Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 hi, well, i have lots of stories. what kind of story would you like me to tell you? I have some stories of hope, despair, etc. I will tell you last winter I thought I was dying. A little over a year later, I feel almost back to myself. the cognitive problems persist. today my hands were so dry, scaly, and scratching, my husband said it hurt his skin when I touched him. I'm having a bad couple of days. Most days are TONS better than this for me. It's gonna be about getting on the right medication and the right dosage. It may mean making some changes in your diet. It's gonna be essential that you be proactive with this disease. You're gonna have to educate yourself, and you're at a great place to do that. You're gonna need a lot of support, and you have that here as well. It's a great group of people. this is a great place to share. people here understand; they really do. have you done any reading in the archives yet? The reason I ask is after I was diagnosed last Feb., that's where I started. I read every single post in the archives of this group. it really helped me a lot. you and the other newcomers in the past few days...just realize you're not alone. we can relate to what you're going through. angie, (is that your name?), why are you on estrogen patches? The reason I ask is so many times our thyroid can mess up our menstural cycles. What kind of thyroid medication did your doc prescribe? Did you get the script filled yet and start taking it? I will tell you and the others something that, for me, was the single most important piece of information I was told by the nurse practitioner at my endo's office. (this information is common knowledge, and when you do your research about this disease, you will see it a lot). Thyroid hormones affect EVERY SINGLE CELL IN YOUR BODY. It can affect your skin, your organs, your emotions, your reproductive system, your libido, your energy level, your nails, muscles...everything! the other most important thing I learned (not from my doctor's office) is that we do NOT have to settle for feeling bad. if i had not been in this group and my other thyroid group, I would have just settled for what my doctor told me. He told me " Your labs are great. " Well, I kept asking myself (and him), " If my labs are so great then why do I feel like SH_T? " Listen to your body; you know it better than anyone. Symptoms are just as important (if not more important) than lab values. I recommend you read the archives. I also recommend the following two books that I still refer to all the time. I'm sure they will really help you a lot. There are other good books others will recommend; I just haven't read them yet. " Thyroid Power " by Drs. and Karilee Shames is EASY reading. When I read this book, I just felt like all the pieces were coming together. " The Thyroid Solution " by Dr. Ridha Arem is also easy to read and provides a wealth of information that you need to know. Take care guys and keep in touch! Hugs, Sheila angiesplacedaycare <angiesplacedaycare@...> wrote: I am a 28 yr old mother of 4. Two weeks ago i had to go on estrogen patches now i was told yestraday i have hypothyroidism...I have been researching it all day....And I guess i just need some real advice and stories....Can anyone help me Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 -Thank you for this, they put me on estrogen patches due to the lack of estrogen in my body. I have a lot of women problems...I am on sythroid/levothroid I have tried to do research. But I am just trying settle in to the fact that I am going to be on meds for the rest of my life. Till 8 yrs ago i was a 130lb mother of two slim and ok looking then I had my two last children. Lost the weight mostly. then 2 yrs ago i started to pile it on, now i weigh 162 and my youngest is three and i have been dieting for over a year. No weigh lost...Plus i am tired always. Mestrual is bad.. aand the mood swings hunt me.... my skin is so dry it's nasty my hair which used to be adored my most is so dry it brakes. I am just looking for some advice and support friends..-- In hypothyroidism , Kemal Kalajdzic <kemalandsheila@y...