Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 I'm in a similar situation. I was rear ended 3 years ago wrecking 3 levels in my neck. They didn't even pay to fix my car yet. Infact, I don't even drive that car anymore. The bottom line to the insurance company is just that, the bottom line. Unfortunately for victoms, they play odds and statistics. In other words, if they think you might die, they might hold out a little longer so that they claim dies with you. Thats the mentality of most insurance companies. I am in the middle of having another breakdown of my fusion hardware, malfuntion number 2. Nothing has gone right since the accident. Still not a penny. Their excuse, sure their client hit me, but not hard enough to cause this kind of damage. Only enough to total the bumper on my car. Therefore, they aren't paying. It's a crock really. What they probably hope is that I will get desperate and take any amount. There is 650 pages of medical proof against them, and they still won't pay. Well the guy who hit me didn't even have enough insurance to cover my medical bills at this point. I won't be getting anything, the state will since they have had to pay for all of my surgeries and hospital care. In the end I won't even get my wages covered, no money for pain and suffering or continued care. Forget about the fact I went from a prosperous business owner to total disability trying desperately to make ends meet and not lose the roof over my head too. Where am I going with this? Well I guess I'm just sharing my frustrations. Lawsuit or not, there are no winners in an accident where someone gets hurt. The only winners are the insurance companies and lawyers. I feel accident victoms pain. It is tough enough that we have to deal with all the medical let alone lose everything we've worked so very hard for. Matt ________________________________ From: JW <joyfulfeathers@...> neck pain Sent: Friday, April 17, 2009 12:25:28 AM Subject: RE: hello everyone Thanks Tom. We did have to hire a lawyer. He does a lot of accidents as well as SSDI stuff along with the criminal law etc. He's very good. Hubby knows him. It's too bad because we were not at fault at all. She rear ended us while we were stopped at a red light. Its not really the driver causing the problem, it's the insurance Co. She has the same company as we do, so they just don't want to pay either way. Her car was completely fixed before they even came out to look at our car and they balked at the measly $480 price to fix it. I drive a Jeep with a major bumper! Joi Gizmo & Yoda, Papillons " The Girls " Max, Blue Front Amazon Jazzy, Crimson-bellied conure Artemis, Painted conure Shelby, Pineapple mutation Green-cheeked conure Birdie, normal Green-cheeked conure & Padme', rosirfons conure " Helping Birds Find People " Re: [Pa At 04:55 PM 4/10/2009, you wrote: >hi ,i recently joined the group.i have had surgery on l5-s1 area >twice.i have a lot of pain still.i also was recently told i have >ddd.i have had it for a while.i am 36.and i am scared i wiil end up >in a wheelchair. Hi my name is Dave. I'm a moderator here. If you go to our group home page. Then click on files, then neck and back pain stories, then Dave's story you'll see I suffer from similar issues, though I am now quite a bit older at 49. You can try clicking here: _http://health. http://healthhtt p://heahttp: //health. http://healhttp: //healht t_ (http://health. groups.. com/group/ PainInTheNeck- Back/files/ Neck%20 & % 20B) ack%20Pain%20Storie ac I had several injuries that ended up in a failed back surgery around 1983 at age 22. Then a very good fusion at Jefferson Hospital in 1987 at age 26. That lasted 13 years. Then a re-injury Jan 5th 2000. In May of 2000 at age 39 they removed the old hardware, added new and fused an additional level. This was somewhat successful. Then a failed neck surgery / fusion in December of 2000. The removed some bone spurs, opened up the area for the spinal cord to travel and I woke up in much more pain than when I went into the OR. I've been in chronic pain ever since. Had to close my business in 2005 which I loved and was awarded disability in July 2007. Right now tonight I have gnawing pain under my right shoulder and in my thoracic region of about a 7-8. I blame it on the rain/colder weather. I've also been sleep deprived for about the past two weeks. Bottom line, you came to the right place. Plenty of sympathetic listeners here who can relate. Welcome, Dave Reading, PA ------------ --------- --------- ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 An accident that has physical consequences to the part not responsible for the crash is usually settled for LARGE amounts.. I do not know your lawyer friend but sometimes having a friend helping you in any sort of professional manner is to be avoided. Ask yourself this.. " Am I being as forceful in getting what is owed with your friend as I would be if the person was not my friend " . I have a college roommate who is a lawyer and I ask him for advice but if I need a Lawyer I simply ask him for help determining a good fit... He understands completely.. I hope things work out fro you darlin( yes I am from the south ) : ) Tom In a message dated 4/16/2009 11:26:22 P.M. Mountain Daylight Time, joyfulfeathers@... writes: Thanks Tom. We did have to hire a lawyer. He does a lot of accidents as well as SSDI stuff along with the criminal law etc. He's very good. Hubby knows him. It's too bad because we were not at fault at all. She rear ended us while we were stopped at a red light. Its not really the driver causing the problem, it's the insurance Co. She has the same company as we do, so they just don't want to pay either way. Her car was completely fixed before they even came out to look at our car and they balked at the measly $480 price to fix it. I drive a Jeep with a major bumper! Joi Gizmo & Yoda, Papillons " The Girls " Max, Blue Front Amazon Jazzy, Crimson-bellied conure Artemis, Painted conure Shelby, Pineapple mutation Green-cheeked conure Birdie, normal Green-cheeked conure & Padme', rosirfons conure " Helping Birds Find People " -----Original Message----- From: _PainInTheNeck-PainInTheNeck-<WPain_ (mailto:neck pain ) [mailto:_PainInTheNeck-PainInTheNeck-<WPain_ (mailto:neck pain ) ] On Behalf Of _tomhfsu@..._ (mailto:tomhfsu@...) Sent: Thursday, April 16, 2009 6:45 AM _PainInTheNeck-PainInTheNeck-<WPain_ (mailto:neck pain ) Subject: Re: [PainInTheNeck-Subject: Re: [Pa If this accident that you had was not your fault you need to see a lawyer to specializes in accidental insurance issues.. Money is the least thing you should have to worry about to get back to a sate of relative health.. Tom In a message dated 4/15/2009 11:56:13 P.M. Mountain Daylight Time, _joyfulfeathers@joyfulfea_ (mailto:joyfulfeathers@...) writes: Hi Dave, I noticed you said you have thoracic pain...do you or have you been diagnosed with thoracic outlet syndrome? The PT guy I'm going to now (just started last Friday) thinks I have that on both sides and/or CRPS (which I hope I DON'T have!). Moving slowly at PT. I've only been three times and one was an assessment for my neck area and the next was treatment and assessment for my lower back. I have to say this guy did the most thorough exam so far...more thorough than ALL the docs combined! PT has made my ears ring again...today really loud! My shoulders, arms, and hands hurt a LOT. So much that it's hard to type and work on the computer; which is what I do for a living. They have me using a fancy traction machine for my neck. If it helps with the headaches, he says he will write to the doc and insurance to get me one of my own. It has helped with the headaches but made my neck and shoulders, arms, and hands worse. There is a PT intern that has been doing some assessment and he thinks my lower back and hip pain is from a tight IT band. Problem is...the lower back pain is from POST accident. The outer hip pain is likely from the tight IT band, but I also have hip joint pain, popping, and catching. They don't want to bring in the hip and knee stuff unless it's related to the car accident, so those will be either unofficial or dealt with later. I probably need to push a little more for the reason my lower back hurts. He did say I was too flexible and my joints are loose which will cause problems. Even when I was working out I still had that problem but didn't have lower back pain until after we got hit last October. Joi Gizmo & Yoda, Papillons " The Girls " Max, Blue Front Amazon Jazzy, Crimson-bellied conure Artemis, Painted conure Shelby, Pineapple mutation Green-cheeked conure Birdie, normal Green-cheeked conure & Padme', rosirfons conure " Helping Birds Find People " Re: [Pa At 04:55 PM 4/10/2009, you wrote: >hi ,i recently joined the group.i have had surgery on l5-s1 area >twice.i have a lot of pain still.i also was recently told i have >ddd.i have had it for a while.i am 36.and i am scared i wiil end up >in a wheelchair. Hi my name is Dave. I'm a moderator here. If you go to our group home page. Then click on files, then neck and back pain stories, then Dave's story you'll see I suffer from similar issues, though I am now quite a bit older at 49. You can try clicking here: __http://health.http://health.