New Member Here

Report post · March 7, 2004

Hey Liz sorry to be so late in replying. My headache turned into a

migraine and I've been throwing up. My poor husband had to clean the

floor. Yuck.

I've got my shades on and have been hiding in the dark all day. If I

feel like this tomorrow, I'm going to the doctor. Usually I take

ibuprofen 800mg 3 x a day but I'm having surgery on the 16th to

remove a nasal bonespur. I'm not looking forward to it.

Gotta go hibernate some more.

Hugs,

Sassykat

Report post · March 7, 2004

Thanks, happy to be here.

Wow China?

Sassykat

Report post · May 26, 2005

Welcome Suzanne. You sound a lot like me. I was on Paxil for three

years, weaned myself off, and lasted about a year drug free. Then I

just went back on Paxil two months ago. The Paxil has been working

just fine for me, but the Psychologist I see prefers Lex, which is why

I joined this group.

Glad to hear you found something that works for you

Pam

> I am currently on lexapro 10mg. I have been doing very well on it

> with very little side effects. I suffer from depression and anxiety

> attacks. I was on paxil for 2 years and decided to wean my self

off.

> I did good for a few months then reexperienced the

> depression/anxiety. I tried going back on paxil and could not handle

> the side effects that time around so the doctor put me on lexapro. I

> have lately been thinking of weaning my self off of lexapro because I

> really dont want to medicated for my whole life.

Report post · January 8, 2006

Hay Welad i use the silver in the angstrom form 600 ppm just go to colloidal

silver in your search bar they offer generators their ya might have to hunt

abit im trying to school these people on this but its not easy stuff works great

been in use along time give me an e

Report post · March 31, 2006

Hi Janice,

Welcome to the list!

I'm deafblind and have bilateral CIs. I just had surgery on February 1st and

was activated a month later. The differences I'm noticing between having one

vs. two CIs is dramatic -- especially when it comes to localizing sound and

greater safety when traveling. For instance, I'm able to hear traffic at a

greater distance and hear turning cars at busy intersections. My speech

understanding has in noise has also improved since receiving my second CI at

only one month post activation. If I had to do it all over again, I would.

Now that I can hear binaurally, I'm less stressed and no longer have to

worry about being unable to hear sounds from one side. If there are any

specific questions I can answer, please let me know.

In the meantime, you might find the listening practice recourses listed on

the website useful for listening practice. Just go to:

http://www..com

for more information.

FYI...There is also a deafblind information page on that site. It contains

information about deafblind children and adults who have received cochlear

implants. My CI journal is also listed ( " New Beginnings " ) as well as two

articles describing my activation ( " 's Activation Day " ) and first day of

sound with my CI ( " 's First Day of Sound " ).

Left ear - Nucleus 24 Contour Advance with 3G

Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom

Implanted: 2/1/06 Activated: 3/1/06

Report post · March 31, 2006

Hi ,

Thank you so much for your reply. Yes, I am seriously considering a second

implant and have already put in a request. It's going to take time though

cuz my insurance has to approve it first. I believe it will go through.

, do you comprehend speech without looking at people's lips? I know you

are deaf blind but some deaf blind has residual vision adn I don't know what

your situation is. Do you use braille with your computer? I am going to

try to use the listening practice ont he site. Guess I will have to

ask my husband to help cuz I don't know how to turn on a media player.

Do you know any other deaf blind people with CI who use braille? I would

love to hear form them. Does anyone use a guide dog for the blind? I have a

fourth diberman! (Second and third ones didn't work out too well)

Thanks again!

Janice

Re: new member here

> Hi Janice,

>

> Welcome to the list!

>

> I'm deafblind and have bilateral CIs. I just had surgery on February 1st

> and

> was activated a month later. The differences I'm noticing between having

> one

> vs. two CIs is dramatic -- especially when it comes to localizing sound

> and

> greater safety when traveling. For instance, I'm able to hear traffic at a

> greater distance and hear turning cars at busy intersections. My speech

> understanding has in noise has also improved since receiving my second CI

> at

> only one month post activation. If I had to do it all over again, I would.

