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This is called Myxoedema. The following will give you an explanation http://www.drlowe.com/QandA/askdrlowe/swelling.htm

Luv - Sheila

I swell up periodically and it is different to what I would call normal fluid retention. I used to regularly get the pre-menstrual bloating and swollen ankles but that always went in one day and was quite managable.These recent swelling episodes don't tie in with my monthly cycle and affect me all over, even my eyes hurt and around my eye sockets. It always corresponds to feeling bitterly cold and shaky and, on increasingly, I get the stiff back and cramping too. I tried taking some herbal diuretics but they did not work at all. I'm careful to eat plenty of fresh fruit and veg and to drink a sensible amount of fluid.Normally this time of month I wee out all the fluid gained during my period. It just didn't happen this time or the last.My mum was put on diuretics in the years before her hypothyroidism was discovered. She got heart palpitations and sometimes collapsed in the street while she was taking them. That has caused me to be a bit wary of taking them myself. Since she's been on thyroxine, the fluid retention problem has been less of an issue for her. Anyway, I'm off to the GP in a couple of hours so hopefully will be in a better position afterwards. that is, if I can even make it up the road! I can barely walk at the moment and am frantically warming myself up with hot water bottles.Tracey>> I take diuretics and have for years. When I don't take them, I swell like a balloon and my feet are utterly unbearable. I take 50 mgs Co-Amizolide daily. Quite simply, if you a person who retains fluid, then you need to get rid of it.

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I used to be like this too, since I've been on Armour the swelling

has gone down in my ankles, I don't wake up with my face all swollen,

(that used to include my tongue, lips and nose!!) I have had really

bad headaches and have dropped back a little on the dose, I feel fine

today, no headache, no stress, no swelling and I'm going to the loo

like nobody's business, I think I might have lost about 1/2 stone

just in fluid!!

I'm still getting bad back pain though and even this morning I had to

stay in bed till 10.00 because I was so cold I was shivering. I took

my Armour at 6 am and put my electric blanket on!! Luckily I didn't

have to be anywhere today!

>

> This is called Myxoedema. The following will give you an

explanation http://www.drlowe.com/QandA/askdrlowe/swelling.htm

>

> Luv - Sheila

>

>

>

> I swell up periodically and it is different to what I would call

> normal fluid retention. I used to regularly get the pre-menstrual

> bloating and swollen ankles but that always went in one day and

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Whllst I agree that female hormones have a great deal to do with the

back pain I agree with Bob about the mangnesium. I got some new ones

this week have only been on them 3 days and I am feeling easier in the

lumbar area already.

I dont know if you are contraindicated in any way, but I hear that

Dandelion Tea is excellent as a diuretic. I have a diuretic in my bp

tablet so I dare not take any more but I still have terribly swollen

painfull knees and my fingers swell up a lot.

I am sorry to hear you are in pain. You could at least have a try with

the magnesium.#

luv Dawn

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Hi Dawn,

Be careful taking both a BP tablet and extra magnesium....

your blood pressure may drop too low on a combination of the two;

if you get 'light-headed' that may be a signal to drop one or other of

the medications/minerals..take your blood presssure if that happens and

request an appointment with your doc to discuss the potential 'duality'

of approach...s/he may not be up to speed on what magnesium can do.

best wishes

Bob ( I'm not medically qualified, but my chemistry tells me a lot of

the story )

>

> Whllst I agree that female hormones have a great deal to do with the

> back pain I agree with Bob about the mangnesium. I got some new ones

> this week have only been on them 3 days and I am feeling easier in the

> lumbar area already.

> I dont know if you are contraindicated in any way, but I hear that

> Dandelion Tea is excellent as a diuretic. I have a diuretic in my bp

> tablet so I dare not take any more but I still have terribly swollen

> painfull knees and my fingers swell up a lot.

>

> I am sorry to hear you are in pain. You could at least have a try with

> the magnesium.#

> luv Dawn

>

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Hi Glynis

Obviously you are not yet on the right dose, and you may need to add in a little extra synthetic T4 or T3. We are all different and the amount of T4 and T3 that is in Armour doesn't suit everybody. Are you due a thyroid funciton test in the near future. If not, ask your GP if you can have one becuase you need to know what's happening. We especially need to know your Free T4 and Free T3 result. Have you considered the usual associated conditions that might be getting in the way - i.e. adrenals, candida, ferritin? What dose Armour are you taking now and how long since your last increase?

