New to the list

[Guest guest]

Hi Sandi, glad your son seems to be feeling a little better. Is it

possible his body just needs more time to adjust to the Zoloft?

Where you wrote in another post that some of your son's earlier

behaviors : checking numbers on the clock and microwave, and turning

light switches on and off many times. - This reminds me of my 13 y/o

son, . There is SOMETHING about clocks. In one room he looks

back and forth between the 2 clocks a few times before he can, say,

get on the bed. And I've noticed him in other rooms sort of staring

at them. And the light switches going on/off/on/off - same with his

Game Boy or a TV or, and this hurts, the computer! But he's been

better about this maybe the past couple months, seems to have eased

up and I haven't seen him repeating.

I wish I had some advice regarding school. I have an 11th grader and

know how tough high school can be. I dread it with and hope

he's more in control of himself/OCD by that time.

By the way, I agree about dropping that doc, hope you can find

someone understanding and knowledgeable about OCD. I saw where

suggested you email Louis H., I'm sure you'll find someone in your

area!

Keep us posted and feel free to vent ANYTIME. This group is my best

support!

> > > Hello,

> > > I am new member to this group. My son was recently went on

> > medication for

> > > OCD--Zoloft. He is really struggling right now and is no longer

> > feels able

> > > to go to school. Hello everyone, I will try to keep this as

brief

> > as

> > > possible, but I'm an

> > > emotional wreck and need your support. I have a 16 y.o. son

with

> > OCD. He

> > > was diagnosed with mild OCD at a very early age (8-9). His

> > compulsive

> > > behaviors at that time were common including frequent hand

washing,

> > germ

> > > phobia, checking whether the doors were locked, checking

numbers

> > on the

> > > clock and microwave, and turning light switches on and off many

> > times.

> > > While he did have all these symptoms, he did not do them to

extent

> > that his

> > > pediatrician felt he needed meds. His pediatrician gave him

some

> > behavioral

> > > techniques to use to help control his OCD, and he was able to

stop

> > and/or

> > > control many of these behaviors to the point that I felt he'd

made

> > a huge

> > > step in controlling his OCD. During the middle school years, my

> > son began

> > > developing other symptoms mainly related to his appearance. He

> > never looks

> > > good enough, his hair and clothes have to be perfect, he hates

his

> > face,

> > > teeth, body- size.....I mean, you name it, and he hates it about

> > himself.

> > > He's actually very handsome, but he doesn't think so. He's

thinner

> > than his

> > > younger brother, and that bothers him too. Since the beginning

of

> > high

> > > school, he has been chronically late or absent from school, but

was

> > always

> > > able to recover missed school assignments and pass with mostly

B's

> > and the

> > > occasional C. This has become more chronic since 10th grade

(which

> > he is in

> > > now) that it is now affecting his grades.

> > >

> > > He saw a psychiatrist about a month ago and he fussed at me for

not

> > bringing

> > > him sooner. They have put him on Zoloft, and he seemed to do

> > better with no

> > > absences for 2 weeks--then spring break came and the bottom fell

> > out. Over

> > > the last two weeks, he has only gone to school 3 days. His

doctor

> > is out of

> > > town until May 1st, and I don't know what to do. He just sleeps

> > all day and

> > > complains of headaches and general malaise. His doctor told me

to

> > be his

> > > support. If he didn't want to go that day or if he need to go

in

> > late than

> > > I was simply relax about and not get upset....I was to support

and

> > comfort.

> > >

> > > My son doesn't feel like the medication (Zoloft 50 mg.) is

working

> > and his

> > > doctor isn't available until next week to offer him any

> > counseling. He just

> > > stays in bed until the school day is over, to exhausted to get

up

> > to eat,

> > > brush his teeth, etc. I bring him his food. He's such a sweet

> > boy, kind

> > > and loving, and genuinely sorry for all that's

> > > happening. I know there's no magic wand I can wave, I just

need to

> > vent to

> > > those that will understand. This has got me feeling so worried.

> > >

> > > The doctor returned from his vacation and called yesterday and

> > wants me to

> > > increase his meds from 50 to 75mg. over the next 3 days; then to

> > 100 mg.

> > > after that and to call him back on Monday. If the doctors on

this

> > list feel

> > > this is increasing his med too rapidly, please tell me. My son

saw

> > this

> > > doctor once before the doctor left on an extended vacation. I

> > personally

> > > did not care for the doctor's attitude during our phone

> > conversation. He

> > > was rude and arrogant. He said if he staying in his room all

day

> > and can't

> > > pull it together (as he put it), I should tell him the doctor

> > thinks he

> > > should go into the hospital! Hospitalization, to me, seems

like it

> > should

> > > be a last resort...but I don't know maybe I'm wrong. His harsh

> > attitude

> > > about this rubbed me the wrong way. Well, I shed a few tears

> > during our

> > > conversation and expressed how concerned I was for him. I

> > said, " He's my

> > > baby. " His response: " He's not your baby! " To which I

> > responded, " Well,

> > > you know what I mean...my kids will always be my babies. " He

> > replied, " He's

> > > not your baby...And you're part of the problem! " " Look, just

> > increase his

> > > medication like I said and call me Monday. " I just

said, " Okay, "

> > and hung

> > > up. This really burned me up. This man doesn't know me. He

> > doesn't know

> > > my strengths but certainly assumed my weaknesses. Geez, I don't

> > express my

> > > worries and tears in front my son. I'm in the process of

finding

> > another

> > > doctor in the Atlanta area. Your comments and support are

> > appreciated.

> > >

> > > p.s. I did some research on the computer and read about BDD.

The

> > > psychiatrist he saw never mention this condition to us. It

sounds

> > like he

> > > may be suffering from this as well.

> > >

> > > Thanks for listening,

> > > Sandi - Atlanta, GA

> >

> >

> >

> > Archive URL: http://groups.yahoo.com/group// .

> > Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner,

Ph.D.,

> and Dan Geller, M.D. Our list moderators are Birkhan, Chris

Castle,

> Kathy Hammes, Joye, Kathy Mac, Jule Monnens, Gail

Pesses, Kathy

> , Vivian Stembridge, and Jackie Stout. Subscription

issues or

> suggestions may be addressed to Louis Harkins, list owner, at

> louisharkins@y... or louisharkins@h... .

> >

> >

> >

> >

[Guest guest]

Hi Sandi, glad your son seems to be feeling a little better. Is it

possible his body just needs more time to adjust to the Zoloft?

