Guest guest Posted August 2, 2008 Report Share Posted August 2, 2008 Before you attend a consultation with Dr Peatfield, he needs you to complete the "Dr Peatfield Questionnaire" that you will find on our website www.tpa-uk.org.uk. Look in the right hand column on the Home Page, click on 'Update Dr peatfield's metabolic clinics' and at the top of the page that opens, you can click on his 'Questionnaire'. Print this out, complete it and take it with you when you see him. It is best that you a full thyroid function test that includes TSH, Free T4, Free T3, thyroid antibodies before you see him, and take those with you. It would also be a good idea to get the 24 hour saliva adrenal profile to see whether you have a problem with your adrenals, but this is not necessary perhaps until you have seen him. It is an expensive test and Dr P may be able to tell whether you have a problems with low adrenal reserve by a physical test, so wait to see what he says about this one. It is always a good idea to make a list of your symptoms (check with those on our website, under 'Hypothyroidism') and take your basal temperature for at least 5 days before you get out of bed and list those for Dr P too. Hope this helps. Luv - Sheila I will phone dr re thyroid function test results and let you know. What happens at his metabolic clinic? What tests does he do? I have real probs too with temperature controll.---In thyroid treatment , "sheilaturner" <sheilaturner@...> wrote:>> .. No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.10/1585 - Release Date: 01/08/2008 06:39 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2010 Report Share Posted February 12, 2010 Hi Welcome to the group. You say youve treated before, and I assume you were a non-responder? There is new treatments comming out that do involve the I/R TX, but also a Protease Inhibitor. This is supposed to boost SVR levels to 80%+. I dont know if or when it will be approved in NZ, but its supposed to be approved in the USA within the next year. Lots of other things are in the pipeline too. Anti-virals that work alone, vaccines, etc. I try to post research updates and news everyday. You can go to the links archieves [folders 000B], and read what has already been posted. Lots of interesting stuff. http://health.dir./group/ /links You can browse the rest of the links library also. We have tons of websites, and info listed for your research on various topics of HCV. Please feel free to ask questions or comment. Sharing is how we all keep informed. love don in ks From: <gkroberts@...>Subject: [ ] just joined Date: Friday, February 12, 2010, 3:06 PM Thanks for the invite to speak. I am and I live in AucklandNew Zealand. I have known that I am hep c positive since 1994. I havebecome good at managing my symptoms and hope one day for a cure that doesnot involve interferon........been there done that. I have long timerecovery in a 12 Step fellowship so abstinence is great for the liver. Ihad twins in 1996 and one produced the anti bodies while the other wasclear. Thank god neither are positive. I did not realise the impact of hepc in those days. I was told it was nothing to worry about. So I am allears.Regards ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 Welcome , I'm in 12 steps group too. Got sober in 97 and then went out to cry in my beer, mostly over failed marriage and failed treatment. Got so bad I had to make a decision whether todie or live. Made the right one. Anyway, I'm fairly new here too, so it's good to see a lot of people responding and posting to this group. Hope to hear from you again soon.RandyOFrom: <gkroberts@...> Sent: Fri, February 12, 2010 1:06:10 PMSubject: [ ] just joined Thanks for the invite to speak. I am and I live in Auckland New Zealand. I have known that I am hep c positive since 1994. I have become good at managing my symptoms and hope one day for a cure that does not involve interferon.. ......been there done that. I have long time recovery in a 12 Step fellowship so abstinence is great for the liver. I had twins in 1996 and one produced the anti bodies while the other was clear. Thank god neither are positive. I did not realise the impact of hep c in those days. I was told it was nothing to worry about. So I am all ears. Regards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2010 Report Share Posted February 13, 2010 A Big Welcome !!Lawd, those twins would be 14 now???At this point, what is the prognosis with your liver? Do you get regular enzyme tests and even viral readings? Have you had a liver biopsy yet to show more how well your liver is??By the way, I too am in 12 step recovery and have been for a very long time. In fact, I don't believe that I was exposed to the Hep C until just before I quit drinking for good. Also, I believe that it is the only reason that I am still alive.Gloria Thanks for the invite to speak. I am and I live in Auckland New Zealand. I have known that I am hep c positive since 1994. I have become good at managing my symptoms and hope one day for a cure that does not involve interferon.. ......been there done that. I have long time recovery in a 12 Step fellowship so abstinence is great for the liver. I had twins in 1996 and one produced the anti bodies while the other was clear. Thank god neither are positive. I did not realise the impact of hep c in those days. I was told it was nothing to worry about. So I am all ears. Regards The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 Hello, my name is Kim and I'm so glad I'm part of the group here now. So my boyfriend and I got into a car accident a little while ago. I escaped the accident with a laceration to the face that needed stitches and a concussion. I was the lucky one! To make a long story short he got 4 MRIs about 15-20 herniated discs. I have never heard of anything like this, nor can I find anything about this many disc herniations. He is in severe pain everyday. Physical therapy isn't working and his pain meds are not really working anymore. He is only 25 years old. He saw an orthopedic surgeon who