Guest guest Posted November 8, 2004 Report Posted November 8, 2004 I have what your wife has though mine is not acquired but hereditary. I have tried looking for as much information as I can on the disorder but find the support forums and information sites severly lacking. Do you think that maybe I could email you and your wife some questions that I have concerning angioedema? > > > What is angioedema? > > The label is a broad umbrella term for deep swellings which come and go. > These are in much deeper tissue than hives (urticaria), but have similar > mechanisms rooted in the histamine system, especially mast cells. The > chronic recurrent condition was originally called " hereditary > angioneurotic oedema, " but it is not inherited and has nothing to do > with nerves or neuroses, except that it irritates nerve endings and can > be quite painful. > > Here's a blurb on it. > > http://www.users.globalnet.co.uk/~aair/angioedema.htm > > My wife has an acquired C1 inhibitor deficiency (mentioned at the > bottom), plus some other blood proteins are messed up with a > proliferation of mast cells. At times, she is sensitive to many of the > same foods that trigger or aggravate other digestive problems. It is > rather like getting severe hives everywhere on the inside while her face > swells up. I will spare the list the detailed symptoms, other than to > say they are quite unpleasant and even life threatening. Of four people > in town with the mast cell problem, two have died since we found out the > diagnosis. > > As I mentioned, our specialist thinks all of this was triggered by a > spider bite over ten years ago, which started an autoimmune response. My > wife has evidently been " featured " in several research papers. As a man > once said while being tarred and feathered, " If it weren't for the honor > of the thing, I would just as soon pass on this experience. " > > Chuck Quote
Guest guest Posted November 8, 2004 Report Posted November 8, 2004 numere a una madrina wrote: > > I have what your wife has though mine is not acquired but hereditary. > I have tried looking for as much information as I can on the disorder > but find the support forums and information sites severly lacking. > Do you think that maybe I could email you and your wife some > questions that I have concerning angioedema? Sure, but if the condition is hereditary, then it is decidedly not the same thing. Chuck Quote
Guest guest Posted November 8, 2004 Report Posted November 8, 2004 Yeah I just re-read my post and realised exactly that!! Thanks anyways > > > > > I have what your wife has though mine is not acquired but hereditary. > > I have tried looking for as much information as I can on the disorder > > but find the support forums and information sites severly lacking. > > Do you think that maybe I could email you and your wife some > > questions that I have concerning angioedema? > > Sure, but if the condition is hereditary, then it is decidedly not the > same thing. > > Chuck Quote
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