PSC

[Guest guest]

, Just wanted to let you know that my thoughts and prayers of comfort

are being sent your way. It sounds as if you are in really good hands and

they will surely get moving on a transplant sooner for you. Keep us posted

when you have the energy.

Roxanne

[Guest guest]

Dianne,

I hope that you're feeling better. Anxiety from realizing that you have a

very serious disease and might have to have an organ transplant can drain

you. When I was first diagnosed and was at my worst, I was terrified. I

thought my life was coming to an end (which is what one of the doctors told

me). I would find myself shaking and crying or lying in bed wanting to

just give up and get it over with. But, as the meds started doing their

miracles for me, I began to feel like a normal human again. Right now,

things look very good and I don't mind the aches and pains at all!

Take care,

Geri

[Guest guest]

Dscala,

A hepatologist at a medical university would be my vote. Best of luck...

(AIH)

[Guest guest]

For those with PSC:

What kind of liver function test results did you have when you first got

diagnosed?

Judy - you said your liver biopsy showed no signs of PSC, is that normal? Or

do signs of PSC usually show up on a liver biopsy?

At one time, my husband's doc said there were six markers for PSC, does

anyone know what these may be?!?!

My husband (31) is going for his second endo this Friday (first was 2 months

ago). The first showed no signs of PSC, but this time that are inflating a

balloon and applying pressure to get further into the bilary tree??? Anyone

know anything about this??

He has/had UC, but had his colon removed. I read that there is a link

between PSC and UC, but does anyone have any stats on the number of people

with PSC and/or the prob of someone with UC acquiring PSC?

One more thing, is anyone jaundice? I keep looking at him to see if his skin

or eyes have that yellow tint, but it is very hard to tell. When he went to

the ER for the upper right quad pain, the yellow was definately evident in

his eyes, but now I don't see it.

Thanks for listening and any info woud be helpful.

Jackie

(land)

[Guest guest]

,

It was an interesting time to say the least, one interesting thing that came

out of the break down saga is that I have some how become special in the

ercp dept.Even the cleaners say hello to me.I am not a number any more , I

get crazy looks from other patients because every body calls me by my first

name.My Prof. went ballistic ( I was told later) once was OK , twice was a

joke , third time was meant to be lucky , 4 times in a row with a new

machine flown over from the UK and it packed in on me.I have had 2 ercps

since then .I have built up a personal relationship with my Prof. and his

team, and in a funny sort of way it may mean that if needed ,a few extra

short cuts would be implemented for me because they know me so well by now.

Re changing countries

I had no private medical insurance before dx and I am not going to get it

now.

I am also a Australian citizen , and a Irish citizen .But if I went back to

Australia I would be virtually unemployable re medicals and would be on

state medical health as I will not get private insurance.

Re transplant when ever that happens I would not get many brownie points if

I was on my own with no family to look after me in Australia post

transplant. I am a single male ,35.All my family are in Ireland , I lived in

Australia for 5 years and became a citizen..

Thanks for showing interest

.

---- Original Message -----

From: susan johnson <shireen42@...>

< onelist>

Sent: Sunday, September 26, 1999 8:21 PM

Subject: Re: [ ] PSC

> From: " susan johnson " <shireen42@...>

>

> ,

>

> There is no excuse for that breakdown of machines and it is not even Y2k

> yet! Better come over here to US, Uk or Australia, or Canada to get

better

> medical treatment.

