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....how did they get a genotype before being biopsy'd?

....i'm doing pretty well reducing symptoms with colloidal silver. once i get

going on other alt med protocols consistently i believe i'll be able to keep

it mellow until the new protease inhibitors become available in a couple

years. they show great promise for much improved response rates, maybe

really killing it dead so very few recurrences, shorter treatment durations

with minimal sides. so far they seem to knock the viral load down by ninety

something percent in something like a week (i forget the exact).

....study alt med nutrition, supplements, therapies. seemingly goofy stuff

working with light, electricity, electromagnetism has some amazing results

for a lot of problems " real " medicine can't do much for. like lymes

disease, MS, HCV, HIV. maybe not a cure but can help immensely.

....you gotta believe & be proactive in your own interests. then god helps

too.

....death is not to be feared as much as pain & suffering. you will die like

everyone else, only a question of when, how, & why.

....your attitude will determine how much support you get long termm from

those around you. sad, but people do burn out on problematic victims &

start blaming them. eventually, somehow, they're not there anymore.

....keep busy on the attack to the limits of your abilities. every reishi

mushroom helps. licorice root too. it's time to trash all the white flour

products & refined sugar and hydrogenated glop in your environment and your

habits. etc, etc, etc.

....kick ass or it will be kicked. life is for the living.

....if you lose you gotta be able to know you tried, & don't worry, at the

very worst possible outcome somewhere far from now be assured that pain

management is something western medicine has become real real good at (if

you can get them to give it).

> -----Original Message-----

> I am having a liver biopsy don on Nov. 15 and I am really worried they

> just recently diagnosed my HEP c AS GENO 1A, i KNOW THAT i HAVE had hep

> c since the 80's maybe 70's...My past has shown up and kicked me

> again.. I'm scared about the results from the up coming biopsy..And I

> really need encouragement ..

>

>

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I went and got my results in one week , it was easier than waiting to get em from the doctor . Usually they are ready within a 1 to 2 wk time span . Depending on what area and if they have to ship out the tissue samples .

Liver Biopsy

Well I get my biopsy Wednesday morning. How long does it take to get the results back?Pat

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it really depends upon when the lab gets to it,, and where they send it,, but typically you should have the results back within a week,, Pat D <dunhams03@...> wrote: Well I get my biopsy Wednesday morning. How long does it take to get the results back?PatJackie

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I was under heavy sedation for a special kind of biopsy, called a

trans-jugular. It's used only for special situations.

I've also had the usual liver biopsy, which goes through the side. For me,

the procedure was no more painful than a flu shot.

Best wishes.

Harper

In a message dated 10/16/07 2:02:40 PM, cris4195@... writes:

>

> Hi

>

> Haven't been on website for a long time I have had AIH for 12 years. Now I

> have a daughter who

> has liver enzymes at 300 and 212. Did some one just say you could be put

> asleep for a biopsy?

> Anyone know of mother passing this onto daughter? Thanks for the advice

> Chris

>

>

>

**************************************

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it is possible to have the biopsy under general anaesthetics. I

don't know what the usual customs for kids are elsewhere, but

here in Finland I know of several children and teenagers who've

been anaesthetised and asleep during their biopsies. So it is

definitely possible, just ask your doctors for more information.

Jaana

17.10.2007 0:02, cris4195@... kirjoitti:

>

>

> Hi

>

> Haven't been on website for a long time I have had AIH for 12 years. Now I

> have a daughter who

> has liver enzymes at 300 and 212. Did some one just say you could be put

> asleep for a biopsy?

> Anyone know of mother passing this onto daughter? Thanks for the advice

> Chris

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I was very upset about being " awake " during the procedure and they give you

something in the anesthesia and you never even know it's happened. It's great.

Trust that. I understand the " reason " you can't be put to sleep is because they

ask you to hold your breath and do certain things while doing the biopsy but you

never remember ANY of that ! It was the easiest procedure I have ever had done.

I'm a person who has terrible anxiety too and it STILL was the easiest thing I

ever had done. Good luck to you and your family Janna.

