Just Wondering?

[Guest guest]

I'm hoping you can stay on with the group. We are facing surgery sometime down the line and I would love to be able to talk with someone that has gone through it. Patty, mom of Isabella, 2 years old, in 6th scoli cast (Rochester) & mom to & EvanFrom: Tammy <tam_tammy20@...>infantile scoliosis treatment Sent: Wed, August 4, 2010 9:44:08 PMSubject: Just wondering?

I was just wondering if I can continue to be in this group even though my son will not ever see a cast again for infantile scoliosis? I have written on here a few times before when he was going through the casting process. But now that he has growing rods at 3yrs old I was just making sure if its okay if I stay on here. I enjoy reading the progress that a lot of the children are making with the casting. And I would like to be able to help someone if I have an answer to a question they ask. If not thats fine I understand.

My son actually got rods in on May 25th. So he is no longer a candidate for casting b/c the rods are making him straight. And they have done a wonderful job on helping correct his curve.

[Guest guest]

Hi, Tammy, I am so glad I read your post this morning. I was about to discontinue my membership in the group because we just got word last week that my 9 year old will be operated on for her first growth rods in the next little while at Boston Children's Hospital. (She had been involved in the serial casting program at Shriners Erie from the age of 5 to buy us time as she is very tiny. I sure do wish I had persisted with my internet searches 8 years ago and we'd caught her curve when she was young enough. I am so impressed with the efforts of this group to get the word out. Our doctor in Boston certainly is becoming an advocate of casting, and I am encouraged to hear the procedure is now starting at Children's. I know he had been trying to

get someone to begin doing the procedure there.) Anyway, any advice you have about your experience with the operation would be appreciated. How long was the operation itself? We were told 4-5 days in the hospital, about a 6 week recovery period. How active was your son able to be during the recovery time? Are there any questions we should ask the doctor? (The decision is new, and we will be getting a chance to sit down with the doctor in a week or so.) Thanks so much!From: Tammy <tam_tammy20@...>To:

infantile scoliosis treatment Sent: Wed, August 4, 2010 9:44:08 PMSubject: Just wondering?

I was just wondering if I can continue to be in this group even though my son will not ever see a cast again for infantile scoliosis? I have written on here a few times before when he was going through the casting process. But now that he has growing rods at 3yrs old I was just making sure if its okay if I stay on here. I enjoy reading the progress that a lot of the children are making with the casting. And I would like to be able to help someone if I have an answer to a question they ask. If not thats fine I understand.

My son actually got rods in on May 25th. So he is no longer a candidate for casting b/c the rods are making him straight. And they have done a wonderful job on helping correct his curve.

[Guest guest]

my son's surgery lasted 4 hrs. We spent 8 weeks in traction before

the surgery. But if your child isn't going through traction then you will

probably just do surgery. The surgery wasn't as bad as I was expecting. We

spent 5 days after surgery in the hospital b/c of the surgery. We spent a few

more days waiting for his brace. He has to wear a brace for 6 months up until

his first lengthening. Then the brace comes off. We went back for his check up

on August 3rd and the doctor said he looked great.

He does pretty much anything he wants. He is very straight and he doesn't

bother him at all. He's able to play and do everything. A few restrictions

like he has to watch twisting and no wrestling with his older brothers. But

other then that he is doing everything he did before. He doesn't let it bother

him.

>

> Hi, Tammy,

> I am so glad I read your post this morning. I was about to discontinue my

> membership in the group because we just got word last week that my 9 year old

> will be operated on for her first growth rods in the next little while at

Boston

> Children's Hospital. (She had been involved in the serial casting program at

> Shriners Erie from the age of 5 to buy us time as she is very tiny. I sure do

> wish I had persisted with my internet searches 8 years ago and we'd caught her

> curve when she was young enough. I am so impressed with the efforts of this

> group to get the word out. Our doctor in Boston certainly is becoming an

> advocate of casting, and I am encouraged to hear the procedure is now starting

> at Children's. I know he had been trying to get someone to begin doing the

> procedure there.)

> Anyway, any advice you have about your experience with the operation would

be

> appreciated. How long was the operation itself? We were told 4-5 days in the

> hospital, about a 6 week recovery period. How active was your son able to be

> during the recovery time? Are there any questions we should ask the doctor?

> (The decision is new, and we will be getting a chance to sit down with the

> doctor in a week or so.) Thanks so much!

>

>

>

> ________________________________

> From: Tammy <tam_tammy20@...>

> infantile scoliosis treatment

> Sent: Wed, August 4, 2010 9:44:08 PM

> Subject: Just wondering?

>

>

> I was just wondering if I can continue to be in this group even though my son

> will not ever see a cast again for infantile scoliosis? I have written on

here

> a few times before when he was going through the casting process. But now

that

> he has growing rods at 3yrs old I was just making sure if its okay if I stay

on

> here. I enjoy reading the progress that a lot of the children are making with

> the casting. And I would like to be able to help someone if I have an answer

to

> a question they ask. If not thats fine I understand.

>

>

> My son actually got rods in on May 25th. So he is no longer a candidate for

> casting b/c the rods are making him straight. And they have done a wonderful

> job on helping correct his curve.

>

[Guest guest]

I am not the group moderator, but I can not imagine a reason why you wouldn't be able to continue on this group. We all are going down different roads while on this journey, but we can all relate in some way. Your experiences with surgery will for sure help someone else going through the same thing.

I am sure will chime in and totally agree.

Please continue to share your knowledge of surgery or anything else on your journey with Infantile Scoliosis. We all need you here!!!!

We are all here to SUPPORT each other!!!!!!!! TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, TexasSeries of 6 casts for 14 months followed by bracing since September 2007You can read 's story at.... http://www.infantilescoliosis.org/stories.html

From: christine bresnahan <bresrock@...>infantile scoliosis treatment Sent: Thu, August 5, 2010 6:09:07 AMSubject: Re: Just wondering?

Hi, Tammy,

I am so glad I read your post this morning. I was about to discontinue my membership in the group because we just got word last week that my 9 year old will be operated on for her first growth rods in the next little while at Boston Children's Hospital. (She had been involved in the serial casting program at Shriners Erie from the age of 5 to buy us time as she is very tiny. I sure do wish I had persisted with my internet searches 8 years ago and we'd caught her curve when she was young enough. I am so impressed with the efforts of this group to get the word out. Our doctor in Boston certainly is becoming an advocate of casting, and I am encouraged to hear the procedure is now starting at Children's. I know he had been trying to get someone to begin doing the procedure there.)

Anyway, any advice you have about your experience with the operation would be appreciated. How long was the operation itself? We were told 4-5 days in the hospital, about a 6 week recovery period. How active was your son able to be during the recovery time? Are there any questions we should ask the doctor? (The decision is new, and we will be getting a chance to sit down with the doctor in a week or so.) Thanks so much!