>

> J

> USA

>

>

> >From: " O ,Brien " <garyob@...>

> >Reply- onelist

> >< onelist>

> >Subject: Re: [ ] PSC

> >Date: Sun, 26 Sep 1999 15:35:18 +0100

> >MIME-Version: 1.0

> >From errors-165537-6972-shireen42 Sun Sep 26 07:38:25 1999

> >Received: from [209.207.164.235] by hotmail.com (2.1) with ESMTP id

> >MHotMailB9B77AE10115D820F3BED1CFA4EB0E2F0; Sun Sep 26 07:38:25 1999

> >Received: (qmail 896 invoked by alias); 26 Sep 1999 14:38:22 -0000

> >Received: (qmail 889 invoked from network); 26 Sep 1999 14:38:21 -0000

> >Received: from unknown (209.207.164.241) by pop4.onelist.com with QMQP;

26

> >Sep 1999 14:38:21 -0000

> >Received: from unknown (HELO kodos.tinet.ie) (159.134.237.29) by

> >mta2.onelist.com with SMTP; 26 Sep 1999 14:43:50 -0000

> >Received: from p206.as1.adl.dublin.eircom.net ([159.134.228.206]

> >helo=default) by kodos.tinet.ie with smtp (Exim 2.05 #23) id

> >11VFRU-0005kG-00 for onelist; Sun, 26 Sep 1999

15:38:21

> >+0100

> >Message-ID: <001501bf082c$89180820$cee4869f@default>

> >References: <3bb710af.251f7796@...>

> >Organization:

> >X-Priority: 3

> >X-MSMail-Priority: Normal

> >X-Mailer: Microsoft Outlook Express 5.00.2014.211

> >X-MimeOLE: Produced By Microsoft MimeOLE V5.00.2014.211

> >Mailing-List: list onelist; contact

> > -owneronelist

> >Delivered-mailing list onelist

> >Precedence: bulk

> >List-Unsubscribe: <mailto: -unsubscribeONElist>

> >

> >From: " O ,Brien " <garyob@...>

> >

> >To Jackie,

> >I was dx in March 99 with PSC .Since then i have had 10 ERCP`s (the

> >machines

> >broke down on 4 different days when they were inside of me!!!)So far i

have

> >had 6 pipes inserted into my bile duct.Last one was last Monday. Next

ercp

> >is 13th of Dec99. I lost 2 pipes (stents is the technical name) out of

the

> >6

> >so far.As for LFT`s i had what ever standard LFT`s are used in scanning

> >blood donations thats how i was first detected.My readings were wildly

> >abnormal thats the term the doctors used.Instead of being in the 100`s

> >some

> >of my readings were in the 1000`s and rising.I do not have the origional

> >readings but the next time i am in to be scoped i will write them

> >down.Biopsy confirmed PSC.I was origionally scoped because they found

> >gallstones on a Ultra scan, and they thought that i had stones in my bile

> >duct from the ultra sound.When they went down into the bile duct with the

> >scope, they found strictures in my almost closed bile duct.They also

found

> >similiar findings inside of my liver.So they are trying to stretch the

bile

> >duct open very slowly and get passed the strtictures.The strictures look

> >like inside out seaweed .75% of PSC people have IBD including me.I am 35

> >and

> >very healthy looking male , no colour changes yet.No other main symptoms

> >except a bit of fatigue doing assignment s for a degree i am doing at

> >nightschool.My exams and more assignments are due within the next 8 weeks

> >so

> >i will be interested to see if the stress hits me as fatigue.

> >I do not know if any of the above helps, are you aware of the PSC

specific

> >group which can be contacted at egroups

> >

> >Regards from Ireland

> >

> >

> > Re: [ ] PSC

> >

> >

> > > From: JKosiorek@...

> > >

> > > For those with PSC:

> > >

> > > What kind of liver function test results did you have when you first

got

> > > diagnosed?

> > >

> > > Judy - you said your liver biopsy showed no signs of PSC, is that

> >normal?

> >Or

> > > do signs of PSC usually show up on a liver biopsy?

> > >

> > > At one time, my husband's doc said there were six markers for PSC,

does

> > > anyone know what these may be?!?!

> > >

> > > My husband (31) is going for his second endo this Friday (first was 2

> >months

> > > ago). The first showed no signs of PSC, but this time that are

> >inflating

> >a

> > > balloon and applying pressure to get further into the bilary tree???

> >Anyone

> > > know anything about this??

