Re: Grrrrr I hate traveling in Boston.

[Guest guest]

Jolynn -

It's no comfort, but it's exactly like that on the West Coast. Driving anywhere where there's a population is horrendous, and as you know, the population is getting worse and worse by the minute everywhere. And it doesn't help when you are given directions by your hospital how to get there from the airport, and the exit you are supposed to get off of on the Interstate isn't there anymore due to construction! Then the streets you DO get off on are all one way when you aren't at all used to driving one way streets. (Did I say I love San Francisco? Grrrrr)

So good luck to you in Boston my friend. Just keep chanting to yourself "I will get there....I will get there....I will get there...." We finally did!

My Best -

~~

[Guest guest]

Jolyn,

Why not do a "Map Quest"? We use that all the time to get around, and it seems to work extremely well!

Carole M.

[Guest guest]

Jolynn,

I have never heard of Dr Rand seeing patients anywhere but New England

Baptist Hospital. Since he is going out on his own, perhaps his

relationships with other hospitals is changing? I just spoke with

Priscilla Friday and I know they have just completed a grueling move

up one floor to new offices in NEBH.

Boston is a bear to drive around and NEBH is no easier to find than

most places...but I just wanted to have you check in case you had the

wrong location written down and missed your appointment!....Cam

[Guest guest]

I went to Boston on vacation once a long time ago and I was amazed

that you could drive for miles without ever seeing a street sign. And

by the time you see a sign for your exit on the freeway, there is no

way to get over to the proper side to exit!

I am very good at reading maps, but we spent much of our time in

Boston, lost. We did go to some unintended interesting places, though.

[Guest guest]

HI Cam,

He sees patients there one day a week. They pushed me to the Tufts New

Engalnd Medical Center (where I think he teaches, but I may be wrong).

Dr. Rand may be interested in the Marfan Syndrome.

I can't help wonder why Priscilla worked to get me in so quickly and

told me what ever x-rays I did or did not have would be fine and that

he will get what he needs after he sees me. The week before I was told

I would have to send them MRIs and CT scans (which I do not have)to

even be considered for an appointment. I did ask to make sure I was

still covered and Priscilla said that she does all of the billing for

him, even from there, so it would still be covered.

I'll let you know how it goes on Friday (maybe saturday depending on

how lost I get)

Jolynn

>

> Jolynn,

>

> I have never heard of Dr Rand seeing patients anywhere but New

England

> Baptist Hospital. Since he is going out on his own, perhaps his

> relationships with other hospitals is changing? I just spoke with

> Priscilla Friday and I know they have just completed a grueling move

> up one floor to new offices in NEBH.

>

> Boston is a bear to drive around and NEBH is no easier to find than

> most places...but I just wanted to have you check in case you had

the

> wrong location written down and missed your appointment!....Cam

>

[Guest guest]

I hated going anywhere when we first moved here. The whole state of

Mass is like that. I know worcester and where I live. Even people who

live in Boston can't give directions because they are confused.

I'll have to trust that God will get me there because it certainly

won't be the street signs.

Jolynn

>

> I went to Boston on vacation once a long time ago and I was amazed

> that you could drive for miles without ever seeing a street sign.

And

> by the time you see a sign for your exit on the freeway, there is no

> way to get over to the proper side to exit!

>

> I am very good at reading maps, but we spent much of our time in

> Boston, lost. We did go to some unintended interesting places,

though.

>

[Guest guest]

Jolynn, I'm sure the phone call from your orthopedist made all the

difference.

That's new on me as well, that he sees patients at Tufts.

Sharon

[ ] Re: Grrrrr I hate traveling in Boston.

> HI Cam,

>

> He sees patients there one day a week. They pushed me to the Tufts New

> Engalnd Medical Center (where I think he teaches, but I may be wrong).

> Dr. Rand may be interested in the Marfan Syndrome.

> I can't help wonder why Priscilla worked to get me in so quickly and

> told me what ever x-rays I did or did not have would be fine and that

> he will get what he needs after he sees me. The week before I was told

> I would have to send them MRIs and CT scans (which I do not have)to

> even be considered for an appointment. I did ask to make sure I was

> still covered and Priscilla said that she does all of the billing for

> him, even from there, so it would still be covered.

>

> I'll let you know how it goes on Friday (maybe saturday depending on

> how lost I get)

>

>

> Jolynn

>

>

>

>

>

>>

>> Jolynn,

>>

>> I have never heard of Dr Rand seeing patients anywhere but New

> England

>> Baptist Hospital. Since he is going out on his own, perhaps his

>> relationships with other hospitals is changing? I just spoke with

>> Priscilla Friday and I know they have just completed a grueling move

>> up one floor to new offices in NEBH.