Luv - Sheila

I used to be like this too, since I've been on Armour the swelling has gone down in my ankles, I don't wake up with my face all swollen, (that used to include my tongue, lips and nose!!) I have had really bad headaches and have dropped back a little on the dose, I feel fine today, no headache, no stress, no swelling and I'm going to the loo like nobody's business, I think I might have lost about 1/2 stone just in fluid!!I'm still getting bad back pain though and even this morning I had to stay in bed till 10.00 because I was so cold I was shivering. I took my Armour at 6 am and put my electric blanket on!! Luckily I didn't have to be anywhere today!

..

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  • 2 months later...
Guest guest

God BLESS YOU Gena, I sure hope you feel better..hugs > dominie > From: angellange@...> Date: Sat, 10 May 2008 03:13:10 +0000> Subject: Back Pain> > Hi everyone I have not been able to be on in a few days due to sever > back pain. I have 3 bulged discs L4, L5, S1 and my whole left leg is > numb and have not slept in 3 days. I was trying to get medicaid and > was excepted but need paper work to be completed on ther end.I was > then suppose to get a Dr. and have him refer me t a surgeon. Well 2 > weeks passed and no medicaid so I called her today and told her about > my severe pain. She said she was going to crab my file from the pile > of applications and bump me up and work mine today and if it didnt > would be done Monday. She said go ahead and see a Dr. and they will > go back 3 months and pay all medical bills occured. I called my moms > Dr. today and he was unable to see me but said go straight to ER. I > was there 3 hours. They gave me 6 shots of demeral and said that > would have knocked a 400 pound man out.They did a CT scan to look for > as much dmage as they can but informed me they needed to set me up > for MRI for more detailed look. She said it did show the bulges were > on the siatic nerve and there was stenosis.She said if it showed up > that well on CT scan they definetly will be more detailed on MRI. She > gave me Vicadin 10/650 and Ketorolac 10 mg to help get me comfortable > un til I can see my moms Dr. on Monday at 3pm. His nurse said they > will order MRI and get me referred to surgeon. You might remember as > I stated in earlier email that we do not have back Dr.s here so I > have to travle 75 miles from home. But this all great news as I am > now headed in the direction to get something done. I hope all this > gets fixed before my Diasability hearing comes up aso i can sit thru > it.Thanks All and if I dont make it back online before Sunday, I > would like to wish all the mother's herean early very Happy Mother's > Day in advance. God Bless, Gena> > > ------------------------------------> >

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Guest guest

>

> Hi everyone I have not been able to be on in a few days due to

sever

> back pain. I have 3 bulged discs L4, L5, S1 and my whole left leg

is

> numb and have not slept in 3 days. I was trying to get medicaid

and

> was excepted but need paper work to be completed on ther end.I was

> then suppose to get a Dr. and have him refer me t a surgeon. Well

2

> weeks passed and no medicaid so I called her today and told her

about

> my severe pain. She said she was going to crab my file from the

pile

> of applications and bump me up and work mine today and if it didnt

> would be done Monday. She said go ahead and see a Dr. and they

will

> go back 3 months and pay all medical bills occured. I called my

moms

> Dr. today and he was unable to see me but said go straight to ER.

I

> was there 3 hours. They gave me 6 shots of demeral and said that

> would have knocked a 400 pound man out.They did a CT scan to look

for

> as much dmage as they can but informed me they needed to set me up

> for MRI for more detailed look. She said it did show the bulges

were

> on the siatic nerve and there was stenosis.She said if it showed

up

> that well on CT scan they definetly will be more detailed on MRI.

She

> gave me Vicadin 10/650 and Ketorolac 10 mg to help get me

comfortable

> un til I can see my moms Dr. on Monday at 3pm. His nurse said they

> will order MRI and get me referred to surgeon. You might remember

as

> I stated in earlier email that we do not have back Dr.s here so I

> have to travle 75 miles from home. But this all great news as I am

> now headed in the direction to get something done. I hope all this

> gets fixed before my Diasability hearing comes up aso i can sit

thru

> it.Thanks All and if I dont make it back online before Sunday, I

> would like to wish all the mother's herean early very Happy

Mother's

> Day in advance. God Bless, Gena

HAPPY MOTHER'S DAY TO YOU Gena & all other Mother's on this board !

