Re: Re: Question about bone harvesting

[Guest guest]

Hi All,

Thanks for the link, . It doesn't apply to a lot of us as we are so far out from our original surgery and many of us had our first surgery in adulthood. I have had increasing pain over the years from the bone graft site. I just spoke to my local orhto about it (he does adolescent scoli surgery but not revisions) and he was not at all surprised that I have so much pain from that area. He said that to get the bone from the iliac crest, they just about "destroy" the muscle. Also, my son's only complaint about his scoli surgery is recurring pain and numbness from the donor site. No doctor has ever offered any help for this pain, except for pain relief.

I wish the powers that be would do a long range study of this kind of pain.

As for cadaver bone, rest assured that donors are tested for the same diseases as blood donors.

Bonnie

[ ] Re: Question about bone harvesting

In case you have interest in how common the problem is:http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=16439918 & query_hl=1 & itool=pubmed_docsum--- In , "thegouldianlady2004"<alpine@...> wrote:>> I was wondering if any of you have pain from the bone harvesting from > your original harrington rod procedures. 21 years out I still have so > much pain from the bone graph site in my lower left hip in the back. > My curve was low enough in my back that Dr. Dawson was able to take > bone out of my backside instead of the front of my hip. Dr. LaGrone > said that there is nothing he can do for this pain. Is anyone > suffering from this? Does anyone have suggestions on how to ease this > pain? Dr. LaGrone also said that he would use cadaver bone for the > revision surgery. Is there any concern about contracting disease? > Does anyone know how this cadaver bone is cleaned/prepared before it's > inserted into our backs?>

[Guest guest]

,

I didn't mean that I didn't have this pain in the first year post-op. I did. It just never went away and has gotten worse over the years. And, no, I'm definitely am not confusing it with SI Joint pain. I'm just "lucky" enough to have both. I understand that they are starting to look into the long term effects of using the iliac crest donor site. For instance, there's a very small study in a regional journal, but nothing definitive yet. Also, google "Iliac Crest Syndrome".

Bonnie

[ ] Re: Question about bone harvesting

Wow, that's new to me. Is it possible that you're confusing S-I jointpain with iliac crest pain? Did anyone else who had no iliac crestdonor site pain in the first year or so after surgery develop painlater on? -->> Hi All,> > I have had increasing pain over the years from the bone graft site.

[Guest guest]

Hi Alpine,

You are definitely not alone! I know how you feel and I know how lonely it can feel at times. It is a big step you are taking and it will not be easy. But it is a positive step! You are doing this to help yourself. That's the best any of us can do. I will be thinking of you and praying for you.

Bonnie

[ ] Re: Question about bone harvesting

Are there any sites that talk about this pain in adults. I'm on the brink of tears today it's hurting so much. I'm also feeling emotional as I read everyone's stories, examine the pictures and think about my future with surgery scheduled for 6/26. I don't think I realized just how big and profound this is. There is real truth behind the statement "ingornace is bliss". Could I ask you to pray for me, I'm a mess today. My kids are in Mississippi on a mission trip with church rebuilding homes for Katrina victims and my husband is at work. I'm alone today with my thoughts which I would normally embrace because I don't get much alone time (I homeschool my daughter), but today the house is just too quiet. - Your Sister in Scoliosis......Alpine> >> > I was wondering if any of you have pain from the bone harvesting from > > your original harrington rod procedures. 21 years out I still have so > > much pain from the bone graph site in my lower left hip in the back. > > My curve was low enough in my back that Dr. Dawson was able to take > > bone out of my backside instead of the front of my hip. Dr. LaGrone > > said that there is nothing he can do for this pain. Is anyone > > suffering from this? Does anyone have suggestions on how to ease this > > pain? Dr. LaGrone also said that he would use cadaver bone for the > > revision surgery. Is there any concern about contracting disease? > > Does anyone know how this cadaver bone is cleaned/prepared before it's > > inserted into our backs?> >> > > > > > > > scoliosis veterans * flatback sufferers * revision candidates > > > >

