Re: TIPS/Enceph...dietary guidelines

[Guest guest]

Hi Jerry,

Thanks for the info. I don't know anyone with a liver shunt. I am

hoping it will help.

Protocol from here is an ultra sound in a few weeks. Some endoscopy

along the way (just to have a look see) with months between them. Consider

balooning the opening again in about TWO YEARS (radiologist). So the

prognosis sounds good, less frequent visits, with hope of staying on this

liver another 5-10 years if possible.

My Gastro says that I might still have esophogeal bleeds. Hope fully

less frequent and less severe. He will treat them as needed. The new

guidelines for liver transplant listing changed last year, so unless my

liver goes to Childs C or they can't control the bleeds then I won't even

need to meet with the transplant team yet.

I went back to work today. My employer trades off for having someone

available to make 6am timely openings and I get to work only 2 hours. She

gets her needs met and I get mine. I really haven't been cleared medically,

but two hours to me is like a trip to the grocery store.

The concerns now are kiddney failure with the surgery, infection and

encephalophathy. My Gastro refuses to modify my diet. Says I need the

protein (my liver needs it). He says if and when I get to the brain cloud

stage he will put me on a drug to help. My radiologist disagrees and thinks

I should watching my protein intake now.

Anyone with Encephalophy or at risk of this had to deal with this

dietary issue?

Thanks again for asking about me Jerry.....

Jen

On Wed, 3 Jan 2001 00:50:58 -0500 (EST), egroups wrote:

> Jen.... I`m glad you were able to get a TIPS it should help you

> immensely. It is just so strange I never had talked to anyone who had

> that procedure... then after reading your posts about it I went to an

> A.A. meeting tonite where I was introduced to a guy who had just had one

> done, He showed me the scar on his neck, He had his to allleviate

> ascites. He has advanced cirrhosis and is supposed to get his beeper

> Jan. 20.... He said the TIPS really helped him a lot. It was a little

> odd because he said he never had any bleeds but was being treated for

> encephalopathy. The reason I asked if you had been listed because I

> thought that your problem with all the bleeding might induce them to

> move you up the scale I would think that they wouldn`t want to chance

> hemmorhaging. You would think that those who have serious problems like

> you would be listed now instead of waiting till end stage. I pray that

> all goes well and this procedure will stop the bleeding. But what is the

> prognosis? How long can you wear the shunt? Will they continue with

> endoscopies and banding or sclerosing?

> When I had cirrhosis my doctor was shy of performing that procedure as

> he thought it dangerous but that was 5-6 yrs. ago and I guess it`s more

> accepted now.

> Again I pray for your well-being and thanks for the info.

> Jerry

>

> Message-ID: <14710081.978475192365.JavaMail.imail@...>

> egroups

> From: Canfield <jcando@...>

> Date: Tue, 2 Jan 2001 14:39:52 -0800 (PST)

> Subject: Re: [ ] I'm OUT! Anyone here have a TIPS?

>

> Jerry, No I'm a Childs A level Cirrhosis. So I don't qualify till my

liver

> is in total failure (Childs C) or if the bleeding CAN't be stopped.

>

> Jen

>

> On Tue, 2 Jan 2001 11:19:08 -0500 (EST), egroups

wrote:

>

> > Jen ...are you on a transplant list?

> > jerry

> >

>

>

>

>

>

> _______________________________________________________

> Send a cool gift with your E-Card

> http://www.bluemountain.com/giftcenter/

>

>

>

>