From: Tammy <tam_tammy20>infantile scoliosis treatment @groups. comSent: Wed, August 4, 2010 9:44:08 PMSubject: [infantile_scoliosi s] Just wondering?

I was just wondering if I can continue to be in this group even though my son will not ever see a cast again for infantile scoliosis? I have written on here a few times before when he was going through the casting process. But now that he has growing rods at 3yrs old I was just making sure if its okay if I stay on here. I enjoy reading the progress that a lot of the children are making with the casting. And I would like to be able to help someone if I have an answer to a question they ask. If not thats fine I understand. My son actually got rods in on May 25th. So he is no longer a candidate for casting b/c the rods are making him straight. And they have done a wonderful job on helping correct his curve.

[Guest guest]

I am not the group moderator, but I can not imagine a reason why you wouldn't be able to continue on this group. We all are going down different roads while on this journey, but we can all relate in some way. Your experiences with surgery will for sure help someone else going through the same thing.

I am sure will chime in and totally agree.

Please continue to share your knowledge of surgery or anything else on your journey with Infantile Scoliosis. We all need you here!!!!

We are all here to SUPPORT each other!!!!!!!! TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, TexasSeries of 6 casts for 14 months followed by bracing since September 2007You can read 's story at.... http://www.infantilescoliosis.org/stories.html

From: christine bresnahan <bresrock@...>infantile scoliosis treatment Sent: Thu, August 5, 2010 6:09:07 AMSubject: Re: Just wondering?

Hi, Tammy,

I am so glad I read your post this morning. I was about to discontinue my membership in the group because we just got word last week that my 9 year old will be operated on for her first growth rods in the next little while at Boston Children's Hospital. (She had been involved in the serial casting program at Shriners Erie from the age of 5 to buy us time as she is very tiny. I sure do wish I had persisted with my internet searches 8 years ago and we'd caught her curve when she was young enough. I am so impressed with the efforts of this group to get the word out. Our doctor in Boston certainly is becoming an advocate of casting, and I am encouraged to hear the procedure is now starting at Children's. I know he had been trying to get someone to begin doing the procedure there.)

Anyway, any advice you have about your experience with the operation would be appreciated. How long was the operation itself? We were told 4-5 days in the hospital, about a 6 week recovery period. How active was your son able to be during the recovery time? Are there any questions we should ask the doctor? (The decision is new, and we will be getting a chance to sit down with the doctor in a week or so.) Thanks so much!

From: Tammy <tam_tammy20>infantile scoliosis treatment @groups. comSent: Wed, August 4, 2010 9:44:08 PMSubject: [infantile_scoliosi s] Just wondering?

I was just wondering if I can continue to be in this group even though my son will not ever see a cast again for infantile scoliosis? I have written on here a few times before when he was going through the casting process. But now that he has growing rods at 3yrs old I was just making sure if its okay if I stay on here. I enjoy reading the progress that a lot of the children are making with the casting. And I would like to be able to help someone if I have an answer to a question they ask. If not thats fine I understand. My son actually got rods in on May 25th. So he is no longer a candidate for casting b/c the rods are making him straight. And they have done a wonderful job on helping correct his curve.

[Guest guest]

YES!!! Please don’t leave. My daughter Liv had

casts, braces, halos, rods, etc……We are here to discuss all treatment

modalities and want and need you to be on CAST as we can all learn from each others

experiences…Im glad your son is doing well and hope to get to know you

and your son more.

Sincerely,

HRH

()

From:

infantile scoliosis treatment

[mailto:infantile scoliosis treatment ] On Behalf Of Tammy

Sent: Wednesday, August 04, 2010 7:44 PM

infantile scoliosis treatment

Subject: Just wondering?

I was just wondering if I can continue to be in

this group even though my son will not ever see a cast again for infantile

scoliosis? I have written on here a few times before when he was going through

the casting process. But now that he has growing rods at 3yrs old I was just

making sure if its okay if I stay on here. I enjoy reading the progress that a

lot of the children are making with the casting. And I would like to be able to

help someone if I have an answer to a question they ask. If not thats fine I

understand.

My son actually got rods in on May 25th. So he is no longer a candidate for

casting b/c the rods are making him straight. And they have done a wonderful

job on helping correct his curve.

[Guest guest]

I would say "of course!" Surgery is a very real possibility for some our kiddos in the future and parents who are seasoned in that leg of this journey can offer lots of insight and support. I hope that you will remain on the posts....- Noelle's mommy, 3 1/2 years oldRochester NYCasted 8 times for 1 1/2 years9 months in braceRegressed and currently in cast 9reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

From: Tammy <tam_tammy20@...>Subject: Just wondering?infantile scoliosis treatment Date: Thursday, August 5, 2010, 1:44 AM

I was just wondering if I can continue to be in this group even though my son will not ever see a cast again for infantile scoliosis? I have written on here a few times before when he was going through the casting process. But now that he has growing rods at 3yrs old I was just making sure if its okay if I stay on here. I enjoy reading the progress that a lot of the children are making with the casting. And I would like to be able to help someone if I have an answer to a question they ask. If not thats fine I understand. My son actually got rods in on May 25th. So he is no longer a candidate for casting b/c the rods are making him straight. And they have done a wonderful job on helping correct his curve.

[Guest guest]

Yeah Tammy! So good to hear he is doing well! We were there July 27, I hate we missed each other. When do you go again--we will be up next week I hope to pick up the new brace! and JimmyMommy and daddy to Grace, 10, Tryston, 5Drue, 1, out of cast #213* out of cast, down from 26*, started at 40*In first braceSt. Louis Shriners Hospital

From: Tammy <tam_tammy20@...>Subject: Re: Just wondering?infantile scoliosis treatment Date: Thursday, August 5, 2010, 9:11 AM

my son's surgery lasted 4 hrs. We spent 8 weeks in traction before the surgery. But if your child isn't going through traction then you will probably just do surgery. The surgery wasn't as bad as I was expecting. We spent 5 days after surgery in the hospital b/c of the surgery. We spent a few more days waiting for his brace. He has to wear a brace for 6 months up until his first lengthening. Then the brace comes off. We went back for his check up on August 3rd and the doctor said he looked great. He does pretty much anything he wants. He is very straight and he doesn't bother him at all. He's able to play and do everything. A few restrictions like he has to watch twisting and no wrestling with his older brothers. But other then that he is doing everything he did before. He doesn't let it bother him. >> Hi, Tammy,> I am so glad I read your post this morning. I was about to discontinue my > membership in the group because we just got word last week that my 9 year old > will be operated on for her first growth rods in the next little while at Boston > Children's Hospital. (She had been involved in the serial casting program at > Shriners Erie from the age of 5 to buy us time as she is very tiny. I sure do > wish I had persisted with my internet searches 8 years ago and we'd caught her > curve when she was young enough. I am so impressed with the efforts of this > group to get the word out. Our doctor in Boston certainly is becoming an > advocate of casting, and I am encouraged to hear the procedure is now starting