Where you wrote in another post that some of your son's earlier

behaviors : checking numbers on the clock and microwave, and turning

light switches on and off many times. - This reminds me of my 13 y/o

son, . There is SOMETHING about clocks. In one room he looks

back and forth between the 2 clocks a few times before he can, say,

get on the bed. And I've noticed him in other rooms sort of staring

at them. And the light switches going on/off/on/off - same with his

Game Boy or a TV or, and this hurts, the computer! But he's been

better about this maybe the past couple months, seems to have eased

up and I haven't seen him repeating.

I wish I had some advice regarding school. I have an 11th grader and

know how tough high school can be. I dread it with and hope

he's more in control of himself/OCD by that time.

By the way, I agree about dropping that doc, hope you can find

someone understanding and knowledgeable about OCD. I saw where

suggested you email Louis H., I'm sure you'll find someone in your

area!

Keep us posted and feel free to vent ANYTIME. This group is my best

support!

> > > Hello,

> > > I am new member to this group. My son was recently went on

> > medication for

> > > OCD--Zoloft. He is really struggling right now and is no longer

> > feels able

> > > to go to school. Hello everyone, I will try to keep this as

brief

> > as

> > > possible, but I'm an

> > > emotional wreck and need your support. I have a 16 y.o. son

with

> > OCD. He

> > > was diagnosed with mild OCD at a very early age (8-9). His

> > compulsive

> > > behaviors at that time were common including frequent hand

washing,

> > germ

> > > phobia, checking whether the doors were locked, checking

numbers

> > on the

> > > clock and microwave, and turning light switches on and off many

> > times.

> > > While he did have all these symptoms, he did not do them to

extent

> > that his

> > > pediatrician felt he needed meds. His pediatrician gave him

some

> > behavioral

> > > techniques to use to help control his OCD, and he was able to

stop

> > and/or

> > > control many of these behaviors to the point that I felt he'd

made

> > a huge

> > > step in controlling his OCD. During the middle school years, my

> > son began

> > > developing other symptoms mainly related to his appearance. He

> > never looks

> > > good enough, his hair and clothes have to be perfect, he hates

his

> > face,

> > > teeth, body- size.....I mean, you name it, and he hates it about

> > himself.

> > > He's actually very handsome, but he doesn't think so. He's

thinner

> > than his

> > > younger brother, and that bothers him too. Since the beginning

of

> > high

> > > school, he has been chronically late or absent from school, but

was

> > always

> > > able to recover missed school assignments and pass with mostly

B's

> > and the

> > > occasional C. This has become more chronic since 10th grade

(which

> > he is in

> > > now) that it is now affecting his grades.

> > >

> > > He saw a psychiatrist about a month ago and he fussed at me for

not

> > bringing

> > > him sooner. They have put him on Zoloft, and he seemed to do

> > better with no

> > > absences for 2 weeks--then spring break came and the bottom fell

> > out. Over

> > > the last two weeks, he has only gone to school 3 days. His

doctor

> > is out of

> > > town until May 1st, and I don't know what to do. He just sleeps

> > all day and

> > > complains of headaches and general malaise. His doctor told me

to

> > be his

> > > support. If he didn't want to go that day or if he need to go

in

> > late than

> > > I was simply relax about and not get upset....I was to support

and

> > comfort.

> > >

> > > My son doesn't feel like the medication (Zoloft 50 mg.) is

working

> > and his

> > > doctor isn't available until next week to offer him any

> > counseling. He just

> > > stays in bed until the school day is over, to exhausted to get

up

> > to eat,

> > > brush his teeth, etc. I bring him his food. He's such a sweet

> > boy, kind

> > > and loving, and genuinely sorry for all that's

> > > happening. I know there's no magic wand I can wave, I just

need to

> > vent to

> > > those that will understand. This has got me feeling so worried.

> > >

> > > The doctor returned from his vacation and called yesterday and

> > wants me to

> > > increase his meds from 50 to 75mg. over the next 3 days; then to

> > 100 mg.

> > > after that and to call him back on Monday. If the doctors on

this

> > list feel

> > > this is increasing his med too rapidly, please tell me. My son

saw

> > this

> > > doctor once before the doctor left on an extended vacation. I

> > personally

> > > did not care for the doctor's attitude during our phone

> > conversation. He

> > > was rude and arrogant. He said if he staying in his room all

day

> > and can't

> > > pull it together (as he put it), I should tell him the doctor

> > thinks he

> > > should go into the hospital! Hospitalization, to me, seems

like it

> > should

> > > be a last resort...but I don't know maybe I'm wrong. His harsh

> > attitude

> > > about this rubbed me the wrong way. Well, I shed a few tears

> > during our

> > > conversation and expressed how concerned I was for him. I

> > said, " He's my

> > > baby. " His response: " He's not your baby! " To which I

> > responded, " Well,

> > > you know what I mean...my kids will always be my babies. " He

> > replied, " He's

> > > not your baby...And you're part of the problem! " " Look, just

> > increase his

> > > medication like I said and call me Monday. " I just

said, " Okay, "

> > and hung

> > > up. This really burned me up. This man doesn't know me. He

> > doesn't know

> > > my strengths but certainly assumed my weaknesses. Geez, I don't

> > express my

> > > worries and tears in front my son. I'm in the process of

finding

> > another

> > > doctor in the Atlanta area. Your comments and support are

> > appreciated.

> > >

> > > p.s. I did some research on the computer and read about BDD.

The

> > > psychiatrist he saw never mention this condition to us. It

sounds

> > like he

> > > may be suffering from this as well.

> > >

> > > Thanks for listening,

> > > Sandi - Atlanta, GA

> >

> >

> >

> > Archive URL: http://groups.yahoo.com/group// .

> > Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner,

Ph.D.,

> and Dan Geller, M.D. Our list moderators are Birkhan, Chris

Castle,

> Kathy Hammes, Joye, Kathy Mac, Jule Monnens, Gail

Pesses, Kathy

> , Vivian Stembridge, and Jackie Stout. Subscription

issues or

> suggestions may be addressed to Louis Harkins, list owner, at

> louisharkins@y... or louisharkins@h... .

> >

> >

> >

> >

[Guest guest]

Hi Sandi, glad your son seems to be feeling a little better. Is it

possible his body just needs more time to adjust to the Zoloft?

Where you wrote in another post that some of your son's earlier

behaviors : checking numbers on the clock and microwave, and turning

light switches on and off many times. - This reminds me of my 13 y/o

son, . There is SOMETHING about clocks. In one room he looks

back and forth between the 2 clocks a few times before he can, say,

get on the bed. And I've noticed him in other rooms sort of staring

at them. And the light switches going on/off/on/off - same with his

Game Boy or a TV or, and this hurts, the computer! But he's been

better about this maybe the past couple months, seems to have eased

up and I haven't seen him repeating.