I can relate to what you are going through. I've been trying to

avoid surgery. I have 3 bulging discs in my cervical spine, one

compressing on my spinal cord. One bulging disc with spurring l5.

I had an epidural in my cervical spine 6 weeks ago. Helped quite a

bit. They like to do 3 (once monthly) to get it under control, but

I'm trying to hold off as long as I can. It did get rid of the

numbness in my arms, hands, calves & feet. They put me on Oxycodone

as needed. For me, it works much better than Vicodin and I don't

seem to have any side effects. My RX says one every 12 hours if

needed. There are many days I don't take it at all.

My live enzymes are elevated so no medication with Tylenol for me.

I'm sure they are elevated from all the meds they've had me on over

the years.

I hope you get help. I'm wondering if you've tried the injections &

if so, how it worked for you and how long?

Make sure your surgeon has good credentials and no complaints or law

suits against him.

Where do you live? I live in Florida. My brother-in-law had back

surgery last year by a Dr. Jeb Weber in Dunedin, FL. He knows all

the new procedures and my brother-in-law was back to work 6 weeks

after his surgery, driving semi trucks all over the country. He's

pain free and swears by this doctor.

God Bless & May He guide you to the right doctor.

Robin (Tarponite75)

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Robin,

Thank You for the wonderful reply!

I am truly sorry you also suffer the debilitating back pain. I would not wish it upon my worst enemy.

I was you much luck and success to your goal of becoming pain free.

Just remember they say sitting is the worse thing you can do. Us fibro patients use the computer as our life line to vent our frustrations to fellow friends of the same pain and also we use it for many hours of research to find solutions and ideas of some kind of miracle to find reef from our pain.

Please just take many breaks as not to sit too long.

Computer usage also can cause us carpal tunnel easily. If I type too long at one time I get tendon pain in my forearm. Yes it truly sucks that something we so truly love can also cause us pain at the same time.

And yes sweetie I have done the injections.

I have had the bulged discs since 2001.

I did routine SI joint injections and also the Epidural Injections.The first injection lasted a year. And subsequent ones last 6 months and some 4 months and had one that didn't take but was reputed in 2 weeks and worked only 2 months.

I have chronic back pain and have been advised not to prolong treatment any longer due to nerve damage.

The cortisone has beat my body to shame. Brittle bones, eye problems, and kidney problems.

The anesthesiologist said after 7 years enough.

I have done many exercises and Physical therapy sessions.

I have nerve damage to the point if the nerve is not relieved of the pressure soon I will have paralysis.

I see the Dr tomorrow at 3pm. I am on medical assistance so he will refer me to a surgeon.

But the shots used to works wonders. The pain killed me though up to 3 days after. I used a lot of ice the injection site swelled bad. I would hurt 3 times worse than the back pain itself and would cry hard and ask my self why I got the shot. But then in about 5 days to a week I would just wake up one day and go wow the pain is gone.

I live in a very small town in Arkansas and we have no back Dr's so I will be refereed to either Little Rock, AR or Springfield Missouri.

I seen on my web search for Dr.s that there is one in Florida at The Laser Spine center that does it under a local anesthetic and you are awake and they zap away the bulged area and you get instant relief, they talk to as they are doing it. You go home in like 5 hours.

Sounds wonderful. http://www.laserspineinstitute.com/

I have been told I have to be cut open do to sever fusing that needs to be done.

I was on Vicodin for 6 years and built up a tolerance to wear it didn't help. This new Dr as put me back on it.

I am so scared because last time when I chose to come off of it I had severe withdrawls and was hospitalized for 6 days.

I had delusions and hallucinations and psychosis.

I did have a great Mother's Day though spite the pain.

We had tornadoes again on Saturday night and had to take refuge in the storm shelter. We had wind damage to trees being down but no damage otherwise. The tornado hit 8 miles away.

