Questions

[Guest guest]

Hi, I have a few questions to ask all of you.

Has anyone ever heard of " Tahitian Noni Juice " ? I've heard it is good for the

liver and a number of other things.

Is it safe to take St. 's Wort with hep C?

Does anyone have a list of the foods, herbs, and drugs that shouldn't be

consumed with hep C?

Thank you,

Cleo

[Guest guest]

Hi Cleo,

I've never heard of this juice. The only herb that I know is supposed to

help protect the liver is Milk Thistle.

I would think that you can take St. 's Wort, since I'm was taking

anti-depressants all the time, even when on the Interferon.

I think that it's good to stay away from cold and cough medicines that

contain alcohol, since alcohol is like poison to your liver.

I just bought a new book, " Living with Hepatitis C - A Survivor's Guide " , by

T. Everson, M.D. It was just published in 1998 so it's got a lot of

up to date info. You can get it on the internet from Amazon.com or probably

at a book store. The author is the Director of Hepatology at the Univ. of

Colorado Health Sciences Center.

There's a chapter in this book entitled " Taking Care of Yourself

Nutritianally " . I wish I'd had this book earlier, it's packed with useful

information.

There are some good web sites on Hepatitis C, one is called Hep Net. They

have info on nutrician and lots more. Also the American Liver Foundation

will send you free info if you ask them.

Oh Yes, my doctor said to distilled water, about 2 quarts a day.

It will help your liver and keep you from becoming dehydrated if you get on

interferon therapy.

Good luck with your search. Take care of yourself.

Marie

At 09:29 PM 1/16/99 EST, you wrote:

>From: CleoraB@...

>

>Hi, I have a few questions to ask all of you.

>Has anyone ever heard of " Tahitian Noni Juice " ? I've heard it is good for the

>liver and a number of other things.

>Is it safe to take St. 's Wort with hep C?

>Does anyone have a list of the foods, herbs, and drugs that shouldn't be

>consumed with hep C?

>Thank you,

>Cleo

>

>------------------------------------------------------------------------

>

[Guest guest]

>Hi, I have a few questions to ask all of you.

>Has anyone ever heard of " Tahitian Noni Juice " ? I've heard it is good for the

>liver and a number of other things.

>Is it safe to take St. 's Wort with hep C?

>Does anyone have a list of the foods, herbs, and drugs that shouldn't be

>consumed with hep C?

>Thank you,

>Cleo

For alot of info on herbs and alternatives check out

http://www.jovo.com.hk/ - The Underground Hepatitis Site

Jeannette

[Guest guest]

Lehnanne,

I can speak from personal experience (I've been in the Navy 14 yrs and

worked in Security/Brigs for 7 of those). A Capts. Mast (Office hours for

the non-Navy types, or Art. 15.... whatever ya wanna go by) can be as fast

or as long and drawn out as the military chooses to make it. I have seen

some where the person went to XOI and waited in limbo for weeks *That's

really stressful on them as legal personnel usually deny knowing any dates*,

I've seen others where the person was in the CO's office within the same day

or even hours. I've seen some Courts-Martials held within a day or two of

mast.

Those are just a few of the personal experiences I have had.

As a little side note to all concerned, I took the first shot. It created

more pain than I was in prior too and have now been waived from further

vaccination thru medical until they can figure out what's goin on with

me.... Kinda interesting huh?

>From: " Lehnanne DeiziaLoup " <sisternet@...>

>Reply-onelist

><onelist>

>Subject: Questions

>Date: Thu, 14 Oct 1999 21:31:27 -0400

>

>Hello all ...

>I have a question ... today my husband refused the shot .. he goes tomorrow

>to watch the video on Anthrax ...

>He has already refused to follow a direct order ... if he continues to

>refuse after tomorrows video ... he will go to Captain's Mast on monday

>

>Okay here is the question ... is it normally this fast?

>I was under the assumption that it was drawn out ...

>Has anyone read the article in the 18 Oct 99 Navy Times?

>About the sailor in San Diego who refused?

>

>It has been 2 weeks or more and there was no mention as to what sort of

>punishment he was receiving and already my husband is standing Captains

>Mast?

>

>Okay .. just wondering.