> at Children's. I know he had been trying to get someone to begin doing the > procedure there.) > Anyway, any advice you have about your experience with the operation would be > appreciated. How long was the operation itself? We were told 4-5 days in the > hospital, about a 6 week recovery period. How active was your son able to be > during the recovery time? Are there any questions we should ask the doctor? > (The decision is new, and we will be getting a chance to sit down with the > doctor in a week or so.) Thanks so much!> > > > ________________________________> From: Tammy <tam_tammy20@...>> infantile scoliosis treatment > Sent: Wed, August 4, 2010

9:44:08 PM> Subject: Just wondering?> > > I was just wondering if I can continue to be in this group even though my son > will not ever see a cast again for infantile scoliosis? I have written on here > a few times before when he was going through the casting process. But now that > he has growing rods at 3yrs old I was just making sure if its okay if I stay on > here. I enjoy reading the progress that a lot of the children are making with > the casting. And I would like to be able to help someone if I have an answer to > a question they ask. If not thats fine I understand. > > > My son actually got rods in on May 25th. So he is no longer a candidate for > casting b/c the rods are making him straight. And they have done a wonderful > job on helping correct his curve.>

[Guest guest]

Ok Everyone,

I have been researching this man name Lloyd - Teri and Trudi know of him, and maybe many more of you.

I have also been watching his video's on you Youtube. A lot of damage that he claims interferon is causing during and after treatment, is well know and documented throughout our medical society - right.

So, I guess my question is, rather anyone can give a direct answer or maybe it is just simply to diverse.

But, if the natural therapy was approved and covered by our insurance companies, would we choose to go this route, rather than suffer the lasting or ongoing affects of interferon.

I personally, can tell you that had I had access to natural through an insurance company - I would go that rate for sure. Rather than deal with the affects that I suffered during TX, and many affects that are still ongoing.

For example, I have severe brain fog, and loss of memory. I am an intelligent and educated woman, however, I don't have near the vocabulary as I once did - I simply can't remember words. Yes it was real difficult while on the chemo, but is still ongoing.

I still itch like crazy - it never stopped.

I am really starting to feel like the medical society, the pharmaceutical companies, and the insurance companies are all in on huge conspiracy.

Comical as it may seem - but, the medical documentation speaks volumes.

I don't understand why the medical society won't back such natural remedies with no sides, and the FDA approve it..

I really think anyone getting ready to start treatment - should at least have the option - not to mention, that the doctors never tell us exactly the damage the interferon can do to us. The damage on the brain, and nervous system alone is phenomenal.

Ok - SO ANY AND ALL OPINIONS WANTED AND APPRECIATED HERE ON THIS...

Hugs and prayers,

[Guest guest]

Oh , what a can of worms you've opened!Don has been kind enough to put a PDF of my book in the library for free download by anyone here. I wrote this book on and after treatment with interferon and ribavirin.I speak to the idea of having held hep-C at bay for several years with supplements and vitamins. However, if it was held at bay by that, it was only controlled, not cured.In my book, I also mention that I will never do the treatment again. Honestly, a few years after the passion of that statement, I don't know what I would do if I re-contacted.However, I do know that I would check things out very carefully before signing up for the treatment again. I realize there are many many cures that have been available in nature since the beginning of time, and we don't know more than a small percentage of what can be done with the natural resources available to us and the power of our mind, our energy. That's only my opinion, please!That's the long answer, I guess, to your question. You have very valid points. One of my most frustrating reads was Trudeau's "Cures THEY don't want you to know about", 'cause I felt he was spot on in too many instances to be ignored, but he was.But remember, when I was diagnosed the last time, I felt my options had narrowed to ignoring it and dying, doing the establishment's treatment, or sign up for a donor list and hope.Please, no one that reads this take it I don't appreciate the opportunity to do treatment. It did the one thing I wasn't sure how to do any other way, it helped me slay the dragon. I know the established treatment has long-reaching side effects but then again, so does hep-c, eh?We've all gotta choose our battles. Some of us, myself included, decided to fight the battle with the establishments cure. I'm still of the opinion that there's no one answer to this Gordian Knot, but we've all got to answer it in our own way for where we're at, at that moment. I completely support everyone on this site, whether they're waiting for treatment, taking the 'alternative medicine' route, or fighting it one step, one shot at a time. I'll stand with each and every one of you, any day of the week.Wow, kick me off my soapbox now...SteveLife is much more fun when thought of as a scavenger hunt as opposed to a surprise party. Jimmy Buffett [ ] Just Wondering?

Ok Everyone,

I have been researching this man name Lloyd - Teri and Trudi know of him, and maybe many more of you.

I have also been watching his video's on you Youtube. A lot of damage that he claims interferon is causing during and after treatment, is well know and documented throughout our medical society - right.

So, I guess my question is, rather anyone can give a direct answer or maybe it is just simply to diverse.

But, if the natural therapy was approved and covered by our insurance companies, would we choose to go this route, rather than suffer the lasting or ongoing affects of interferon.

I personally, can tell you that had I had access to natural through an insurance company - I would go that rate for sure. Rather than deal with the affects that I suffered during TX, and many affects that are still ongoing.

For example, I have severe brain fog, and loss of memory. I am an intelligent and educated woman, however, I don't have near the vocabulary as I once did - I simply can't remember words. Yes it was real difficult while on the chemo, but is still ongoing.

I still itch like crazy - it never stopped.

I am really starting to feel like the medical society, the pharmaceutical companies, and the insurance companies are all in on huge conspiracy.

Comical as it may seem - but, the medical documentation speaks volumes.

I don't understand why the medical society won't back such natural remedies with no sides, and the FDA approve it..

I really think anyone getting ready to start treatment - should at least have the option - not to mention, that the doctors never tell us exactly the damage the interferon can do to us. The damage on the brain, and nervous system alone is phenomenal.

Ok - SO ANY AND ALL OPINIONS WANTED AND APPRECIATED HERE ON THIS...

Hugs and prayers,

[Guest guest]

Steve,

I do realize I opened up a can of worms, and by no means did I mean to step on any toes, especially those that are on treatment!!!!

I guess I just assumed that most on this sight had the chance to look at the natural remedies Lloyds concerns with interferon.

I did treatment myself, and I am most grateful that I got to treat when and for as long as I did, however, I just have seen so much astounding information and documentation on how bad interferon can be for us - i'm just wondering if there is anything we can do to help push the FDA or the medical society, or gov, whoever it is, into researching all of this further...

I am really sorry if I offended anyone, I am sometimes really good at just simply saying what I feel, especially if I am passionate about it, or if it appears to be for the public's better/good.

