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In message <001a01beddfb$7a67b7e0$0da8fcd1@rjiredff>, Livermore

<Evan217@...> writes

>Hi,

>

>Just wanted to know if anyone with Achondroplasia sees a chiropractor and if

>it has helped you?

For what its worth, I tried an osteopath, and when I told my doctor he

hit the ceiling.

Now I know better. It is EXTREMELY dangerous for Achons to use these

people IF they are not used to us, or haven't got x-rays to guide them.

Our spines are so vulnerable, that the sort of 'contortions' an

osteopath or chiropractor wishes to put us through could have VERY bad

consequences.

For me, the worst was when he put me in a headlock, said " relax " then

twisted my head sharply to the side. We have fused bones up there! Not

to mention the narrow gap.

Then he had me laid on the bed, on my side. He again asked me to relax.

He had one hand on my shoulder, one on my hip. With a swift movement

moved my top half in the opposite direction to the bottom half.

Again, our lower spines are, to say the least, very vulnerable!

I know, I know, several people on here have been to such people and

swear by them. Personally, I consider I got away without permanent

damage by the skin of my teeth.

fred Short

Fred@...

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  • 4 years later...

In a message dated 11/4/2003 7:47:33 AM Eastern Standard Time,

cadavis@... writes:

Everyone has different opinions on Chiropractors. I will give you mine. I

think if you problem is very minor or mostly muscular, they can help. But

the adjustment should bring relief. If it does not and you have been going

for months, I think you are wasting your time.

Your chiropractor is NOT QUALIFED to tell you if you need surgery or not.

Go see a Medical doctor. Go see a neurosurgeon. Then go see another

neurosurgeon completely different and see what he says.

I don't know what injections you are getting. But ask your new neruo doctor

about epidurial injections by an anethesiologist. They can sometimes work

wonders. They helped me for a little while.

You say you have nausiea, I wonder if you issue is the disk for c3/c4. My

disk caused nausia also.

Nerves are very complicated. Go see someone who really understands them.

It is very very good to keep tring everything other than surgery. For me, I

went with surgery after a year of different things. Also, have your medical

doctor get you into physical therpy. Did not work for me but some people

have great results.

_____

Hi From what I understand mine is in C5-6 and there was something else in

c3-4. For me right now when I go to the Chiropractor I get relief for maybe 30

min now. I really do like him but I feel he isn't able to help me as much. As

to the trigger point injections I am not sure what they use, all I know is it

numbs that muscle and should last I have been told a week but for me

30-60min.

JOy

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In a message dated 11/4/2003 8:05:58 AM Eastern Standard Time,

KChar23027@... writes:

The help and advise you have described just doesn't sound right to me. Do

you have an ortho or neuro surgeon? If not, I would get a referral from your

family doctor or someone you know and let them decide what is the best route

to

take in helping you get better. I have had two discectomies for a herniated

L5S1 and am scheduled for a fusion next. All three times the above

procedures

where followed. I hope you will see one of these kinds of surgeons for the

help you so obviously need.

Good Luck,

Casey

Casey,

First off let me clear up one thing I took the report to my Chiropractor

yesterday for him to interpret what it said. He wanted a copy to begin with.

I do have an Orthopedic and he is the one that sent me for the MRI. Honestly,

I wish I had went to him for the whole back problem two years ago after the

car accident. My chiropractor says B Complex helps repair nerve damage and

that will help me with my hands. Of course the nerve test said I had mild

corporal tunnel and it picked up a compressed nerve in the neck that is why the

MRI

was done. The first pain specialist I went to did do the radio frequency

leasing, which is melting the nerve so I would not feel pain. That did work for

over a year but now I am told it has regenerated and that is why I have the

pain, all this told to me by my chiropractor. I have been on anti inflammatory

for over two years now. They keep switching them after a while when one is not

working. You know actually in the beginning of the year I told my

chiropractor about the pain shooting down my arms, in fact I even went to my

cardiologist not knowing what it was at that time, he just said I needed Vitamin

B

complex. He is big on all the vitamins. As I sit here I really don't know if I

am

doing the right thing by staying with him and listening to him. I like the doc

tor and his staff but right now I need relief and I can't let this rule my

life like it has. Especially since this is getting worse every day.