I wish I had some advice regarding school. I have an 11th grader and

know how tough high school can be. I dread it with and hope

he's more in control of himself/OCD by that time.

By the way, I agree about dropping that doc, hope you can find

someone understanding and knowledgeable about OCD. I saw where

suggested you email Louis H., I'm sure you'll find someone in your

area!

Keep us posted and feel free to vent ANYTIME. This group is my best

support!

> > > Hello,

> > > I am new member to this group. My son was recently went on

> > medication for

> > > OCD--Zoloft. He is really struggling right now and is no longer

> > feels able

> > > to go to school. Hello everyone, I will try to keep this as

brief

> > as

> > > possible, but I'm an

> > > emotional wreck and need your support. I have a 16 y.o. son

with

> > OCD. He

> > > was diagnosed with mild OCD at a very early age (8-9). His

> > compulsive

> > > behaviors at that time were common including frequent hand

washing,

> > germ

> > > phobia, checking whether the doors were locked, checking

numbers

> > on the

> > > clock and microwave, and turning light switches on and off many

> > times.

> > > While he did have all these symptoms, he did not do them to

extent

> > that his

> > > pediatrician felt he needed meds. His pediatrician gave him

some

> > behavioral

> > > techniques to use to help control his OCD, and he was able to

stop

> > and/or

> > > control many of these behaviors to the point that I felt he'd

made

> > a huge

> > > step in controlling his OCD. During the middle school years, my

> > son began

> > > developing other symptoms mainly related to his appearance. He

> > never looks

> > > good enough, his hair and clothes have to be perfect, he hates

his

> > face,

> > > teeth, body- size.....I mean, you name it, and he hates it about

> > himself.

> > > He's actually very handsome, but he doesn't think so. He's

thinner

> > than his

> > > younger brother, and that bothers him too. Since the beginning

of

> > high

> > > school, he has been chronically late or absent from school, but

was

> > always

> > > able to recover missed school assignments and pass with mostly

B's

> > and the

> > > occasional C. This has become more chronic since 10th grade

(which

> > he is in

> > > now) that it is now affecting his grades.

> > >

> > > He saw a psychiatrist about a month ago and he fussed at me for

not

> > bringing

> > > him sooner. They have put him on Zoloft, and he seemed to do

> > better with no

> > > absences for 2 weeks--then spring break came and the bottom fell

> > out. Over

> > > the last two weeks, he has only gone to school 3 days. His

doctor

> > is out of

> > > town until May 1st, and I don't know what to do. He just sleeps

> > all day and

> > > complains of headaches and general malaise. His doctor told me

to

> > be his

> > > support. If he didn't want to go that day or if he need to go

in

> > late than

> > > I was simply relax about and not get upset....I was to support

and

> > comfort.

> > >

> > > My son doesn't feel like the medication (Zoloft 50 mg.) is

working

> > and his

> > > doctor isn't available until next week to offer him any

> > counseling. He just

> > > stays in bed until the school day is over, to exhausted to get

up

> > to eat,

> > > brush his teeth, etc. I bring him his food. He's such a sweet

> > boy, kind

> > > and loving, and genuinely sorry for all that's

> > > happening. I know there's no magic wand I can wave, I just

need to

> > vent to

> > > those that will understand. This has got me feeling so worried.

> > >

> > > The doctor returned from his vacation and called yesterday and

> > wants me to

> > > increase his meds from 50 to 75mg. over the next 3 days; then to

> > 100 mg.

> > > after that and to call him back on Monday. If the doctors on

this

> > list feel

> > > this is increasing his med too rapidly, please tell me. My son

saw

> > this

> > > doctor once before the doctor left on an extended vacation. I

> > personally

> > > did not care for the doctor's attitude during our phone

> > conversation. He

> > > was rude and arrogant. He said if he staying in his room all

day

> > and can't

> > > pull it together (as he put it), I should tell him the doctor

> > thinks he

> > > should go into the hospital! Hospitalization, to me, seems

like it

> > should

> > > be a last resort...but I don't know maybe I'm wrong. His harsh

> > attitude

> > > about this rubbed me the wrong way. Well, I shed a few tears

> > during our

> > > conversation and expressed how concerned I was for him. I

> > said, " He's my

> > > baby. " His response: " He's not your baby! " To which I

> > responded, " Well,

> > > you know what I mean...my kids will always be my babies. " He

> > replied, " He's

> > > not your baby...And you're part of the problem! " " Look, just

> > increase his

> > > medication like I said and call me Monday. " I just

said, " Okay, "

> > and hung

> > > up. This really burned me up. This man doesn't know me. He

> > doesn't know

> > > my strengths but certainly assumed my weaknesses. Geez, I don't

> > express my

> > > worries and tears in front my son. I'm in the process of

finding

> > another

> > > doctor in the Atlanta area. Your comments and support are

> > appreciated.

> > >

> > > p.s. I did some research on the computer and read about BDD.

The

> > > psychiatrist he saw never mention this condition to us. It

sounds

> > like he

> > > may be suffering from this as well.

> > >

> > > Thanks for listening,

> > > Sandi - Atlanta, GA

> >

> >

> >

> > Archive URL: http://groups.yahoo.com/group// .

> > Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner,

Ph.D.,

> and Dan Geller, M.D. Our list moderators are Birkhan, Chris

Castle,

> Kathy Hammes, Joye, Kathy Mac, Jule Monnens, Gail

Pesses, Kathy

> , Vivian Stembridge, and Jackie Stout. Subscription

issues or

> suggestions may be addressed to Louis Harkins, list owner, at

> louisharkins@y... or louisharkins@h... .

> >

> >

> >

> >

[Guest guest]

Hi Sandi, well you certainly have *my* permission to ditch this doc :-) after of

course you find another with a civil attitude and who is current with OCD

treatment. Fill whatever prescriptions you have from this guy, to tide you over

until you can get your son in to see another psychiatrist, sometimes this can

take a couple of months. BTW, the idea that Mom can cause OCD or any other

brain disorder was disproved some time ago... :-)

Reading your post about your son's recent problems and behavior, I thought about

depression which is a common comorbid problem with OCD. Your son's Zoloft dose

is pretty low and both OCD and any depression he may be suffering may improve

with an increased dose.

I am not a doctor, but I think you are spot on about BDD, which many docs

believe either is just another flavor of OCD, or is in the same spectrum. It is

also treated with SSRIs and/or Cognitive Behavior Therapy as OCD is.

