[Guest guest]

Dear Kringlemom,

Sorry to hear about your problems - my last chol. test was over 600. I think

something went wrong in the lab! I know how you feel about having to choose

between meds, no fun. Hope the med works quickly for you. (I chose not to take

meds for chol. because my liver is being attacked by so many meds already) By

the way, now that you've mentioned Ravinia and Gurnee I know we're in the same

neck of the woods. But my part of the forest is closer to World Music and

Orland Square!

Jo

Re: [ ]

i didn't go to ravinia with my sister. my head felt really wierd about 3/4

of the way to gurnee i was wondering why am i driving again?? my spine felt

like the stick, balancing the plate on an old variety show. i get a call

while i'm on the phone w/linda and just put them on hold. well it was dr

fang/dr roden office my cholesterol is up to 239, triglycerides are up and

the bad stuff too. so i get more drugs!!! he has called in something called

baychol, it is supposed to lower my lipid level. i am to take 1 pill per day.

i haven't even picked up my last script cause i can't afford it!!! but thats

ulcer meds. i think this one is more important.

[Guest guest]

ok well yesterday i was in the e/r twice. i still feel kinda icky. i went to

the store and bought me healthier food. i rec'd the packet from the atty.

signed away and made the copies i needed and got in in the evening mail. i

have am appt w/my internist on monday, tuesday i have a foot dr and remicade

with the dr comming in during my infusion. i will be very tired of seeing

dr's!!!

[Guest guest]

Hi Terry

I have been taking the elavil for 22 days now and I am still waking

several time during the night and I can't seem to sleep later than

6:30 in the morning. Once the sun is up, I can't sleep. I am going

to ask the doctor if we can try something new. Will be getting some

dark curtains to go over the windows as well. We have lots of

windows.

Sorry about the delay in posting. It was a busy weekend, I competed

and lost in the Sing Fest 2001 competition. I sang in the gospel

category, and came in 3rd. Not too bad. I am really tired though.

It take a lot of energy and emotion to get up on stage in front of

hundreds of people.

It was fun though. The kids were absolutely delighted to see mommy on

stage.

Must read on. Take care.

> The DR put me on Elavil so I can sleep at night and it works really

> good

>

> Oh

[Guest guest]

Thanks ,

Yes I've got to believe that a knee replacement will help. Mainly because I

am so analytical that I have realized that when I get up during the night

the left side of my body hurts and the right doesn't. My conclusion being

that after resting the right knee & hip don't hurt but the left do because

they are bad-knee-no cartilage, hip needs replacement in 3-5 years.

Yes, diamonds would be nicer than a cooler!

Temple

Kuddle Kritters Farm

3 Fox Haven Way

Chelmsford, MA 01824

dat2352@...

http://www.homestead.com/kuddlekrittersfarm/index.html

http://www.homestead.com/kuddlekraft/index.html

http://www.homestead.com/kuddlekrittersdairygoats/index.html

[Guest guest]

Hi ,

I've been taking the Elavil since 1992. What dosage are you at? It could be

you aren't at a high enough dosage yet and it hasn't had a chance to work on

you. I started at 10 MG. I am at 50 MG now. The highest dose you can take

with that is up to 150 MG. You could talk to your doc about raising the

dose. Another thing I have noticed is on some nights the Elavil will NOT

work. I have discovered this to happen when I am close to starting my

period. I took 75 MG one night.. not one wink of sleep! And I have starting

keeping a chart, it and it's a pattern. Same time very month the stuff won't

work. So I take 75 rather than 50.. as my doc said I could.

I also have something dark up over my bedroom window, since I tend to sleep

part of the day.

I'd love to hear you sing!!!

~Rainy

[ ] Re:

> Hi Terry

>

> I have been taking the elavil for 22 days now and I am still waking

> several time during the night and I can't seem to sleep later than

> 6:30 in the morning. Once the sun is up, I can't sleep. I am going

> to ask the doctor if we can try something new. Will be getting some

> dark curtains to go over the windows as well. We have lots of

> windows.