seemed kind of crazy who said he would so surgery to fuse all of them. Would surgery even be able to fix that? I was thinking fusing might make the rest of his unaffected discs more painful, but I don't know I have no clue.A lot of doctors also seem baffled on what to do. Has anyone ever heard of this many herniated discs? If so, what did that person do? Thanks so much! These are the MRI reports, keep in mind that he is only 25 years old: Cervical: C2/3 through C5/6 disc hydration loss seen. C3/4 posterior subligamentous disc bulge. Left sided uncinate productive change is also noted at this level. C4/5 diminished disc space height with posterior disc bulge impressing ventral CSF C5/6 posterior disc herniation impressing ventral CSF Thoracic: T1/2 right sided posterior peripheral disc bulge is seen. T2/3 right paracentral disc herniation is seen impressing the ventral thecal sac T3/4 and T4/5 peripheral left sided posterior disc bulges are noted. T5/6 left paracentral and preforaminal shallow disc protrusion gently indents anterior thecal sac. T7/8 focal central and slightly left to center shallow disc protrusion gently indents anterior thecal sac. T8/9 focal right paracentral disc protrusion gently indents anterior thecal sac. T9/10 focal right paracentral disc protrusion gently indents anterior thecal sac. Lumbar: L4/5 broad-based posterior disc herniation with ventral thecal sac deformity L5/S1 small posterior disc herniation indenting the thecal sac *Straigtening of the lumbar lordosis is noted, suggesting reflex muscle spasm. Bilateral Hips: Trace amount of right and left hip joint fluid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2010 Report Share Posted August 18, 2010 Where did the accident happen and how long ago? Sounds like you need to be at a trauma hospital with trauma doctors who are more accustomed to seeing this type of injury. Secondly, you only have two years to file a lawsuit against the other person involved if the accident was multiple car accident and if he was not the driver at fault. What State are you in? Look on the internet for trauma centers near you and look for neurosurgeons that work for those trauma centers and get him to one of those doctors. Also get a good accident attorney if he was not at fault. I don't have a lot of time to respond right now....I have not worked in medical just have 40 years of experience being on the other side of medical issues. My expertise is in law...not an attorney, but a paralegal. Email me if you have any questions. and Deb are the ones on here and I think one other that are nurses and also have experience with their own back issues. I hope he feels better soon. Tell him not to make quick decisions regarding surgery without discussing it with a lot of people and getting more than one opinion, but on the other hand do not let it go too long so that it causes lasting nerve damage. Barb > > Hello, my name is Kim and I'm so glad I'm part of the group here now. So my boyfriend and I got into a car accident a little while ago. I escaped the accident with a laceration to the face that needed stitches and a concussion. I was the lucky one! To make a long story short he got 4 MRIs about 15-20 herniated discs. I have never heard of anything like this, nor can I find anything about this many disc herniations. He is in severe pain everyday. Physical therapy isn't working and his pain meds are not really working anymore. He is only 25 years old. He saw an orthopedic surgeon who seemed kind of crazy who said he would so surgery to fuse all of them. Would surgery even be able to fix that? I was thinking fusing might make the rest of his unaffected discs more painful, but I don't know I have no clue.A lot of doctors also seem baffled on what to do. Has anyone ever heard of this many herniated discs? If so, what did that person do? Thanks so much! > > These are the MRI reports, keep in mind that he is only 25 years old: > > Cervical: > > C2/3 through C5/6 disc hydration loss seen. > C3/4 posterior subligamentous disc bulge. Left sided uncinate productive change is also noted at this level. > C4/5 diminished disc space height with posterior disc bulge impressing ventral CSF > C5/6 posterior disc herniation impressing ventral CSF > > Thoracic: > > T1/2 right sided posterior peripheral disc bulge is seen. > T2/3 right paracentral disc herniation is seen impressing the ventral thecal sac > T3/4 and T4/5 peripheral left sided posterior disc bulges are noted. > T5/6 left paracentral and preforaminal shallow disc protrusion gently indents anterior thecal sac. > T7/8 focal central and slightly left to center shallow disc protrusion gently indents anterior thecal sac. > T8/9 focal right paracentral disc protrusion gently indents anterior thecal sac. > T9/10 focal right paracentral disc protrusion gently indents anterior thecal sac. > > Lumbar: > > L4/5 broad-based posterior disc herniation with ventral thecal sac deformity > L5/S1 small posterior disc herniation indenting the thecal sac > *Straigtening of the lumbar lordosis is noted, suggesting reflex muscle spasm. > > Bilateral Hips: > > Trace amount of right and left hip joint fluid > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 Welcome. I went 21 years before finding this site and only recently joined. I wish I had known about it sooner. I've discovered new ways to trick my esoph into swallowing. Good luck. Faith Sent from my iPod On Apr 25, 2012, at 21:29, " " <jackierteacher@...> wrote: > I just joined the site and I am thankful I found it. I have never been so frustrated about getting an answer from doctors. This desease is really scary. But, I am having surgery on Friday May 4th. I hope everything goes well. I am at mt wits end! I am really glad that there are others out there for support. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 Hi all, I just joined too and am still negotiating the group layout. I had my chest opened for a myotomy about 44 years ago (I was 14) and am going to a specialist again in June. I didn't realize I've been having spasms all these years until I woke up with one last night and put 2 & 2 together after reading info here. I thought it was bad heartburn lol. Thank you for all the information and some great laughs in various posts. Looking forward to learning more! > > > I just joined the site and I am thankful I found it. I have never been so frustrated about getting an answer from doctors. This desease is really scary. But, I am having surgery on Friday May 4th. I hope everything goes well. I am at mt wits end! I am really glad that there are others out there for support. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2012 Report Share Posted April 26, 2012 Welcome to the group. Good luck on your HM.  Suzanne From: <jackierteacher@...> Subject: Just joined achalasia Date: Wednesday, April 25, 2012, 10:29 PM  I just joined the site and I am thankful I found it. I have never been so frustrated about getting an answer from doctors. This desease is really scary. But, I am having surgery on Friday May 4th. I hope everything goes well. I am at mt wits end! I am really glad that there are others out there for support. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2012 Report Share Posted April 26, 2012 Welcome Faith  Suzanne From: joneslov <slovejoy@...> Subject: Re: Just joined achalasia Date: Thursday, April 26, 2012, 12:41 AM  Hi all, I just joined too and am still negotiating the group layout. I had my chest opened for a myotomy about 44 years ago (I was 14) and am going to a specialist again in June. I didn't realize I've been having spasms all these years until I woke up with one last night and put 2 & 2 together after reading info here. I thought it was bad heartburn lol. Thank you for all the information and some great laughs in various posts. Looking forward to learning more! > > > I just joined the site and I am thankful I found it. I have never been so frustrated about getting an answer from doctors. This desease is really scary. But, I am having surgery on Friday May 4th. I hope everything goes well. I am at mt wits end! I am really glad that there are others out there for support. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2012 Report Share Posted April 26, 2012 Welcome to our family. I can understand how you feel. If you would like to talk over the phone I would be willing to answer any question you might have. in Georgia Sent from my iPhone On Apr 25, 2012, at 22:29, " " <jackierteacher@...> wrote: > I just joined the site and I am thankful I found it. I have never been so frustrated about getting an answer from doctors. This desease is really scary. But, I am having surgery on Friday May 4th. I hope everything goes well. I am at mt wits end! I am really glad that there are others out there for support. > > > > > TODAY(Beta) • Powered by > Funny picture of bored spectator goes viral > Privacy Policy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2012 Report Share Posted April 26, 2012 Welcome ,  Good luck with your surgery Friday May 4h. I too was at the end of my rope before surgery so I can really relate. I hope you have a good experienced surgeon. It really turned things around for me, the best thing I ever did, now I can eat!!!!  Keep us posted  Julee in Oregon ________________________________ From: <jackierteacher@...> achalasia Sent: Wednesday, April 25, 2012 7:29 PM Subject: Just joined  I just joined the site and I am thankful I found it. I have never been so frustrated about getting an answer from doctors. This desease is really scary. But, I am having surgery on Friday May 4th. I hope everything goes well. I am at mt wits end! I am really glad that there are others out there for support. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2012 Report Share Posted May 1, 2012 Welcome . I wish you the best of luck with the surgery.  Kim A Wi ________________________________ From: <jackierteacher@...> achalasia Sent: Wednesday, April 25, 2012 8:29 PM Subject: Just joined  I just joined the site and I am thankful I found it. I have never been so frustrated about getting an answer from doctors. This desease is really scary. But, I am having surgery on Friday May 4th. I hope everything goes well. I am at mt wits end! I am really glad that there are others out there for support. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2012 Report Share Posted May 1, 2012 Welcome to the group. There are many people here who offer a wealth of knowledge. , and Notan seem to be very knowledgeable, and countless others. I learned more here than from doctors I have gone to. I don't post too often but do my best to read all the posts.  I first had symptoms in December of 2010 and mine started out with what I was convinced was heartburn, after I realized it wasn't a heart attack. I didn't have trouble swallowing until 6 months later. It started one year ago today for me. Out of the blue , I was eating lunch at my desk at work and couldn't get my food down. It is heartbreaking what some people go through with this Good luck  Kim A Wisconsin ________________________________ From: joneslov <slovejoy@...> achalasia Sent: Wednesday, April 25, 2012 10:41 PM Subject: Re: Just joined  Hi all, I just joined too and am still negotiating the group layout. I had my chest opened for a myotomy about 44 years ago (I was 14) and am going to a specialist again in June. I didn't realize I've been having spasms all these years until I woke up with one last night and put 2 & 2 together after reading info here. I thought it was bad heartburn lol. Thank you for all the information and some great laughs in various posts. Looking forward to learning more! > > > I just joined the site and I am thankful I found it. I have never been so frustrated about getting an answer from doctors. This desease is really scary. But, I am having surgery on Friday May 4th. I hope everything goes well. I am at mt wits end! I am really glad that there are others out there for support. > > > > > > > Quote Link to comment Share on other sites More sharing options...
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