<Whttp://healthttp://hehttp://health.<Whttp:// h_ (http://health.http//healthhttp://heahttp://health.http://healhttp://healht) t_ (_http://health.http://healthhttp://heahttp://health.http://healhttp:// & %%<W _ (neck pain/files/Neck%20 & %20B) ) ack%20Pain%20Storieac I had several injuries that ended up in a failed back surgery around 1983 at age 22. Then a very good fusion at Jefferson Hospital in 1987 at age 26. That lasted 13 years. Then a re-injury Jan 5th 2000. In May of 2000 at age 39 they removed the old hardware, added new and fused an additional level. This was somewhat successful. Then a failed neck surgery / fusion in December of 2000. The removed some bone spurs, opened up the area for the spinal cord to travel and I woke up in much more pain than when I went into the OR. I've been in chronic pain ever since. Had to close my business in 2005 which I loved and was awarded disability in July 2007. Right now tonight I have gnawing pain under my right shoulder and in my thoracic region of about a 7-8. I blame it on the rain/colder weather. I've also been sleep deprived for about the past two weeks. Bottom line, you came to the right place. Plenty of sympathetic listeners here who can relate. Welcome, Dave Reading, PA ------------------------------------ Groups Links No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.0.237 / Virus Database: 270.11.58/2061 - Release Date: 04/15/09 19:52:00 ************************<WBR>**Access 350+ FREE radio stations anytime from web. Get the Radio Toolbar! (_http://toolbar.http://toolbar.http://toohttp://toohttp://toolbar.http_ (http://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown00000003) ) [Non-text portions of this message have been removed] ------------------------------------ Groups Links No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.0.237 / Virus Database: 270.11.58/2061 - Release Date: 04/15/09 19:52:00 **************Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! (http://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown00000003) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 Joi? Did he DO your shoulder socket? Did he put one hand in front of your shoulder socket, and the other behind, and push together. Did he take your arm and yank it over your head, and make your shoulder hurt? If he didnt do any of this, then he didnt check your thoracic outlet? Did he do anything like this Joi? I know about your hand thingy, but a thoracic outlet is a should-neck issue, that the pain is in the muscles of the arm, shoulder, maybe down to the hand, under the arm pit. etc.Shoulder pain and you shouldnt be able to move your arm? Another thing to look for with shoulder related problems. Look in the mirror. Is your bad arm hanging straight down at your side?Like the other side? It should be. If its not and its bent outward.swinging outward, Then you have a shoulder joint problem. go look. cindy > > > > > > >hi ,i recently joined the group.i have had surgery on l5-s1 area > > >twice.i have a lot of pain still.i also was recently told i have > > >ddd.i have had it for a while.i am 36.and i am scared i wiil end up > > >in a wheelchair. > > > > Hi my name is Dave. I'm a moderator here. If you go to our group > > home page. Then click on files, then neck and back pain stories, > > then Dave's story you'll see I suffer from similar issues, though I > > am now quite a bit older at 49. You can try clicking here: > > > > > neck pain/files/Neck%20%26%20B > > ack%20Pain%20Stories/ > > > > I had several injuries that ended up in a failed back surgery around > > 1983 at age 22. Then a very good fusion at Jefferson Hospital > > in 1987 at age 26. That lasted 13 years. Then a re-injury Jan 5th > > 2000. In May of 2000 at age 39 they removed the old hardware, added > > new and fused an additional level. This was somewhat successful. Then > > a failed neck surgery / fusion in December of 2000. The removed some > > bone spurs, opened up the area for the spinal cord to travel and I > > woke up in much more pain than when I went into the OR. I've been in > > chronic pain ever since. Had to close my business in 2005 which I > > loved and was awarded disability in July 2007. Right now tonight I > > have gnawing pain under my right shoulder and in my thoracic region > > of about a 7-8. I blame it on the rain/colder weather. I've also > > been sleep deprived for about the past two weeks. > > > > Bottom line, you came to the right place. Plenty of sympathetic > > listeners here who can relate. Welcome, Dave Reading, PA > > > > > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Hi ,I am so glad that you finally found a Dr. that was good and that you have the diagnosis. Yes, it is hard for family and friends to understand what you are going through for like you say you look the same to them. Just take care of yourself for that is important. I am glad that you joined this group and look forward to getting to know you better. This is a great group here, so just feel free to ask any questions that you might have. Take care and I hope that you and your family are healthy, happy and having a great day,Sent from my BlackBerry device on the Wireless NetworkFrom: "suzys_moonbeamcreations" Date: Mon, 03 Aug 2009 06:34:46 -0000< >Subject: Hello everyone My name is and I live in Sydney Australia! We don't have any support groups for FM here so hence why I've joined this group. I'm a real newbie...I've not ever posted anything on a forum before, so you will have to excuse me if i do something wrong! I was diagnosed with FM last year (and I have Insulin Resistance too). I've been suffering for the past 19 years with this condition. I constantly visited doctors and had blood tests every year as the condition just worsened. The blood tests always came back " just fine " and the dr would pat me on the back and say " its just your life style " ! What a bunch of crap! Not many people that I know have been diagnosed with FM...not many doctors here know about it - let alone believe in it! I changed my Dr about a year or so ago because I was fed up with visiting " quacks " !! My current Dr is brilliant. I think half the battle is finding out what's wrong with you and knowing that really its not all in your head! Convincing family that you really do have a problem is a whole new ball game tho! As you have an " invisible " illness, and because you still just plod along doing what you've always done - even though it continually gets harder - they just don't see it or they forget that you've got it and it's a real thing. Anyway...I should probably get down from my soap box now before I write too many more pages! Looking forward to conversing and learning with you all.... Cheers, . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Suzy, here. Welcome, welcome, welcome. I am so glad you found us. This is a great place to find comfort, get advice, catch up on new research, cry on others shoulders, create friendships, get understanding, have a laugh, celebrate our triumphs, learn something new or just have a place to go when you are at the end of your rope. So glad to have you here. hugs, Sue From: suzys_moonbeamcreations <suzys_moonbeamcreations@...