Re: Just need to talk about stuff

[Guest guest]

Has anyone else had problem with burning eyes?

J

>From: " Lori Cummins " <tlknj@...>

>Reply- onelist

>< onelist>

>Subject: Re: [ ] Just need to talk about stuff

>Date: Thu, 29 Jul 1999 13:27:44 -0500

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>From: " Lori Cummins " <tlknj@...>

>

>Jody, It's sounds like me three years ago, right before I was diagnose.

>Actually it was 3 years ago today July 29th 1996 when I was diagnosed with

>AIH with cirrhosis. My acne was bad and nothing cleared it up, not even

>Retin -A. I think the memory thing is due to the build up of ammonia in

>your system, which says to me that your liver function must be decreasing.

>The acne did not clear up until after I was transplanted with my new liver.

>If there are any other questions you would like to ask-ask away. I've been

>there ~ DONE THAT!!

>Lori C. AIH~ Liver tx 3~11~97

> [ ] Just need to talk about stuff

>

>

> >From: Jody Compton <compton_61@...>

> >

> >Hi everyone,

> >First I want to thank you guys for being here and sharing your

> >experiences and listening to mine.

> >Lately, I feel like my memory is getting worse along with my fatigue.

> >It seems to make it more difficult to deal with crisis' that arise in

> >life.. I feel overwhelmed over the little things it seems. I don't know

> >if this is a side effect of the fatigue but I dont like it. Its just

> >not me. It seems I become more and more stressed out as I fight for

> >what's left of my mental faculties. Does anyone else have this problem.

> >I also have the acne lately. I had a time a year ago when I had a huge

> >break out and it cleared up but now its returned. Has anyone felt this

> >way???

> >I cant wait to see the Hep doc next week..

> >Thanks again for listening

> >Jody

> >

> >

> >===

> >Jody Compton

> >Dance like no one is watching. Love like it will never end.

> >

> >In search of answers..

> >_____________________________________________________________

> >

[Guest guest]

I have problem with short term memeory, for example I went to bank to

withdraw money. Did the paperwork and walked away without money. Paid for

something at cash register and walked away without package. This kind of

thing happening way too often. Doctors would just say I was preoccupied.

Not so. Just forget or feel confused!

J

>From: KATBERCOO@...

>Reply- onelist

> onelist

>Subject: Re: [ ] Just need to talk about stuff

>Date: Thu, 29 Jul 1999 16:43:35 EDT

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>From: KATBERCOO@...

>

>Dear Jody:

>

>I understand how you feel. I'm often forgetful and out of sorts. The

>other

>day I got so upset over a bunch of stupid stuff! I spilled a little BBQ

>sauce on my white pants and thought it was the end of the world!

>Afterwards

>I felt so dumb. Then my daughter spilled nail polish on the rug, tried to

>hide it and then tried to clean it up with Ajax. Needless to say, now

>there

>is this big bleached spot on the carpet. It's funny that the BBQ sauce on

>my

>pants bothered me more than the big white splotch in the middle of the

>living

>room rug! I can laugh about it now, but it sure didn't seem funny at the

>time. Maybe it's the full moon!

>

>Hope you're feeling better soon!

>

>Kathy (AIH)

>Seattle area

>

>---------------------------

[Guest guest]

Dear Jody:

I understand how you feel. I'm often forgetful and out of sorts. The other

day I got so upset over a bunch of stupid stuff! I spilled a little BBQ

sauce on my white pants and thought it was the end of the world! Afterwards

I felt so dumb. Then my daughter spilled nail polish on the rug, tried to

hide it and then tried to clean it up with Ajax. Needless to say, now there

is this big bleached spot on the carpet. It's funny that the BBQ sauce on my

pants bothered me more than the big white splotch in the middle of the living

room rug! I can laugh about it now, but it sure didn't seem funny at the

time. Maybe it's the full moon!

Hope you're feeling better soon!

Kathy (AIH)

Seattle area

[Guest guest]

Jody, It's sounds like me three years ago, right before I was diagnose.

Actually it was 3 years ago today July 29th 1996 when I was diagnosed with

AIH with cirrhosis. My acne was bad and nothing cleared it up, not even

Retin -A. I think the memory thing is due to the build up of ammonia in

your system, which says to me that your liver function must be decreasing.

The acne did not clear up until after I was transplanted with my new liver.