> Now that I can hear binaurally, I'm less stressed and no longer have to

> worry about being unable to hear sounds from one side. If there are any

> specific questions I can answer, please let me know.

>

> In the meantime, you might find the listening practice recourses listed on

> the website useful for listening practice. Just go to:

>

> http://www..com

>

> for more information.

>

> FYI...There is also a deafblind information page on that site. It contains

> information about deafblind children and adults who have received cochlear

> implants. My CI journal is also listed ( " New Beginnings " ) as well as two

> articles describing my activation ( " 's Activation Day " ) and first day

> of

> sound with my CI ( " 's First Day of Sound " ).

>

> Left ear - Nucleus 24 Contour Advance with 3G

> Implanted: 12/22/04 Activated: 1/18/05

>

> Right ear - Nucleus Freedom

> Implanted: 2/1/06 Activated: 3/1/06

>

Report post · March 31, 2006

Janice,

I sent you an email yesterday but perhaps it did not reach you. I met you

and your husband when I was at Gally in the early 80s. I remember us

attending DB functions off campus. You had had a Doberman for a dog guide at

that time, and he was a big honey. I am now living in MN. I

have Usher with poor light perception and bilateral CIs. I have a second dog

guide name Telly, a Yellow Lab from Seeing Eye. I received my first CI in

2000 and it was a while before I understood speech. My second CI happened in

2005 and I understood speech nearly right away. I am loving bilaterals, but

it is still an adjustment because I have had the second CI for only 8

months. Welcome aboard!

Report post · April 4, 2006

Hi and ,

I am going to have to get off the list soon because I find it takes a lot of

my time and I am a busy person. But I have learned a lot in a few days....

Will stay on a bit more adn then get off. So can you give me your email

address? Here is my direct address: janinfla@... Thanks! HOpe

you all understand, no offense here and I think this list is great for

sharing valuable information. I'll still be around for a bit more...

Janice

Re: new member here

> Janice,

> I sent you an email yesterday but perhaps it did not reach you. I met you

> and your husband when I was at Gally in the early 80s. I remember us

> attending DB functions off campus. You had had a Doberman for a dog guide

> at

> that time, and he was a big honey. I am now living in MN. I

> have Usher with poor light perception and bilateral CIs. I have a second

> dog

> guide name Telly, a Yellow Lab from Seeing Eye. I received my first CI in

> 2000 and it was a while before I understood speech. My second CI happened

> in

> 2005 and I understood speech nearly right away. I am loving bilaterals,

> but

> it is still an adjustment because I have had the second CI for only 8

> months. Welcome aboard!

>

Report post · April 4, 2006

Hi Janice,

No problem -- I understand. <smile> I'll write you off list with my e-mail

address. I'd love to share CI experiences as well as to discuss a variety of

other topics. Like you, I've been quite busy since getting my first CI, so

don't have time to post to the various forums as much as I used to. I could

post in the evening but by then I'm usually quite tired and can't express

myself the way I want to. LOL.

Left ear - Nucleus 24 Contour Advance with 3G

Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom

Implanted: 2/1/06 Activated: 3/1/06

Report post · April 4, 2006

mumbled " ...but by then I'm usually quite tired and can't express

myself the way I want to. "

Really? Will an orange mocha help any? LOL So now that you have two

CI's, are you twice as tired? LOL Need more Cadbury's?

*---* *---* *---* *---* *---*

You can't get where you want to go if you don't know where you are.

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/

Report post · April 4, 2006

Or maybe K. would like a nice fins massages up and down her body? Oops,

that would put to sleep not wake her up. Hmm, I think I will leave the

" keeping awake " to .

Dolly Dolphin warming up her fins in case want the fins massage

Report post · April 4, 2006

Dolly,

I have an idea, we both do this and see how likes waking up and

going to sleep in cycles. LOL

*---* *---* *---* *---* *---*

The other day, I was walking my dog around my building... on the ledge. Some

people are afraid of heights. Not me, I'm afraid of widths.