> > >

> > > He has/had UC, but had his colon removed. I read that there is a link

> > > between PSC and UC, but does anyone have any stats on the number of

> >people

> > > with PSC and/or the prob of someone with UC acquiring PSC?

> > >

> > > One more thing, is anyone jaundice? I keep looking at him to see if

his

> >skin

> > > or eyes have that yellow tint, but it is very hard to tell. When he

> >went

> >to

> > > the ER for the upper right quad pain, the yellow was definately

evident

> >in

> > > his eyes, but now I don't see it.

> > >

> > > Thanks for listening and any info woud be helpful.

> > >

> > > Jackie

> > > (land)

> > >

> > > > Please support the American Liver Foundation!

> > >

> > > 1.) To subscribe send e-mail to -subscribeonelist

> > > 2.) To UNsubscribe send to -unsubscribeonelist

> > > 3.) Digest e-mail format send to -digestonelist

> > > 4.) Normal e-mail format send to -normalonelist

> > >

> >

> >>Please support the American Liver Foundation!

> >

> >1.) To subscribe send e-mail to -subscribeonelist

> >2.) To UNsubscribe send to -unsubscribeonelist

> >3.) Digest e-mail format send to -digestonelist

> >4.) Normal e-mail format send to -normalonelist

>

> > Please support the American Liver Foundation!

>

> 1.) To subscribe send e-mail to -subscribeonelist

> 2.) To UNsubscribe send to -unsubscribeonelist

> 3.) Digest e-mail format send to -digestonelist

> 4.) Normal e-mail format send to -normalonelist

>

[Guest guest]

Jackie,

I too, have UC and PSC. Was diagnosed with the UC About 11 yrs. ago and

PSC 4 yrs ago. There is definately a connection. The Mayo Clinic pamplet

about PSC( on the web) said that to have PSC you will have either UC,

Crohn's, or IBD in conjunction with it. Don't know why and they don't

either.

Re: [ ] PSC

>From: JKosiorek@...

>

>For those with PSC:

>

>What kind of liver function test results did you have when you first got

>diagnosed?

>

>Judy - you said your liver biopsy showed no signs of PSC, is that normal?

Or

>do signs of PSC usually show up on a liver biopsy?

>

>At one time, my husband's doc said there were six markers for PSC, does

>anyone know what these may be?!?!

>

>My husband (31) is going for his second endo this Friday (first was 2

months

>ago). The first showed no signs of PSC, but this time that are inflating a

>balloon and applying pressure to get further into the bilary tree???

Anyone

>know anything about this??

>

>He has/had UC, but had his colon removed. I read that there is a link

>between PSC and UC, but does anyone have any stats on the number of people

>with PSC and/or the prob of someone with UC acquiring PSC?

>

>One more thing, is anyone jaundice? I keep looking at him to see if his

skin

>or eyes have that yellow tint, but it is very hard to tell. When he went

to

>the ER for the upper right quad pain, the yellow was definately evident in

>his eyes, but now I don't see it.

>

>Thanks for listening and any info woud be helpful.

>

>Jackie

>(land)

>

>>Please support the American Liver Foundation!

>

>1.) To subscribe send e-mail to -subscribeonelist

>2.) To UNsubscribe send to -unsubscribeonelist

>3.) Digest e-mail format send to -digestonelist

>4.) Normal e-mail format send to -normalonelist

[Guest guest]

Dear Dayna -

Thank you so much for the e-mail - it is " spooky " how similar your situation

sounds. I was wondering if you also develoiped pre-eclampsia (toxemia)

during your pregnancy. I did and as a result my son was born 6 weeks early

(he's fine). I don't know if that, in any way, is related to the PSC or not.