>

>Lehnanne

>

[Guest guest]

Part of the answer to you husbands expedited process could be due to the

commander. You see, the military has so many people that the big commanders

cannot possibly be involved with every issue and every person. It has been

the way of the DOD - throughout history - to allow unit commanders to make

decisions about what to do with their own people. On on hand, two people

who commit the same offense, could receive two completely different

punishments. That the down side. On the other hand, commanders should know

their people, thus allowing them to make the best decision for each

individual situation.

Good luck.

>From: " Lehnanne DeiziaLoup " <sisternet@...>

>Reply-onelist

><onelist>

>Subject: Questions

>Date: Thu, 14 Oct 1999 21:31:27 -0400

>

>Hello all ...

>I have a question ... today my husband refused the shot .. he goes tomorrow

>to watch the video on Anthrax ...

>He has already refused to follow a direct order ... if he continues to

>refuse after tomorrows video ... he will go to Captain's Mast on monday

>

>Okay here is the question ... is it normally this fast?

>I was under the assumption that it was drawn out ...

>Has anyone read the article in the 18 Oct 99 Navy Times?

>About the sailor in San Diego who refused?

>

>It has been 2 weeks or more and there was no mention as to what sort of

>punishment he was receiving and already my husband is standing Captains

>Mast?

>

>Okay .. just wondering.

>

>Lehnanne

>

[Guest guest]

In a message dated 10/15/99 4:22:35 AM !!!First Boot!!!, sisternet@...

writes:

<< Hello all ...

I have a question ... today my husband refused the shot .. he goes tomorrow

to watch the video on Anthrax ...

He has already refused to follow a direct order ... if he continues to

refuse after tomorrows video ... he will go to Captain's Mast on monday

Okay here is the question ... is it normally this fast?

I was under the assumption that it was drawn out ... >>

I think that the military has gotten a wake up call from the civilian head of

the military(Sec Def Cohen), and the military is obviously under a lot of

pressure to set an example for everyone else in his/her command and they

intend to set this example by quickly punishing those people who refuse the

vaccine. And, it's also obvious that the military has planned for these

objections since they have an " anthrax video " to scare you into agreeing with

the military and the Sec Def.

Not only do they have the " anthrax video " and the 51 pages of powerpoint

slides that the person in the Air Force was talking about, but they also have

the army's anthrax vaccine web page. Here's it's link....and talk about

being biased!!!!!

<A HREF= " http://www.anthrax.osd.mil/ " >ANTHRAX VACCINE IMMUNIZATION PROGRAM -

The Official DoD Anthrax Information Web Site</A>

[Guest guest]

There is more than one sailor in San Diego who has refused. Can you provide

more details on the Oct. 18th newspaper article?

[Guest guest]

The article appeared in the 18 Oct issue of Navy Times ...

I called / e-mailed G. Fuentes, the staff writer who wrote the article ...

in hopes of finding more info .. however I have not received a reply yet.

I am not sure if the Navy Times web site is updated yet .. last time I

looked it was still the 14 Oct issue online ... but the url is

http://www.navytimes.com

Lehnanne

> There is more than one sailor in San Diego who has refused. Can you

provide

> more details on the Oct. 18th newspaper article?

[Guest guest]

My husband refused the anthrax on May 12. He received no time to watch a

video or talk to a doctor. The only person he was allowed to talk to was

a nurse who told him that his command had the option to hold him down and

immunize him at their discretion. He got a field grade article 15 on 24

May. His chapter was started on 26 May. It is 19 October and we are

still here. Everyone else we have been reading about has gotten out

pretty quick.

Good luck.

On Thu, 14 Oct 1999 21:31:27 -0400 " Lehnanne DeiziaLoup "

<sisternet@...> writes:

>From: " Lehnanne DeiziaLoup " <sisternet@...>

>

>Hello all ...

>I have a question ... today my husband refused the shot .. he goes

>tomorrow

>to watch the video on Anthrax ...

>He has already refused to follow a direct order ... if he continues to

>refuse after tomorrows video ... he will go to Captain's Mast on

>monday

>

>Okay here is the question ... is it normally this fast?

>I was under the assumption that it was drawn out ...

>Has anyone read the article in the 18 Oct 99 Navy Times?

>About the sailor in San Diego who refused?

>

>It has been 2 weeks or more and there was no mention as to what sort

>of

>punishment he was receiving and already my husband is standing

>Captains

>Mast?

>

>Okay .. just wondering.

