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From: " Snakecharmer " <snakecharmer_s@...>

< >

Sent: Saturday, September 29, 2001 9:29 AM

Subject: [ ] (unknown)

> This says it all. Please reread.

>

>

> CONCLUSIONS: In this cohort, although many patients

> reported increases in symptoms and/or increased difficulties with

> typical daily activities between 1 and 11 years after diagnosis of

> Lyme disease, the frequencies of these reports were similar to the

> frequencies of such reports among age-matched controls without Lyme

> disease.

>

What a load of crap, eh? I'm 32 and some days I can hardly drag my butt out

of bed. I don't know any other 32 year olds like that! Good thing too.

mmx :)

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..

>

>

> This is pure, 100%, total, complete BULL CORN!!! All any person with any

> common sense has to do is sit in a waiting room with others that have Lyme

> and see how they act and hear their stories.

I agree 100%

> JAMA is a peer reveiwed

> publication, this means that if the peer group doesnt like what you say,

> you're out.

That's not exactly true. " Peer review " means they check if the science is

reasonable and if the paper is well written. The peers/publishers

specificaly do not judge content or conclusions.

mmx :)

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wrote:

> > JAMA is a peer reveiwed

> > publication, this means that if the peer group doesnt like what

you say,

> > you're out.

>

mmx wrote:

> That's not exactly true. " Peer review " means they check if the

science is

> reasonable and if the paper is well written. The peers/publishers

> specificaly do not judge content or conclusions.

>

> mmx :)

MMX,

Bologna! Politics is very much alive and well among

publishers/peer reviewers. How else can you explain NEJM's bizarre

need to release results of Steere's studies on long-term treatment of

antibiotics AN ENTIRE MONTH EARLY, with much hoopla and media

exposure, conveniently timed just before major activism by the Lyme

community? Studies which are seriously flawed with totally illogical

conclusions, and which infuriate me that they would assume " the world "

is too dumb to see their faulty reasoning, flawed design, etc. And I

suppose you would call it " coincidental " that the rebutal to those

studies, in the form of a letter to the editor of NEJM, was rejected

for publication?

I'm a little leary of anything that someone who signs their posts

as " Mysterious Mr. X " from his " Unabomber-style cabin in the woods "

has to say. Especially after you bored us all to death with you

incessant arguing with another member of this list over an issue that

has NO right or wrong to it. And the fact that you honestly believe

there is NO judgement as to content or conclusion cast by peer

reviewers on articles submitted tells me you have NO IDEA what you are

talking about.

NurseDeb

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> MMX,

>

> Bologna! Politics is very much alive and well among

> publishers/peer reviewers. How else can you explain NEJM's bizarre

> need to release results of Steere's studies on long-term treatment of

> antibiotics AN ENTIRE MONTH EARLY, with much hoopla and media

> exposure, conveniently timed just before major activism by the Lyme

> community?

I have no knowledge of this particular incident. I'm just stating they way

they are supposed to work.

> Studies which are seriously flawed with totally illogical

> conclusions, and which infuriate me that they would assume " the world "

> is too dumb to see their faulty reasoning, flawed design, etc.

Guess you're a whole bunch smarter than them silly scientist then ,eh?

> I'm a little leary of anything that someone who signs their posts as

" Mysterious Mr. X " from his " Unabomber-style cabin >> in the woods " has to

say.

Funny isn't it? I dropped the unabomber reference tho, does not seem so

funny after all that has happened with terrorist and all. I think

" Mysterious Mr. X " has about as much meaning as " NurseDeb " .

> Especially after you bored us all to death with you

> incessant arguing with another member of this list over an issue that

> has NO right or wrong to it.

I thought these lists were about the free exchange of ideas? Nothing wrong

with debate. Matter of fact, and I had a very nice conversation off

list. I respect him for expressing his opinions in a rationl way, even tho I

do not agree with everything he has to say. Too bad you missed it.

> And the fact that you honestly believe

> there is NO judgement as to content or conclusion cast by peer

> reviewers on articles submitted tells me you have NO IDEA what you are

> talking about.

>

> NurseDeb

Once again, I simply defined the idea behind " peer review " . Clearly, you are

not farmiliar with the process of getting a paper published. In many cases

the reviewers are anonymous. In other cases you may know who the reviewers

are, but you have no idea who the specific reviewer of your paper will be.

Additionally, there are thousands of publication and hundreds of thousands

of researchers, the chances of getting someone you know to review your paper

is rather slim. You can't exert political influence over people you don't

know. Of course, human nature can always effect the outcome, no doubt

politics do play a part in some instances.

In the future, I hope you can refrain from nasty personal attacks.