Anyway, hope you don't mind but I am curious as to how you were diagnosed and

are treating the PSC and if you have had a liver biopsy. I was diagnosed

through an ERCP and have been taking Actigall (300MG 2X a day) ever since. I

also take Asacol for the UC. I had read that Milk Thistle is good for the

liver so I started taking that about 2 weeks ago but then I started feeling

nasueus (although I have no idea if it was due to the Milk Thistle) so I

stopped taking it. I have not had a liver biopsy and don't know if I should

or not. I guess I'll ask my gastroenterologist next time I see him.

In addition, do you happen to know how rare this diease is? I have read

conflicting information. Supposedly it is very rare but I read somewhere

that it affects 1 in 10,000 people - which doesn't sound that rare to me.

Looking forward to hearing from you, (and anyone else in the group.)

Thanks again!

Dawn :-)

From: " Dayna Lineberger " <dlineberger@...>

Hi,

Just wanted to let you know, your situation sounds exactly like mine. I

was diagnosed with UC 11 yrs ago and was dx with PSC after the birth of my

first child. I was 29- am 32 now. It's hard being faced with something like

this at such a young age, but I have a lot to look forward to, so I try not

to think about too much. I just enjoy each day with my daughter( thankfully

I don't have to work). Being positive is the best thing you can do!

Dayna

[ ] PSC

>From: dscala1193@...

>

>Hello,

>

>I am writing to get some information on PSC. (I also have Ulcerative

Colitis.) I was diagnosed with the PSC less than a year ago, shortly after

the birth of my first child (I am 29 yrs.old). I was diagnosed when I had

an ERCP for what the docs thought was a gallstone stuck in my bile duct.

The doctor said I had a " mild " case and put me on Actigall. I wasn't too

concerned until I started doing research on the disease on the web, which is

how I wound up here.

>

>My Gastroenterologist takes my liver function tests every three months and

thankfully they have been normal so far. However, I find it very difficult

to get information on this disease. So far, I have only been seeing my

Gastroenterologist for this. Does anyone know if there are specialists to

see for this disease, or is a Gastroenterologist the one to handle this? I

find myself very confused and alone due to a lack of information.

>

>If anyone can give me some good info or point me in the right direction,

I'd appreciate it.

>

>Thank you.

[Guest guest]

Dawn,

I am so glad to find someone with a similar situation as mine. No, I

didn't get toxemia while I was pregnant and was one week early. I was

dx through an ERCP and think I had a biopsy during my last ERCP in April

(have had two total). There wasn't enough blockage to put in stints, but I

had gotten worse. I am also on Actigall 2x daily sometimes more if my

numbers are up. Asacol 400mg- dosage differs depending on whether I am

having a flare-up. I too, have read conflicting info about the numbers. I

do know that it is rarer in women than men. There was an article about a

guy with PSC in Ladies Home Journal- the Sep. issue if you want to read it.

I tend to read everything I can in the popular magazines, because that means

the disease is getting more recognized. Be careful though, the mags tend to

write about people that need immediate transplants, and my doctor says it

could be 10,15,or even 20 yrs. I'm investigating living donor regeneration

transplants, but my doctor doesn't want to consider that yet. Who knows?

Do you have a lot of itching? Mine is so bad, that I make scabs and

bleed. I wake up several times a night scratching. My husband thinks the

reason I'm tired so much is because I don't get to have a deep sleep because

I'm always scratching? Any suggestions? I am desparate! Even saw an

article in the paper this morning about Hypnosis, and wondered if that would

help!

Talk to you soon!

Dayna(PSC ans UC)

[ ] PSC

>

>

>>From: dscala1193@...

>>

>>Hello,

>>

>>I am writing to get some information on PSC. (I also have Ulcerative

>Colitis.) I was diagnosed with the PSC less than a year ago, shortly after

>the birth of my first child (I am 29 yrs.old). I was diagnosed when I had

>an ERCP for what the docs thought was a gallstone stuck in my bile duct.

>The doctor said I had a " mild " case and put me on Actigall. I wasn't too

>concerned until I started doing research on the disease on the web, which

is

>how I wound up here.

