Bad news

[Guest guest]

Oh Holly, how discouraging.

I ask myself all of the time, I don't know how much

more mental anguish that I can take. I keep worrying

about the people that I work with, and it drives me crazy.

Holly, you have been one of my saviors throughout this mess.

Don't let these little you know what's, beat you!! I wish we could

all get together, and go and choke the people who should be

helping all of us. It's a terrible thing that money is more important

than people.

You're an awesome lady, and you have been through a lot, but please

keep up your awesome Holly spirit, and continue to kick these little

demons out of your life.

I'll say an extra prayer for you.

God Bless you Holly!

Sincerely,

Sue

Bad News

My dad seems to be having symptoms now. Im all out of ESP products. He's not really coopertaing with treatment, and money is getting tight. This thing has been a complete nightmare. I am completely heartbroken.I dont know how much more i can take.

[Guest guest]

Rita. What is heat treated Boric Acid? What is that? Is it the very fine boric acid white powder?

mel

From: Rita and Mike Carlson <m.r.carlson@...>Subject: Re: Bad Newsbird mites Date: Sunday, July 5, 2009, 6:57 PM

Holly, hold on.......you can do this. Get some of that heat treated boric acid.....wash everything with it and put at least 2 cups in each"rinse" cycle. The Benzoyl Peroxide has been doing great at killing anything that gets on or in the skin. Cover the beds with plastic..... .if your Father is having a hard time with the plastic on his bed get several of those thin, cheap mattress liners that you can use on this bed and then wash it with each washing of the sheets. Hold on....you can do this.......Rita

Bad News

My dad seems to be having symptoms now. Im all out of ESP products. He's not really coopertaing with treatment, and money is getting tight. This thing has been a complete nightmare. I am completely heartbroken.I dont know how much more i can take.

[Guest guest]

Holly: Is there alot of carpet where you live? Can you take up the carpet? These things just seem to live in carpet. Can you remove the carpet all the way down in your truck? It would make it so much easier for you to deal with all this. Maybe truly blessed can chime in here. She was really good at fighting these things, and Rita will walk you through it, too.

Get your rest. You need your rest. If you need to take something to sleep, by all means, do it. Buy some air mattresses. That made all the difference for me. I went from suicidal to almost normal when I bought my twin sized air mattress. I'm not kidding here. My doctor shoved me to a psychiatrist who gave me all this psych drugs that I just piled up in a box. I kept on getting reinfected from my bed. nothing I did worked.

mel

From: slathrop@... <slathrop@...>Subject: Re: Bad Newsbird mites Date: Sunday, July 5, 2009, 7:07 PM

Oh Holly, how discouraging.

I ask myself all of the time, I don't know how much

more mental anguish that I can take. I keep worrying

about the people that I work with, and it drives me crazy.

Holly, you have been one of my saviors throughout this mess.

Don't let these little you know what's, beat you!! I wish we could

all get together, and go and choke the people who should be

helping all of us. It's a terrible thing that money is more important

than people.

You're an awesome lady, and you have been through a lot, but please

keep up your awesome Holly spirit, and continue to kick these little

demons out of your life.

I'll say an extra prayer for you.

God Bless you Holly!

Sincerely,

Sue

Bad News

My dad seems to be having symptoms now. Im all out of ESP products. He's not really coopertaing with treatment, and money is getting tight. This thing has been a complete nightmare. I am completely heartbroken.I dont know how much more i can take.

[Guest guest]

Holly, I have some extra soap and shampoo I'd be more than happy to send you if

you want. just email your shipping info.

Bob

>

> My dad seems to be having symptoms now. Im all out of ESP products. He's not

really coopertaing with treatment, and money is getting tight. This thing has

been a complete nightmare. I am completely heartbroken.

> I dont know how much more i can take.

>

[Guest guest]

Holly, I know this sounds drastic, but is there any way you can get dad out of

the home - at least for a week or so while you aggressively treat the home and

car? The logic being: get him the hell out before the " things " terminally mark

him as a host. My limited experience with these parasites suggests time is of

the essence. The sooner he is removed from their source, the better his chances

of evading their wrath. Yes, it's not always practical or cheap - but neither

are the consequences of lingering in " their " environment.

>

> My dad seems to be having symptoms now. Im all out of ESP products. He's not

really coopertaing with treatment, and money is getting tight. This thing has

been a complete nightmare. I am completely heartbroken.

> I dont know how much more i can take.

>

[Guest guest]

Holly,

I feel sad when I hear this from you. You have helped me with encouragement in the past, and show that you really care for people here. If there is anyway that I can help let me know. Jay

From: Holly <hollyjane11@...>bird mites Sent: Sunday, July 5, 2009 6:17:14 PMSubject: Bad News

My dad seems to be having symptoms now. Im all out of ESP products. He's not really coopertaing with treatment, and money is getting tight. This thing has been a complete nightmare. I am completely heartbroken.I dont know how much more i can take.

Make your browsing faster, safer, and easier with the new Internet Explorer® 8. Optimized for Get it Now for Free!

[Guest guest]

Thank you Rita, i think we will try and get some BP. I am holding on. I know it

can be done, but my dad doesnt and is being uncooperative. He thinks that i dont

know what im doing. Go figure.

>

> Holly, hold on.......you can do this. Get some of that heat treated boric

acid.....wash everything with it and put at least 2 cups in each " rinse " cycle.

The Benzoyl Peroxide has been doing great at killing anything that gets on or in

the skin. Cover the beds with plastic......if your Father is having a hard time

with the plastic on his bed get several of those thin, cheap mattress liners

that you can use on this bed and then wash it with each washing of the sheets.

Hold on....you can do this.......Rita

>

>

> Bad News

>

>

>

>

>

> My dad seems to be having symptoms now. Im all out of ESP products. He's not

really coopertaing with treatment, and money is getting tight. This thing has

been a complete nightmare. I am completely heartbroken.

> I dont know how much more i can take.

>

[Guest guest]

Perfect! Thats exactly what we need. Thanks Mel

>

>

> From: slathrop@... <slathrop@...>

> Subject: Re: Bad News

> bird mites

> Date: Sunday, July 5, 2009, 7:07 PM

>

>

>

>

>

>

>

>

>

> Oh Holly, how discouraging.

>  

> I ask myself all of the time, I don't know how much

> more mental anguish that I can take.  I keep worrying

> about the people that I work with, and it drives me crazy.

>  

> Holly, you have been one of my saviors throughout this mess.

>  

> Don't let these little you know what's, beat you!!  I wish we could

> all get together, and go and choke the people who should be

> helping all of us.  It's a terrible thing that money is more important

> than people.

