Symptoms

[Guest guest]

Yes --really bad. That was almost worse than the real pain from RA

Cooky

> " HOLMES, MARK T. " wrote:

>

> Did any of you have tingling feet or hands when you first contracted

> RA? My older brother is telling me that he has had very painful

> shoulder joints for the past 8 days and his feet and hands have been

> tingling with his right hand sometimes feeling numb. Any thoughts? I

> never had tingling hands or feet with my RA, but his sore shoulders

> don't sound good to me.

>

> Thanks,

> mark

[Guest guest]

I have extremely sore shoulders and tingling hands and feet

and I don't have RA. This symptom can go with anything from

cervical nerve damage to fibromyalgia to spasms surrounding

the nerves leading to the hands, to who knows what all else.

it's not definitive of anything.

HTH - Jan K

" HOLMES, MARK T. " wrote:

> Did any of you have tingling feet or hands when you first

> contracted RA? My older brother is telling me that he has

> had very painful shoulder joints for the past 8 days and

> his feet and hands have been tingling with his right hand

> sometimes feeling numb. Any thoughts? I never had

> tingling hands or feet with my RA, but his sore shoulders

> don't sound good to me. Thanks,mark

[Guest guest]

Hi Mark! Geoff Crenshaw here.

> " HOLMES, MARK T. " wrote:

>

> Did any of you have tingling feet or hands when you first contracted

> RA? My older brother is telling me that he has had very painful

> shoulder joints for the past 8 days and his feet and hands have been

> tingling with his right hand sometimes feeling numb. Any thoughts? I

> never had tingling hands or feet with my RA, but his sore shoulders

> don't sound good to me.

Sounds more like a neural problem in the cervical spine area - perhaps a

" pinched " nerve or slight swelling in that region placing pressure on

the spinal cord. Might want to have him checked by a D.O. or

D.O./Chiropractor ... or perhaps a Chiropractor who specializes *ONLY*

in the C-1. Would stay away form a " regular " chiro for the time being.

HTH

--

Regards,

Geoff Crenshaw, ACC ----------------------

Managing Partner ** No Disclaimers **

Captain Cook's Cruise Center ----------------------

----------------------------------------------------------------------

Over 3,000 daily cruise & tour specials > Top 5% of Web Sites

http://www.800-800-cruise.com [specials] > Top 100 Travel Sites

.. > Top Web Sites for

Cruise tips New Zealanders

http://www.800-800-cruise.com [tips]

USA PH: 800-800-CRUIse PH: 559-636-8413 FAX: 559-734-1420

----------------------------------------------------------------------

geoff@...

" Behold now, Behemoth, which I made as well as you; He eats grass like

an ox. Behold now, his strength in his loins, and his power in the

muscles of his belly. He bends his tail like a cedar; The sinews of his

thighs are knit together. His bones are tubes of bronze; His limbs are

like bars of iron. He is the first of the ways of God. "

JOB 40:15

[Guest guest]

Hello Mark,

For many years before I had any RA symptoms, I had tingling in my hands. It

never hurt, just felt weird. . .tingling is a good description. It was a

very irritating feeling, and I would often have people take each finger in

turn and squeeze hard; for some reason that temporarily stopped the

tingling. Since RA, I have often wondered if that weird finger experience

was a precursor to RA.

Bye,

Kari

----------

From: MHOLMES@... (HOLMES, MARK T.)

<rheumaticonelist>

Subject: rheumatic symptoms

Date: Wed, Apr 7, 1999, 1:53 PM

Did any of you have tingling feet or hands when you first contracted RA? My

older brother is telling me that he has had very painful shoulder joints for

the past 8 days and his feet and hands have been tingling with his right

hand sometimes feeling numb. Any thoughts? I never had tingling hands or

feet with my RA, but his sore shoulders don't sound good to me.

Thanks,

mark

[Guest guest]

I hear you, but I somewhat doubt it. I think RA is starting to sweep thru

my family unfortunately. My one niece has it, now it looks like my other

niece (who is in her 20's) is getting it and now my older brother seems to

be coming down with it and even my oldest brother is starting to get some

shoulder symptoms. Hopefully, I'm wrong, but a lot of folks here have

written me indicating they had similar symptoms.

Mark

Re: rheumatic symptoms

> Hi Mark! Geoff Crenshaw here.

