Re: Hello every-1 I am new and have LOTS of questions and fears..

June 28, 2004

, welcome to our group. Maybe we can help you. I think so.

If you know how to do a search from the groups home page, look up

posts by Girlie or Kim. Your post sounds almost exactly like hers

from the past 6 months.

Try to get your dr. to do a thyroid antibodies test. I think you

will find you have Hashi's type autoimmune thyroiditis. The tests

come back normal but the symptoms are present. Exaclty what you are

describing. Don't give up, keep trying. Many of us have been where

you are and are gradually feeling better. The synthroid may or may

not help in the short while but if your dr. will keep working with

you, you can find a help. The synthroid seems to be where they all

start. Joan

> Hello I am very happy to be here, My name is and I am 26, I

wastold last week all my sickness and feeling week and so tired I

couldnot keep my head up and I just thought I was going to die..

WASpretty much all do to hypothyroidism..I also have Fibromyalgia

and chronic fatigue syndrome so I was nevertested for

hypothyroidism..

June 28, 2004

Hello ,

I have only been on this list for the past couple of weeks, and have

found people here to be very supportive. I am sort of in the same

position you are--finally diagnosed with FMS and CFS 12 years ago or

so (I'm not good with numbers:-)) and had been getting progressively

worse to the point of thinking about dying too. However, it was a

friend who sent me an article about FMS and CFS actually being hypoT.

Since the new Dr. at our clinic wouldn't test me for thyroid, I got

some levothyroxin and started taking it on my own. I have just

finished my 5th week on 100 mcg. T4, and am having flashes of feeling

better at times, as well as some loosening of my back/spine muscles.

I can feel some of my muscles and ligaments starting to loosen--

especially the big clenched muscles over top of my knees. I have had

no chest pains since I started the T4, and no negative side-effects.

But I am learning to accept the little flashes of feeling better at

times during the day, as a gift. It doesn't seem to get better

quickly, so give it time, and keep thinking positively. That's my

tip.

I also ran off copies of some of the literature from some of the

websites people here have sent, read them, and keep a file of the

best ones. There's lots of knowledge out there, and we are ultimately

responsible for our own health, so it's important for us to find out

as much as possible.

Gail

It In hypothyroidism , " "

<dianahottie@h...> wrote:

> Hello I am very happy to be here, My name is and I am 26, I

wastold last week all my sickness and feeling week and so tired I

couldnot keep my head up and I just thought I was going to die..

WASpretty much all do to hypothyroidism..I also have Fibromyalgia and

chronic fatigue syndrome so I was nevertested for hypothyroidism.. My

doctors just always said it was my FMor CFS.. I was 21 when it

started bad " BAD " . I gained 90lbs in 9 1/2months out of the blue..

And the I have had a dizzy spell for prettymuch 5 years NON stop..

Some days are way harder than others.AND the past 5 days have been so

bad.. I have been so sick, weak anddizzy OMG. I was put on synthroid

last week and so far I still feellike I am dying.. OR like I just

want to die.. This gets so bad and Ihave no one who understands, All

my friends & family think I am overreacting, But all I can say is I

WISH... I hope you all don't mind me writing here about my problems

but Ihave no one else to really turn to... Does anyone ANYONE

understandwhat I am going through?? I have had my blood tested for

EVERYTHING..I have had cat scans MRI's X-rays and they could never

find anythingelse wrong with me.. Than after 5 years of not being

able to findanything they do another blood test for my thyroid and it

comes backnormal???Last week they tried the same test again and they

said the numberswere kinda high and they were positive I have

hypothyroidism.. Itshard to belive they may have found a name besides

FM and CFS thatcould be making me so ill..So now they are going to

try to treat this.. And they said to havehope I can feel better! I

guess after all this typing what I amtrying to ask is if???.... Can I

REALLY feel better? Can I hope forthat much?? Is it possible????