Joy

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In a message dated 11/4/2003 8:16:08 AM Eastern Standard Time,

plg2010@... writes:

Joy,

I have had 13 years of experience with various chiropractors. I have found

one that is quite good and very responsible. While he will look at my scans and

such and read them - he is qualify to do so from extra training - he knows

that only a surgeon can make ANY statements about surgery. Also, if you have had

trouble moving your hands, that is quite serious. The guy I go to would barely

touch me when I was in a state like that. He sent me home to ice the area for

days, then looked at me again. He said that if the loss of control did not go

away, he could not do an adjustment and would send me to a neurosurgeon. I

think that you need to get away from this particular chiropractor. He being

extremely irresponsible in my opinion. I agree with you need to see

surgeon or at least a neurology specialist. There are a number of neurologist

D.O.'s

in my area. I don't know if that is a trend everywhere but D.O.'s are

conservative in their treatment which may be what you want.

Patty

<cadavis@...> wrote:

Everyone has different opinions on Chiropractors. I will give you mine. I

think if you problem is very minor or mostly muscular, they can help. But

the adjustment should bring relief. If it does not and you have been going

for months, I think you are wasting your time.

Your chiropractor is NOT QUALIFED to tell you if you need surgery or not.

Go see a Medical doctor. Go see a neurosurgeon. Then go see another

neurosurgeon completely different and see what he says.

I don't know what injections you are getting. But ask your new neruo doctor

about epidurial injections by an anethesiologist. They can sometimes work

wonders. They helped me for a little while.

You say you have nausiea, I wonder if you issue is the disk for c3/c4. My

disk caused nausia also.

Nerves are very complicated. Go see someone who really understands them.

It is very very good to keep tring everything other than surgery. For me, I

went with surgery after a year of different things. Also, have your medical

doctor get you into physical therpy. Did not work for me but some people

have great results.

Patty,

After listening to you and several others especialy a friend of mind that

is partialy paralyzed as a result of a bulging disc, I will definitely try to

find a neuroseurogin today and try to get an appointment. I remember someone

telling me that s Hopkins was good so I will do a search for there. I live

in MD. I am not sure who is good and who isn't. Part of me sits here even

debating about going to the pain specialist today. I am just so afraid of

something being done that could cause more problems. Of course he probably will

have more to say than my chiropractor. I myself am surprised that my

chiropractor has not referred me else where. It seems he is so sure that he can

cure

me. He did refer me to the pain specialist, but I got to say he didn't seem

too happy when I said I went to the Orthopedic and not him for things. My

Orthopedic I have been to for years because of my knees, which he has done

surgery

on both. So while there I asked him about my hands which he believed maybe

caused by my neck. Thank God I went to him. My medical doctor was doing blood

tests every two weeks to figure out what was wrong and then she referred me to

a rheumist but I asked the Orthopedic doctor if he can treat me for it. You

know when my chiropractor found out he said, 'You never said anything to me

about it " No I didn't this time that is. Right now he does do ultra sound but

that isn't even helping.

Joy

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In a message dated 11/4/2003 8:47:24 AM Eastern Standard Time,

sweetdreamsk9@... writes:

Joy...my suggestion would be to not see the chiropractor until you have

discussed all this with your doctor. When I had a herniated disc, I was told by

my

doctor that chiro would make it worse. But doctors differ...so the best thing

would be to go with waht the doc says.

Vivian H.

Thanks vivian. You know yesterday I got to say I had no relief at all from

seeing him. Usually, I am okay for a little while. I will definitely talk to

my Orthopedic to see what he thinks right now. Unfortunately, I don't see him

till tomorrow.

Joy

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Everyone has different opinions on Chiropractors. I will give you mine. I

think if you problem is very minor or mostly muscular, they can help. But

the adjustment should bring relief. If it does not and you have been going

for months, I think you are wasting your time.

Your chiropractor is NOT QUALIFED to tell you if you need surgery or not.

Go see a Medical doctor. Go see a neurosurgeon. Then go see another

neurosurgeon completely different and see what he says.

I don't know what injections you are getting. But ask your new neruo doctor

about epidurial injections by an anethesiologist. They can sometimes work

wonders. They helped me for a little while.

You say you have nausiea, I wonder if you issue is the disk for c3/c4. My

disk caused nausia also.

Nerves are very complicated. Go see someone who really understands them.

It is very very good to keep tring everything other than surgery. For me, I

went with surgery after a year of different things. Also, have your medical

doctor get you into physical therpy. Did not work for me but some people

have great results.