Peace,

mmr :)

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In a message dated 09/29/2001 3:50:10 PM Eastern Daylight Time,

dmthompson4@... writes:

>

> I'm a little leary of anything that someone who signs their posts

> as " Mysterious Mr. X " from his " Unabomber-style cabin in the woods "

>

Yes ditto, what is the meaning of all this anyway?

G Jody G

O May you have enough happiness to make you sweet,

enough trials to make you strong,

enough sorrow to keep you human,

enough hope to make you happy. O

' <A HREF= " http://hometown.aol.com/tarabencaitysmom/index.html " >Jeff & Jody's

Family</A> '

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> > I'm a little leary of anything that someone who signs their posts

> > as " Mysterious Mr. X " from his " Unabomber-style cabin in the woods "

> >

>

> Yes ditto, what is the meaning of all this anyway?

Why don't you use your full name? There's your answer.

mmx :)

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> I'm a little leary of anything that someone who signs their posts

> > > as " Mysterious Mr. X " from his " Unabomber-style cabin in the woods "

> > >

> >

> > Yes ditto, what is the meaning of all this anyway?

>

> Why don't you use your full name? There's your answer.

MMX, I dont think its the annonymity that puts people off, but the

connotation that " Unabomber-style cabin in the woods " brings with it.

Afterall, the Unabomber is kinda a Pyschopath in alot of peoples mind.

*Metzler Chocolates*

" A Day without Chocolate,

is like a Day without the Sun "

http://www.lymesite.com/LLMD%20Fundraisers%20Too.htm

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,

I have used that one. It was on sale LOL. My husband thinks that is a womans

favorite word. I have been tryting to get some painting done. Can't seem to get

my mind focused. I think I have been off my meds. to long. I haven't been on

antibioticsin months.

Sheryl

--

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>

> MMX, I dont think its the annonymity that puts people off, but the

> connotation that " Unabomber-style cabin in the woods " brings with it.

> Afterall, the Unabomber is kinda a Pyschopath in alot of peoples mind.

Once again, I dropped the Unabomber reference after 9-11. And anyhow... it's

my *cabin* that is " Unabomber-style " . My friends have often joked that my

vaction house looks like the Unabomber cabin..which it does.

mmx :)

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In a message dated 10/01/2001 8:53:42 AM Eastern Daylight Time, rod@...

writes:

>

> > Why don't you use your full name? There's your answer.

>

> MMX, I dont think its the annonymity that puts people off, but the

> connotation that " Unabomber-style cabin in the woods " brings with it.

> Afterall, the Unabomber is kinda a Pyschopath in alot of peoples mind.

>

Yes exactly, and I use my name, pretty straightforward " Jody "

LOl. I was just wondering :)

G Jody G

O May you have enough happiness to make you sweet,

enough trials to make you strong,

enough sorrow to keep you human,

enough hope to make you happy. O

' <A HREF= " http://hometown.aol.com/tarabencaitysmom/index.html " >Jeff & Jody's

Family</A> '

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In a message dated 10/01/2001 8:21:37 AM Eastern Daylight Time,

imachemist@... writes:

>

> Why don't you use your full name? There's your answer.

>

Because I don't anyone cyber stalking me LOL. That has nothing to do with

your unabomber quote though :)

G Jody G

O May you have enough happiness to make you sweet,

enough trials to make you strong,

enough sorrow to keep you human,

enough hope to make you happy. O

' <A HREF= " http://hometown.aol.com/tarabencaitysmom/index.html " >Jeff & Jody's

Family</A> '

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I went to chiropractor a few years back. I was told it wasn't good to go to one

because of how weak the vertebraes are on the spinal cords of little people.

I'll tell you this, I went there with spasms in my back, and lower back pain.

The muscles in my back were all tight and out of whack. Every appointment, I

had currents going through my back and an adjustment. I stopped going because

there was a time, during an adjustment, that it was painful. I was afraid, so I

ended my appointments. I did feel better though. I do get the occasional back

spasms every now and again, but the pain has subsided.

I guess it all depends on how you feel your condition is now. If you're having

problems with your spine now, I wouldn't go. There's a good chance the

adjustments could make it worse. If it's a muscle problem, I would give it a go

for a few appointments. It helped me.

