Thank you

[Guest guest]

I go to to play spades. NEver heard of pogo. can one play spades there?

MSN has good free games as well.

shelley

Sandy Booton <ibsandy77@...> wrote:

DANA I NEVER THOUGHT THERE WOULD BE A DAY THAT I REALLY NEEDED MY GLASSES...BOY

WAS I WRONG...LOL...JUST FOR THE HECK OF IT DO YOU PLAY ANY GAMES ON THE NET?

FOR THAT MATTER DOES ANYONE OUT THERE PLAY AT POGO OR ANY OTHER GAME SITE..FREE

THAT IS...I WONT PAY TO PLAY. I ALSO WANTED TO SAY THAT I GOT A LETTER FROM THE

DOCTOR WHO INVENTED MICROHYDRIN AND IT ISNT AS GOOD AS ITS SUPPOSED TO BE....IT

RAISED MY VIRAL LODE FROM JUST OVER A MILLION TO 1,650,000. NOT A GOOD THING.

SO ITS SAFE TO SAY THAT IT DOESNT DO WHAT IT SAID IT WOULD DO. GLAD I ONLY

SPENT $30 ON IT ONCE. I HOPE EVERYONE HAS A GREAT WEEK.

LOVE IN HIS LIGHT

SANDY

---------------------------------

[Guest guest]

Sandy,

I wear glasses at the computer too. heheh! Should

probably wear everywhere. I noticed with change in

meds and viral levals my eyesight changes. I would be

getting new perscription all the time. Can't afford

that!! Don't have vision and dental! But I

definantly can relate to the vision thing. As far as

Games. I never play. I probably should, but I have

trouble keeping up with the things I need to do. My

relaxation seems to be yard work and my animals. My

Sweetie plays games alot! Not sure what kind. I have

so much paper work with my fathers estate to keep up

with and emails and faxes, not to mention keeping 3

copies of each dime I spend on his bills. Never

thought there would be a day I would be the one

responsible for all this. And my brother is fighting

every step of the way. Funny what greed and money

does. Funny thing, there is not really that much left

once everything is paid. Kind of silly. Oh well!

Don't worry about the typing thing. If we want to

read it, we CAN SEE IT! Hugs and best to ya Dana

--- Sandy Booton <ibsandy77@...> wrote:

>

> DANA I NEVER THOUGHT THERE WOULD BE A DAY THAT I

> REALLY NEEDED MY GLASSES...BOY WAS I

> WRONG...LOL...JUST FOR THE HECK OF IT DO YOU PLAY

> ANY GAMES ON THE NET? FOR THAT MATTER DOES ANYONE

> OUT THERE PLAY AT POGO OR ANY OTHER GAME SITE..FREE

> THAT IS...I WONT PAY TO PLAY. I ALSO WANTED TO SAY

> THAT I GOT A LETTER FROM THE DOCTOR WHO INVENTED

> MICROHYDRIN AND IT ISNT AS GOOD AS ITS SUPPOSED TO

> BE....IT RAISED MY VIRAL LODE FROM JUST OVER A

> MILLION TO 1,650,000. NOT A GOOD THING. SO ITS SAFE

> TO SAY THAT IT DOESNT DO WHAT IT SAID IT WOULD DO.

> GLAD I ONLY SPENT $30 ON IT ONCE. I HOPE EVERYONE

> HAS A GREAT WEEK.

>

> LOVE IN HIS LIGHT

>

> SANDY

>

>

>

> ---------------------------------

>

[Guest guest]

Sandy,

I wear glasses at the computer too. heheh! Should

probably wear everywhere. I noticed with change in

meds and viral levals my eyesight changes. I would be

getting new perscription all the time. Can't afford

that!! Don't have vision and dental! But I

definantly can relate to the vision thing. As far as

Games. I never play. I probably should, but I have

trouble keeping up with the things I need to do. My

relaxation seems to be yard work and my animals. My

Sweetie plays games alot! Not sure what kind. I have

so much paper work with my fathers estate to keep up

with and emails and faxes, not to mention keeping 3

copies of each dime I spend on his bills. Never

thought there would be a day I would be the one

responsible for all this. And my brother is fighting

every step of the way. Funny what greed and money

does. Funny thing, there is not really that much left

once everything is paid. Kind of silly. Oh well!