(((Hugs))) You and your son will get through this hard time, keep us updated,

Kathy R. in Indiana

----- Original Message -----

From: Sandi

I am new member to this group. My son was recently went on medication for

OCD--Zoloft. He is really struggling right now and is no longer feels able

to go to school. Hello everyone, I will try to keep this as brief as

possible, but I'm an

emotional wreck and need your support. I have a 16 y.o. son with OCD. He

was diagnosed with mild OCD at a very early age (8-9). His compulsive

behaviors at that time were common including frequent hand washing, germ

phobia, checking whether the doors were locked, checking numbers on the

clock and microwave, and turning light switches on and off many times.

While he did have all these symptoms, he did not do them to extent that his

pediatrician felt he needed meds. His pediatrician gave him some behavioral

techniques to use to help control his OCD, and he was able to stop and/or

control many of these behaviors to the point that I felt he'd made a huge

step in controlling his OCD. During the middle school years, my son began

developing other symptoms mainly related to his appearance. He never looks

good enough, his hair and clothes have to be perfect, he hates his face,

teeth, body- size.....I mean, you name it, and he hates it about himself.

He's actually very handsome, but he doesn't think so. He's thinner than his

younger brother, and that bothers him too. Since the beginning of high

school, he has been chronically late or absent from school, but was always

able to recover missed school assignments and pass with mostly B's and the

occasional C. This has become more chronic since 10th grade (which he is in

now) that it is now affecting his grades.

He saw a psychiatrist about a month ago and he fussed at me for not bringing

him sooner. They have put him on Zoloft, and he seemed to do better with no

absences for 2 weeks--then spring break came and the bottom fell out. Over

the last two weeks, he has only gone to school 3 days. His doctor is out of

town until May 1st, and I don't know what to do. He just sleeps all day and

complains of headaches and general malaise. His doctor told me to be his

support. If he didn't want to go that day or if he need to go in late than

I was simply relax about and not get upset....I was to support and comfort.

My son doesn't feel like the medication (Zoloft 50 mg.) is working and his

doctor isn't available until next week to offer him any counseling. He just

stays in bed until the school day is over, to exhausted to get up to eat,

brush his teeth, etc. I bring him his food. He's such a sweet boy, kind

and loving, and genuinely sorry for all that's

happening. I know there's no magic wand I can wave, I just need to vent to

those that will understand. This has got me feeling so worried.

The doctor returned from his vacation and called yesterday and wants me to

increase his meds from 50 to 75mg. over the next 3 days; then to 100 mg.

after that and to call him back on Monday. If the doctors on this list feel

this is increasing his med too rapidly, please tell me. My son saw this

doctor once before the doctor left on an extended vacation. I personally

did not care for the doctor's attitude during our phone conversation. He

was rude and arrogant. He said if he staying in his room all day and can't

pull it together (as he put it), I should tell him the doctor thinks he

should go into the hospital! Hospitalization, to me, seems like it should

be a last resort...but I don't know maybe I'm wrong. His harsh attitude

about this rubbed me the wrong way. Well, I shed a few tears during our

conversation and expressed how concerned I was for him. I said, " He's my

baby. " His response: " He's not your baby! " To which I responded, " Well,

you know what I mean...my kids will always be my babies. " He replied, " He's

not your baby...And you're part of the problem! " " Look, just increase his

medication like I said and call me Monday. " I just said, " Okay, " and hung

up. This really burned me up. This man doesn't know me. He doesn't know

my strengths but certainly assumed my weaknesses. Geez, I don't express my

worries and tears in front my son. I'm in the process of finding another

doctor in the Atlanta area. Your comments and support are appreciated.

p.s. I did some research on the computer and read about BDD. The

psychiatrist he saw never mention this condition to us. It sounds like he

may be suffering from this as well.

[Guest guest]

Thank you Kathy and Everyone I haven't replied to--

I appreciate all the kind words of encouragement and support. This is a

great bunch and I'm so glad Louis Harkins directed me here. Thanks !

My son is on the last of his 3 day increase to 75mg., and I will be

increasing the meds to 100 mg. tomorrow. He had one evening with a minor

display of his 'ole self, but since then, he's back to being an

introvert--not talking much. He describes the feeling from the medication

as being muddle headed, like he can't think straight, and complains of

extreme fatigue. I am still concerned these are side effects and not

transient effects of the meds.

The one positive thing I can report is his appetite has improved. Over the

last two weeks, nothing sounded good to him and with him sleeping most of

the day away; he has lost weight. This is something that may complicate his

BDD as he doesn't like his thin frame. He's about 5' 9 " and is down to

125lbs.

I think I have located a psychologist. He was so nice to speak with today.

He also suggested a psychiatrist. So I'm on the way. The only stinker is

they're not on my insurance which means my benefits will be reduce and I may

have a separate deductible to meet. I don't know what to do about that. I

really want to get my son in with someone that specializes in OCD. I'm

sure we'll work it out.

Since my son basically stopped going to school the last 3 weeks, it appears

he'll be going to summer school in order to complete the 10 grade. The

counselor has been wonderful, but my son is worried about what the kids will

say and think if and when he finally returns.

Here's a *HUG* for all of you,

Sandi

> Hi Sandi, well you certainly have *my* permission to ditch this doc :-)

after of course you find another with a civil attitude and who is current

with OCD treatment. Fill whatever prescriptions you have from this guy, to

tide you over until you can get your son in to see another psychiatrist,

sometimes this can take a couple of months. BTW, the idea that Mom can

cause OCD or any other brain disorder was disproved some time ago... :-)

>

> Reading your post about your son's recent problems and behavior, I thought

about depression which is a common comorbid problem with OCD. Your son's

Zoloft dose is pretty low and both OCD and any depression he may be

suffering may improve with an increased dose.

>

> I am not a doctor, but I think you are spot on about BDD, which many docs

believe either is just another flavor of OCD, or is in the same spectrum.

It is also treated with SSRIs and/or Cognitive Behavior Therapy as OCD is.

>

> (((Hugs))) You and your son will get through this hard time, keep us

updated,

>

> Kathy R. in Indiana

>

> ----- Original Message -----

> From: Sandi

>

> I am new member to this group. My son was recently went on medication

for

> OCD--Zoloft. He is really struggling right now and is no longer feels

able

> to go to school. Hello everyone, I will try to keep this as brief as

> possible, but I'm an

> emotional wreck and need your support. I have a 16 y.o. son with OCD.