[Guest guest]

Alpine,

You asked, <<<Bonnie - this is just SO BIG! How did you deal with it?>>>

One day at a time. Seek help. Try what seems reasonable. Try to stay positive and do whatever I need to stay positive. Smell the roses. Diversion (books - 2 book clubs), magazines, CSI, Bones, Grey's Anatomy, Desperate Housewives, The Sopranos,) first Paxil now Cymbalta and Oxycontin and Ambien, lie down every afternoon, stretching, hubby's help with shopping though he despises shopping, friends, this group, socialize, garden club even though I can't garden, the computer, family, keep as busy as possible. And hope and prayer.

Bonnie

[ ] Re: Question about bone harvesting

Thank you ladies for your prayers today. I sat down and began to journal. I'm still feeling blue but I am comforted by your concern and encouragement. I was hoping that this decision to have surgery wouldn't define who I am over these next few months. Something I'll have to work through. Spoke to my mother today, she and I don't see eye to eye on this decision. She's concerned about so much hardware in the body and just surgery in general, so there's not much support there. It is a blessing to come to this board and know that I am understood. Kathy, please get good rest tonight. Your working too hard! , I'm encouraged to hear that someone else cries to the OR. Thank you for telling me you all understand what I'm feeling. I'm scared!Bonnie - this is just SO BIG! How did you deal with it?I have a couple of questions - What is SI Joint pain? When I look at the pictures of ya'lls x-rays I need to learn what everything is and what I'm seeing. I understand the cages, but I don't know what I'm seeing in the side views (is the side view called sagittal?) those long spikes that are going into the back. What are those and what do they do? Thank you sweet ladies!Alpine> > >> > > I was wondering if any of you have pain from the bone > harvesting from > > > your original harrington rod procedures. 21 years out I still > have so > > > much pain from the bone graph site in my lower left hip in the > back. > > > My curve was low enough in my back that Dr. Dawson was able to > take > > > bone out of my backside instead of the front of my hip. Dr. > LaGrone > > > said that there is nothing he can do for this pain. Is anyone > > > suffering from this? Does anyone have suggestions on how to > ease this > > > pain? Dr. LaGrone also said that he would use cadaver bone > for the > > > revision surgery. Is there any concern about contracting > disease? > > > Does anyone know how this cadaver bone is cleaned/prepared > before it's > > > inserted into our backs?> > >> > > > > > > > > > > > > > > > scoliosis veterans * flatback sufferers * revision candidates > > > > > > > >

[Guest guest]

HI Alpine,

There sure are ups and downs aren't there? But we always get "up" again. Good for us - all of us!

Bonnie

[ ] Re: Question about bone harvesting

Bonnie - you sound like me! Busy, busy, busy. It must be the fact that this is spring break and no one has been around. I've been in a real funk and thinking what have I gotten myself into. I'm tired of being alone with my thoughts. Thank you for the encouragement. I feel everyone's prayers today. I'm calmer and the kids have gotten home. ) Hugs, Alpine> > > >> > > > I was wondering if any of you have pain from the bone > > harvesting from > > > > your original harrington rod procedures. 21 years out I > still > > have so > > > > much pain from the bone graph site in my lower left hip in > the > > back. > > > > My curve was low enough in my back that Dr. Dawson was > able to > > take > > > > bone out of my backside instead of the front of my hip. > Dr. > > LaGrone > > > > said that there is nothing he can do for this pain. Is > anyone > > > > suffering from this? Does anyone have suggestions on how > to > > ease this > > > > pain? Dr. LaGrone also said that he would use cadaver > bone > > for the > > > > revision surgery. Is there any concern about contracting > > disease? > > > > Does anyone know how this cadaver bone is cleaned/prepared > > before it's > > > > inserted into our backs?> > > >> > > > > > > > > > > > > > > > > > > > > > > > scoliosis veterans * flatback sufferers * revision > candidates > > > > > > > > > > > >