Don't worry about the typing thing. If we want to

read it, we CAN SEE IT! Hugs and best to ya Dana

--- Sandy Booton <ibsandy77@...> wrote:

>

> DANA I NEVER THOUGHT THERE WOULD BE A DAY THAT I

> REALLY NEEDED MY GLASSES...BOY WAS I

> WRONG...LOL...JUST FOR THE HECK OF IT DO YOU PLAY

> ANY GAMES ON THE NET? FOR THAT MATTER DOES ANYONE

> OUT THERE PLAY AT POGO OR ANY OTHER GAME SITE..FREE

> THAT IS...I WONT PAY TO PLAY. I ALSO WANTED TO SAY

> THAT I GOT A LETTER FROM THE DOCTOR WHO INVENTED

> MICROHYDRIN AND IT ISNT AS GOOD AS ITS SUPPOSED TO

> BE....IT RAISED MY VIRAL LODE FROM JUST OVER A

> MILLION TO 1,650,000. NOT A GOOD THING. SO ITS SAFE

> TO SAY THAT IT DOESNT DO WHAT IT SAID IT WOULD DO.

> GLAD I ONLY SPENT $30 ON IT ONCE. I HOPE EVERYONE

> HAS A GREAT WEEK.

>

> LOVE IN HIS LIGHT

>

> SANDY

>

>

>

> ---------------------------------

>

[Guest guest]

Hey, I used to play Spades and like that card game.

Wonder if I could learn on the computer? Let me know?

Dana

--- shelley iverson <shellster_i@...> wrote:

>

> I go to to play spades. NEver heard of pogo.

> can one play spades there? MSN has good free games

> as well.

> shelley

> Sandy Booton <ibsandy77@...> wrote:

> DANA I NEVER THOUGHT THERE WOULD BE A DAY THAT I

> REALLY NEEDED MY GLASSES...BOY WAS I

> WRONG...LOL...JUST FOR THE HECK OF IT DO YOU PLAY

> ANY GAMES ON THE NET? FOR THAT MATTER DOES ANYONE

> OUT THERE PLAY AT POGO OR ANY OTHER GAME SITE..FREE

> THAT IS...I WONT PAY TO PLAY. I ALSO WANTED TO SAY

> THAT I GOT A LETTER FROM THE DOCTOR WHO INVENTED

> MICROHYDRIN AND IT ISNT AS GOOD AS ITS SUPPOSED TO

> BE....IT RAISED MY VIRAL LODE FROM JUST OVER A

> MILLION TO 1,650,000. NOT A GOOD THING. SO ITS SAFE

> TO SAY THAT IT DOESNT DO WHAT IT SAID IT WOULD DO.

> GLAD I ONLY SPENT $30 ON IT ONCE. I HOPE EVERYONE

> HAS A GREAT WEEK.

>

> LOVE IN HIS LIGHT

>

> SANDY

>

>

>

> ---------------------------------

>

[Guest guest]

Hey, I used to play Spades and like that card game.

Wonder if I could learn on the computer? Let me know?

Dana

--- shelley iverson <shellster_i@...> wrote:

>

> I go to to play spades. NEver heard of pogo.

> can one play spades there? MSN has good free games

> as well.

> shelley

> Sandy Booton <ibsandy77@...> wrote:

> DANA I NEVER THOUGHT THERE WOULD BE A DAY THAT I

> REALLY NEEDED MY GLASSES...BOY WAS I

> WRONG...LOL...JUST FOR THE HECK OF IT DO YOU PLAY

> ANY GAMES ON THE NET? FOR THAT MATTER DOES ANYONE

> OUT THERE PLAY AT POGO OR ANY OTHER GAME SITE..FREE

> THAT IS...I WONT PAY TO PLAY. I ALSO WANTED TO SAY

> THAT I GOT A LETTER FROM THE DOCTOR WHO INVENTED

> MICROHYDRIN AND IT ISNT AS GOOD AS ITS SUPPOSED TO

> BE....IT RAISED MY VIRAL LODE FROM JUST OVER A

> MILLION TO 1,650,000. NOT A GOOD THING. SO ITS SAFE

> TO SAY THAT IT DOESNT DO WHAT IT SAID IT WOULD DO.

> GLAD I ONLY SPENT $30 ON IT ONCE. I HOPE EVERYONE

> HAS A GREAT WEEK.

