Guest guest Posted January 1, 1970 Report Share Posted January 1, 1970 Tracey, > >First, how many of you have taken birth control pills sometime in your life? I took birth control pills from about age 19 to 21 years old. > >Second, how many of you were diagnosed after becoming pregnant or after >having a child? > My son is 28 now and I was diagnosed with hyperT and Graves at age 52. -- dx hyperT/Graves Feb 2001; (current treatment propylthiouracil PTU) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 1999 Report Share Posted October 15, 1999 I HAVE A FRIEND, SHE IS A WONDERFUL PERSON AND VERY INTELLIGENT. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 1999 Report Share Posted October 16, 1999 > > 1.) Are you of short stature or what is your > relationship to a short statured individual? I am short statured and I have a short statured son. > > > 2.) Are you aware of the limb-lengthening process > being done on short statured individuals? Yes, I am aware. > > > 3.) Would you ever condsider this process being > done on yourself or someone you know? No I would not consider it for me or my son. > > > 4.) Do you think anyone or any reason could > influence you to change your mind? It would have to take time, because I believe it has not yet been a long enough time to determine the long range effects of the surgery. > > > 5.) If you oppose the process of > limb-lengthening, what are your reasons? I oppose it because there is no data on the long term effect. Also it takes a little person out of the normal life experiences for a long time, usually during the pre teen and teen years which is a time for social development and acceptance of one self. > > > 6.) If you are in favor or don't care either way, > what are your reasons? > > > 7.) Do you feel most individuals proceed with > this process, for mainly appearance reasons of for > physical adaptation? I believe that there are many types of people and that if they proceed it is for a very individual reason. But the main reason , I feel is because of apprerance. We can all adapt to our enviroment. > > > 8.) Would you ever try to convince someone to not > have the procedure done? No , I believe that if somone has the mind set to have it done, you will not be able to change them. What I do believe should be done is to present ALL the facts and data and personal experiences and then let them decide > > > 9.) Do you feel average size parents have a big > role influencing their short statured child to have > this procedure done? Yes, most average size parents are looking for a remedy, a way to fix it at first, but then when the average size parents are educated and see that little people can lead normal lives with a few adapatations, they will see that it is not a necessary procedure. > > > 10.) Do you have religious beliefs that affect > your decision on this process? My religious beliefs in no way affect my thoughts on this. I believe that God gave us intelligence and that it is up to us to decide what we do with it. > > > 11.) Do you feel that more discussions about this > topic should be generated at LPA gatherings/meetings? As time goes on and new techniques are performed in this procedure it should be made available to the LPA community for the individual to decide if they want to have the procedure done. The decision should not be made by one group of people it is an individual's right to be presented the facts and data and then to make an educated decision. > > > 12.) And last of all, do you feel this survey was > adequate to get enough information from you? It depends on what information you are looking for. Because all surveys can be made to get the outcome the surveyer wants. > > > > If you have any comments or concerns please include > them. You may respond to me privately at > emmyaward79@... by Oct.25th. > > Thank-you so much for your time. Edelman > > > ===== > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 1999 Report Share Posted December 26, 1999 Hi, When this list started we were reporting how we did with certain tx - esp. interferon at that time. It would be interesting to see what things have helped or not in one place = I know archives can be difficult to navigate. How do others feel about a survey, and are there any volunteers to organize such info - someone with lifted brain fog and more knowledgable than I am at creating data bases. Any ideas or comments welcome! Christie >From: " Jacques & Nelly " <janel@...> > >I think it, as we are about to start a new year (not century but still), it >might be a good time to try and do some kind of major re-cap stock taking >operation/survey to have a sort of data base of ant tx, or any food taken or >avoided, supplements or other modes of intervention which you have found >helpful. >If people are willing to do this, could them make sure to be as rigorous as >possible and mentioned what other things they were taking at the time (or >just before and after) their had a brush with some degree of success? >Of course things that didn't work, or caused harm should be there too. > >If they have lab tests to back up changes, could you also include them? >I'm not volonteereing but it would be nice to have it all somewhere in a >form we could consult and add to proggressively. wouls also be very useful >for newcomers. >Just an idea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2000 Report Share Posted August 12, 2000 I am making copies of the surveys for comparison reasons. I am trying to see if our children have something in common. If anybody has any objections please let me know. Teri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2000 Report Share Posted August 12, 2000 I am getting my husband to help with my research. He took statics in college and I haven't yet so I roped him into this one. Once I am done I will let the group know the results. Teri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2000 