal with gravity for a while is really fun and relaxing for her so we do that a couple of times a week. She also loves to swing in my lap at the park. Both activities are actually great sensory input for her as well as fun. That's the rule in our house "Having fun". I try to make sure the atmosphere in the house in not all about "Fixing" Hanna. She seems to really appreciate that and I find her much more eager to participate and try new things now that we have stopped the OT, PT and Conductive ED. The last thing I found is the Masgutova Method, which is how I found this blog. I do not know very much about it and I am going to meet Svetlana masgutova at the end of January when she will be seeing Hanna. We decided to check it out because the Anat Baniel therapist we are seeing says it is equally as good as Anats therapy, that she likes using both of them in unison and that: if she had to choose one over the other, she couldn't. That's everything. I hope there is something of value for you in this info and wish you well in your search for better therapies for your child. . From: Tan Cheryl <peckbuay (DOT) com>CHILDRENWITHCHALLEN GESGROUPS (DOT) COMSent: Friday, December 26, 2008 2:59:56 PMSubject: [childrenwithchalle nges] (unknown) Dear ALL My son is 20.5 months old, born with severe jaundice, now kernicterus, microcephaly, blind (due to severe scarring in retina & micro-cornea) and global development delayed. At 2 months old, he was tested CMV positive. 5 months later I tested on myself, found CMV negative. Presently, he has not even roll and not to mention sitting & walking etc. Just wondering if any of you have/met any babies similar to mine? Apart from the OT & PT available at hospital, what are the other alternative treatments available? We're residing at Johor Bahru, Malaysia. I'd love to meet up with mothers of speacial needs in JB. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2009 Report Share Posted January 12, 2009 Well, for me since I am a sympathetic dominant type, I take lots of magnesium and potassium. I take Ionic Fizz Magnesium because it gets right in my bloodstream and I take double dose. Then I make sure I take 300 mg potassium divided in the day to calm and uncramp my body. It may not be the same for a Parasympathetic type because magnesium acidifies their system. They tend to need lots of calcium. My husband and four children are Parasympathetics and that was tested in our home.... Johanne From: son Sent: Sunday, January 11, 2009 7:07 PM Subject: [ ] (unknown) Johanne, " Just make sure you take care of the cramping " . How do you do that? What do you do to take care of it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2009 Report Share Posted January 12, 2009 I also am grateful that you took the time to share your information, and await word about ’s response to Svetlana’s work. Peace, Joni From: [mailto: ] On Behalf Of Sent: Monday, January 12, 2009 10:24 AM Subject: Re: (unknown) Dear , Thank you for your wonderful summaries. I look forward to your response about MMRI approach when you have the opportunity after working with Svetlana. Regards, From: Simko <christinasimko@...> Sent: Sunday, January 11, 2009 3:33:11 PM Subject: Re: (unknown) Dear Tan,and other mothers, I have a daughter that is 17 months with spastic quadriplegic CP. She also is not rolling, or crawling. We are lucky her cognition is not impaired . We have spent the first year of her life doing the standard Physical Therapy (PT), Occupational Therapy (OT) routine at a local hospital. I found their methods were well intentioned , however, it felt like they were addressing a shark wound with a band aid and I my instincts kept telling me there has to be MORE that can be done. I really felt like we were losing time. There are a couple of therapies that we started doing this past year that may help your son. I researched these methods at length before trying them and after exhausting all the conventional methods. I have not found any other methods as progressive as these. I am hoping this may spare any parent some valuable time, should they be relevant to their children. The first is ABR, Advanced Bio-mechanical Rehabilitation, it is a therapy that invloves rehabilitating the soft muscles of the body. The therapy is passive (requires no action on the part of your child, except to be still) while the parents are trained to apply the therapy on them. I wil tell you that it is time consuming, however, there is nothing that produces the results this therapy does, It will actually change the shape of your childs body over time (for the better) and help restore the much needed muscle tone their organs and soft tissue need to hold themselves up. The inventor is Leonid Blyum and I believe most families from the pines go to the Singapore location. You can find