Guest guest Posted February 8, 2001 Report Share Posted February 8, 2001 Watch what you say =) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2001 Report Share Posted February 14, 2001 i went to a new chiro today, because i changed my insurance plan. i brought the results from my bone scan and mri and my failure letter to get me on enbrel, he took x-rays and examined me. i am all out of place. (duh, thats why i went!!) he won't do any adjustments until he and the dr on staff examine my x-rays. but he asked me if anyone ever mentioned fibromyalgia to me. that's the 2nd dr that has said that to me since december. i was really in a fog today. i called it a codene fog because i took some yesterday. kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 Dear : Hi, thanks for the email. I am doing okay. I should get the results from the test today or tomorrow. I am trying not to worry. I am trying to keep busy. Hope you are doing okay. I spoke to my sister-in-law last night and she sounds good. She didn't start her medication yet but she is to go to the Doctor tomorrow. Love, PS: I will email as soon as I get the results. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 Dear : I am glad things are okay with you. I understand your concern for your son even though I have no children. I worry about my cats as though they were my children. I was just talking to June, (IM), she sounds good. I have mentioned to her about joining the group but she was having a lot of trouble with her computer. Yesterday she got a new computer so she is having a ball with it. It is very fast, and she is really enjoying it. Maybe now she might want to join our group. I will ask her again. Have a good day. Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 Thanks, . Things are fine over here. My son, , has been in Washington, DC for a class trip and I'm anxious for him to come back (it's only been since the wee hours of Saturday morning, too!). Keeping busy really works sometimes. I'm glad you are OK. Worry can be a terrible stress. I hope your father is doing well. I'm glad that June sounds good. Please wish her good luck from me and keep us posted on how she is doing. If she ever wants to join our group, she is most welcome. Love back to you, ----- Original Message ----- From: <ANJILLAH@...> < > Sent: Monday, February 19, 2001 9:39 AM Subject: Re: [ ] > Dear : > Hi, thanks for the email. I am doing okay. I should get the results from > the test today or tomorrow. I am trying not to worry. I am trying to keep > busy. > Hope you are doing okay. > I spoke to my sister-in-law last night and she sounds good. She didn't start > her medication yet but she is to go to the Doctor tomorrow. > Love, > PS: I will email as soon as I get the results. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2001 Report Share Posted February 20, 2001 Delaine: Read your post and I am presently trying to lose weight through a First Place Program which recommends deleting all sugars, especially soft drinks but it does recommend having carbs because they keep the body fuel working and then you don't burn the protein you eat . The right combination of meat, fruit, bread, milk vegs and even fat is needed to keep your metabolism going. Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2001 Report Share Posted February 21, 2001 Delaney, what do you eat? Shirley in Wyoming. Please reply Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2001 Report Share Posted February 22, 2001 i also had growing pains kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2001 Report Share Posted February 22, 2001 Hi Delaine, My father would get pneumonia each year when it was time to go into the alfafa fields and bale the hay. I had terrific allergies too. I had terrific " growing pains " . Odd that my brothers who grew faster and taller did not have growing pains. What type of diet helps you to stay RA pain free? Thanks for writing, Patsy -----Original Message----- From: Jim & Delaine Lowry [mailto:keywest@...] Sent: Tuesday, February 20, 2001 8:47 PM Subject: [ ] Patsy, When I first got RA at the age of 45, I didn't really know a lot about the history of my grandparents, etc. Now, I know that my mother's dad had arthritis so badly that he would cry a lot. Then, my mother had growing pains a lot and has had something auto-immune with her for her whole life. A lot of my aunts and uncles have hayfever. I'm wondering if autoimmune problems have something to do with yeast and B vitamins and mercury. My grandfather that had the arthritis died with Alzheimer's. Althimers patients are known to have a lot of mercury in their bodies. And if one can't get rid of yeast, it could be because of too much mercury in the body. I am working to get the yeast out of my body and it is really tough as I think I've had it in my body for my entire life. I'm going to have a mercury test done very soon to see if I have too much mercury in my body. I've done a lot of reading to get this far in my findings and I know that I have no pain with my RA if I follow a diet to get rid of yeast. So, for me, yeast is a big problem. Delaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2001 Report Share Posted March 12, 2001 , You wouldn't happen to be a Scorpio, would? I'm a very stubborn Scorpio and if I want to do something, I DO IT! =) I hope you are feeling better! ~Rainy Sue ----- Original Message ----- > Not much keeps me down- maybe it should some time but my > " will " - very stubborn - usually wins out. Thanks for > your concern. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2001 Report Share Posted March 12, 2001 Nope. Actually a Taurus. I will be 47 on April 29. Thanks for your concern. I am working out the stiffness and soreness in my back and I'm sure I will feel as okay as any of us ever do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2001 Report Share Posted March 15, 2001 good luck judy!!! kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2001 Report Share Posted March 15, 2001 Dear Friends: Sorry I haven't been writing too much. I am trying to keep up with reading all of the current mail though. It just amazes me that these Doctors won't prescribe pain meds. They call themselves Rheumatologists! What do they expect you to do? I pray that all of you who are in pain can find Doctors that really care. God even the government said that no one in a hospital should be in pain. That is a big issue today in hospitals. Pain is supposed to be addressed on a daily basis now, when one is a patient in a hospital. Where are these Doctors at? The Dark Ages! I just can't believe all of this! I want to see what they would do if they get Arthritis! All I can do is pray that you all find someone who cares enough to keep you out of pain. Maybe if we did a march on Washington DC and involved the government, then maybe these Doctors would be made to do what they should. I would definitely support that. I thank God I have such a wonderful Doctor and I pray you all find someone like him. My prayers are with you. Better days have to be coming soon. Sincerely, Colletti Anjillah@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2001 Report Share Posted March 18, 2001 Dear , Thanks for the words of encouragement. Yes, I take Metoclopram for my ITBS(as needed), Cyclobenzaprine for the fibro as well as Hydrocodone and Lorazepam for both pain. Sound like a drugstore? Looks like one too. The Lorazepam has been fairly successful with Migraines. I have also had some luck with plain ole Excedrin Migraine. Occasionally the world has to stop and let me off for a migraine when nothing but cool, dark, quiet will do. Cyclobenzaprine helps with the restless leg problem and helps me to sleep at times. I do have a great Doc. He is so kind and has been very understanding about my refusal to take predinosone. I had it a few years back for the hives I experienced and never have been able to lose all of the extra weight it gifted me with. I hate it, like the others! I love this group! It has been a true spirit lifter. Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 , Glad to hear from you again. I have been concerned about you since your accident. I'm sure the flare is to be expected and hope it is over soon. My pharmacist has RA and takes antibiotic therapy. He is a strong believer in it. He told me of a study that was done in Europe with patients who had RA for two years or less and were given antibiotic treatment. An unbelievable 85% went into remission. The figure the 15% that did not go into remission had actually had RA for over two years or it was not really RA that they had. In my opinion, Dave is fortunate to have a doctor willing to start the antibiotic therapy because if it is going to work for him - this is the best time to do it. Remind him to eat Yogurt because men can get yeast infections too from the antibiotics. When I had surgery last summer, I went into a terrible RA flare and we had trouble getting it in control again. We are not thinking that my pneumonia may have been a blessing in disguise because so far I have not gone into a post op flare - we suspect the IV antibiotics may have prevented. While I was in the hospital, my shoulders started to flare and they used ice treatments in PT. I have not had any problems with flaring since then. It may be a coincidence but I think I will request IV antibiotics in the future after surgery. Hope you have a good week. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 , I am glad you found are group and are getting the lift you need. We all need that at times. We all sound like a drugstore when we start listing off our meds. Pat At 02:32 AM 03/18/2001 -0500, you wrote: >Dear , >Thanks for the words of encouragement. Yes, I take Metoclopram for my ITBS(as >needed), Cyclobenzaprine for the fibro as well as Hydrocodone and Lorazepam >for both pain. Sound like a drugstore? Looks like one too. The Lorazepam >has been fairly successful with Migraines. I have also had some luck with >plain ole Excedrin >Migraine. Occasionally the world has to stop and let me off for a migraine >when nothing but cool, dark, quiet will do. Cyclobenzaprine helps with the >restless leg problem and helps me to sleep at times. I do have a great Doc. >He is so kind and has been very understanding about my refusal to take >predinosone. I had it a few years back for the hives I experienced and never >have been able to lose all of the extra weight it gifted me with. I hate it, >like the others! I love this group! It has been a true spirit lifter. Thank >you! > > > > >Sponsor<http://rd./M=170602.1361328.2950093.2/D=egroupmail/S=170006149\ 8:N/A=551015/?http://www.debticated.com> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 - Don't know all of Dave's lab results. I know that he had a positive ANA and no positive Rheumatoid factor. I also know that the progression however started in one hand and moved to the other in a symetrical progression- (something I experienced and I have learned is descriptive of RA ). I also did not have a positive rheumatoid factor for years. His doc says he strongly suspects RA and not lupus. Took additional blood work - don't know about x-rays. Based on posts from a and Pat - I suspect but don't know that he is on monocycline. I read some of the stuff on mycoplasma infections and have become a little worried - we have enough problems- are we now considered infectious to one another too? Can you actually give RA to someone ? I have never thought of myself as infectious and jokingly said if Dave could find a way he would blame the RA on me- I couldn't have actually given him RA, could I? I have had this disease for almost 25 years - to the best of my knowledge - I have never given RA to someone or thought of myself as infectious. This theory worries me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 , I have never heard of giving RA to another ..unless a relative and and I think they still cant prove all RA is inherited . Gees, I have had men I dated for long periods of time think they got their health problems from me....I swear, men, no offense , any men on this list..you are more informed than most I have known....but you can tell them anything and they mix it up and believe what they want. When I first was diagnosed with FM mainly..had a guy I was dating suddenly quit calling me , etc ...finally found out he had gone to emergency room with severe pains in his hips and lower back and he ended up getting shots intramuscularly in his hips and being off work a long time...he blamed me ...never had any such problems b4........yeah , like I caused it.... and then there was the time I was still with my son's father ....we had a kind of weird codependent relationship...but we were still sleeping together ...anyway I got my first ever cold sore that spread down under my chin into my gland...had to treat me with Zorivax(use this for herpes)and this was when I first started showing signs of immune system screwing up....anyway I came home and in a phone conversation with him told him I had Herpes and he needed to get into the dr....like I said men are so ........shall I say dumb? Anyway , I had him believing he needed to be checked and would probably have to get some meds too......finally , about 6 hours later I told him the truth...needless to say he has now become more medically alert to things.....actually sees a dr when he is not feeling....well,..I thought it was funny ...Judy in AZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 , If RA was contagious, our families and friends would have contracted it. The infectious theory of arthritis is that the cause is from germs like strep. If you have strep throat, the germ can get into your system and settle in your joints or as in rheumatic fever, go to your heart. Surgical procedures also have risks of germs getting in and causing septic arthritis. There are over 100 different kinds of arthritis, and some have an infectious cause, but I don't believe they are contagious. Not everyone that gets strep will develop arthritis as a result, just like those that have strep don't get rheumatic fever. Please don't think of yourself as contagious. a ----- Original Message ----- From: k.j.choate@... Sent: Monday, March 19, 2001 1:43 AM Subject: Re: [ ] - Don't know all of Dave's lab results. I know that he had a positive ANA and no positive Rheumatoid factor. I also know that the progression however started in one hand and moved to the other in a symetrical progression- (something I experienced and I have learned is descriptive of RA ). I also did not have a positive rheumatoid factor for years. His doc says he strongly suspects RA and not lupus. Took additional blood work - don't know about x-rays. Based on posts from a and Pat - I suspect but don't know that he is on monocycline. I read some of the stuff on mycoplasma infections and have become a little worried - we have enough problems- are we now considered infectious to one another too? Can you actually give RA to someone ? I have never thought of myself as infectious and jokingly said if Dave could find a way he would blame the RA on me- I couldn't have actually given him RA, could I? I have had this disease for almost 25 years - to the best of my knowledge - I have never given RA to someone or thought of myself as infectious. This theory worries me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 Judy- Thanks so much for my first smile of the day. Your romantic life sounds a little like mine. I guess I have to well developed a sense of guilt - the worlds problems rest in my hands don't you know- lol (sort of). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 Thanks so much a. The material you and and Pat passed on makes so much sense. I finally had " logiced " (if that is a word - geesh I really am tired) out the conclusions you make in this post - after I sent my post to the group. I think that the fatigue and the flare - and lack of sleep had me making huge leaps in logic and very little leaps of faith. Thank you so much for the stuff on the antibiotic treatment. I reviewed the sites and passed on some of the info - my condensed version - sans guilt - to Dave. He is on monocycline (sp.?) and appears to be having the herx reaction. I hope that really is good news. He very much appreciated the info - and actually seemed to appreciate the time I took. ( I did give this group credit as well) What would I do without you - everyone - but particularly the moderators when it comes to some right on up to date understandable stuff. Thank you again. Big hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2001 Report Share Posted March 23, 2001 Hi All I have a question.......... does anyone know of an adult who was an apraxic child that went through s/t for years?? Im soooooooo curious of the outcome of these kids. How will they end up??? Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 Good for and you too. Hope it works for my granddaughter . We will celebrate every word she says. God Bless, Grammy Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 Congratulations Diane and !!! The fact that is 10 and is showing such positive results in just about one week of EFA supplementation is more proof positive. For those who wish to convince their pediatricians before switching from french fry oil (which your child probably currently is supplemented with like my friend MD, a doctor of internal medicine out of Kimball Medical Center says) to fish oil, you may wish to show them the following. I am so happy to see that respected medical doctors are researching and finding incredible results with omega 3 /6 products (like ProEFA or DHA Jr.) For those who would like an additional book to show their pediatricians (in addition to Dr. Stordy's The LCP Solution) below is information about another book that Marilyn Agin MD (who oversees CHERAB, and is a developmental pediatrician and Medical Director of Early Intervention) believes to be important reading by L. Stoll MD Director of the Psycho-pharmacology Research Laboratory at Harvard's McLean Hospital. Dr. Stoll's first book is primarily about adults with bipolar disorders, but the information shows why EFA supplementation is working. Dr. Stoll is one of the doctors that Dr. Agin is coordinating with for CHERAB's EFA research. Dr. Stoll discussed with Dr. Agin about using our EFA research information in his next book. Here is information on Dr. Stoll's book. http://www.amazon.com/exec/obidos/ASIN/0684871386/107-7819030-7599759 The Omega-3 Connection: The Groundbreaking Anti-depression Diet and Brain Program by L. Stoll MD, List Price: $24.00 Our Price: $19.20 You Save: $4.80 (20%) Availability: This title usually ships within 2-3 days. Category: Health, Mind & Body Hardcover - 320 pages (February 2001) Editorial Reviews Book Description For years scientists have searched for a " magic bullet " to relieve the pain of depression and other mood disorders -- safe enough for nursing mothers, children with ADHD, and the elderly, without the side effects associated with medicines like Prozac, Zoloft, and lithium. Now the search may finally be over, thanks to the Omega-3 Renewal Plan, introduced here by L. Stoll, M.D., Director of the Psycho-pharmacology Research Laboratory at Harvard's McLean Hospital. In his groundbreaking research, Stoll found that omega-3 fatty acids, already known for their importance in preventing heart disease, Crohn's disease, rheumatoid arthritis, and cancer, play a crucial role in mental health -- regulating and en-hancing mood, sharpening memory, and even aiding concentration and learning. And these remarkable substances, so essential to our health, are found abundantly in common fish oils and other sources. The bad news is that even though omega-3 fatty acids have played a critical role in our evolutionary past, these extraordinary substances have been depleted by our Western diet and lifestyle, and the resulting nutritional imbalance seems to have led to a sharp rise in heart disease and depression. By contrast, in Japan and other countries where fish consumption is high, both heart disease and depression rates are low. Stoll explains how easily omega-3s can be used up in just a few generations, and how a new mother with depleted omega-3s loses still more to her baby -- a fact that may account for the severe postpartum depression so many women suffer. He documents evidence that a shortage of omega-3s may also play a role in attention deficit-hyperactivity disorder (ADHD) and other learning problems. The good news is that this downward spiral of depletion and depression can finally be reversed. In his revolutionary Omega-3 Renewal Plan, Dr. Stoll presents readers for the first time with all the tools for restoring their natural balance of omega-3 fatty acids, including which foods to eat and how to choose the most effective over-the-counter supplements. Featuring information on how to integrate flaxseed and fish oils into diet and medication plans, and including simple recipes as well as supplement dosages and sources, The Omega-3 Connection offers an entirely new, practical method for improving mental health. Some reader reviews: Initially skeptical of omega 3 claims, February 17, 2001 Reviewer: W. (see more about me) from Kennewick, WA USA I was initially skeptical of Omega-3 claims as just more hype for the food supplement industry. However I read in a reputable textbook " " Biochemical and Physiological Aspects of Human Nutrition " by Martha H that Omega3 fatty acids are now considered " essential fatty acids " and she explained why. Also the 17th edition of the Merck Manual briefly indicates that the EPA and DHA found in fish oils are essential fatty acids and recommends a ratio of 10:1 for omega 6 to omega 3 fatty acids in the diet. Omega 3 fatty acids are essential building blocks for the retina in the eye, nerve tissue, the brain and control details of the proper nutritional balance of cells in the body Since omega 6 is the primary fat in corn, soy, and safflower oils, the typical American diet contains a ratio of 10, 20 or 40 to 1 for omega 6 to omega 3. If you don't have enough omega 3 or if the ratio is too high in omega 6 there can be profound health consequences. I bought " The Omega-3 Connection " as an authoritative source (Dr