>

> LOVE IN HIS LIGHT

>

> SANDY

>

>

>

> ---------------------------------

>

[Guest guest]

Thank you Carrol. I had a feeling this might be...but wasn't quite sure. The

info has put my mind to rest. And thank you Kathy and Marilyn for the

tips...always appreciated. Lamar...thanks to you, the s/Reiter Clinic is

a goal of mine should what I'm trying to do fail. I have gone to Dr Ray Peat's

site, thanks to you, to read what he has to say about Progesterone, since one of

my major triggers is Estrogen. Thanks to what I found there, I took what Zoe had

to say about Dental Revision and went to Dr. Huggins site. I am silent most of

the time ;> but I have been paying attention. I go through the archives and

have used the book mark section. In fact, I am using the Epilepsy Foundation to

find insurance. This group has helped me more than any of you realize...and I

thank you all very much,

Lorinda

Carrol Showalter <ColoradoCarrol@...> wrote:

Dear Lorinda,

Blood levels of many things may fall within the " normal " range, but your body

may still not be utilizing the nutrients effectively. It's really difficult to

tell whether or not your tissues have an appropriate level of something with a

blood test. In addition, at times I've found that, even though my blood tests

come back within the normal range, I still benefit from additional nutrients. My

body seems to need more than the " normal " amount of some things to function

well.

One thought I had related to your magnesium and calcium levels pertains to

Vitamin D. Your body needs magnesium and Vitamin D to process calcium

effectively. A few minutes in the sunshine every day will help your body get

enough " D. " My doctor told me NOT to wear sunglasses for about ten minutes,

because the naked eye absorbs " D " best. (Of course, you should never look

directly at the sun.) If medications have made you " sun-sensitive, " you can find

a good " D " supplement.

Often the formulation of a nutrient can make a difference, too. My body is

particular about the source and type of calcium and magnesium formulas.

There are only a few vitamin supplements you need to watch to be sure you are

not overdosing. Vitamins A, B-6 and E, are three that it pays to keep track of.

You should also monitor the balance between magnesium and calcium, and zinc and

copper. This is not, in any way, a complete list of considerations, but since

you may be venturing outside of the recommendations of Western medicine, I hope

these will help you.

One final thought is this: your blood levels of nutrients change constantly

throughout the day and week. I have had blood tests one week apart with

dramatically different results. If you sense that your body needs something, you

are probably right!

Best wishes,

Carrol

Lorinda wrote:

Many of you are taking vitamins and other supplements. I am headed in that

direction and curious.

I have taken herbs to clean out my system and curb my migraines. Not only did it

curb the migraines, which I used to have a couple of times a month, but it

stopped them. Now, I'm going back to the nervines to curb my valium intake. But

for the last couple of years I've been getting bad cramps in my legs and I know

I'm about ready for another seizure episode when this happens. Also since taking

myself off of Dilantin, I have been twitching. Last month I ended up in the ER

and I asked them to please check my calcium and magnesium levels. They, along

with other tests they ran, came back A.O.K. In fact they said I was really

healthy. I just smiled at them...if I'm so healthy what am I doing in the ER

room getting ripped to pieces by seizures. My question is this... If your tests

come back o.k. and your levels are within the normal range, will supplementation

still help?

Lorinda

---------------------------------

[Guest guest]

Hi!!

congrats on continuing school I think is great. The energy comes from the heart

and the mind. (mind over body) I also feel lousy all the time, lbut no one will

think of how I feel by looking at me. I keep a demanding job(many hours and

traveling), a teen age daughter and her 21 friends,my sister and her 13 yr old,

my husband and if time left I may do something I like. All of this keep my mind

busy. I discover that the more I stayed home and " supposevely rest " the worst

I felt. So continue with all your plans and aspirations. This is very

helpful. Have dreams and go after them. LIZI

Sandy Booton <ibsandy77@...> wrote:

SHELLEY, LEIGHANNE, JUDY, EMO AND ALL WHO TOOK THE TIME TO RESPOND TO MY

VENTING. THANK YOU SO MUCH. LETS SEE IF THE BRAIN FOG WILL LET ME REMEMBER

EVERYTHING THAT WAS ASKED OR SAID...DUH...LOL...FIRST, I LIVE IN

CALIFORNIA..CENTRAL TO BE MORE PRECISE. I WAS HOPING FOR THE TREATMENTS TO

START IN THE SUMMER BECAUSE I ATTEND COLLEGE..YES...AT THE AGE OF 53..I WILL BE

IN MY THIRD SEMESTER IN THE FALL. I AM MAJORING IN HUMAN SERVICES AND HOPE TO

BE A REHAB COUNSELOR FOR SICK AND INJURED INDIVIDUALS LIKE MYSELF. I DIDNT WANT

THE TREATMENTS TO INTERFER WITH SCHOOL SO I WAS HOPING TO START THEM BUT...OH

WELL...GOD KNOWS BEST. DOES ANYONE ELSE SUFFER FROM BRAIN FOG LIKE I DO???