> wrote: > hi, well, i have lots of stories. what kind of story would you like me to tell you? I have some stories of hope, despair, etc. I will tell you last winter I thought I was dying. A little over a year later, I feel almost back to myself. the cognitive problems persist. > > today my hands were so dry, scaly, and scratching, my husband said it hurt his skin when I touched him. I'm having a bad couple of days. Most days are TONS better than this for me. > > It's gonna be about getting on the right medication and the right dosage. It may mean making some changes in your diet. It's gonna be essential that you be proactive with this disease. You're gonna have to educate yourself, and you're at a great place to do that. You're gonna need a lot of support, and you have that here as well. It's a great group of people. > > this is a great place to share. people here understand; they really do. > > have you done any reading in the archives yet? The reason I ask is after I was diagnosed last Feb., that's where I started. I read every single post in the archives of this group. it really helped me a lot. > > you and the other newcomers in the past few days...just realize you're not alone. we can relate to what you're going through. > > angie, (is that your name?), why are you on estrogen patches? The reason I ask is so many times our thyroid can mess up our menstural cycles. > > What kind of thyroid medication did your doc prescribe? Did you get the script filled yet and start taking it? > > I will tell you and the others something that, for me, was the single most important piece of information I was told by the nurse practitioner at my endo's office. (this information is common knowledge, and when you do your research about this disease, you will see it a lot). > > Thyroid hormones affect EVERY SINGLE CELL IN YOUR BODY. It can affect your skin, your organs, your emotions, your reproductive system, your libido, your energy level, your nails, muscles...everything! > > the other most important thing I learned (not from my doctor's office) is that we do NOT have to settle for feeling bad. if i had not been in this group and my other thyroid group, I would have just settled for what my doctor told me. He told me " Your labs are great. " Well, I kept asking myself (and him), " If my labs are so great then why do I feel like SH_T? " Listen to your body; you know it better than anyone. Symptoms are just as important (if not more important) than lab values. > > I recommend you read the archives. > > I also recommend the following two books that I still refer to all the time. I'm sure they will really help you a lot. There are other good books others will recommend; I just haven't read them yet. > > " Thyroid Power " by Drs. and Karilee Shames is EASY reading. When I read this book, I just felt like all the pieces were coming together. > > " The Thyroid Solution " by Dr. Ridha Arem is also easy to read and provides a wealth of information that you need to know. > > Take care guys and keep in touch! Hugs, Sheila > > > > > angiesplacedaycare <angiesplacedaycare@y...> wrote: > I am a 28 yr old mother of 4. Two weeks ago i had to go on estrogen > patches now i was told yestraday i have hypothyroidism...I have been > researching it all day....And I guess i just need some real advice > and stories....Can anyone help me > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 hi angie, it can be very difficult to realize you have to take meds the rest of your life. for me though, i felt relief by just knowing what was wrong and how to treat it. did your doc tell you what kind of hypothyroidism you have? Do you have Hashimoto's disease (also called chronic thyroiditis). what dosage of synthroid are you starting on? i can relate to the symptoms you're having. I started feeling better once I started on the meds and I lost the weight. But even though I was feeling better, I still had symptoms. We tried a Levoxyl/Cytomel combo after initially just starting on Levoxyl. That combo made a big difference. Still I was having symptoms, and I switch to Armour. I have felt much, much better since going on that medication, and many of my symptoms were resolved. I had a lot of problems with my menstrual cycle. It all cleared up when I started on Armour. did your doctor or pharmacist warn you about how calcium can interfere with your thyroid hormones? You should make sure there's like 2-4 hours between the time you take your thyroid hormones and calcium. Here's some beginning information you and the others might like. You may already know some of this since you've been doing research. The last link will tell you what foods/drugs to watch out for that can interfere with thyroid hormones. The second link is a GREAT source of information. You can just stay here and learn tons. The first link is good place to get you started. Take care, and keep in touch! hugs, sheila http://thyroid.about.com/cs/basics_starthere/index.htm http://www.thyroid-info.com/index.htm http://www.thyroid-info.com/articles/thyroid-drug-faq.htm Angie <angiesplacedaycare@...