>  

> You're an awesome lady, and you have been through a lot, but please

> keep up your awesome Holly spirit, and continue to kick these little

> demons out of your life.

>  

> I'll say an extra prayer for you.

>  

> God Bless you Holly!

>  

> Sincerely,

> Sue

>

> Bad News

>

>

>

> My dad seems to be having symptoms now. Im all out of ESP products. He's not

really coopertaing with treatment, and money is getting tight. This thing has

been a complete nightmare. I am completely heartbroken.

> I dont know how much more i can take.

>

[Guest guest]

Hi Sheila

Unable to view the article Re Weetman, could you give me the link please.

Love Ina

[Guest guest]

Does

this work Ina? http://www.medschools.ac.uk/News/Pages/Professor-Tony-Weetman-announced-as-new-Chair.aspx

Luv - Sheila

From: thyroid treatment

[mailto:thyroid treatment ] On Behalf Of iwhitlam@...

Sent: 06 August 2009 15:21

thyroid treatment

Subject: Re:bad news

Hi Sheila

Unable to view the article Re Weetman, could you give me the link

please.

Love Ina

No virus

found in this incoming message.

Checked by AVG - www.avg.com

Version: 8.5.392 / Virus Database: 270.13.43/2280 - Release Date: 08/05/09

18:23:00

[Guest guest]

On Thu, 6 Aug 2009 17:11:58 +0100, you wrote:

>Does this work Ina?

That was broken and needed joining

This one should take you to the same place

http://tiny.cc/hcVMR

Nick

[Guest guest]

Urgent News: http://www.healthfreedomusa.org/?p=3516

Urgent Action Item - Sign once for every member of your family to add your voice

to the more than 2 million emails demanding the right to say " NO! " to pandemic

vaccines:

http://salsa.democracyinaction.org/o/568/campaign.jsp?campaign_KEY=27275

I am really sorry to inform you that today HHS Secretary Sebelius announced to

Congress that the H1N1 Swine Flu Vaccines have been approved. She denied that

any adjuvants have been approved, but her statement is logically inconsistent

because two of the vaccines which were approved, Novartis and GSK entries into

the windfall sweepstakes, are adjuvanted with squalene. Not surprisingly, the

Secretary prevaricated.

The Natural Solutions Foundation will, of course, appeal the decision. The

might of the WHO and FDA is serving the real masters: Big Pharma and beyond.

What does that mean for us? Well, if you are in the US, within a short time you

will not be able to travel or carry out other normal activities without proof of

vaccination. There is considerable speculation that such proof will be

contained in nano chips inserted in the vaccine. This is certainly possible but

so far, the only information on this topic is unsubstantiated.

What is substantiated, however, is that the notion of " voluntary " in the US is

not what you and I think it means. No, in this context, voluntary means that

the vaccine will be offered to you. If you accept, you will be injected with a

potentially lethal mix. If you do not accept, you will be faced with

incarceration of unknown duration.

While the Secretary disingenuously says that no adjuvants have been approved,

she knows full well that the emerging FDA " plan " appears to be, when using non

adjuvanted vaccines, add a separate injection of the deadly immune irritant and

make sure that an entire populace can think of only one thing: the loss of their

health, families and way of life.

I know that some of you on this Forum have been considering when the right time

to come to Panama, see the Valley of the Moon , invest in the project,

secure your land/site, get out of the way of a dangerous vaccine, etc.

Well, as of today's 2 PM hearing, I would submit that if you are concerned about

the vaccine (and you are really deeply sleeping if you are not), then when the

vaccines roll out " several weeks ahead of schedule " , which means pretty close to

now, then you will have to ask whether leaving or staying right now makes the

most sense.

The Foundation Trustees would like to do what we can to make it easier to get

here and out of harm's way, at least for the moment.

We have beautiful land ready to be purchased. We have a gathering community of

people who are committed to this idea of a sustainable teaching community with

children and without, with pets and without, with experience in this arena or in

others.

If you are seriously interested in getting out of harm's way by coming to the

Valley of the Moon Eco Demonstration Project,

www.NaturalSolutionsFoundation.org, here in the bountiful, beautiful Chiriqi

Highlands, we welcome your visit and your contact to discuss how being part of

the community can work for you. NOW! We have run out of time.

Please contact Ralph Fucetola, our Counsel and Trustee.

Ralph's phone number is 973-300-4594. His Skype is vitaminlawyer and his email

is ralph.fucetola@....

What about vaccines in Panama, you might well ask. Indeed, you should. I do

not want to say much on the internet but we are working directly with the top

levels of government on this issue. We have, I believe, an excellent

possibility to accomplish what we all want to have: a safe, fertile, sustainable

place to live and spread what we know in peace and health.

I am looking forward to seeing you when you come to visit and to having you as

my neighbors. Staying in the US over the next period of time will mean that you

face potentially lethal vaccine threats, or equally potentially lethal

incarceration threats.

Yours with great concern in health and freedom,

Dr. Rima

[Guest guest]

Urgent News: http://www.healthfreedomusa.org/?p=3516

Urgent Action Item - Sign once for every member of your family to add your voice

to the more than 2 million emails demanding the right to say " NO! " to pandemic

vaccines:

http://salsa.democracyinaction.org/o/568/campaign.jsp?campaign_KEY=27275

I am really sorry to inform you that today HHS Secretary Sebelius announced to

Congress that the H1N1 Swine Flu Vaccines have been approved. She denied that

any adjuvants have been approved, but her statement is logically inconsistent

because two of the vaccines which were approved, Novartis and GSK entries into

the windfall sweepstakes, are adjuvanted with squalene. Not surprisingly, the

Secretary prevaricated.

The Natural Solutions Foundation will, of course, appeal the decision. The

might of the WHO and FDA is serving the real masters: Big Pharma and beyond.

What does that mean for us? Well, if you are in the US, within a short time you

will not be able to travel or carry out other normal activities without proof of

vaccination. There is considerable speculation that such proof will be

contained in nano chips inserted in the vaccine. This is certainly possible but

so far, the only information on this topic is unsubstantiated.

What is substantiated, however, is that the notion of " voluntary " in the US is

not what you and I think it means. No, in this context, voluntary means that

the vaccine will be offered to you. If you accept, you will be injected with a

potentially lethal mix. If you do not accept, you will be faced with

incarceration of unknown duration.

While the Secretary disingenuously says that no adjuvants have been approved,

she knows full well that the emerging FDA " plan " appears to be, when using non

adjuvanted vaccines, add a separate injection of the deadly immune irritant and

make sure that an entire populace can think of only one thing: the loss of their

health, families and way of life.