>

> Sorry about the delay in posting. It was a busy weekend, I competed

> and lost in the Sing Fest 2001 competition. I sang in the gospel

> category, and came in 3rd. Not too bad. I am really tired though.

> It take a lot of energy and emotion to get up on stage in front of

> hundreds of people.

>

> It was fun though. The kids were absolutely delighted to see mommy on

> stage.

>

> Must read on. Take care.

>

[Guest guest]

Maybe you could do the hip sooner than three years if is yet another source

of great pain, . Did you see that new procedure for hip replacements

they came up with in Chicago? It's much less invasive and has a quicker

recovery period than the traditional method.

Re: [ ]

> Thanks ,

> Yes I've got to believe that a knee replacement will help. Mainly because

I

> am so analytical that I have realized that when I get up during the night

> the left side of my body hurts and the right doesn't. My conclusion being

> that after resting the right knee & hip don't hurt but the left do because

> they are bad-knee-no cartilage, hip needs replacement in 3-5 years.

> Yes, diamonds would be nicer than a cooler!

>

> Temple

[Guest guest]

Hi Rainy-

I am currently taking 10 mg. Have been since June 4th. I see my

Rheumy again on the 10th of July. She will re-evaluate then. Until

then it's a waiting game.

> Hi ,

>

> I've been taking the Elavil since 1992. What dosage are you at? It

could be

> you aren't at a high enough dosage yet and it hasn't had a chance

to work on

> you. I started at 10 MG. I am at 50 MG now. The highest dose you

can take

> with that is up to 150 MG. You could talk to your doc about raising

the

> dose. Another thing I have noticed is on some nights the Elavil

will NOT

> work. I have discovered this to happen when I am close to starting

my

> period. I took 75 MG one night.. not one wink of sleep! And I have

starting

> keeping a chart, it and it's a pattern. Same time very month the

stuff won't

> work. So I take 75 rather than 50.. as my doc said I could.

>

> I also have something dark up over my bedroom window, since I tend

to sleep

> part of the day.

>

> I'd love to hear you sing!!!

> ~Rainy

>

> [ ] Re:

>

>

> > Hi Terry

> >

> > I have been taking the elavil for 22 days now and I am still

waking

> > several time during the night and I can't seem to sleep later than

> > 6:30 in the morning. Once the sun is up, I can't sleep. I am

going

> > to ask the doctor if we can try something new. Will be getting

some

> > dark curtains to go over the windows as well. We have lots of

> > windows.

> >

> > Sorry about the delay in posting. It was a busy weekend, I

competed

> > and lost in the Sing Fest 2001 competition. I sang in the gospel

> > category, and came in 3rd. Not too bad. I am really tired

though.

> > It take a lot of energy and emotion to get up on stage in front of

> > hundreds of people.

> >

> > It was fun though. The kids were absolutely delighted to see

mommy on

> > stage.

> >

> > Must read on. Take care.

> >

[Guest guest]

well i got the ok from the cardiologist to continue with remicade. he says he

didn't think it had anything to do with my chest pains. i am scheduled for my

3rd infusion on friday!!! i am having an emg of my legs tomorrow, so i guess

i will just try to get it all done and go back on monday. (nice vacation

huh?? 2 e/r visits, to the internist, to the foot dr, to the rheumatologist

to the cardiologist, back to the hospital for blood work (that they drew from

by my elbow?!?!?) back to the foot dr, and back to the rheumatologist!! oh

yes get this!!! the chiropractor called me said he felt bad about the

insurance problem and not being there for my " last " visit. so he wants me to

come in free of charge!!!! don't forget my wonderful experience at the k-mart

pharmacy. " where everybody knows your name!! " urgh!!!

[Guest guest]

LOL...LOL Your sarcasm makes me laugh, not you conditions and

problems. Boy, that really sounds like a nightmare. I hope you are

able to get some rest sweety. Feel better soon is my prayer for you.