Stoll is at the Harvard Medical School " to settle my doubts. After reading this book it I think it may be the most important health book of this year( maybe this century) and is MUST reading for anyone concerned for the health of their children. I sent a copy to each of my daughters so my grandchildren can benefit from this new information Lifesaving Nutritional Program, March 17, 2001 Reviewer: john prokovich from saint charles, mo USA A Must read to make most Americans feel better, live longer, and stay healthier Finally, a " true " advance in mental health treatment, January 27, 2001 Reviewer: Jerry Cott (see more about me) from College Park, MD USA In September of 1998, NIH sponsored the first international workshop on this subject: " Omega-3 Essential Fatty Acids and Psychiatric Disorders. " Here, Stoll presented the results of his now famous study in bipolar disorder. In the introduction of this meeting, I suggested that these recent reports of dietary supplementation with essential fatty acids in chronic and severe mental disorders constituted the most important finding in psychiatry in 40 years. In the two years that have passed since then, I am even more convinced of their significance. I have seen lifelong manic- depressive individuals become " well " with this treatment  to the point of enabling them to discontinue prescription medications. I would never have believed this possible. Once the basic scientists begin investigations into the neurobiological basis of these phenomena, true progress in the prevention and treatment of mental and neurological disorders will have begun. This book tells the exciting story of the development of this newest frontier in psychiatry and points out the other major health benefits that can result from bringing these essential oils back into our food chain. This book should be on everyone's shelf. Interesting New Paradigm on Health, January 13, 2001 Reviewer: S. Raskin from Bellingham, WA As a biologist, I found The Omega 3 Connection particularly interesting as it presents a new understanding of diet, evolution and health. Linking the change in our diet through the industrial revolution, the loss of Omega 3's and how this affects our basic biochemistry provided a refreshing take based on new science.Intense regarding the loss of Omega 3,causing imbalance with Omega 6 and the effect on the brain, mood and heart. The evolution chapter was fantastic. The chapter on pregnancy and US infant formula not having Omega 3 despite all the evidence was disturbing. One wonders about the increase in depression and violence and the consequence of the decrease in Omega 3 in children today. This information combined with the chapters on mood and Omega 3 was compelling. The information on EPA was new and provided a beautiful description of complex biology at its best. It is unsettling how the industrial revolution can profoundly change our diet, mind, mood and health so surreptitiously and how medicine could miss the picture for so long. The link between mood and Omega 3 is fascinating and Stoll lists many biologic mechanisms of action possibly responsible for the link. Good nutritional insurance for the brain. Medicine often focuses on disease, without recognition of the nutritional cause. Pharmaceuticals can make huge profits off of lipid reducing drugs and this makes the headlines yet Stoll points out that by increasing Omega 3 we can reduce our risk by 30% the risk of an MI or fatal arrythmia. I recommend it for anyone wanting to take control of their health, mood and their mind. The book tells a story we all need to know And here is more information from another website about Dr. Stoll (and right below was information about Nordic Naturals too!) http://www.patientcenters.com/bipolar/news/resources.html#alternative Stoll, L., MD. Omega-3 Fatty Acid User Guide. 1998. Available from: Psychopharmacology Research Laboratory, McLean Hospital, 115 Mill Street, Belmont, MA 02478. Supplement suppliers Nordic Naturals Nordic Naturals is the original source of most omega-3 fatty acid supplements sold in the US... ( this is the company that our nonprofit CHERAB is using for feedback research with ProEFA and DHA Jr. because it is a company used by respected doctors and researchers. http://shopinserviceinc.goemerchant2.com) If you are one that wants to wait until all the facts are in before trying fish oil supplements, perhaps you can try to increase the amount of sardines, and reduce the amount of french fries you feed your child and watch the positive changes yourself. Congratulations again Diane and , and thanks for sharing! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 HI! I just signed on to this site and your email came through today. Could you tell me what Omega 3 is? My son is almost 4. He has the vocabulary of an adult (way too smart for his age), but no one can understand him but me. I am researching all my options and yours caught my eye. I wanted also to express my feelings of joy for you-- after just sitting, crying, with my son because he doesn't want to go to speech anymore--I would be in heaven if just one person understood one of his many jokes or stories. Hope 's improvement continues and you shed many more tears of joy. On Mon, 26 Mar 2001 08:36:31 -0500 " Diane " <fivej@...> writes: > I am sitting here....Crying with tears of Joy. (10) has been on > the > Omega 3 for 1 week and 4 days and just looked at me and said " me > make you Quote Link to comment Share on other sites More sharing options...
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