If there are any other questions you would like to ask-ask away. I've been

there ~ DONE THAT!!

Lori C. AIH~ Liver tx 3~11~97

[ ] Just need to talk about stuff

>From: Jody Compton <compton_61@...>

>

>Hi everyone,

>First I want to thank you guys for being here and sharing your

>experiences and listening to mine.

>Lately, I feel like my memory is getting worse along with my fatigue.

>It seems to make it more difficult to deal with crisis' that arise in

>life.. I feel overwhelmed over the little things it seems. I don't know

>if this is a side effect of the fatigue but I dont like it. Its just

>not me. It seems I become more and more stressed out as I fight for

>what's left of my mental faculties. Does anyone else have this problem.

>I also have the acne lately. I had a time a year ago when I had a huge

>break out and it cleared up but now its returned. Has anyone felt this

>way???

>I cant wait to see the Hep doc next week..

>Thanks again for listening

>Jody

>

>

>===

>Jody Compton

>Dance like no one is watching. Love like it will never end.

>

>In search of answers..

>_____________________________________________________________

>

[Guest guest]

Dear Eileen and :

Next time you get LFT's, have the doctor check your ammonia levels too. High

levels of ammonia can affect memory (although the prednisone can do it, too).

Kathy (AIH)

Seattle area

[Guest guest]

No kidding, i have them also. Liver sure affects a lot of our body.

J

>From: Roselle50@...

>Reply- onelist

> onelist

>Subject: Re: [ ] Re: Just need to talk about stuff

>Date: Fri, 30 Jul 1999 00:09:34 EDT

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>From: Roselle50@...

>

>Lori: You sound like me. Antidepressant pills and anxiety attacks. Now I

>know it had to do with the AIH. I don't have like before.

>

>Sue AIH

>Wisconsin

>

>---------------------------

[Guest guest]

No kidding, i have them also. Liver sure affects a lot of our body.

J

>From: Roselle50@...

>Reply- onelist

> onelist

>Subject: Re: [ ] Re: Just need to talk about stuff

>Date: Fri, 30 Jul 1999 00:09:34 EDT

>MIME-Version: 1.0

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>From: Roselle50@...

>

>Lori: You sound like me. Antidepressant pills and anxiety attacks. Now I

>know it had to do with the AIH. I don't have like before.

>

>Sue AIH

>Wisconsin

>

>---------------------------

[Guest guest]

Dear

I do that alot lately? My Dad thinks I'm going nuts I go to do things, and

then forget what it was I wanted to do, I've also done really stupid

things, like put polish in the freezer, it's a good job my Dad checked or

the stupid thing would have probably exploded! I was sure I'd put it in the

cupboard?

My doctor said it was probably related to the Road Traffic Accident I was

invovled in 18 months ago, but I'm sure it was never this bad?

Eileen

Re: [ ] Just need to talk about stuff

>>Date: Thu, 29 Jul 1999 16:43:35 EDT

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>>From: KATBERCOO@...

>>

>>Dear Jody:

>>

>>I understand how you feel. I'm often forgetful and out of sorts. The

>>other

>>day I got so upset over a bunch of stupid stuff! I spilled a little BBQ

>>sauce on my white pants and thought it was the end of the world!

>>Afterwards

>>I felt so dumb. Then my daughter spilled nail polish on the rug, tried to

>>hide it and then tried to clean it up with Ajax. Needless to say, now

>>there

>>is this big bleached spot on the carpet. It's funny that the BBQ sauce on

>>my

>>pants bothered me more than the big white splotch in the middle of the

>>living

>>room rug! I can laugh about it now, but it sure didn't seem funny at the

>>time. Maybe it's the full moon!

>>

>>Hope you're feeling better soon!

>>

>>Kathy (AIH)

>>Seattle area

>>

>>---------------------------

[Guest guest]

Dear Kathy

I will do that, I have got another blood test on Tuesday!

Thanks!!

Eileen

Re: [ ] Just need to talk about stuff

>From: KATBERCOO@...

>

>Dear Eileen and :

>

>Next time you get LFT's, have the doctor check your ammonia levels too.

High

>levels of ammonia can affect memory (although the prednisone can do it,

too).