Dee

Jaana Fogl <jfogl@...> wrote:

it is possible to have the biopsy under general anaesthetics. I

don't know what the usual customs for kids are elsewhere, but

here in Finland I know of several children and teenagers who've

been anaesthetised and asleep during their biopsies. So it is

definitely possible, just ask your doctors for more information.

Jaana

17.10.2007 0:02, cris4195@... kirjoitti:

>

>

> Hi

>

> Haven't been on website for a long time I have had AIH for 12 years. Now I

> have a daughter who

> has liver enzymes at 300 and 212. Did some one just say you could be put

> asleep for a biopsy?

> Anyone know of mother passing this onto daughter? Thanks for the advice

> Chris

---------------------------------

Moody friends. Drama queens. Your life? Nope! - their life, your story.

Play Sims Stories at Games.

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Harper, that must have been a scarey thing. I was watching a program and they

said that generally, they don't do the procedure you did unless there are

special situations that call for it. You are one brave lady!

Debby

Re: [ ] liver biopsy

I was under heavy sedation for a special kind of biopsy, called a

trans-jugular. It's used only for special situations.

I've also had the usual liver biopsy, which goes through the side. For me,

the procedure was no more painful than a flu shot.

Best wishes.

Harper

In a message dated 10/16/07 2:02:40 PM, cris4195@... writes:

>

> Hi

>

> Haven't been on website for a long time I have had AIH for 12 years. Now I

> have a daughter who

> has liver enzymes at 300 and 212. Did some one just say you could be put

> asleep for a biopsy?

> Anyone know of mother passing this onto daughter? Thanks for the advice

> Chris

>

>

>

**************************************

See what's new at http://www.aol.com

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Hi Cheryl, I have the same problems, slightly elevated enzymes and a fatty

liver. I had a biopsy on my liver about a year and a half ago. The procedure

itself may only take about 10 minutes but there was a lot more to it than that.

If I remember right, prep was about an hour. I don't want to worry you but they

kept me in recovery for a couple hours afterwards. The anesthesia they gave me

worked on my skin, where the incission was made but it didn't do a thing to

deaden the pain when the needle hit my liver. I must have elevated 6 " above the

table! It was a lot of pain, so much that it took 3 people to get me back in my

wheelchair. It hurt to even breath for the whole night and the next day I

wasn't able to do much either. Other than that I was fine after a couple days.

I hope your son has a better experience with it and better results, too. Mine

were inconclusive.

Tom

-------------- Original message --------------

From: " Cheryl " <tarheelmom55@...>

Our 23 year old son's liver enzymes have always been elevated. I don't

know if SMA has anything to do with it or the fact that he had

toxoplasmosis at 4 months of age and his liver was very enlarged. Maybe

neither. He also has fatty liver disease and while the elevation isn't

huge, the gastro doc wants to find out more. He goes in on the 18th and

they tell us it will only take around 10 minutes, but they want to keep

him for several hours to be sure there isn't any excess bleeding.

Has anyone had a liver biopsy and if so, did you have any problems?

Thanks...and hope everyone has a Merry Christmas.

Cheryl

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I've heard it's pretty painful. What are they trying to find out. I would get

details of the procedure.

Sent from my Verizon Wireless BlackBerry

Liver Biopsy

Our 23 year old son's liver enzymes have always been elevated. I don't

know if SMA has anything to do with it or the fact that he had

toxoplasmosis at 4 months of age and his liver was very enlarged. Maybe

neither. He also has fatty liver disease and while the elevation isn't

huge, the gastro doc wants to find out more. He goes in on the 18th and

they tell us it will only take around 10 minutes, but they want to keep

him for several hours to be sure there isn't any excess bleeding.

Has anyone had a liver biopsy and if so, did you have any problems?

Thanks...and hope everyone has a Merry Christmas.

Cheryl

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Tom, do you take pain pills? Mine are elevated also and my doc says

that's why. Is there more to it?

I take Milk Thistle and that has worked great.

