Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 My mom is no longer going to that doctor. She just saw a different doctor in the practice yesterday (was listed as a Top Doc). Her TSH after 8 weeks without thyroid meds was 13 something. Of course, she has tons of symtpoms. He said she definitely needs Armour and is doing some more testing of other hormones. Mom wasn't sure which ones...I have a feeling he's testing some adrenal hormones again...doing 24 hour urine. Since Mom is so sensitive to thyroid meds, he's starting her on 30 mgs. and will increase slowly. I am thrilled she found this doctor! Hugs, Sheila Gracia <circe@...> wrote: DANGEROUS. no one should be going to a doc like this one. decreased income might send him a message. Gracia > Hi Gracia, > My mom, who also had a partial thyroidectomy, was told 8 weeks ago by some stupid endo that she should NOT be on thyroid meds 'cause her TSH was ?...can't remember but she was definitely in the hypoT range. This doc said her TSH needed to get up over 10. Crazy! sheila > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 She is so sensitive to thyroid meds b/c she needs other hormones like cortisol, compounded hormones. It is not complicated actually and does not require tons of tests, some of which won't be accurate. My mother had a 24 hr urine test in the hospital which came out normal--well they didn't give her cortef, which tells me the test was useless. It really isn't necessary for your mother to be so sick and not get treatment. I just got Rx for hormones renewed and thank God the ND didn't even SUGGEST I get TSH done. Your mother will never get proper treatment unless the doc knows about adrenals. Gracia > My mom is no longer going to that doctor. She just saw a different doctor in the practice yesterday (was listed as a Top Doc). > > Her TSH after 8 weeks without thyroid meds was 13 something. Of course, she has tons of symtpoms. > > He said she definitely needs Armour and is doing some more testing of other hormones. Mom wasn't sure which ones...I have a feeling he's testing some adrenal hormones again...doing 24 hour urine. > > Since Mom is so sensitive to thyroid meds, he's starting her on 30 mgs. and will increase slowly. > > I am thrilled she found this doctor! Hugs, Sheila > > Gracia <circe@...> wrote: > > DANGEROUS. no one should be going to a doc like this one. decreased > income might send him a message. > Gracia > > > Hi Gracia, > > My mom, who also had a partial thyroidectomy, was told 8 weeks ago by some > stupid endo that she should NOT be on thyroid meds 'cause her TSH was > ?...can't remember but she was definitely in the hypoT range. This doc said > her TSH needed to get up over 10. Crazy! sheila > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 I'm sure you are right, Gracia. Since she's been diagnosed with adrenal exhaustion in the past, I'm sure there is some adrenal problem going on now. And while I agree that the tests they're running may turn out to be useless, what else is she to do? My folks are already making a 2 hour trip just to get to this specialist. Your advice for her to see a doc who specializes in adrenals is great, but I don't think maybe you've forgotten that my folks live in sticks and it's not so easy to find the kind of doc you're talking about. I live in the biggest city in Louisville, and my endo is the only doc here I can find who will RX Armour...and my doc certainly is no expert in adrenals. The one so called " expert " in adrenals that I went to didn't know beans about adrenals. I simply can't find the kind of docs you're talking about. What's my mom supposed to do...drive half way across the country to find the kind of doc you're talking about? We want to get to the bottom of what's going on with her, and I think that we are trying our best to do just that. If you have some suggestions on how I can find the kind of doctor you're talking about, please let me know. I can't find any Broda docs in the area, and I can't find any doc who specializes in adrenals. sheila Gracia <circe@...