them at www.miraclekidz. com, you can slo go to www.blyum.com for more info. Leonid does not believe in PT and OT, he is against any therapies that put premature stress on a childs body (I.E: standers, walkers) He believes it speeds up the road to deformities. His principle is simple, if your body/muscles do not have the strength to perform a task like , walking reaching, crawiling, even sitting, then the muscles must first be rehabiltitated. I welcome you to join the ABR support groups on ( there are two for Asia and the US)and write to the parents using this therapy. There are some who have been doing it far longer than I that can tell you the results they have seen. The speed at which you can see results varies from child to child, but results are measurable and achievable. this is not a " wishful " thinking kind of therapy, where you " Hope " it will work. It really does work, it just depends on your child and your dedication to doing the therapy that dictates how quickly your kid progresses. The second therapy we found that is a movement therapy is Anat Baniel Method, (www.anatbanielmetho d.com). I like it because it also has similar thinking to Leonid's which is that if you are " stressing " the body, you are not really helping it physically and in Anat's therapy, her principle is that you are not helping the childs congnitive ability to learn how to move. Her therapy is focused on finding opportuinties for the brain to make Body/ mind connections through movement. She beleives the brain has the ability to rewire itself and through movement, the mind can re-learn how to move. She has some really good information videos on U-tube, you can google her there. Her site is loaded with info. What I love is that the kids really look like they are enjoying the movement. I found that so refreshing and it really makes sense for the kids, Anat says, if you are in discomfort, (which our kids usually are if they are not moving) then your brain can only focus on the discomfort and not on the movement you are trying to get them to absorb and integrate. If you are happy/comforatble while someone is trying to teach you movements, you will most likeley retain that information. I really apprectiate her logic. I took my little one to Conductive Education, (a therapy from Hungary), and Hanna would scream for the whole two hours with her eyes shut. It was like torture for her and I would ask myself, " what could she be learning, screaming like that " . When they told me " Don't worry , She'll get used to the therapy and will get better at it! " I realized what she was learning was that in order to move, she would need to deal with being constantly uncomfortable and in pain. Before we get to a point where that may end up being the case, I believe there are other, better methods to try first. The other things I do with Hanna may be therapeutic for her but they are really about us having fun. I take her to a local hospital's rehabilitation swimmimg pool. It is for people needing physical rehab from the hospital, but our doctor gave us a script and I can take her on my own for three dollars a visit. Other children have OT there so there are water toys and anything I need to play with her in the water. She has High muscle tone so the warm water is fabulous for her. Without having to deal with gravity for a while is really fun and relaxing for her so we do that a couple of times a week. She also loves to swing in my lap at the park. Both activities are actually great sensory input for her as well as fun. That's the rule in our house " Having fun " . I try to make sure the atmosphere in the house in not all about " Fixing " Hanna. She seems to really appreciate that and I find her much more eager to participate and try new things now that we have stopped the OT, PT and Conductive ED. The last thing I found is the Masgutova Method, which is how I found this blog. I do not know very much about it and I am going to meet Svetlana masgutova at the end of January when she will be seeing Hanna. We decided to check it out because the Anat Baniel therapist we are seeing says it is equally as good as Anats therapy, that she likes using both of them in unison and that: if she had to choose one over the other, she couldn't. That's everything. I hope there is something of value for you in this info and wish you well in your search for better therapies for your child. . From: Tan Cheryl <peckbuay (DOT) com> CHILDRENWITHCHALLEN GESGROUPS (DOT) COM Sent: Friday, December 26, 2008 2:59:56 PM Subject: [childrenwithchalle nges] (unknown) Dear ALL My son is 20.5 months old, born with severe jaundice, now kernicterus, microcephaly, blind (due to severe scarring in retina & micro-cornea) and global development delayed. At 2 months old, he was tested CMV positive. 