Terry

>

> Hi Cheryl, I have the same problems, slightly elevated enzymes and

a fatty liver. I had a biopsy on my liver about a year and a half

ago. The procedure itself may only take about 10 minutes but there

was a lot more to it than that. If I remember right, prep was about

an hour. I don't want to worry you but they kept me in recovery for

a couple hours afterwards. The anesthesia they gave me worked on my

skin, where the incission was made but it didn't do a thing to deaden

the pain when the needle hit my liver. I must have elevated 6 " above

the table! It was a lot of pain, so much that it took 3 people to

get me back in my wheelchair. It hurt to even breath for the whole

night and the next day I wasn't able to do much either. Other than

that I was fine after a couple days. I hope your son has a better

experience with it and better results, too. Mine were inconclusive.

> Tom

>

> -------------- Original message --------------

> From: " Cheryl " <tarheelmom55@...>

> Our 23 year old son's liver enzymes have always been elevated. I

don't

> know if SMA has anything to do with it or the fact that he had

> toxoplasmosis at 4 months of age and his liver was very enlarged.

Maybe

> neither. He also has fatty liver disease and while the elevation

isn't

> huge, the gastro doc wants to find out more. He goes in on the 18th

and

> they tell us it will only take around 10 minutes, but they want to

keep

> him for several hours to be sure there isn't any excess bleeding.

>

> Has anyone had a liver biopsy and if so, did you have any problems?

>

> Thanks...and hope everyone has a Merry Christmas.

>

> Cheryl

>

>

>

>

>

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Tom, do you take pain pills? Mine are elevated also and my doc says

that's why. Is there more to it?

I take Milk Thistle and that has worked great.

Terry

>

> Hi Cheryl, I have the same problems, slightly elevated enzymes and

a fatty liver. I had a biopsy on my liver about a year and a half

ago. The procedure itself may only take about 10 minutes but there

was a lot more to it than that. If I remember right, prep was about

an hour. I don't want to worry you but they kept me in recovery for

a couple hours afterwards. The anesthesia they gave me worked on my

skin, where the incission was made but it didn't do a thing to deaden

the pain when the needle hit my liver. I must have elevated 6 " above

the table! It was a lot of pain, so much that it took 3 people to

get me back in my wheelchair. It hurt to even breath for the whole

night and the next day I wasn't able to do much either. Other than

that I was fine after a couple days. I hope your son has a better

experience with it and better results, too. Mine were inconclusive.

> Tom

>

> -------------- Original message --------------

> From: " Cheryl " <tarheelmom55@...>

> Our 23 year old son's liver enzymes have always been elevated. I

don't

> know if SMA has anything to do with it or the fact that he had

> toxoplasmosis at 4 months of age and his liver was very enlarged.

Maybe

> neither. He also has fatty liver disease and while the elevation

isn't

> huge, the gastro doc wants to find out more. He goes in on the 18th

and

> they tell us it will only take around 10 minutes, but they want to

keep

> him for several hours to be sure there isn't any excess bleeding.

>

> Has anyone had a liver biopsy and if so, did you have any problems?

>

> Thanks...and hope everyone has a Merry Christmas.

>

> Cheryl

>

>

>

>

>

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Hi Terry. The only thing I take for pain except over-the-counter ibuprofen. I

do take it just about every day. Before I was diagnosed I ate a lot of high-fat

fast food and junk food.

Tom

-------------- Original message --------------

From: " terrynow " <terrynow@...>

Tom, do you take pain pills? Mine are elevated also and my doc says

that's why. Is there more to it?

I take Milk Thistle and that has worked great.

Terry

>

> Hi Cheryl, I have the same problems, slightly elevated enzymes and

a fatty liver. I had a biopsy on my liver about a year and a half

ago. The procedure itself may only take about 10 minutes but there

was a lot more to it than that. If I remember right, prep was about

an hour. I don't want to worry you but they kept me in recovery for

a couple hours afterwards. The anesthesia they gave me worked on my

skin, where the incission was made but it didn't do a thing to deaden

the pain when the needle hit my liver. I must have elevated 6 " above

the table! It was a lot of pain, so much that it took 3 people to

get me back in my wheelchair. It hurt to even breath for the whole

night and the next day I wasn't able to do much either. Other than

that I was fine after a couple days. I hope your son has a better

experience with it and better results, too. Mine were inconclusive.