>

> > " HOLMES, MARK T. " wrote:

> >

> > Did any of you have tingling feet or hands when you first contracted

> > RA? My older brother is telling me that he has had very painful

> > shoulder joints for the past 8 days and his feet and hands have been

> > tingling with his right hand sometimes feeling numb. Any thoughts? I

> > never had tingling hands or feet with my RA, but his sore shoulders

> > don't sound good to me.

>

> Sounds more like a neural problem in the cervical spine area - perhaps a

> " pinched " nerve or slight swelling in that region placing pressure on

> the spinal cord. Might want to have him checked by a D.O. or

> D.O./Chiropractor ... or perhaps a Chiropractor who specializes *ONLY*

> in the C-1. Would stay away form a " regular " chiro for the time being.

>

> HTH

> --

> Regards,

>

> Geoff Crenshaw, ACC ----------------------

> Managing Partner ** No Disclaimers **

[Guest guest]

One further thought for Mark and all who are worrying about symptoms and

diagnoses; The more I learn about antibiotic treatment of rheumatic, autoimmune

diseases, the less important I feel it is to get a specific diagnosis or to

attribute symptoms to a particular diagnosis. This is considered paramount in

most of conventional medicine's approach to the rheumatic diseases but that is

because treatment of these diseases by mainstream medicine relies on relief of

symptoms, not addressing underlying causes. I think anyone who has been

characterized as having a rheumatic, autoimmune disease would do better to look

into the infective theory of the disease and to seek out antibiotic treatment as

it holds the only hope for a possible cure rather than a lifetime of " gettting

by " by treating symptoms. JMHO. LizG

[Guest guest]

I know a lot of you have " diagnosed " illnesses, but has anyone considered the

Lyme epedemic--it mimics or causes many of these illnesses and is also

treated with antibiotics. It is also highly controversial just as the AP.

(many other illnesses are from microorgs--like syphilis, etc. I checked into

those and all avenues)

My sister started having similar early symptoms as mine (fatigue, etc--I have

RA)--but she was lucky, she had the typical Lyme rash and was treated

immediately.

My dr's yelled at me in 90 when I wanted antibio treatment for Lyme--said I

was in denial about my RA. But couldn't tell me why I suddenly dev'd RA--I'm

an engineer and I wanted to know WHY. (Eventually I got antibio treatment and

went into a remission. The war is definitely not won yet, but it's

improving...)

It's worth some research into....

Laney

In a message dated 99-04-07 22:41:29 EDT, MHOLMES@... writes:

<<

I hear you, but I somewhat doubt it. I think RA is starting to sweep thru

my family unfortunately. My one niece has it, now it looks like my other

niece (who is in her 20's) is getting it and now my older brother seems to

be coming down with it and even my oldest brother is starting to get some

shoulder symptoms. Hopefully, I'm wrong, but a lot of folks here have

written me indicating they had similar symptoms.

Mark >>

[Guest guest]

I posted about a month ago telling how my illness started with a rash on my

leg. I was later treated for late-stage lyme disease with antibiotics and

feel that the antibiotics did help. Off antibiotics for awhile got worse and

then drs said I no longer had lyme but have Sjogren's Syndrome and UCTD. I

just had an equivocal test for lyme and a positive IGM (Bands 39 and

41) Western Blot for lyme. But one of my drs and notation on blood test say

that the positive IgM Western Blot can be a false positive for connective

tissue disease. IgM stand for recent infection as opposed to IgG which is

chronic infection. I'm not sure what to believe concerning my diagnosis.

Maybe lyme triggered autoimmune problems; or maybe my lyme is still active;

or maybe both! I am glad that I am back on antibiotics and feel it is

helping! I think too many drs ignore the possibility of lyme disease and do

not take it seriously enough!

Carol E from NY

[Guest guest]

Jnenorth@... wrote:

>

> I know a lot of you have " diagnosed " illnesses, but has anyone considered the

> Lyme epedemic--it mimics or causes many of these illnesses and is also

> treated with antibiotics. It is also highly controversial just as the AP.

There are very good tests specifically for Lyme. I believe it's caused

by a spirochete but that's best memory so who knows? The doc's out here

check for it routinely anytime anybody has anything at all remotely

close to those symptoms. In understand having Lyme is not necessarily a

blessing compared to RA - you know exactly what you have but it is quite

nasty indeed.