> wrote: She is so sensitive to thyroid meds b/c she needs other hormones like cortisol, compounded hormones. It is not complicated actually and does not require tons of tests, some of which won't be accurate. My mother had a 24 hr urine test in the hospital which came out normal--well they didn't give her cortef, which tells me the test was useless. It really isn't necessary for your mother to be so sick and not get treatment. I just got Rx for hormones renewed and thank God the ND didn't even SUGGEST I get TSH done. Your mother will never get proper treatment unless the doc knows about adrenals. Gracia > My mom is no longer going to that doctor. She just saw a different doctor in the practice yesterday (was listed as a Top Doc). > > Her TSH after 8 weeks without thyroid meds was 13 something. Of course, she has tons of symtpoms. > > He said she definitely needs Armour and is doing some more testing of other hormones. Mom wasn't sure which ones...I have a feeling he's testing some adrenal hormones again...doing 24 hour urine. > > Since Mom is so sensitive to thyroid meds, he's starting her on 30 mgs. and will increase slowly. > > I am thrilled she found this doctor! Hugs, Sheila > > Gracia <circe@...> wrote: > > DANGEROUS. no one should be going to a doc like this one. decreased > income might send him a message. > Gracia > > > Hi Gracia, > > My mom, who also had a partial thyroidectomy, was told 8 weeks ago by some > stupid endo that she should NOT be on thyroid meds 'cause her TSH was > ?...can't remember but she was definitely in the hypoT range. This doc said > her TSH needed to get up over 10. Crazy! sheila > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 Oh yeah the living in the sticks thing. It is just so frustrating to see what people go through, what I went through, it drives me crazy. I needed a bunch of adrenal hormones and for a while I was getting one hormone every six months--such a waste of time and my life. When I finally got what I needed I realized this was not rocket science!!!!! These docs don't have to be experts in adrenals, they just need a clue! She might find a doc from http://www.womensinternational.com b/c she needs compounded hormones b/c her adrenals cannot make hormones. We don't spontaneously recover from adrenal insufficiency, we get sicker and sicker. My mother's pulse now doesn't rise above 44, but doc says her tests are " fine " . Gracia > I'm sure you are right, Gracia. Since she's been diagnosed with adrenal exhaustion in the past, I'm sure there is some adrenal problem going on now. > And while I agree that the tests they're running may turn out to be useless, what else is she to do? My folks are already making a 2 hour trip just to get to this specialist. > > Your advice for her to see a doc who specializes in adrenals is great, but I don't think maybe you've forgotten that my folks live in sticks and it's not so easy to find the kind of doc you're talking about. > > I live in the biggest city in Louisville, and my endo is the only doc here I can find who will RX Armour...and my doc certainly is no expert in adrenals. The one so called " expert " in adrenals that I went to didn't know beans about adrenals. I simply can't find the kind of docs you're talking about. > > What's my mom supposed to do...drive half way across the country to find the kind of doc you're talking about? We want to get to the bottom of what's going on with her, and I think that we are trying our best to do just that. > > If you have some suggestions on how I can find the kind of doctor you're talking about, please let me know. I can't find any Broda docs in the area, and I can't find any doc who specializes in adrenals. > > sheila > > > > > > > Gracia <circe@...> wrote: > > She is so sensitive to thyroid meds b/c she needs other hormones like > cortisol, compounded hormones. It is not complicated actually and does not > require tons of tests, some of which won't be accurate. My mother had a 24 > hr urine test in the hospital which came out normal--well they didn't give > her cortef, which tells me the test was useless. > It really isn't necessary for your mother to be so sick and not get > treatment. I just got Rx for hormones renewed and thank God the ND didn't > even SUGGEST I get TSH done. > Your mother will never get proper treatment unless the doc knows about > adrenals. > Gracia > > > > My mom is no longer going to that doctor. She just saw a different doctor > in the practice yesterday (was listed as a Top Doc). > > > > Her TSH after 8 weeks without thyroid meds was 13 something. Of course, > she has tons of symtpoms. > > > > He said she definitely needs Armour and is doing some more testing of > other hormones. Mom wasn't sure which ones...I have a feeling he's testing > some adrenal hormones again...doing 24 hour urine. > > > > Since Mom is so sensitive to thyroid meds, he's starting her on 30 mgs. > and will increase slowly. > > > > I am thrilled she found this doctor! Hugs, Sheila > > > > Gracia <circe@...