He

> was diagnosed with mild OCD at a very early age (8-9). His compulsive

> behaviors at that time were common including frequent hand washing, germ

> phobia, checking whether the doors were locked, checking numbers on the

> clock and microwave, and turning light switches on and off many times.

> While he did have all these symptoms, he did not do them to extent that

his

> pediatrician felt he needed meds. His pediatrician gave him some

behavioral

> techniques to use to help control his OCD, and he was able to stop

and/or

> control many of these behaviors to the point that I felt he'd made a

huge

> step in controlling his OCD. During the middle school years, my son

began

> developing other symptoms mainly related to his appearance. He never

looks

> good enough, his hair and clothes have to be perfect, he hates his face,

> teeth, body- size.....I mean, you name it, and he hates it about

himself.

> He's actually very handsome, but he doesn't think so. He's thinner than

his

> younger brother, and that bothers him too. Since the beginning of high

> school, he has been chronically late or absent from school, but was

always

> able to recover missed school assignments and pass with mostly B's and

the

> occasional C. This has become more chronic since 10th grade (which he

is in

> now) that it is now affecting his grades.

>

> He saw a psychiatrist about a month ago and he fussed at me for not

bringing

> him sooner. They have put him on Zoloft, and he seemed to do better

with no

> absences for 2 weeks--then spring break came and the bottom fell out.

Over

> the last two weeks, he has only gone to school 3 days. His doctor is

out of

> town until May 1st, and I don't know what to do. He just sleeps all day

and

> complains of headaches and general malaise. His doctor told me to be

his

> support. If he didn't want to go that day or if he need to go in late

than

> I was simply relax about and not get upset....I was to support and

comfort.

>

> My son doesn't feel like the medication (Zoloft 50 mg.) is working and

his

> doctor isn't available until next week to offer him any counseling. He

just

> stays in bed until the school day is over, to exhausted to get up to

eat,

> brush his teeth, etc. I bring him his food. He's such a sweet boy,

kind

> and loving, and genuinely sorry for all that's

> happening. I know there's no magic wand I can wave, I just need to vent

to

> those that will understand. This has got me feeling so worried.

>

> The doctor returned from his vacation and called yesterday and wants me

to

> increase his meds from 50 to 75mg. over the next 3 days; then to 100 mg.

> after that and to call him back on Monday. If the doctors on this list

feel

> this is increasing his med too rapidly, please tell me. My son saw this

> doctor once before the doctor left on an extended vacation. I

personally

> did not care for the doctor's attitude during our phone conversation.

He

> was rude and arrogant. He said if he staying in his room all day and

can't

> pull it together (as he put it), I should tell him the doctor thinks he

> should go into the hospital! Hospitalization, to me, seems like it

should

> be a last resort...but I don't know maybe I'm wrong. His harsh attitude

> about this rubbed me the wrong way. Well, I shed a few tears during our

> conversation and expressed how concerned I was for him. I said, " He's

my

> baby. " His response: " He's not your baby! " To which I responded,

" Well,

> you know what I mean...my kids will always be my babies. " He replied,

" He's

> not your baby...And you're part of the problem! " " Look, just increase

his

> medication like I said and call me Monday. " I just said, " Okay, " and

hung

> up. This really burned me up. This man doesn't know me. He doesn't

know

> my strengths but certainly assumed my weaknesses. Geez, I don't express

my

> worries and tears in front my son. I'm in the process of finding

another

> doctor in the Atlanta area. Your comments and support are appreciated.

>

> p.s. I did some research on the computer and read about BDD. The

> psychiatrist he saw never mention this condition to us. It sounds like

he

> may be suffering from this as well.

>

>

>

[Guest guest]

Thank you Kathy and Everyone I haven't replied to--

I appreciate all the kind words of encouragement and support. This is a

great bunch and I'm so glad Louis Harkins directed me here. Thanks !

My son is on the last of his 3 day increase to 75mg., and I will be

increasing the meds to 100 mg. tomorrow. He had one evening with a minor

display of his 'ole self, but since then, he's back to being an

introvert--not talking much. He describes the feeling from the medication

as being muddle headed, like he can't think straight, and complains of

extreme fatigue. I am still concerned these are side effects and not

transient effects of the meds.

The one positive thing I can report is his appetite has improved. Over the

last two weeks, nothing sounded good to him and with him sleeping most of

the day away; he has lost weight. This is something that may complicate his

BDD as he doesn't like his thin frame. He's about 5' 9 " and is down to

125lbs.

I think I have located a psychologist. He was so nice to speak with today.

He also suggested a psychiatrist. So I'm on the way. The only stinker is

they're not on my insurance which means my benefits will be reduce and I may

have a separate deductible to meet. I don't know what to do about that. I

really want to get my son in with someone that specializes in OCD. I'm

sure we'll work it out.

Since my son basically stopped going to school the last 3 weeks, it appears

he'll be going to summer school in order to complete the 10 grade. The

counselor has been wonderful, but my son is worried about what the kids will

say and think if and when he finally returns.

Here's a *HUG* for all of you,

Sandi

> Hi Sandi, well you certainly have *my* permission to ditch this doc :-)

after of course you find another with a civil attitude and who is current

with OCD treatment. Fill whatever prescriptions you have from this guy, to

tide you over until you can get your son in to see another psychiatrist,

sometimes this can take a couple of months. BTW, the idea that Mom can

cause OCD or any other brain disorder was disproved some time ago... :-)

>

> Reading your post about your son's recent problems and behavior, I thought

about depression which is a common comorbid problem with OCD. Your son's

Zoloft dose is pretty low and both OCD and any depression he may be

suffering may improve with an increased dose.

>

> I am not a doctor, but I think you are spot on about BDD, which many docs

believe either is just another flavor of OCD, or is in the same spectrum.

It is also treated with SSRIs and/or Cognitive Behavior Therapy as OCD is.

>

> (((Hugs))) You and your son will get through this hard time, keep us

updated,

>

> Kathy R. in Indiana

>

> ----- Original Message -----

> From: Sandi

>

> I am new member to this group. My son was recently went on medication

for

> OCD--Zoloft. He is really struggling right now and is no longer feels

able

> to go to school. Hello everyone, I will try to keep this as brief as

> possible, but I'm an

> emotional wreck and need your support. I have a 16 y.o. son with OCD.

He

> was diagnosed with mild OCD at a very early age (8-9). His compulsive

> behaviors at that time were common including frequent hand washing, germ

> phobia, checking whether the doors were locked, checking numbers on the

> clock and microwave, and turning light switches on and off many times.

