[Guest guest]

Watch what you say =)

[Guest guest]

i went to a new chiro today, because i changed my insurance plan. i brought

the results from my bone scan and mri and my failure letter to get me on

enbrel, he took x-rays and examined me. i am all out of place. (duh, thats

why i went!!) he won't do any adjustments until he and the dr on staff

examine my x-rays. but he asked me if anyone ever mentioned fibromyalgia to

me. that's the 2nd dr that has said that to me since december. i was really

in a fog today. i called it a codene fog because i took some yesterday.

kathy

[Guest guest]

Dear :

Hi, thanks for the email. I am doing okay. I should get the results from

the test today or tomorrow. I am trying not to worry. I am trying to keep

busy.

Hope you are doing okay.

I spoke to my sister-in-law last night and she sounds good. She didn't start

her medication yet but she is to go to the Doctor tomorrow.

Love,

PS: I will email as soon as I get the results.

[Guest guest]

Dear :

I am glad things are okay with you. I understand your concern for your son

even though I have no children. I worry about my cats as though they were my

children.

I was just talking to June, (IM), she sounds good. I have mentioned to her

about joining the group but she was having a lot of trouble with her

computer. Yesterday she got a new computer so she is having a ball with it.

It is very fast, and she is really enjoying it. Maybe now she might want to

join our group. I will ask her again.

Have a good day.

Love,

[Guest guest]

Thanks, . Things are fine over here. My son, , has been in

Washington, DC for a class trip and I'm anxious for him to come back (it's

only been since the wee hours of Saturday morning, too!).

Keeping busy really works sometimes. I'm glad you are OK. Worry can be a

terrible stress. I hope your father is doing well.

I'm glad that June sounds good. Please wish her good luck from me and keep

us posted on how she is doing. If she ever wants to join our group, she is

most welcome.

Love back to you,

----- Original Message -----

From: <ANJILLAH@...>

< >

Sent: Monday, February 19, 2001 9:39 AM

Subject: Re: [ ]

> Dear :

> Hi, thanks for the email. I am doing okay. I should get the results from

> the test today or tomorrow. I am trying not to worry. I am trying to

keep

> busy.

> Hope you are doing okay.

> I spoke to my sister-in-law last night and she sounds good. She didn't

start

> her medication yet but she is to go to the Doctor tomorrow.

> Love,

> PS: I will email as soon as I get the results.

[Guest guest]

Delaine: Read your post and I am presently trying to lose weight through a

First Place Program which recommends deleting all sugars, especially soft

drinks but it does recommend having carbs because they keep the body fuel

working and then you don't burn the protein you eat . The right combination

of meat, fruit, bread, milk vegs and even fat is needed to keep your

metabolism going.

Jan

[Guest guest]

Delaney, what do you eat? Shirley in Wyoming. Please reply

[Guest guest]

i also had growing pains

kathy

[Guest guest]

Hi Delaine,

My father would get pneumonia each year when it was time to go into the

alfafa fields and bale the hay. I had terrific allergies too. I had

terrific " growing pains " . Odd that my brothers who grew faster and taller

did not have growing pains.

What type of diet helps you to stay RA pain free?

Thanks for writing,

Patsy

-----Original Message-----

From: Jim & Delaine Lowry [mailto:keywest@...]

Sent: Tuesday, February 20, 2001 8:47 PM

Subject: [ ]

Patsy,

When I first got RA at the age of 45, I didn't really

know a lot about the history of my grandparents, etc.

Now, I know that my mother's dad had arthritis so

badly that he would cry a lot. Then, my mother

had growing pains a lot and has had something

auto-immune with her for her whole life.

A lot of my aunts and uncles have hayfever.

I'm wondering if autoimmune problems have

something to do with yeast and B vitamins and

mercury.

My grandfather that had the arthritis died with

Alzheimer's. Althimers patients are known to have

a lot of mercury in their bodies. And if one can't

get rid of yeast, it could be because of too much

mercury in the body.