And your so right about how we must all fight our own battles so to speak, and choose the best means for us. I too had given up after my treatment, and just settled for trying to forget it, and living life, putting it God's hands, and dying when he calls my number.

However, it really isn't something we can forget, at least not me anyway, I am reminded daily with the football feeling in my upper right quadrant, from inflammation. And I am reminded when I try and have a normal conversation with someone, more embarrassing, someone that I have just met, and I can't remember the word I am normally use to saying.. And the constant fatigue...

You know what I mean....

I will look for your book on the sight, I had no idea you had one there, I really need to dig around the sight more. I haven't because I just go to my inbox to correspond with everyone....

By the way, is there any kind of chat that this group goes to?

Ok well, thanks for the info Steve, I am anxious to read the info now...

I hope I didn't offend anyone and if I did please accept my sincere apologies...

Hugs, prayers, and May God bless you all,

In a message dated 10/25/2010 10:01:56 P.M. Central Daylight Time, schandler21@... writes:

Oh , what a can of worms you've opened!Don has been kind enough to put a PDF of my book in the library for free download by anyone here. I wrote this book on and after treatment with interferon and ribavirin.I speak to the idea of having held hep-C at bay for several years with supplements and vitamins. However, if it was held at bay by that, it was only controlled, not cured.In my book, I also mention that I will never do the treatment again. Honestly, a few years after the passion of that statement, I don't know what I would do if I re-contacted.However, I do know that I would check things out very carefully before signing up for the treatment again. I realize there are many many cures that have been available in nature since the beginning of time, and we don't know more than a small percentage of what can be done with the natural resources av ailable to us and the power of our mind, our energy. That's only my opinion, please!That's the long answer, I guess, to your question. You have very valid points. One of my most frustrating reads was Trudeau's "Cures THEY don't want you to know about", 'cause I felt he was spot on in too many instances to be ignored, but he was.But remember, when I was diagnosed the last time, I felt my options had narrowed to ignoring it and dying, doing the establishment's treatment, or sign up for a donor list and hope.Please, no one that reads this take it I don't appreciate the opportunity to do treatment. It did the one thing I wasn't sure how to do any other way, it helped me slay the dragon. I know the established treatment has long-reaching side effects but then again, so does hep-c, eh?We've all gotta choose our battles. Some of us, myself included, decided to fight the battle with the establishments cure. I'm still of the opinion that there's no one answer to this Gordian Knot, but we've all got to answer it in our own way for where we're at, at that moment. I completely support everyone on this site, whether they're waiting for treatment, taking the 'alternative medicine' route, or fighting it one step, one shot at a time. I'll stand with each and every one of you, any day of the week.Wow, kick me off my soapbox now...SteveLife is much more fun when thought of as a scavenger hunt as opposed to a surprise party. Jimmy Buffett [ ] Just Wondering?

Ok Everyone,

I have been researching this man name Lloyd - Teri and Trudi know of him, and maybe many more of you.

I have also been watching his video's on you Youtube. A lot of damage that he claims interferon is causing during and after treatment, is well know and documented throughout our medical society - right.

So, I guess my question is, rather anyone can give a direct answer or maybe it is just simply to diverse.

But, if the natural therapy was approved and covered by our insurance companies, would we choose to go this route, rather than suffer the lasting or ongoing affects of interferon.

I personally, can tell you that had I had access to natural through an insurance company - I would go that rate for sure. Rather than deal with the affects that I suffered during TX, and many affects that are still ongoing.

For example, I have severe brain fog, and loss of memory. I am an intelligent and educated woman, however, I don't have near the vocabulary as I once did - I simply can't remember words. Yes it was real difficult while on the chemo, but is still ongoing.

I still itch like crazy - it never stopped.

I am really starting to feel like the medical society, the pharmaceutical companies, and the insurance companies are all in on huge conspiracy.

Comical as it may seem - but, the medical documentation speaks volumes.

I don't understand why the medical society won't back such natural remedies with no sides, and the FDA approve it..

I really think anyone getting ready to start treatment - should at least have the option - not to mention, that the doctors never tell us exactly the damage the interferon can do to us. The damage on the brain, and nervous system alone is phenomenal.

Ok - SO ANY AND ALL OPINIONS WANTED AND APPRECIATED HERE ON THIS...

Hugs and prayers,

[Guest guest]

Nobody is offended...  we talk about these kinds of things here once in awhile..  Nobody is going to make you stand in the corner don't worry!

I am convinced that I have Fibromyalgia because of the Interfuron and Ribavirin.  Can't convince me otherwise.  However, it's a small trade off.  Fibromyalgia won't do additional damage like Hep C does.

Hugs,

TeriOn Mon, Oct 25, 2010 at 10:20 PM, <jessegrace514@...> wrote:

 

Steve,

 

    I do realize I opened up a can of worms, and by no means did I mean to step on any toes, especially those that are on treatment!!!! 

I guess I just assumed that most on this sight had the chance to look at the natural remedies Lloyds concerns with interferon.

 

I did treatment myself, and I am most grateful that I got to treat when and for as long as I did, however, I just have seen so much astounding information and documentation on how bad interferon can be for us - i'm just wondering if there is anything we can do to help push the FDA or the medical society, or gov, whoever it is, into researching all of this further...

 

I am really sorry if I offended anyone, I am sometimes really good at just simply saying what I feel, especially if I am passionate about it, or if it appears to be for the public's better/good.

And your so right about how we must all fight our own battles so to speak, and choose the best means for us.  I too had given up after my treatment, and just settled for trying to forget it, and living life, putting it God's hands, and dying when he calls my number. 

However, it really isn't something we can forget, at least not me anyway, I am reminded daily with the football feeling in my upper right quadrant, from inflammation.  And I am reminded when I try and have a normal conversation with someone, more embarrassing, someone that I have just met, and I can't remember the word I am normally use to saying..  And the constant fatigue... 

You know what I mean....

 

I will look for your book on the sight, I had no idea you had one there, I really need to dig around the sight more.  I haven't because I just go to my inbox to correspond with everyone....

By the way, is there any kind of chat that this group goes to?

 

Ok well, thanks for the info Steve, I am anxious to read the info now...

 

I hope I didn't offend anyone and if I did please accept my sincere apologies...