--

Regards,

Geoff Crenshaw, ACC ----------------------

Managing Partner ** No Disclaimers **

Captain Cook's Cruise Center ----------------------

----------------------------------------------------------------------

Over 3,000 daily cruise & tour specials > Top 5% of Web Sites

http://www.800-800-cruise.com [specials] > Top 100 Travel Sites

.. > Top Web Sites for

Cruise tips New Zealanders

http://www.800-800-cruise.com [tips]

USA PH: 800-800-CRUIse PH: 559-636-8413 FAX: 559-734-1420

----------------------------------------------------------------------

geoff@...

" Behold now, Behemoth, which I made as well as you; He eats grass like

an ox. Behold now, his strength in his loins, and his power in the

muscles of his belly. He bends his tail like a cedar; The sinews of his

thighs are knit together. His bones are tubes of bronze; His limbs are

like bars of iron. He is the first of the ways of God. "

God speaking to Job...

[Guest guest]

You can't agrue with success, altho many doctors try to convince us not to

take antibio. Stick with the anibiotics!! You have classic symptoms and

unfortunately Lyme is never cured, so you may be on antibio a while.

Laney

In a message dated 99-04-17 18:48:39 EDT, Careabxs writes:

<< I posted about a month ago telling how my illness started with a rash on

my leg. I was later treated for late-stage lyme disease with antibiotics and

feel that the antibiotics did help. Off antibiotics for awhile got worse and

then drs said I no longer had lyme but have Sjogren's Syndrome and UCTD. I

just had an equivocal test for lyme and a positive IGM (Bands 39 and

41) Western Blot for lyme. But one of my drs and notation on blood test say

that the positive IgM Western Blot can be a false positive for connective

tissue disease. IgM stand for recent infection as opposed to IgG which is

chronic infection. I'm not sure what to believe concerning my diagnosis.

Maybe lyme triggered autoimmune problems; or maybe my lyme is still active;

or maybe both! I am glad that I am back on antibiotics and feel it is

helping! I think too many drs ignore the possibility of lyme disease and do

not take it seriously enough!

Carol E from NY >>

[Guest guest]

, thanks. I think I will call my doctor and let him know that it

is happening again.

Just when I was feeling pretty good, trying to lose weight, joined the

gym, and getting some exercise, and then....this....

[Guest guest]

Many of us can contribute to the list of symptoms- here is my list:

Pain

Swelling

Stiffness- especially in the am

Nerve pain - numbness and tingling (due to nerve root compression from the

discs

degenerating in the spine from the continued attacks of PA)

Severe Fatigue

Narcoleptic like episodes while driving on highway more than 30 minutes.

Sleep disturbance

Clinical Depression/Anxiety

Severe manifestation of psoriasis all over my hands -- now sausage fingers

and toes,

skin is deep red in areas of fingers due to the excessive thinning of the

skin that occurs when you have to use so much steroid.

This is my *short* list for today...

I am sure many more can add to this.

[Guest guest]

Hi

I was looking for my favorite report by and came across this

website that looks phenomenal! <A

HREF= " http://www.fastlane.net/homepages/thodge/archive.shtml " >Celiac Mailing

List Archives</A>

There are direct links about gluten intolerance with respect to autism and

other disorders. Check it out.

Also, I make about 99% of my son's school lunches. I pack him microwave

french fries, garlic bread (rice bread toasted), g-f cookies, a fruit, and

sometimes a meat slice. For birthday parties at his school, he has some

frozen g-f and c-f cupcakes in the school freezer that are thawed when

needed.

Dietary changes are a difficult decision for parents to make because of the

amount of planning and preparation. Once you do get into the swing of it, it

becomes second nature (and you won't mind being a short-order cook! ).

Health foood stores usually stock some good foods, plus mail order is a life

saver! The Gluten-free Gourmet is pricey, but they have great mixes. I order

their bulk pizza/bread mix and pizza is favorite of my son's (with no cheese

or a non-dairy cheese). (www.glutenfreepantry.com)

One note: be prepared to waste a lot of food until you find recipes and

alternatives he will like. Don't give up. There really are palatable foods

out there!

I believe that finding the foods that your child can and can't consume

results in dramatic results. You will be so happy you changed things for him.

Becky

[Guest guest]

P.S. to my other 10,000 page dissertation (just kidding)

On the Celiac report listed previously, scan down to the very end of the

report to see the link on autism. It is really quite good. Becky

[Guest guest]

Hello

A website www.gfcfdiet.com has been created exclusively for the questions

you have regarding a gluten/casein free diet. It is supported by a group of

parents from www.GFCFKidsonelist.