& Dreamer Doll (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/

Report post · November 18, 2006

hey fred, my name is rob and im about to have my fourth back surgery; it is

at the same level as yours, but it will be a fusion added on to a fusion i

had a year and a half ago. i have not heard of the lazer surgery before,

but am curious and will look that up for my own personal knowledge. you can

talk about doctors and hospitals; the only thing we really do not discuss is

the types of meds we are on; mostly the narcotic ones.

welcome to the group. it is filled with a lot of great people, and started

by a wonderful woman. i am sure someone more qualified to answer your

question (as ive not had that done before) will be answering your question

sometime today. everyone here knows something about different treatments or

their own, so be patient, and i hope you get the answers you need. take

care,

i was born in san antonio, but now live in VA.

rob

No greater burden can be borne by an individual than to know no one cares or

understands.

>From: " fredg382000 " <efgharis@...>

>Reply-neck pain

>neck pain

>Subject: New Member Here

>Date: Sat, 18 Nov 2006 13:14:13 -0000

>

>Hi Everyone - My name is Fred and I live in town, Texas (Sun

>City). To make a long story short, I have severe Spinal Stenosis in

>the L4,L5 area. I am Ok when sitting or reclining. When I stand and

>walk, I can walk perhaps 100 feet before severe pain sets in in the

>lower back, buttocs, hips and back of thighs. MRI did not disclose the

>problem. It took a myelogram to show the problem when they rotated the

>xray table so that I was in a standing position.

>

>I don't know if it is allowed to mention specific doctors or

>institutions so I will just say that I am considering laser

>orthroscopic surgery vs open back surgery. Do any members have any

>words of wisdom for me. I would like to mention the name of the place

>I am talking with to see if anyone has any good or bad experiences

>with them.

>

>They are supposed to call me early next week to arrange a surgery date

>for December.

>

>Thanks to all of you.

>

_________________________________________________________________

All-in-one security and maintenance for your PC. Get a free 90-day trial!

http://clk.atdmt.com/MSN/go/msnnkwlo0050000002msn/direct/01/?href=http://clk.atd\

mt.com/MSN/go/msnnkwlo0050000001msn/direct/01/?href=http://www.windowsonecare.co\

m/?sc_cid=msn_hotmail

Report post · November 18, 2006

hey fred, my name is rob and im about to have my fourth back surgery; it is

at the same level as yours, but it will be a fusion added on to a fusion i

had a year and a half ago. i have not heard of the lazer surgery before,

but am curious and will look that up for my own personal knowledge. you can

talk about doctors and hospitals; the only thing we really do not discuss is

the types of meds we are on; mostly the narcotic ones.

welcome to the group. it is filled with a lot of great people, and started

by a wonderful woman. i am sure someone more qualified to answer your

question (as ive not had that done before) will be answering your question

sometime today. everyone here knows something about different treatments or

their own, so be patient, and i hope you get the answers you need. take

care,

i was born in san antonio, but now live in VA.

rob

No greater burden can be borne by an individual than to know no one cares or

understands.

>From: " fredg382000 " <efgharis@...>

>Reply-neck pain

>neck pain

>Subject: New Member Here

>Date: Sat, 18 Nov 2006 13:14:13 -0000

>

>Hi Everyone - My name is Fred and I live in town, Texas (Sun

>City). To make a long story short, I have severe Spinal Stenosis in

>the L4,L5 area. I am Ok when sitting or reclining. When I stand and

>walk, I can walk perhaps 100 feet before severe pain sets in in the

>lower back, buttocs, hips and back of thighs. MRI did not disclose the

>problem. It took a myelogram to show the problem when they rotated the

>xray table so that I was in a standing position.

>

>I don't know if it is allowed to mention specific doctors or

>institutions so I will just say that I am considering laser

>orthroscopic surgery vs open back surgery. Do any members have any

>words of wisdom for me. I would like to mention the name of the place

>I am talking with to see if anyone has any good or bad experiences

>with them.

>

>They are supposed to call me early next week to arrange a surgery date

>for December.

>

>Thanks to all of you.