> While he did have all these symptoms, he did not do them to extent that

his

> pediatrician felt he needed meds. His pediatrician gave him some

behavioral

> techniques to use to help control his OCD, and he was able to stop

and/or

> control many of these behaviors to the point that I felt he'd made a

huge

> step in controlling his OCD. During the middle school years, my son

began

> developing other symptoms mainly related to his appearance. He never

looks

> good enough, his hair and clothes have to be perfect, he hates his face,

> teeth, body- size.....I mean, you name it, and he hates it about

himself.

> He's actually very handsome, but he doesn't think so. He's thinner than

his

> younger brother, and that bothers him too. Since the beginning of high

> school, he has been chronically late or absent from school, but was

always

> able to recover missed school assignments and pass with mostly B's and

the

> occasional C. This has become more chronic since 10th grade (which he

is in

> now) that it is now affecting his grades.

>

> He saw a psychiatrist about a month ago and he fussed at me for not

bringing

> him sooner. They have put him on Zoloft, and he seemed to do better

with no

> absences for 2 weeks--then spring break came and the bottom fell out.

Over

> the last two weeks, he has only gone to school 3 days. His doctor is

out of

> town until May 1st, and I don't know what to do. He just sleeps all day

and

> complains of headaches and general malaise. His doctor told me to be

his

> support. If he didn't want to go that day or if he need to go in late

than

> I was simply relax about and not get upset....I was to support and

comfort.

>

> My son doesn't feel like the medication (Zoloft 50 mg.) is working and

his

> doctor isn't available until next week to offer him any counseling. He

just

> stays in bed until the school day is over, to exhausted to get up to

eat,

> brush his teeth, etc. I bring him his food. He's such a sweet boy,

kind

> and loving, and genuinely sorry for all that's

> happening. I know there's no magic wand I can wave, I just need to vent

to

> those that will understand. This has got me feeling so worried.

>

> The doctor returned from his vacation and called yesterday and wants me

to

> increase his meds from 50 to 75mg. over the next 3 days; then to 100 mg.

> after that and to call him back on Monday. If the doctors on this list

feel

> this is increasing his med too rapidly, please tell me. My son saw this

> doctor once before the doctor left on an extended vacation. I

personally

> did not care for the doctor's attitude during our phone conversation.

He

> was rude and arrogant. He said if he staying in his room all day and

can't

> pull it together (as he put it), I should tell him the doctor thinks he

> should go into the hospital! Hospitalization, to me, seems like it

should

> be a last resort...but I don't know maybe I'm wrong. His harsh attitude

> about this rubbed me the wrong way. Well, I shed a few tears during our

> conversation and expressed how concerned I was for him. I said, " He's

my

> baby. " His response: " He's not your baby! " To which I responded,

" Well,

> you know what I mean...my kids will always be my babies. " He replied,

" He's

> not your baby...And you're part of the problem! " " Look, just increase

his

> medication like I said and call me Monday. " I just said, " Okay, " and

hung

> up. This really burned me up. This man doesn't know me. He doesn't

know

> my strengths but certainly assumed my weaknesses. Geez, I don't express

my

> worries and tears in front my son. I'm in the process of finding

another

> doctor in the Atlanta area. Your comments and support are appreciated.

>

> p.s. I did some research on the computer and read about BDD. The

> psychiatrist he saw never mention this condition to us. It sounds like

he

> may be suffering from this as well.

>

>

>

[Guest guest]

Hi ,

Welcome to the list. I have a son that hasn't been diagnosed either. In my

situation the label wouldn't make a difference as far as school is concerned.

I think many of the same teaching and learning strategies apply to all

children with DS. I may not exactly belong to this list but everyone is so

clever and I learn from them daily.

Charlyne

Mom to Zeb 9 DS/OCD ?

[Guest guest]

hi ricka i'm stacie i'm in indiana to i have my secound

defibrillator/pacemake i got my firsted one in 1998 and secound one this

year i've been shocked over 300 times i have v-tach v-fib a-tach a-fib

av-tach and av-fib and will help with qeustions or whatever you need you

can email on list or at rcsejt@... or smiley46203@... i

will help to answer any questions i can

stacie,19 shocking life for shocking people

New To The List

> Hi All!

>

> Been lurking for a few days, and finally find the time for a short

> intro.

>

> I'm Rick in Indiana - had my MI July 21 of this year and

> received my ICD/pacemaker the first week in August.

>

> I've got lots of questions about *everything* but I'll check out the

> archives, etc so's not to make a pest of myself by asking oft asked

> questions

>

> Seems like a great group, glad to have found you-all!

>

> Best,

>

> Ricka

>

>

>

> Please visit the Zapper homepage at

> http://www.ZapLife.org

>

>

[Guest guest]

Hi ,

I have a 12 yr. old son named Brook that we had diagnosed last December

when he was 11 yrs. We knew he had the autism diagnosis for several years,

but in our situation at the time it didn't make a difference in his services.

We were fortunate that his teacher accepted and recognized the autism readily

and used appropriate teaching techniques with him prior to the diagnosis.

But, it has opened up some new areas for us to explore, like medication

for example. We started Brook on Risperdal back in February and have seen a

great deal of improvement in his behavior. Also for getting the amount of

respite I want, it helps that he has the dual diagnosis. I am also positive

that there will be many times in the future that the autism diagnosis will

help him get services that he needs. Right now his Dr. wants him to have a

sensory integration program done at school, it's helpful that the Dr. (autism

specialist) is recommending it. This year the OT strongly agrees with the Dr,

last year even though he had the diagnosis and the Dr. recommended it, the OT

did not think he needed it. So, it doesn't always get you what you need, but

it is definitely something to look into when you are ready. I would

recommend it for Jimmy based on what you have told us about him. Also it is

comforting to have a reason why our kids learn and behave differently.

Marisa,

Miles 15, Brook 12, Genevieve 5

[Guest guest]

Hi, Rick. Welcome to the . If you have questions or just need some

morale support, there are a lot of people on this list who are more than

willing to help out.

Mike

New To The List

Hi All!

Been lurking for a few days, and finally find the time for a short

intro.

I'm Rick in Indiana - had my MI July 21 of this year and

received my ICD/pacemaker the first week in August.

I've got lots of questions about *everything* but I'll check out the

archives, etc so's not to make a pest of myself by asking oft asked

questions

Seems like a great group, glad to have found you-all!

Best,

Ricka

Please visit the Zapper homepage at

http://www.ZapLife.org

[Guest guest]

Rick...Hello and welcome!! My name is and I am from Iowa. I am on my 5th ICD unit...which I guess makes me one of the "old- timers". I prefer to think of myself as "seasoned and experienced!!"