>>

>> Boston is a bear to drive around and NEBH is no easier to find than

>> most places...but I just wanted to have you check in case you had

> the

>> wrong location written down and missed your appointment!....Cam

>>

>

>

>

>

>

>

> scoliosis veterans * flatback sufferers * revision candidates

>

[Guest guest]

All they did was fax my notes. So I don't know.

> >>

> >> Jolynn,

> >>

> >> I have never heard of Dr Rand seeing patients anywhere but New

> > England

> >> Baptist Hospital. Since he is going out on his own, perhaps his

> >> relationships with other hospitals is changing? I just spoke

with

> >> Priscilla Friday and I know they have just completed a grueling

move

> >> up one floor to new offices in NEBH.

> >>

> >> Boston is a bear to drive around and NEBH is no easier to find

than

> >> most places...but I just wanted to have you check in case you

had

> > the

> >> wrong location written down and missed your appointment!....Cam

> >>

> >

> >

> >

> >

> >

> >

> > scoliosis veterans * flatback sufferers * revision candidates

> >

[Guest guest]

It can be a bear for sure. I find it helpful to get detailed maps. I've

found Mapquest helpful, but I've neve had to find Tufts N. E., so I can't

speak to that.

It isn't just MA, either. I think it's the entire New England region.

Sharon

[ ] Re: Grrrrr I hate traveling in Boston.

>I hated going anywhere when we first moved here. The whole state of

> Mass is like that. I know worcester and where I live. Even people who

> live in Boston can't give directions because they are confused.

>

> I'll have to trust that God will get me there because it certainly

> won't be the street signs.

>

> Jolynn

>

>

>

>

>>

>> I went to Boston on vacation once a long time ago and I was amazed

>> that you could drive for miles without ever seeing a street sign.

> And

>> by the time you see a sign for your exit on the freeway, there is no

>> way to get over to the proper side to exit!

>>

>> I am very good at reading maps, but we spent much of our time in

>> Boston, lost. We did go to some unintended interesting places,

> though.

>>

>

>

>

>

>

>

> scoliosis veterans * flatback sufferers * revision candidates

>

[Guest guest]

>

> It isn't just MA, either. I think it's the entire New England

region.

>

>

Amen to that

[Guest guest]

If your notes included the fact that he wanted to send you to Rand...

Who knows? Is it at all possibile the first person you spoke with wasn't

Priscilla? I have to admit that she's never been anything but nice to me.

Once someone hurried me off the phone, but I'm pretty sure it wasn't

Priscilla.

Sharon

[ ] Re: Grrrrr I hate traveling in Boston.

> All they did was fax my notes. So I don't know.

>

>

>> >>

>> >> Jolynn,

>> >>

>> >> I have never heard of Dr Rand seeing patients anywhere but New

>> > England

>> >> Baptist Hospital. Since he is going out on his own, perhaps his

>> >> relationships with other hospitals is changing? I just spoke

> with

>> >> Priscilla Friday and I know they have just completed a grueling

> move

>> >> up one floor to new offices in NEBH.

>> >>

>> >> Boston is a bear to drive around and NEBH is no easier to find

> than

>> >> most places...but I just wanted to have you check in case you

> had

>> > the

>> >> wrong location written down and missed your appointment!....Cam

>> >>

>> >

>> >

>> >

>> >

>> >

>> >

>> > scoliosis veterans * flatback sufferers * revision candidates

>> >

[Guest guest]

Great minds think alike, eh, Carole?!

:^D

Re: [ ] Re: Grrrrr I hate traveling in Boston.

Jolyn,

Why not do a "Map Quest"? We use that all the time to get around, and it seems to work extremely well!

Carole M.

[Guest guest]

she told me her name was priscilla after she had me in tears so I

am thinking that it was her.

> >> >>

> >> >> Jolynn,

> >> >>

> >> >> I have never heard of Dr Rand seeing patients anywhere but

New

> >> > England

> >> >> Baptist Hospital. Since he is going out on his own, perhaps

his

> >> >> relationships with other hospitals is changing? I just spoke

> > with

> >> >> Priscilla Friday and I know they have just completed a

grueling

> > move

> >> >> up one floor to new offices in NEBH.

> >> >>

> >> >> Boston is a bear to drive around and NEBH is no easier to

find

> > than

> >> >> most places...but I just wanted to have you check in case you

> > had

> >> > the

> >> >> wrong location written down and missed your

appointment!....Cam

> >> >>

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >

> >> > scoliosis veterans * flatback sufferers * revision candidates

> >> >

[Guest guest]

Yeah, that would tend to stick with you.

[ ] Re: Grrrrr I hate traveling in Boston.

> she told me her name was priscilla after she had me in tears so I

> am thinking that it was her.