> Tom

>

> -------------- Original message --------------

> From: " Cheryl " <tarheelmom55@...>

> Our 23 year old son's liver enzymes have always been elevated. I

don't

> know if SMA has anything to do with it or the fact that he had

> toxoplasmosis at 4 months of age and his liver was very enlarged.

Maybe

> neither. He also has fatty liver disease and while the elevation

isn't

> huge, the gastro doc wants to find out more. He goes in on the 18th

and

> they tell us it will only take around 10 minutes, but they want to

keep

> him for several hours to be sure there isn't any excess bleeding.

>

> Has anyone had a liver biopsy and if so, did you have any problems?

>

> Thanks...and hope everyone has a Merry Christmas.

>

> Cheryl

>

>

>

>

>

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From what I understand, they are trying to find out if they can identify a cause

for the enzyme elevation (is there a problem with the liver).

Our primary care physician has prescribed hydrocodone this last year for the

shoulder pain he suffers with but cautions us because of the acetaminophen,

which works through the liver. He takes two spoonfuls most nights before going

to bed.

Previously he took extra strength liquid Tylenol, which didn't do very much.

Motrin seemed to help the most, but he has become allergic to ibuprofen,

breaking out in hives. We have asked about pain patches but our doctor said they

have side effects too and wants to know the results of the boipsy before trying

them. I don't recall any one telling us that the pain medication was the cause

of the elevated numbers.

No one at the gastroenterologist's office ever mentioned the procedure being

painful. Just that they would numb the area and insert a needle to pinch off a

piece of the liver.

You said that it took 3 people to help you back in your chair. Greg can't even

sit up on his own and we use a patient lift to get him out of bed and into his

chair. If it is that painful, I'm wondering if he'll be able to sit at his

computer after we get home.

I know he is pretty tough, dealing with shoulder pain, spinal fusion at 12,

and several kidney stones in the last 6 years. But I dread the thought of him

enduring even more. Apparently there isn't any other way to find out about the

liver.

Thanks for your comments.

Cheryl

---------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

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Before my biopsy they told me it was a quick, simple procedure and it wasn't

that bad. I did not feel the incision at all but when they got to the liver,

that was the worst pain I ever experienced. I swear, I can still feel it when I

think about it! He may be able to sit at the computer after a few hours of

rest. I don't remember the intense pain lasting too long. If I had to do it

again I would want to be knocked out for it, or I might refuse to do it. I

don't know if that's possible, though.

Tom

-------------- Original message --------------

From: Cheryl Pruitt <tarheelmom55@...>

From what I understand, they are trying to find out if they can identify a cause

for the enzyme elevation (is there a problem with the liver).

Our primary care physician has prescribed hydrocodone this last year for the

shoulder pain he suffers with but cautions us because of the acetaminophen,

which works through the liver. He takes two spoonfuls most nights before going

to bed.

Previously he took extra strength liquid Tylenol, which didn't do very much.

Motrin seemed to help the most, but he has become allergic to ibuprofen,

breaking out in hives. We have asked about pain patches but our doctor said they

have side effects too and wants to know the results of the boipsy before trying

them. I don't recall any one telling us that the pain medication was the cause

of the elevated numbers.

No one at the gastroenterologist's office ever mentioned the procedure being

painful. Just that they would numb the area and insert a needle to pinch off a

piece of the liver.

You said that it took 3 people to help you back in your chair. Greg can't even

sit up on his own and we use a patient lift to get him out of bed and into his

chair. If it is that painful, I'm wondering if he'll be able to sit at his

computer after we get home.

I know he is pretty tough, dealing with shoulder pain, spinal fusion at 12, and

several kidney stones in the last 6 years. But I dread the thought of him

enduring even more. Apparently there isn't any other way to find out about the

liver.

Thanks for your comments.

Cheryl

---------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

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I have an Aunt who had it done (she's not diabled) and

she said it was the worst pain she has ever felt too!

They pinch the liver and rip a piece off of it! I pray

I never need it done!

--- tshindle@... wrote:

> Before my biopsy they told me it was a quick, simple

> procedure and it wasn't that bad. I did not feel

> the incision at all but when they got to the liver,

> that was the worst pain I ever experienced. I

> swear, I can still feel it when I think about it!