I know that some of you on this Forum have been considering when the right time

to come to Panama, see the Valley of the Moon , invest in the project,

secure your land/site, get out of the way of a dangerous vaccine, etc.

Well, as of today's 2 PM hearing, I would submit that if you are concerned about

the vaccine (and you are really deeply sleeping if you are not), then when the

vaccines roll out " several weeks ahead of schedule " , which means pretty close to

now, then you will have to ask whether leaving or staying right now makes the

most sense.

The Foundation Trustees would like to do what we can to make it easier to get

here and out of harm's way, at least for the moment.

We have beautiful land ready to be purchased. We have a gathering community of

people who are committed to this idea of a sustainable teaching community with

children and without, with pets and without, with experience in this arena or in

others.

If you are seriously interested in getting out of harm's way by coming to the

Valley of the Moon Eco Demonstration Project,

www.NaturalSolutionsFoundation.org, here in the bountiful, beautiful Chiriqi

Highlands, we welcome your visit and your contact to discuss how being part of

the community can work for you. NOW! We have run out of time.

Please contact Ralph Fucetola, our Counsel and Trustee.

Ralph's phone number is 973-300-4594. His Skype is vitaminlawyer and his email

is ralph.fucetola@....

What about vaccines in Panama, you might well ask. Indeed, you should. I do

not want to say much on the internet but we are working directly with the top

levels of government on this issue. We have, I believe, an excellent

possibility to accomplish what we all want to have: a safe, fertile, sustainable

place to live and spread what we know in peace and health.

I am looking forward to seeing you when you come to visit and to having you as

my neighbors. Staying in the US over the next period of time will mean that you

face potentially lethal vaccine threats, or equally potentially lethal

incarceration threats.

Yours with great concern in health and freedom,

Dr. Rima

[Guest guest]

I'm so sorry to hear about the infection.

Sending good thoughts for your recovery, and a successful

implant in 2 months!

Take Care,

Donna, 57-SLE,DDD, etc.

[Guest guest]

I felt the same way...grrrrrrr. Now back to finishing downloading and crowding

my music list with podcasts.

Sent on the Sprint® Now Network from my BlackBerry®

bad news

I knew I shouldn't hook my ipod up to my computer.  I just lost all those old

episodes that I just told you I lost from my itunes podcast library.  I have had

them for years.

I am not happy.

Ha.  Is this a test to see if I will go eat due to the frustration?

[Guest guest]

I felt the same way...grrrrrrr. Now back to finishing downloading and crowding

my music list with podcasts.

Sent on the Sprint® Now Network from my BlackBerry®

bad news

I knew I shouldn't hook my ipod up to my computer.  I just lost all those old

episodes that I just told you I lost from my itunes podcast library.  I have had

them for years.

I am not happy.

Ha.  Is this a test to see if I will go eat due to the frustration?

[Guest guest]

I know it's too late for those of you that have already lost episodes, but in

itunes in the podcast page, down at the bottom there's a button for " settings "

and in there you can set it to save all episodes or just a certain number of

each. I haven't lost all my episodes and I have mine set to save all episodes.

Hope this helps in the future at least! Sorry you lost all your previous

episodes.

[Guest guest]

I know it's too late for those of you that have already lost episodes, but in

itunes in the podcast page, down at the bottom there's a button for " settings "

and in there you can set it to save all episodes or just a certain number of

each. I haven't lost all my episodes and I have mine set to save all episodes.

Hope this helps in the future at least! Sorry you lost all your previous

episodes.

[Guest guest]

Well we saw our ortho today. Not good! 's curve is now 79*. I am glad that we are Dr H on the 23rd of Dec. And really hoping that he schedules the MRI when we are there. This is all progressing too fast. Has anyone else had a child with a high curve like ? And had good results with casting?Scared! :(Keeley Sent from my BlackBerry® wireless handheldFrom: Troy Willmann <troy.willmann@...>Sender: infantile scoliosis treatment Date: Mon, 13 Dec 2010 14:11:42 -0800 (PST)<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: Re: New Here - 4 month old son with scoliosis , My daughter was diagnosed at almost 2 months old. They called it infantile scoliosis with no known cause. Novella had a curve of about 32*. We waited 2 months and came back when she was 4 months old and her curve had progressed to 46*. We then had her casted at 4 months old. However, every child is different. My daughter also had hip dysplasia. We are treated in Kansas City Missouri and our doctors, thankfully, are aware of the proper method of casting. Novella is now 8 months old and was casted for 4 months in 3 different casts. Novella had an MRI after her last cast was taken off and it showed now congenital deformities. However it is showed signs of a connective tissue disorder. The casting will probably not correct Novellas scoliosis but it will keep her in a safe range ofcurvature as her curve did correct about 6* and thank goodness it did not get ant worse. So casting for us is keeping us away from surgery as long as possible. If you choose casting for your child you will be amazed at his resilience. You will see that every kids story on here is different so I cannot say what the best decision is for you but the best decision for us was to cast and cast early as it was a safe option for us. If we had not casted Novella her curve may have progressed to a life threatening state. In my opinion a 2 month wait is too long. In my experience with doctors it seems that curves are relatively unpredictable. So it could be hard to definitively say whether your sons curve with progress or not. I will say that I wish we would have gotten the MRI sooner. When casting we were expecting the best because we got great results while in cast but after the cast came off her curve popped back out. This is due to the possibleconnective tissue disorder that was only found because of the MRI. I do not want to frighten you because Novella's story is certainly not everyone story. It is just nice to get the MRI out of the way because an x-ray and physical examination cannot tell the full story of what is going on with the curve like an MRI can. I hope this help. The best way to advocate for your child is to have as much information as possible and then take that information and use it as you see fit for you and your child. Knowledge is the power! If you feel like 2 months is too long call other doctors, get second opinions, call the current doctors office DAILY and see if there were any cancellations so you can move your appointment up. Hang in there. I know it is tough. Novella's Mommy, AliFrom: genericallyloud <jennifer.leggett@...>infantile scoliosis treatment Sent: Mon, December 13, 2010 2:31:04 PMSubject: Re: New Here - 4 month old son with scoliosis Welcome! I would not worry too too much about a 1-2 months wait. We had about a 6 week wait to get in and at your son's age he has a ton of time so I would not worry. Also most doctorsdo not cast at 4 months. I think Mehta tried to wait until a year, tough kids on this group I think have been casted between 6 and 9 months. I would make sure that the doctor does Mehta style casting so you won't have anther 1-2 month wait after seeing this specialist. Jenn Mommy to Cole, 2.5 years old, 1st brace from rochester, 0 degrees laying down - down from 47 > > Hi, > My son, Tyler, was recently diagnosed with scoliosis. Shortly after his 3 month routine checkup a family member pointed out that Tyler 'always seemed scrunched up'. I initially shrugged it off thinking that he was just too young to hold his back straight, but sure enough when we did try to straighten him out,we realized that he could not hold it. We also noticed that he had a hump on his upper left back when pulled to a sitting position. We scheduled an appt with the ped and he sent us to have xrays. The xrays that there was "gentle rotoscoliosis of the thoracolumbar spine convex to the left, with no obvious bony abnormality." A degree of curvature was not given and the ped said he was not sure how to measure it. Although the ped felt comfortable telling me it was not congenital, he would not give a name to it as he is not an expert. We have been referred to Dr. Hedden at the Edmonton Stollery and were told to expect a 1-2 month wait for an appointment. > We, like all others here, are concerned with the wait time and the potential for progression of the curve. We do not know if it will help, but are taking advice of a physical therapist and trying to do what we can to strengthening his left and lengthening his right and to encourage him to workagainst the curve. > A few questions I have are: > 1) Without knowing what the degree of curvature is, or the RVAD, is there any way of telling if it is progressive? Any experts on reading xrays out there? (My husband and I looked up the formula, but decided since neither of us are experts we'd better not try to find the degree because if we were wrong, we'd either be getting our hopes or thinking something was worse than it was.) > 2) Being that a curve was seen on an xray, regardless if it is progressive or not, would it not be prudent to cast any child (of a young age) to straighten the spine permanently, leaving less chance of something occurring during puberty that would require more invasive surgeries? Or will non-progressive types never progress, even during growth spurts in the later years? > 3) Any advice on getting an appointment anywhere sooner? We are willing to travel. Once we have an appointment date withDr. Hedden, I will contact the Dr.'s office and try to be put on a cancellation list, just in case. > Hurry up and wait.... so frustrating! > Thanks for your input. > Hubick > Edmonton, Alberta, Canada >