> wrote: > > > > DANGEROUS. no one should be going to a doc like this one. decreased > > income might send him a message. > > Gracia > > > > > Hi Gracia, > > > My mom, who also had a partial thyroidectomy, was told 8 weeks ago by > some > > stupid endo that she should NOT be on thyroid meds 'cause her TSH was > > ?...can't remember but she was definitely in the hypoT range. This doc > said > > her TSH needed to get up over 10. Crazy! sheila > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2004 Report Share Posted May 27, 2004 hi gracia...your mom only has a 44 pulse??? and according to her doc, she's " fine? " he's nuts! this doc is testing her hormones. i know the tests can be worthless, but maybe they'll show something. he's almost positive she has antibodies... i have some stuff from women's international...will check it out. thanks a lot. sheila Gracia <circe@...> wrote: Oh yeah the living in the sticks thing. It is just so frustrating to see what people go through, what I went through, it drives me crazy. I needed a bunch of adrenal hormones and for a while I was getting one hormone every six months--such a waste of time and my life. When I finally got what I needed I realized this was not rocket science!!!!! These docs don't have to be experts in adrenals, they just need a clue! She might find a doc from http://www.womensinternational.com b/c she needs compounded hormones b/c her adrenals cannot make hormones. We don't spontaneously recover from adrenal insufficiency, we get sicker and sicker. My mother's pulse now doesn't rise above 44, but doc says her tests are " fine " . Gracia > I'm sure you are right, Gracia. Since she's been diagnosed with adrenal exhaustion in the past, I'm sure there is some adrenal problem going on now. > And while I agree that the tests they're running may turn out to be useless, what else is she to do? My folks are already making a 2 hour trip just to get to this specialist. > > Your advice for her to see a doc who specializes in adrenals is great, but I don't think maybe you've forgotten that my folks live in sticks and it's not so easy to find the kind of doc you're talking about. > > I live in the biggest city in Louisville, and my endo is the only doc here I can find who will RX Armour...and my doc certainly is no expert in adrenals. The one so called " expert " in adrenals that I went to didn't know beans about adrenals. I simply can't find the kind of docs you're talking about. > > What's my mom supposed to do...drive half way across the country to find the kind of doc you're talking about? We want to get to the bottom of what's going on with her, and I think that we are trying our best to do just that. > > If you have some suggestions on how I can find the kind of doctor you're talking about, please let me know. I can't find any Broda docs in the area, and I can't find any doc who specializes in adrenals. > > sheila > > > > > > > Gracia <circe@...> wrote: > > She is so sensitive to thyroid meds b/c she needs other hormones like > cortisol, compounded hormones. It is not complicated actually and does not > require tons of tests, some of which won't be accurate. My mother had a 24 > hr urine test in the hospital which came out normal--well they didn't give > her cortef, which tells me the test was useless. > It really isn't necessary for your mother to be so sick and not get > treatment. I just got Rx for hormones renewed and thank God the ND didn't > even SUGGEST I get TSH done. > Your mother will never get proper treatment unless the doc knows about > adrenals. > Gracia > > > > My mom is no longer going to that doctor. She just saw a different doctor > in the practice yesterday (was listed as a Top Doc). > > > > Her TSH after 8 weeks without thyroid meds was 13 something. Of course, > she has tons of symtpoms. > > > > He said she definitely needs Armour and is doing some more testing of > other hormones. Mom wasn't sure which ones...I have a feeling he's testing > some adrenal hormones again...doing 24 hour urine. > > > > Since Mom is so sensitive to thyroid meds, he's starting her on 30 mgs. > and will increase slowly. > > > > I am thrilled she found this doctor! Hugs, Sheila > > > > Gracia <circe@...> wrote: > > > > DANGEROUS. no one should be going to a doc like this one. decreased > > income might send him a message. > > Gracia > > > > > Hi Gracia, > > > My mom, who also had a partial thyroidectomy, was told 8 weeks ago by > some > > stupid endo that she should NOT be on thyroid meds 'cause her TSH was > > ?...can't remember but she was definitely in the hypoT range. This doc > said > > her TSH needed to get up over 10. Crazy! sheila > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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