Guest guest Posted March 27, 2002 Report Share Posted March 27, 2002 In a message dated 3/27/02 6:27:53 AM Pacific Standard Time, writes: Hi, I was recently (about two weeks ago) told that I have AIH and am actually having a liver biopsy tomorrow (3/27/02) I have had elevated liver functions for quite some time and pretty serious fatigue. They told me that I had a positive ANA blood test. Is that in combination with the liver function tests enough for a diagnosis? Or is the biopsy the confirmation. I think the doctor said that the biopsy would stage the progression of the disease. Anyway, I came across this group when I was doing my research on AIH and thought I would see what it was all about. Im a bit overwhelmed by it all. There are a lot of sites with info out there but they seem to say pretty much the same thing, steroids... Does this mean im going to ultimately need a liver transplant??? Is that what happens to most people? ANy input would be appreciated. Thanks in advance, Cheri Cheri, I only have a moment to write before I go out, but I wanted to say hello. First, most people with AIH do NOT need liver transplants. And most, if they receive conventional treatment, live a normal life span. A biopsy further confirms the diagnosis of AIH. Although not even a biopsy will give you a 100% certainty, it will allow the doctor to be virtually certain. Prednisone with Imuran or similar drugs is necessary for most people. More later. Harper (AIH dx 5/00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2002 Report Share Posted March 27, 2002 In a message dated 3/27/02 6:27:53 AM Pacific Standard Time, writes: Hi, I was recently (about two weeks ago) told that I have AIH and am actually having a liver biopsy tomorrow (3/27/02) Cheri, I'm back -- sorry to be so abrupt, but I have an appointment in a few minutes. Best wishes on the biopsy. It really isn't painful for most people. Remember to be quiet afterwards. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2002 Report Share Posted March 27, 2002 In a message dated 3/27/02 6:27:53 AM Pacific Standard Time, writes: Harper, Saturday, Sunday, and Monday, my computer apparently received a virus that my Norton did not contain. Therefore, I spent the days trying to backup my files....(I keep telling myself that it is importnat to back up stuff). Unfortunately, I lost all of my favorites...now I have to wait for people to let me know where to go! Oh well...could be worse...at least I saved my email lists! Anyway, I was frantic to not be able to have the support from this group! I was glad when I got back up and going again~ debby I'm glad you're back, Debby. I heard from someone else (not in the group) this morning who has this virus -- on her computer in a museum! She's got problems. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2002 Report Share Posted March 27, 2002 In a message dated 3/27/02 6:27:53 AM Pacific Standard Time, writes: that...broth...but I can't have broth because most of it has wheat. I do have some chicken broth, but it has fat in it, so that is out....so guess I will just drink pepsi, pineapple drinks, etc.....and mix it wish crushed ice so that it is like a slushy debby Debby, check with your doctor to make sure those drinks are okay. You don't want to mess up the test because of a drink. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2002 Report Share Posted March 27, 2002 In a message dated 3/27/02 6:27:53 AM Pacific Standard Time, writes: the docs will find it while they do the degrading colonoscopy A colonoscopy is NOT degrading. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2002 Report Share Posted March 27, 2002 In a message dated 3/27/02 6:27:53 AM Pacific Standard Time, writes: Oh yes, I have never been on steroids and I have bone thinning, this scares me more than the AIH. I am wondering if I should just let the AIH continue with out treatment at times? What would happen? Having a hip replacement or spinal surgery could be very difficult for me. I am only 47 and have not had the change. I know I am in for a journey. Thanks again Lynn in Rochester, NY Lynn, I have only a moment to write. You MUST have the treatment if your symptoms are severe. A few people have such a marginal case of AIH that they don't need treatment, but that's the exception. And you can't go on and off the treatment, as I understand it. Talk to your doctor and find out for sure why you aren't having a biopsy. Ask about Fosamax for the bone thinning. More later. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2002 Report Share Posted March 27, 2002 This was a new virus called somelike Klez.bmm or something like that. It was identified by AVG, but not by norton, so for now, I am taking my chances and using AVG instead of norton..... debby Re: [ ] Digest Number 2173 In a message dated 3/27/02 6:27:53 AM Pacific Standard Time, writes: Harper, Saturday, Sunday, and Monday, my computer apparently received a virus that my Norton did not contain. Therefore, I spent the days trying to backup my files....(I keep telling myself that it is importnat to back up stuff). Unfortunately, I lost all of my favorites...now I have to wait for people to let me know where to go! Oh well...could be worse...at least I saved my email lists! Anyway, I was frantic to not be able to have the support from this group! I was glad when I got back up and going again~ debbyI'm glad you're back, Debby. I heard from someone else (not in the group) this morning who has this virus -- on her computer in a museum! She's got problems. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 He can eat crackers in my bed anytime! Leslye Digest Number 2173 Rose who believes that Dinklage can eat crackers in her bed anytime. (Get your paws off him, ! He's mine!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2005 Report Share Posted November 10, 2005 Wow, , thank you so much for that huge wealth of information. I will print it out and work with it as I order the supplements and try new things in my quest for health. I know it must have taken you a long time to write all of that up and I deeply appreciate your hard work. As an aside, I just read in my thyroid book ( and Karilee Shames' book, Thyroid Power) that almonds are a thyroid inhibitor and I eat almond butter almost every morning on rice bread that I bake, so that will have to be changed. Also, it said that sorghum and tapioca are thyroid inhibitors and I use those flours in the rice bread, so I'll have to be looking for a new recipe. I do get chiro adjustments 3 times a week and would be miserable without his help. He was the first doctor to suggest thyroid investigation several years ago, although not being a medical doc., he couldn't order the tests. He has helped me stay away from back and neck surgery, and now that I am going to get my thyroid in better shape, I should heal better. I am so glad I didn't do the back and neck surgery because the last two surgeries (kidney stones and I forgot the other one) I had, I stopped breathing and had breathing problems for 24 hours afterward and just read that hypothroidism can cause these problems with anesthesia. Because of this, I had to do a colonoscopy without anesthesia-loads of fun-ha ha. Anyway, thank you again for your help. It gives me hope that you could have gotten so much better that you can do your daily life and take the time and have the energy to type up such a huge amount of information. I appreciate your gift to me and the list. Thank you, Quote Link to comment Share on other sites More sharing options...
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