> wrote: -Thank you for this, they put me on estrogen patches due to the lack of estrogen in my body. I have a lot of women problems...I am on sythroid/levothroid I have tried to do research. But I am just trying settle in to the fact that I am going to be on meds for the rest of my life. Till 8 yrs ago i was a 130lb mother of two slim and ok looking then I had my two last children. Lost the weight mostly. then 2 yrs ago i started to pile it on, now i weigh 162 and my youngest is three and i have been dieting for over a year. No weigh lost...Plus i am tired always. Mestrual is bad.. aand the mood swings hunt me.... my skin is so dry it's nasty my hair which used to be adored my most is so dry it brakes. I am just looking for some advice and support friends..-- In hypothyroidism , Kemal Kalajdzic <kemalandsheila@y...> wrote: > hi, well, i have lots of stories. what kind of story would you like me to tell you? I have some stories of hope, despair, etc. I will tell you last winter I thought I was dying. A little over a year later, I feel almost back to myself. the cognitive problems persist. > > today my hands were so dry, scaly, and scratching, my husband said it hurt his skin when I touched him. I'm having a bad couple of days. Most days are TONS better than this for me. > > It's gonna be about getting on the right medication and the right dosage. It may mean making some changes in your diet. It's gonna be essential that you be proactive with this disease. You're gonna have to educate yourself, and you're at a great place to do that. You're gonna need a lot of support, and you have that here as well. It's a great group of people. > > this is a great place to share. people here understand; they really do. > > have you done any reading in the archives yet? The reason I ask is after I was diagnosed last Feb., that's where I started. I read every single post in the archives of this group. it really helped me a lot. > > you and the other newcomers in the past few days...just realize you're not alone. we can relate to what you're going through. > > angie, (is that your name?), why are you on estrogen patches? The reason I ask is so many times our thyroid can mess up our menstural cycles. > > What kind of thyroid medication did your doc prescribe? Did you get the script filled yet and start taking it? > > I will tell you and the others something that, for me, was the single most important piece of information I was told by the nurse practitioner at my endo's office. (this information is common knowledge, and when you do your research about this disease, you will see it a lot). > > Thyroid hormones affect EVERY SINGLE CELL IN YOUR BODY. It can affect your skin, your organs, your emotions, your reproductive system, your libido, your energy level, your nails, muscles...everything! > > the other most important thing I learned (not from my doctor's office) is that we do NOT have to settle for feeling bad. if i had not been in this group and my other thyroid group, I would have just settled for what my doctor told me. He told me " Your labs are great. " Well, I kept asking myself (and him), " If my labs are so great then why do I feel like SH_T? " Listen to your body; you know it better than anyone. Symptoms are just as important (if not more important) than lab values. > > I recommend you read the archives. > > I also recommend the following two books that I still refer to all the time. I'm sure they will really help you a lot. There are other good books others will recommend; I just haven't read them yet. > > " Thyroid Power " by Drs. and Karilee Shames is EASY reading. When I read this book, I just felt like all the pieces were coming together. > > " The Thyroid Solution " by Dr. Ridha Arem is also easy to read and provides a wealth of information that you need to know. > > Take care guys and keep in touch! Hugs, Sheila > > > > > angiesplacedaycare <angiesplacedaycare@y...> wrote: > I am a 28 yr old mother of 4. Two weeks ago i had to go on estrogen > patches now i was told yestraday i have hypothyroidism...I have been > researching it all day....And I guess i just need some real advice > and stories....Can anyone help me > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2004 Report Share Posted April 4, 2004 thanks again for the information, I am experiencing problems, that i am unsure are related to the hypothyroidism i have a huge knot in the back of my neck, along with a migrane that does not want to leave, my eye muscle are sore. I am feeling lost most of the time, my head is always foggy and i am becoming more tired then usual is this from the meds or the disease. I do not want to become a nag to my doctor at my appointment that is why i want to know all i can before i go back next week. > > I am a 28 yr old mother of 4. Two weeks ago i had to go on estrogen > > patches now i was told yestraday i have hypothyroidism...I have > been > > researching it all day....And I guess i just need some real advice > > and stories....Can anyone help me > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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