>

>

>Kathy (AIH)

>Seattle area

>

>---------------------------

[Guest guest]

Jody,

Even before I got sick, I knew that the liver was 'the

center of life' and affects all the bodily functions,

but having that knowledge didn't make it any easier to

cope.

As the AIH or cirrhosis progressed I had the feeling

of being totally distracted, unable to process a

thought from beginning to end. It was as though all

my senses were magnified. The simple everyday things

brought on an overwhelming amount of stress, but

instead of yelling or screaming I found myself having

what must have been anxiety attacks. Things which

never bothered me in the past now seemed paramount.

One time my boys were playing music very loudly at the

other end of the house. I could feel the vibrations

in my spine and it hurt. As much as I wanted to tell

them to turn it down I was frozen, I couldn't move and

couldn't even talk.

The most frightening aspect of any progressive chronic

disease is the loss of control over our body and mind,

we know it's happening yet feel powerless to stop it.

It can start a downward spiral, feeding on itself. I

have no hints or advice because I got progressively

worse.

Has your 'whole body' doctor been able to offer any

observations or solutions?

Barbara Ann

AIH Transplant Recipient

_____________________________________________________________

[Guest guest]

Lori: You sound like me. Antidepressant pills and anxiety attacks. Now I

know it had to do with the AIH. I don't have like before.

Sue AIH

Wisconsin

[Guest guest]

Jody, I have brain fog and hate it, and it sounds like you have some

depression possibly creeping in. Have you had problems with depression

before? Lynn aih

Jody Compton wrote:

> From: Jody Compton <compton_61@...>

>

> Hi everyone,

> First I want to thank you guys for being here and sharing your

> experiences and listening to mine.

> Lately, I feel like my memory is getting worse along with my fatigue.

> It seems to make it more difficult to deal with crisis' that arise in

> life.. I feel overwhelmed over the little things it seems. I don't know

> if this is a side effect of the fatigue but I dont like it. Its just

> not me. It seems I become more and more stressed out as I fight for

> what's left of my mental faculties. Does anyone else have this problem.

> I also have the acne lately. I had a time a year ago when I had a huge

> break out and it cleared up but now its returned. Has anyone felt this

> way???

> I cant wait to see the Hep doc next week..

> Thanks again for listening

> Jody

>

> ===

> Jody Compton

> Dance like no one is watching. Love like it will never end.

>

> In search of answers..

> _____________________________________________________________

>

[Guest guest]

Hi, sometimes I have, not severe, but enough to know it is not right. Kind of a

stinging like I got a solution of some type in my eyes. Lynn

susan johnson wrote:

> From: " susan johnson " <shireen42@...>

>

> Has anyone else had problem with burning eyes?

>

> J

>

> >From: " Lori Cummins " <tlknj@...>

> >Reply- onelist

> >< onelist>

> >Subject: Re: [ ] Just need to talk about stuff

> >Date: Thu, 29 Jul 1999 13:27:44 -0500

> >MIME-Version: 1.0

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> >Received: from [209.207.164.213] by hotmail.com (2.1) with ESMTP id

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> >Mailing-List: list onelist; contact

> > -owneronelist

> >Delivered-mailing list onelist

> >Precedence: bulk

> >List-Unsubscribe: <mailto: -unsubscribeONElist>

> >

> >From: " Lori Cummins " <tlknj@...>

> >

> >Jody, It's sounds like me three years ago, right before I was diagnose.

> >Actually it was 3 years ago today July 29th 1996 when I was diagnosed with

> >AIH with cirrhosis. My acne was bad and nothing cleared it up, not even

> >Retin -A. I think the memory thing is due to the build up of ammonia in

> >your system, which says to me that your liver function must be decreasing.

> >The acne did not clear up until after I was transplanted with my new liver.

> >If there are any other questions you would like to ask-ask away. I've been

> >there ~ DONE THAT!!

> >Lori C. AIH~ Liver tx 3~11~97

> > [ ] Just need to talk about stuff

> >

> >

> > >From: Jody Compton <compton_61@...>

> > >

> > >Hi everyone,

> > >First I want to thank you guys for being here and sharing your

> > >experiences and listening to mine.

> > >Lately, I feel like my memory is getting worse along with my fatigue.

> > >It seems to make it more difficult to deal with crisis' that arise in

> > >life.. I feel overwhelmed over the little things it seems. I don't know

> > >if this is a side effect of the fatigue but I dont like it. Its just

> > >not me. It seems I become more and more stressed out as I fight for

> > >what's left of my mental faculties. Does anyone else have this problem.

