Guest guest Posted March 6, 1999 Report Share Posted March 6, 1999 Hi Hanah, Welcome to our list. We have two sons, Louis (16) and Doug (14). Louis also has OCD. He was diagnosed at age 12. We homeschool both of our sons. Please keep us informed about Ezra's progress. Take care. Louis ocdnet@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 1999 Report Share Posted March 6, 1999 Dear Hanah, Welcome to the list! I have a five-year-old daughter with OCD. No other kids! When you said you'd always known something was " off, " with Ezra, that really hit home. andra was never a normal baby or toddler, although she was (and is) exceptional in many ways. Her behavior in public was often so inappropriate that we had begun to think the world at large would never see the lovely child we knew at home. We had also almost begun to believe the implications that we were just plain terrible parents by the time she was diagnosed. Even my husband, in the month before the dx, had decided that most of her problems were due to my impatience. I said, " I don't care if it is me, we are going to get professional help. " That was the beginning, last fall. Between Prozac and CBT, we are able to focus on everyday life some of the time. Today we are celebrating her first tooth finally falling out! Take care, Lesli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 1999 Report Share Posted March 16, 1999 Hi, I'm new to the list. I must say I'm a little overwhelmed by what I've read so far. Anyway, I have a doctor appointment in a couple of days and I'd like some advice before I go. I suffer from what I think is fibromyalgia and chronic fatigue. Three months after my son was born I developed this burning pain in my lower right leg and both feet. It hung on for a couple of months and then disappeared. A couple of months ago when I had the flu and every other virus going around my left knee started the same thing again. It feels like a burning pain that hurts when there is contact or pressure on the area. The pain can't be relieved by meds either. I also have palpitations, irritable bowel, anxiety and I'm unable to fall back to sleep at night. I've also been EXTREMELY fatigued and went to my repro endocrinologist for tests. He said everything was fine but couldn't explain the fatigue. I also have polycystic ovarian syndrome (PCOS) and belong to the pcolist. PCOS is a metabolic disease (which might be caused by our bodies producing too much insulin) and its symptoms are mainly anovulation, weight gain and hirsutism. It can be treated with Metformin, a diabetes medication that keeps our insulin in check. I remember at one time reading many posts about a link between FMS and PCOS but didn't pay enough attention. I've always had severe migraines and headaches and only recently have I developed this muscular/tendon pain. What should I do to prepare for this doctor visit? What should I ask, etc? I appreciate any advice. Thanks, Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 1999 Report Share Posted March 24, 1999 At 09:49 24.03.99 -0500, you wrote: > Maybe a change of diet for O blood types could help. >Ginger from Cincinnati Hello Ginger, Welcome to the group. I believe it will help. At least, It helped to all the other people suffering of allergies, who tried. There are also few other things that may help for sever allergies: -bowel cleanse -dentalcleanse -gallstones cleanse -house cleanse -taking colloidal minerals -taking flaxseed oil Here are few things: http://home.sol.no/~dusan/allergies.html Dusan Stojkovic (O+) Norway Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 1999 Report Share Posted July 22, 1999 eo is essential oils (natural frags) fo is fragrene oils (synthetics) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 1999 Report Share Posted August 30, 1999 Hi Tammy ,Welcome to the list,you will love the people here.I have learned so much from them ,and respect their advice. I have found that they share from their hearts ,the pain they have gone through with their children and the small and large steps of victory . I'm sorry that your son has gone through such a hurtful time.I have gone through the same thing last year with my granddaughter (e) when her mom and stepfather got a divorce, it took her a long time for her to get over it.e's mom has the same fear of thunderstorms and tornadoes,she's 24 now and I wish I could say that she is fine ,but she still has problems with it. Love Beth in In. new to the list > From: Tlpkc@... > > Hi All, > > I am a new mom to the list with a 10 year old son that has a fairly new > diagnosis of OCD of about a year. His OCD has been exacerbated by the fact > that his father and I have gotten a divorce and his father recently > remarried. He feels threatened that his father now has a new wife and two > new children in his life. He also has a tremendous amount of hostility > toward his father which he is reflecting towards me. He is worried that I > will leave him while he is at school like his father did. He also has > constant worries about the weather especially thunderstorms and tornados. I > am happy to have found a group of people that have gone through, and are > going through the same