[Guest guest]

Aww. So so sorry:( There are others on here that can help you. I will keep my fingers crossed. Could you call and bump your appointment up? I bet based on urgency you could. Sometimes it takes a few days to coordinate MRI and insurance. TameSent from my iPhoneOn Dec 13, 2010, at 7:21 PM, kfaul@... wrote:

Well we saw our ortho today. Not good! 's curve is now 79*. I am glad that we are Dr H on the 23rd of Dec. And really hoping that he schedules the MRI when we are there. This is all progressing too fast. Has anyone else had a child with a high curve like ? And had good results with casting?Scared! :(Keeley Sent from my BlackBerry® wireless handheldFrom: Troy Willmann <troy.willmann@...>

Sender: infantile scoliosis treatment

Date: Mon, 13 Dec 2010 14:11:42 -0800 (PST)<infantile scoliosis treatment >Reply infantile scoliosis treatment

Subject: Re: Re: New Here - 4 month old son with scoliosis

, My daughter was diagnosed at almost 2 months old. They called it infantile scoliosis with no known cause. Novella had a curve of about 32*. We waited 2 months and came back when she was 4 months old and her curve had progressed to 46*. We then had her casted at 4 months old. However, every child is different. My daughter also had hip dysplasia. We are treated in Kansas City Missouri and our doctors, thankfully, are aware of the proper method of casting. Novella is now 8 months old and was casted for 4 months in 3 different casts. Novella had an MRI after her last cast was taken off and it showed now congenital deformities. However it is showed signs of a connective tissue disorder. The casting will probably not correct Novellas scoliosis but it will keep her in a safe range of

curvature as her curve did correct about 6* and thank goodness it did not get ant worse. So casting for us is keeping us away from surgery as long as possible. If you choose casting for your child you will be amazed at his resilience. You will see that every kids story on here is different so I cannot say what the best decision is for you but the best decision for us was to cast and cast early as it was a safe option for us. If we had not casted Novella her curve may have progressed to a life threatening state. In my opinion a 2 month wait is too long. In my experience with doctors it seems that curves are relatively unpredictable. So it could be hard to definitively say whether your sons curve with progress or not. I will say that I wish we would have gotten the MRI sooner. When casting we were expecting the best because we got great results while in cast but after the cast came off her curve popped back out. This is due to the possible

connective tissue disorder that was only found because of the MRI. I do not want to frighten you because Novella's story is certainly not everyone story. It is just nice to get the MRI out of the way because an x-ray and physical examination cannot tell the full story of what is going on with the curve like an MRI can. I hope this help. The best way to advocate for your child is to have as much information as possible and then take that information and use it as you see fit for you and your child. Knowledge is the power! If you feel like 2 months is too long call other doctors, get second opinions, call the current doctors office DAILY and see if there were any cancellations so you can move your appointment up. Hang in there. I know it is tough. Novella's Mommy, AliFrom: genericallyloud <jennifer.leggett@...>infantile scoliosis treatment Sent: Mon, December 13, 2010 2:31:04 PMSubject: Re: New Here - 4 month old son with scoliosis Welcome! I would not worry too too much about a 1-2 months wait. We had about a 6 week wait to get in and at your son's age he has a ton of time so I would not worry. Also most

doctors

do not cast at 4 months. I think Mehta tried to wait until a year, tough kids on this group I think have been casted between 6 and 9 months. I would make sure that the doctor does Mehta style casting so you won't have anther 1-2 month wait after seeing this specialist. Jenn Mommy to Cole, 2.5 years old, 1st brace from rochester, 0 degrees laying down - down from 47 > > Hi, > My son, Tyler, was recently diagnosed with scoliosis. Shortly after his 3 month routine checkup a family member pointed out that Tyler 'always seemed scrunched up'. I initially shrugged it off thinking that he was just too young to hold his back straight,

but sure enough when we did try to straighten him out,

we realized that he could not hold it. We also noticed that he had a hump on his upper left back when pulled to a sitting position. We scheduled an appt with the ped and he sent us to have xrays. The xrays that there was "gentle rotoscoliosis of the thoracolumbar spine convex to the left, with no obvious bony abnormality." A degree of curvature was not given and the ped said he was not sure how to measure it. Although the ped felt comfortable telling me it was not congenital, he would not give a name to it as he is not an expert. We have been referred to Dr. Hedden at the Edmonton Stollery and were told to expect a 1-2 month wait for an appointment. > We, like all others here, are concerned with the wait time and the potential for progression of the curve. We do not know if it will help, but are taking advice of a physical therapist and trying to do what we can to strengthening his left and lengthening his right and to encourage him to work

against the curve. > A few questions I have are: > 1) Without knowing what the degree of curvature is, or the RVAD, is there any way of telling if it is progressive? Any experts on reading xrays out there? (My husband and I looked up the formula, but decided since neither of us are experts we'd better not try to find the degree because if we were wrong, we'd either be getting our hopes or thinking something was worse than it was.) > 2) Being that a curve was seen on an xray, regardless if it is progressive or not, would it not be prudent to cast any child (of a young age) to straighten the spine permanently, leaving less chance of something occurring during puberty that would require more invasive surgeries? Or will non-progressive types never progress, even during growth spurts in the later years? > 3) Any advice on getting an appointment anywhere sooner? We are willing to travel. Once we have an appointment date with