You will find answers to your questions...and emotional support, whenever you need it. This is a wonderful, strong, supportive group that looks forward to your contributions.

Just wanted to say hello and welcome!

Love give me Strength, and Strength shall help afford...

Shakespeare

Romeo and t

[Guest guest]

hi laura!!! wow my nathan is 11yrs too. heheh i know of that video rewind

rewind and computer over and over. As for the Dx, it mainly hleps with

appropriate services, and if jimmy allready receives them, or you feel they

are adequate its up to you if you want to venture for the actual dx. Some

really have to venture other like in my case, got it without any idea of

autism. shawna.

New to the list

> Hello, all! My name is Khederian - I may have " met " some of

> you already on the list or the MosaicDS list....but thought

> I'd post a quick hello to those of you that I don't know yet.

>

> I live in Rochester, NY - have a DH, Steve, and 3 kids - Aubrey (13),

> Jimmy (11) and Hannah (10). Jimmy has Down syndrome and, I am

> beginning to suspect, also has autism at some level. My

> understanding is that there is a spectrum of symptoms - he displays

> some, but not all. I know that a lot of parents with kids with DS

> say that their child has " autistic tendencies " - and I guess I'm to

> the point of questioning what the heck the difference is between

> having " tendencies " and having autism.....!

>

> So, I've joined this list to see what's what and make sure that I am

> doing right by my boy if, in fact, he does have autism in addition to

> the DS. Specifically, I want to make sure that we're taking

> advantage of all the information out there on " best practices "

> regarding teaching kids with DS and autism.

>

> Jimmy has had a lot of behavior issues at school - his behavior

> management plan was developed by a specialist at an autism clinic.

> He likes his life very predictable....the more routine, the better.

> He is usually very friendly and social. He talks - has a lot of

> problems with artic, but is willing to interact. His eye contact is

> not the best, but he will look at you at least half the time on his

> own and all the time if you remind him. He will play with other

> kids, but prefers activities like computer games (where he will play

> the same game over and over and over again), videos (where he will

> rewind and play the same segment over and over and over again), and

> doing puzzles. He receives sensory integration therapy once a week,

> which is very helpful. He has " vocalizations " when he is

> concentrating on something - sort of like " ayuh....ayuh......ayuh " .

>

> He's never gotten a formal dual diagnosis. Do you all think it's

> important to get that defined on your child's IEP? Any suggestions

> for me?

>

> I'm happy to be a part of this list!

>

>

>

>

> --------------------------------------------------

> Checkout our homepage for information, bookmarks, and photos

of our kids. Share favorite bookmarks, ideas, and other information by

including them. Don't forget, messages are a permanent record of the

archives for our list.

> --------------------------------------------

>

>

[Guest guest]

>

> stacie,19 shocking life for shocking people

Stacie,

I LOVE that sig line!!!!

Bridget - who shall remain impossible as long as those who are

possible remain possible.

[Guest guest]

Hello and welcome aboard. You have come to the right place for answers,

support and just plain ole understanding. My name is and I live in

Vermont. Thank goodness I found the Zapper group. Vermont/New Hampshire

aren't known for there " heart care " capabilities.

Glad to meet you,

in Vermont

Quoting ricsmith2002 <ricsmith@...>:

> Hi All!

>

> Been lurking for a few days, and finally find the time for a short

> intro.

>

> I'm Rick in Indiana - had my MI July 21 of this year and

> received my ICD/pacemaker the first week in August.

>

> I've got lots of questions about *everything* but I'll check out the

> archives, etc so's not to make a pest of myself by asking oft asked

> questions

>

> Seems like a great group, glad to have found you-all!

>

> Best,

>

> Ricka

>

>

>

[Guest guest]

Welcome To the Family Ricka;

This is the best group anywhere. Keep posting and don't be afraid to ask

questions we can only learn from you. If you are stressed out for any reason

tell us that too we'll try to help you get thru it. Good Luck, Good Health

and Good Heart. Love TURK

>From: " ricsmith2002 " <ricsmith@...>

>Reply-

>

>Subject: New To The List

>Date: Fri, 22 Nov 2002 06:01:43 -0000

>

>Hi All!

>

>Been lurking for a few days, and finally find the time for a short

>intro.

>

>I'm Rick in Indiana - had my MI July 21 of this year and

>received my ICD/pacemaker the first week in August.

>

>I've got lots of questions about *everything* but I'll check out the

>archives, etc so's not to make a pest of myself by asking oft asked

>questions

>

>Seems like a great group, glad to have found you-all!

>

>Best,

>

>Ricka

>

_________________________________________________________________

The new MSN 8: advanced junk mail protection and 2 months FREE*

http://join.msn.com/?page=features/junkmail

[Guest guest]

Hi Again!

Just want to say thanks for the warm welcome - makes a person feel

right at home

I'm making a list (and checking it twice) of questions ... expect to

have your ears bent just about off!

Ricka

[Guest guest]

Welcome to the zoo...I mean list!

Cheers

Tom G

lover of fine single malt

former jumper out of airplanes

>From: " Mark " <tintin@...>

>Reply-

>< >

>Subject: NEW TO THE LIST

>Date: Sat, 28 Dec 2002 18:03:37 -0000

>

>Hi Folks

>

>I have just joined the group. My name is Mark and I live in a place

>called Bollington in Cheshire, England. I am a Combat Medical Technician

>in the Royal Army Medical Corps (Volunteers).

>

>I used to be in the Parachute Squadron until I obtained a matching pair of

>smashed up heel bone, so the wife grounded me and the Army agreed with

>her!!! I am now involved with the Battlefield Advanced Trauma Life Support

>Training Team.

>

>I did the first Wilderness Emergency Medical Technician course this side of

>the " pond " in Dublin in 1996 and have been involved with the coursed ever

>since.

>

>Best regards

>

>Mark aka Tin Tin

>

>

>

[Guest guest]

Mark,

Welcome to the list.

Rgs

Ian

NEW TO THE LIST

Hi Folks

I have just joined the group. My name is Mark and I live in a

place called Bollington in Cheshire, England. I am a Combat Medical

Technician in the Royal Army Medical Corps (Volunteers).

I used to be in the Parachute Squadron until I obtained a matching pair

of smashed up heel bone, so the wife grounded me and the Army agreed

with her!!! I am now involved with the Battlefield Advanced Trauma Life

Support Training Team.

I did the first Wilderness Emergency Medical Technician course this side

of the " pond " in Dublin in 1996 and have been involved with the coursed

ever since.