Anyone can join the list for further support and questions regarding

eliminating casein or gluten. A message board is also accessable from the

front page of www.gfcfdiet.com.

Judy

SYMPTOMS

From: LHFLAMINGO@...

Hello everyone. I am reletively new to this site but have been doing alot

of reading (all info. is so interesting). My son is 5, recently diagnosed

PDD/NOS. After speaking with other parents I am suspecting my son is having

difficulty with milk/dairy. He has some signs and symptoms. My question is

if I start a casein free diet (for awhile) should I also go gluten free? He

has been complaining of a stomach ache for sometime now but his doctor and I

associated it with other things but now I am wondering if the stomach pain

and red ears are associated with the casein. Are these the same signs for

gluten? I am very confused about how to word this since this area is so new

to me so please bear with me. Any advice would be helpful.

Also, for children who are on any of the diets, what if the child attends

school where he eats breakfast and lunch with all of the other children. Do

you pack ALL OF THE TIME? Do any of you ask your schools for their food

ingredients etc? Help please. Thanks to all and your efforts. Since I am

new to all of this, I can tell it will be easier for me due to you previous

efforts/progress. Thanks!

[Guest guest]

:

I am mother of age 3 who sounds like he had similer symptoms to

your child. Red ears and cheeks. Rash on face and stomach pains. I

started GFCF Diet along with Feingold Diet. In just a few weeks he improved

substantially. He is now back on casein but not wheat. For us it is the

wheat not the milk. I figured we would cut as much as we could and then add

back slowly. I found my son reacts to orange Juice, wheat, Sugar, and a few

others. Once we eliminated the Gluten and casein as well as the

preservatives, once we saw an improvement (after a month or so) it was easy

to see what caused reactions.

My son sleeps better (through the night) , is more receptive, has less

Autistic behavior and speaks more, no more stomach aches. He still has PDD

but is greatly improved and seems to be much happier.

I have to pack his food everywhere we go, it's not easy but well worth it.

When I think about how hard it used to be in a resteraunt with him, running

and carrying on, now we bring his food and he sits pretty good and behaves

much better (we can bring him out). It's worth it for us because what we

get back in behavioral changes is

so much improvement that it makes the diet easier.

I hope this helps.

SYMPTOMS

> From: LHFLAMINGO@...

>

> Hello everyone. I am reletively new to this site but have been doing alot

of reading (all info. is so interesting). My son is 5, recently diagnosed

PDD/NOS. After speaking with other parents I am suspecting my son is having

difficulty with milk/dairy. He has some signs and symptoms. My question is

if I start a casein free diet (for awhile) should I also go gluten free? He

has been complaining of a stomach ache for sometime now but his doctor and I

associated it with other things but now I am wondering if the stomach pain

and red ears are associated with the casein. Are these the same signs for

gluten? I am very confused about how to word this since this area is so new

to me so please bear with me. Any advice would be helpful.

> Also, for children who are on any of the diets, what if the child

attends school where he eats breakfast and lunch with all of the other

children. Do you pack ALL OF THE TIME? Do any of you ask your schools for

their food ingredients etc? Help please. Thanks to all and your efforts.

Since I am new to all of this, I can tell it will be easier for me due to

you previous efforts/progress. Thanks!

>

>

> >

[Guest guest]

i for one dont have that sausage thingfingers and toes . my hands did

thier own thing..... can't-open my fingers on right hand my left hand was the

same but both my hands were so bad i had some surgery eextensive] on my left

hand. the doctor sliced all my fingers and straightened them out with these

nail things that extended out of my knuckes 2''. there was one of these nail

like appendages extending out fom underneath each fingernai;l about an inch

..t hese were left in for about 4 weeks covered by a cast up to my elbow. then

the doctor pulled these things out with pliars m[much to my dismay]i think

they were made of surgical steel. approximately 150 stitches in my hand and

he hadn't even done my knuckles. this was done in boston.

i dont think i want to hve the knuckles or the right hand done even though

now at least i can hold a cup. not very much fun.[]

cathy from mass

[Guest guest]

I don't have sausage fingers or toes...diagnosis came 1)because I have

psorasis and because of the nature of the arthritis (non-symmetrical, etc). I

just have one bad wrist.