>

_________________________________________________________________

All-in-one security and maintenance for your PC. Get a free 90-day trial!

http://clk.atdmt.com/MSN/go/msnnkwlo0050000002msn/direct/01/?href=http://clk.atd\

mt.com/MSN/go/msnnkwlo0050000001msn/direct/01/?href=http://www.windowsonecare.co\

m/?sc_cid=msn_hotmail

Report post · November 18, 2006

Hi Rob - Thanks for the reply. Sorry to hear about the fusion. The

radiologist that reviewed my films with me said I would need a

fusion also. So did the neurologist I have been seeing. In surfing

the internet, I found out about Laser Spine Institute in Tampa,

Florida. Their web address is

http://www.laserspineinstitute.com/home.aspx

From what I have read there and from one phone discussion with them,

they do not believe in fusion. They also do surgery on an out

patient basis.

If anyone on the board has used them, I would like to know what

their thoughts/experiences/outcome have been.

>

> hey fred, my name is rob and im about to have my fourth back

surgery; it is

> at the same level as yours, but it will be a fusion added on to a

fusion i

> had a year and a half ago. i have not heard of the lazer surgery

before,

> but am curious and will look that up for my own personal

knowledge. you can

> talk about doctors and hospitals; the only thing we really do not

discuss is

> the types of meds we are on; mostly the narcotic ones.

>

> welcome to the group. it is filled with a lot of great people,

and started

> by a wonderful woman. i am sure someone more qualified to answer

your

> question (as ive not had that done before) will be answering your

question

> sometime today. everyone here knows something about different

treatments or

> their own, so be patient, and i hope you get the answers you

need. take

> care,

>

> i was born in san antonio, but now live in VA.

>

> rob

>

> No greater burden can be borne by an individual than to know no

one cares or

> understands.

>

> >From: " fredg382000 " <efgharis@...>

> >Reply-neck pain

> >neck pain

> >Subject: New Member Here

> >Date: Sat, 18 Nov 2006 13:14:13 -0000

> >

> >Hi Everyone - My name is Fred and I live in town, Texas (Sun

> >City). To make a long story short, I have severe Spinal Stenosis

in

> >the L4,L5 area. I am Ok when sitting or reclining. When I stand

and

> >walk, I can walk perhaps 100 feet before severe pain sets in in

the

> >lower back, buttocs, hips and back of thighs. MRI did not

disclose the

> >problem. It took a myelogram to show the problem when they

rotated the

> >xray table so that I was in a standing position.

> >

> >I don't know if it is allowed to mention specific doctors or

> >institutions so I will just say that I am considering laser

> >orthroscopic surgery vs open back surgery. Do any members have any

> >words of wisdom for me. I would like to mention the name of the

place

> >I am talking with to see if anyone has any good or bad experiences

> >with them.

> >

> >They are supposed to call me early next week to arrange a surgery

date

> >for December.

> >

> >Thanks to all of you.

> >

>

> _________________________________________________________________

> All-in-one security and maintenance for your PC. Get a free 90-

day trial!

> http://clk.atdmt.com/MSN/go/msnnkwlo0050000002msn/direct/01/?

href=http://clk.atdmt.com/MSN/go/msnnkwlo0050000001msn/direct/01/?

href=http://www.windowsonecare.com/?sc_cid=msn_hotmail

>

Report post · November 18, 2006

Hi Rob - Thanks for the reply. Sorry to hear about the fusion. The

radiologist that reviewed my films with me said I would need a

fusion also. So did the neurologist I have been seeing. In surfing

the internet, I found out about Laser Spine Institute in Tampa,

Florida. Their web address is

http://www.laserspineinstitute.com/home.aspx

From what I have read there and from one phone discussion with them,

they do not believe in fusion. They also do surgery on an out

patient basis.

If anyone on the board has used them, I would like to know what

their thoughts/experiences/outcome have been.

>

> hey fred, my name is rob and im about to have my fourth back

surgery; it is

> at the same level as yours, but it will be a fusion added on to a

fusion i

> had a year and a half ago. i have not heard of the lazer surgery

before,

> but am curious and will look that up for my own personal

knowledge. you can

> talk about doctors and hospitals; the only thing we really do not

discuss is

> the types of meds we are on; mostly the narcotic ones.