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>Hello everyone Once again

>

> I know I keep writing the Lsit with questions.But I was

>just wondering ifIt would be ok to go see a chiropractor and Maybe get an

>adjustment..maybe it will loosen me up a bit.Or maybe that would be a wrong

>move for..has anyone ever went to a chiropractor.I am achondroplasia Im just

>looking for any relief until I go see the Doc..thanks everyone .I really

>appreciate everyones info...kristie

Kristie --

Do you (or anyone else) know how to reach Jimmy Loyless? He used to

live in the Boston area, but moved to Georgia a few years ago. I

remember his speaking at a regional convention about visiting a

chiropractor. Experts strongly recommend against anyone with

achondroplasia having chiropractic treatment, but Jimmy said that it

definitely worked for him. If you can track him down, you should try

to talk with him. The last I know, he worked in a very high position

for the Federal Reserve.

===========================================================

Dan Kennedy

Internet services coordinator

Little People of America, Inc.

http://www.lpaonline.org

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Dan & Kristie --

I know that Laurie Benz from Chicago has also had good results with a

chiropractor so there's another name that could be helpful.

I, myself, remain doubtful. This is not to say it won't work. Just

means I'm too much of a chicken to risk it and check it out.

Pass the grain --

Rose

============

Kristie --

Do you (or anyone else) know how to reach Jimmy Loyless? He used to

live in the Boston area, but moved to Georgia a few years ago. I

remember his speaking at a regional convention about visiting a

chiropractor. Experts strongly recommend against anyone with

achondroplasia having chiropractic treatment, but Jimmy said that it

definitely worked for him. If you can track him down, you should try

to talk with him. The last I know, he worked in a very high position

for the Federal Reserve.

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--- Rodney & <rod@...> wrote:

>

>

> > Go shopping, have fun and a day to your self.

>

>

>

> Heheheheeeeee its grocery shopping and I have been

> trying to feel well

> enough to do it for the last week. *-) Its the

> only time ( other than LLMD

> trip ) that I get out of the house for any length of

> time. Wonder if

> Gordons/Zales has any good sales? LOLOLOL Could

> alays tell hubby 'but it

> was on sale!!'

>

>

__________________________________________________

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All I can say Beth is WTG!

<<Oh, well. In the end, I

told the teachers that it was no problem, because they would never

get near my son again, and I'd check into their sped contract with

our school system to be sure no other students are being treated this

way.

I then informed the school system that he was enrolled in another

inclusive preschool, and whether they agreed to it or not, he was

going there. He's been there before. They said that he couldn't,

because this school's roster was full, with a waiting list. I

laughed. I said, well,he was there this morning. They made room for

him, and how they did it will remain confidential. SO, the school

director of special education got all lovey with me and said I don't

have to fight them, they are on my side, whatever. I said I'd see

them next month to get started on getting him set up for

kindergarten. Ha!>>

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All I can say Beth is WTG!

<<Oh, well. In the end, I

told the teachers that it was no problem, because they would never

get near my son again, and I'd check into their sped contract with

our school system to be sure no other students are being treated this

way.

I then informed the school system that he was enrolled in another

inclusive preschool, and whether they agreed to it or not, he was

going there. He's been there before. They said that he couldn't,

because this school's roster was full, with a waiting list. I

laughed. I said, well,he was there this morning. They made room for

him, and how they did it will remain confidential. SO, the school

director of special education got all lovey with me and said I don't

have to fight them, they are on my side, whatever. I said I'd see

them next month to get started on getting him set up for

kindergarten. Ha!>>

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What happened ??

Are you OK??

Kathy

(unknown)

I just delated every message from this weekend. I

didn't read the messages that I delated. I've been in

the hospital yesteday for a few hours. So pray for me

that everything is going to be fine.

=====

My turn to learn is an invaluable guide for parents and professional who share

their lives with a child with special needs.

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In a message dated 10/7/01 1:46:35 PM Pacific Daylight Time,

Strider3@... writes:

<< I just delated every message from this weekend. I

didn't read the messages that I delated. I've been in

the hospital yesteday for a few hours. So pray for me

that everything is going to be fine.

>>

Prayers . Hope whatever the problem is, it works out okay.

Gail

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In a message dated 10/9/01 9:54:53 PM Pacific Daylight Time,

Strider3@... writes:

<< Hi,

I hope that everyone is having a good week, and thanks for your

prayers, etc. though my overdose on Saturday. I'll be getting help starting

on Monday, so I'll be fine. Thanks y'all for being here.

From,

>>

Glad to hear things are okay .

Gail :-)

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>>One of the other members from this list tried that. Gave up all her herbs and

went back to a normal diet and it worked for her (Betsy I think was her name).

<<

Hello Barbinohio, It was me, Betsy, and I used to live in Ohio, too.

Over the past several years a I've taken enzymes, acidophilus, psyllium, colon

cleanse remedy, triphala, olive oil extract, flax seed oil, pumpkin seed oil,

etc to combat constipation. I also quit eating bread 3 or 4 years ago.