> He may be able to sit at the computer after a few

> hours of rest. I don't remember the intense pain

> lasting too long. If I had to do it again I would

> want to be knocked out for it, or I might refuse to

> do it. I don't know if that's possible, though.

> Tom

>

> -------------- Original message --------------

> From: Cheryl Pruitt <tarheelmom55@...>

> From what I understand, they are trying to find out

> if they can identify a cause for the enzyme

> elevation (is there a problem with the liver).

>

> Our primary care physician has prescribed

> hydrocodone this last year for the shoulder pain he

> suffers with but cautions us because of the

> acetaminophen, which works through the liver. He

> takes two spoonfuls most nights before going to bed.

>

>

> Previously he took extra strength liquid Tylenol,

> which didn't do very much. Motrin seemed to help the

> most, but he has become allergic to ibuprofen,

> breaking out in hives. We have asked about pain

> patches but our doctor said they have side effects

> too and wants to know the results of the boipsy

> before trying them. I don't recall any one telling

> us that the pain medication was the cause of the

> elevated numbers.

>

> No one at the gastroenterologist's office ever

> mentioned the procedure being painful. Just that

> they would numb the area and insert a needle to

> pinch off a piece of the liver.

>

> You said that it took 3 people to help you back in

> your chair. Greg can't even sit up on his own and we

> use a patient lift to get him out of bed and into

> his chair. If it is that painful, I'm wondering if

> he'll be able to sit at his computer after we get

> home.

>

> I know he is pretty tough, dealing with shoulder

> pain, spinal fusion at 12, and several kidney stones

> in the last 6 years. But I dread the thought of him

> enduring even more. Apparently there isn't any other

> way to find out about the liver.

>

> Thanks for your comments.

>

> Cheryl

>

>

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with

> Mobile. Try it now.

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

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I had a liver biopsy 3 yrs ago and I wish I had consulted my

neurologist before I gave the OK to have it done. The neuro said I

should have had the gastro speak to him about my high liver enzymes

because a high cpk reading is extremely common where there muscle

wasting as in the case of neuro muscular disorders. He believes the

biopsy was unneccessary as the hi cpk is just an indicator of the

wasting and of itself the reading is harmless. The neuro had me do a

little experiment. He told me to go to the gym and work out as

strenuously as I could without killing myslf. And then to get a blood

test the next day for my liver enzymes. My cpk was sky high, about

2000 from a previous reading of 1200. Then he told me to do as little

as possible for 2 months and go for another enzyme test. It dropped

down to 900. Still high, as a normal reading is roughly 50 to 100.

But it shows how over exertion can raise that reading with neuro

muscular problems such as sma or adult Kennedys syndrome. Not that

everyone should just lay in bed and do nothing. Moderation is the

key. Also, the biopsy was very painful. Like getting hit in the side

with a baseball bat and my blood pressure and heart rate went wild

and they were concerned for a few minutes. There needs to be

communication between your specialists. Just telling your gastro you

have a muscle disease is not enough. They don't do their homework

about your condition.

>

> Our 23 year old son's liver enzymes have always been elevated. I

don't

> know if SMA has anything to do with it or the fact that he had

> toxoplasmosis at 4 months of age and his liver was very enlarged.

Maybe

> neither. He also has fatty liver disease and while the elevation

isn't

> huge, the gastro doc wants to find out more. He goes in on the 18th

and

> they tell us it will only take around 10 minutes, but they want to

keep

> him for several hours to be sure there isn't any excess bleeding.

>

> Has anyone had a liver biopsy and if so, did you have any problems?

>

> Thanks...and hope everyone has a Merry Christmas.

>

> Cheryl

>

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Sorry to hear that you didn't have a very good experience and I hope

you won't have to endure it again. Greg's liver biopsy went very

well. They used lidocain to numb the area, injecting it in the skin,

deeper into the muscle wall and finally to the surface of the liver.

Three specimens were taken and he said it felt like someone flicking

him with their finger.