anxieties that I am facing now. I have felt very > isolated, as few of my family and friends know anything about OCD and I have > found few resources locally, I live in NC, to assist me in parenting my son. > He is currently going to therapy weekly and we are learning various > techniques to assist him with anger control. He is on serzone and buspar. I > look forward to sharing with you all and learning from your experiences. > Thanks for allowing me to give a long winded intro! > > Tammy > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 1999 Report Share Posted August 30, 1999 HI Tammy, Welcome!! I also have a 10 yo daughter, Ziv, with ocd and depression. Her anxieties are like your sons with thunderstorms and tornadoes, hurricanes, etc. She also hoards which is a real pain around here because her father, brother and sister also have ocd and they all hoard too! When Ziv's anxiety is excessive, like recently, the doc and I discussed raising her antidepressant. She is now on 150mg zoloft. Within 3 days she was already coping better. It is good to read that your son is going to a therapist. Anger management is very important. Being consistent and available to him is all that you can do to reassure him that you wont leave him. Tell him that you may hate his actions, but you still love him. Does he still have contact with his father? Your worst case scenario is our son. Tom,16, could not control his anger. If he couldnt control his environment he would become mean, aggressive and even violent ( he was beating his father and I, and used to beat his sisters). We gave up custody so that he would be out of the house. The home he lives in now is working out fantastically for him. He still complains and has difficulties, but because his anger is more under his control, he is calmer, his rituals take less time, he is less aggressive, and he is being rewarded with extra attention at the home. Lately all the other residence are grounded and he is going to see movies and other places with staff on a one on one basis. We hope to have him home in the winter. Welcome to our happy family!!! Our number 1 rule here is: Don't Forget to Take Care of Yourself!! best wishes, wendy in canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 1999 Report Share Posted August 30, 1999 Dr. March at Duke is probablyone of the foremost authorities on OCD in children. He has written several books, one that has just been published recently. Dr. Reid , an OCD expert, is also in NC. Welcome to the list. jim in san diego Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 1999 Report Share Posted August 30, 1999 Tammy, Welcome the group! My heart goes out to you and your son.... I know how hard OCD is to deal with without the added problems of feeling abandoned and other issues that divorce brings into the picture. This is a great place to vent ( wonderful compassionate people here) and get info. I have a son (13) that has severe OCD, GAD, ADD and Aspergers. He takes Luvox, buspar and Klonopin. Take care Tammy and welcome to a wonderful list! mary from La. Tlpkc@... wrote: > From: Tlpkc@... > > Hi All, > > I am a new mom to the list with a 10 year old son that has a fairly new > diagnosis of OCD of about a year. His OCD has been exacerbated by the fact > that his father and I have gotten a divorce and his father recently > remarried. He feels threatened that his father now has a new wife and two > new children in his life. He also has a tremendous amount of hostility > toward his father which he is reflecting towards me. He is worried that I > will leave him while he is at school like his father did. He also has > constant worries about the weather especially thunderstorms and tornados. I > am happy to have found a group of people that have gone through, and are > going through the same anxieties that I am facing now. I have felt very > isolated, as few of my family and friends know anything about OCD and I have > found few resources locally, I live in NC, to assist me in parenting my son. > He is currently going to therapy weekly and we are learning various > techniques to assist him with anger control. He is on serzone and buspar. I > look forward to sharing with you all and learning from your experiences. > Thanks for allowing me to give a long winded intro! > > Tammy > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 1999 Report Share Posted August 31, 1999 Tammy, Welcome and thanks for the information about your son. He certainly is going though a lot of stress right now. I am glad to hear that you have good support to help you find resources. Anger plays a big part in my families life too. Have you read the Explosive Child? It is a book that helped me alot. I have a 15 y/o son. He is starting high school tomorrow! Exciting times for us. He doesn't take medication but if he did I think it would really help. He is miserable at home, but puts on a pretty good face out side the home! Vivian in wa. st. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 1999 Report Share Posted August 31, 1999 Hi Tammy, Welcome, we have a lot in common. I have a 10 year old son that was diagnosed a year ago. His biggest problem is storms! I have found with the therapy, his anger has increased. He has leveled out somewhat as he is making progress. I, too, do not have much understanding from other family members outside our home. I also have a husband with ocd. This is a great source of information and support. Let me know if I can be of any help. Take care, in PA --- Tlpkc@... wrote: > From: Tlpkc@... > > Hi All, > > I am a new mom to the list with a 10 year old son > that has a fairly new > diagnosis of OCD of about a year. His OCD has been > exacerbated by the fact > that his father and I have gotten a divorce and his > father recently > remarried. He feels threatened that his father now > has a new wife and two > new children in his life. He also has a tremendous > amount of hostility > toward his father which he is reflecting towards me. > He is worried that I > will leave him while he is at school like his father > did. He also has > constant worries about the weather especially > thunderstorms and tornados. I > am happy to have found a group of people that have > gone through, and are > going through the same anxieties that I am facing > now. I have felt very > isolated, as few of my family and friends know > anything about OCD and I have > found few resources locally, I live in NC, to assist > me in parenting my son. > He is currently going to therapy weekly and we are > learning various > techniques to assist him with anger control. He is > on serzone and buspar. I > look forward to sharing with you all and learning > from your experiences. > Thanks for allowing me to give a long winded intro! > > Tammy > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 1999 Report Share Posted August 31, 1999 Hi Tammy! Welcome! Hey, I was wonder, how's the Serzone working?? Hang in there! You can vent to us anytime! Much better to share what you're going through than to share that part with your son. I wish you lots of luck. Hugs to you. new to the list > From: Tlpkc@... > > Hi All, > > I am a new mom to the list with a 10 year old son that has a fairly new > diagnosis of OCD of about a year. His OCD has been exacerbated by the fact > that his father and I have gotten a divorce and his father recently > remarried. He feels threatened that his father now has a new wife and two > new children in his life. He also has a tremendous amount of hostility > toward his father which he is reflecting towards me. He is worried that I > will leave him while he is at school like his father did. He also has > constant worries about the weather especially thunderstorms and tornados. I > am happy to have found a group of people that have gone through, and are > going through the same anxieties that I am facing now. I have felt very > isolated, as few of my family and friends know anything about OCD and I have > found few resources locally, I live in NC, to assist me in parenting my son. > He is currently going to therapy weekly and we are learning various > techniques to assist him with anger control. He is on serzone and buspar. I > look forward to sharing with you all and learning from your experiences. > Thanks for allowing me to give a long winded intro! > > Tammy > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 1999 Report Share Posted December 4, 1999 Hello All, I'm new and just wanted to introduce myself. Since 1991 I live in Beijing, China, where I studied Chinese Medicine for 5 years. I also studied Taijiquan (Chen style), but I am a bit lazy with that now. Looking forward to meeting you all! Dagmar ===== free CHINESE MEDICINE NEWSLETTER http://www.chinesemedicine.8m.com/newsletter.html or mailto: gesund2000@... with " subscribe " in the subject line. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2000 Report Share Posted February 6, 2000 Hi Cheryl, Just wanted to mention that Dr. Goldberg's web site is: www.neuroimmunedr.com Al New to the list > From: " 1raptor " <1raptor@...> > > Hi, > > I joined your list a couple of days ago. I have to say, this is a very > active list and very interesting. I am always interested in things that may > be helpful to me. > > Unfortunately, both of my sons and myself, are dealing with this illness. > My 17yo started to slide into this at about the age of 12-13. He started > getting sick all of the time with various, colds and flu's. The morning > fatigue, headaches, etc. My 10yo, was probably hit with neuro-immune > dysfunction as an infant/toddler. I believe that I have had this since a > pre-teen, in a milder form. Then in 94, came down with either > viral/bacterial pnemonia, which pushed me into fullblown. > > Both of my sons are on a treatment protocol with Dr. Goldberg. They are > coming along very nicely. I am the reason I am here. Since we are self > employed, we only have insurance coverage for my sons. Add all the > prescription meds they take, well you get the picture..... So I am working > with a local doctor, struggling the best I can. I take a few things, but > nothing that is any major help. > > I look forward to learning alot from all of you. > Cheryl > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2000 Report Share Posted February 6, 2000 Al, Sorry, I should have posted that in my message. Are you also familiar with the website? www.nids.net If the immune profiling studies go as planned, maybe the immune modulators will be an option for alot of us, someday. I hope!!! Cheryl > From: " Al Melillo " <melillo3@...