I am working to get the yeast out of my body and

it is really tough as I think I've had it in my body

for my entire life. I'm going to have a mercury test

done very soon to see if I have too much mercury

in my body.

I've done a lot of reading to get this far in my findings

and I know that I have no pain with my RA if I follow

a diet to get rid of yeast. So, for me, yeast is a big

problem.

Delaine

[Guest guest]

,

You wouldn't happen to be a Scorpio, would? I'm a very stubborn Scorpio and

if I want to do something, I DO IT! =) I hope you are feeling better!

~Rainy Sue

----- Original Message -----

> Not much keeps me down- maybe it should some time but my

> " will " - very stubborn - usually wins out. Thanks for

> your concern.

>

>

[Guest guest]

Nope. Actually a Taurus. I will be 47 on April 29. Thanks

for your concern. I am working out the stiffness and

soreness in my back and I'm sure I will feel as okay as

any of us ever do.

[Guest guest]

good luck judy!!!

kathy

[Guest guest]

Dear Friends:

Sorry I haven't been writing too much. I am trying to keep up with reading

all of the current mail though. It just amazes me that these Doctors won't

prescribe pain meds. They call themselves Rheumatologists! What do they

expect you to do? I pray that all of you who are in pain can find Doctors

that really care. God even the government said that no one in a hospital

should be in pain. That is a big issue today in hospitals. Pain is supposed

to be addressed on a daily basis now, when one is a patient in a hospital.

Where are these Doctors at? The Dark Ages! I just can't believe all of

this! I want to see what they would do if they get Arthritis! All I can do

is pray that you all find someone who cares enough to keep you out of pain.

Maybe if we did a march on Washington DC and involved the government, then

maybe these Doctors would be made to do what they should. I would definitely

support that.

I thank God I have such a wonderful Doctor and I pray you all find someone

like him.

My prayers are with you. Better days have to be coming soon.

Sincerely, Colletti

Anjillah@...

[Guest guest]

Dear ,

Thanks for the words of encouragement. Yes, I take Metoclopram for my ITBS(as

needed), Cyclobenzaprine for the fibro as well as Hydrocodone and Lorazepam

for both pain. Sound like a drugstore? Looks like one too. The Lorazepam

has been fairly successful with Migraines. I have also had some luck with

plain ole Excedrin

Migraine. Occasionally the world has to stop and let me off for a migraine

when nothing but cool, dark, quiet will do. Cyclobenzaprine helps with the

restless leg problem and helps me to sleep at times. I do have a great Doc.

He is so kind and has been very understanding about my refusal to take

predinosone. I had it a few years back for the hives I experienced and never

have been able to lose all of the extra weight it gifted me with. I hate it,

like the others! I love this group! It has been a true spirit lifter. Thank

you!

[Guest guest]

,

Glad to hear from you again. I have been concerned about you since your

accident. I'm sure the flare is to be expected and hope it is over soon.

My pharmacist has RA and takes antibiotic therapy. He is a strong believer

in it. He told me of a study that was done in Europe with patients who had

RA for two years or less and were given antibiotic treatment. An

unbelievable 85% went into remission. The figure the 15% that did not go

into remission had actually had RA for over two years or it was not really

RA that they had. In my opinion, Dave is fortunate to have a doctor willing

to start the antibiotic therapy because if it is going to work for him -

this is the best time to do it. Remind him to eat Yogurt because men can

get yeast infections too from the antibiotics.

When I had surgery last summer, I went into a terrible RA flare and we had

trouble getting it in control again. We are not thinking that my pneumonia

may have been a blessing in disguise because so far I have not gone into a

post op flare - we suspect the IV antibiotics may have prevented. While I

was in the hospital, my shoulders started to flare and they used ice

treatments in PT. I have not had any problems with flaring since then. It

may be a coincidence but I think I will request IV antibiotics in the

future after surgery.

Hope you have a good week.

Pat

[Guest guest]

,

I am glad you found are group and are getting the lift you need. We all

need that at times. We all sound like a drugstore when we start listing off

our meds.