Afterwards he had to lie on his right side for an hour and then on

his back for another hour. He did have some pain... on a scale of 1-

10 he said it was a 5. He said it felt like someone punched him in

that area. We came home and he went straight to his computer and

there he stayed till midnight.

Whenever he takes a deep breath, coughs or leans forward it is

uncomfortable. Hopefully we will get good results later this week.

Cheryl

>

> Before my biopsy they told me it was a quick, simple procedure and

it wasn't that bad. I did not feel the incision at all but when they

got to the liver, that was the worst pain I ever experienced. I

swear, I can still feel it when I think about it! He may be able to

sit at the computer after a few hours of rest. I don't remember the

intense pain lasting too long. If I had to do it again I would want

to be knocked out for it, or I might refuse to do it. I don't know

if that's possible, though.

> Tom

>

> -------------- Original message --------------

> From: Cheryl Pruitt <tarheelmom55@...>

> From what I understand, they are trying to find out if they can

identify a cause for the enzyme elevation (is there a problem with

the liver).

>

> Our primary care physician has prescribed hydrocodone this last

year for the shoulder pain he suffers with but cautions us because of

the acetaminophen, which works through the liver. He takes two

spoonfuls most nights before going to bed.

>

> Previously he took extra strength liquid Tylenol, which didn't do

very much. Motrin seemed to help the most, but he has become allergic

to ibuprofen, breaking out in hives. We have asked about pain patches

but our doctor said they have side effects too and wants to know the

results of the boipsy before trying them. I don't recall any one

telling us that the pain medication was the cause of the elevated

numbers.

>

> No one at the gastroenterologist's office ever mentioned the

procedure being painful. Just that they would numb the area and

insert a needle to pinch off a piece of the liver.

>

> You said that it took 3 people to help you back in your chair. Greg

can't even sit up on his own and we use a patient lift to get him out

of bed and into his chair. If it is that painful, I'm wondering if

he'll be able to sit at his computer after we get home.

>

> I know he is pretty tough, dealing with shoulder pain, spinal

fusion at 12, and several kidney stones in the last 6 years. But I

dread the thought of him enduring even more. Apparently there isn't

any other way to find out about the liver.

>

> Thanks for your comments.

>

> Cheryl

>

>

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Mobile.

Try it now.

>

>

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I didn't find it at all painful -- about like a flu shot. I was waiting for

it to start -- and I found that it was over. I didn't have a sedative for it.

Harper

In a message dated 2/5/08 10:20:53 PM, fnqhermitage@... writes:

>

> Has anyone in this group ever had a liver biopsy without IV sedatives?

> If so, is it very painful?

> Sue

>

>

>

**************

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I have had 2 biopsies- both whilst living in New Zealand. Rather than IV

sedatives they injected a local anaesthetic first and I found this stung whereas

I barely noticed the biopsy!

The thing I did notice was an ache in my shoulder afterwards- apparently this

is due to the displaced blood being moved there. I was given a mild painkiller

for it and this helped. It certainly helps to try and rest afterwards. I was

thinking i would head back to work but soon realised I was better resting in

bed!

The second biopsy was more uncomfortable than the first- due to scar tissue I

was told, but still not really painful. This makes me keen to avoid any more,

but we shall see!

Good luck and let us all know how you get on,

Best wishes,

Sue <fnqhermitage@...> wrote:

Has anyone in this group ever had a liver biopsy without IV sedatives?

If so, is it very painful?

Sue

---------------------------------

Sent from & #45; a smarter inbox.

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My last biopsy, in September, was trans-jugular, and I was so heavily sedated

that I was " asleep " throughout it. I think that for a through-the-side

biopsy, you need to be aware enough to follow the doctor's instructions about

breathing and moving and holding still.

Having the biopsy performed by someone with considerable experience and

up-to-date equipment seems to be important.

Harper

In a message dated 2/6/08 9:29:24 AM, lgsbrown@... writes:

>

> I have always had a sedative,, but a friend of mine decided to have her last

> one without and said it was very painfull. My Dr. said he would never do a

> liver biopsy without sedation??? A matter of choice I guess??

> Shirlee

> [Li

>

> Has anyone in this group ever had a liver biopsy without IV sedatives?