Report Share Posted August 12, 2000 TERI thanks darling i have been reading each of the surveys and have been wondering about seeing the results all will be coming to the list please let me know what you find we need to be a group and team on this for our kids thanks again Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2000 Report Share Posted August 12, 2000 Dear group, on your surveys please indicate if your child is a boy or girl. Thanks Teri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2000 Report Share Posted August 12, 2000 Teri is 100% female girl lolololol Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2000 Report Share Posted August 12, 2000 sorry Robbin. Can't remember who has boys or girls. Early alzheimers I guess. LOL Teri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2000 Report Share Posted August 12, 2000 Teri CHychysworld is a girl. charlene(chyannes mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2000 Report Share Posted August 13, 2000 Dear group, I only have 8 Surveys back but here are some results so far: Poly Arthritis-4, Pauci-2, Systemic-2 so far 5 of the 8 had onset of JRA at age 2. Meds used: Naprosyn-5,Methotrxate -1 Enbrel-1 , Cytoxan-1 Motrin-1. 4 children have blonde hair, 3 have brown hair and 1 has black hair . 5 girls, 1 Boy, and 2 are unknown at this time (awaitng return emails) . All are full term babies.Birth weight ranging from 4 lbs to 8 lbs 15 oz. Most of the 8 children tend to be the 2nd child. Both arthritis and asthma tend to be in these families, although the arthritis in the grandparents could be from the aging process ( I am a geriatric nurse). These are only some of my findings. Will keep you posted. Teri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2000 Report Share Posted August 16, 2000 Robbin & Georgina, I took a few days off from working on the surveys. I have either some nasty virus or an allergy to something. Apparently I'm allergic to the doctor since I haven't made an appointment for myself. LOL Hope to get going on the surveys again real soon. Teri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2000 Report Share Posted August 16, 2000 Hi Teri, Thank you for your help with the survey responses. And thank you to your husband, as well Aloha, Georgina THep115@... wrote: > > Dear group, I only have 8 Surveys back but here are some results so far: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2000 Report Share Posted August 17, 2000 Teri you need to get to a doctor and take care of yourself you know moms cant get sick hope you feel better and thanks for your help Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 Sharon, It caught my eye that Olivia has been known to get 2-3 urinary tract infections per year... does she take any preventative antibiotics for that? Has she been tested for, or does she have kidney reflux? We had a scare a few months ago, thats why I'm so curious. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2000 Report Share Posted September 4, 2000 Sharon i see your in alabama where do you have to go for the ped rhuemy dr visits? Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2000 Report Share Posted September 9, 2000 , What is reactive arthritis ? Teri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2000 Report Share Posted September 11, 2000 Dear Group: I am at it again. In the next few days I will be emailing some of you for specifics concerning family history. This information is important because I am searching for a common denominator. I appreciate the responses from those I have already emailed. I hope to have the results ready soon. Teri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2000 Report Share Posted September 14, 2000 You may have discussed this already (my memory is awful, sorry!), but have your daughter's doctors mentioned any connection between her jra and the recurrent strep infections? I know I've been learning alot about reactive arthritis and strep and was wondering if this is something you're dealing with? Just curious. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2000 Report Share Posted September 24, 2000 I hope this helps, if anyone has questions about my answers, let me know Jayme --- dwarfmail1@... wrote: > Please type an answer under the question. > 1. Are you male or female?FEMALE > > 2. What type of LP are you?I DONT KNOW?DIDNT KNOW THERE WERE DIFFERENT TYPES.I CONSIDER MYSELF SHORT, BUT NORMAL > > > 3. How tall are you?3'3-3'4 > > > 4. Do you live in a rural or urban area?WHY DOES THAT MATTER?? > > > 5. What year were you born?UMMM, REALLY NOT GOING TO SHARE THAT-PRIVATE INFORMATION > > > 6. What is your occupation?COLLEGE > > > Please type an uppercase " X " on the dotted line to > show how much you > agree or disagree with the statement. > > 1. Little people are portrayed accurately on TV. > > [.................................................X...........] > strongly agree > strongly disagree > > 2. Little people are portrayed accurately in films > > [..................................................X..........] > strongly agree > strongly disagree > > > 3. Little people lead normal lives. > > > [....................................X........................] > strongly agree > strongly disagree > > 4. There is a difference between how little people > are generally > perceived and how they actually are. > > [X............................................................] > strongly agree > strongly disagree > > 5. LPs make major modifications in their homes due > to their height. > > [X............................................................] > strongly agree > strongly disagree > > 6. Most people of average height perceive LPs as > disabled. > > [X............................................................] > strongly agree > strongly disagree > > 7. The words used to describe LPs affect the way > they are