>>

>>My Gastroenterologist takes my liver function tests every three months and

>thankfully they have been normal so far. However, I find it very difficult

>to get information on this disease. So far, I have only been seeing my

>Gastroenterologist for this. Does anyone know if there are specialists to

>see for this disease, or is a Gastroenterologist the one to handle this? I

>find myself very confused and alone due to a lack of information.

>>

>>If anyone can give me some good info or point me in the right direction,

>I'd appreciate it.

>>

>>Thank you.

>

>>Please support the American Liver Foundation!

>

>1.) To subscribe send e-mail to -subscribeonelist

>2.) To UNsubscribe send to -unsubscribeonelist

>3.) Digest e-mail format send to -digestonelist

>4.) Normal e-mail format send to -normalonelist

[Guest guest]

Yes I also have PSC, along with Lupus and Sjogren's Syndrome.

Dianne Arneill

Dpa1228@...

[Guest guest]

Bill,

Yes Tyler has PSC and AIH...he was diagnosed this past April...He was 16

then...now 17...also has Crohns and Rhuematoid Arthritis since he was 10...He

has a 21 yr old brother who has had UC since he was 3....so far no other

problems for him...

Luanne Ty's mom

[Guest guest]

Luanne,

Thanks for the response;

Sorry about your sons;

Must be very difficult to have sick children;

Does Tyler have fatigue, weight loss, muscle loss, itching, jaundice?

What is Crohn's disease?

What is UC?

Bill

[Guest guest]

Dianne,

Thanks for your response;

Are you on the transplant list?

Can you undergo the operation with your other maladies?

Bill

[Guest guest]

Duke,

Thanks for your response;

I was told that with PSC I need an entire liver because of the bile ducts;

That a partial liver was not possible.

Bill

[Guest guest]

Hello Bill.

I have PSC dx March 99 , due for 7th stent in December.Age 35, male, also

have IBD.

2 x 250mg of ciproxin , 750 mg of Ursofalk.

Detected by wildly abnormal LFTs after donating blood.

Having huge problems being relocated into an admin position in local

government job (from being a electrician), now have to go to war with unions

and politicians.

Prof said that on a scale of 0-10 i would be a 5 relative to needing

transplant and damage already done.

Symptoms a bit of fatigue, and very sesitive bowels.

Also p****d off with employer.

Regards from Ireland

[ ] PSC

> From: BillLinehan@...

>

> Hi,

> Is there anyone else in the group who has or had PSC?

>

> > Please support the American Liver Foundation!

>

> 1.) To subscribe send e-mail to -subscribeonelist

> 2.) To UNsubscribe send to -unsubscribeonelist

> 3.) Digest e-mail format send to -digestonelist

> 4.) Normal e-mail format send to -normalonelist

>

[Guest guest]

Happy Halloween Geri...

Thanks for asking about me...Still feel the same...ruled out GI stuff and am

going to have a laparoscopy, hopefully before thanksgiving...New doctor is

very nice and I hope they come up with some answers...the pain pills I have

to take just make me really sleepy...hate to take them..my husband will get

mad because he hates that i feel this way but i need to be able to

function....

Ty goes for labs this week...its the first time in a month...he used to go

every week for almost 2 yrs and last month the moved it to every month...I am

curious what they will be...they had been very good...but the last 2 days he

has been running a fever of 101...on and off...makes me nervous...he goes for

labs on wed so we will find out soon...I'll let you know...I have been

reading that you have been seeing some new doctors...how is everything going

with them...it is so hard to keep up with everyone and my own life...

hope yhis finds you feeling well

Luanne Ty's mom

[Guest guest]

Luanne,

Hope the holiday was fun for you and your family. we had our share of kids

this year and enjoyed it. Especially the little guys and we were impressed

by teenagers who said, " thank you, sir " to my husband.