Pat

At 02:32 AM 03/18/2001 -0500, you wrote:

>Dear ,

>Thanks for the words of encouragement. Yes, I take Metoclopram for my ITBS(as

>needed), Cyclobenzaprine for the fibro as well as Hydrocodone and Lorazepam

>for both pain. Sound like a drugstore? Looks like one too. The Lorazepam

>has been fairly successful with Migraines. I have also had some luck with

>plain ole Excedrin

>Migraine. Occasionally the world has to stop and let me off for a migraine

>when nothing but cool, dark, quiet will do. Cyclobenzaprine helps with the

>restless leg problem and helps me to sleep at times. I do have a great Doc.

>He is so kind and has been very understanding about my refusal to take

>predinosone. I had it a few years back for the hives I experienced and never

>have been able to lose all of the extra weight it gifted me with. I hate it,

>like the others! I love this group! It has been a true spirit lifter. Thank

>you!

>

>

>

>

>Sponsor<http://rd./M=170602.1361328.2950093.2/D=egroupmail/S=170006149\

8:N/A=551015/?http://www.debticated.com>

>

>

>

[Guest guest]

-

Don't know all of Dave's lab results. I know that he had

a positive ANA and no positive Rheumatoid factor. I also

know that the progression however started in one hand

and moved to the other in a symetrical progression-

(something I experienced and I have learned is

descriptive of RA ). I also did not have a positive

rheumatoid factor for years. His doc says he strongly

suspects RA and not lupus. Took additional blood work -

don't know about x-rays. Based on posts from a and

Pat - I suspect but don't know that he is on

monocycline. I read some of the stuff on mycoplasma

infections and have become a little worried - we have

enough problems- are we now considered infectious to one

another too? Can you actually give RA to someone ? I

have never thought of myself as infectious and jokingly

said if Dave could find a way he would blame the RA on

me- I couldn't have actually given him RA, could I? I

have had this disease for almost 25 years - to the best

of my knowledge - I have never given RA to someone or

thought of myself as infectious. This theory worries me.

[Guest guest]

, I have never heard of giving RA to another ..unless a relative and and

I think they still cant prove all RA is inherited . Gees, I have had men I

dated for long periods of time think they got their health problems from

me....I swear, men, no offense , any men on this list..you are more informed

than most I have known....but you can tell them anything and they mix it up

and believe what they want. When I first was diagnosed with FM mainly..had a

guy I was dating suddenly quit calling me , etc ...finally found out he had

gone to emergency room with severe pains in his hips and lower back and he

ended up getting shots intramuscularly in his hips and being off work a long

time...he blamed me ...never had any such problems b4........yeah , like I

caused it.... and then there was the time I was still with my son's father

....we had a kind of weird codependent relationship...but we were still

sleeping together ...anyway I got my first ever cold sore that spread down

under my chin into my gland...had to treat me with Zorivax(use this for

herpes)and this was when I first started showing signs of immune system

screwing up....anyway I came home and in a phone conversation with him told

him I had Herpes and he needed to get into the dr....like I said men are so

........shall I say dumb? Anyway , I had him believing he needed to be checked

and would probably have to get some meds too......finally , about 6 hours

later I told him the truth...needless to say he has now become more medically

alert to things.....actually sees a dr when he is not feeling....well,..I

thought it was funny ...Judy in AZ

[Guest guest]

,

If RA was contagious, our families and friends would have contracted it.

The infectious theory of arthritis is that the cause is from germs like strep.

If you have strep throat, the germ can get into your system and settle in your

joints or as in rheumatic fever, go to your heart. Surgical procedures also

have risks of germs getting in and causing septic arthritis. There are over

100 different kinds of arthritis, and some have an infectious cause, but I don't

believe they are contagious. Not everyone that gets strep will develop

arthritis as a result, just like those that have strep don't get rheumatic

fever.

Please don't think of yourself as contagious.

a

----- Original Message -----

From: k.j.choate@...