Best regards

Mark aka Tin Tin

[Guest guest]

Hi ,

My name is Carmen and I am in California for another month and then on to

Michigan. Welcome to our wonderful, supportive, caring and funny group. I

never thought about not taking antiinflamitories because of taking blood

thinners. That's too bad as I'm sure they would be a help to you but I guess

your Rheumatologist knows best.

It's nice to meet you and I hope you continue to keep in touch with us.

Where do you live?

Ca. Carmen

[Guest guest]

Hi Patti in Canada,

That was such a nice thing to say about our group....how helpful we are

without even knowing it. That makes me feel very good. We do try to help

one another as much as we can and I truly believe that most of us know more

about how to get ourselves feeling better than our doctors. Until I joined

this group, I don't believe my Rheumatologist knew anything about Stills and

now if I suggest a new treatment or drug, he is willing to try it with me.

Gosh darn, we are some smart cookies, yes?

I hope you are feeling better now that warmer weather seems to be coming out

way. The weather plays no part in my feeling good or bad but it probably

does for some of us.

Take care,

Ca. Carmen

[Guest guest]

Hello and welcome your symtoms sound very much like AOSD allrite or the

DRAGON as we refer it it.I am d. and on my onset of stills i had all the

symtoms you just described was very painful as we all know espcailly when the

fevers come.My rash was sooo bad that they thought i was clotting too,but i

wasnt just very bad lookin rash they were giving me a sht in the belly which

wasnt too bad but also not needed was gettin it for bout 2 weeks in hospital

after my doctor told me it wasnt blood clotting lol.I told the nurses that i

didnt think that i was supposed to be gettin it anymore but even then it still

continued for few days till i saw my interalist.U take care and really

hope u can get the help u need. d.Canada New to the list

Hello everyone. My name is and I'm 24 years old and have

recently been diagnosed with Stills. I have several blood clotting disorderv

and had a pulmonary embolism in December and another one in February. These

embolisms were different than the ones in the past because before I always

got sick went to the hospital for at least 5 days and then I would start to

get better. This time I spent much more time in the hospital and kept

landing back in the ER becuase of high fevers, a rash, pleurisy, and now

pericarditis.

I've had symptoms with the clotting disorders for over five years but at

least then I knew what to expect of my body. Currently I feel like I'm

falling apart. I haven't started any treatments because everyone is afraid

to prescribe them because of the three blood thinners I take daily. The

antiinflamatories they tried caused me to have internal bleeding.

I look forward to talking to all of you and wish you good health.

[Guest guest]

Just want to say welcome to . I have only been hooked up with this

group for about a month. They are really helpful in more ways than they even

know!

Patti~Canada

>From: Roseman <sroseman@...>

>Reply-Stillsdisease

> " 'stillsdisease ' " <stillsdisease >

>Subject: New to the list

>Date: Tue, 18 Mar 2003 08:22:11 -0500

>

> Hello everyone. My name is and I'm 24 years old and have

>recently been diagnosed with Stills. I have several blood clotting

>disorderv

>and had a pulmonary embolism in December and another one in February. These

>embolisms were different than the ones in the past because before I always

>got sick went to the hospital for at least 5 days and then I would start to

>get better. This time I spent much more time in the hospital and kept

>landing back in the ER becuase of high fevers, a rash, pleurisy, and now

>pericarditis.

> I've had symptoms with the clotting disorders for over five years but

>at

>least then I knew what to expect of my body. Currently I feel like I'm

>falling apart. I haven't started any treatments because everyone is afraid

>to prescribe them because of the three blood thinners I take daily. The

>antiinflamatories they tried caused me to have internal bleeding.

> I look forward to talking to all of you and wish you good health.

>

>

Please take the time to check out my homepage at

http://www.angelfire.com/hi2/peppermintp

and leave me a message there or just email me back.

Love you all

PattiPike<IMG height=12 src= " http://g

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[Guest guest]

Hi ,

I am glad you found us, but sorry you have the Stills Disease.

You have a unique situation with the blood clotting problems,

and not being able to take NSAIDS. Has your doctor put you

on any steroids as of yet? Hopefully they will find something

that you can take that will bring you comfort from the Stills

Disease. What do you take for the pain?

Welcome to this support group ! Where do you live?

Tricia

Wisconsin

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-- New to the list

Hello everyone. My name is and I'm 24 years old and have

recently been diagnosed with Stills. I have several blood clotting disorderv

and had a pulmonary embolism in December and another one in February. These

embolisms were different than the ones in the past because before I always

got sick went to the hospital for at least 5 days and then I would start to

get better. This time I spent much more time in the hospital and kept

landing back in the ER becuase of high fevers, a rash, pleurisy, and now

pericarditis.

I've had symptoms with the clotting disorders for over five years but at

least then I knew what to expect of my body. Currently I feel like I'm

falling apart. I haven't started any treatments because everyone is afraid

to prescribe them because of the three blood thinners I take daily. The

antiinflamatories they tried caused me to have internal bleeding.

I look forward to talking to all of you and wish you good health.

..

[Guest guest]

Hi back at you , I'm very sorry you got this disease but you are most

welcome here.

I've had Stills for 25 years, a lot of those years it's been in remission.

We still have health problems to live with but a better life than the onset

for sure.

I did get a clot almost two years ago and had to stop my estrogen and

NSAIDS. It was really a wake up in many ways for me.

We also have a long standing member in Canada that has been on thinners for

many years.

I hope they can get you stable and work out a medicine plan so that you feel

better. Sometimes it takes a little while but there is always hope for

remission. Nice to meet you and look forward to knowing you better, Patty

(my nickname is Melt) in So. Cal.

New to the list

> Hello everyone. My name is and I'm 24 years old and have

> recently been diagnosed with Stills. I have several blood clotting

disorderv

> and had a pulmonary embolism in December and another one in February.

These

> embolisms were different than the ones in the past because before I always

> got sick went to the hospital for at least 5 days and then I would start

to

> get better. This time I spent much more time in the hospital and kept

> landing back in the ER becuase of high fevers, a rash, pleurisy, and now

> pericarditis.

> I've had symptoms with the clotting disorders for over five years but

at

> least then I knew what to expect of my body. Currently I feel like I'm

> falling apart. I haven't started any treatments because everyone is afraid

> to prescribe them because of the three blood thinners I take daily. The

> antiinflamatories they tried caused me to have internal bleeding.

> I look forward to talking to all of you and wish you good health.

>

>

>

>

>

[Guest guest]

, do you have the factor v leiden gene mutation or the

anticardiolipin antibodies? If so they are related to your stills disease.

GO DAWGS !!!!!