Love and Care,

> well i got the ok from the cardiologist to continue with remicade.

he says he

> didn't think it had anything to do with my chest pains. i am

scheduled for my

> 3rd infusion on friday!!! i am having an emg of my legs tomorrow,

so i guess

> i will just try to get it all done and go back on monday. (nice

vacation

> huh?? 2 e/r visits, to the internist, to the foot dr, to the

rheumatologist

> to the cardiologist, back to the hospital for blood work (that they

drew from

> by my elbow?!?!?) back to the foot dr, and back to the

rheumatologist!! oh

> yes get this!!! the chiropractor called me said he felt bad about

the

> insurance problem and not being there for my " last " visit. so he

wants me to

> come in free of charge!!!! don't forget my wonderful experience at

the k-mart

> pharmacy. " where everybody knows your name!! " urgh!!!

[Guest guest]

Hi there,

I am finally getting to this one. When the 10 MG didn't work for me I was

raised to 20 MG, and then I was in heaven. Let me know what you and your doc

decide.

~Rainy Sue

[ ] Re:

> Hi Rainy-

>

> I am currently taking 10 mg. Have been since June 4th. I see my

> Rheumy again on the 10th of July. She will re-evaluate then. Until

> then it's a waiting game.

>

>

>

>

[Guest guest]

well i am going for my remicade treatment today, they will have to do it in

my left arm. my right was bitten by a neighbors dog last night. just my

luck!!!

[Guest guest]

Hope the Remicade infusion goes well today and that you feel very good

afterward, Kathy.

Hey, you can't just tell us that you were bitten by a dog and not give us

more details of the story!

Re: [ ]

> well i am going for my remicade treatment today, they will have to do it

in

> my left arm. my right was bitten by a neighbors dog last night. just my

> luck!!!

>

>

[Guest guest]

Hi ,

Yes, my husband has gotten pretty good at helping when I am feeling

really bad. I just wish he would help before I start feeling bad,

then maybe I wouldn't feel bad. It's a vicious circle. Maybe he

will start to see a pattern soon.

No ville isn't close to you. We are above Nashville. But I

have been to Mountain City. We drive through there I think when we

drive to see my Mother-In-Law. She lives in Pine Knoll Shores, near

Morehead City.

Well, It time to get to work. Talk to ya soon.

> Hi ,

> Actually, you did welcome me, but I guess I missed thanking you.

It's

> ok, sounds like you had a bad week. I'm glad you're feeling a

little

> better today. Do you have someone to help you with those 2 cute

> little boys when you're feeling bad? They look like a handful! I

> remember when my daughter was little (she's 28 now)...some days

were

> pretty tough.

>

> I need to look at a map and see where ville is...I live in

> NC, but our farm is practically in Tennessee (closest town is

> Mountain City, TN). We might be neighbors!

[Guest guest]

Hi ,

Boy you sure are having a tough time these days. Hopefully, one of the

medications will start to kick in or the flare will start to subside all by

itself. I too, tend to withdraw from things when I am in a lot of pain. I

will read everyday, but just don't have the energy to return the posts. Pain

by and in itself can make you exhausted. Don't worry, we all understand and

have been there many times & will be there for you too.....Try not to overdo

this weekend, even if you start to feel a little bit better......

Gentle, tender, pain free angel hugs,

Debs

[Guest guest]

Yes, that is all we can do. I am sure glad you are feeling better.

I think we all over do it when we feel better. It somehow makes me

feel like I AM worth something, cause when I am hurting I feel

worthless. I know I am not, and I am not at fault for hurting, but

my " ism " or " the Devil " likes to tell me so, and when I am not in fit

spiritual condition, I listen to that voice and believe it.

I will pray for your friend too.

> After all the whining I wanted to let you know the Dr cut my MTX to

> 7.5 mg two times a week. I am really better today and even thinking

> about planting some plants in the yard for my wife. I always over

do

> it when I fell better but can't help it after two days of having

> trouble just walking to bath room the first of the week.

>

> Hope you are doing better. I was just at a meeting and a friend I

> have there is a Vietnam Veteran with OA. The veterans hospital

gives

> him pain meds in 1 gallon jars, and he thinks he can handle it. He

> had drug problems too. I guess all I can do is pray for him.