Sent: Monday, March 19, 2001 1:43 AM

Subject: Re: [ ]

-

Don't know all of Dave's lab results. I know that he had

a positive ANA and no positive Rheumatoid factor. I also

know that the progression however started in one hand

and moved to the other in a symetrical progression-

(something I experienced and I have learned is

descriptive of RA ). I also did not have a positive

rheumatoid factor for years. His doc says he strongly

suspects RA and not lupus. Took additional blood work -

don't know about x-rays. Based on posts from a and

Pat - I suspect but don't know that he is on

monocycline. I read some of the stuff on mycoplasma

infections and have become a little worried - we have

enough problems- are we now considered infectious to one

another too? Can you actually give RA to someone ? I

have never thought of myself as infectious and jokingly

said if Dave could find a way he would blame the RA on

me- I couldn't have actually given him RA, could I? I

have had this disease for almost 25 years - to the best

of my knowledge - I have never given RA to someone or

thought of myself as infectious. This theory worries me.

[Guest guest]

Judy-

Thanks so much for my first smile of the day. Your

romantic life sounds a little like mine. I guess I have

to well developed a sense of guilt - the worlds problems

rest in my hands don't you know- lol (sort of).

[Guest guest]

Thanks so much a. The material you and and Pat

passed on makes so much sense. I finally had " logiced "

(if that is a word - geesh I really am tired) out the

conclusions you make in this post - after I sent my post

to the group. I think that the fatigue and the flare -

and lack of sleep had me making huge leaps in logic and

very little leaps of faith.

Thank you so much for the stuff on the antibiotic

treatment. I reviewed the sites and passed on some of

the info - my condensed version - sans guilt - to Dave.

He is on monocycline (sp.?) and appears to be having the

herx reaction. I hope that really is good news. He very

much appreciated the info - and actually seemed to

appreciate the time I took. ( I did give this group

credit as well) What would I do without you - everyone -

but particularly the moderators when it comes to some

right on up to date understandable stuff. Thank you

again.

Big hugs,

[Guest guest]

Hi All

I have a question.......... does anyone know of an adult who was an apraxic

child that went through s/t for years??

Im soooooooo curious of the outcome of these kids. How will they end up???

Lori

[Guest guest]

Good for and you too. Hope it works for my granddaughter . We

will celebrate every word she says. God Bless, Grammy Patty

[Guest guest]

Congratulations Diane and !!!

The fact that is 10 and is showing such positive results in

just about one week of EFA supplementation is more proof positive.

For those who wish to convince their pediatricians before switching

from french fry oil (which your child probably currently is

supplemented with like my friend MD, a doctor of

internal medicine out of Kimball Medical Center says) to fish oil,

you may wish to show them the following.

I am so happy to see that respected medical doctors are researching

and finding incredible results with omega 3 /6 products (like ProEFA

or DHA Jr.) For those who would like an additional book to show

their pediatricians (in addition to Dr. Stordy's The LCP Solution)

below is information about another book that Marilyn Agin MD (who

oversees CHERAB, and is a developmental pediatrician and Medical

Director of Early Intervention) believes to be important reading by

L. Stoll MD Director of the Psycho-pharmacology Research

Laboratory at Harvard's McLean Hospital.

Dr. Stoll's first book is primarily about adults with bipolar

disorders, but the information shows why EFA supplementation is

working. Dr. Stoll is one of the doctors that Dr. Agin is

coordinating with for CHERAB's EFA research. Dr. Stoll discussed

with Dr. Agin about using our EFA research information in his next

book.

Here is information on Dr. Stoll's book.

http://www.amazon.com/exec/obidos/ASIN/0684871386/107-7819030-7599759

The Omega-3 Connection: The Groundbreaking Anti-depression Diet and

Brain Program

by L. Stoll MD,

List Price: $24.00

Our Price: $19.20

You Save: $4.80 (20%)

Availability: This title usually ships within 2-3 days.