>

> welcome to the group. it is filled with a lot of great people,

and started

> by a wonderful woman. i am sure someone more qualified to answer

your

> question (as ive not had that done before) will be answering your

question

> sometime today. everyone here knows something about different

treatments or

> their own, so be patient, and i hope you get the answers you

need. take

> care,

>

> i was born in san antonio, but now live in VA.

>

> rob

>

> No greater burden can be borne by an individual than to know no

one cares or

> understands.

>

> >From: " fredg382000 " <efgharis@...>

> >Reply-neck pain

> >neck pain

> >Subject: New Member Here

> >Date: Sat, 18 Nov 2006 13:14:13 -0000

> >

> >Hi Everyone - My name is Fred and I live in town, Texas (Sun

> >City). To make a long story short, I have severe Spinal Stenosis

in

> >the L4,L5 area. I am Ok when sitting or reclining. When I stand

and

> >walk, I can walk perhaps 100 feet before severe pain sets in in

the

> >lower back, buttocs, hips and back of thighs. MRI did not

disclose the

> >problem. It took a myelogram to show the problem when they

rotated the

> >xray table so that I was in a standing position.

> >

> >I don't know if it is allowed to mention specific doctors or

> >institutions so I will just say that I am considering laser

> >orthroscopic surgery vs open back surgery. Do any members have any

> >words of wisdom for me. I would like to mention the name of the

place

> >I am talking with to see if anyone has any good or bad experiences

> >with them.

> >

> >They are supposed to call me early next week to arrange a surgery

date

> >for December.

> >

> >Thanks to all of you.

> >

>

> _________________________________________________________________

> All-in-one security and maintenance for your PC. Get a free 90-

day trial!

> http://clk.atdmt.com/MSN/go/msnnkwlo0050000002msn/direct/01/?

href=http://clk.atdmt.com/MSN/go/msnnkwlo0050000001msn/direct/01/?

href=http://www.windowsonecare.com/?sc_cid=msn_hotmail

>

Report post · November 19, 2006

-Hi Fred welcome to the group. About 6 months ago I had a double

fusion at L4-L5 and L5 -S1. I had already had one surgery there

which gave me no relief 21/2 yrs ago. I did check into the laser

surgery for my back also and the place I looked at had very good

things to say about themselves BUt I ran into some people and

friends of people who had had surgeries there and got a different

story. Also I asked my surgeon about that kind of surgery and my

pain management dr who both told me the same thing. If I had the

surgery I would not be happy and if I got relief it would NOT last.

Now I have had 2 back surgeries and a neck fusion too so one more

time was enough for me to think about surgery. After all this I

decided to stay with my neuro surgeon and have the full back surgery

with the double layer fusion. I will say I am still having pain but

my sciatic pain is much reduced from what I had before. And I am

still in the healing process as far as recovering from this surgery.

Also I have had pain for over 6 yrs now so I expected to have some

left after the surgery just given how long my nerves were damaged.

I'd say talk to patients from this place and ask everyone you can

BEFORE you try this surgery. I can't say it won't work on you it

might but I sure didn't want to waste another surgery that wouldn't

work on me. Best wishes. Sharon Group Owner

p.s. you can mention whoever you want but I would advise against any

negative input listing any place or dr's just to protect yourself.

-- In neck pain , " fredg382000 "

<efgharis@...> wrote:

>

> Hi Everyone - My name is Fred and I live in town, Texas (Sun

> City). To make a long story short, I have severe Spinal Stenosis

in

> the L4,L5 area. I am Ok when sitting or reclining. When I stand

and

> walk, I can walk perhaps 100 feet before severe pain sets in in

the

> lower back, buttocs, hips and back of thighs. MRI did not disclose

the

> problem. It took a myelogram to show the problem when they rotated

the

> xray table so that I was in a standing position.

>

> I don't know if it is allowed to mention specific doctors or

> institutions so I will just say that I am considering laser

> orthroscopic surgery vs open back surgery. Do any members have any

> words of wisdom for me. I would like to mention the name of the

place

> I am talking with to see if anyone has any good or bad experiences

> with them.

>

> They are supposed to call me early next week to arrange a surgery

date

> for December.

>

> Thanks to all of you.

>

Report post · November 19, 2006