THANKS FOR ALL THE PRAYERS AND CONCERN AND I WILL TRY TO DO WHAT I HAVE BEEN

PUTTING OFF...LIKE BIKE RIDING...WHERE DO YOU GET THE ENERGY?? I FEEL SICK MOST

OF THE TIME. OH WELL, BETTER DAYS AHEAD.

LOVE IN HIS LIGHT

SANDY

---------------------------------

[Guest guest]

Hi!!

congrats on continuing school I think is great. The energy comes from the heart

and the mind. (mind over body) I also feel lousy all the time, lbut no one will

think of how I feel by looking at me. I keep a demanding job(many hours and

traveling), a teen age daughter and her 21 friends,my sister and her 13 yr old,

my husband and if time left I may do something I like. All of this keep my mind

busy. I discover that the more I stayed home and " supposevely rest " the worst

I felt. So continue with all your plans and aspirations. This is very

helpful. Have dreams and go after them. LIZI

Sandy Booton <ibsandy77@...> wrote:

SHELLEY, LEIGHANNE, JUDY, EMO AND ALL WHO TOOK THE TIME TO RESPOND TO MY

VENTING. THANK YOU SO MUCH. LETS SEE IF THE BRAIN FOG WILL LET ME REMEMBER

EVERYTHING THAT WAS ASKED OR SAID...DUH...LOL...FIRST, I LIVE IN

CALIFORNIA..CENTRAL TO BE MORE PRECISE. I WAS HOPING FOR THE TREATMENTS TO

START IN THE SUMMER BECAUSE I ATTEND COLLEGE..YES...AT THE AGE OF 53..I WILL BE

IN MY THIRD SEMESTER IN THE FALL. I AM MAJORING IN HUMAN SERVICES AND HOPE TO

BE A REHAB COUNSELOR FOR SICK AND INJURED INDIVIDUALS LIKE MYSELF. I DIDNT WANT

THE TREATMENTS TO INTERFER WITH SCHOOL SO I WAS HOPING TO START THEM BUT...OH

WELL...GOD KNOWS BEST. DOES ANYONE ELSE SUFFER FROM BRAIN FOG LIKE I DO???

THANKS FOR ALL THE PRAYERS AND CONCERN AND I WILL TRY TO DO WHAT I HAVE BEEN

PUTTING OFF...LIKE BIKE RIDING...WHERE DO YOU GET THE ENERGY?? I FEEL SICK MOST

OF THE TIME. OH WELL, BETTER DAYS AHEAD.

LOVE IN HIS LIGHT

SANDY

---------------------------------

[Guest guest]

You're welcome!

Suzy, if you know your attorney's email address, just send him this link:

http://www.justiceseekers.com/files/NLPP00000/060.PDF

Love,

Dawn

>From: " suzy nakauchi " Reply-SSRI medications To:

>SSRI medications Subject: Thank you Date:

>Wed, 21 Aug 2002 18:38:10 +0000

>

>

>

>Dear Dawn,

>

>Thank you for the entire copy of the new action v. E. Lilly. I'm sending a

>copy to my son's lawyer asap.

>

>Love, Suzy

>

>_________________________________________________________________ Send and

>receive Hotmail on your mobile device: http://mobile.msn.com

>

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

[Guest guest]

> Thank you for the info .

> The number you gave me is not the number I called. Although, I did ask if

Dr

> Weiss works there and she said, " Yes. "

> I'll call the number you gave me.

> Will the doctors there do a fill 5-6 weeks post-op?

> Thanks you again,

> Donna

You can get a fill usualy anytime after 4 weeks. You should be fine

.

[Guest guest]

Dear a,

Thank you for your response and feedback. If you play with them and

still can not get it, feel free to post again or emailme privately,

which ever makes you fel more comfortable.