Category: Health, Mind & Body

Hardcover - 320 pages (February 2001)

Editorial Reviews

Book Description

For years scientists have searched for a " magic bullet " to relieve

the pain of depression and other mood disorders -- safe enough for

nursing mothers, children with ADHD, and the elderly, without the

side effects associated with medicines like Prozac, Zoloft, and

lithium. Now the search may finally be over, thanks to the Omega-3

Renewal Plan, introduced here by L. Stoll, M.D., Director of

the Psycho-pharmacology Research Laboratory at Harvard's McLean

Hospital.

In his groundbreaking research, Stoll found that omega-3 fatty acids,

already known for their importance in preventing heart disease,

Crohn's disease, rheumatoid arthritis, and cancer, play a crucial

role in mental health -- regulating and en-hancing mood, sharpening

memory, and even aiding concentration and learning. And these

remarkable substances, so essential to our health, are found

abundantly in common fish oils and other sources.

The bad news is that even though omega-3 fatty acids have played a

critical role in our evolutionary past, these extraordinary

substances have been depleted by our Western diet and lifestyle, and

the resulting nutritional imbalance seems to have led to a sharp rise

in heart disease and depression. By contrast, in Japan and other

countries where fish consumption is high, both heart disease and

depression rates are low. Stoll explains how easily omega-3s can be

used up in just a few generations, and how a new mother with depleted

omega-3s loses still more to her baby -- a fact that may account for

the severe postpartum depression so many women suffer. He documents

evidence that a shortage of omega-3s may also play a role in

attention deficit-hyperactivity disorder (ADHD) and other learning

problems. The good news is that this downward spiral of depletion and

depression can finally be reversed.

In his revolutionary Omega-3 Renewal Plan, Dr. Stoll presents readers

for the first time with all the tools for restoring their natural

balance of omega-3 fatty acids, including which foods to eat and how

to choose the most effective over-the-counter supplements. Featuring

information on how to integrate flaxseed and fish oils into diet and

medication plans, and including simple recipes as well as supplement

dosages and sources, The Omega-3 Connection offers an entirely new,

practical method for improving mental health.

Some reader reviews:

Initially skeptical of omega 3 claims, February 17, 2001

Reviewer: W. (see more about me) from Kennewick, WA USA

I was initially skeptical of Omega-3 claims as just more hype for the

food supplement industry. However I read in a reputable

textbook " " Biochemical and Physiological Aspects of Human Nutrition "

by Martha H that Omega3 fatty acids are now

considered " essential fatty acids " and she explained why. Also the

17th edition of the Merck Manual briefly indicates that the EPA and

DHA found in fish oils are essential fatty acids and recommends a

ratio of 10:1 for omega 6 to omega 3 fatty acids in the diet.

Omega 3 fatty acids are essential building blocks for the retina in

the eye, nerve tissue, the brain and control details of the proper

nutritional balance of cells in the body Since omega 6 is the primary

fat in corn, soy, and safflower oils, the typical American diet

contains a ratio of 10, 20 or 40 to 1 for omega 6 to omega 3. If you

don't have enough omega 3 or if the ratio is too high in omega 6

there can be profound health consequences.