This was my first Mother's Day with my MOM in 27 years. But also my first Mother's Day away form my two older children ages 26 and 24.

They sent me wonderful gifts and wonderful cards and we had a great phone conversation.

My little guy at home who is 12 made poems at school and an inspiration jar... he took a small Kerr jelly jar and wrote in slips of paper a memory of a good time shared together and everytime you have a bad day you draw out a slip and read it to cheer you up. It has a cute piece of material in his favorite color....Lime green that is cover with the ring lid to the jar. I cried when I read a message... I thought it was suppose to cheer you up LOL.. it did but it's just emotional.

God Bless you and May you have happy healthy days ahead of you,

Your Fibro friend, Love, Gena

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  • 7 months later...

There are a few of us here with children with AS. It can affect children. My son

was diagnosed at age 12. You need to let the doc know about the back pain. The

treatment is the same as for JRA, pretty much. But, they do need to do a Schober

test at each exam if she does have AS, as they need to make sure that her spine

problems are not progressing and are responding to treatment.

and Rob 19 JAS

back pain

> Lucy was diagnosed with JRA in November. She started with

> her wrist and it

> has spread to her other wrist, her feet and toes, her jaw and

> neck, and now

> to her back. She is having a hard time bending over

> because her back hurts.

> I've done some reading and all of the other joints look like

> typical JRA,

> but the back pain is not mentioned. I've read about

> anklyosing spondylitis,

> but it does not sound like it would be at all typical in an

> almost seven

> year old girl. Anyone heard of this?

>

>

>

> Amy

>

>

>

>

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Thanks for mentioning the name of the test ! I can never remember

that. It is simply the child bending over and the dr measuring the arc

of the back. Amy, you can check at home and see if she can touch her

toes. My son could not, and I did not even realize that he had lost that

ability. Arthritis can and does affect the tendons, so while she may not

get a diagnosis of AS she may have spondyloarthropy (basically the same

thing) or psoriatic arthritis or another type. They are all treated

basically the same way.

You can check out www.spondylitis.org <http://www.spondylitis.org/> for

some more info. Michele ( 21, spondy)

________________________________

From: [mailto: ] On

Behalf Of and Schulz

Sent: Friday, January 09, 2009 1:36 PM

Subject: Re: back pain

There are a few of us here with children with AS. It can affect

children. My son was diagnosed at age 12. You need to let the doc know

about the back pain. The treatment is the same as for JRA, pretty much.

But, they do need to do a Schober test at each exam if she does have AS,

as they need to make sure that her spine problems are not progressing

and are responding to treatment.

and Rob 19 JAS

back pain

<mailto: %40>

> Lucy was diagnosed with JRA in November. She started with

> her wrist and it

> has spread to her other wrist, her feet and toes, her jaw and

> neck, and now

> to her back. She is having a hard time bending over

> because her back hurts.

> I've done some reading and all of the other joints look like

> typical JRA,

> but the back pain is not mentioned. I've read about

> anklyosing spondylitis,

> but it does not sound like it would be at all typical in an

> almost seven

> year old girl. Anyone heard of this?

>

>

>

> Amy

>

>

>

>

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Amy,

My son has been diagnosed for about a year with JRA and was recently

reclassified into the " spondy " group. Mention the back pain to your

doctor because they can test blood for HBLA-27. This determines if

you are more likely to have " back-related " arthritis issues. With

that said, whatever the name, the treatment course runs pretty much

the same.

>

> Lucy was diagnosed with JRA in November. She started with her

wrist and it

> has spread to her other wrist, her feet and toes, her jaw and neck,

and now

> to her back. She is having a hard time bending over because her

back hurts.

> I've done some reading and all of the other joints look like

typical JRA,

> but the back pain is not mentioned. I've read about anklyosing

spondylitis,

> but it does not sound like it would be at all typical in an almost

seven

> year old girl. Anyone heard of this?

>

>

>

> Amy

>

>

>

>

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Thanks, everyone. We have an appointment on Monday. I'm sure that you all

know the drill: wait for weeks, drive for hours, wait in the room for twenty

minutes and then the doctor comes in for maybe 5-10 minutes. Then you're

left to analyze and dissect that 10 minutes for the next 6 weeks.