Dr. Hedden, I will contact the Dr.'s office and try to be put on a cancellation list, just in case. > Hurry up and wait.... so frustrating! > Thanks for your input. > Hubick > Edmonton, Alberta, Canada >

[Guest guest]

My sons curve was 81* before casting. He was 15* in his 1st cast and is now 7* in his 2nd cast. The Dr hopes to eventually get him straight in the cast. The Dr won't rule out surgery but I'm standing firm with my faith! Sent from my Verizon Wireless BlackBerryFrom: kfaul@...Sender: infantile scoliosis treatment Date: Tue, 14 Dec 2010 01:21:55 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: bad news

Well we saw our ortho today. Not good! 's curve is now 79*. I am glad that we are Dr H on the 23rd of Dec. And really hoping that he schedules the MRI when we are there. This is all progressing too fast. Has anyone else had a child with a high curve like ? And had good results with casting?Scared! :(Keeley Sent from my BlackBerry® wireless handheldFrom: Troy Willmann <troy.willmann@...>Sender: infantile scoliosis treatment Date: Mon, 13 Dec 2010 14:11:42 -0800 (PST)<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: Re: New Here - 4 month old son with scoliosis , My daughter was diagnosed at almost 2 months old. They called it infantile scoliosis with no known cause. Novella had a curve of about 32*. We waited 2 months and came back when she was 4 months old and her curve had progressed to 46*. We then had her casted at 4 months old. However, every child is different. My daughter also had hip dysplasia. We are treated in Kansas City Missouri and our doctors, thankfully, are aware of the proper method of casting. Novella is now 8 months old and was casted for 4 months in 3 different casts. Novella had an MRI after her last cast was taken off and it showed now congenital deformities. However it is showed signs of a connective tissue disorder. The casting will probably not correct Novellas scoliosis but it will keep her in a safe range ofcurvature as her curve did correct about 6* and thank goodness it did not get ant worse. So casting for us is keeping us away from surgery as long as possible. If you choose casting for your child you will be amazed at his resilience. You will see that every kids story on here is different so I cannot say what the best decision is for you but the best decision for us was to cast and cast early as it was a safe option for us. If we had not casted Novella her curve may have progressed to a life threatening state. In my opinion a 2 month wait is too long. In my experience with doctors it seems that curves are relatively unpredictable. So it could be hard to definitively say whether your sons curve with progress or not. I will say that I wish we would have gotten the MRI sooner. When casting we were expecting the best because we got great results while in cast but after the cast came off her curve popped back out. This is due to the possibleconnective tissue disorder that was only found because of the MRI. I do not want to frighten you because Novella's story is certainly not everyone story. It is just nice to get the MRI out of the way because an x-ray and physical examination cannot tell the full story of what is going on with the curve like an MRI can. I hope this help. The best way to advocate for your child is to have as much information as possible and then take that information and use it as you see fit for you and your child. Knowledge is the power! If you feel like 2 months is too long call other doctors, get second opinions, call the current doctors office DAILY and see if there were any cancellations so you can move your appointment up. Hang in there. I know it is tough. Novella's Mommy, AliFrom: genericallyloud <jennifer.leggett@...>infantile scoliosis treatment Sent: Mon, December 13, 2010 2:31:04 PMSubject: Re: New Here - 4 month old son with scoliosis Welcome! I would not worry too too much about a 1-2 months wait. We had about a 6 week wait to get in and at your son's age he has a ton of time so I would not worry. Also most doctorsdo not cast at 4 months. I think Mehta tried to wait until a year, tough kids on this group I think have been casted between 6 and 9 months. I would make sure that the doctor does Mehta style casting so you won't have anther 1-2 month wait after seeing this specialist. Jenn Mommy to Cole, 2.5 years old, 1st brace from rochester, 0 degrees laying down - down from 47 > > Hi, > My son, Tyler, was recently diagnosed with scoliosis. Shortly after his 3 month routine checkup a family member pointed out that Tyler 'always seemed scrunched up'. I initially shrugged it off thinking that he was just too young to hold his back straight, but sure enough when we did try to straighten him out,we realized that he could not hold it. We also noticed that he had a hump on his upper left back when pulled to a sitting position. We scheduled an appt with the ped and he sent us to have xrays. The xrays that there was "gentle rotoscoliosis of the thoracolumbar spine convex to the left, with no obvious bony abnormality." A degree of curvature was not given and the ped said he was not sure how to measure it. Although the ped felt comfortable telling me it was not congenital, he would not give a name to it as he is not an expert. We have been referred to Dr. Hedden at the Edmonton Stollery and were told to expect a 1-2 month wait for an appointment. > We, like all others here, are concerned with the wait time and the potential for progression of the curve. We do not know if it will help, but are taking advice of a physical therapist and trying to do what we can to strengthening his left and lengthening his right and to encourage him to workagainst the curve. > A few questions I have are: > 1) Without knowing what the degree of curvature is, or the RVAD, is there any way of telling if it is progressive? Any experts on reading xrays out there? (My husband and I looked up the formula, but decided since neither of us are experts we'd better not try to find the degree because if we were wrong, we'd either be getting our hopes or thinking something was worse than it was.) > 2) Being that a curve was seen on an xray, regardless if it is progressive or not, would it not be prudent to cast any child (of a young age) to straighten the spine permanently, leaving less chance of something occurring during puberty that would require more invasive surgeries? Or will non-progressive types never progress, even during growth spurts in the later years? > 3) Any advice on getting an appointment anywhere sooner? We are willing to travel. Once we have an appointment date withDr. Hedden, I will contact the Dr.'s office and try to be put on a cancellation list, just in case. > Hurry up and wait.... so frustrating! > Thanks for your input. > Hubick > Edmonton, Alberta, Canada >

[Guest guest]