Take care and hope the computer gets better! Hee!

Love ya

Jeanetta

> Hi, I have been having some computers problesms and haven't been

able

> to get on line. I do want to thank you for answering the

questions.

> I have printed them out and will try working them and see if I can

do

> it. I will let you know after I have played with them for a while.

> a

[Guest guest]

Dear a ,

You are most welcome! It is always good to get feedback from the

study group users to know if we are helping or to know if there is

anything more we can do.

Thank you,

Jeanetta

> Hi, I have been having some computers problesms and haven't been

able

> to get on line. I do want to thank you for answering the

questions.

> I have printed them out and will try working them and see if I can

do

> it. I will let you know after I have played with them for a while.

> a

[Guest guest]

Hi ,

My name is Becki and I live in Murfreesboro Tn.You tried to get in touch with me a few months back right before we left to take to Cincy to begin an Enbrel study.I tried to find you but was changing internet services and lost everything.Now my stupid computer keeps locking up and having trouble posting.Someone has beaten me to finding more rheumys.I thought there had to be more then one in Knoxville,I knew there had to be someone in Chatanooga.It's not on the list but I think there is someone in the tri-city area,mayby City but I don't know if they are ped or not.You can take I75 straight to Lexington which is our closest Shriners but it's a 3 hour drive for you.Ashville is a close city,but don't know about ped rheumys.We see Hummal and Lawton,the first two on the list,but they aren't real familiar with Remicade.They put one teenager on it and she had a severe allergic reaction.You seem to trust your ped,mayby you can see a rheumy in a differant city and go mayby every 3 months and have them and your ped keep in close contact with each other.Early agressive treatment is so imperative to maintain joint function.I better send this before it locks up,but have so much more to say.

Hugs

Becki and 4systemic

[Guest guest]

Hi ,

My name is Becki and I live in Murfreesboro Tn.You tried to get in touch with me a few months back right before we left to take to Cincy to begin an Enbrel study.I tried to find you but was changing internet services and lost everything.Now my stupid computer keeps locking up and having trouble posting.Someone has beaten me to finding more rheumys.I thought there had to be more then one in Knoxville,I knew there had to be someone in Chatanooga.It's not on the list but I think there is someone in the tri-city area,mayby City but I don't know if they are ped or not.You can take I75 straight to Lexington which is our closest Shriners but it's a 3 hour drive for you.Ashville is a close city,but don't know about ped rheumys.We see Hummal and Lawton,the first two on the list,but they aren't real familiar with Remicade.They put one teenager on it and she had a severe allergic reaction.You seem to trust your ped,mayby you can see a rheumy in a differant city and go mayby every 3 months and have them and your ped keep in close contact with each other.Early agressive treatment is so imperative to maintain joint function.I better send this before it locks up,but have so much more to say.

Hugs

Becki and 4systemic

[Guest guest]

From the list of doctors on the web page:

Donna Hummell MD

Div Pediatric Immunology

Vanderbilt University

311 Oxford House

Nashville , TN 372324144

Ofc: 615-322-4397

Fax: 615-322-4399

Lawton MD

Div Pediatric Immunology

Vanderbilt University

311 Oxford House

Nashville , TN 37232-4144

Ofc: 615-322-4397

Fax: 615-322-4399

Email: alexander.r.lawton@...

Dr. LeBonhuer

Memphis, TN

Dr. Myers

Memphis, TN

Indravadan Shah MD

2339 McCallie Avenue #203

Chattanooga , TN 37404

Ofc: 423-624-3406

Fax: 423-624-7657

Kenny Sizemore MD

324 Park 40 N Blvd

Knoxville , TN 37923

Ofc: 865-691-4100

Fax: 865-691-6178

Email: kennysiz@...

Donna Winn MD

Rheumatology Consultants

St s West

1120 Weisgarber Rd

Knoxville , TN 37909

Ofc: 865-602-7983

Fax: 865-602-7984

Frederick Wolfe MD

Department of Rheumatology

St s Professional Bldg

1120 Weisbarber Rd Ste 201

Knoxville , TN 37909-3606

Ofc: 865-602-7983

Fax: 865-602-7984

At 07:57 AM 1/9/03 , you wrote:

I

can not begin to thank you all for all the information and for how much I

appreciate you taking the time to write me back. I have been going

through this for so long, I have just quit trying to find someone who

understands. And in one posting, it seems that I have found many people

who understand and are so kind.