This time I have everything written down that I want to talk to him about

and back pain is definitely on the list.

Amy

Re: back pain

Amy,

My son has been diagnosed for about a year with JRA and was recently

reclassified into the " spondy " group. Mention the back pain to your

doctor because they can test blood for HBLA-27. This determines if

you are more likely to have " back-related " arthritis issues. With

that said, whatever the name, the treatment course runs pretty much

the same.

>

> Lucy was diagnosed with JRA in November. She started with her

wrist and it

> has spread to her other wrist, her feet and toes, her jaw and neck,

and now

> to her back. She is having a hard time bending over because her

back hurts.

> I've done some reading and all of the other joints look like

typical JRA,

> but the back pain is not mentioned. I've read about anklyosing

spondylitis,

> but it does not sound like it would be at all typical in an almost

seven

> year old girl. Anyone heard of this?

>

>

>

> Amy

>

>

>

>

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  • 1 year later...

That is a detox symptom.

Read at www.breastcancerchoices.com

under the detox symptoms.

Donna in IL

From:

iodine [mailto:iodine ] On Behalf Of pinqlady57

Sent: Wednesday, January 27, 2010 11:24 AM

iodine

Subject: back pain

i have only taken a little iodine 4x but i

started taking some supplements 2 days ago and my kidneys have started hurting

and today it is worse, is it something to do with iodine??

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Try not taking iodine and see if it goes away.

Steph

back pain

i have only taken a little iodine 4x but i started taking some supplements 2 days ago and my kidneys have started hurting and today it is worse, is it something to do with iodine??

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I clicked on to the site and was confused to why the website is for sale, and the porn sites??? Is this really breastcancerchoices? I thought they were a reputable group???

From: Donna Iler <Donna@...>"iodine " <iodine >Sent: Wed, January 27, 2010 10:14:38 AMSubject: RE: back pain

That is a detox symptom.

Read at www.breastcancercho ices.com under the detox symptoms.

Donna in IL

From: iodinegroups (DOT) com [mailto:iodine] On Behalf Of pinqlady57Sent: Wednesday, January 27, 2010 11:24 AMiodinegroups (DOT) comSubject: back pain

i have only taken a little iodine 4x but i started taking some supplements 2 days ago and my kidneys have started hurting and today it is worse, is it something to do with iodine??

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  • 5 months later...
Guest guest

Be sure to have your kidneys checked. My CLL presented itself in the kidneys (happens to 1-2% of CLL patients.) My treatment was just for the kidneys and worked quite well.

Pat

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Guest guest

Thanks!  I'll remember to do that. I appreciate it!

On Mon, Jul 12, 2010 at 6:30 PM, pat kennedy <pkennedy16@...> wrote:

 

Be sure to have your kidneys checked. My CLL presented itself in the kidneys (happens to 1-2% of CLL patients.) My treatment was just for the kidneys and worked quite well.

Pat

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  • 2 months later...

I was fine sitting down, and fine standing up - I was fine in

the motion of actually sitting down, and lying down, but the problems with me

was when I wanted to get out of an armchair, out of bed, out of the car etc. I

had terrific stabbing pains in my lower back that were almost unbearable. Every

time, I had to collapse to my knees (not on the road from getting out of the

car) but inside. I would then crawl to wherever it was easiest to pull myself

up to a standing position. I would then stand and wait until I felt I could

walk. If I had to walk a long way, or was walking round the shops, I had to

stop several times looking for a seat to sit on - which was fine, until once

again, I had to stand up from sitting down. This went on for months and months

and all disappeared when I started natural thyroid extract. My muscles were

lacking in the much needed T3. had I not got T3, I know that I would now

definitely be wheelchair bound. As it is, I am very healthy with no pain

whatsoever.

Luv - Sheila

Hello Sheila,

I have been reading through your history when you mention back pain. I suffer

terribly with this but only upon standing. Was this the same for you and also

did you have the sharp stabbing beesting pains that are so dreadful(although

since HC they are becoming less)?

Luv

Audrey

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18:34:00

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Dear Sheila

I have very similar back pain to what you described you had. I take T4 and I

really think I need T3 also because of the symptoms I am experiencing. I am

wondering was it your Endo who prescribed it for you, or did you have to get it

for yourself?