>

>Lehnanne

[Guest guest]

Christi ... I am not sure what branch your hubby is in but thought you might

want to see this if you haven't already

http://www.dallasnw.quik.com/cyberella/Anthrax/force.html

~*~*~*~

SisterNet

http://www.sisternet.org

sisternet@...

ICQ 452931

No one beneath you can offend you

No one your equal would

~*~*~*~

Re: Questions

> From: Jeffery S Proffitt <cj0715@...>

>

> My husband refused the anthrax on May 12. He received no time to watch a

> video or talk to a doctor. The only person he was allowed to talk to was

> a nurse who told him that his command had the option to hold him down and

> immunize him at their discretion. He got a field grade article 15 on 24

> May. His chapter was started on 26 May. It is 19 October and we are

> still here. Everyone else we have been reading about has gotten out

> pretty quick.

>

> Good luck.

>

> On Thu, 14 Oct 1999 21:31:27 -0400 " Lehnanne DeiziaLoup "

> <sisternet@...> writes:

> >From: " Lehnanne DeiziaLoup " <sisternet@...>

> >

> >Hello all ...

> >I have a question ... today my husband refused the shot .. he goes

> >tomorrow

> >to watch the video on Anthrax ...

> >He has already refused to follow a direct order ... if he continues to

> >refuse after tomorrows video ... he will go to Captain's Mast on

> >monday

> >

> >Okay here is the question ... is it normally this fast?

> >I was under the assumption that it was drawn out ...

> >Has anyone read the article in the 18 Oct 99 Navy Times?

> >About the sailor in San Diego who refused?

> >

> >It has been 2 weeks or more and there was no mention as to what sort

> >of

> >punishment he was receiving and already my husband is standing

> >Captains

> >Mast?

> >

> >Okay .. just wondering.

> >

> >Lehnanne

>

[Guest guest]

I don't have experience with a Beck pulser, but I do with a BioMedici

magnetic pulser. I use it to get temporary pain relief (for arthritis pain).

And it does work really well, it seems to be a pain pill replacement at this

point--I haven't tried it long enough to know if it has longer term help (3

months so far). But it's great because my Darvocet doesn't touch my neck pain

and this does in 10 minutes or less--it's gone.

In a message dated 12/02/1999 11:54:44 AM Eastern Standard Time,

raybarrett@... writes:

<< Dear Group:I recently joined this list because I'am considering getting

Beck pulsers.However, in reading the archivemessages of this group, I do not

see any success stories.What kind of results are you getting?Furthermore, in

researching websites not selling pulsers, I found the enclosed article.Can

any of you respond to thequestions raised in this

article?-----------------------------<<Not all researchers think that viruses

are blown up. Bob Beck describes the effect on HIV as inhibiting the outer

protein layer of the virus from attaching to lymphocyte receptors, which

blocks the binding of the virus with the host cell. Also, there are at least

three basic lines of research. The first is the " Rife-Bare " approach, which

uses what is essentially a " flashing " light. The light is " flashing " at the

pre-set frequency. The second are various forms of magnetic resonance

devices. The third group are electric " zappers " that actually electrify the

blood or other organs. Bob Beck's system is one of the latter. Bob Beck and

Roy Hall claim that their systems are (hypothetically speaking) very

successful. Apparently neither offers significant data on-line to support

their claims. The researchers presenting these systems contend the systems

are safe. They do not cite the proof that the systems are safe. Beck's has

the advantage of apparently being very inexpensive to assemble. In essence,

the cost to prove or disprove the system yourself is relatively low with this

system, and Beck claims he is not selling anything, so has nothing to gain

from promoting his system. There are several claims about research, but no

research. Beck claims his system is " proven " and that there are " hospital

studies " underway. He does not provide the alleged " proof " on the internet.

He also claims his system is proven to be safe. He does not provide the

proof. The owner of Jaguar Enterprises, which produces a Beck unit and

others, argues that the proof and studies are underway, but that the

information cannot >>

[Guest guest]

I understand what you are saying. I am building the Beck device. One thing I

will say however, is that the FDA and the AMA really has a stranglehold on

our medical system, and many legitimate products are kept from public

consumption. As far as Bob Beck goes, his credentials, although not an

automatic right of passage, does beg the question what if he is right?