I know we need to find a new rhem. doctor. That is the main problem. The

doctor she sees does not specialize in children, he treats children and

adults too. He treats at the Children's Hospital here, in a rhematology

clinic they have once a month. He has an office too, but he mainly treats

adults out of it. I just don't understand him. He was really MAD that I

wrote her journal down, instead of her. I was so mad when I came home

from that visit. I called her pediatrician crying, and told her I wanted

a new doctor immediately. Since there are no other doctors in this area,

she told me to try to hang in there with him a little longer. I am going

to check out the shriner's website later this afternoon, to see if I can

find any info there. We have good insurance, but trying to drive for very

far is hard for us. On good days we are fine, but on days she is hurting

it would be impossible.

Thanks again for all the information. I look forward to getting to know

all of you better.

love,

PS. By the way, I live in Knoxville, Tennessee.

[Guest guest]

From the list of doctors on the web page:

Donna Hummell MD

Div Pediatric Immunology

Vanderbilt University

311 Oxford House

Nashville , TN 372324144

Ofc: 615-322-4397

Fax: 615-322-4399

Lawton MD

Div Pediatric Immunology

Vanderbilt University

311 Oxford House

Nashville , TN 37232-4144

Ofc: 615-322-4397

Fax: 615-322-4399

Email: alexander.r.lawton@...

Dr. LeBonhuer

Memphis, TN

Dr. Myers

Memphis, TN

Indravadan Shah MD

2339 McCallie Avenue #203

Chattanooga , TN 37404

Ofc: 423-624-3406

Fax: 423-624-7657

Kenny Sizemore MD

324 Park 40 N Blvd

Knoxville , TN 37923

Ofc: 865-691-4100

Fax: 865-691-6178

Email: kennysiz@...

Donna Winn MD

Rheumatology Consultants

St s West

1120 Weisgarber Rd

Knoxville , TN 37909

Ofc: 865-602-7983

Fax: 865-602-7984

Frederick Wolfe MD

Department of Rheumatology

St s Professional Bldg

1120 Weisbarber Rd Ste 201

Knoxville , TN 37909-3606

Ofc: 865-602-7983

Fax: 865-602-7984

At 07:57 AM 1/9/03 , you wrote:

I

can not begin to thank you all for all the information and for how much I

appreciate you taking the time to write me back. I have been going

through this for so long, I have just quit trying to find someone who

understands. And in one posting, it seems that I have found many people

who understand and are so kind.

I know we need to find a new rhem. doctor. That is the main problem. The

doctor she sees does not specialize in children, he treats children and

adults too. He treats at the Children's Hospital here, in a rhematology

clinic they have once a month. He has an office too, but he mainly treats

adults out of it. I just don't understand him. He was really MAD that I

wrote her journal down, instead of her. I was so mad when I came home

from that visit. I called her pediatrician crying, and told her I wanted

a new doctor immediately. Since there are no other doctors in this area,

she told me to try to hang in there with him a little longer. I am going

to check out the shriner's website later this afternoon, to see if I can

find any info there. We have good insurance, but trying to drive for very

far is hard for us. On good days we are fine, but on days she is hurting

it would be impossible.

Thanks again for all the information. I look forward to getting to know

all of you better.

love,

PS. By the way, I live in Knoxville, Tennessee.

[Guest guest]

You are most welcome, . I was looking thru the list of drs. and putting them into the rand mcnally map. There are a few in North Carolina and one is about 2 hrs from you. I saw that Nashville is about 3 hrs. (according to their website). I think the idea of checking that list is a good one. You can determine which one is closest to you. If you haven't checked it, on the main jra list page, click on Files and you can click on it from that list. Another website to check out is www.rheumatology.org and click on find a rheumatologist. Just another idea to see if this could help you, Michele (mom to 15, pauci & spondy)