> > >I also have the acne lately. I had a time a year ago when I had a huge

> > >break out and it cleared up but now its returned. Has anyone felt this

> > >way???

> > >I cant wait to see the Hep doc next week..

> > >Thanks again for listening

> > >Jody

> > >

> > >

> > >===

> > >Jody Compton

> > >Dance like no one is watching. Love like it will never end.

> > >

> > >In search of answers..

> > >_____________________________________________________________

> > >

[Guest guest]

Barbara, that is so weird, I totally experienced the same kinds of feelings,

I felt like I was totally out of control sometimes. I would get so angry

over the littlest things. That was about 5 years before my diagnosis. I

thought I was having severe PMS!!!!!! Also feelings of anxiety and panic

attacks. I was not feeling well and no doctor could tell me what was wrong.

Yet my body was telling me something was wrong.I guess that is why the Dr.

gave me prozac, he thought I was looney. Well guess he was wrong. Take care

Lori C. AIH TX

3~11~97

[ ] Re: Just need to talk about stuff

>From: barbara ann <barbara99ann@...>

>

>Jody,

>Even before I got sick, I knew that the liver was 'the

>center of life' and affects all the bodily functions,

>but having that knowledge didn't make it any easier to

>cope.

>As the AIH or cirrhosis progressed I had the feeling

>of being totally distracted, unable to process a

>thought from beginning to end. It was as though all

>my senses were magnified. The simple everyday things

>brought on an overwhelming amount of stress, but

>instead of yelling or screaming I found myself having

>what must have been anxiety attacks. Things which

>never bothered me in the past now seemed paramount.

>One time my boys were playing music very loudly at the

>other end of the house. I could feel the vibrations

>in my spine and it hurt. As much as I wanted to tell

>them to turn it down I was frozen, I couldn't move and

>couldn't even talk.

>

>The most frightening aspect of any progressive chronic

>disease is the loss of control over our body and mind,

>we know it's happening yet feel powerless to stop it.

>It can start a downward spiral, feeding on itself. I

>have no hints or advice because I got progressively

>worse.

>

>Has your 'whole body' doctor been able to offer any

>observations or solutions?

>Barbara Ann

>AIH Transplant Recipient

>

>

>

>

>

>

>

>

>

>

>

>_____________________________________________________________

>

[Guest guest]

Jody, Lynn and everyone else suffering from " brain drain " ,

I have off and on problems also with forgetfulness. Stupid things. I can

fool around with my computer and do complicated things I've only done once

and I forget my own telephone number half the time. I've always had a

great memory (my kids claim I have a mind like a " steel trap " and never

lose track of anything). I still have a good memory but I also don't, if

that makes sense, and I'll bet it does to lots of you.

I also sometimes have difficulty holding a conversation and finding the

words I want to say, but no problem when I'm writing. I don't understand

why it's working that way. I'm so incoherent sometimes on the phone that

it's embarassing.

Fatigue? I think it goes with the territory and some of it is physical,

some is psychological. We are, after all, carrying a big load of anxiety

whether we admit it to ourselves or not. Right now I'm almost impossible

to wake up in the morning and I'm sleeping more hours than I ever have. I

have vivid, realistic dreams. At night, I can feel great one minute then

the next I can hardly stay awake. I need to lie down or if it's really

bad, I sit in a chair, too tired to get ready for bed. It's like I totally

crash all of a sudden.

I wasn't just irritable before I was diagnosed, I was downright unpleasant.

I quit a total of three jobs in three years because I decided that the

people I was working for were jerks. In fact, they probably were, but

that's life in the working world. Instead of just doing what I was hired

to do, I felt it was my role in life to tell them how they exploited their

employees and robbed them of their dignity (I'm not sure if that was even

true or just my messed up perception) and each time, I stormed off the job

without notice. Luckily, these emotional roller coasters don't happen much

at home but I have a very patient husband.

It doesn't make me feel better to know that it's probably all related to

AIH, but at least I know I'm not the only one going through this!