Safety of his device really is a non-subject in my opinion, since other FDA

devices that use much higher electrical current have been approved for

medical use (TENS, CES, etc.). Isn't it strange that probably 99% of all

prescriptions are chemically derived from a pharmaceutical firm? I've yet to

see a prescribed medicine that is of natural origin, with the exception of

maybe aspirin and vitamin E plus a few others. If a person can't see what's

going on here, he needs to have his head examined (by a state licensed

psychiatrist of course).

Now, Bob Beck has an updated research document which I am going to be

receiving shortly. Hopefully it will shed some light on any new or past

information. A larger question that has emerged in my mind however is why

the patents from the doctors at Albert Einstein (from which Beck derived his

idea for his device) have not been brought to the table and studied further.

If his theories and device are legitimate, can you imagine how this would

upset the medical world?

I know a person who owns a unit and has used it per the instructions.

Since he was not ill (at least not visibly), he can't say whether or not it

did anything for him. He also has the Brain Tuner and does say it in fact

works according to Beck's protocol. So, I guess one must do his own research

and decide, unless hard evidence is brought foward. If I had cancer or some

other debilitating disease, lack of hospital testing sure wouldn't stop me

from using alternative methods. I have used some " way out " things for my

father's illness (diabetes and skin cancer) with success so I don't discount

anything out of hand at first glance. Good Luck.

[bloodelectrification] QUESTIONS

> From: raybarrett@...

>

> Dear Group:I recently joined this list because I'am considering getting

Beck pulsers.However, in reading the archivemessages of this group, I do not

see any success stories.What kind of results are you getting?Furthermore, in

researching websites not selling pulsers, I found the enclosed article.Can

any of you respond to thequestions raised in this

article?-----------------------------<<Not all researchers think that

viruses are blown up. Bob Beck describes the effect on HIV as inhibiting the

outer protein layer of the virus from attaching to lymphocyte receptors,

which blocks the binding of the virus with the host cell. Also, there are at

least three basic lines of research. The first is the " Rife-Bare " approach,

which uses what is essentially a " flashing " light. The light is " flashing "

at the pre-set frequency. The second are various forms of magnetic resonance

devices. The third group are electric " zappers " that actually electrify the

blood or other organs. Bob Beck's system is one of the latter. Bob Beck and

Roy Hall claim that their systems are (hypothetically speaking) very

successful. Apparently neither offers significant data on-line to support

their claims. The researchers presenting these systems contend the systems

are safe. They do not cite the proof that the systems are safe. Beck's has

the advantage of apparently being very inexpensive to assemble. In essence,

the cost to prove or disprove the system yourself is relatively low with

this system, and Beck claims he is not selling anything, so has nothing to

gain from promoting his system. There are several claims about research, but

no research. Beck claims his system is " proven " and that there are " hospital

studies " underway. He does not provide the alleged " proof " on the internet.

He also claims his system is proven to be safe. He does not provide the

proof. The owner of Jaguar Enterprises, which produces a Beck unit and

others, argues that the proof and studies are underway, but that the

information cannot

>

> >

>

[Guest guest]

That's good to hear. Where did you purchase it? My father has osteoarthritis

and friend has rheumatoid arthritis.

Thanks.

Re: [bloodelectrification] QUESTIONS

> From: Sjlane99@...

>

> I don't have experience with a Beck pulser, but I do with a BioMedici

> magnetic pulser. I use it to get temporary pain relief (for arthritis

pain).

> And it does work really well, it seems to be a pain pill replacement at

this

> point--I haven't tried it long enough to know if it has longer term help

(3

> months so far). But it's great because my Darvocet doesn't touch my neck

pain

> and this does in 10 minutes or less--it's gone.

>

>

>

> In a message dated 12/02/1999 11:54:44 AM Eastern Standard Time,

> raybarrett@... writes:

>

> << Dear Group:I recently joined this list because I'am considering getting

> Beck pulsers.However, in reading the archivemessages of this group, I do

not

> see any success stories.What kind of results are you getting?Furthermore,

in

> researching websites not selling pulsers, I found the enclosed article.Can

> any of you respond to thequestions raised in this

> article?-----------------------------<<Not all researchers think that

viruses

> are blown up. Bob Beck describes the effect on HIV as inhibiting the outer

> protein layer of the virus from attaching to lymphocyte receptors, which

> blocks the binding of the virus with the host cell. Also, there are at

least

> three basic lines of research. The first is the " Rife-Bare " approach,

which

> uses what is essentially a " flashing " light. The light is " flashing " at

the

> pre-set frequency. The second are various forms of magnetic resonance

> devices. The third group are electric " zappers " that actually electrify

the

> blood or other organs. Bob Beck's system is one of the latter. Bob Beck

and

> Roy Hall claim that their systems are (hypothetically speaking) very

> successful. Apparently neither offers significant data on-line to support

> their claims. The researchers presenting these systems contend the systems

> are safe. They do not cite the proof that the systems are safe. Beck's has

> the advantage of apparently being very inexpensive to assemble. In

essence,

> the cost to prove or disprove the system yourself is relatively low with

this

> system, and Beck claims he is not selling anything, so has nothing to gain

> from promoting his system. There are several claims about research, but no

> research. Beck claims his system is " proven " and that there are " hospital

> studies " underway. He does not provide the alleged " proof " on the

internet.

> He also claims his system is proven to be safe. He does not provide the

> proof. The owner of Jaguar Enterprises, which produces a Beck unit and

> others, argues that the proof and studies are underway, but that the

> information cannot >>

>

> >

[Guest guest]

I'll get the address or number from my Mom and post it for anyone interested

re the BioMedici magnetic pulser.

In a message dated 12/3/99 5:35:58 PM Eastern Standard Time,

voodootoo@... writes:

<<

That's good to hear. Where did you purchase it? My father has osteoarthritis

and friend has rheumatoid arthritis.

Thanks. >>

[Guest guest]

Re: Questions

> L,

>

> I've forward the question to our veterans coordinator. I'll send you what

> McCain thinks about any mandatory experimental drug injections. Will

> send you response as soon as I get it.

>

> Yours is the first inquiry I've had. Thanks for sending it.

>

>

> E. Galanti

> Virginia State Chair

> McCain 2000

> 2108 W. Laburnum Avenue #350

> Richmond, Virginia 23227-4300

> (804) 254-8399

> (804) 347-4874 cell

> (804) 213-0797 fax

>

> " We're Raising McCain in Virginia "

>

> http://www.McCainInteractive.com/

> ****************************************************************

> >As the daughter of a Viet Nam vet and the wife of an active duty Navy

> >sailor who has refused the Anthrax Vaccine .. before I even consider a

> >vote I would like to know where you stand regarding the AVIP as well as

> >Executive Order 13139 that clearly states that this President cares

> >little if anything for those willing to die for this country.

> >You served this country with honor and I respect that, but I can not

> >respect any one who would turn a deaf ear on all that evidence that

> >shows that Bioports Anthrax Vaccine is not safe. All of the

> >servicemembers who are getting sick, and all of the families that are

> >being torn apart because they are standing up for what they believe is

> >right and refusing to take the vaccine ... is it worth it .. to ruin so

> >many lives so a few can become rich? I would really love an answer ...

> >not a form letter response mind you, but a valid answer ... it seems

> >that none of the campaigns are mentioning the AVIP in hopes that it will

> >go away, but I assure that we are not going away ... and am married to

> >living proof that regardless of what the military / President says is

> >LAWFUL our country's servicemembers know what is right. And it is very

> >clear to me being right in the middle of this fight, that they are

> >willing to take any and all the licks that come their way until the

> >powers at be see the shame in this whole ordeal and stop forcing

> >dangerous, experimental drugs onto our Sons and Daughters.

> >

> >Yours truly

> >L K

> >No2Anthrax, founder

> >http://www.deizialoup.net/no2anthax/

>

>

>

[Guest guest]

In a message dated 2/25/00 9:00:20 PM Eastern Standard Time,

deizialoup@... writes:

Let's write him. More inquiries needed.

<< I've forward the question to our veterans coordinator. I'll send you what

> McCain thinks about any mandatory experimental drug injections. Will

> send you response as soon as I get it.

>

> Yours is the first inquiry I've had. Thanks for sending it.

>

>

> E. Galanti

> Virginia State Chair

> McCain 2000

> 2108 W. Laburnum Avenue #350

> Richmond, Virginia 23227-4300

> (804) 254-8399

> (804) 347-4874 cell

> (804) 213-0797 fax

> >>

[Guest guest]

I just asked the question as well...

if you go to that site, you can ask any questions you'd like... if his is the

first one, I suggest we all get on this weekend, and start asking.

<< > I've forward the question to our veterans coordinator. I'll send you what

> McCain thinks about any mandatory experimental drug injections. Will

> send you response as soon as I get it.