>

> Hav'n a good day

>

>

[Guest guest]

i am still running a fever and i am so dizzy. my shoulder blades are sore

and my feet are swollen. my spine is acting like the plastic carnival snakes.

i haven't been to work since monday. i just wish it would pass now ok??

kathy

[Guest guest]

Kathy,

I hope it has passed and you're feeling better. Do you

think the Remicade is helping you? You've been getting

these fevers for so long now. Does your doctor seem to be

concerned about them? I hope today was a pain free one.

a

Re: [ ]

i am still running a fever and i am so dizzy. my shoulder

blades are sore

and my feet are swollen. my spine is acting like the

plastic carnival snakes.

i haven't been to work since monday. i just wish it would

pass now ok??

kathy

[Guest guest]

,

I hope your new regiment is easier on you. I'm glad to hear

that you've gotten

good results and are in the planting mood! I spend a lot of

time in my back yard

puttering in my garden. This is the first time in about 8

years that we had one.

It's really good for me to sit in my lounge chair and admire

all the flowers that we planted. I enjoy laying out there

and reading. When I'm stuck in this house all winter, I'm

enjoying it.

I hope you continue to feel good.

a

[ ]

After all the whining I wanted to let you know the Dr cut

my MTX to

7.5 mg two times a week. I am really better today and even

thinking

about planting some plants in the yard for my wife. I

always over do

it when I fell better but can't help it after two days of

having

trouble just walking to bath room the first of the week.

Hope you are doing better. I was just at a meeting and a

friend I

have there is a Vietnam Veteran with OA. The veterans

hospital gives

him pain meds in 1 gallon jars, and he thinks he can

handle it. He

had drug problems too. I guess all I can do is pray for

him.

Hav'n a good day

[Guest guest]

,

Yeas the ablation is this Thursday. Then Knee replacement on Sept 14, then

abdominal surgery in beginning of February, then Family vacation to Disney

World in February (in wheelchair), the hip replacement in March. Have been

dealing with a lot of issues besides my pain lately. My 19 year old

bi-polar son is in and out of trouble and an emotional and financial drain

on us. My 15 year old son has whooping cough would you believe? Doctor says

that in teen years the effectiveness of the vaccination wanes. Husband sick

with URI too. Need I go on.

Am selling old Barbie stuff and Fisher Price little people on Ebay-like a

full time job.

Must admit I'm down but don't know how to get up and just pretend for

family.

Good thing. My miniature schnauzer, Krystal, had 2 beautiful puppies two

weeks ago. Now I need buyers. They are purebred.

Think my left shoulder now has damage too because it hurts constantly, at

least I don't have to walk on it!

Temple

Kuddle Kritters Farm

3 Fox Haven Way

Chelmsford, MA 01824

dat2352@...

http://www.homestead.com/kuddlekrittersfarm/index.html

http://www.homestead.com/kuddlekraft/index.html

http://www.homestead.com/kuddlekrittersdairygoats/index.html

[ ]

[Guest guest]

well we went to the surgeon today. dan's dr ordered a mri that we go do

tomorrow. the foot dr is going to set up my tarsal tunnel surgery after my

parents come up in august. now if i can only hold out that long!!! still have

not gone back to work. was up until 3am. don't know if that is the steroids

or what. 99.5 today. really humid and my feet were so swollen.

[Guest guest]

,

I hope the ablation goes well tomorrow. I'll be praying

that the procedure is painfree. I hope you don't catch the

germs that are circulation around your house! I haven't

heard of anyone getting whooping cough! I feel so bad about

everything you are going through. I know how the emotional

stress affects you. I pray for your strength to deal with

this.

Hugs,

a

Re: [ ]

,

Yeas the ablation is this Thursday. Then Knee replacement

on Sept 14, then

abdominal surgery in beginning of February, then Family

vacation to Disney

World in February (in wheelchair), the hip replacement in

March. Have been

dealing with a lot of issues besides my pain lately. My

19 year old

bi-polar son is in and out of trouble and an emotional and

financial drain

on us. My 15 year old son has whooping cough would you

believe? Doctor says

that in teen years the effectiveness of the vaccination

wanes. Husband sick

with URI too. Need I go on.

Am selling old Barbie stuff and Fisher Price little people

on Ebay-like a

full time job.

Must admit I'm down but don't know how to get up and just

pretend for

family.

