evil candy, dust and mold, and safety of self administration of xolair

[Guest guest]

The evil candy destroys some people. I was at my allergist's office today and

one guy was there has developed severe food allergies after taking just a 30 day

course of prednisone. He can tolerate only 6 to 8 foods now and that is it. It

weakened his immune system.

I have had 2 rounds of xolair and it seems as if I " notice " dust and mold more

now but maybe they are just more noticeable at this time of the year.

Round 3 is the day after Christmas.

My pulmonologist has his patients to self-administer after the 3rd round. Do

most doctors go this route? Leigh

asperqu <asperqu@...> wrote:

Oh can I relate to this one! My thyroid bit the dust aout 7 years

ago.The steroids send my thyroid levels soaring.(the highest was

52;normal is less than 4) Unlike diabetes, correcting a TSH isn't

immediate, it takes about 6 wks. There is a website called the

steroid warning network; everyone there has dealt with the side

effects of the evil candy. They were a BIG help to me. I was in the

hospital with half a lung looking like swiss cheese,(aspergillis

destroyed it) and my O2 sats never dropped below 95%. I even had

some RN's think I was faking the severity of my attacks;until they

listened to my lungs! Xolair is worth every cent just to keep me off

the evil candy.

becki

> >

> > I have Hashimoto's Hypothyroidism and wonder if others also have

an

> > auto-immune issue. I have seen a few of you mention diabetes.

Does

> anyone

> > know if Xolair will have an impact on that part of our immune

system.

> > Basically my body attacked my thyroid and has partially

destroyed it.

> >

> > Also has anyone seen an impact on something like Hashimoto's and

> bouncing on

> > and off steroids - including the inhaled and oral? My menstrual

> cycles are

> > all messed up too and I think it is all connected to the

increased

> steroid

> > intake. Problem is that thyroid hormone replacement is checked

> monthly or

> > every 3 months while the steroid bursts have been 5-15-25 days in

> length at

> > times? My inhaled use increased from 100/50 once a day to a year

later

> > 500/50 twice a day of Advair and I did seem to need more

supplement.

> But we

> > haven't checked since the prednisone bursts. I feel like a yo-yo

at

> times

> > with the steroids.

> >

> > Does anyone have a good resource for women/asthma/pre-menopausal?

> What side

> > effects belong to what? Right now I am assuming I am having

steroid

> > triggered hot flashes, but I would love to talk to other women in

> the same

> > boat. Is there a good loop or board for those kind of questions?

> >

> > Thanks,

> >

> > B.

> >

> >

> >

> >

[Guest guest]

Self-administration of Xolair now depends just as much on the

insurance carrier as the doctor. When Xolair first came out, some

insurance carriers in my state would not cover for the cost of

administering the shot, so a lot of us got switched to self-

administration. Some doctors and insurance carriers are to " afraid "

for lack of a better word to do that. I gave myself my own allergy

shots for years, so it was not a big deal for me to give myself

Xolair. Now the shipment comes directly to my house, not to the

doctor's office. I get the maximum dose, and it takes about 30

minutes to make up all three vials, so there's a huge cost to any

doctor's office who has a number of patients on Xolair to continue to

administer it to them at the office.

> > >

> > > I have Hashimoto's Hypothyroidism and wonder if others also

have

> an

> > > auto-immune issue. I have seen a few of you mention diabetes.

> Does

> > anyone

> > > know if Xolair will have an impact on that part of our immune

> system.

> > > Basically my body attacked my thyroid and has partially

> destroyed it.

> > >

> > > Also has anyone seen an impact on something like Hashimoto's and

> > bouncing on

> > > and off steroids - including the inhaled and oral? My menstrual

> > cycles are

> > > all messed up too and I think it is all connected to the

> increased

> > steroid

> > > intake. Problem is that thyroid hormone replacement is checked

> > monthly or

> > > every 3 months while the steroid bursts have been 5-15-25 days

in

> > length at

> > > times? My inhaled use increased from 100/50 once a day to a

year

> later

> > > 500/50 twice a day of Advair and I did seem to need more

> supplement.

> > But we

> > > haven't checked since the prednisone bursts. I feel like a yo-

yo

> at

> > times

> > > with the steroids.

> > >

> > > Does anyone have a good resource for women/asthma/pre-

menopausal?

> > What side

> > > effects belong to what? Right now I am assuming I am having

> steroid

> > > triggered hot flashes, but I would love to talk to other women

in

> > the same

> > > boat. Is there a good loop or board for those kind of questions?

> > >

> > > Thanks,

> > >

> > > B.

> > >

> > >

> > >

> > >

[Guest guest]

I am going to find a doctor who will administer the injections to me.

pyle456 <coachmac@...> wrote: Self-administration of

Xolair now depends just as much on the

insurance carrier as the doctor. When Xolair first came out, some

insurance carriers in my state would not cover for the cost of

administering the shot, so a lot of us got switched to self-

administration. Some doctors and insurance carriers are to " afraid "

for lack of a better word to do that. I gave myself my own allergy

shots for years, so it was not a big deal for me to give myself

Xolair. Now the shipment comes directly to my house, not to the

doctor's office. I get the maximum dose, and it takes about 30

minutes to make up all three vials, so there's a huge cost to any

doctor's office who has a number of patients on Xolair to continue to

administer it to them at the office.

> > >

> > > I have Hashimoto's Hypothyroidism and wonder if others also

have

> an

> > > auto-immune issue. I have seen a few of you mention diabetes.

> Does

> > anyone

> > > know if Xolair will have an impact on that part of our immune

> system.

> > > Basically my body attacked my thyroid and has partially

> destroyed it.

> > >

> > > Also has anyone seen an impact on something like Hashimoto's and

> > bouncing on

> > > and off steroids - including the inhaled and oral? My menstrual

> > cycles are

> > > all messed up too and I think it is all connected to the

> increased

> > steroid

> > > intake. Problem is that thyroid hormone replacement is checked

> > monthly or

> > > every 3 months while the steroid bursts have been 5-15-25 days

in

> > length at

> > > times? My inhaled use increased from 100/50 once a day to a

year

> later

> > > 500/50 twice a day of Advair and I did seem to need more

> supplement.

> > But we

> > > haven't checked since the prednisone bursts. I feel like a yo-

yo

> at

> > times

> > > with the steroids.

> > >

> > > Does anyone have a good resource for women/asthma/pre-

menopausal?

> > What side

> > > effects belong to what? Right now I am assuming I am having

> steroid

> > > triggered hot flashes, but I would love to talk to other women

in

> > the same

> > > boat. Is there a good loop or board for those kind of questions?

> > >

> > > Thanks,

> > >

> > > B.

> > >

> > >

> > >

> > >