Re: Talked to my Xolair nurse today and.....

[Guest guest]

That rumor's been going around for a while, now. They'll have to

find a way to stabilize it as a liquid before they can do that....

Addy

>

> As I got my 2 bi weekly shots orf superglue, She mentioned that

there

> is talk going around that in the near future, Xolair will come in

an

> Epi-Pen form so patients can self inject. Has anyone else heard

this?

>

> HALLELUJAH! I hope it is soon. My doctor's clinic has to charge me

> 114.00 a shot (224.00 every 2 weeks, 448.00 monthly) and they are

not

> in my insurance network. $$$$$$ outta my one pocket.

>

> My doctor and his clinic are the BEST! Probably the nicest, caring

> and most friendly doctors office I have ever been to in my life.

> Everyone who works there knows patients by their first name. Its

soo

> nice!

> I just wish they were in network with my BCBS. sigh!

>

> Praying this is true,

> Doug

>

[Guest guest]

i agree with addy though,

they'd have to come up with a liquid that can last more than 6-8 hours.

I have been through this topic before but here I go again. sigh!

I asked my xolair nurse and the doctor the same question. They looked

at me horrified at such a suggestion. I told them that several others

on this board were allowed to give them to themselves. They said: " you

have to be kidding. What if they have a bad reaction? "

Yes, there are less than a handful of reactions even recorded; this

includes the FDA trials.

My doctor is very picky and safe with his patients. I do like that;

but the amount the people that own his practice charge is what blows my mind. My

specialty pharmacy sends them everything they need to give the shot, needles and

everything. Each time I come in, I am weighed, BP taken, blow into a peak flow

meter, and questions asked about how I was the past 2 weeks. I guess they are

charging for 2 full office visits; one for each shot.

His owners then charge 114.00 a shot and it's reported on my insurance claim as

a " chemotherapy injection. " Yes, someone has already explained how they can call

it that, but it sure would be a lot more convient and less expensive to the

patient if he/she could give the shots to themselves.

As you can tell, I am kind of touchy on this subject. I don't mind all the

attention they give me every 2 weeks. It is rather nice, however the problem is

the cost. It costs me quite a bit of money just to get all that attention.

My allergist is the only doctor within 150 miles who will give this injection

and his parent clinic HATES my Blue Cross insurance. Yes, they really do hate

blue cross. (Email me for the story!) I

have to pay most of the cost myself.

Broke but breathing

Doug

[Guest guest]

I thought my doc would be game for me to do it at home. I prep the stuff and

inject myself in the office so I thought it would be kosher. I asked and he was

like ok, just once and have someone there. He knows someone who reacted to

Remicaide (another biologic with way more side effects) and is simply nervous

since he has little experience with xolair (I am patient # 1). I could inject it

at work though but bringing 1400$ of meds to the hosp where I work makes me

nervous too!!!

[Guest guest]

I thought paying a $20 copay every week (allergy + Xolair) was bad!

I have heard about the Epi-Pen form, but I don't think it will make it

where doctors will feel comfortable for patients to self-eject because of

the chance of a reaction. However, after three years of Xolair and no

reaction, one would think that self-injections would be OK! Has there

been a poll on how many self-injects Xolair?

uca79iii <uca79iii@...> wrote:

As I got my 2 bi weekly shots orf superglue, She mentioned that there

is talk going around that in the near future, Xolair will come in an

Epi-Pen form so patients can self inject. Has anyone else heard this?

HALLELUJAH! I hope it is soon. My doctor's clinic has to charge me

114.00 a shot (224.00 every 2 weeks, 448.00 monthly) and they are not

in my insurance network. $$$$$$ outta my one pocket.

My doctor and his clinic are the BEST! Probably the nicest, caring

and most friendly doctors office I have ever been to in my life.

Everyone who works there knows patients by their first name. Its soo

nice!

I just wish they were in network with my BCBS. sigh!

Praying this is true,

Doug

---------------------------------

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[Guest guest]

>

> I thought paying a $20 copay every week (allergy + Xolair) was bad!

> I have heard about the Epi-Pen form, but I don't think it will

make it

> where doctors will feel comfortable for patients to self-eject

because of

> the chance of a reaction. However, after three years of Xolair

and no

> reaction, one would think that self-injections would be OK!

Has there

> been a poll on how many self-injects Xolair?

>

You got it (wink)

Doug