 

Hugs, prayers, and May God bless you all,

 

 

In a message dated 10/25/2010 10:01:56 P.M. Central Daylight Time, schandler21@... writes:

 

Oh , what a can of worms you've opened!Don has been kind enough to put a PDF of my book in the library for free download by anyone here.  I wrote this book on and after treatment with interferon and ribavirin.I speak to the idea of having held hep-C at bay for several years with supplements and vitamins.  However, if it was held at bay by that, it was only controlled, not cured.In my book, I also mention that I will never do the treatment again.  Honestly, a few years after the passion of that statement, I don't know what I would do if I re-contacted.However, I do know that I would check things out very carefully before signing up for the treatment again.  I realize there are many many cures that have been available in nature since the beginning of time, and we don't know more than a small percentage of what can be done with the natural resources av ailable to us and the power of our mind, our energy.  That's only my opinion, please!That's the long answer, I guess, to your question. You have very valid points.  One of my most frustrating reads was Trudeau's " Cures THEY don't want you to know about " , 'cause I felt he was spot on in too many instances to be ignored, but he was.But remember, when I was diagnosed the last time, I felt my options had narrowed to ignoring it and dying, doing the establishment's treatment, or sign up for a donor list and hope.Please, no one that reads this take it I don't appreciate the opportunity to do treatment.  It did the one thing I wasn't sure how to do any other way, it helped me slay the dragon.  I know the established treatment has long-reaching side effects but then again, so does hep-c, eh?We've all gotta choose our battles.  Some of us, myself included, decided to fight the battle with the establishments cure.   I'm still of the opinion that there's no one answer to this Gordian Knot, but we've all got to answer it in our own way for where we're at, at that moment.  I completely support everyone on this site, whether they're waiting for treatment, taking the 'alternative medicine' route, or fighting it one step, one shot at a time.  I'll stand with each and every one of you, any day of the week.Wow, kick me off my soapbox now...SteveLife is much more fun when thought of as a scavenger hunt as opposed to a surprise party.  Jimmy Buffett [ ] Just Wondering? 

Ok Everyone,

     I have been researching this man name Lloyd - Teri and Trudi  know of him, and maybe many more of you. 

I have also been watching his video's on you Youtube.  A lot of damage that he claims interferon is causing during and after treatment, is well know and documented throughout our medical society - right. 

So, I guess my question is, rather anyone can give a direct answer or maybe it is just simply to diverse. 

But, if the natural therapy was approved and covered by our insurance companies, would we choose to go this route, rather than suffer the lasting or ongoing affects of interferon.

I personally, can tell you that had I had access to natural through an insurance company - I would go that rate for sure.  Rather than deal with the affects that I suffered during TX, and many affects that are still ongoing.

For example, I have severe brain fog, and loss of memory.  I am an intelligent and educated woman, however, I don't have near the vocabulary as I once did - I simply can't remember words.  Yes it was real difficult while on the chemo, but is still ongoing.

I still itch like crazy - it never stopped.

 

I am really starting to feel like the medical society, the pharmaceutical companies, and the insurance companies are all in on huge conspiracy.

 

Comical as it may seem - but, the medical documentation speaks volumes.

 

I don't understand why the medical society won't back such natural remedies with no sides, and the FDA approve it..

 

I really think anyone getting ready to start treatment - should at least have the option - not to mention, that the doctors never tell us exactly the damage the interferon can do to us.  The damage on the brain, and nervous system alone is phenomenal.

 

Ok - SO ANY AND ALL OPINIONS WANTED AND APPRECIATED HERE ON THIS...

 

Hugs and prayers,

 

 

[Guest guest]

ok - thanks Teri - I would stand in the corner if I had too...

Since interferon I have had a complete hysterectomy, rather or not it had anything to do it , I don't know.

All my lyphm nodes are enlarged, had them biopsied , and had to have some removed from my groin. They thought I had lymphoma, I had to see an oncologist, because there was no signs of infection in my blood for my lymph nodes to be enlarged. I had to have a one biopsied from my chest. Big needle inserted in your chest, while they do a cat scan, you have to stay awake... (yuk and ouch) Anyway, I had to see many different doctors, and still no answer why all my lymph nodes are all enlarged. Either the hep being active, or the treatment. .

I finally got so sick of doctors, hospitals, test, being poked, and surgeries - I QUIT IT ALL! For the last year and a half - no doctors...

However, with all this said - I have to do something, some symptoms seem to worsen, and if I can find something to help alleviate them - I am all for it...

Also, My immune system is shot, and has been since the TX

I have never had fibro, but I have some form of arthritis, because since the TX, my hands, especially in the joints swell and hurt really badly - but finding out would mean another doctor... LOL

I'm on a doctor break for a bit...

Do you have your fibro under control - what do they do for it, if you don't mind me asking?

Hugs,

In a message dated 10/25/2010 11:29:06 P.M. Central Daylight Time, theresagottlieb@... writes:

Nobody is offended... we talk about these kinds of things here once in awhile.. Nobody is going to make you stand in the corner don't worry!

I am convinced that I have Fibromyalgia because of the Interfuron and Ribavirin. Can't convince me otherwise. However, it's a small trade off. Fibromyalgia won't do additional damage like Hep C does.

Hugs,

Teri

On Mon, Oct 25, 2010 at 10:20 PM, <jessegrace514@...> wrote:

Steve,

I do realize I opened up a can of worms, and by no means did I mean to step on any toes, especially those that are on treatment!!!!

I guess I just assumed that most on this sight had the chance to look at the natural remedies Lloyds concerns with interferon.

I did treatment myself, and I am most grateful that I got to treat when and for as long as I did, however, I just have seen so much astounding information and documentation on how bad interferon can be for us - i'm just wondering if there is anything we can do to help push the FDA or the medical society, or gov, whoever it is, into researching all of this further...

I am really sorry if I offended anyone, I am sometimes really good at just simply saying what I feel, especially if I am passionate about it, or if it appears to be for the public's better/good.

And your so right about how we must all fight our own battles so to speak, and choose the best means for us. I too had given up after my treatment, and just settled for trying to forget it, and living life, putting it God's hands, and dying when he calls my number.

However, it really isn't something we can forget, at least not me anyway, I am reminded daily with the football feeling in my upper right quadrant, from inflammation. And I am reminded when I try and have a normal conversation with someone, more embarrassing, someone that I have just met, and I can't remember the word I am normally use to saying.. And the constant fatigue...

You know what I mean....

I will look for your book on the sight, I had no idea you had one there, I really need to dig around the sight more. I haven't because I just go to my inbox to correspond with everyone....

By the way, is there any kind of chat that this group goes to?

Ok well, thanks for the info Steve, I am anxious to read the info now...

I hope I didn't offend anyone and if I did please accept my sincere apologies...