> If so, is it very painful?

> Sue

>

> ____________ ________ ________ ________ ________ ________

> More new features than ever. Check out the new AOL Mail ! -

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My last biopsy was with no medications at all. On a scale aof 1-10 you have

about a 5 for approximatley 2 minutes.

Hope that helps.

Kathy in CA

[ ] Liver Biopsy

Has anyone in this group ever had a liver biopsy without IV sedatives?

If so, is it very painful?

Sue

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I have always had a sedative,, but a friend of mine decided to have her last one

without and said it was very painfull. My Dr. said he would never do a liver

biopsy without sedation??? A matter of choice I guess??

Shirlee

[ ] Liver Biopsy

Has anyone in this group ever had a liver biopsy without IV sedatives?

If so, is it very painful?

Sue

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Hi Sue,

I did in The Netherlands. You do feel it, It is not the end of the world so

to say but if I could I would have some form of sedation.

Why if I may ask?

Loes

_____

From: [mailto: ]

On Behalf Of Sue

Sent: February 5, 2008 11:00 PM

Subject: [ ] Liver Biopsy

Has anyone in this group ever had a liver biopsy without IV sedatives?

If so, is it very painful?

Sue

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My original biopsy in 1986 was done without sedation. The biggest

problem was not the pain, but needing to stay totally still for several

seconds, possibly a minute. Just the tiniest flinch could cause the

needle to go into the wrong organ. I know the lungs, for instance, are

very close. The sedation relaxes you so you don't move while the

hepatologist is inserting the needle.

I am very thankful that my next 3 biopsies have been done with

sedation and ultrasound guidance. Why would you want to take a chance

of a problem? I'm glad that modern medicine has allowed us to have a

much safer procedure.

Sharon

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You said you haven't had a biopsy. Do you know the basis of your AIH

diagnosis? I'm just curious.

If medication proves appropriate, as it does for almost everyone with AIH, I

hope you show swift improvement. From what I read, people usually feel much

better soon after beginning treatment.

Some people have a lot of serious pain with the biopsy -- mostly following

the biopsy, I think, rather than during it. However, they're definitely in the

minority. I hope you're having an ultrasound guided biopsy, done by someone

with experience. As I wrote earlier, for me the biopsy was just a twinge. I

honestly didn't have even a moment of real pain, not even enough to make me

catch

my breath or consider saying " ouch. " Just about flu shot level of discomfort.

I kept waiting for the doctor to start -- and he'd finished. Go prepared:

arrange to have someone drive you home. You'll have to lie in a set

position for quite a while after the biopsy, so use the bathroom beforehand and

bring

a book.

In a short time, you probably will be on your way to feeling a lot better.

I'm curious about which other autoimmune disorders you now have. Quite

often people with one AD develop another. Fortunately, AIH is one that is highly

treatable. The most common AD is celiac disease. You might want to look into

that. Keep in mind that about half the people with AD have no obvious

symptoms, that the blood test for it sometimes have false negatives, and that

testing

must be done while one is eating a normal diet. CD used to be considered a

rare disease in the U.S., so many doctors still don't think of it as a

possibility. Should you want to learn more about CD, I'd be glad to point you

toward

resources.

Best wishes -- and keep us informed, if you wish.

Harper

In a message dated 2/6/08 7:27:45 PM, fnqhermitage@... writes:

>

> Thanks to everyone for your comments about Liver Biopsy.

>

> I was told 10 years ago that I have AIH. Since then I've developed

> autoimmune disease in several other areas of my body as well. I've

> never had a biopsy or any medications. Now I've agreed to have one

> and I'm nervous about the pain, after so many years with pain of one

> sort or another.

>

> The hepatologist and a nurse at the hospital told me it's painful,

> but they don't offer sedation here. No reason was given.

>

> Having read all your comments, I realise now that they want the

> patient to be alert so that they can keep very still. I wonder why

> medical people can't just explain things so simply.

>

> I was told I could take some pain medication before the procedure, so

> that's what I'll do, if only to keep me calm.

>

> Thanks again; I feel better about it all now.

>

>

>

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