Our ortho was going to call and send in 's report. Hopefully they can schedule the MRI when we get to Edmonton. Has anyone been casted without MRI?Sent from my BlackBerry® wireless handheldFrom: Tame Olson <dazies2001@...>Sender: infantile scoliosis treatment Date: Mon, 13 Dec 2010 17:27:37 -0800 (PST)infantile scoliosis treatment <infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: bad news Aww. So so sorry:( There are others on here that can help you. I will keep my fingers crossed. Could you call and bump your appointment up? I bet based on urgency you could. Sometimes it takes a few days to coordinate MRI and insurance. TameSent from my iPhoneOn Dec 13, 2010, at 7:21 PM, kfaul@... wrote:Well we saw our ortho today. Not good! 's curve is now 79*. I am glad that we are Dr H on the 23rd of Dec. And really hoping that he schedules the MRI when we are there. This is all progressing too fast. Has anyone else had a child with a high curve like ? And had good results with casting?Scared! :(Keeley Sent from my BlackBerry® wireless handheldFrom: Troy Willmann <troy.willmann@...>Sender: infantile scoliosis treatment Date: Mon, 13 Dec 2010 14:11:42 -0800 (PST)<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: Re: New Here - 4 month old son with scoliosis , My daughter was diagnosed at almost 2 months old. They called it infantile scoliosis with no known cause. Novella had a curve of about 32*. We waited 2 months and came back when she was 4 months old and her curve had progressed to 46*. We then had her casted at 4 months old. However, every child is different. My daughter also had hip dysplasia. We are treated in Kansas City Missouri and our doctors, thankfully, are aware of the proper method of casting. Novella is now 8 months old and was casted for 4 months in 3 different casts. Novella had an MRI after her last cast was taken off and it showed now congenital deformities. However it is showed signs of a connective tissue disorder. The casting will probably not correct Novellas scoliosis but it will keep her in a safe range ofcurvature as her curve did correct about 6* and thank goodness it did not get ant worse. So casting for us is keeping us away from surgery as long as possible. If you choose casting for your child you will be amazed at his resilience. You will see that every kids story on here is different so I cannot say what the best decision is for you but the best decision for us was to cast and cast early as it was a safe option for us. If we had not casted Novella her curve may have progressed to a life threatening state. In my opinion a 2 month wait is too long. In my experience with doctors it seems that curves are relatively unpredictable. So it could be hard to definitively say whether your sons curve with progress or not. I will say that I wish we would have gotten the MRI sooner. When casting we were expecting the best because we got great results while in cast but after the cast came off her curve popped back out. This is due to the possibleconnective tissue disorder that was only found because of the MRI. I do not want to frighten you because Novella's story is certainly not everyone story. It is just nice to get the MRI out of the way because an x-ray and physical examination cannot tell the full story of what is going on with the curve like an MRI can. I hope this help. The best way to advocate for your child is to have as much information as possible and then take that information and use it as you see fit for you and your child. Knowledge is the power! If you feel like 2 months is too long call other doctors, get second opinions, call the current doctors office DAILY and see if there were any cancellations so you can move your appointment up. Hang in there. I know it is tough. Novella's Mommy, AliFrom: genericallyloud <jennifer.leggett@...>infantile scoliosis treatment Sent: Mon, December 13, 2010 2:31:04 PMSubject: Re: New Here - 4 month old son with scoliosis Welcome! I would not worry too too much about a 1-2 months wait. We had about a 6 week wait to get in and at your son's age he has a ton of time so I would not worry. Also mostdoctorsdo not cast at 4 months. I think Mehta tried to wait until a year, tough kids on this group I think have been casted between 6 and 9 months. I would make sure that the doctor does Mehta style casting so you won't have anther 1-2 month wait after seeing this specialist. Jenn Mommy to Cole, 2.5 years old, 1st brace from rochester, 0 degrees laying down - down from 47 > > Hi, > My son, Tyler, was recently diagnosed with scoliosis. Shortly after his 3 month routine checkup a family member pointed out that Tyler 'always seemed scrunched up'. I initially shrugged it off thinking that he was just too young to hold his back straight,but sure enough when we did try to straighten him out,we realized that he could not hold it. We also noticed that he had a hump on his upper left back when pulled to a sitting position. We scheduled an appt with the ped and he sent us to have xrays. The xrays that there was "gentle rotoscoliosis of the thoracolumbar spine convex to the left, with no obvious bony abnormality." A degree of curvature was not given and the ped said he was not sure how to measure it. Although the ped felt comfortable telling me it was not congenital, he would not give a name to it as he is not an expert. We have been referred to Dr. Hedden at the Edmonton Stollery and were told to expect a 1-2 month wait for an appointment. > We, like all others here, are concerned with the wait time and the potential for progression of the curve. We do not know if it will help, but are taking advice of a physical therapist and trying to do what we can to strengthening his left and lengthening his right and to encourage him to workagainst the curve. > A few questions I have are: > 1) Without knowing what the degree of curvature is, or the RVAD, is there any way of telling if it is progressive? Any experts on reading xrays out there? (My husband and I looked up the formula, but decided since neither of us are experts we'd better not try to find the degree because if we were wrong, we'd either be getting our hopes or thinking something was worse than it was.) > 2) Being that a curve was seen on an xray, regardless if it is progressive or not, would it not be prudent to cast any child (of a young age) to straighten the spine permanently, leaving less chance of something occurring during puberty that would require more invasive surgeries? Or will non-progressive types never progress, even during growth spurts in the later years? > 3) Any advice on getting an appointment anywhere sooner? We are willing to travel. Once we have an appointment date withDr. Hedden, I will contact the Dr.'s office and try to be put on a cancellation list, just in case. > Hurry up and wait.... so frustrating! > Thanks for your input. > Hubick > Edmonton, Alberta, Canada >

[Guest guest]

I hope we can see correction like your son. That's great! How old is your son?Sent from my BlackBerry® wireless handheldFrom: amandaharrelson1984@...Sender: infantile scoliosis treatment Date: Tue, 14 Dec 2010 01:30:22 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: bad news

My sons curve was 81* before casting. He was 15* in his 1st cast and is now 7* in his 2nd cast. The Dr hopes to eventually get him straight in the cast. The Dr won't rule out surgery but I'm standing firm with my faith! Sent from my Verizon Wireless BlackBerryFrom: kfaul@...Sender: infantile scoliosis treatment Date: Tue, 14 Dec 2010 01:21:55 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: bad news

