Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 Thanks for your reply. I was just told last Tuesday about my ABPA. I am taking Prednisone now and will see about the Xolair next week. asperqu <asperqu@...> wrote: > > richard--that is probably one of the things triggering my asthma. Mold and I am sensitive to aspergilliosis. I am taking prednisone, and intal and flovent. Are you taking xolair now? Leigh > > > Hey guys, Everyone is different and needs to consult their own dr, but let me tell you my story. I was hospialized several times with severe asthma.I did mega doses of oral and IV steroids,advair,and xolair. The steroids screwed up my immune system,I ended up with MRSA, enterobacter and aspergillis in my lungs. The aspergillis literally distroyed 2/3's of my left lung. It had to be surgically removed and the remaining lung rebuilt. My infectious disease dr is a genius. He believed the aspergillis had been there a while; we don't know how long. The low immune system gave it a chance to take off. He thinks I had ABPA before the surgery, and unfortunately, after the resection. I continued to have problems and ended up with aspergillis in a disc and 2 vertebra. I had a pic line and took IV Casperfungin for 6mos. The really strange thing that as the infection in my back resolved, so did the asthma. I had a flare up last winter but that was it. Now, I take xolair and THAT'S IT!!! I haven't used my nebs or other meds in 10 mos. My drs tell me they have never seen anything like me. I can't believe I'm saying this but the aspergillis in my back was one of the best things to happen to me. I don't think my treatment was a normal way to deal with ABPA. Just PLEASE be careful with steroids. becki Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.