Take care,

Geri

[Guest guest]

MARLENE:

I DO SOME STUPID THINGS. LAST NIGHT AT WORK I SAT AND WAS TALKING TO MYSELF

AND I LOOKED UP AND THE CLEANING PERSON WAS STANDING THERE WATCHING ME. I

CALLED MYSELF STUPID WHEN I WAS TALKING. HE STARTED LAUGHING AND SAID I

COULD REALLY CARRY ON A GOOD CONVERSTION WITH MYSELF.

I LOOSE TRACK ON WHAT I AM SAYING ALL THE TIME AND IT MAKES ME SO UPSET. I

DON'T REMEMBER THINGS IF I DON'T WRITE THEM DOWN. I USE TO REMEMBER

EVERYTHING.

OH WELL.

SUE AIH

WISCONSIN

[Guest guest]

Lynn:

I love it when you talk and you forget what you were talking about. I guess

that it is part of life. Old age at 35. Sure doctor!

I just go on my merry way with my notes to me and I talk to myself alot too.

Ofcourse at home I say I am talking to Halo my Dog.

Sue AIH

Wisconsin

[Guest guest]

Dearn All,

Thanks for sharing the dumb stuff you do, makes me feel I am part of a group

and not alone in this. We can laugh at ourselves! smiling

J

>From: Roselle50@...

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>Subject: Re: [ ] Just need to talk about stuff

>Date: Fri, 30 Jul 1999 09:35:17 EDT

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>From: Roselle50@...

>

>MARLENE:

>

>I DO SOME STUPID THINGS. LAST NIGHT AT WORK I SAT AND WAS TALKING TO

>MYSELF

>AND I LOOKED UP AND THE CLEANING PERSON WAS STANDING THERE WATCHING ME. I

>CALLED MYSELF STUPID WHEN I WAS TALKING. HE STARTED LAUGHING AND SAID I

>COULD REALLY CARRY ON A GOOD CONVERSTION WITH MYSELF.

>

>I LOOSE TRACK ON WHAT I AM SAYING ALL THE TIME AND IT MAKES ME SO UPSET. I

>DON'T REMEMBER THINGS IF I DON'T WRITE THEM DOWN. I USE TO REMEMBER

>EVERYTHING.

>

>OH WELL.

>

>SUE AIH

>WISCONSIN

>

>---------------------------

[Guest guest]

I went to drug store for my prescription and left my check book there.

Pa.

[Guest guest]

Hi Sue, that is me too. I had an excellent memory untill I was 35. Then all of

a sudden I couldn't think straight and started forgeting things. Had to start

making lists for everything. I asked Drs. and others about it and they said it

was old age. I didn't think I was that old and it started just too quickly. So

here I am twelve years later the same way and I hate it. I forget words in the

middle of sentenses, I just draw a blank, but can remember later on. I would

assume it is from aih because I was told I had it for years, and I guess that is

when it started getting bad. Lynn

Roselle50@... wrote:

> From: Roselle50@...

>

> MARLENE:

>

> I DO SOME STUPID THINGS. LAST NIGHT AT WORK I SAT AND WAS TALKING TO MYSELF

> AND I LOOKED UP AND THE CLEANING PERSON WAS STANDING THERE WATCHING ME. I

> CALLED MYSELF STUPID WHEN I WAS TALKING. HE STARTED LAUGHING AND SAID I

> COULD REALLY CARRY ON A GOOD CONVERSTION WITH MYSELF.

>

> I LOOSE TRACK ON WHAT I AM SAYING ALL THE TIME AND IT MAKES ME SO UPSET. I

> DON'T REMEMBER THINGS IF I DON'T WRITE THEM DOWN. I USE TO REMEMBER

> EVERYTHING.

>

> OH WELL.

>

> SUE AIH

> WISCONSIN

>

> ---------------------------

[Guest guest]

Lynn, I have never had clinical depression but I wouldnt be surprised

that I have a depression going on here. I have been waiting over a

month to see a hepatologist in hopes of getting a diagnosis so that I

can begin treatment. Plus, I've basically diagnosed myself and can see

where my life is going as far as my liver goes and it scares the liven

shit out of me.

Im facing another new doctor. You all know what thats like. You get

better odds at a casino than you do with finding a good doctor these

days.

the list goes on..so yes I have thought about the depression issue with

regards to my brain fog..It seems to be from something other than just

depression to me tho.. I hadnt told my partner what my fears were until

a little over a week ago. He is being very supportive. What my mom said

to me when I told her seems to be ringing in my head.. " I hope you

decide to stay with us Jody. " that was a cold thing to say..and also

puts the fear of dying from this.. I just want next week to be over

with..