You're a dedicated Mom and it has to be doubly hard for you, dealing with

your own medical problems. I don't know why it works that way, but I've

known so many people who've had to deal with multiple family medical

crisis. You want to yell, " if this is a test, do I pass or fail? " Our

oldest son died from Lou Gehrig's Disease the day I got out of the hospital

from my first serious AIH bout. My aunt was diagnosed with breast cancer

and had a lumpectomy a month before her husband died from kidney failure.

She never even had a chance to worry about her own condition. Another

aunt's husband put aside his own battle with colon cancer while his wife

was dying from kidney failure. But, we're not unique. I've heard of this

happening in so many families.

So you're still in limbo and don't know what's going on with

yourself? Sorry I lose track but it's hard keeping things sorted out. You

haven't had a diagnosis, have you? I'm assuming they are looking at some

sort of autoimmune process, considering what your sons have been

through. How does your husband take all of this?

I hope Tyler is alright. When kids run a temp, usually parents just deal

with it and don't have the fears that you must feel.

I do have a new doctor and so far, so good. The novelty may wear off and

my irritatingly elusive problems could become ho-hum, but so far, he's

tackling my quirks like they're part of a special project. I feel

okay. Some days better than others. If I don't get enough sleep, I can

plan on a rough day - and I rarely get enough sleep, but that's something I

could control with a little more self discipline. I don't have the feeling

that anything catastrophic is going on and I hope to keep it that way.

Do you have other family members who give you some respite? Sounds to me

like you need to get away, if just for a night at the local Holiday Inn,

where you can lock yourself in with the TV, a good book and room

service. Balm for the soul.

Take care,

Geri

[Guest guest]

Hi ,

Thanks for your response.

I know the difficulty you're having with your Government job.

My problem wasn't with my employer, but with my gastroenterologist.

He thought that all gov't workers were nothing but paper shufflers and were

able to do their jobs on a full time basis. He wouldn't sign any disability

papers; He hated paperwork & would rather be playing golf. He isn't a hands

on doctor, and assigns all surgeries and procedures to other doctors. I

switched to the doctor that performed the ERCP procedures who is also a

gastroenterologist and now I feel that I'm in more capable hands. I am

currently a tx candidate & am not on any medication.

You might consider asking your doctor to prepare a letter to your employer.

Good Luck!

Bill

[Guest guest]

Bill:

My husband (31) was diagnosed with PSC last month. He really doesn't have

any physical symptoms. He is on Actigall. He is also taking Milk Thistle

and Sam-e.

Jackie

[Guest guest]

Jackie,

Thanks for your response,

I tried URSO (Actigall) & Milk Thistle for several months;

Didn't seem to help me, but I hope they work for your Husband.

Good Luck!

Bill

[Guest guest]

Are there any nasty side effects from actigall?

J

>From: JKosiorek@...

>Reply- onelist

> onelist

>Subject: Re: [ ] PSC

>Date: Mon, 1 Nov 1999 08:46:08 EST

>MIME-Version: 1.0

>From errors-165537-7868-shireen42=hotmail.comonelist Mon Nov 1

>05:46:21 1999

>Received: (qmail 24164 invoked by alias); 1 Nov 1999 13:46:35 -0000

>Received: (qmail 24142 invoked from network); 1 Nov 1999 13:46:32 -0000

>Received: from unknown (209.207.164.241) by pop3.onelist.com with QMQP; 1

>Nov 1999 13:46:32 -0000

>Received: from unknown (HELO imo23.mx.aol.com) (198.81.17.67) by

>mta2.onelist.com with SMTP; 1 Nov 1999 13:51:54 -0000

>Received: from JKosiorek@... by imo23.mx.aol.com (mail_out_v23.6.) id

>hHTEa07459 (2618) for < onelist>; Mon, 1 Nov 1999

>08:46:08 -0500 (EST)

>Message-ID: <0.3a14a20f.254ef3a0@...>

>X-Mailer: AOL 4.0 for Windows 95 sub 26

>Mailing-List: list onelist; contact

> -owneronelist

>Delivered-mailing list onelist

>Precedence: bulk

>List-Unsubscribe: <mailto: -unsubscribeONElist>

>

>Bill:

>

>My husband (31) was diagnosed with PSC last month. He really doesn't have

>any physical symptoms. He is on Actigall. He is also taking Milk Thistle

>and Sam-e.

