Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Hi Larry, Things just have to get better for us all. Sometimes I say things that I don't really mean from the bottom of my heart, but at the time I may think I feel that way. I have 4 children, of course I am glad to be here and want to be around for a long long time/ At least long enough to see my children have children so I can spoil them and send them home to their mommy and daddy. So I can see how they becomewhen they are really grown instead of thinking they are.Ha Ha Ha. There is so much to look forward to in life. I know there are many times I wish it would all end, but the truth is just the pain,I hope I didn't make up upset, sometimes the pain makes me say things without thinking how others will take it, or bring them down too. I know this is really hard to deal with, and it really sucks that we have to deal with it I just keep telling myself that everything happens for a reason, maybe I am going through this so my children won't, or maybe so they will keep on trying to find away to help others. After all we all find something here or there that makes us feel alittle better from time to time, a hot bath a pill, a good rub in the right spots, a new baby being born, or something specail that we might not of seen if we didn't feel like this. Don't give up on hope, tell your wife to give you a hug for me and you give her one back. Well I'll let you go now, and I'll keep you and everyone out there in my prays Thank you Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 This is so sad, that we all have to go through so much, to get some relief. Sometimes it works, and sometimes it doesn't. We don't know if it will and when it does,if any, then we have to wonder how long it will last, and if it feels better, are we really hurting ourselves more, just because they gave us something to help the pain not hurt so much. I had my first epidural shot on Dec.31st, and I had been praying so hard to let it help me. I have heard so many others say it only did for a few months, and some say it didn't at all. Well I really felt so luckly after I had mine, I thought boy I was worried over nothing. Well the good part was for two days I felt pretty damn good, not all the pain was gone, but way more then half of it was. The dr. said it could take up to 5 days, each day it will feel better. I was really looking forward to that. Well the 3rd day it started hurting more, I still thought it was still going to get better. Well it has been hurting me so much more I think, I just don't know what to expect anymore. I have been try to get disability sence Feb. of last year, they have turned me down twice, how can they go by what our dr. says, mine told me I can go back to work, I can't even get around to taking showers, shopping, taking care of my childern and one is only 6 1/2 months old.If I could do ant kind of work and get paid for it don't they think I would, before lossing everything that I've worked sooooo hard for. Now they want to ask others how I feel, and what can I do? Just ask me, my children, my friends and family. Just come live in my house for a week and see how much I can and can't do. Give me test and hook me up to monitors to see what it takes out of me, there are other ways to do this then to put us through all this bull. They make this go on and on as long as they can. Sometimes I just don't feel I can go on anymore. I have tried going back to work, I have tried babysetting, the pain just isn't worth it. I don't feel I have a life any more, I am only here to feel the pain and hear and watch my life go by me, and I can't get into it. I am sorry if I am not making much sence, I get like this a lot anymore. thanks for your time Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Vicki Hang in there, I think most of us go through times of despair just like you do. I recently attended a chronic pain group and I was surprised that so many people out there are suffering so much. Just try to do what you can and there is always hope for better care and less suffering tomorrow. Right now try to take it a day at a time. meg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 vicki hi its Larry i have been trying since last feb. my dr says he wants an MRI and i can't afford due to not working so disa. is out the window so in short were living on my wife's income and needless to say its only 400.00 a month but she manages apartments so it helps some. vicki i know what you feel. i sometimes wonder why we even bother gettin out of bed and some of us its a struggle just to do that. i too wish some times i hadn't even been born . if i knew i would be left like this for the rest of my life i just assume not be here. pain every day . the only thing that changes is the date on my calender. so yeah im right there with ya girl and i know we are not alone. its just not right and not fair especially when some one else put you in this situation i hate it. well nothing else really to add but i hate this. i want my life back and its gone forever....Larry My heart gose out to you all > This is so sad, that we all have to go through so much, to get some > relief. Sometimes it works, and sometimes it doesn't. We don't know > if it will and when it does,if any, then we have to wonder how long > it will last, and if it feels better, are we really hurting ourselves > more, just because they gave us something to help the pain not hurt > so much. I had my first epidural shot on Dec.31st, and I had been > praying so hard to let it help me. I have heard so many others say it > only did for a few months, and some say it didn't at all. Well I > really felt so luckly after I had mine, I thought boy I was worried > over nothing. Well the good part was for