5 months later I tested on myself, found CMV negative. Presently, he has not even roll and not to mention sitting & walking etc. Just wondering if any of you have/met any babies similar to mine? Apart from the OT & PT available at hospital, what are the other alternative treatments available? We're residing at Johor Bahru, Malaysia. I'd love to meet up with mothers of speacial needs in JB. --- Get FREE High Speed Internet from USFamily.Net! --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2009 Report Share Posted January 12, 2009 Hi, and welcome to this group, I watched a video of Dr. Bihary about LDN and RA, where he said that RA is one of the diseases responding very well on LDN. read more about ldn here: www.ldninfo.org If I were you I wouldn't wait using this medicine cause LDN is only at 4.5 mg and is considered a tiny, weak pill with minor side effects. If you get only one of the side effects you will have it for 7 - 10 days. There is no other pills, not even a pill for head ache that is giving so few and mild side effects as LDN. So, as they use to say: it's a no brainer. I am not sure what kind of lung disease one gets by having RA. Is it considered systemic? Does it make scars on the lungs? I have read in here that are having diseases like PCOS, Endometriosis, Sarcodiosis and other like these often benefits from LDN. I am not a doctor or a health worker so if your husband and you decides to try LDN, it's your choise, I am using LDN my self with great results, I have Crohns disease which is an auto immune disease as well. What LDN does is increasing the endorphins and by that letting the immune system work in the way it used to do when we were well. The immune system is directed by more endorphins to be more balanced, so that the cells are working to reduce the enemies instead of working to attach the body. LDN blocks your own endorphin production between some hours during the night, therefor you have to take your LDN after 9pm each night. By blocking the endorphin production for some hours, the body is tricked to believe there is no more endorphines, the body then sends some commands to produce more endorphins. We who have auto immune diseases need normal endorphin levels. LDN tells the body by this blocking to balance the immune system and produce more. Trials have shown that we get up to 3 times more after one LDN pill. No wonder we feel so well after such a short try. Sometimes we can see changes within a few days! Since you have had RA for so long, I am sure you know all about nutrition. Having an auto immune disease is depending on being good on specific diets. Having auto immune diseases is knowing there is no cure. So: good diets, LDN, no stress and enough sleep..:-) All the best,Ingrid From: Delore Hairr <dhairr@...>low dose naltrexone Sent: Monday, January 12, 2009 7:04:15 PMSubject: [low dose naltrexone] (unknown) I would be interested in joining a Rheumatiod Arthritis group that is taking LDN. Also my financee has intestitial lung disease as a result of the RA, or so that is what we have been told. Is there anyone out there who has any knowledge of this disease. Thanks/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2009 Report Share Posted January 12, 2009 > > Hi, and welcome to this group, > I watched a video of Dr. Bihary about LDN and RA, where he said that RA is one of the diseases responding very well on LDN. > read more about ldn here: > www.ldninfo.org > If I were you I wouldn't wait using this medicine cause LDN is only at 4.5 mg and is considered a tiny, weak pill with minor side effects. If you get only one of the side effects you will have it for 7 - 10 days. There is no other pills, not even a pill for head ache that is giving so few and mild side effects as LDN. So, as they use to say: it's a no brainer. I am not sure what kind of lung disease one gets by having RA. Is it considered systemic? Does it make scars on the lungs? > I have read in here that are having diseases like PCOS, Endometriosis, Sarcodiosis and other like these often benefits from LDN. > I am not a doctor or a health worker so if your husband and you decides to try LDN, it's your choise, I am using LDN my self with great results, I have Crohns disease which is an auto immune disease as well. > What LDN does is increasing the endorphins and by that letting the immune system work in the way it used to do when we were well. The immune system is directed by more endorphins to be more balanced, so that the cells are working to reduce the enemies instead of working to attach the body. LDN blocks your own endorphin production between some hours during the night, therefor you have to take your LDN after 9pm each night. By blocking the endorphin production for some hours, the body is tricked to believe there is no more endorphines, the body then sends some commands to