-----Original Message-----From: dounoGod@... [mailto:dounoGod@...] Sent: Thursday, January 09, 2003 9:57 AM Subject: Thank youI can not begin to thank you all for all the information and for how much I appreciate you taking the time to write me back. I have been going through this for so long, I have just quit trying to find someone who understands. And in one posting, it seems that I have found many people who understand and are so kind. I know we need to find a new rhem. doctor. That is the main problem. The doctor she sees does not specialize in children, he treats children and adults too. He treats at the Children's Hospital here, in a rhematology clinic they have once a month. He has an office too, but he mainly treats adults out of it. I just don't understand him. He was really MAD that I wrote her journal down, instead of her. I was so mad when I came home from that visit. I called her pediatrician crying, and told her I wanted a new doctor immediately. Since there are no other doctors in this area, she told me to try to hang in there with him a little longer. I am going to check out the shriner's website later this afternoon, to see if I can find any info there. We have good insurance, but trying to drive for very far is hard for us. On good days we are fine, but on days she is hurting it would be impossible. Thanks again for all the information. I look forward to getting to know all of you better. love, PS. By the way, I live in Knoxville, Tennessee.

[Guest guest]

nne,

If you are heading towards transplant I recommend you get evaluated by the

liver transplant team sooner rather than later. Time on the list is good to

have if you do have to get one. Believe me, you will not be rushed into a

transplant if you don't need one. No one will whisk you away. My lft's keep

dropping, not quite to normal but ~300 to ~250 to ~200 to ~175 , today they

were about 160, but my ALPH was 1500! Oh well.

Good luck with you fact finding mission!

nne, I forget where you live, is there a transplant center close to

you?

Patty

[ ] Thank you

Patty and Jerry,

Thanks for responding....I do appreciate it so much.

Jerry, I know you have posted regarding the normal LFT/bad liver

before, but always thinking " that'll never be me " the information

never really sunk in. (I guess I forgot to tell ya'll that my other

name is the Queen of D'enial)So I take it that means my liver had

been working really hard to get better, but it isn't able to

anymore...and the lowering LFT's were perhaps more indicative of its

worsening? Is that a correct interpretation?

The article on portal hypertension was very interesting. I just love

it that my pressure gradient has reached the " clinically significant "

stage...how very special....geeze.

I have more questions for my hep now (after reading what he handed me

and what I am learning here) than I did on Friday...I am dropping him

a note to ask a few and see what the labs they drew on Friday show. I

already know, based on the doc's notes he gave me, that my PTT is

prolonged, so I need now to see if that is still the case and what

the albumin serum is. Actually, the rheumy drew labs on Thursday and

those results might be ready sooner. Well, least I know which

additional markers to ask about.

Thanks once again.

Love yas

nne

[Guest guest]

nne...Patty beat me to it... but with the info you gave us you

should be having an evaluation to get listed for Tx. Ask your doc about

that too.... I love you.......jerry

[Guest guest]

Patty,

I am in North Carolina. My gastro referred me to a hepatologist @

Duke and I began seeing him in March.. He specializes in autoimmune

hep and is with the transplant clinic. We've just started discussing

transplant. In his notes from last week, he said unless we get my

disease under control, transplnat is inevitible, but the timing is to

be determined. Thanks for you info! Hope that call comes for you

soon.

nne

> nne,

> If you are heading towards transplant I recommend you get evaluated

by the

> liver transplant team sooner rather than later. Time on the list is

good to

> have if you do have to get one. Believe me, you will not be rushed

into a

> transplant if you don't need one. No one will whisk you away. My

lft's keep

> dropping, not quite to normal but ~300 to ~250 to ~200 to ~175 ,

today they

> were about 160, but my ALPH was 1500! Oh well.

>

> Good luck with you fact finding mission!

> nne, I forget where you live, is there a transplant center

close to

> you?

> Patty

>

> [ ] Thank you

>

>

> Patty and Jerry,

>

> Thanks for responding....I do appreciate it so much.

>

> Jerry, I know you have posted regarding the normal LFT/bad liver

> before, but always thinking " that'll never be me " the information

> never really sunk in. (I guess I forgot to tell ya'll that my

other

> name is the Queen of D'enial)So I take it that means my liver had

> been working really hard to get better, but it isn't able to

> anymore...and the lowering LFT's were perhaps more indicative of

its

> worsening? Is that a correct interpretation?

>

> The article on portal hypertension was very interesting. I just

love

> it that my pressure gradient has reached the " clinically

significant "

> stage...how very special....geeze.

>

> I have more questions for my hep now (after reading what he handed

me

> and what I am learning here) than I did on Friday...I am dropping

him

> a note to ask a few and see what the labs they drew on Friday show.