_____

From: donjoy3@... [mailto:donjoy3@...]

Sent: Tuesday, November 04, 2003 6:57 AM

spinaldisorderssupport

Subject: Chiroprator

Hi,

I was wondering on what everyone's' feelings are regarding Chiropractors

for helping with the back pain. I have been going for over two years and

right

now I am at my worse. He read my MRI results yesterday and said there is a

bulging disc in my neck and I wouldn't need surgery. He believes that

vitamin b

complex and his adjustments will help it. Right now I am doubtful it will

help, I guess it is because I am in so much pain right now. I told him

yesterday I can't put my neck down to my chest for it causes me to be

nauseous. The

doctor that ordered the MRI I see on Wed. My right hand I am having an even

harder time now with. Again the chiropractor thinks it will get better once

the

neck calms down. The problem is I am on the fourth month now of the problem

with my hands and it is getting worse not better, My neck the pain is so bad

right now and pain medications are not helping. Today I see a pain

specialist

that my chiropractor is advising me to go to. He is supposed to give me

trigger point injections. For me they don't work, For approximately one

hour I

will not have pain. They say it helps make it looser. So any suggestions

at

this point. I will let you all know what the pain specialist says after he

reads

the MRI report. I am curious to hear his interpretation too. At this point

I am ready to keep looking till I find someone that can stop the pain.

Right

now I can't work for the pain is bad. This hour drive to day is going to be

hell. Wish there was someone closer to me at that.

Joy

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I couldn't have said it better myself. There is one more thing though to

think about, sometimes those chiropractic measures can worsen things. I had

asked about going to one after I found out my neck/disk problems..and was told

by the neuro surgeon....absolutely not. I never saw one so I cannot say one way

or another, but by hearing it from more than one neuro doc that they can harm

you if you have disc issues, I'd never go.

Chiroprator

Hi,

I was wondering on what everyone's' feelings are regarding Chiropractors

for helping with the back pain. I have been going for over two years and

right

now I am at my worse. He read my MRI results yesterday and said there is a

bulging disc in my neck and I wouldn't need surgery. He believes that

vitamin b

complex and his adjustments will help it. Right now I am doubtful it will

help, I guess it is because I am in so much pain right now. I told him

yesterday I can't put my neck down to my chest for it causes me to be

nauseous. The

doctor that ordered the MRI I see on Wed. My right hand I am having an even

harder time now with. Again the chiropractor thinks it will get better once

the

neck calms down. The problem is I am on the fourth month now of the problem

with my hands and it is getting worse not better, My neck the pain is so bad

right now and pain medications are not helping. Today I see a pain

specialist

that my chiropractor is advising me to go to. He is supposed to give me

trigger point injections. For me they don't work, For approximately one

hour I

will not have pain. They say it helps make it looser. So any suggestions

at

this point. I will let you all know what the pain specialist says after he

reads

the MRI report. I am curious to hear his interpretation too. At this point

I am ready to keep looking till I find someone that can stop the pain.

Right

now I can't work for the pain is bad. This hour drive to day is going to be

hell. Wish there was someone closer to me at that.

Joy

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> Unfortunately, I don't see him till tomorrow. <

It is still a step in the right direction. Let us know what he says tomorrow and

what happens at pain management today!

Vivian H.

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Yes, for me, I had a bone spur that was now pushing on the framil nerve due

to the disk failure. When the Chiropractor adjusted or I went out and ran

or moved my head side to side, the bone spur was being dragged across the

nerve causing inflammation. So the Chiropractor could in no way help, only

hurt. I only went to one of these guys and I am sure there are great ones,

but my chiropractor insisted I had a soft tissue problem and spine alignment

issue and needed to see me 3-4 times a week for a year to fix.

In the end, the neuro got it right and fixed the issue. Well, I am still

recovering from surgery 8 weeks ago but I think I have eliminated the issue,

a bad disk and bone spur.

_____

From: Ascher [mailto:wascher@...]

Sent: Tuesday, November 04, 2003 10:36 AM

spinaldisorderssupport

Subject: Re: Chiroprator

I couldn't have said it better myself. There is one more thing though

to think about, sometimes those chiropractic measures can worsen things. I

had asked about going to one after I found out my neck/disk problems..and

was told by the neuro surgeon....absolutely not. I never saw one so I

cannot say one way or another, but by hearing it from more than one neuro

doc that they can harm you if you have disc issues, I'd never go.