produce more endorphins. We who have auto immune diseases need normal endorphin levels. LDN tells the body by this blocking to balance the immune system and produce more. Trials have shown that we get up to 3 times more after one LDN pill. No wonder we feel so well after such a short try. Sometimes we can see changes within a few days! > > Since you have had RA for so long, I am sure you know all about nutrition. Having an auto immune disease is depending on being good on specific diets. Having auto immune diseases is knowing there is no cure. So: good diets, LDN, no stress and enough sleep..:-) > All the best, > Ingrid > Great Email Ingrid One question..are you Art and Aletha moderators?? >Marla:) > > > ________________________________ > From: Delore Hairr <dhairr@...> > low dose naltrexone > Sent: Monday, January 12, 2009 7:04:15 PM > Subject: [low dose naltrexone] (unknown) > > > I would be interested in joining a Rheumatiod Arthritis group that is taking LDN. Also my financee has intestitial lung disease as a result of the RA, or so that is what we have been told. Is there anyone out there who has any knowledge of this disease. Thanks/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 You wrote: > Great Email Ingrid One question..are you Art and Aletha moderators??>Marla:) > I answer: huh??? Ingrid From: mtlcute <mtlcute@...>low dose naltrexone Sent: Monday, January 12, 2009 10:47:58 PMSubject: [low dose naltrexone] Re: (unknown)>> Hi, and welcome to this group,> I watched a video of Dr. Bihary about LDN and RA, where he said that RA is one of the diseases responding very well on LDN. > read more about ldn here:> www.ldninfo.org> If I were you I wouldn't wait using this medicine cause LDN is only at 4.5 mg and is considered a tiny, weak pill with minor side effects. If you get only one of the side effects you will have it for 7 - 10 days. There is no other pills, not even a pill for head ache that is giving so few and mild side effects as LDN. So, as they use to say: it's a no brainer. I am not sure what kind of lung disease one gets by having RA. Is it considered systemic? Does it make scars on the lungs? > I have read in here that are having diseases like PCOS, Endometriosis, Sarcodiosis and other like these often benefits from LDN. > I am not a doctor or a health worker so if your husband and you decides to try LDN, it's your choise, I am using LDN my self with great results, I have Crohns disease which is an auto immune disease as well. > What LDN does is increasing the endorphins and by that letting the immune system work in the way it used to do when we were well. The immune system is directed by more endorphins to be more balanced, so that the cells are working to reduce the enemies instead of working to attach the body. LDN blocks your own endorphin production between some hours during the night, therefor you have to take your LDN after 9pm each night. By blocking the endorphin production for some hours, the body is tricked to believe there is no more endorphines, the body then sends some commands to produce more endorphins. We who have auto immune diseases need normal endorphin levels. LDN tells the body by this blocking to balance the immune system and produce more. Trials have shown that we get up to 3 times more after one LDN pill. No wonder we feel so well after such a short try. Sometimes we can see changes within a few days!> > Since you have had RA for so long, I am sure you know all about nutrition. Having an auto immune disease is depending on being good on specific diets. Having auto immune diseases is knowing there is no cure. So: good diets, LDN, no stress and enough sleep..:-)> All the best,> Ingrid > Great Email Ingrid One question..are you Art and Aletha moderators??>Marla:) > > > ________________________________> From: Delore Hairr <dhairr@...>> low dose naltrexone > Sent: Monday, January 12, 2009 7:04:15 PM> Subject: [low dose naltrexone] (unknown)> > > I would be interested in joining a Rheumatiod Arthritis group that is taking LDN. Also my financee has intestitial lung disease as a result of the RA, or so that is what we have been told. Is there anyone out there who has any knowledge of this disease. Thanks/>------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 I'm not a moderator. Just some " lay person " who's afflicted with multiple sclerosis and uses LDN. Art --- > > Great Email Ingrid One question..are you Art and Aletha moderators?? > >Marla:) > > > I answer: > huh??? > Ingrid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009  www.toothsoap.com Steph (unknown) Hi my son has a badly chipped tooth, can anyone tell me where to get the tooth soap that is being discussed?Thanks. Quote Link to comment Share on other sites More sharing options...
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