Better support

[Guest guest]

Cinder and all,I wrote a book during and after treatment to give folks and idea what they had/were signing up for.As you know, it's never the same patient to patient, or even day to day with one person, but I wanted to put my perspective out there to try and help others entering/in treatment.A friend, after reading the book, told me this wasn't a book for people in treatment only, but for the families also, to give them an idea what the recipient was going through. Given that, my support lady and I are collaborating on another book, for the support folks.Honestly, without the support I had, I don't know if I would have finished treatment the first time around. My support lady was an absolute lion sometimes, would block the gates and slay anyone who tried to cross her when I was having a moment. I say over and over again in the original book, you gotta have a good support network! It can make the difference between successful completion and quitting, and I wouldn't want to see anyone quit if that makes the difference!Cinder, if your family wants to know some of what you're going through, get this:One patients perspective, after beating the dragon!... https://www.createspace.com/3421422----- Original Message -----From: "Cinder" <datagrey@...> Sent: Sunday, April 4, 2010 9:49:06 AM GMT -08:00 US/Canada PacificSubject: Re: [ ] Happy Easter and Stuff

Thanks for the welcome Deb. Glad to meet you. I have been going through similar stuff with my husband. He thinks I should just be strong and manhandle it all. Man up to it all. Work through all of it no matter what just not be sick don't give my body the chance to get sick. Like I will have a choice. Anyway little by little he is going realize that isn't the way things work. I decided to let him think I am playing that way for a while. Then when I get real sick he will see I can't control it. I can plan a date night and oops sorry for the sick all over your pants dear. Guess I tried to be positive a bit much. I don't know how he thinks Im going to cook for him all the way through it. I may have to stop depending on smells and how they make me feel. I dunno. Just remember morning sickness and that wasn't even suppose to be so bad. I had every day of all 9

months of it sick as a dog. Anyway. I love my husband and I know he will come around. He loves me so much he just has been raised by a really tough dad and mom and so he doesn't know any different. He is learning. I really could not ask for a better husband. Anyway. I also fear the worst side effects which should be pretty evident now. lol. I guess it isn't good to think that way but you can't help but fear it some. They won't do antideppressants for me till they find out what the Rhumatoid arthritis doc says and then the Hep doc says and then maybe I can get some anti deppressants to help with Menopause and the Hep stuff. I hope so. I told my husband last night you think I am moody now. I am scared what I will be like in tx. I found myself in a store friday crying by the corn. Some lady asked me if I was okay I said fine. It takes nothing to make me cry. I cry sometimes for no reason at all. I have no idea why. It is so wierd. I told my doc. She still

wants to wait. hm. Better hurry. I am feeling a bit crazy crackers here.

Anyway

Happy Easter and find lots of easter eggs and don't steal your kiddos easter candy. Cinder

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From: truthseeker103 <truthseeker103@...>Subject: [ ] Happy Easter and Stuff Date: Sunday, April 4, 2010, 8:02 AM

Happy Easter to you all!Welcome to all the new people, le, Cinder, Trudy, and the others I can't recall right this minute. Gloria, I'll be praying for you on Tuesday that all goes well for you in surgery. Good to hear that you and your husband are better. I'm sure that takes a lot of stress off you while you are trying to regain your health. God be with ya...I have an ultrasound Monday on my liver and pancreas, then an eye exam, then next week my consult after the test results and then I'll start my treatment.I am Deb from Northern Michigan, mid fifties, type 2b, long time infected. Normal labs.I am afraid to start. Of course, I fear the worst side effects. But, I've always been strong and I'm counting on that to get me through. I am most concerned about the mental sides. I'm really glad you all have posted about coping with that, including the type antidepressant and the fact that I may need to up it

later. I hate to admit it, but I am having big problems with my husband too. He is the nicest guy in one way but because of his own baggage he is very emotionally abusive. He can't stand it when I'm not strong and he messes with my head, saying terrible things to me and then denying he said it. If I call him on it or break down, he says I'm mentally unstable. That's why I'm afraid of the mental sides. I'm seeing a counselor, started last Nov. I'm counting on that group and this cyber group to keep me safe. I think it may even be criminal to do that to someone who is on this kind of medication. I'll find out about that. You can see a picture of me at my old website. (I sold my business last fall)Click on the About Us page. That's me and my girls and a couple grands. www.latterrain. info.Later, Deb