>Subject: Hello everyone Date: Monday, August 3, 2009, 2:34 AM My name is and I live in Sydney Australia! We don't have any support groups for FM here so hence why I've joined this group. I'm a real newbie...I've not ever posted anything on a forum before, so you will have to excuse me if i do something wrong!I was diagnosed with FM last year (and I have Insulin Resistance too). I've been suffering for the past 19 years with this condition. I constantly visited doctors and had blood tests every year as the condition just worsened. The blood tests always came back "just fine" and the dr would pat me on the back and say "its just your life style"! What a bunch of crap! Not many people that I know have been diagnosed with FM...not many doctors here know about it - let alone believe in it! I changed my Dr about a year or so ago because I was fed up with visiting"quacks"!! My current Dr is brilliant. I think half the battle is finding out what's wrong with you and knowing that really its not all in your head! Convincing family that you really do have a problem is a whole new ball game tho! As you have an "invisible" illness, and because you still just plod along doing what you've always done - even though it continually gets harder - they just don't see it or they forget that you've got it and it's a real thing.Anyway...I should probably get down from my soap box now before I write too many more pages!Looking forward to conversing and learning with you all....Cheers,.------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Welcome , Its wonderful that you have found a Dr who is in tune with you and your needs. Hopefully things will fall into place with your family and friends as well. We all have varrying degrees of support from our families and we are all at various places in our quest to maintain, live with, cure FMS. That is why this group is so wonderful. We support and we don't judge. Its a great place to vent and share. I look forward to getting to know you more. Blessings, From: suzys_moonbeamcreations <suzys_moonbeamcreations@...>Subject: Hello everyone Date: Monday, August 3, 2009, 2:34 AM My name is and I live in Sydney Australia! We don't have any support groups for FM here so hence why I've joined this group. I'm a real newbie...I've not ever posted anything on a forum before, so you will have to excuse me if i do something wrong!I was diagnosed with FM last year (and I have Insulin Resistance too). I've been suffering for the past 19 years with this condition. I constantly visited doctors and had blood tests every year as the condition just worsened. The blood tests always came back "just fine" and the dr would pat me on the back and say "its just your life style"! What a bunch of crap! Not many people that I know have been diagnosed with FM...not many doctors here know about it - let alone believe in it! I changed my Dr about a year or so ago because I was fed up with visiting"quacks"!! My current Dr is brilliant. I think half the battle is finding out what's wrong with you and knowing that really its not all in your head! Convincing family that you really do have a problem is a whole new ball game tho! As you have an "invisible" illness, and because you still just plod along doing what you've always done - even though it continually gets harder - they just don't see it or they forget that you've got it and it's a real thing.Anyway...I should probably get down from my soap box now before I write too many more pages!Looking forward to conversing and learning with you all....Cheers,. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Hello , and welcome. So many of us have had similar doctor problems, and I'm so glad you finally found a good doctor. I'm still searching for the right doctor, although my current doc is ok. Please don't worry about writing too much--you can't write too much. This is the place to write it all down, however you feel. We're here to listen. Pam Hello everyone My name is and I live in Sydney Australia! We don't have any support groups for FM here so hence why I've joined this group. I'm a real newbie...I've not ever posted anything on a forum before, so you will have to excuse me if i do something wrong!I was diagnosed with FM last year (and I have Insulin Resistance too). I've been suffering for the past 19 years with this condition. I constantly visited doctors and had blood tests every year as the condition just worsened. The blood tests always came back "just fine" and the dr would pat me on the back and say "its just your life style"! What a bunch of crap! Not many people that I know have been diagnosed with FM...not many doctors here know about it - let alone believe in it! I changed my Dr about a year or so ago because I was fed up with visiting"quacks"!! My current Dr is brilliant. I think half the battle is finding out what's wrong with you and knowing that really its not all in your head! Convincing family that you really do have a problem is a whole new ball game tho! As you have an "invisible" illness, and because you still just plod along doing what you've always done - even though it continually gets harder - they just don't see it or they forget that you've got it and it's a real thing.Anyway...I should probably get down from my soap box now before I write too many more pages!Looking forward to conversing and learning with you all....Cheers,. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Thank you so much to everyone.... It's hard to communicate in " live " time as I'm on the opposite side of the world and " Down Under " so that makes it even harder - time wise!! You all would be in bed when I'm writing this!! haha. I had a brochure on FMS and gave it to my husband to read...and he was floored that I felt that way! I thought YES! a breakthrough!! But months and months have rolled by since then and I really think they forget about this and how you're feeling. Of course I'm not going to wake up and tell him how crap I feel...tired, achy, nauseous etc....as it's hard enough to just shake all of that off so I can get ready for work! So as time marches by, they just think that you're ok and back to " normal " !! And as for the comments - you have to " think positive " ....what do I do every day to get me going???? hmmm? So, sometimes it gets to me and I've got no-one who understands what it is I'm really going through (not even my sisters!) so I'm very pleased (and sorry) that I've got you all to dummy(pacifier) spit at!! If I use colloquialisms, I'll try and explain them as I go along...I write to some of my relatives in the States and a couple of friends and they will laugh at some of my " Australianisms " !! I was 4 when I came here...was born in Savannah Georgia! I guess tho, after so many years of being here...I'm pretty much a " dinky di " (genuine)now! I must say...my husband is really the best ever and does so much for me...so why I'm getting all stressed about this - is I've just probably been a bit down over the last couple of weeks. errr. I went for some day surgery and expected to recover in a day...I took 2 days off work to cover this...and ended up having 2 weeks off. I'm back to work now..but it's still not completely better. So, I was feeling a bit anxious about coming back to work on Monday. hmmm rightly so...nothing had changed here at work...still pretty crap. Time for a new job....closer to home! (I drive an hour and half every morning!!) I must admit...while it feels good to offload...I feel pretty guilty too...I rarely do this sort of thing! I'm very pleased to have met so many nice people in just one day! love to all..... . > > > From: suzys_moonbeamcreations <suzys_moonbeamcreations@...