Well we saw our ortho today. Not good! 's curve is now 79*. I am glad that we are Dr H on the 23rd of Dec. And really hoping that he schedules the MRI when we are there. This is all progressing too fast. Has anyone else had a child with a high curve like ? And had good results with casting?Scared! :(Keeley Sent from my BlackBerry® wireless handheldFrom: Troy Willmann <troy.willmann@...>Sender: infantile scoliosis treatment Date: Mon, 13 Dec 2010 14:11:42 -0800 (PST)<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: Re: New Here - 4 month old son with scoliosis , My daughter was diagnosed at almost 2 months old. They called it infantile scoliosis with no known cause. Novella had a curve of about 32*. We waited 2 months and came back when she was 4 months old and her curve had progressed to 46*. We then had her casted at 4 months old. However, every child is different. My daughter also had hip dysplasia. We are treated in Kansas City Missouri and our doctors, thankfully, are aware of the proper method of casting. Novella is now 8 months old and was casted for 4 months in 3 different casts. Novella had an MRI after her last cast was taken off and it showed now congenital deformities. However it is showed signs of a connective tissue disorder. The casting will probably not correct Novellas scoliosis but it will keep her in a safe range ofcurvature as her curve did correct about 6* and thank goodness it did not get ant worse. So casting for us is keeping us away from surgery as long as possible. If you choose casting for your child you will be amazed at his resilience. You will see that every kids story on here is different so I cannot say what the best decision is for you but the best decision for us was to cast and cast early as it was a safe option for us. If we had not casted Novella her curve may have progressed to a life threatening state. In my opinion a 2 month wait is too long. In my experience with doctors it seems that curves are relatively unpredictable. So it could be hard to definitively say whether your sons curve with progress or not. I will say that I wish we would have gotten the MRI sooner. When casting we were expecting the best because we got great results while in cast but after the cast came off her curve popped back out. This is due to the possibleconnective tissue disorder that was only found because of the MRI. I do not want to frighten you because Novella's story is certainly not everyone story. It is just nice to get the MRI out of the way because an x-ray and physical examination cannot tell the full story of what is going on with the curve like an MRI can. I hope this help. The best way to advocate for your child is to have as much information as possible and then take that information and use it as you see fit for you and your child. Knowledge is the power! If you feel like 2 months is too long call other doctors, get second opinions, call the current doctors office DAILY and see if there were any cancellations so you can move your appointment up. Hang in there. I know it is tough. Novella's Mommy, AliFrom: genericallyloud <jennifer.leggett@...>infantile scoliosis treatment Sent: Mon, December 13, 2010 2:31:04 PMSubject: Re: New Here - 4 month old son with scoliosis Welcome! I would not worry too too much about a 1-2 months wait. We had about a 6 week wait to get in and at your son's age he has a ton of time so I would not worry. Also most doctorsdo not cast at 4 months. I think Mehta tried to wait until a year, tough kids on this group I think have been casted between 6 and 9 months. I would make sure that the doctor does Mehta style casting so you won't have anther 1-2 month wait after seeing this specialist. Jenn Mommy to Cole, 2.5 years old, 1st brace from rochester, 0 degrees laying down - down from 47 > > Hi, > My son, Tyler, was recently diagnosed with scoliosis. Shortly after his 3 month routine checkup a family member pointed out that Tyler 'always seemed scrunched up'. I initially shrugged it off thinking that he was just too young to hold his back straight, but sure enough when we did try to straighten him out,we realized that he could not hold it. We also noticed that he had a hump on his upper left back when pulled to a sitting position. We scheduled an appt with the ped and he sent us to have xrays. The xrays that there was "gentle rotoscoliosis of the thoracolumbar spine convex to the left, with no obvious bony abnormality." A degree of curvature was not given and the ped said he was not sure how to measure it. Although the ped felt comfortable telling me it was not congenital, he would not give a name to it as he is not an expert. We have been referred to Dr. Hedden at the Edmonton Stollery and were told to expect a 1-2 month wait for an appointment. > We, like all others here, are concerned with the wait time and the potential for progression of the curve. We do not know if it will help, but are taking advice of a physical therapist and trying to do what we can to strengthening his left and lengthening his right and to encourage him to workagainst the curve. > A few questions I have are: > 1) Without knowing what the degree of curvature is, or the RVAD, is there any way of telling if it is progressive? Any experts on reading xrays out there? (My husband and I looked up the formula, but decided since neither of us are experts we'd better not try to find the degree because if we were wrong, we'd either be getting our hopes or thinking something was worse than it was.) > 2) Being that a curve was seen on an xray, regardless if it is progressive or not, would it not be prudent to cast any child (of a young age) to straighten the spine permanently, leaving less chance of something occurring during puberty that would require more invasive surgeries? Or will non-progressive types never progress, even during growth spurts in the later years? > 3) Any advice on getting an appointment anywhere sooner? We are willing to travel. Once we have an appointment date withDr. Hedden, I will contact the Dr.'s office and try to be put on a cancellation list, just in case. > Hurry up and wait.... so frustrating! > Thanks for your input. > Hubick > Edmonton, Alberta, Canada >

[Guest guest]

He will be 2 in February. We have the casting done at the Greenville Shriners. The Dr keeps talking about the VEPTOR (sp?). But I hope that several years of casting can cure the scoliosis. How old is yours?Sent from my Verizon Wireless BlackBerryFrom: kfaul@...Sender: infantile scoliosis treatment Date: Tue, 14 Dec 2010 01:36:16 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: bad news

I hope we can see correction like your son. That's great! How old is your son?Sent from my BlackBerry® wireless handheldFrom: amandaharrelson1984@...Sender: infantile scoliosis treatment Date: Tue, 14 Dec 2010 01:30:22 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: bad news

My sons curve was 81* before casting. He was 15* in his 1st cast and is now 7* in his 2nd cast. The Dr hopes to eventually get him straight in the cast. The Dr won't rule out surgery but I'm standing firm with my faith! Sent from my Verizon Wireless BlackBerryFrom: kfaul@...Sender: infantile scoliosis treatment Date: Tue, 14 Dec 2010 01:21:55 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: bad news