About 4 weeks ago I underwent a personal experiment and gave up ALL the

supplements and resumed eating bread. What I learned was humbling. I thought

I needed all these supplements, but it turns out that the need may have been

mostly in my mind. The constipation is about the same whether or not I take

herbal remedies. It may even be better without the remedies. If I rotate food,

go easy on the cheese, eat small amounts every 2-3 hours, chew thoroughly,

exercise and drink plenty of fluids all systems are moving pretty well.

Relaxing and not worrying about it has been the best remedy I've ever taken!!!

I feel empathy towards Robin. It is discouraging to solidly believe something

and then learn that it may not be true. It is such a paradox---being

disappointed at what would normally be considered good news. Sometimes we

arrive at the point where we want a worm diagnosis as a way of having something

on which to blame the symptoms.

The three main causes of suffering ...

1. loosing what you want

2. wanting something and not having it

3. getting what you want and finding out it does not make you a happy

Betsy

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In a message dated 10/10/01 12:55:19 AM Eastern Daylight Time,

Strider3@... writes:

> I hope that everyone is having a good week, and thanks for your prayers,

> etc. though my overdose on Saturday. I'll be getting help starting on

> Monday, so I'll be fine. Thanks y'all for being here.

>

> From,

>

>

>

WE're thinking of you . You be careful, ok????? Pay attention to

your body and your mind, and you'll be ok!!!!!! We're always here to listen.

{{{{{{{{{{{{{hugs}}}}}}}}}}}}}}}

Donna

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hi

yes, i think its right but i dont remember where i read it.

carrots is not good for liver.

its all i know

irene nielsen

(unknown)

Does research show another reason 'Os' and maybe others too should

avoid carrots, potatoes, turnips, parsnips and beets.

Vegie Link to Diabetes

By ANNA PATTY Health Reporter

09oct01

IT IS the excuse children have been waiting for -

now research has proved vegetables are not always

good for growing bodies.

In fact, eating vegetables may trigger type 1

(insulin-dependent) diabetes.

In a world-first discovery, Australian scientists

have found a link between a toxin found in some

vegetables and diabetes in children.

The cause of type 1 diabetes, which affects an

estimated 150,000 Australians as opposed to

lifestyle-linked type 2 diabetes, which affects

about 900,000)is unknown.

The research provides the best clue to date to an

environmental trigger for the disease.

Researchers at Monash University and the

International Diabetes Institute in

Melbourne have shown that contaminated vegetables

can damage insulin-producing cells in the pancreas

and cause type 1 diabetes in mice.

Professor Zimmet and his team of researchers

are the first to discover a link between a common

food source and type 1 diabetes.

The research, published in Diabetologia, found

that a microbe, streptomyces, found in soil can

infect vegetables such as carrots, potatoes,

turnips, parsnips and beets.

It produces a toxic chemical called bafilomycin

which can damage the pancreas.

Professor Zimmet said the toxin spread through

vegetables via tentacle- like growths.

People with a genetic predisposition to type

1 diabetes were the only ones at risk of pancreas

damage from the toxin.

" The toxin is not dangerous to most people, "

Professor Zimmet said.

" It would be sensible for people at genetic risk

of type 1 diabetes, which can be shown through a

blood test, to choose very fresh fruit and

vegetables. "

Professor Zimmet said the research findings raised

the possibility for the eventual development of a

vaccine to prevent Type 1 diabetes.

The Monash researchers will now investigate the

impact of the toxin on humans.

Despite having a family history of diabetes,

Leung of Glebe said the research would not prevent

her feeding vegetables to her baby son Harvey.

" This research would be of concern to me, but it =

wouldn't stop me feeding him vegetables, " she

said.

" I imagine there would only be a problem if you

were eating excessive amounts. "

Diabetes Australia executive director Conway

said he welcomed the research but warned that it

often took a long time before such findings can be

translated into real benefits for patients.

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Hiya Betsy,

Glad to hear you're still doing good. Hadn't heard anything more from

you since you posted that you took your husband's challenge. I

responded to that post with information over rotating food but didn't

hear anything back. I do much better when I relax and rotate my food.

I hope Robin tries the same thing. I strongly believe that no matter

what you have in your intestines..be it worms, parasites or

candida...it can't survive if you eat healthy and keep your bowels

healthy by relaxing with promotes more blood flow to them.

I don't live in Ohio anymore..I live in Holland. Arent you the one

who lives in Greece? I think those of us who live in Europe are so

much better off as far as diet goes. I mean the gourmet type breads

that you find in the US are the norm here and the diets are rich in

fresh fruits, vegetables and healthy oils.

Make sure you keep us posted on how you progress,

Barbara

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