Han

>

> I was fine sitting down, and fine standing up - I was fine in the motion of

> actually sitting down, and lying down, but the problems with me was when I

> wanted to get out of an armchair, out of bed, out of the car etc. I had

> terrific stabbing pains in my lower back that were almost unbearable.> >

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This was over 7 years ago, and no, it was not my endo who first

prescribed it for me - it was a private one. It was when I asked my GP if she

would prescribe it that she told me no, because the doctor who recommended it

was not NHS. She actually told me that if I got an NHS endocrinologist to

recommend it, she would prescribe it for me, so I asked her to refer me. She

referred me to a female endocrinologist at our local hospital who was

absolutely appalling. She never looked at me, never examined me, stared out of the

window - said Armour was dangerous and that she would never, never recommend it

and that levothyroxine worked for everybody. That was that.

I carried on buying it myself until I had had enough and asked

for a referral to my present endocrinologist. He was good, did what he should,

but still refused me Armour. I asked why and he said it had had potency

problems in the past and that was why it wasn't licensed and that the T4 and T3

couldn't be standardised so it could be dangerous. That was when I decided to

do the research about natural thyroid extract and found he was wrong. I

collected together all the research I had done to show that he was wrong, and

asked him to read through it, which he promised to do.

It was a week after that that he called in my and thanked me for

getting all of the information, telling me that he would now be happy to recommend

Armour for me - and I was, of course, absolutely delighted.

I went back to my GP and asked if she would now prescribe it on

my Endo's recommendation, and she refused - now suddenly telling me that the

doctors at that particular surgery NEVER prescribe any unlicensed medication. I

asked her what on earth they gave their patients who could not regain their

health on the one and only levothyroxine, and she just told me that everybody

gets well on levothyroxine. The following week, I received a letter from the

Head of Practice who told me it had been agreed at the surgery that it would be

better if I found a new doctor, from another surgery.

I did, and the new doctor just four miles down the road, told me

he would be happy to prescribe Armour for me because my endo. had recommended

it - and I have now had it on the NHS for the past 7 years.

It was my endo's decision, after finding out the truth, that

made me open TPA to campaign for a better diagnostic and treatment protocol. I

felt that as one endo. had listened to me and changed his mind, then perhaps

others would too, hence my growing list of doctors who will now recommend it.

My endo. now recommends natural thyroid extract for several of

his patients.

He will probably give you a trial of synthetic T4 and T3 to see

if that works for you - and I would persuade him with all your power to do

this. You will probably find it does work for you.

Luv - Sheila

Dear Sheila

I have very similar back pain to what you described you had. I take T4 and I

really think I need T3 also because of the symptoms I am experiencing. I am

wondering was it your Endo who prescribed it for you, or did you have to get it

for yourself?

Han

>

> I was fine sitting down, and fine standing up - I was fine in the motion

of

> actually sitting down, and lying down, but the problems with me was when I

> wanted to get out of an armchair, out of bed, out of the car etc. I had

> terrific stabbing pains in my lower back that were almost unbearable.>

>

No virus

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17:16:00

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Thanks for your reply Sheila. You are such an inspiration. We all need to adopt

your attitude and determination and not just sit back hoping that the medical

profession will sort our health out for us. I have been a qualified nurse for

30yrs working in the NHS and I was taught diddly squat about thyroid disease!

Han

>

> This was over 7 years ago, and no, it was not my endo who first prescribed

> it for me - it was a private one. It was when I asked my GP if she would

> prescribe it that she told me no, because the doctor who recommended it was

> not NHS.

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  • 7 months later...
Guest guest

Hi Everyone,

 

Just would like to encourage anyone who has back pain/ retracing etc.

 

 Since on the diet my lower backpain is coming and going..before the diet I had

this pain constantly for 12 months......the last episode lasted 2 weeks all day

and night...but I hung in there.....rubbing in oregano oil/ coconut oil, epsom

salt baths x3 a day..heat packs etc and the pain has gone again....it is hard

not to grab those drugs like I used to ...I pray that last episode was it!!

 

 Stay with it everyone and thanks for support with this group.

 

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