Chiroprator

Hi,

I was wondering on what everyone's' feelings are regarding Chiropractors

for helping with the back pain. I have been going for over two years and

right

now I am at my worse. He read my MRI results yesterday and said there is

a

bulging disc in my neck and I wouldn't need surgery. He believes that

vitamin b

complex and his adjustments will help it. Right now I am doubtful it will

help, I guess it is because I am in so much pain right now. I told him

yesterday I can't put my neck down to my chest for it causes me to be

nauseous. The

doctor that ordered the MRI I see on Wed. My right hand I am having an

even

harder time now with. Again the chiropractor thinks it will get better

once

the

neck calms down. The problem is I am on the fourth month now of the

problem

with my hands and it is getting worse not better, My neck the pain is so

bad

right now and pain medications are not helping. Today I see a pain

specialist

that my chiropractor is advising me to go to. He is supposed to give me

trigger point injections. For me they don't work, For approximately one

hour I

will not have pain. They say it helps make it looser. So any suggestions

at

this point. I will let you all know what the pain specialist says after

he

reads

the MRI report. I am curious to hear his interpretation too. At this

point

I am ready to keep looking till I find someone that can stop the pain.

Right

now I can't work for the pain is bad. This hour drive to day is going to

be

hell. Wish there was someone closer to me at that.

Joy

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We (my husband and i) believe whole heartedly in chiros for certain ailments,

but i also dont feel they are miracle workers and they cant fix everything. My

dh got down with his back 3+ wks ago and when we were out of options we sought

the help of a local chiro that was treating him with some noninvasive therapy.

He was working on muscles and nerves for the most part doing excercises and stim

therapy. Then adjusting the spine and disks via lumbar traction and some sort

of thing that would hit dhs bones with 3 lbs pressure to attempt and turn

everythign back into place without physically adjusting him. He was confident

that dh had a buldging disk and that he could treat and fix him. Dh did always

feel tons better when he saw him daily, but it was only a matter of hours before

his pain was back. It was wonderful for managing his pain from day to day but

as far as fixing his problem, we just didnt see it happening. When after 2

weeks seeing him there was no real improvement other than temporary we

discontinued the chiro and started seeking the advice of his neurosurgeon. The

neurosurgeon did a myelogram and ct scan (today) and determined that the

" buldging disk " is in fact not buldging but is ruptured. As confident as the

chiro was, and as confident as we were in him, the fact is he never would have

been able to " fix " dh. We are now waiting on Laminotomy/Microdiscectomy surgery

to be scheduled.

I do believe chiros do alot of good for alot of people and alot of situations,

but honestly if youve been continuing treatment for months and you are not

finding the relief you need or expect and or your condition is worsening, then

its time to seek other avenues and advice.

Best wishes! :)

~~TinaMarie

www.GoldenMagnolias.com

From: donjoy3@a...

Date: Tue Nov 4, 2003 5:57 am

Subject: Chiroprator

Hi,

I was wondering on what everyone's' feelings are regarding Chiropractors

for helping with the back pain. I have been going for over two years and right

now I am at my worse. He read my MRI results yesterday and said there is a

bulging disc in my neck and I wouldn't need surgery. He believes that vitamin b

complex and his adjustments will help it. Right now I am doubtful it will

help, I guess it is because I am in so much pain right now. I told him

yesterday I can't put my neck down to my chest for it causes me to be nauseous.

The

doctor that ordered the MRI I see on Wed. My right hand I am having an even

harder time now with. Again the chiropractor thinks it will get better once the

neck calms down. The problem is I am on the fourth month now of the problem

with my hands and it is getting worse not better, My neck the pain is so bad

right now and pain medications are not helping. Today I see a pain specialist

that my chiropractor is advising me to go to. He is supposed to give me

trigger point injections. For me they don't work, For approximately one hour I

will not have pain. They say it helps make it looser. So any suggestions at

this point. I will let you all know what the pain specialist says after he

reads

the MRI report. I am curious to hear his interpretation too. At this point

I am ready to keep looking till I find someone that can stop the pain. Right

now I can't work for the pain is bad. This hour drive to day is going to be

hell. Wish there was someone closer to me at that.

Joy

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