perceived. > > [X............................................................] > strongly agree > strongly disagree > > 8. LPs are generally perceived as normal, just > short. > > [............................................................X] > strongly agree > strongly disagree > > 9. People often expect real LPs to be like dwarfs > in myths or > folktales, or fairytales. > > [...X.........................................................] > strongly agree > strongly disagree > > 10. Most people view little people as special in a > good way. > > [...................................X.........................] > strongly agree > strongly disagree > > 11. It is easier to be an LP in a city than it is in > the country. > > [............................................X................] > strongly agree > strongly disagree > > 12. The challenges of being an LP are more physical > than social. > > [...............X.............................................] > strongly agree > strongly disagree > > 13. Most people view LPs as childlike. > > [X............................................................] > strongly agree > strongly disagree > > 14. It is easier to be an LP in the country than it > is in a city > > [............................................X................] > strongly agree > strongly disagree > > 15. " normal " and " abnormal " are relative terms, not > scientific facts. > > [.....X.......................................................] > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 Dear Dawn Rose, I know you are working real hard to get well, and I hate to be a nag, but . . . Are you starting to work with the supplements listed on iThyroid? I really think you have a better shot to recover from Graves by working with your imbalances than going the medical route. To prove my point (or not), I am hereby commissioning an informal survey of board members. Who among us has gotten well (I would define this as at least 6 months without meds while thyroid levels remain in the normal range)? Those who are better: How did you acheive this? I only know of two who are better--Zoey and I. And I think our methods have been discussed pretty thoroughly on this board. Any others out there? Has ANYONE gotten better using the medical model alone? If no one has, what does that say? I am asking anyone who considers themselves cured to respond. Thanks, AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 I have totally gotten off all meds and most supplements.....don't really know what or how it all happened...I was doing almost all of the supplements...maybe 1/2 or 2/3rds, for a year or less, then I needed thyroid meds, so the Dr. put me on Armour......low dose, and kept checking my blood levels.....when it came back up to normal, she took me off the Armour and I am still taking supplements, but only a few that I think I need for every day living.... and my thyroid levels are normal... and I feel great. I had a couple of other auto-immune problems happening around the same time, and have them under control too, so I don't know for sure how this all came about. I do know that I have felt much better since I first started with 's program... Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 Hello all, I am replying to the survey... I filled the prescription one time and took all but one tapizol and new I could not live taking it. It was nasty to have that taste in the back of my throat all day long. I have taken the supplements find that calcium magnesium seem to help the most along with copper. I have just recently started drinking green tea and find that the stuff is really helping allot but I would not recommend the new people take it because of the caffeine. I have had this thyroid problem....this is my seventh year in june and I plan to be well by then. But who knows.I will stay on the path I am following. I have been without meds for five years!WoooHooo I am a hell of a lot better the only thing that really bothers me is the heat. I have started a cabinet shop bought a steel yacht that I am refitting and am planning to sail around the world for the next 10 or 15 years. I am not totally cured but it's not going to slow me down!! Raven AntJoan@... wrote: Dear Dawn Rose, I know you are working real hard to get well, and I hate to be a nag, but . . .. Are you starting to work with the supplements listed on iThyroid? I really think you have a better shot to recover from Graves by working with your imbalances than going the medical route. To prove my point (or not), I am hereby commissioning an informal survey of board members. Who among us has gotten well (I would define this as at least 6 months without meds while thyroid levels remain in the normal range)? Those who are better: How did you acheive this? I only know of two who are better--Zoey and I. And I think our methods have been discussed pretty thoroughly on this board. Any others out there? Has ANYONE gotten better using the medical model alone? If no one has, what does that say? I am asking anyone who considers themselves cured to respond. Thanks, AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2001 Report Share Posted November 11, 2001 This " survey " seems a little odd to me. The survey questions themselves aren't the problem -- it's the mysterious nature in which it was posted: without a name and without any kind of introduction. Add to that the fact that the subscriber just signed up to this list today, and it makes it a little more suspicious. In my opinion it's not a good idea to respond to this type of thing if the surveyor is not willing to identify themselves or the purpose of their survey up front. Just a word of caution to those who may be considering answering this anonymous post. Dave On Sun, 11 Nov 2001, Burger King wrote: > First Name: > > Age: > Quote Link to comment Share on other sites More sharing options...
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