I bought " The Omega-3 Connection " as an authoritative source (Dr

Stoll is at the Harvard Medical School " to settle my doubts. After

reading this book it I think it may be the most important health book

of this year( maybe this century) and is MUST reading for anyone

concerned for the health of their children. I sent a copy to each of

my daughters so my grandchildren can benefit from this new information

Lifesaving Nutritional Program, March 17, 2001

Reviewer: john prokovich from saint charles, mo USA

A Must read to make most Americans feel better, live longer, and stay

healthier

Finally, a " true " advance in mental health treatment, January 27,

2001

Reviewer: Jerry Cott (see more about me) from College Park, MD USA

In September of 1998, NIH sponsored the first international workshop

on this subject: " Omega-3 Essential Fatty Acids and Psychiatric

Disorders. " Here, Stoll presented the results of his now

famous study in bipolar disorder. In the introduction of this

meeting, I suggested that these recent reports of dietary

supplementation with essential fatty acids in chronic and severe

mental disorders constituted the most important finding in psychiatry

in 40 years. In the two years that have passed since then, I am even

more convinced of their significance. I have seen lifelong manic-

depressive individuals become " well " with this treatment ­ to the

point of enabling them to discontinue prescription medications. I

would never have believed this possible. Once the basic scientists

begin investigations into the neurobiological basis of these

phenomena, true progress in the prevention and treatment of mental

and neurological disorders will have begun. This book tells the

exciting story of the development of this newest frontier in

psychiatry and points out the other major health benefits that can

result from bringing these essential oils back into our food chain.

This book should be on everyone's shelf.

Interesting New Paradigm on Health, January 13, 2001

Reviewer: S. Raskin from Bellingham, WA

As a biologist, I found The Omega 3 Connection particularly

interesting as it presents a new understanding of diet, evolution and

health. Linking the change in our diet through the industrial

revolution, the loss of Omega 3's and how this affects our basic

biochemistry provided a refreshing take based on new science.Intense

regarding the loss of Omega 3,causing imbalance with Omega 6 and the

effect on the brain, mood and heart. The evolution chapter was

fantastic. The chapter on pregnancy and US infant formula not having

Omega 3 despite all the evidence was disturbing. One wonders about

the increase in depression and violence and the consequence of the

decrease in Omega 3 in children today. This information combined with

the chapters on mood and Omega 3 was compelling. The information on

EPA was new and provided a beautiful description of complex biology

at its best. It is unsettling how the industrial revolution can

profoundly change our diet, mind, mood and health so surreptitiously

and how medicine could miss the picture for so long. The link between

mood and Omega 3 is fascinating and Stoll lists many biologic

mechanisms of action possibly responsible for the link. Good

nutritional insurance for the brain. Medicine often focuses on

disease, without recognition of the nutritional cause.

Pharmaceuticals can make huge profits off of lipid reducing drugs and

this makes the headlines yet Stoll points out that by increasing

Omega 3 we can reduce our risk by 30% the risk of an MI or fatal

arrythmia. I recommend it for anyone wanting to take control of their

health, mood and their mind. The book tells a story we all need to

know

And here is more information from another website about Dr.

Stoll (and right below was information about Nordic Naturals too!)

http://www.patientcenters.com/bipolar/news/resources.html#alternative

Stoll, L., MD. Omega-3 Fatty Acid User Guide. 1998. Available

from: Psychopharmacology Research Laboratory, McLean Hospital, 115

Mill Street, Belmont, MA 02478.

Supplement suppliers

Nordic Naturals

Nordic Naturals is the original source of most omega-3 fatty acid

supplements sold in the US...

( this is the company that our nonprofit CHERAB is using for feedback

research with ProEFA and DHA Jr. because it is a company used by

respected doctors and researchers.

http://shopinserviceinc.goemerchant2.com)

If you are one that wants to wait until all the facts are in before

trying fish oil supplements, perhaps you can try to increase the

amount of sardines, and reduce the amount of french fries you feed

your child and watch the positive changes yourself.

Congratulations again Diane and , and thanks for sharing!

[Guest guest]

HI! I just signed on to this site and your email came through today.

Could you tell me what Omega 3 is? My son is almost 4. He has the

vocabulary of an adult (way too smart for his age), but no one can

understand him but me. I am researching all my options and yours caught

my eye. I wanted also to express my feelings of joy for you-- after just

sitting, crying, with my son because he doesn't want to go to speech

anymore--I would be in heaven if just one person understood one of his

many jokes or stories. Hope 's improvement continues and you shed

many more tears of joy.

On Mon, 26 Mar 2001 08:36:31 -0500 " Diane " <fivej@...> writes:

> I am sitting here....Crying with tears of Joy. (10) has been on

> the

> Omega 3 for 1 week and 4 days and just looked at me and said " me

> make you