>

> Yours is the first inquiry I've had. Thanks for sending it.

>

>

> E. Galanti

> Virginia State Chair

> McCain 2000

> 2108 W. Laburnum Avenue #350

> Richmond, Virginia 23227-4300

> (804) 254-8399

> (804) 347-4874 cell

> (804) 213-0797 fax

>

> " We're Raising McCain in Virginia "

>

> http://www.McCainInteractive.com/ >>

[Guest guest]

Dear Jessie:

If you have any questions, just remember, es[ecially when it comes

to HCV, " there are no stupid questions, just stupid people who never ask

the question " ! If one person finds something hard to understand, there

are probably many more, and I am sure someone will be able to explain

what ever the issue is, in terms that you can relate and understand. To

me, that is one of the reasons of this great site, it gives us all a

place to share experiences and questions, without drowning in medical or

scientific terms.

Speaking for myself, I would rather see you ask, then, still have

unresolved issues. Marty

[Guest guest]

Dear Jessie:

If you have any questions, just remember, es[ecially when it comes

to HCV, " there are no stupid questions, just stupid people who never ask

the question " ! If one person finds something hard to understand, there

are probably many more, and I am sure someone will be able to explain

what ever the issue is, in terms that you can relate and understand. To

me, that is one of the reasons of this great site, it gives us all a

place to share experiences and questions, without drowning in medical or

scientific terms.

Speaking for myself, I would rather see you ask, then, still have

unresolved issues. Marty

[Guest guest]

hi suzanne!

all i can tell you is that no two cases are alike. count yourself lucky

that you don't have aches and pains, or are plagued by sore throats.

i've never had a lot of the ache & pain, either, nor been particularly

bothered by a lot of sore throats, since very early in the illness.

i've been ill since 1980. the fatigue and neuro/cog problems/symptoms

have definitely increased since then. you could get worse, or not.

nobody knows, or could predict for sure.

but i believe we'll all be cured, or at least successfully treated long

before you have to worry about it.

@}{~{<<~~~~~~~~~~~~~~~~~~~~

debbie s. - dlsherman@...

[Guest guest]

Suzanne-every body progresses differently.....some people have constant illness that never gets better...some get worse...some get better...there really is no way to accurately predict....although I would have to say that if you don;t have a lot of symptoms and it has been four years your chances are probably better.....I am 30 years old and got sick when I was 19.....My symptoms were very similiar to yours----the constant fatigue was the bigges----I did not have a big problem with the flu-like symptoms...I also have no pain.....I do have immune dysfunction .......some of my blood tests come up abnormal-my cd4's are low and cd8's are high! This isdifferent thatn most people with cfids...........People that have the high cd8's usually have more symptoms and have allergies and chemical sensitivieties...I have none of these....what you need to do is see how your immune systme is functioning and go form there.....everybody responds different to different things and it helps to know exaclty what is going on with your immune system!

Questions

Hi all,

I have a few quick questions that maybe you all can help me with. My doc says I have CFS because of positive HHV5 and active EBV. I am wondering why my only symptom is severe fatigue? Why not aches, and sore throats, and etc? Why are some worse off than others? Can this progress? I am so scared that I am going to end up bed ridden. One more thing...have any of you (women) noticed any hormone change that started all of this? It seems like when I went on the BC pill this all started and is getting worse. I also developed vulvodynia at that time. It is as if my whole body is out of whack. Any ideas?? I am only 22 and have been like this for 4 years now.

Thanks for your help,

Suzanne

This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor.

[Guest guest]

what kind of test show cd8 ancd4 never heard of that?

--- hudecz <hudecz@...> wrote:

> Suzanne-every body progresses differently.....some

> people have constant illness that never gets

> better...some get worse...some get better...there

> really is no way to accurately predict....although I

> would have to say that if you don;t have a lot of

> symptoms and it has been four years your chances are

> probably better.....I am 30 years old and got sick

> when I was 19.....My symptoms were very similiar to

> yours----the constant fatigue was the bigges----I

> did not have a big problem with the flu-like

> symptoms...I also have no pain.....I do have immune

> dysfunction .......some of my blood tests come up

> abnormal-my cd4's are low and cd8's are high! This

> isdifferent thatn most people with

> cfids...........People that have the high cd8's

> usually have more symptoms and have allergies and

> chemical sensitivieties...I have none of

> these....what you need to do is see how your immune

> systme is functioning and go form

> there.....everybody responds different to different

> things and it helps to know exaclty what is going on

> with your immune system!