I

> already know, based on the doc's notes he gave me, that my PTT is

> prolonged, so I need now to see if that is still the case and what

> the albumin serum is. Actually, the rheumy drew labs on Thursday

and

> those results might be ready sooner. Well, least I know which

> additional markers to ask about.

>

> Thanks once again.

>

> Love yas

>

> nne

>

>

>

>

>

>

>

>

[Guest guest]

Thanks again, Jerry, <<Hugs>>

Love,

nne

> nne...Patty beat me to it... but with the info you gave us you

> should be having an evaluation to get listed for Tx. Ask your doc

about

> that too.... I love you.......jerry

[Guest guest]

Thanks Lori! You are a terrific young lady. I wish you much success.

Dana

Thank You

Dear Dr. Rutledge,

I just wanted to take a moment to thank you and the entire High Point

staff for an incredible experience. I think Dana is amazing and so very

compassionate! She answered every little question or concern either

myself or my Mom had. I am so thrilled that I was moved to High Point

and had the opportunity to work with her. The entire nursing staff at

the hospital was wonderful and very, very competent. I had the utmost

confidence in their abilities because they were so very professional.

Specifically, , Cedrick and Shane were amazing! As you are well

aware, the decision to undergo weight loss surgery is a big one and not

one I entered into lightly. I must admit, I was a little nervous going

into the day of surgery, but after meeting you, Dr. Dasher, and Dana, I

felt completely at ease and all nervousness vanished.

Even through one bad spout of pain on Friday afternoon, Dana and Dr.

Dasher were extremely quick to respond, knew exactly what I needed, and

most importantly, they were also able to calm my fears that something

might be wrong. Their experience and professionalism were unmatched,

and I know I could not have received better care anywhere in the world.

>From the moment I contacted your staff months ago to the present, I

have been amazed at the level of respect, concern and utter compassion

that I've felt from each and every CLOS person I've worked with. I

commend you on your entire staff and thank you from the bottom of my

heart. I know that my life has been changed for the better for having

met and worked with all of you. I will stay in close touch and hope to

attend the summer picnic later this year. I am doing well and feeling

great. I know patients probably send you these letters all the time,

but I just can't express to you how thankful I am and what an incredible

gift you are giving to people through your work. I will be eternally

grateful and if I can ever do anything to assist you, please don't

hesitate to ask me.

Thank you again!

Lori Young

[Guest guest]

--- Hello Lee,

It is never too late to have CI implant and not even too old to

have it either. I had mine last October 2002 and am almost 66 in

September. I was like you growing up pretending hearing but not hear

at all. I am so pleased with my CI and felt like a new person.

Good luck with your endeavor.

Best regards,

Jane Motrinec

Med El 10/6/02 at Unv. of Miami

In , spottedlee@a... wrote:

> I want to thank all of you who tried to help me this past couple

days. I

> have read the 2, not 3 sites cuz one of them were wrong URL but the

two site i

> read was overwleming........ one say that their studies shows those

with about

> 10% understanding of communication skyrocketed to 80% at 3 months

and 90% at 6

> months........ that is AMAZING!

>

> Am I seeing no more long cord to emabarass myself? Now it is all

at ear

> level?

>

> I spend 46 years with zero speech discrimination (speech

undertsanding), its

> scary but the thought of going though with it...... its

overwhleming........

> may be too late to hear my children crazy music listening........

but...... not

> too late for grandkids!

>

> It my future grandchildren that got me into thinking of it.......

my own

> kids, i understand them....... they will soon move out.....have

children of their

> own,,,,, i fear i won't understand them. I dont want family to

fall apart.

>

> I am also soooooooo tired of being caught in " no man " land......

being deaf

> yet i grew up brainwashed to be " hearing " when i am not hearing,

yet i dont

> feel belonging to deaf world.

>

> I do have a deaf sister, like me, she had thought of it for a long

time.

>

> Thank you all for giving me a head start!...i will email my doc

this morning

> to make a referal to two places in Seattle that I was told about.

>

> Lee

>

>

>

>

[Guest guest]

So come over to Silverdale on Sunday!

Jo

>

> To everyone who answered my questions. However, the

> calendar does not show anything for Seattle through

> October.

[Guest guest]

BG, come on up to Everett for our next soup night. It is Tues, Sept 23rd at

Providence Hospital in Everett. The calendar has the details (time,

address, etc.) Hope to see you there.

Barb S. in Monroe

4-11-02 Dr. Oh

300/187/150

barbooch@...