> > Subject: Hello everyone > > Date: Monday, August 3, 2009, 2:34 AM > > > > > > > My name is and I live in Sydney Australia! > We don't have any support groups for FM here so hence > why I've joined this group. I'm a real newbie...I've > not ever posted anything on a forum before, so you > will have to excuse me if i do something wrong! > > I was diagnosed with FM last year (and I have Insulin > Resistance too). I've been suffering for the past 19 > years with this condition. I constantly visited doctors > and had blood tests every year as the condition just > worsened. The blood tests always came back " just fine " > and the dr would pat me on the back and say " its just > your life style " ! What a bunch of crap! Not many people > that I know have been diagnosed with FM...not many doctors > here know about it - let alone believe in it! I changed my > Dr about a year or so ago because I was fed up with visiting > " quacks " !! My current Dr is brilliant. I think half the > battle is finding out what's wrong with you and knowing > that really its not all in your head! Convincing family > that you really do have a problem is a whole new ball game > tho! As you have an " invisible " illness, and because you > still just plod along doing what you've always done - even > though it continually gets harder - they just don't see > it or they forget that you've got it and it's a real thing. > > Anyway...I should probably get down from my soap box now > before I write too many more pages! > > Looking forward to conversing and learning with you all.... > > Cheers, > . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Hi ,You can vent to us anytime you want for that is what we are here for to help, support and encourage each other for we completely understand what each other is going through!!! Take care and I hope that you and your family are healthy, happy and having a great day,Sent from my BlackBerry device on the Wireless NetworkFrom: "suzys_moonbeamcreations" Date: Tue, 04 Aug 2009 01:55:34 -0000< >Subject: Re: Hello everyone Thank you so much to everyone.... It's hard to communicate in " live " time as I'm on the opposite side of the world and " Down Under " so that makes it even harder - time wise!! You all would be in bed when I'm writing this!! haha. I had a brochure on FMS and gave it to my husband to read...and he was floored that I felt that way! I thought YES! a breakthrough!! But months and months have rolled by since then and I really think they forget about this and how you're feeling. Of course I'm not going to wake up and tell him how crap I feel...tired, achy, nauseous etc....as it's hard enough to just shake all of that off so I can get ready for work! So as time marches by, they just think that you're ok and back to " normal " !! And as for the comments - you have to " think positive " ....what do I do every day to get me going???? hmmm? So, sometimes it gets to me and I've got no-one who understands what it is I'm really going through (not even my sisters!) so I'm very pleased (and sorry) that I've got you all to dummy(pacifier) spit at!! If I use colloquialisms, I'll try and explain them as I go along...I write to some of my relatives in the States and a couple of friends and they will laugh at some of my " Australianisms " !! I was 4 when I came here...was born in Savannah Georgia! I guess tho, after so many years of being here...I'm pretty much a " dinky di " (genuine)now! I must say...my husband is really the best ever and does so much for me...so why I'm getting all stressed about this - is I've just probably been a bit down over the last couple of weeks. errr. I went for some day surgery and expected to recover in a day...I took 2 days off work to cover this...and ended up having 2 weeks off. I'm back to work now..but it's still not completely better. So, I was feeling a bit anxious about coming back to work on Monday. hmmm rightly so...nothing had changed here at work...still pretty crap. Time for a new job....closer to home! (I drive an hour and half every morning!!) I must admit...while it feels good to offload...I feel pretty guilty too...I rarely do this sort of thing! I'm very pleased to have met so many nice people in just one day! love to all..... . > > > From: suzys_moonbeamcreations <suzys_moonbeamcreations@...> > Subject: Hello everyone > > Date: Monday, August 3, 2009, 2:34 AM > > > > > > > My name is and I live in Sydney Australia! > We don't have any support groups for FM here so hence > why I've joined this group. I'm a real newbie...I've > not ever posted anything on a forum before, so you > will have to excuse me if i do something wrong! > > I was diagnosed with FM last year (and I have Insulin > Resistance too). I've been suffering for the past 19 > years with this condition. I constantly visited doctors > and had blood tests every year as the condition just > worsened. The blood tests always came back " just fine " > and the dr would pat me on the back and say " its just > your life style " ! What a bunch of crap! Not many people > that I know have been diagnosed with FM...not many doctors > here know about it - let alone believe in it! I changed my > Dr about a year or so ago because I was fed up with visiting > " quacks " !! My current Dr is brilliant. I think half the > battle is finding out what's wrong with you and knowing > that really its not all in your head! Convincing family > that you really do have a problem is a whole new ball game > tho! As you have an " invisible " illness, and because you > still just plod along doing what you've always done - even > though it continually gets harder - they just don't see > it or they forget that you've got it and it's a real thing. > > Anyway...I should probably get down from my soap box now > before I write too many more pages! > > Looking forward to conversing and learning with you all.... > > Cheers, > . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Hi Pam,Thank you very much!!I do hope you find a good dr soon. Mine is very good, but they still don't know a lot about it here. I find it a bit hard tho because most things I read is all about the medication being prescribed to "fix" things (well cover it up I suppose) and I really don't like taking medication - I take enough with my insulin resistance and reflux....I do need to discuss my sleep with the dr tho....always waking up tired no matter how much sleep you've had is very wearing at times. I'm probably my own worst enemy though .... I rarely talk about this with anyone and hence why everyone thinks that I'm fine and coping with thing really well....including my family! Its hard to know what to do though because it's a bit of you're dammed if you do and your dammed if you don't! If I tell my family how I'm "really" feeling....you get the response that you're always so negative about your health etc etc and if you just put up and shut up....they think it's all just magically disappeared! But, I do think its easier the latter way! I actually told my husband (he's a very morning person...I'm a night owl...not good at the best of times in the morning!) not to ask me how I am in the morning anymore!! Mornings are probably my worst time! tired...stiff and sore...and 99% of the time nauseous! Then he wants me to eat breakfast before going to work! yeah right....like thats going to work! I do try and shove a bowl of peaches in my mouth before I walk out the door....then when I get to work I can have something else...maybe a bowl of cerial (not that I particuarly like cerial) or some raisin toast....I'm also not a very big eater..so I don't know if that contributes to anything. At lunch time I'll sometimes go an get some pasta for lunch...the girls in the office laugh at me because it will come in a "chinese take away container" and I'll eat half one day and the other half the next! Its a penne pasta with a meat sauce, bechemel sauce and cheese on top - melted. - probably not the healthiest of lunches...but I do this especially on a Tuesday when I know I won't be having much of a dinner that night!Tell me more about yourself...I'd really like to get to know you ladies better! Its nice being able to talk to people who "understand" you!!Take care....susan. Dawson Moonbeam Creations0412 98 33 44From: Pam Horne <pamhorne@...