Again I am so sorry for my rambling Ijust need to know if other

people out there understand?? If I canhave hope?? Anyway thanks so

much for taking the time to read thisand if anyone has any tips on

how to deal better PLEASE PLEASE emailme anytime.. dianahottie@h...

June 28, 2004

hi diana and welcome! sorry this will be such a short post...i only have a few

minutes...have to work this morning.

sorry for all you've been through, but please know there certainly is hope!

before i was diagnosed i felt like i was dying too...i really did. It ususally

takes at least 6 weeks before you will notice an improvement in your symptoms,

so hang in there.

i have a friend in another group who also has FM (I'm not sure about the CFS). a

year ago she was barely able to get through the day. she was having to take naps

at work in order to function. she had very little energy and was in a lot of

pain.

She was either taking Levoxyl or synthroid...can't remember but was still having

symptoms. Sometimes this happens. Some people do well on synthroid. Others feel

a little relief but still have symptoms. Anyway, when she switched her thyroid

medication to Armour, she became like a different person. She didn't need to nap

at work...took a walk instead...and didn't have so much fatigue and pain.

I am going great 1 1/2 years after being diagnosed. It took some time and i had

to made changes in my medication, but I feel great overall...not perfect, but

great!

anyway, don't be sorry for " rambling. " I do that all the time. This is a place

where you can talk about what's going on. Say what you need to say and get it

off your chest. Ask your questions and we'll help you as much as we can.

sorry this is so short, but I gotta get going. Hang in! Hugs, sheila

<dianahottie@...> wrote:

Hello I am very happy to be here, My name is and I am 26, I wastold last

week all my sickness and feeling week and so tired I couldnot keep my head up

and I just thought I was going to die.. WASpretty much all do to

hypothyroidism..I also have Fibromyalgia and chronic fatigue syndrome so I was

nevertested for hypothyroidism.. My doctors just always said it was my FMor

CFS.. I was 21 when it started bad " BAD " . I gained 90lbs in 9 1/2months out of

the blue.. And the I have had a dizzy spell for prettymuch 5 years NON stop..

Some days are way harder than others.AND the past 5 days have been so bad.. I

have been so sick, weak anddizzy OMG. I was put on synthroid last week and so

far I still feellike I am dying.. OR like I just want to die.. This gets so bad

and Ihave no one who understands, All my friends & family think I am

overreacting, But all I can say is I WISH... I hope you all don't mind me

writing here about my problems but Ihave no one else to really turn to... Does

anyone

ANYONE understandwhat I am going through?? I have had my blood tested for

EVERYTHING..I have had cat scans MRI's X-rays and they could never find

anythingelse wrong with me.. Than after 5 years of not being able to

findanything they do another blood test for my thyroid and it comes

backnormal???Last week they tried the same test again and they said the

numberswere kinda high and they were positive I have hypothyroidism.. Itshard to

belive they may have found a name besides FM and CFS thatcould be making me so

ill..So now they are going to try to treat this.. And they said to havehope I

can feel better! I guess after all this typing what I amtrying to ask is

if???.... Can I REALLY feel better? Can I hope forthat much?? Is it possible????

Again I am so sorry for my rambling Ijust need to know if other people out there

understand?? If I canhave hope?? Anyway thanks so much for taking the time to

read thisand if anyone has any tips on how to deal better PLEASE PLEASE emailme

anytime..

dianahottie@...

June 28, 2004

http://www.greenwillowtree.com/tides/Detail.bok?no=380

combo problems like this one--which is both low adrenal and thyroid --

this product will do so much more for you than just t4

leg problems very adrenal-----www.drrind.com

with hypo symptoms as well!!

http://www.drrind.com/scorecardmatrix.asp

June 30, 2004

Hi !

Your story sounds a lot like mine, I started feeling sick at 19, was

diagnosed with FM and told there was nothing wrong with my thyroid

(except I kept pursuing treatment, going to doctors asking about the

thyroid specifically), got treated at 24 only, in 2000.

Have they started you on thyroid meds?

Jan

wrote:

>Hello I am very happy to be here, My name is and I am 26, I wastold last