>

> Questions

>

>

> Hi all,

>

> I have a few quick questions that maybe you all

> can help me with. My doc says I have CFS because of

> positive HHV5 and active EBV. I am wondering why my

> only symptom is severe fatigue? Why not aches, and

> sore throats, and etc? Why are some worse off than

> others? Can this progress? I am so scared that I

> am going to end up bed ridden. One more

> thing...have any of you (women) noticed any hormone

> change that started all of this? It seems like when

> I went on the BC pill this all started and is

> getting worse. I also developed vulvodynia at that

> time. It is as if my whole body is out of whack.

> Any ideas?? I am only 22 and have been like this

> for 4 years now.

>

> Thanks for your help,

> Suzanne

>

>

------------------------------------------------------------------------------

>

>

>

>

------------------------------------------------------------------------------

> This list is intended for patients to share

> personal experiences with each other, not to give

> medical advice. If you are interested in any

> treatment discussed here, please consult your

> doctor.

>

>

__________________________________________________

[Guest guest]

It is lymphocyte panel subset-cd4's and cd8's are types of t cells that are

lymphocytes.

Questions

> >

> >

> > Hi all,

> >

> > I have a few quick questions that maybe you all

> > can help me with. My doc says I have CFS because of

> > positive HHV5 and active EBV. I am wondering why my

> > only symptom is severe fatigue? Why not aches, and

> > sore throats, and etc? Why are some worse off than

> > others? Can this progress? I am so scared that I

> > am going to end up bed ridden. One more

> > thing...have any of you (women) noticed any hormone

> > change that started all of this? It seems like when

> > I went on the BC pill this all started and is

> > getting worse. I also developed vulvodynia at that

> > time. It is as if my whole body is out of whack.

> > Any ideas?? I am only 22 and have been like this

> > for 4 years now.

> >

> > Thanks for your help,

> > Suzanne

> >

> >

> --------------------------------------------------------------------------

----

> >

> >

> >

> >

> --------------------------------------------------------------------------

----

> > This list is intended for patients to share

> > personal experiences with each other, not to give

> > medical advice. If you are interested in any

> > treatment discussed here, please consult your

> > doctor.

> >

> >

>

> __________________________________________________

>

[Guest guest]

Hey everyone, I would like you to meet my firend Liz. I have been telling

her about how great the list is and how she can go there for answers to

those many questions we have. The list has helped me so much with Amber, I

hope we will all show Liz how great the list can be.

Welcome Liz, I'm glad you decided to join us. Miriam(Ambers mom)

----------

> From: epieros@...

> dwarfismegroups

> Subject: questions

> Date: Monday, June 12, 2000 11:01 PM

>

> Hi,

> my name is Liz and my daughter was born with Achondroplasia. She is 8

mos.

> old and I have so many questions. This is my first experience with this

> list/service so I hope I am doing this correctly. My daughter has always

had

> her tongue out of her mouth, and it's getting better. The Dr. thinks she

> will outgrow it, but related to her dwarfism. Does anyone know of this,

or

> if she really will outgrow it?

> ALso, in response the breastfeeding question, I nursed her until she

was

> 3 mos old.

> Thanks

>

> ------------------------------------------------------------------------

> beMANY! has a new way to save big on your phone bill -- and keep on

> saving more each month: Our huge buying group gives you Long Distance

> rates which fall monthly, plus an extra $60 in FREE calls!

> 1/3821/9/_/77518/_/960872480/

> ------------------------------------------------------------------------

>

[Guest guest]

At 11:38 AM 12/13/2000 , Beverley L Bouchard wrote:

>As you may remember we have a foster child 7 weeks old who has Downs. He

>has had some funny stool and the Dr says he may not be digesting fat

>well....

Highly unlikely. The chances of a baby, even with DS having fat

malabsorption is rare. It's more likely he's having trouble with the

protein in the formula. If your child is spitting up a lot or not gaining

weight appropriately, ask your doctor about trying one of the

hypoallergenic formulas.

Len Leshin, M.D., F.A.A.P.

Father to Avi, 7 y/o with DS

Down Syndrome: Health Issues http://www.ds-health.com