[Guest guest]

No sausage fingers or toes here, either. My diagnosis was based on having

pustular psoriasis, an elevated sed rate (means inflammation somewhere) and

negative rheumatoid factor - along with the aching everywhere and the fact

that ice feels better than heat, prednisone makes me feel wonderful

(therefore no more for me said the MD) and resting hurts worse than light

activity. I was taking dexamethasone to settle down an inflamed root canal

and it did wonders for my joints - makes me think a root canal could have a

positive side! I do have two fingers developing bumps or nodules on the

sides of the middle joint. Totally painless but not very pretty.

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

I don't know who named them sausage toe/fingers. When you get them the digits in

question swell up fat like sausages and hurt like thunder. You know at first the

center toes on the right foot started going numbish. Then tada, the thing

swelled up and turned red...I had been diagnosed with PA about 5 years ago but

it wasn't till 1999 that the sausage part start. The pain sometimes is

throbbing, sometimes constant and sometimes sharp. But they more or less stay

sausaged.

Somebody mentioned about the soreness under the skin...you betcha. Right now

it's more in my hands..thumb, index and middle fingers and runs into the palm.

Also sometimes in my legs. So this is life in the PA world.

Donna

[Guest guest]

When I was tested +, and was put on penicillin, I had a herx 4 days

into it, and it lasted periodically for approx 5 days, 2 of them

being really bad with extreme neck pain.

[Guest guest]

Bill-

What unusual symptom/s is she having? Are there new ones or is it a worsening of the symptoms she has had right along?

I recall that she is on IV but which antbiotic?

Edina

[ ] Symptoms

Of the people out there who have treated Lyme with antibiotics. What have been your reactions in the first 4 weeks? My wife is currently treating and wants to know if her symptoms are typical. She experinced herxheimer reaction in the first three weeks, and has had extreme flu-tike symptoms. She's also recovering from a broken arm. BillWelcome to Easy Reference:Send a blank email message to: -Unsubscribe - Unsubscribe from the list -Digest - Switch your subscription to a digest format -Normal - Switch your subscription to normalPlease send messages not related to Lyme disease (this includes humor and information about other diseases) to -Offtopic The archives can be accessed at The chat room is always open! /chat

[Guest guest]

She's on IV Rocephin. She's in her third week. She had to go to the

hospital yesterday because her flu-like symptoms were so extreme that

she was throwing-up and passing out and had a 102 temp! Her

hemoglobin was down to 8.8 and her white blood cell count was low.

The doctors haven't determined what is causing the high temp. They

think she may have caught a virus or something. They don't buy into

the Lyme because she tested negative. She had another friend on IV

Rocephin that also had a tough time of it in her third week. My wife

thinks that she may have had Lyme for over 10 years, and maybe this

is what it takes to get rid of it. Another school of thought is that

the large die-off associated with IV antibiotics may be overloading

her system with toxins. She is currently taking Ojibwa or Essiac tea

to help de-tox. Any symptoms like this by anyone?

Bill

> Bill-

> What unusual symptom/s is she having? Are there new ones or is it a

worsening of the symptoms she has had right along?

> I recall that she is on IV but which antbiotic?

> Edina

> [ ] Symptoms

>

>

> Of the people out there who have treated Lyme with antibiotics.

What

> have been your reactions in the first 4 weeks? My wife is

> currently treating and wants to know if her symptoms are typical.

She

> experinced herxheimer reaction in the first three weeks, and has

had

> extreme flu-tike symptoms. She's also recovering from a broken

arm.

>

> Bill

>

>

>

[Guest guest]

Bill, It sounds like your wife is having a major herxheimer reaction. When I was on IV and even oral antibiotics, same thing happened to me as well as probably every one on this list who has lyme. Did you call her MD who put her on the Rocephin? She may need to go off for a little while, or take something to calm down her flares. This is something you can expect with treatment for Lyme at least you know it is lyme otherwise she wouldn't be reacting like this. This is a die-off process, sounds like to me. But, I would call the MD and let him know what is going on. FrancineRN NJ

[Guest guest]

For me, there was tremendous pain in my legs, neck &

arms. Headaches, muscle spasms, nausea/vomiting,

extreme fatigue. My hands and feet would go numb

(still do!) I could never 'think'...still can't!!!

Kris

--- Beatlenut@... wrote:

> Of the people out there who have treated Lyme with

> antibiotics. What

> have been your reactions in the first 4 weeks? My

> wife is

> currently treating and wants to know if her symptoms

> are typical. She

> experinced herxheimer reaction in the first three

> weeks, and has had

> extreme flu-tike symptoms. She's also recovering

> from a broken arm.

>

> Bill

>

>

__________________________________________________