>

>Jackie

>

>------------------------------------------------------------------------

>Please support the American Liver Foundation!

>

>1.) To subscribe send e-mail to -subscribeonelist

>2.) To UNsubscribe send to -unsubscribeonelist

>3.) Digest e-mail format send to -digestonelist

>4.) Normal e-mail format send to -normalonelist

><< text3.html >>

[Guest guest]

Hello Bill,

At the moment they have a letter from my professor recommending that i be

transferred into an admin position, to best maintain my long term prognosis.

The job sent me to a doctor who recommended that i should be transferred

into an admin position.

I have letters of support from counsellors in the staff support sevice

recommending that i be transferred in to an admin position.

I went through the employee relations dept who said that they contacted all

the depts and they got back 0 positive replys.

I have just been told that my case has been sent back to my local managers

to sort out.

6500 employees and that is the best they can do.

If i thought my local managers could sort this out i would have gone there

first.

The other depts said that there was no suitable positions.

There are two problems , 1 , i am heading for a transplant one day (if

nothing changes in the medical world).Hence nobody will touch me with a

barge pole.

2, i was employed as an electrician.

Electricians are not supposed to have certificates in electrical engineering

+ diploma in information technology, and in the process of completing a Bsc

in Information Technology.

So in the whole of this government job i am not suitable for any position.

I have contacted my unions re taking action and will contact my politicians.

My next stop after this may be the equality authority.Then an action

against my employer re stress.Yes i am pretty angry , if i was in a wheel

chair i think i would not have got this treatment

I can not leave this job over here because medicals are required , and you

have to fill in forms etc same with morgages + life insurance.

On social welfare at the moment.

Regards from the land of saints and scholars ??????????

in Dublin.

---- Original Message -----

From: <BillLinehan@...>

< onelist>

Sent: Monday, November 01, 1999 1:43 PM

Subject: Re: [ ] PSC

> From: BillLinehan@...

>

> Hi ,

> Thanks for your response.

> I know the difficulty you're having with your Government job.

> My problem wasn't with my employer, but with my gastroenterologist.

> He thought that all gov't workers were nothing but paper shufflers and

were

> able to do their jobs on a full time basis. He wouldn't sign any

disability

> papers; He hated paperwork & would rather be playing golf. He isn't a

hands

> on doctor, and assigns all surgeries and procedures to other doctors. I

> switched to the doctor that performed the ERCP procedures who is also a

> gastroenterologist and now I feel that I'm in more capable hands. I am

> currently a tx candidate & am not on any medication.

> You might consider asking your doctor to prepare a letter to your

employer.

> Good Luck!

> Bill

>

> > Please support the American Liver Foundation!

>

> 1.) To subscribe send e-mail to -subscribeonelist

> 2.) To UNsubscribe send to -unsubscribeonelist

> 3.) Digest e-mail format send to -digestonelist

> 4.) Normal e-mail format send to -normalonelist

>

[Guest guest]

luane,

can you explain chrons to me?

thanks..

[Guest guest]

Svein...

This group has mostly people with AIH or other kinds of hep....

I also belong to a group that is specifically for PSC...There e-mail is

There are alot of people there from all over....so contact us there and you should find someone close to you. I am from New Jersey...and I am here on both of these boards because of my 18 yr old son who has both AIH and PSC....I hope to see you on the other board...

Luanne Ty's mom

[Guest guest]

This is a link to " About primary sclerosing cholangitis " on the Rocky

Mountain News Web site:

http://www.rockymountainnews.com/drmn/local/article/0,1299,DRMN_15_796971,00

..html

Here's a companion story from the Rocky Mountain news about PSC itself.

Note the comment that it's not caused by alcohol or drugs.