> Sent: Tuesday, 4 August, 2009 12:20:24 AMSubject: Re: Hello everyone Hello , and welcome. So many of us have had similar doctor problems, and I'm so glad you finally found a good doctor. I'm still searching for the right doctor, although my current doc is ok. Please don't worry about writing too much--you can't write too much. This is the place to write it all down, however you feel. We're here to listen. Pam Hello everyone My name is and I live in Sydney Australia! We don't have any support groups for FM here so hence why I've joined this group. I'm a real newbie...I've not ever posted anything on a forum before, so you will have to excuse me if i do something wrong!I was diagnosed with FM last year (and I have Insulin Resistance too). I've been suffering for the past 19 years with this condition. I constantly visited doctors and had blood tests every year as the condition just worsened. The blood tests always came back "just fine" and the dr would pat me on the back and say "its just your life style"! What a bunch of crap! Not many people that I know have been diagnosed with FM...not many doctors here know about it - let alone believe in it! I changed my Dr about a year or so ago because I was fed up with visiting"quacks"!! My current Dr is brilliant. I think half the battle is finding out what's wrong with you and knowing that really its not all in your head! Convincing family that you really do have a problem is a whole new ball game tho! As you have an "invisible" illness, and because you still just plod along doing what you've always done - even though it continually gets harder - they just don't see it or they forget that you've got it and it's a real thing.Anyway...I should probably get down from my soap box now before I write too many more pages!Looking forward to conversing and learning with you all....Cheers,. Access 7 Mail on your mobile. Anytime. Anywhere. Show me how. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Hi , I am looking forward to learning some of the Australianisms. I think its will be fun. I teach school, so I always enjoy learning new stuff. Thanks for explaining them as you go. I am in the same boat as oyu with friends and family. If you mention what is wrong, you are always complainging. If you don't, you must be fine. There is no happy medium. I however, don't have the super supportive husband. He has his days, but they are few and far between. He knows somewhere in his head how I feel most of the time, but he chooses to not think about it. that way, its easier to expect me to do things rather than offer to help. I gave him a copy of a letter in our archives about having a family member with FMS and asked him to read it and talk to me. Well, he didn't, but one day when he was complaining baout some little pain and was acting like he was gonna die, I mentioned how I hurt all the time etc and I go a very sarcastic response that showed that he had read the letter, but it just gave him more fodder to be more jerky and less understanding. I have friends who care, but they don't truly understand. I try not to vent too much ( like this anyway) on here, but its good to have this "fibrofamily" as I call them to understand when you do need to vent. I'll say prayers that you will feel better in the mornings, at least some days-everyone needs a break- and that you will find a job that is more appropriate for you. Take care, From: suzys_moonbeamcreations <suzys_moonbeamcreations@...>Subject: Re: Hello everyone Date: Monday, August 3, 2009, 9:55 PM Thank you so much to everyone....It's hard to communicate in "live" time as I'm on the opposite side of the world and "Down Under" so that makes it even harder - time wise!! You all would be in bed when I'm writing this!! haha.I had a brochure on FMS and gave it to my husband to read...and he was floored that I felt that way! I thought YES! a breakthrough! ! But months and months have rolled by since then and I really think they forget about this and how you're feeling. Of course I'm not going to wake up and tell him how crap I feel...tired, achy, nauseous etc....as it's hard enough to just shake all of that off so I can get ready for work! So as time marches by, they just think that you're ok and back to "normal"!! And as for the comments - you have to "think positive"... .what do I do every day to get me going???? hmmm? So, sometimes it gets to me and I've got no-one who understands what it is I'm really going through (not even my sisters!) so I'm very pleased (and sorry) that I've got you all to dummy(pacifier) spit at!!If I use colloquialisms, I'll try and explain them as I go along...I write to some of my relatives in the States and a couple of friends and they will laugh at some of my "Australianisms" !! I was 4 when I came here...was born in Savannah Georgia! I guess tho, after so many years of being here...I'm pretty much a "dinky di" (genuine)now!I must say...my husband is really the best ever and does so much for me...so why I'm getting all stressed about this - is I've just probably been a bit down over the last couple of weeks. errr. I went for some day surgery and expected to recover in a day...I took 2 days off work to cover this...and ended up having 2 weeks off. I'm back to work now..but it's still not completely better. So, I was feeling a bit anxious about coming back to work on Monday. hmmm rightly so...nothing had changed here at work...still pretty crap. Time for a new job....closer to home! (I drive an hour and half every morning!!) I must admit...while it feels good to offload...I feel pretty guilty too...I rarely do this sort of thing!I'm very pleased to have met so many nice people in just one day!love to all......> > > From: suzys_moonbeamcreat ions <suzys_moonbeamcrea tions@... >> Subject: Hello everyone> > Date: Monday, August 3, 2009, 2:34 AM> > > > > > > My name is and I live in Sydney Australia! > We don't have any support groups for FM here so hence > why I've joined this group. I'm a real newbie...I've > not ever posted anything on a forum before, so you > will have to excuse me if i do something wrong!> > I was diagnosed with FM last year (and I have Insulin > Resistance too). I've been suffering for the past 19 > years with this condition. I constantly visited doctors > and had blood tests every year as the condition just > worsened. The blood tests always came back "just fine" > and the dr would pat me on the back and say "its just > your life style"! What a bunch of crap! Not many people > that I know have been diagnosed with FM...not many doctors > here know about it - let alone believe in it! I changed my > Dr about a year or so ago because I was fed up with visiting> "quacks"!! My current Dr is brilliant. I think half the > battle is finding out what's wrong with you and knowing > that really its not all in your head! Convincing family > that you really do have a problem is a whole new ball game > tho! As you have an "invisible" illness, and because you > still just plod along doing what you've always done - even > though it continually gets harder - they just don't see > it or they forget that you've got it and it's a real thing.> > Anyway...I should probably get down from my soap box now > before I write too many more pages!> > Looking forward to conversing and learning with you all....> > Cheers,> .> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2009 Report Share Posted August 4, 2009 I am with you all, I don't like the side effects of the medications, and they don't really cure they just hold down the symptoms... I say bring on the all natural stuff and keep the doctors at bay as long as possible! Joy From: Suzy D <suzys_moonbeamcreations@...