Good thing. My miniature schnauzer, Krystal, had 2

beautiful puppies two

weeks ago. Now I need buyers. They are purebred.

Think my left shoulder now has damage too because it hurts

constantly, at

least I don't have to walk on it!

Temple

Kuddle Kritters Farm

3 Fox Haven Way

Chelmsford, MA 01824

dat2352@...

http://www.homestead.com/kuddlekrittersfarm/index.html

http://www.homestead.com/kuddlekraft/index.html

http://www.homestead.com/kuddlekrittersdairygoats/index.html

[ ]

[Guest guest]

,

Sorry to tag on to a's post. Just wanted to let you know you will be in my

prayers today, and I have my candle lit for you. Hope all goes well today.

Hugs. Tery - ville

" a " <paula54@...> wrote:

>,

>I hope the ablation goes well tomorrow. I'll be praying

>that the procedure is painfree. I hope you don't catch the

>germs that are circulation around your house! I haven't

>heard of anyone getting whooping cough! I feel so bad about

>everything you are going through. I know how the emotional

>stress affects you. I pray for your strength to deal with

>this.

>Hugs,

>a

>

> Re: [ ]

>

>

> ,

> Yeas the ablation is this Thursday. Then Knee replacement

>on Sept 14, then

> abdominal surgery in beginning of February, then Family

>vacation to Disney

> World in February (in wheelchair), the hip replacement in

>March. Have been

> dealing with a lot of issues besides my pain lately. My

>19 year old

> bi-polar son is in and out of trouble and an emotional and

>financial drain

> on us. My 15 year old son has whooping cough would you

>believe? Doctor says

> that in teen years the effectiveness of the vaccination

>wanes. Husband sick

> with URI too. Need I go on.

> Am selling old Barbie stuff and Fisher Price little people

>on Ebay-like a

> full time job.

> Must admit I'm down but don't know how to get up and just

>pretend for

> family.

> Good thing. My miniature schnauzer, Krystal, had 2

>beautiful puppies two

> weeks ago. Now I need buyers. They are purebred.

> Think my left shoulder now has damage too because it hurts

>constantly, at

> least I don't have to walk on it!

>

> Temple

> Kuddle Kritters Farm

> 3 Fox Haven Way

> Chelmsford, MA 01824

>

> dat2352@...

> http://www.homestead.com/kuddlekrittersfarm/index.html

> http://www.homestead.com/kuddlekraft/index.html

>

>http://www.homestead.com/kuddlekrittersdairygoats/index.html

> [ ]

>

>

>

>

>

[Guest guest]

I'm praying, too, ! Hope the ablation today is a complete success.

RE: RE: [ ]

> ,

> Sorry to tag on to a's post. Just wanted to let you know you will be

in my prayers today, and I have my candle lit for you. Hope all goes well

today. Hugs. Tery - ville

>

> " a " <paula54@...> wrote:

>

> >,

> >I hope the ablation goes well tomorrow. I'll be praying

> >that the procedure is painfree. I hope you don't catch the

> >germs that are circulation around your house! I haven't

> >heard of anyone getting whooping cough! I feel so bad about

> >everything you are going through. I know how the emotional

> >stress affects you. I pray for your strength to deal with

> >this.

> >Hugs,

> >a

[Guest guest]

a,

Guess you could say the ablation went well but only time will tell. The

waking sedation is a joke-I went to sleep-fentenyl and valium! Then had a

really hard time coming to in recovery-took 3 hours. When I got home went to

bed for 5 hours, woke up for 3 and went back to bed for the night. It hurts

so not that I do much but will do less today!

[Guest guest]

Glad to hear from you, . Glad that your procedure is finished now, and

I hope your pain is less today.

What's the follow-up for the ablation?

Re: [ ]

> a,

> Guess you could say the ablation went well but only time will tell. The

> waking sedation is a joke-I went to sleep-fentenyl and valium! Then had a

> really hard time coming to in recovery-took 3 hours. When I got home went

to

> bed for 5 hours, woke up for 3 and went back to bed for the night. It

hurts

> so not that I do much but will do less today!

>