>

>

>> >> >>

>> >> >> Jolynn,

>> >> >>

>> >> >> I have never heard of Dr Rand seeing patients anywhere but

> New

>> >> > England

>> >> >> Baptist Hospital. Since he is going out on his own, perhaps

> his

>> >> >> relationships with other hospitals is changing? I just spoke

>> > with

>> >> >> Priscilla Friday and I know they have just completed a

> grueling

>> > move

>> >> >> up one floor to new offices in NEBH.

>> >> >>

>> >> >> Boston is a bear to drive around and NEBH is no easier to

> find

>> > than

>> >> >> most places...but I just wanted to have you check in case you

>> > had

>> >> > the

>> >> >> wrong location written down and missed your

> appointment!....Cam

>> >> >>

>> >> >

>> >> >

>> >> >

>> >> >

>> >> >

>> >> >

>> >> > scoliosis veterans * flatback sufferers * revision candidates

>> >> >

[Guest guest]

Mapquest sometimes does not account for construction and oneway

roads. Map quest tells me to take a right everywhere that the

directions the hospital tells me to take a left. I ended up calling

there and getting directions from the operator. I checked maps

and mapquest and the hospital directions and they all came up

different. That is why it is so confusing. I have made the mistake of

relying on Mapquest before and with no street signs the directions are

pretty useless. I have land marks now so I think i'll be OK.

>

> Jolyn,

> Why not do a " Map Quest " ? We use that all the time to get around,

and it

> seems to work extremely well!

>

> Carole M.

>

[Guest guest]

Maybe. He didn't bring anyone with him for mine, and I have extensive spina

bifida complications.

http://www.bostonspinegroup.org/doctors/rand/index.html

This page lists him as on staff of both hospitals, and as an instructor at

Harvard Medical School. Maybe he lectures at and/or works with students,

residents, etc. from both schools.

As long as the students sit down and shut up you should be ok. (Can you

tell I've had my fill of being a guinea pig for specialists-to-be?)

Sharon

[ ] Re: Grrrrr I hate traveling in Boston.

>

>

> <Professional Distinctions: Assistant Professor of Orthopaedic

> Surgery, Tufts Medical School>

>

> This is at the bottom of his listing for the spine group.

>

> I feel some pokin' and some proddin' coming my way.

>

> Who wants to place bets on how many people there will be in the room

> to watch the exam? I am going to say at least Dr. Rand and 3 others

> (one colluege and 2 students).

>

> Jolynn

>

>

>

>

>>

>> HI Cam,

>>

>> He sees patients there one day a week. They pushed me to the Tufts

> New

>> Engalnd Medical Center (where I think he teaches, but I may be

> wrong).

>

>

>

>

>

>

> scoliosis veterans * flatback sufferers * revision candidates

>

[Guest guest]

Usually i have to put on a " routine " . It is rather silly. I have to

wrap my fingers around my wrists and extend my arms and other

things like that so they can all see the hypermobility and length

proportions. My biggest pet peeve is when the DOc gets excited and

goes to get all of his DR friens to come and see. I like it better

when everyone is in the room at the begining.

But hey all in the persuit of science right?

> >>

> >> HI Cam,

> >>

> >> He sees patients there one day a week. They pushed me to the

Tufts

> > New

> >> Engalnd Medical Center (where I think he teaches, but I may be

> > wrong).

> >

> >

> >

> >

> >

> >

> > scoliosis veterans * flatback sufferers * revision candidates

> >

[Guest guest]

http://www.spine-health.com/doctor/Rand/

This is the site I was looking at. his picture looks way more

friendly on the link you put though. He looks kind of mad in this

one.

> >>

> >> HI Cam,

> >>

> >> He sees patients there one day a week. They pushed me to the

Tufts

> > New

> >> Engalnd Medical Center (where I think he teaches, but I may be

> > wrong).

> >

> >

> >

> >

> >

> >

> > scoliosis veterans * flatback sufferers * revision candidates

> >

[Guest guest]

Jolynn, if you zoom in on Mapquest maps, to the most detailed maps, you will

see that one-way direction arrows are included.

There are lots of different ways to get there, so all directions probably

work. I have found though, that when I thought I knew better than MapQuest,

I ran into one-way streets that messed me up and made me wish I'd followed

their directions. They're not always perfect, but they're pretty darn good,

IMO.

Sharon

[ ] Re: Grrrrr I hate traveling in Boston.

> Mapquest sometimes does not account for construction and oneway

> roads. Map quest tells me to take a right everywhere that the

> directions the hospital tells me to take a left. I ended up calling

> there and getting directions from the operator. I checked maps

> and mapquest and the hospital directions and they all came up

> different. That is why it is so confusing. I have made the mistake of

> relying on Mapquest before and with no street signs the directions are

> pretty useless. I have land marks now so I think i'll be OK.

