Guest guest Posted February 3, 2001 Report Share Posted February 3, 2001 I AM VERY DISAPOINTED IN THIS GROUP, NO ONE ANSWERS MY QUESTIONS AND I AM DESPERATE!! I THOUGHT THIS WAS A SUPPORT GROUP, I WON'T BOTHER YOU ALL ANY MORE. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2001 Report Share Posted February 4, 2001 It takes a while to get replys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2001 Report Share Posted February 4, 2001 It takes a while to get replys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2003 Report Share Posted November 24, 2003 I am sorry I am new here myself, honey I don't know how I can help you I wish I could. But keep on trying and someone will know and they will be able to help you. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2003 Report Share Posted November 24, 2003 well i guess i won't get a response from this group thanks for nothing > > depends on where it is located. Can you specify? And what was > your surgery? > > wendy > > cervical myelopathy > > > > > > Hi my name is , I wondering if anyone else has this > condition > > and what it does to your body. I am post surgery i've look up > things > > on the internet but can't really find what i'm looking for. I > guess > > my main question is what is myelopathy and whats does it do? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2003 Report Share Posted November 24, 2003 im sorry you havent gotten a response yet and are unhappy This really is a great list for info and support, but theres alot of people here and sometimes when no one knows what to respond with, it just gets looked over. We do care though, and dont want to just ignore you. I saw your original post, but didnt see your follow up post until you replied with this. I dont know anything about the cervical area........i joined the list for support through my husbands issues with L5 S1 in his lower back.... I did look around for some cervical myelopathy info for you, and found some information you might find helpful, i hope i helped atleast in a small way, and i hope you can find some answers and a better way to relief from your symptoms and problems. My heart goes out to you and all of you here that deal with this on a daily basis with no answers. Just watching my husband in so much pain for 5 weeks broke my heart, and made me feel so incredibly helpless. Big comforting hugs to you all! here is the info for you: Cervical stenosis with myelopathy http://www.spine-health.com/topics/cd/overview/cervical/cerv03.html s Hopkins Transverse Myelitis Center http://www.hopkinsmedicine.org/jhtmc/ If you dont find what your looking for there, here is a google search i ran that has several links that explain the condition and treatment...you may better find something your looking there http://www.google.com/search?q=Cervical+Stenosis+with+Myelopathy & btnG=Google+Sea\ rch & hl=en & lr= & ie=UTF-8 & oe=UTF-8 ~~TinaMarie www.GoldenMagnolias.com cervical myelopathy > > > > > > Hi my name is , I wondering if anyone else has this > condition > > and what it does to your body. I am post surgery i've look up > things > > on the internet but can't really find what i'm looking for. I > guess > > my main question is what is myelopathy and whats does it do? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2003 Report Share Posted November 24, 2003 > well i guess i won't get a response from this group thanks for nothing < A little bit of patience and compassion for your fellow sufferers please. This list is really good about responding, but you have to cut them some slack. Most are dealing with the cold weather aches & pains as well as the holidays approaching, and their own health problems. Some times it may take a few days or even a friendly reminder that you are still out there. My problem is with my lumbar back and I have had surgery for it. I recently started having cervical problems but do not know a lot about that yet. I am also having some heart problems and took a back seat on all my lists and social activities...dealing with the fear, depression, tests, and doctors. Sorry I gave you nothing...but this group is really awesome when you give them a chance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2003 Report Share Posted November 24, 2003 I guess theres alot of reasons why people don't answer medical questions or exact definitions. For one it is illegal to give medical advice unless you are licensed to do so, and have actually examined the patient. This group is basically for support. And we try to support eachother alot. I did look up myelopathy, but there were so many descriptions for different areas, that it is best to ask your physician for the exact answers you are looking for. And if he doesn't phrase it in laymans terms, ask him too. Don't leave " uneducated " ...ask in another way, or say... " ok...now what does that mean...exactly " . If you look at the spine health website, there is alot of good info there. Or simply do a search in google, under cervical myelopathy. You may just find what you are looking for in websites that have been made by actual neuro physicians. I was curious though, as in your first request, you didn't mention where it was, thereby noone would be able to answer their experiences with it, so I suggested you go further in telling us where and what surgery you had, hoping someone here had similar diagnosis' or same situations. I do hope with everyone elses replies to some good websites, you took some time to look them over. Good luck to you, I know it is so frustrating wanting a pinpointed answer, and a pinpointed cure. I, as well as you, wish I had the answers, then I would not be here looking at everyone elses responses, and I'd be free from pain as well. But until that day comes, where theres a magic fix, we just support eachother as best we can. I'm sorry you looked to me for an answer. I did not intend to be the one answering, but only asked you to go further in explaining your situation. Hugs wendy cervical myelopathy > > > > > > Hi my name is , I wondering if anyone else has this > condition > > and what it does to your body. I am post surgery i've look up > things > > on the internet but can't really find what i'm looking for. I > guess > > my main question is what is myelopathy and whats does it do? > > > > > > Quote Link to comment Share on other sites More sharing options...
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