Fw: A question from a patient

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-----Original Message-----From: MARTHA <MAM-NSIF@...>CPR4WandF@... <CPR4WandF@...>Date: Tuesday, January 02, 2001 7:58 PMSubject: Fw: A question from a patient

-----Original Message-----From: MARTHA <MAM-NSIF@...>parfumGigi@... <parfumGigi@...>Date: Tuesday, January 02, 2001 7:09 PMSubject: Fw: A question from a patient

-----Original Message-----From: MARTHA <MAM-NSIF@...>MARTHA <MAM-NSIF@...>Date: Wednesday, January 03, 2001 12:11 AMSubject: Re: A question from a patient

Hi Again, ,

We (BI Women) need to be tested for Lupus Erythmatosus (not Discoid Lupus). Lupus Erythmatosus (Systemic) is a chronic disease that causes inflammation of connective tissue. The more common type, discoid lupus, affects exposed areas of the skin. The more serious and potentially fatal form, systemic lupus erythematosus (SLE), affects many systems of the body, including the joints & the kidneys.

Lupus erythematosus is an autoimmune disorder in which the body's immune system,for unknown reasons, attacks the connective tissue as thoough it were foreign, causing inflammation. It is probable that the disease can be inherited (not likely in our cases), and that hormonal factors play a part. Sometimes the agent that triggers the immune response (e.g., a viral infection) can be inferred. Certain drugs & foreign objects in the body can induce some of the symptoms of SLE. Particularly in elderly people, drugs most frequently responsible are hydralazine, procainmide and isoniazld.

Lupus erthematosus affects nine times as many women as men, usually those of childbearing age. It occurs worldwide, althoough its incidence is higher in certain ethnic groups, plus BI recipients.

The sumptoms of both varieties of Lupus erythematosus periodically subside and recur with varying severity.

In DLE, the rash starts as one or more red, circular, thickened areas of skin that later scar. They may occur on the face, behind the ears, and on the scalp, sometimes causing permanent hair loss in affected areas.

SLE causes a characteristic red, blotch, almost butterfly-shaped rash over the cheeks and bridge of the nose. Ther is no scarring and the hair grows back between attacks. Most sufferers feel sick, and malaise, fatigue, fever, loss of appetite, nausea, joint pain and weight loss. There may be iron-deficiency anemia, neurological or psyhchiatric problems, renal failure, pleurisy (inflammation of the lining of the lungs), arthritis, and pericarditis (inflammation of the membrane surrounding the heart).

Blood tests and sometimes a skin biopsy are performed to look for specific antibodies when the disease is active.

Suffers whose symptoms are made worse by sunlight should avoid sun exposure and use sunscreens -- always.

I hope this simple description of this illness is helpful for some!

Most sincerely,

Martha Murdock

NSIF / Dallas HQ

-----Original Message-----From: MARTHA <MAM-NSIF@...>CPR4WandF@... <CPR4WandF@...>Date: Tuesday, January 02, 2001 5:43 PMSubject: Re: A question from a patient

Hi ,

Yes, many of us have had the fungal infections (even from some of the silicone implants), and antibiotics tend to make them worse in the long run. Normally, huge regular dosages of Methyl Sulfonyl Methane (MSM) will get rid of this problem, then keep it away if the dosages are lowered yet taken on a daily basis.

I suggest anyone wanting to try this " natural sulfur " check with a doctor they trust, as I am not a medical professional.

Most sincerely,

Martha Murdock

NSIF / Dallas HQ

PS - I neglected to mention that after explant surgery with no re-implantation my problems & my daughter's problems with this 'rash' on the face, head, & extremeties went away. However, we have both gone on to be diagnosed with 'full-blown' lupus, so the lupus panel testing needs to continue as long as there are any possible symptoms.

MM / NSIF

-----Original Message-----From: CPR4WandF@... <CPR4WandF@...>cpr4wf@... <cpr4wf@...>Date: Tuesday, January 02, 2001 11:31 PMSubject: A question from a patientHi everyone, A woman with saline implants has written to our Center to ask if other women have had any experiences like hers. She is especially wondering if it might be related to a fungus infection from the implants, since the doctor said he has seen similar problems with patients with fungal infections on their feet. She describes having " discoid lupus-like raised patches on the right side of my face (near my nose/above my cheeks). " She has had saline implants for 7 years. A dermatologist diagnosed it as Jessner's lymphocytic infiltration; her ANA blood tests were negative for lupus. When she took antibiotics for bronchitis for a week, her skin condition improved, but the condition came back when she stopped taking the antibiotics. She wonders if other women have had similar experiences, and if removing or replacing the implants makes a difference. Sincerely, Zuckerman, Ph.D. Executive Director National Center for Policy Research for Women and Families 1444 Eye Street, NW Suite 900 Washington, DC 20005 202 216-9507 www.cpr4womenandfamilies.org

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Sent: Tuesday, January 02, 2001 9:23 PM

Subject: A question from a patient

Hi everyone, A woman with saline implants has written to our Center to ask if other women have had any experiences like hers. She is especially wondering if it might be related to a fungus infection from the implants, since the doctor said he has seen similar problems with patients with fungal infections on their feet. She describes having "discoid lupus-like raised patches on the right side of my face (near my nose/above my cheeks)." She has had saline implants for 7 years. A dermatologist diagnosed it as Jessner's lymphocytic infiltration; her ANA blood tests were negative for lupus. When she took antibiotics for bronchitis for a week, her skin condition improved, but the condition came back when she stopped taking the antibiotics. She wonders if other women have had similar experiences, and if removing or replacing the implants makes a difference. Sincerely, Zuckerman, Ph.D. Executive Director National Center for Policy Research for Women and Families 1444 Eye Street, NW Suite 900 Washington, DC 20005 www.cpr4womenandfamilies.org