Hugs, prayers, and May God bless you all,

In a message dated 10/25/2010 10:01:56 P.M. Central Daylight Time, schandler21@... writes:

Oh , what a can of worms you've opened!Don has been kind enough to put a PDF of my book in the library for free download by anyone here. I wrote this book on and after treatment with interferon and ribavirin.I speak to the idea of having held hep-C at bay for several years with supplements and vitamins. However, if it was held at bay by that, it was only controlled, not cured.In my book, I also mention that I will never do the treatment again. Honestly, a few years after the passion of that statement, I don't know what I would do if I re-contacted.However, I do know that I would check things out very carefully before signing up for the treatment again. I realize there are many many cures that have been available in nature since the beginning of time, and we don't know more than a small percentage of what can be done with the natural resources av ailable to us and the power of our mind, our energy. That's only my opinion, please!That's the long answer, I guess, to your question. You have very valid points. One of my most frustrating reads was Trudeau's "Cures THEY don't want you to know about", 'cause I felt he was spot on in too many instances to be ignored, but he was.But remember, when I was diagnosed the last time, I felt my options had narrowed to ignoring it and dying, doing the establishment's treatment, or sign up for a donor list and hope.Please, no one that reads this take it I don't appreciate the opportunity to do treatment. It did the one thing I wasn't sure how to do any other way, it helped me slay the dragon. I know the established treatment has long-reaching side effects but then again, so does hep-c, eh?We've all gotta choose our battles. Some of us, myself included, decided to fight the battle with the establishments cure. I'm still of the opinion that there's no one answer to this Gordian Knot, but we've all got to answer it in our own way for where we're at, at that moment. I completely support everyone on this site, whether they're waiting for treatment, taking the 'alternative medicine' route, or fighting it one step, one shot at a time. I'll stand with each and every one of you, any day of the week.Wow, kick me off my soapbox now...SteveLife is much more fun when thought of as a scavenger hunt as opposed to a surprise party. Jimmy Buffett [ ] Just Wondering?

Ok Everyone,

I have been researching this man name Lloyd - Teri and Trudi know of him, and maybe many more of you.

I have also been watching his video's on you Youtube. A lot of damage that he claims interferon is causing during and after treatment, is well know and documented throughout our medical society - right.

So, I guess my question is, rather anyone can give a direct answer or maybe it is just simply to diverse.

But, if the natural therapy was approved and covered by our insurance companies, would we choose to go this route, rather than suffer the lasting or ongoing affects of interferon.

I personally, can tell you that had I had access to natural through an insurance company - I would go that rate for sure. Rather than deal with the affects that I suffered during TX, and many affects that are still ongoing.

For example, I have severe brain fog, and loss of memory. I am an intelligent and educated woman, however, I don't have near the vocabulary as I once did - I simply can't remember words. Yes it was real difficult while on the chemo, but is still ongoing.

I still itch like crazy - it never stopped.

I am really starting to feel like the medical society, the pharmaceutical companies, and the insurance companies are all in on huge conspiracy.

Comical as it may seem - but, the medical documentation speaks volumes.

I don't understand why the medical society won't back such natural remedies with no sides, and the FDA approve it..

I really think anyone getting ready to start treatment - should at least have the option - not to mention, that the doctors never tell us exactly the damage the interferon can do to us. The damage on the brain, and nervous system alone is phenomenal.

Ok - SO ANY AND ALL OPINIONS WANTED AND APPRECIATED HERE ON THIS...

Hugs and prayers,

[Guest guest]

Wow .. and the plot thickens...

Hysterectomy..  1 year after tx ended.  

Immune System - never came back to normal.. I can catch anything!

My Fibro is not yet under control.. I was just finally diagnosed with it this past April.  My doctor told me that I had all the symptoms but he didn't believe in the diagnosis.. so I fired him.  Then 4 different doctors diagnosed me with Fibro without me saying anything to them about the suspicion of having it.  We are playing with meds right now, my doctor said if he could get me sleeping regularly that some of the Fibro symptoms would ease up..  I'm lucky to get 5 hours of restless sleep a night.  i need about 12 of solid sleep!  The pain for the past few days has been overwhelming..  hence me not being on here as much.  I've been taking Norco for the pain but I'm having issues with that medication now as well.  Hopefully he will change that tomorrow.  

I'm going to find my Norco bottle and go to the place that feels the best right now.. my bed. 

I will chat with all of you laters...  my bed is calling me.

Hugs,

TeriOn Mon, Oct 25, 2010 at 11:57 PM, <jessegrace514@...> wrote:

 

ok - thanks Teri - I would stand in the corner if I had too...

Since interferon I have had a complete hysterectomy,  rather or not it had anything to do it , I don't know.

All my lyphm nodes are enlarged, had them biopsied , and had to have some removed from my groin.  They thought I had lymphoma, I had to see an oncologist, because there was no signs of infection in my blood for my lymph nodes to be enlarged.  I had to have a one biopsied from my chest.  Big needle inserted in your chest, while they do a cat scan, you have to stay awake... (yuk and ouch)  Anyway, I had to see many different doctors, and still no answer why all my lymph nodes are all enlarged.  Either the hep being active, or the treatment. .

I finally got so sick of doctors, hospitals, test, being poked, and surgeries - I QUIT IT ALL!  For the last year and a half - no doctors...

 

However, with all this said - I have to do something, some symptoms seem to worsen, and if I can find something to help alleviate them - I am all for it... 

Also, My immune system is shot, and has been since the TX

I have never had fibro, but I have some form of arthritis, because since the TX, my hands, especially in the joints swell and hurt really badly - but finding out would mean another doctor... LOL

I'm on a doctor break for a bit...

Do you have your fibro under control - what do they do for it, if you don't mind me asking?

 

Hugs,

 

In a message dated 10/25/2010 11:29:06 P.M. Central Daylight Time, theresagottlieb@... writes:

 

Nobody is offended...  we talk about these kinds of things here once in awhile..  Nobody is going to make you stand in the corner don't worry!

I am convinced that I have Fibromyalgia because of the Interfuron and Ribavirin.  Can't convince me otherwise.  However, it's a small trade off.  Fibromyalgia won't do additional damage like Hep C does.

Hugs,

Teri

On Mon, Oct 25, 2010 at 10:20 PM, <jessegrace514@...> wrote:

 

Steve,

 

    I do realize I opened up a can of worms, and by no means did I mean to step on any toes, especially those that are on treatment!!!! 

I guess I just assumed that most on this sight had the chance to look at the natural remedies Lloyds concerns with interferon.

 

I did treatment myself, and I am most grateful that I got to treat when and for as long as I did, however, I just have seen so much astounding information and documentation on how bad interferon can be for us - i'm just wondering if there is anything we can do to help push the FDA or the medical society, or gov, whoever it is, into researching all of this further...

 

I am really sorry if I offended anyone, I am sometimes really good at just simply saying what I feel, especially if I am passionate about it, or if it appears to be for the public's better/good.

And your so right about how we must all fight our own battles so to speak, and choose the best means for us.  I too had given up after my treatment, and just settled for trying to forget it, and living life, putting it God's hands, and dying when he calls my number. 

However, it really isn't something we can forget, at least not me anyway, I am reminded daily with the football feeling in my upper right quadrant, from inflammation.  And I am reminded when I try and have a normal conversation with someone, more embarrassing, someone that I have just met, and I can't remember the word I am normally use to saying..  And the constant fatigue... 