> Sent: Monday, August 3, 2009 10:50:31 PMSubject: Re: Hello everyone Hi Pam,Thank you very much!!I do hope you find a good dr soon. Mine is very good, but they still don't know a lot about it here. I find it a bit hard tho because most things I read is all about the medication being prescribed to "fix" things (well cover it up I suppose) and I really don't like taking medication - I take enough with my insulin resistance and reflux....I do need to discuss my sleep with the dr tho....always waking up tired no matter how much sleep you've had is very wearing at times. I'm probably my own worst enemy though .... I rarely talk about this with anyone and hence why everyone thinks that I'm fine and coping with thing really well....including my family! Its hard to know what to do though because it's a bit of you're dammed if you do and your dammed if you don't! If I tell my family how I'm "really" feeling....you get the response that you're always so negative about your health etc etc and if you just put up and shut up....they think it's all just magically disappeared! But, I do think its easier the latter way! I actually told my husband (he's a very morning person...I'm a night owl...not good at the best of times in the morning!) not to ask me how I am in the morning anymore!! Mornings are probably my worst time! tired...stiff and sore...and 99% of the time nauseous! Then he wants me to eat breakfast before going to work! yeah right....like thats going to work! I do try and shove a bowl of peaches in my mouth before I walk out the door....then when I get to work I can have something else...maybe a bowl of cerial (not that I particuarly like cerial) or some raisin toast....I'm also not a very big eater..so I don't know if that contributes to anything. At lunch time I'll sometimes go an get some pasta for lunch...the girls in the office laugh at me because it will come in a "chinese take away container" and I'll eat half one day and the other half the next! Its a penne pasta with a meat sauce, bechemel sauce and cheese on top - melted. - probably not the healthiest of lunches...but I do this especially on a Tuesday when I know I won't be having much of a dinner that night!Tell me more about yourself...I' d really like to get to know you ladies better! Its nice being able to talk to people who "understand" you!!Take care....susan. Dawson Moonbeam Creations 0412 98 33 44 From: Pam Horne <pamhornecarolina (DOT) rr.com>Sent: Tuesday, 4 August, 2009 12:20:24 AMSubject: Re: Hello everyone Hello , and welcome. So many of us have had similar doctor problems, and I'm so glad you finally found a good doctor. I'm still searching for the right doctor, although my current doc is ok. Please don't worry about writing too much--you can't write too much. This is the place to write it all down, however you feel. We're here to listen. Pam Hello everyone My name is and I live in Sydney Australia! We don't have any support groups for FM here so hence why I've joined this group. I'm a real newbie...I've not ever posted anything on a forum before, so you will have to excuse me if i do something wrong!I was diagnosed with FM last year (and I have Insulin Resistance too). I've been suffering for the past 19 years with this condition. I constantly visited doctors and had blood tests every year as the condition just worsened. The blood tests always came back "just fine" and the dr would pat me on the back and say "its just your life style"! What a bunch of crap! Not many people that I know have been diagnosed with FM...not many doctors here know about it - let alone believe in it! I changed my Dr about a year or so ago because I was fed up with visiting"quacks"!! My current Dr is brilliant. I think half the battle is finding out what's wrong with you and knowing that really its not all in your head! Convincing family that you really do have a problem is a whole new ball game tho! As you have an "invisible" illness, and because you still just plod along doing what you've always done - even though it continually gets harder - they just don't see it or they forget that you've got it and it's a real thing.Anyway...I should probably get down from my soap box now before I write too many more pages!Looking forward to conversing and learning with you all....Cheers,. Access 7 Mail on your mobile. Anytime. Anywhere. Show me how. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2009 Report Share Posted November 26, 2009 She had Dr. Merchant in otology. He is not a pediatric ENT. My daughter is 14 so I wanted her to have a doctor she can stay with for her long-term follow up. He was very kind and explained everything to us very well, but if your son is very young, you will probably want one of the pediatric doctors. Good luck! > > > Who was Ellen's surgeon, if you don't mind me asking? Our son is likely to be having surgery at MEEI in the winter or spring. Thank you, > > cholesteatoma > From: nomarsgirl02129@... > Date: Wed, 25 Nov 2009 19:35:38 +0000 > Subject: Hello everyone > > > > > > > > > > > > > > > > > > > > > > > > > > > > > My daughter Ellen is resting comfortably after having her surgery yesterday. Her c-toma was more extensive than originally thought, so she was in surgery longer than expected. It was a CWD - the doctor said there was no other option. We were lucky he was able to get her on the schedule so soon. The c-toma was growing fast and it would not have been advisable to wait. > > > > There were also some delays in the schedule so it was late when she finished and had to spend the night in the hospital. The doctors and nurses on the pediatric floor at Mass Eye & Ear were wonderful. If you are in New England and need ear or eye surgery, it is definitely the place to go. > > > > She is very tired, as expected and hasn't been able to eat much. She has requested soft foods. I think she's just too tired to chew. > > > > > > > > > > > > > > > > > > > _________________________________________________________________ > Bing brings you maps, menus, and reviews organized in one place. > http://www.bing.com/search?q=restaurants & form=MFESRP & publ=WLHMTAG & crea=TEXT_MFES\ RP_Local_MapsMenu_Resturants_1x1 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2009 Report Share Posted November 26, 2009 Thank you for writing. Our son is young (3 years old) and we have asked Dr. Lee to treat him. I believe he is an otologist, not an ENT, but he seems to specialize in pediatric otology issues. Happy Thanksgiving!cholesteatoma From: nomarsgirl02129@...Date: Thu, 26 Nov 2009 18:09:17 +0000Subject: Re: Hello everyone She had Dr. Merchant in otology. He is not a pediatric ENT. My daughter is 14 so I wanted her to have a doctor she can stay with for her long-term follow up. He was very kind and explained everything to us very well, but if your son is very young, you will probably want one of the pediatric doctors. Good luck! > > > Who was Ellen's surgeon, if you don't mind me asking? Our son is likely to be having surgery at MEEI in the winter or spring. Thank you, > > cholesteatoma > From: nomarsgirl02129@... > Date: Wed, 25 Nov 2009 19:35:38 +0000 > Subject: Hello everyone > > > > > > > > > > > > > > > > > > > > > > > > > > > > > My daughter Ellen is resting comfortably after having her surgery yesterday. Her c-toma was more extensive than originally thought, so she was in surgery longer than expected. It was a CWD - the doctor said there was no other option. We were lucky he was able to get her on the schedule so soon. The c-toma was growing fast and it would not have been advisable to wait. > > > > There were also some delays in the schedule so it was late when she finished and had to spend the night in the hospital. The doctors and nurses on the pediatric floor at Mass Eye & Ear were wonderful. If you are in New England and need ear or eye surgery, it is definitely the place to go. > > > > She is very tired, as expected and hasn't been able to eat much. She has requested soft foods. I think she's just too tired to chew. > > > > > > > > > > > > > > > > > > > __________________________________________________________ > Bing brings you maps, menus, and reviews organized in one place. > http://www.bing.com/search?q=restaurants & form=MFESRP & publ=WLHMTAG & crea=TEXT_MFESRP_Local_MapsMenu_Resturants_1x1 > Bing brings you maps, menus, and reviews organized in one place. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 Shyann,ABSOLUTELY!!! Here is what I have experienced and heard others deal with...The acid that comes back up your stomach and into your little pouch irritates your throat, causing that cough/tickle. You should talk to Dr. Aceves office to get their "official" thoughts on this, but I would start a PPI medicine daily and see if that helps. Once the acid is under control, it should help this issue. I had MAJOR acid burning the back of my throat and started Aciphex, I tried Pilosec OTC but it gave me diareeha, Aciphex works great but is more expensive. Now the acid is gone but if I forget my Aciphex a couple of days in a row that cough/tickle thing starts up and "reminds" me to take it Good luck and let us know how you are doing. Cyrena DOB: 1/19/07240/133/150start/now/goalFrom: shyann_27 <shyann_27@...> Sent: Sat, January 16, 2010 6:45:16 PMSubject: Hello Everyone It's been over 4 years since my band has been put in. I was wondering if anyone here has had a problem with a cough/tickle in their throat. Can the band have a hand in this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2010 Report Share Posted January 20, 2010 I finally got into see my Doctor here in Montana and he said that he didn't think it was the refulx, because all I have is the tickle/cough so he wants me to see a Pulmonary doctor. gusse we will see what happens. > > It's been over 4 years since my band has been put in. I was wondering if anyone here has had a problem with a cough/tickle in their throat. Can the band have a hand in this? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2010 Report Share Posted January 21, 2010 I had a very bad case of the tickle cough several years before my surgery. Went to several different doctors, had all kind of test done to make sure it was not something really serious.. Guess what cured the cough??? Nexium. I did not even realize that I was having any acid reflux, because it was happening at night when I was asleep. I have not had any more problems with coughing since then. So if I were you, I think I would atleast give the Nexium a try and see what happens. Lavanda From: shyann_27 <shyann_27@...>Subject: Re: Hello Everyone Date: Wednesday, January 20, 2010, 8:21 PM I finally got into see my Doctor here in Montana and he said that he didn't think it was the refulx, because all I have is the tickle/cough so he wants me to see a Pulmonary doctor. gusse we will see what happens. >> It's been over 4 years since my band has been put in. I was wondering if anyone here has had a problem with a cough/tickle in their throat. Can the band have a hand in this?> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 >it wont budge,my doctors reaction is " you never saw a fat person come out of belsen! " what do you say to a doctor like that! I am also diabetic so all in all falling to bits! I can think of quite a few things, but nothing I can type here. Have you tried writing down everything you've been eating to show him? Can you get referred to someone 'better' who knows more about the topic? are you on insulin too? if so i gather this makes it harder to lose weight. a friends mother lost more weight on something called 'byetta' - apparently they only give it to some diabetics tho. chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 hi there, welcome to the group, you are in the right place. I am sure Sheila and the gang will advise, but just a note about orlistat. i was on this for about 18 months and it was quite succesfull, but do some research, as it flushes some vitamins from your system. if i remember correctly, it is d and k. The long term studies done in the US show that even when people take a supplement they are still deficient. As you may know , hypo people may already be defficient, and may (usually) require extra supplements. as for your Doctor, he sounds as good as my endo, who ,when I asked why I was still so tired asked " well do you want us to keep testing,keep looking? it could be cancer, do you want it to be cancer?! " keep on learning jan > > hi there all, > I have been a member for a few weeks now,but have not contributed as yet, just been looking and learning,my doctor says that my thyroxine dose is correct for me.....even after doing blood tests which I had to ask for...I find it soooooo difficult to lose weight even after joining weight watchers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2010 Report Share Posted February 28, 2010 Hi, The only people to come out of Belsen were the ones who were super fit when they went in. If you were on a starvation diet with no thyroid medication, you would probably die, as so many of them did. Sack this doctor, he is an idiot, If the thyroxine dose was correct for you, you would be well and he would be a good doctor, but sadly he has failed. Grrrrrrr!! x > >my doctor says that my thyroxine dose is correct for me.... " you never saw a fat person come out of belsen! " what do you say to a doctor like that! I am also diabetic so all in all falling to bits! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2010 Report Share Posted March 1, 2010 Hi grannyof 5 If a doctor said to me " You never saw a fat person come out of Belsen " I would report him to the Head of Practice and to my local Primary Care Trust and tell them I want to be registered with another doctor who actually cares about his patients. Such remarks by a doctor are atrocious. This is the sort of remark that gives doctors a very bad name. There are some excellent caring doctors out there believe me. You will never get your health back with him. Tell us a little more about yourself. How long since you were diagnosed and when was your levothyroxine dose last increased - also what dose are you on right now. Can you get the thyroid function test results from your doctor, together with the reference range for each of the tests that were done and post them here so we can check them out. Also, when you still have symptoms and nothing is getting better and you are on thyroid hormone replacement, we have to look to see if you could be suffering from one of the many associated conditions that go along with being hypothyroid. The first thing I would do is write to this doctor and send a copy of your letter to the Head of Practice. First, list all of your symptoms and then list your 'signs' Signs are things that can be seen, and which any good doctor would notice by looking at you. You can check these out here http://www.tpa-uk.org.uk/symptoms_hypot.php Take your basal temperature for 4 or 5 days before you get out of bed and list these. Normal temperature is 98.6 degrees F. If yours is 97.8 (and it could be much less), this is an indication your metabolism isn't functioning as it should. Another indication your thyroid hormone replacement isn't working. Next, tell your doctor that you need some specific blood tests to check if any of them are low in the reference range. If any are low, they need supplementing because your thyroid hormone replacement will not be getting properly absorbed into your cells. These are ferritin (stored iron), vitamin B12, vitamin D3, magnesium, folate, copper and zinc. Also, ask in your letter for a FULL thyroid function test which is thyroid stimulating hormone (TSH), free T3 (fT3), free T4 (fT4) and Reverse T3 (rT3). I would also tell him here that you know that the thyroid tests that are done ONLY test the function of the thyroid GLAND to tell just how much thyroid hormone is being secreted by the thyroid gland, but this test does NOT tell whether the thyroid hormone is getting absorbed into the cells. Neither do these test tell the doctor whether the thyroxine (which is a mainly INACTIVE hormone) is actually being converted through the liver, kidneys, brain and other thyroid hormone receptors throughout the body into the ACTICE thyroid hormone T3. Next, write that you are no longer prepared to put up with these symptoms and you now want a second opinion, to which you are entitled and wish your doctor to refer you to a thyroid specialist. You do not have to see any specialist at your local hospital or see the one your GP recommends - you can choose your own. To this end, I will send you a list of doctors that have been recommended by my members. Last, ask for your letter of requests to be placed into your medical notes. Doctors take more notice of patients requests that have been put