Well we saw our ortho today. Not good! 's curve is now 79*. I am glad that we are Dr H on the 23rd of Dec. And really hoping that he schedules the MRI when we are there. This is all progressing too fast. Has anyone else had a child with a high curve like ? And had good results with casting?Scared! :(Keeley Sent from my BlackBerry® wireless handheldFrom: Troy Willmann <troy.willmann@...>Sender: infantile scoliosis treatment Date: Mon, 13 Dec 2010 14:11:42 -0800 (PST)<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: Re: New Here - 4 month old son with scoliosis , My daughter was diagnosed at almost 2 months old. They called it infantile scoliosis with no known cause. Novella had a curve of about 32*. We waited 2 months and came back when she was 4 months old and her curve had progressed to 46*. We then had her casted at 4 months old. However, every child is different. My daughter also had hip dysplasia. We are treated in Kansas City Missouri and our doctors, thankfully, are aware of the proper method of casting. Novella is now 8 months old and was casted for 4 months in 3 different casts. Novella had an MRI after her last cast was taken off and it showed now congenital deformities. However it is showed signs of a connective tissue disorder. The casting will probably not correct Novellas scoliosis but it will keep her in a safe range ofcurvature as her curve did correct about 6* and thank goodness it did not get ant worse. So casting for us is keeping us away from surgery as long as possible. If you choose casting for your child you will be amazed at his resilience. You will see that every kids story on here is different so I cannot say what the best decision is for you but the best decision for us was to cast and cast early as it was a safe option for us. If we had not casted Novella her curve may have progressed to a life threatening state. In my opinion a 2 month wait is too long. In my experience with doctors it seems that curves are relatively unpredictable. So it could be hard to definitively say whether your sons curve with progress or not. I will say that I wish we would have gotten the MRI sooner. When casting we were expecting the best because we got great results while in cast but after the cast came off her curve popped back out. This is due to the possibleconnective tissue disorder that was only found because of the MRI. I do not want to frighten you because Novella's story is certainly not everyone story. It is just nice to get the MRI out of the way because an x-ray and physical examination cannot tell the full story of what is going on with the curve like an MRI can. I hope this help. The best way to advocate for your child is to have as much information as possible and then take that information and use it as you see fit for you and your child. Knowledge is the power! If you feel like 2 months is too long call other doctors, get second opinions, call the current doctors office DAILY and see if there were any cancellations so you can move your appointment up. Hang in there. I know it is tough. Novella's Mommy, AliFrom: genericallyloud <jennifer.leggett@...>infantile scoliosis treatment Sent: Mon, December 13, 2010 2:31:04 PMSubject: Re: New Here - 4 month old son with scoliosis Welcome! I would not worry too too much about a 1-2 months wait. We had about a 6 week wait to get in and at your son's age he has a ton of time so I would not worry. Also most doctorsdo not cast at 4 months. I think Mehta tried to wait until a year, tough kids on this group I think have been casted between 6 and 9 months. I would make sure that the doctor does Mehta style casting so you won't have anther 1-2 month wait after seeing this specialist. Jenn Mommy to Cole, 2.5 years old, 1st brace from rochester, 0 degrees laying down - down from 47 > > Hi, > My son, Tyler, was recently diagnosed with scoliosis. Shortly after his 3 month routine checkup a family member pointed out that Tyler 'always seemed scrunched up'. I initially shrugged it off thinking that he was just too young to hold his back straight, but sure enough when we did try to straighten him out,we realized that he could not hold it. We also noticed that he had a hump on his upper left back when pulled to a sitting position. We scheduled an appt with the ped and he sent us to have xrays. The xrays that there was "gentle rotoscoliosis of the thoracolumbar spine convex to the left, with no obvious bony abnormality." A degree of curvature was not given and the ped said he was not sure how to measure it. Although the ped felt comfortable telling me it was not congenital, he would not give a name to it as he is not an expert. We have been referred to Dr. Hedden at the Edmonton Stollery and were told to expect a 1-2 month wait for an appointment. > We, like all others here, are concerned with the wait time and the potential for progression of the curve. We do not know if it will help, but are taking advice of a physical therapist and trying to do what we can to strengthening his left and lengthening his right and to encourage him to workagainst the curve. > A few questions I have are: > 1) Without knowing what the degree of curvature is, or the RVAD, is there any way of telling if it is progressive? Any experts on reading xrays out there? (My husband and I looked up the formula, but decided since neither of us are experts we'd better not try to find the degree because if we were wrong, we'd either be getting our hopes or thinking something was worse than it was.) > 2) Being that a curve was seen on an xray, regardless if it is progressive or not, would it not be prudent to cast any child (of a young age) to straighten the spine permanently, leaving less chance of something occurring during puberty that would require more invasive surgeries? Or will non-progressive types never progress, even during growth spurts in the later years? > 3) Any advice on getting an appointment anywhere sooner? We are willing to travel. Once we have an appointment date withDr. Hedden, I will contact the Dr.'s office and try to be put on a cancellation list, just in case. > Hurry up and wait.... so frustrating! > Thanks for your input. > Hubick > Edmonton, Alberta, Canada >

[Guest guest]

Keely,

Any way the ortho would order the MRI so that you could have the results by the

appontment on the 23rd?

~amy

mom to Makenna (3.5 yrs, currently in a brace)

> >

> > Hi,

> > My son, Tyler, was recently diagnosed with scoliosis. Shortly after his 3

> >month routine checkup a family member pointed out that Tyler 'always seemed

> >scrunched up'. I initially shrugged it off thinking that he was just too

young

> >to hold his back straight, but sure enough when we did try to straighten him

> >out, we realized that he could not hold it. We also noticed that he had a

hump

> >on his upper left back when pulled to a sitting position. We scheduled an

appt

> >with the ped and he sent us to have xrays. The xrays that there was " gentle

> >rotoscoliosis of the thoracolumbar spine convex to the left, with no obvious

> >bony abnormality. " A degree of curvature was not given and the ped said he

was

> >not sure how to measure it. Although the ped felt comfortable telling me it

was

> >not congenital, he would not give a name to it as he is not an expert. We

have

> >been referred to Dr. Hedden at the Edmonton Stollery and were told to expect

a

> >1-2 month wait for an appointment.

> > We, like all others here, are concerned with the wait time and the potential

> >for progression of the curve. We do not know if it will help, but are taking

> >advice of a physical therapist and trying to do what we can to strengthening

his

> >left and lengthening his right and to encourage him to work against the

curve.

> > A few questions I have are:

> > 1) Without knowing what the degree of curvature is, or the RVAD, is there

any

> >way of telling if it is progressive? Any experts on reading xrays out

there?

> >(My husband and I looked up the formula, but decided since neither of us are

> >experts we'd better not try to find the degree because if we were wrong, we'd

> >either be getting our hopes or thinking something was worse than it was.)

> > 2) Being that a curve was seen on an xray, regardless if it is progressive

or

> >not, would it not be prudent to cast any child (of a young age) to straighten

> >the spine permanently, leaving less chance of something occurring during

puberty

> >that would require more invasive surgeries? Or will non-progressive types

never

> >progress, even during growth spurts in the later years?

> > 3) Any advice on getting an appointment anywhere sooner? We are willing to

> >travel. Once we have an appointment date with Dr. Hedden, I will contact the

> >Dr.'s office and try to be put on a cancellation list, just in case.

> >

> > Hurry up and wait.... so frustrating!

> > Thanks for your input.

> > Hubick

> > Edmonton, Alberta, Canada

> >

>