You know what I mean....

 

I will look for your book on the sight, I had no idea you had one there, I really need to dig around the sight more.  I haven't because I just go to my inbox to correspond with everyone....

By the way, is there any kind of chat that this group goes to?

 

Ok well, thanks for the info Steve, I am anxious to read the info now...

 

I hope I didn't offend anyone and if I did please accept my sincere apologies...

 

Hugs, prayers, and May God bless you all,

 

 

In a message dated 10/25/2010 10:01:56 P.M. Central Daylight Time, schandler21@... writes:

 

Oh , what a can of worms you've opened!Don has been kind enough to put a PDF of my book in the library for free download by anyone here.  I wrote this book on and after treatment with interferon and ribavirin.I speak to the idea of having held hep-C at bay for several years with supplements and vitamins.  However, if it was held at bay by that, it was only controlled, not cured.In my book, I also mention that I will never do the treatment again.  Honestly, a few years after the passion of that statement, I don't know what I would do if I re-contacted.However, I do know that I would check things out very carefully before signing up for the treatment again.  I realize there are many many cures that have been available in nature since the beginning of time, and we don't know more than a small percentage of what can be done with the natural resources av ailable to us and the power of our mind, our energy.  That's only my opinion, please!That's the long answer, I guess, to your question. You have very valid points.  One of my most frustrating reads was Trudeau's " Cures THEY don't want you to know about " , 'cause I felt he was spot on in too many instances to be ignored, but he was.But remember, when I was diagnosed the last time, I felt my options had narrowed to ignoring it and dying, doing the establishment's treatment, or sign up for a donor list and hope.Please, no one that reads this take it I don't appreciate the opportunity to do treatment.  It did the one thing I wasn't sure how to do any other way, it helped me slay the dragon.  I know the established treatment has long-reaching side effects but then again, so does hep-c, eh?We've all gotta choose our battles.  Some of us, myself included, decided to fight the battle with the establishments cure.   I'm still of the opinion that there's no one answer to this Gordian Knot, but we've all got to answer it in our own way for where we're at, at that moment.  I completely support everyone on this site, whether they're waiting for treatment, taking the 'alternative medicine' route, or fighting it one step, one shot at a time.  I'll stand with each and every one of you, any day of the week.Wow, kick me off my soapbox now...SteveLife is much more fun when thought of as a scavenger hunt as opposed to a surprise party.  Jimmy Buffett [ ] Just Wondering? 

Ok Everyone,

     I have been researching this man name Lloyd - Teri and Trudi  know of him, and maybe many more of you. 

I have also been watching his video's on you Youtube.  A lot of damage that he claims interferon is causing during and after treatment, is well know and documented throughout our medical society - right. 

So, I guess my question is, rather anyone can give a direct answer or maybe it is just simply to diverse. 

But, if the natural therapy was approved and covered by our insurance companies, would we choose to go this route, rather than suffer the lasting or ongoing affects of interferon.

I personally, can tell you that had I had access to natural through an insurance company - I would go that rate for sure.  Rather than deal with the affects that I suffered during TX, and many affects that are still ongoing.

For example, I have severe brain fog, and loss of memory.  I am an intelligent and educated woman, however, I don't have near the vocabulary as I once did - I simply can't remember words.  Yes it was real difficult while on the chemo, but is still ongoing.

I still itch like crazy - it never stopped.

 

I am really starting to feel like the medical society, the pharmaceutical companies, and the insurance companies are all in on huge conspiracy.

 

Comical as it may seem - but, the medical documentation speaks volumes.

 

I don't understand why the medical society won't back such natural remedies with no sides, and the FDA approve it..

 

I really think anyone getting ready to start treatment - should at least have the option - not to mention, that the doctors never tell us exactly the damage the interferon can do to us.  The damage on the brain, and nervous system alone is phenomenal.

 

Ok - SO ANY AND ALL OPINIONS WANTED AND APPRECIATED HERE ON THIS...

 

Hugs and prayers,

 

 

[Guest guest]

No one should be offended but rather view all information as an opportunity to learn something new. If we want to get healthy, we have to be able to make informed decisions. That ability comes with uncensored information exchange.

Ramona

From: Theresa Gottlieb <theresagottlieb@...> Sent: Tue, October 26, 2010 12:28:55 AMSubject: Re: [ ] Just Wondering?

Nobody is offended... we talk about these kinds of things here once in awhile.. Nobody is going to make you stand in the corner don't worry!

I am convinced that I have Fibromyalgia because of the Interfuron and Ribavirin. Can't convince me otherwise. However, it's a small trade off. Fibromyalgia won't do additional damage like Hep C does.

Hugs,

Teri

On Mon, Oct 25, 2010 at 10:20 PM, <jessegrace514@...> wrote:

Steve,

I do realize I opened up a can of worms, and by no means did I mean to step on any toes, especially those that are on treatment!!!!

I guess I just assumed that most on this sight had the chance to look at the natural remedies Lloyds concerns with interferon.

I did treatment myself, and I am most grateful that I got to treat when and for as long as I did, however, I just have seen so much astounding information and documentation on how bad interferon can be for us - i'm just wondering if there is anything we can do to help push the FDA or the medical society, or gov, whoever it is, into researching all of this further...

I am really sorry if I offended anyone, I am sometimes really good at just simply saying what I feel, especially if I am passionate about it, or if it appears to be for the public's better/good.

And your so right about how we must all fight our own battles so to speak, and choose the best means for us. I too had given up after my treatment, and just settled for trying to forget it, and living life, putting it God's hands, and dying when he calls my number.

However, it really isn't something we can forget, at least not me anyway, I am reminded daily with the football feeling in my upper right quadrant, from inflammation. And I am reminded when I try and have a normal conversation with someone, more embarrassing, someone that I have just met, and I can't remember the word I am normally use to saying.. And the constant fatigue...

You know what I mean....

I will look for your book on the sight, I had no idea you had one there, I really need to dig around the sight more. I haven't because I just go to my inbox to correspond with everyone....

By the way, is there any kind of chat that this group goes to?

Ok well, thanks for the info Steve, I am anxious to read the info now...

I hope I didn't offend anyone and if I did please accept my sincere apologies...