in writing because they know such requests are on record. At the end of your letter, write " Cc: Head of Practice " and get it in the post. Let us know the outcome, and good luck. Big (((HUGS))) - Sheila i there all, I have been a member for a few weeks now,but have not contributed as yet, just been looking and learning,my doctor says that my thyroxine dose is correct for me.....even after doing blood tests which I had to ask for...I find it soooooo difficult to lose weight even after joining weight watchers and being prescribed orlistat...as the doctor says I am clinically obese 14st 91b I eat smaller meals,do yoga daily but still it wont budge,my doctors reaction is " you never saw a fat person come out of belsen! " what do you say to a doctor like that! I am also diabetic so all in all falling to bits! No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.435 / Virus Database: 271.1.1/2712 - Release Date: 02/27/10 19:34:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2010 Report Share Posted March 1, 2010 Hi Granny5 This is appaling talk, how dare he bring Belsen into it. Let me know if he is in the Yorkshire area and I will go round and bop him on the nose!! If only I had the energy! Just reminds me of the tiny nurse at the IBS clinic who weighed me in front of another patient. She proceded to shout out 100kg and roll her eyes skyward. I snapped yes thats what happens when your thyroid packs up, you put on four stone. Stick with us and we will get you sorted, Luv Stephie > joining weight watchers and being prescribed orlistat...as the doctor says I am clinically obese 14st 91b I eat smaller meals,do yoga daily but still it wont budge,my doctors reaction is " you never saw a fat person come out of belsen! " what do you say to a doctor like that! I am also diabetic so all in all falling to bits! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2010 Report Share Posted March 1, 2010 Unfortunately grannyof5 (a name would be nice), presumably you have type 2 diabetes, which is a severe case of insulin resistance. Are you on insulin or just tablets? Either way it means you need more insulin than normal and that also means weight problems Mostly the people in Belsen died. Perhaps he should think of them rather than those who did survive. A lot of those who did come out of Belsen soon died through illness they were not strong enough to fight. And of those that did not die a lot suffered for the rest of their lives with serious physical conditions. What does this doctor think Belsen was, a health farm for people to lose weight. You should ask him then if he recommends anorexia as the answer because that is what they had in Belsen. Lilian I find it soooooo difficult to lose weight even after joining weight watchers and being prescribed orlistat...as the doctor says I am clinically obese 14st 91b I eat smaller meals,do yoga daily but still it wont budge,my doctors reaction is "you never saw a fat person come out of belsen!"what do you say to a doctor like that! I am also diabetic so all in all falling to bits! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2010 Report Share Posted July 22, 2010 , Welcome to the forum and well done for doing your first scary post! We only have vast amounts of knowledge because we share what we know. Keep reading and soon you'll be answering questions too! I too have always been fairly optimistic and it took a long long time before I realised that my doctor didn't actually know what he was doing, so I started to read up, learn and get myself feeling better. How was your Hyper thyroid phase treated? If you have high antibodies you have Hashimotos disease. Sometimes with this, the thyroid puts out extra hormones when it is under attack, making you hyper. This also happened to me, but eventually the thyroid is overwhelmed and fails. (can take years) If you're still feeling rubbish with a good level of T4 in your blood, then the chances are that it is either not converting to T3, hence the raised TSH, or you have so much unused T4 sitting around that you have a reverse T3 problem so the t3 cannot get into the cells. Unused T4 is thught to cause the aches and pains. Are you taking selenuim to help with conversion from the storage hormone T4 to the active hormone T3? First off I'd be looking to get tested to find out your free T3 levels. Lab 21 or Genova do private tests A Free t3 test is less than £20. I'd also consider having a saliva test to see what state your adrenals are in, If you'r thyroid has been struggling they will have been propping you up. (Genova £60, with discount. details in the files) Hope this is a start. It's all a jigsaw and you have to work out what is causing the problem. The docs will have you believe it's as simple as just taking one tablet a day! if only Many on here have regained their health, it is possible! xx > > Hi everyone, this is my first post. Please be gentle. I have been reading your threads for some time but in honesty I am ignorant to the vast amount of knowledge that you all seem to share Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2010 Report Share Posted July 23, 2010 Hi tigi, Welcome to the forum! A classic story I'm afraid. As you have probably worked out thyroxine is T4 which is almost inactive and has to convert to T3 to do any good. Unfortunatley FT3 is rarely tested so it can be difficult to find out if you can convert T4 to t3 unless you opt for private testing- see files. you can't have a problem if they don't test for it can you?!!! Be aware that most endocrinologists are diabetes experts and know little/less about thyroid issues. Sheila has a list of some who know more than most if necassary, but many will be private. I'm still trying to convince my GP to take over prescribing from my Private specialist, but no go so far. Hopefully we will meet in Birmingham as I'll be there too. > thyroid treatment > From: ginasf@...> Date: Thu, 22 Jul 2010 17:29:49 +0000> Subject: Hello Everyone> > Hi everyone, this is my first post. Please be gentle. I have been reading your threads for some time but in honesty I am ignorant to the vast amount of knowledge that you all seem to share...but it is my intention to get there to assist with my own problem and that of the many others who only seem to have a slightly sub standard quality of life. Firstly please let me say how grateful I am that I don't have a terminal illness. I am forever the optimist and hope one day that my meds will be tweeked. I was originally diagnosed with hyper thyroid which was treated and to be honest I haven't felt as well as that eversince. I then went on the Thyroid Register and was found to have hypo thyroid and have been on Thyroxine ever since (1996) I know I have got Antibodies. I am presently on 125mcg's, my hair is getting thinner and thinner and I have no spare energy (I am very fortunate that I am quite active but towards the end of the day I can't be bothered to go out socially - but I get round this by taking a nap when needed). I have a very understanding husband if you know what I mean! Anyway my last results were TSH 0.42 (0.35 - 5.5) T4 20.7 (9 - 24). BUT I STILL FEEL RUBBISH AND MY HAIR IS GETTING THINNER AND THINNER AND COMING OUT. MY NAILS WON'T GROW ANYMORE. MY EYELASHES ARE THINNER! But I do have a lovely family and I enjoy my job so I am luckier than most. I am hoping to be referred to a Specialist when my Antibody test comes back and hopefully someone may give me the luxury of trialling some T3 as well as T4. To be honest I haven't been 100% since taking Thyroxine. I got slight IBS, I had a shocking Perimenopause and fatigue, aching joints I think the only thing that I haven't suffered is depression but I am as I say forever the optimist and I am resilient. I am so looking forward to the meeting in Birmingham and I hope I haven't frightened you all off. Please let me know how you managed to get treated by these 'proper thyroid specialist'> Many thanks > > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> > Quote Link to comment Share on other sites More sharing options...
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