two days I felt pretty damn > good, not all the pain was gone, but way more then half of it was. > The dr. said it could take up to 5 days, each day it will feel > better. I was really looking forward to that. > Well the 3rd day it started hurting more, I still thought it was > still going to get better. Well it has been hurting me so much more I > think, I just don't know what to expect anymore. > I have been try to get disability sence Feb. of last year, they have > turned me down twice, how can they go by what our dr. says, mine told > me I can go back to work, I can't even get around to taking showers, > shopping, taking care of my childern and one is only 6 1/2 months > old.If I could do ant kind of work and get paid for it don't they > think I would, before lossing everything that I've worked sooooo hard > for. Now they want to ask others how I feel, and what can I do? Just > ask me, my children, my friends and family. Just come live in my > house for a week and see how much I can and can't do. Give me test > and hook me up to monitors to see what it takes out of me, there are > other ways to do this then to put us through all this bull. They make > this go on and on as long as they can. Sometimes I just don't feel I > can go on anymore. I have tried going back to work, I have tried > babysetting, the pain just isn't worth it. I don't feel I have a life > any more, I am only here to feel the pain and hear and watch my life > go by me, and I can't get into it. I am sorry if I am not making much > sence, I get like this a lot anymore. > thanks for your time Vicki > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Vicki, Just like the other responses I too can share in your madness and pain. Fortunately for people like us there are chat boards and groups we can turn to when we are having bad times, hitting really low points and are just frustrated to the point of exhaustion. Quick background on me so you know I've been there, Aug 02, had emergency laminectomy and discectomy on the disc between L4/L5 after rupturing it moving furniture. It didn't work, missed time off work, tried phyiscal therapy, tried cortisone shots, all the while having intense pain which affected every aspect of my life from sleep, to working, to simple things like taking a shower or sitting, standing or walking more then 5 minutes without excruciating pain!! Two and a half weeks ago on Dec 22, had my second back surgery, this time spinal fusion of the L4/L5 level with ALIF the method of surgery, which means they went in through the front, took the disc, inserted spacers where the disc used to be and filled in the gaps with bone marrow and other properties. The pain is still here, not as bad, but I developed a bad case of hip bursitis as a result of my posture and walking and sitting habits changing to diminish my back pain. Now I face 6 months out of work, tons of rehab, and just hope and pray the pain ends completely or as much as possible so I can return back to my once active lifestyle. So there you have it, we can all identify and certainly sympathize with what you are going through, feel free to vent or ask questions anytime as we are are hear for one another and whatever you do, do not give up! We've got to remember that there is always someone else out there with it worse and we have to be grateful for what we have..... In my thoughts and prayers, > This is so sad, that we all have to go through so much, to get some > relief. Sometimes it works, and sometimes it doesn't. We don't know > if it will and when it does,if any, then we have to wonder how long > it will last, and if it feels better, are we really hurting ourselves > more, just because they gave us something to help the pain not hurt > so much. I had my first epidural shot on Dec.31st, and I had been > praying so hard to let it help me. I have heard so many others say it > only did for a few months, and some say it didn't at all. Well I > really felt so luckly after I had mine, I thought boy I was worried > over nothing. Well the good part was for two days I felt pretty damn > good, not all the pain was gone, but way more then half of it was. > The dr. said it could take up to 5 days, each day it will feel > better. I was really looking forward to that. > Well the 3rd day it started hurting more, I still thought it was > still going to get better. Well it has been hurting me so much more I > think, I just don't know what to expect anymore. > I have been try to get disability sence Feb. of last year, they have > turned me down twice, how can they go by what our dr. says, mine told > me I can go back to work, I can't even get around to taking showers, > shopping, taking care of my childern and one is only 6 1/2 months > old.If I could do ant kind of work and get paid for it don't they > think I would, before lossing everything that I've worked sooooo hard > for. Now they want to ask others how I feel, and what can I do? Just > ask me, my children, my friends and family. Just come live in my > house for a week and see how much I can and can't do. Give me test > and hook me up to monitors to see what it takes out of me, there are > other ways to do this then to put us through all this bull. They make > this go on and on as long as they can. Sometimes I just don't feel I > can go on anymore. I have tried going back to work, I have tried > babysetting, the pain just isn't worth it. I don't feel I have a life > any more, I am only here to feel the pain and hear and watch my life > go by me, and I can't get into it. I am sorry if I am not making much > sence, I get like this a lot anymore. > thanks for your time Vicki Quote Link to comment Share on other sites More sharing options...
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