Hugs, prayers, and May God bless you all,

In a message dated 10/25/2010 10:01:56 P.M. Central Daylight Time, schandler21@... writes:

Oh , what a can of worms you've opened!Don has been kind enough to put a PDF of my book in the library for free download by anyone here. I wrote this book on and after treatment with interferon and ribavirin.I speak to the idea of having held hep-C at bay for several years with supplements and vitamins. However, if it was held at bay by that, it was only controlled, not cured.In my book, I also mention that I will never do the treatment again. Honestly, a few years after the passion of that statement, I don't know what I would do if I re-contacted.However, I do know that I would check things out very carefully before signing up for the treatment again. I realize there are many many cures that have been available in nature since the beginning of time, and we don't know more than a small percentage of what can be done with the

natural resources av ailable to us and the power of our mind, our energy. That's only my opinion, please!That's the long answer, I guess, to your question. You have very valid points. One of my most frustrating reads was Trudeau's "Cures THEY don't want you to know about", 'cause I felt he was spot on in too many instances to be ignored, but he was.But remember, when I was diagnosed the last time, I felt my options had narrowed to ignoring it and dying, doing the establishment's treatment, or sign up for a donor list and hope.Please, no one that reads this take it I don't appreciate the opportunity to do treatment. It did the one thing I wasn't sure how to do any other way, it helped me slay the dragon. I know the established treatment has long-reaching side effects but then again, so does hep-c, eh?We've all gotta choose our battles. Some of us, myself included, decided to

fight the battle with the establishments cure. I'm still of the opinion that there's no one answer to this Gordian Knot, but we've all got to answer it in our own way for where we're at, at that moment. I completely support everyone on this site, whether they're waiting for treatment, taking the 'alternative medicine' route, or fighting it one step, one shot at a time. I'll stand with each and every one of you, any day of the week.Wow, kick me off my soapbox now...SteveLife is much more fun when thought of as a scavenger hunt as opposed to a surprise party. Jimmy Buffett [ ] Just Wondering?

Ok Everyone,

I have been researching this man name Lloyd - Teri and Trudi know of him, and maybe many more of you.

I have also been watching his video's on you Youtube. A lot of damage that he claims interferon is causing during and after treatment, is well know and documented throughout our medical society - right.

So, I guess my question is, rather anyone can give a direct answer or maybe it is just simply to diverse.

But, if the natural therapy was approved and covered by our insurance companies, would we choose to go this route, rather than suffer the lasting or ongoing affects of interferon.

I personally, can tell you that had I had access to natural through an insurance company - I would go that rate for sure. Rather than deal with the affects that I suffered during TX, and many affects that are still ongoing.

For example, I have severe brain fog, and loss of memory. I am an intelligent and educated woman, however, I don't have near the vocabulary as I once did - I simply can't remember words. Yes it was real difficult while on the chemo, but is still ongoing.

I still itch like crazy - it never stopped.

I am really starting to feel like the medical society, the pharmaceutical companies, and the insurance companies are all in on huge conspiracy.

Comical as it may seem - but, the medical documentation speaks volumes.

I don't understand why the medical society won't back such natural remedies with no sides, and the FDA approve it..

I really think anyone getting ready to start treatment - should at least have the option - not to mention, that the doctors never tell us exactly the damage the interferon can do to us. The damage on the brain, and nervous system alone is phenomenal.

Ok - SO ANY AND ALL OPINIONS WANTED AND APPRECIATED HERE ON THIS...

Hugs and prayers,

[Guest guest]

As humans we are made up differently in every sort of the way from our brains to our toenails. I, myself, am "allergic" to Interferon and Ribavirin. Five months into treatment, I tried to commit suicide. Please note: I am not trying to discourage anyone from treatment. As I said earlier, we are all different. I was just one of those whom you read about in the pamphlet of having side effects of depression and "there have been reports of successful suicides." That's what I read. And so all doctors involved took me off of it. This was back in 1995. Just wondering?... what is left for me? The medical industry talks of some pill you ingest, am I off course?

My name is Deb Z. and I live in Calif. I know many of you from Facebook, and I love you all. We are special peeps. Heppers stick together like Peepers. Truth or Dare? lol heeheehee

[Guest guest]

Debbie,I am not sure " allergic " is the right term to use here...  If you were in fact allergic to the medications you would have had an " allergic response " within 24 hours in the form of a rash or anaphylaxis.  At that point you would have been immediately taken off the drugs.   An allergic reaction is physical, violent and immediate..  The suicidal incidents are a common side effect of the drugs.. not an allergic reaction.  That's why the doctors are so hell bent on anti-depressants during treatment. You are not alone in that suicide attempt.. many people have attempted or dealt with suicidal feelings during treatment.  I. myself, I didn't want to kill myself, it was other people who were in jeopardy!  I was MEAN!

The new medication coming out is being used in tandem with the current Interfuron/Ribavirin treatment.  It is a third drug that will increase one's chances of attaining SVR and in some cases may shorten the length of treatment from 48 weeks to 24.  In and of itself, the drug is not showing effective for treatment but used with the other two it is doing remarkable things.

Right now there is nothing currently ready to go before the FDA for approval other than the telaprevir.  It is just finishing it's 3rd round of clinical trials and then will go before the FDA for approval.   I have not personally heard of anything currently in a clinical trial that would replace the current therapy.  I believe the pill you are hearing about is the telaprevir.

You ask what's left...  Actually the current therapy could be tried again if in fact they could keep your anti-depressants on board and at the correct level.  Other than that, there are homeopathic and alternative treatments around but nothing that is proven to cure Hep C or have you achieve a SVR.

Hope that helps...Hugs,TeriOn Wed, Oct 27, 2010 at 4:06 PM, <DebraZ949@...> wrote:

 

As humans we are made up differently in every sort of the way from our brains to our toenails.  I, myself, am " allergic " to Interferon and Ribavirin.  Five months into treatment, I tried to commit suicide.  Please note:  I am not trying to discourage anyone from treatment.  As I said earlier, we are all different.  I was just one of those whom you read about in the pamphlet of having side effects of depression and " there have been reports of successful suicides. "   That's what I read.  And so all doctors involved took me off of it.  This was back in 1995.  Just wondering?... what is left for me?  The medical industry talks of some pill you ingest, am I off course?

 

My name is Deb Z. and I live in Calif.  I know many of you from Facebook, and I love you all.  We are special peeps.  Heppers stick together like Peepers.  Truth or Dare?  lol heeheehee

[Guest guest]

DebWere they even using both Interferon and Riba back in 1995?? I thought it was only Interferon and for some it was shots 3 times a week.Gloria

As humans we are made up differently in every sort of the way from our brains to our toenails. I, myself, am "allergic" to Interferon and Ribavirin. Five months into treatment, I tried to commit suicide. Please note: I am not trying to discourage anyone from treatment. As I said earlier, we are all different. I was just one of those whom you read about in the pamphlet of having side effects of depression and "there have been reports of successful suicides." That's what I read. And so all doctors involved took me off of it. This was back in 1995. Just wondering?... what is left for me? The medical industry talks of some pill you ingest, am I off course?

My name is Deb Z. and I live in Calif. I know many of you from Facebook, and I love you all. We are special peeps. Heppers stick together like Peepers. Truth or Dare? lol heeheehee