Jody

--- Lynn <CEN32195@...> wrote:

> From: Lynn <CEN32195@...>

>

> Jody, I have brain fog and hate it, and it sounds

> like you have some

> depression possibly creeping in. Have you had

> problems with depression

> before? Lynn aih

>

> Jody Compton wrote:

>

> > From: Jody Compton <compton_61@...>

> >

> > Hi everyone,

> > First I want to thank you guys for being here and

> sharing your

> > experiences and listening to mine.

> > Lately, I feel like my memory is getting worse

> along with my fatigue.

> > It seems to make it more difficult to deal with

> crisis' that arise in

> > life.. I feel overwhelmed over the little things

> it seems. I don't know

> > if this is a side effect of the fatigue but I dont

> like it. Its just

> > not me. It seems I become more and more stressed

> out as I fight for

> > what's left of my mental faculties. Does anyone

> else have this problem.

> > I also have the acne lately. I had a time a year

> ago when I had a huge

> > break out and it cleared up but now its returned.

> Has anyone felt this

> > way???

> > I cant wait to see the Hep doc next week..

> > Thanks again for listening

> > Jody

> >

> > ===

> > Jody Compton

> > Dance like no one is watching. Love like it will

> never end.

> >

> > In search of answers..

> >

> _____________________________________________________________

> >

[Guest guest]

Lynn, I have never had clinical depression but I wouldnt be surprised

that I have a depression going on here. I have been waiting over a

month to see a hepatologist in hopes of getting a diagnosis so that I

can begin treatment. Plus, I've basically diagnosed myself and can see

where my life is going as far as my liver goes and it scares the liven

shit out of me.

Im facing another new doctor. You all know what thats like. You get

better odds at a casino than you do with finding a good doctor these

days.

the list goes on..so yes I have thought about the depression issue with

regards to my brain fog..It seems to be from something other than just

depression to me tho.. I hadnt told my partner what my fears were until

a little over a week ago. He is being very supportive. What my mom said

to me when I told her seems to be ringing in my head.. " I hope you

decide to stay with us Jody. " that was a cold thing to say..and also

puts the fear of dying from this.. I just want next week to be over

with..

Jody

--- Lynn <CEN32195@...> wrote:

> From: Lynn <CEN32195@...>

>

> Jody, I have brain fog and hate it, and it sounds

> like you have some

> depression possibly creeping in. Have you had

> problems with depression

> before? Lynn aih

>

> Jody Compton wrote:

>

> > From: Jody Compton <compton_61@...>

> >

> > Hi everyone,

> > First I want to thank you guys for being here and

> sharing your

> > experiences and listening to mine.

> > Lately, I feel like my memory is getting worse

> along with my fatigue.

> > It seems to make it more difficult to deal with

> crisis' that arise in

> > life.. I feel overwhelmed over the little things

> it seems. I don't know

> > if this is a side effect of the fatigue but I dont

> like it. Its just

> > not me. It seems I become more and more stressed

> out as I fight for

> > what's left of my mental faculties. Does anyone

> else have this problem.

> > I also have the acne lately. I had a time a year

> ago when I had a huge

> > break out and it cleared up but now its returned.

> Has anyone felt this

> > way???

> > I cant wait to see the Hep doc next week..

> > Thanks again for listening

> > Jody

> >

> > ===

> > Jody Compton

> > Dance like no one is watching. Love like it will

> never end.

> >

> > In search of answers..

> >

> _____________________________________________________________

> >

[Guest guest]

Lynn, I have never had clinical depression but I wouldnt be surprised

that I have a depression going on here. I have been waiting over a

month to see a hepatologist in hopes of getting a diagnosis so that I

can begin treatment. Plus, I've basically diagnosed myself and can see

where my life is going as far as my liver goes and it scares the liven

shit out of me.

Im facing another new doctor. You all know what thats like. You get

better odds at a casino than you do with finding a good doctor these

days.

the list goes on..so yes I have thought about the depression issue with

regards to my brain fog..It seems to be from something other than just

depression to me tho.. I hadnt told my partner what my fears were until

a little over a week ago. He is being very supportive. What my mom said

to me when I told her seems to be ringing in my head.. " I hope you

decide to stay with us Jody. " that was a cold thing to say..and also

puts the fear of dying from this.. I just want next week to be over

with..