> > > Hi Cheryl, > Just wanted to mention that Dr. Goldberg's web site is: > www.neuroimmunedr.com > Al Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2000 Report Share Posted February 7, 2000 Hi Cheryl, Immune modulators are available now that are OTC versions or supplements. Moducare Sterinol claims to be an immune modulator and so is cytolog(www.cytolog.com). Even they are only helpful to some but not a cure. Al Re: New to the list > From: " 1raptor " <1raptor@...> > > Al, Sorry, I should have posted that in my message. Are you also familiar > with the website? www.nids.net > > If the immune profiling studies go as planned, maybe the immune modulators > will be an option for alot of us, someday. I hope!!! > Cheryl > > > > From: " Al Melillo " <melillo3@...> > > > > Hi Cheryl, > > Just wanted to mention that Dr. Goldberg's web site is: > > www.neuroimmunedr.com > > Al > > > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2000 Report Share Posted February 7, 2000 Welcome to the list, Cheryl, This place is a fount of information and terrific people. Sounds like you have a lot to offer, too. We did have another Mom active here for awhile with an adult daughter who knew her onions too. Sheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2000 Report Share Posted February 7, 2000 Thanks Sheri, The things we are doing for my sons are working pretty well. I wish I could say the same thing about some of the treatments I have tried. With no insurance, I have been trying different approaches. My local doc had me try typhoid shots. I found some info on it and it sounded like it had some possibilities. It is called fever therapy, I believe. When I had the fourth shot, I did get sick, just like when you have the flu really bad. Other than that, I seemed to be feeling worse over time. You are supposed to start feeling better. Then I was reading information from one of the recent CFS Conferences. It happened to have info about fever therapy, what I read, did not make me feel too wonderful. They had found, for some reason, that the ones that did not do well, were the ones with nickel allergies.(even though there is no nickel in shots) Guess what, I am allergic, have known for a long time. I am also allergic to Thimerosol(mercury). I'm probably one that should get these things out of my teeth, just too expensive. Well it took me at least four months, to start recovering from that experiment. Hoping to learn alot from all of you. Cheryl Re: New to the list > From: Jerry <sheri.clark@...> > > Welcome to the list, Cheryl, > > This place is a fount of information and terrific people. Sounds like > you have a lot to offer, too. We did have another Mom active here for > awhile with an adult daughter who knew her onions too. > Sheri > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2000 Report Share Posted February 9, 2000 Welcome to the safest list . No Zapping or fireburning here. I love this new syndrome (Tape Rewind Syndrome - hereafter called TRS). Sara Cohen, Mom to Elie, age 14 Ds/PDD?ASD?maybe apraxic, aphasic and still a teenage boy!! (also 4 other so-called typical young adults - generation XY or Z >>> <DianeBKJ@...> - 02/09/0 1:45 PM >>> From: DianeBKJ@... Hi everyone, I have been reading your posts for awhile, but, haven't had time to introduce myself. My name is Diane and I am the mother of a 9 year old with DS. I also have two other girls 5 and 10. Although Kristy does not have a formal diagnosis of ASD she has many of the characteristics. She stares at dangling objects such as Barbie's hair and the strings from her sneakers. She hates to have her hair brushed, teeth brushed,nails and hair cut. I don't even attempt to brush her teeth although they work on it at school.She has tape rewind syndrome I live in New Jersey and she goes to a school for developmently delayed kids. I couldn't imagine her in a regular school. Actually I had a hard time finding a school that would accept her. She does not talk or sign. Her only words are " I do " . She attended a preschool till 7 that was all DS. Many of those kids were reading at 5 and 6 years old. The director of that program told me Kristy was one of the smartest one's there although looking at her functional level she was one of the worst. I too feel she has great potential ,but her teacher and the child study team think her low functioning is due to her cognitive level. I am hoping that medicine might help her with her extremely short attention span. My other daughters' have Selective Mutism which means they will not speak in school. My ten year old has never spoken to any of her teachers, but will whisper to them . She will speak in a normal voice to a few friends at school. At home and everwhere else she is the normal chatterbox. My 5 year old will be entering Kindergarten in September 2000. Needless to say the child study teem knows me very well and probably wish I would move out of town. I think this story is long enough . Diane --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2000 Report Share Posted February 24, 2000 In a message dated 02/24/2000 10:27:12 AM Eastern Standard Time, pitsen@... writes: << I have been doing FIRM tapes with pretty heavy weights and trying to accomplish a more cut look only after several Tae Bo workouts I can already see that look developing in my arms. >> Welcome P!! Just wait till you see what TB does to your abs!! Barb who is seeing abs in a 50 year old body that I never dreamt possible and saw & felt the bottom of my ribcage this morning for the first time in a long long time Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2000 Report Share Posted February 24, 2000 Welcome ! It's nice to have you join us! Please let us know what you think of the live tapes when you get them! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2000 Report Share Posted February 24, 2000 Welcome P...I think you are on another list I am on too...taebo onelsit. I am going to have to see about those firm tapes...can you give the web site addy again. I know you did before but I accidently deleted it Thanks....JOHNNA --- Pitsenbarger <pitsen@...> wrote: > > Hi everyone, > I am and I just joined the list. I am not > new to exercise at all > but fairly new to Tae Bo. I had my third child last > March and received the > tapes while pregnant but never did them much after I > had the baby. After > hearing and seeing the infomercial I decided to get > them out and give them > a try. I have been alternating the Basic one day and > Advanced next and just > started last week. I can already tell a difference > in my body. I am > surprised it happened so quickly. I have been doing > FIRM tapes with pretty > heavy weights and trying to accomplish a more cut > look only after several > Tae Bo workouts I can already see that look > developing in my arms. I joined > the Live Advanced Auto ship and can't wait to get my > first tape. I also > ordered basic live 1 to have another basic to > alternate in with the > advanced tapes. P > > > ------------------------------------------------------------------------ > " We are all athletes in training for life rather > than overweight folks trying to drop some pounds > temporarily cuz Haste doe not make a Waist " > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2000 Report Share Posted February 24, 2000 Welcome . I am new here too. WOW already doing the Advance tape in the first week is AMAZING! I had to wait almost six months I think (don't knw the time frame for sure) and I was doing aerobic tapes before starting Tae-bo. Nice to meet you! le " michelle pitsenbarger " <pitse-@...> wrote: original article:tae-bo_on/?start=12701 > Hi everyone, > I am and I just joined the list. I am not new to exercise at all > but fairly new to Tae Bo. I had my third child last March and received the > tapes while pregnant but never did them much after I had the baby. After > hearing and seeing the infomercial I decided to get them out and give them > a try. I have been alternating the Basic one day and Advanced next and just > started last week. I can already tell a difference in my body. I am > surprised it happened so quickly. I have been doing FIRM tapes with pretty > heavy weights and trying to accomplish a more cut look only after several > Tae Bo workouts I can already see that look developing in my arms. I joined > the Live Advanced Auto ship and can't wait to get my first tape. I also > ordered basic live 1 to have another basic to alternate in with the > advanced tapes. P > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2000 Report Share Posted February 24, 2000 Hi ! I know you form the other list..cause I am on that one too.Welcome to this list! We are a great bunch of people here. I added you to the web site as a member! The web site address is http://taeboon.isportsdot.com/ New to the list > Hi everyone, > I am and I just joined the list. I am not new to exercise at all > but fairly new to Tae Bo. I had my third child last March and received the > tapes while pregnant but never did them much after I had the baby. After > hearing and seeing the infomercial I decided to get them out and give them > a try. I have been alternating the Basic one day and Advanced next and just > started last week. I can already tell a difference in my body. I am > surprised it happened so quickly. I have been doing FIRM tapes with pretty > heavy weights and trying to accomplish a more cut look only after several > Tae Bo workouts I can already see that look developing in my arms. I joined > the Live Advanced Auto ship and can't wait to get my first tape. I also > ordered basic live 1 to have another basic to alternate in with the > advanced tapes. P > > > ------------------------------------------------------------------------ > " We are all athletes in training for life rather than overweight folks trying to drop some pounds temporarily cuz Haste doe not make a Waist " > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2000 Report Share Posted February 24, 2000 welcome to the list michelle!!!! ~Nicci ______________________________________________________ Quote Link to comment Share on other sites More sharing options...
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