>

>

>>

>> Jolyn,

>> Why not do a " Map Quest " ? We use that all the time to get around,

> and it

>> seems to work extremely well!

>>

>> Carole M.

>>

>

>

>

>

>

>

>

> scoliosis veterans * flatback sufferers * revision candidates

>

[Guest guest]

Do you get to show them the double-jointed thumbs?

My cousin Lorna, who has Marfan's, has a cervical fusion but can still turn

her head farther than I can.

Sure, all in the name of education. When it comes to Marfan's, the medical

profession needs plenty of it.

Sharon

[ ] Re: Grrrrr I hate traveling in Boston.

> Usually i have to put on a " routine " . It is rather silly. I have to

> wrap my fingers around my wrists and extend my arms and other

> things like that so they can all see the hypermobility and length

> proportions. My biggest pet peeve is when the DOc gets excited and

> goes to get all of his DR friens to come and see. I like it better

> when everyone is in the room at the begining.

>

> But hey all in the persuit of science right?

>

>

>

>> >>

>> >> HI Cam,

>> >>

>> >> He sees patients there one day a week. They pushed me to the

> Tufts

>> > New

>> >> Engalnd Medical Center (where I think he teaches, but I may be

>> > wrong).

>> >

>> >

>> >

>> >

>> >

>> >

>> > scoliosis veterans * flatback sufferers * revision candidates

>> >

[Guest guest]

:^)

I've thought the same. Or maybe the one you linked just looks overly

serious, forbidding, almost.

I think that one is older. I know I've seen it over the years, and the

Boston Spine Group one is probably more up-to-date. I definitely like that

picture better! It makes him seem a lot less scary.

The last thing you want is to be cut into by a mad man, right?

Sharon

[ ] Re: Grrrrr I hate traveling in Boston.

> http://www.spine-health.com/doctor/Rand/

>

> This is the site I was looking at. his picture looks way more

> friendly on the link you put though. He looks kind of mad in this

> one.

>

>

>> >>

>> >> HI Cam,

>> >>

>> >> He sees patients there one day a week. They pushed me to the

> Tufts

>> > New

>> >> Engalnd Medical Center (where I think he teaches, but I may be

>> > wrong).

>> >

>> >

>> >

>> >

>> >

>> >

>> > scoliosis veterans * flatback sufferers * revision candidates

>> >

[Guest guest]

Well I have been lost more than a few time due to Mapquest so I

think I am better off following the directions from the people who

drive there every day to work. I use maps/ mapquest for

anywhere other than Boston. I also prefer to have the land marks

rather than the street names when there are no street signs.

> >>

> >> Jolyn,

> >> Why not do a " Map Quest " ? We use that all the time to get

around,

> > and it

> >> seems to work extremely well!

> >>

> >> Carole M.

> >>

> >

> >

> >

> >

> >

> >

> >

> > scoliosis veterans * flatback sufferers * revision candidates

> >

[Guest guest]

Yeah, they always ask for me to show them my double jointed thumbs.

The reason I am double jointed isn't that I have 2 joints the

connective tissue that makes up my joints are acctually very

inferior. That is where the hypermobility come in.

> >> >>

> >> >> HI Cam,

> >> >>

> >> >> He sees patients there one day a week. They pushed me to the

> > Tufts

> >> > New

> >> >> Engalnd Medical Center (where I think he teaches, but I may

be

> >> > wrong).

> >> >

> >> >

> >> >

> >> >

> >> >

> >> >

> >> > scoliosis veterans * flatback sufferers * revision candidates

> >> >

[Guest guest]

>

> The last thing you want is to be cut into by a mad man, right?

>

> Sharon

>

What is life with out a little adventure? If it would mean I would not

have to drive down town I may consider. hmmmmmm.....

[Guest guest]

I know.

Did I mention my cousin has Marfan's?

That's how I know you have double-jointed thumbs. You didn't tell me.

Sharon

[ ] Re: Grrrrr I hate traveling in Boston.

> Yeah, they always ask for me to show them my double jointed thumbs.

> The reason I am double jointed isn't that I have 2 joints the

> connective tissue that makes up my joints are acctually very

> inferior. That is where the hypermobility come in.

>

>

>> >> >>

>> >> >> HI Cam,

>> >> >>

>> >> >> He sees patients there one day a week. They pushed me to the

>> > Tufts

>> >> > New

>> >> >> Engalnd Medical Center (where I think he teaches, but I may

> be

>> >> > wrong).

>> >> >

>> >> >

>> >> >

>> >> >

>> >> >

>> >> >

>> >> > scoliosis veterans * flatback sufferers * revision candidates

>> >> >