Jody

--- Lynn <CEN32195@...> wrote:

> From: Lynn <CEN32195@...>

>

> Jody, I have brain fog and hate it, and it sounds

> like you have some

> depression possibly creeping in. Have you had

> problems with depression

> before? Lynn aih

>

> Jody Compton wrote:

>

> > From: Jody Compton <compton_61@...>

> >

> > Hi everyone,

> > First I want to thank you guys for being here and

> sharing your

> > experiences and listening to mine.

> > Lately, I feel like my memory is getting worse

> along with my fatigue.

> > It seems to make it more difficult to deal with

> crisis' that arise in

> > life.. I feel overwhelmed over the little things

> it seems. I don't know

> > if this is a side effect of the fatigue but I dont

> like it. Its just

> > not me. It seems I become more and more stressed

> out as I fight for

> > what's left of my mental faculties. Does anyone

> else have this problem.

> > I also have the acne lately. I had a time a year

> ago when I had a huge

> > break out and it cleared up but now its returned.

> Has anyone felt this

> > way???

> > I cant wait to see the Hep doc next week..

> > Thanks again for listening

> > Jody

> >

> > ===

> > Jody Compton

> > Dance like no one is watching. Love like it will

> never end.

> >

> > In search of answers..

> >

> _____________________________________________________________

> >

[Guest guest]

Jody, I know. So many thoughts go threw your head and so much fear, that is

all understandable. It is really hard when no one around really knows what

is happening and how you are feeling. People seem to think because you are

alive it means it is not serious enough to worry about. My family (on my

side) is no support at all and no comfort. My husband and kids are there

for me, that is all I can ask for, even tho they don't know either. Keep

talking to the group and letting us know how you are doing and feeling.

Most of us have the same thoughts and fears. Lynn aih

Jody Compton wrote:

> From: Jody Compton <compton_61@...>

>

> Lynn, I have never had clinical depression but I wouldnt be surprised

> that I have a depression going on here. I have been waiting over a

> month to see a hepatologist in hopes of getting a diagnosis so that I

> can begin treatment. Plus, I've basically diagnosed myself and can see

> where my life is going as far as my liver goes and it scares the liven

> shit out of me.

> Im facing another new doctor. You all know what thats like. You get

> better odds at a casino than you do with finding a good doctor these

> days.

> the list goes on..so yes I have thought about the depression issue with

> regards to my brain fog..It seems to be from something other than just

> depression to me tho.. I hadnt told my partner what my fears were until

> a little over a week ago. He is being very supportive. What my mom said

> to me when I told her seems to be ringing in my head.. " I hope you

> decide to stay with us Jody. " that was a cold thing to say..and also

> puts the fear of dying from this.. I just want next week to be over

> with..

> Jody

>

> --- Lynn <CEN32195@...> wrote:

> > From: Lynn <CEN32195@...>

> >

> > Jody, I have brain fog and hate it, and it sounds

> > like you have some

> > depression possibly creeping in. Have you had

> > problems with depression

> > before? Lynn aih

> >

> > Jody Compton wrote:

> >

> > > From: Jody Compton <compton_61@...>

> > >

> > > Hi everyone,

> > > First I want to thank you guys for being here and

> > sharing your

> > > experiences and listening to mine.

> > > Lately, I feel like my memory is getting worse

> > along with my fatigue.

> > > It seems to make it more difficult to deal with

> > crisis' that arise in

> > > life.. I feel overwhelmed over the little things

> > it seems. I don't know

> > > if this is a side effect of the fatigue but I dont

> > like it. Its just

> > > not me. It seems I become more and more stressed

> > out as I fight for

> > > what's left of my mental faculties. Does anyone

> > else have this problem.

> > > I also have the acne lately. I had a time a year

> > ago when I had a huge

> > > break out and it cleared up but now its returned.

> > Has anyone felt this

> > > way???

> > > I cant wait to see the Hep doc next week..

> > > Thanks again for listening

> > > Jody

> > >

> > > ===

> > > Jody Compton

> > > Dance like no one is watching. Love like it will

> > never end.

> > >

> > > In search of answers..

> > >

> > _____________________________________________________________

> > >