Re: update on my mom--she's being tested for adrenal tumor

[Guest guest]

horrible. ridiculous. If your Mom doesn't find a holistic Broda

type doc she is screwed.

Gracia

> Hi all,

>

> I will update you on what's happening with my mom.

>

[Guest guest]

Hi Gracia, No disrespect, but I refuse to believe that my mom is screwed. There

are NO Broda docs around here.

I am telling my mom all the tests she needs. I talked to her for over an hour

today. She is to the point she is ready to tell her PCP to admit her and run all

the tests because she feels like she just can't take it anymore.

This endo she saw should've ordered more tests. she told mom she thought she had

nodules on her thyroid but didn't order an ultrasound...told her she thought she

had antibodies but didn't order an antibody test...told her she didn't need

treatment until her TSH got over 10.

I told mom to call her PCP and tell him to at least do a 24 hour urine and check

her adrenals. Mom also has info on how to order the saliva tests. I told her to

tell him to do an ultrasound and check her antibodies.

I am arming her with information and support, and she WILL get through this. In

the span of 3 weeks, my mom has gone from a dynamo to virtually non-functional.

I will not stand by and watch the life sucked from her!

I mailed her my thyroid books and she is ordering others. She is learning all

she can about adrenal and thyroid stuff. She WILL get back to her normal self.

No one's gonna mess with my mama!!!

I know what you were saying, but mom's PCP will do whatever he can to get her

better. I believe that.

how's your mom doing, Gracia??? any better?

i've been wanting to mention something to you for a long time but keep

forgetting. I worked with MR/DD patients for many, many years. didn't you say

you worked in aroup home?

{{hugs,}}sheila

Gracia <circe@...> wrote:

horrible. ridiculous. If your Mom doesn't find a holistic Broda

type doc she is screwed.

Gracia

> Hi all,

>

> I will update you on what's happening with my mom.

>

[Guest guest]

----- Sheila why do you think Mom needs MORE TESTS? Yikes. She could feel

better right this minute with cortef and Armour. Compounded estrogen,

progesterone, and testosterone have been wonderful for me too. Why do tests

that aren't so accurate with docs who don't know how to treat what they are

testing? The hospital 24 hr urine isn't going to be accurate but the one

from AAL lab is good.

My mother is almost in a vegetative state, even though I take her to very

well known " holistic " docs. They still don't know anything about

adrenals. It's insanity producing.

I am working in a group home with MR adults, downs syndrome, cerebral palsy.

Some wear diapers and are nonverbal. It's a challenge, but the health

insurance is great. I would say that half of the clients need thyroid meds

but are not getting them. One is on $ynthroid, too little, and has problems

from it (indigestion, weight, anxiety). I gave my Broda barnes book to the

administrator and am trying to advocate for the residents.

Gracia

> Hi Gracia, No disrespect, but I refuse to believe that my mom is screwed.

There are NO Broda docs around here.

>

> I am telling my mom all the tests she needs. I talked to her for over an

hour today. She is to the point she is ready to tell her PCP to admit her

and run all the tests because she feels like she just can't take it anymore.

>

> This endo she saw should've ordered more tests.

[Guest guest]

Hi Gracia, Can you send me a link (no hurry) for that AAL lab? I would

appreciate it.

I know that your job can be stressful and challenging. I've worked with MR/DD

clients for many years...started as a volunteer when I was 16 years old and then

during college worked as a respite provider. Most of the clients I worked with,

however, were quite functional.

I've worked in the mental health field most of my life; however, I got really

burned out when I was resident manager at women's center. The majority of the

women had problems with chemical dependency, and I just can't stand to be around

people who are strung out on crack...especially when you are LIVING at the

center where you work and are being affected by their behavior.

I left the center I think eight years ago (when Kemal and I decided to get

married). Men were not allowed in the building after 11 p.m., so obviously this

was not a job I could keep.

Anyway, after working a lifetime in the field, I took a break and got a job in

the healthcare field (not mental health).

I think I'm ready to go back now and plan to start looking for something

interesting. The problem is, as I'm sure you know, that the pay really sucks if

you don't have a master's degree. I still have am about 7 classes shy of getting

my bachelor's, but I'm not planning to pursue my academic career anymore...at

least not for a long time.

Trying to work and go to school (even just one class a semester) is just too

much for me. I have decided to put my health first.

Besides, my vocational counselor told me even with a bachelor's, I still won't

get a decent paying job in my field. So, I will start looking around and see how

bad of a pay cut I'll have to take...I'm hoping an inpatient job will pay

better. We'll see.

I think it's great that you're advocating for your clients. There are just so

many people with undiagnosed thyroid problems, and so many could feel better if

only they were treated.

I found out that the docs at my mom's practice are osteopathic doctors. No

wonder they are more open about treating her according to symptoms.

My mom sees a physician assistant mostly, and we just love him. He has trained

under this ostepathic doc, and so far, he has been great. He is going to start

Mom on Armour, but right now they're waiting until she sees another endo this

month. REgardless of what the endo says, he is going to treat her with Armour.

Well, I've babbled enough...need to go work out and get outside and enjoy the

day!!!!

Take care and hang in! Hugs, Sheila

Gracia <circe@...> wrote:

----- Sheila why do you think Mom needs MORE TESTS? Yikes. She could feel

better right this minute with cortef and Armour. Compounded estrogen,

progesterone, and testosterone have been wonderful for me too. Why do tests

that aren't so accurate with docs who don't know how to treat what they are

testing? The hospital 24 hr urine isn't going to be accurate but the one

from AAL lab is good.

My mother is almost in a vegetative state, even though I take her to very

well known " holistic " docs. They still don't know anything about

adrenals. It's insanity producing.

I am working in a group home with MR adults, downs syndrome, cerebral palsy.

Some wear diapers and are nonverbal. It's a challenge, but the health

insurance is great. I would say that half of the clients need thyroid meds

but are not getting them. One is on $ynthroid, too little, and has problems

from it (indigestion, weight, anxiety). I gave my Broda barnes book to the

administrator and am trying to advocate for the residents.

Gracia

> Hi Gracia, No disrespect, but I refuse to believe that my mom is screwed.

There are NO Broda docs around here.

>

> I am telling my mom all the tests she needs. I talked to her for over an

hour today. She is to the point she is ready to tell her PCP to admit her

and run all the tests because she feels like she just can't take it anymore.

>

> This endo she saw should've ordered more tests.