Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 i just thought i'd pass this along. i know some of us experience highs/lows with our allergy symptoms -- having more symptoms right before our next xolair dose. my dr asked the xolair rep today about it, since she's seen a definate pattern with my symptoms over the past few months (my allergies, eczema and asthma all get a little worse just before the xolair, as the previous dose wears off). the rep said she's heard of it happening in other patients (duh), but right now, xolair isn't sure what to do with the information. they're apparently testing higher doses, but who knows what that means for us. heather sidenote --- anyone here with eczema?? have you tried mimyx cream?? apparently, its shown helpful when combined with ellidel and eucerin or something like that. i tried it by itself and wasn't impressed (especially since i'd have a $50 copay for 140 gram tube). the dr gave me more samples and wants me to try it with the ellidel and eucerin. just wondering if anyone else tried it and what you thought of it. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Check out pics of cape the wonder dog (because we always wonder what we'll pull out of his mouth next!) http://snipurl.com/z18j (updated 10/06 ) If you can find a path with no obstacles, it probably doesn't lead anywhere. ~ A. --------------------------------- Check out the all-new beta - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2006 Report Share Posted November 28, 2006 >It makes you wonder if the dosages should either be more frequent or based on body fat per centages in addition to the total body weight. I also wonder if we need it every 10 days in the beginning to suck up all of the circulating ige? Also, my dose is 225 every 2 weeks. Since it is packaged in 150 and 300 vials, that means 75mg are going to waste every 2 weeks. Leigh > i just thought i'd pass this along. i know some of us experience highs/lows with our allergy symptoms -- having more symptoms right before our next xolair dose. > > my dr asked the xolair rep today about it, since she's seen a definate pattern with my symptoms over the past few months (my allergies, eczema and asthma all get a little worse just before the xolair, as the previous dose wears off). the rep said she's heard of it happening in other patients (duh), but right now, xolair isn't sure what to do with the information. they're apparently testing higher doses, but who knows what that means for us. > > > heather > > > sidenote --- anyone here with eczema?? have you tried mimyx cream?? apparently, its shown helpful when combined with ellidel and eucerin or something like that. i tried it by itself and wasn't impressed (especially since i'd have a $50 copay for 140 gram tube). the dr gave me more samples and wants me to try it with the ellidel and eucerin. just wondering if anyone else tried it and what you thought of it. > > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > Check out pics of cape the wonder dog > (because we always wonder what we'll pull out of his mouth next!) > http://snipurl.com/z18j (updated 10/06 ) > > > If you can find a path with no obstacles, it probably doesn't lead anywhere. > ~ A. > > > > > > > > --------------------------------- > Check out the all-new beta - Fire up a more powerful email and get things done faster. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 , This is exactly the reason my doc added the 75mg booster 1/2 way through the month. My 150 would only last 2 weeks. I couldn't come anywhere near 1 month being symptom free. Then during the 2nd month Xolair was completely ineffective. The 3rd month I'd get another good 2 weeks and that pattern would continue. Once the 75 was added it's been smooth sailing. I have a feeling the standardized dose won't work for everyone, which isn't surprising. Everyone responds differently to different meds. heather <heaven1975@...> wrote: i just thought i'd pass this along. i know some of us experience highs/lows with our allergy symptoms -- having more symptoms right before our next xolair dose. my dr asked the xolair rep today about it, since she's seen a definate pattern with my symptoms over the past few months (my allergies, eczema and asthma all get a little worse just before the xolair, as the previous dose wears off). the rep said she's heard of it happening in other patients (duh), but right now, xolair isn't sure what to do with the information. they're apparently testing higher doses, but who knows what that means for us. heather sidenote --- anyone here with eczema?? have you tried mimyx cream?? apparently, its shown helpful when combined with ellidel and eucerin or something like that. i tried it by itself and wasn't impressed (especially since i'd have a $50 copay for 140 gram tube). the dr gave me more samples and wants me to try it with the ellidel and eucerin. just wondering if anyone else tried it and what you thought of it. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Check out pics of cape the wonder dog (because we always wonder what we'll pull out of his mouth next!) http://snipurl.com/z18j (updated 10/06 ) If you can find a path with no obstacles, it probably doesn't lead anywhere. ~ A. --------------------------------- Check out the all-new beta - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
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