Guest guest Posted January 1, 2006 Report Share Posted January 1, 2006 Hi All, Ive been a member of the group for just a short while and have been reading the files, but decided I'd better introduce myself.My name is Marguerite and I live in Lincolnshire with my teenage son and partner.I have been ill for as long as I can remember but quite severly after the birth of my son 14 years ago, My immune system is so shot that I pick up absolutely any infection and a simple cold will usually turn to bronchitis and pleurisy. I know my white cell count is so low because of continued and prolonged use of antibiotics from being a small child but am now in a catch 22 of having to take them (even though they make me more ill than the infection), simply because whatever infection I get my body cannot fight.I have had many, many unneccessary surgeries and tests that have built my hopes up that they would find out what was wrong, only to eventually be sent away at the end of it being labelled as a depressive and put in a mental hospital and given ect after their drugs didnt work. I knew I was depressed because of my illness not that it WAS my illness.but I also know I am fighting a losing battle with the medical fraternity.Here in the UK if a test doesnt prove you have something physical, therefore you dont have it, you must be mentally ill! simple as that really. I sleep 10 hours a night and 3 or 4 during the day if I can, it got a lot easier for me when my son got older, as I was a widow when he was born, and I have damaged him terribly with my illness as he doesnt understand.I think I probably have had candida for a very long time, but it is not something the doctors here recognize, so I have tried to fight it alone through diet and supplements which always make me feel worse and of course the necessary antibiotics just constantly put me back to square one.I really, really dont want to become a victim of this but often find myself in despair, such as now, when Ive spoilt christmas and New Year (and my birthday today) for everyone around me yet again, and everything has had to be cancelled. How can I expect my family and friends to be understanding when what ails me nobody knows. I'm sorry to have gone on so long in this post and to feel down, I know this is a place for hope and recovery, but maybe somebody will understand and that makes me feel better, thank you for reading. God Bless Marguerite x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2006 Report Share Posted January 1, 2006 Hi Marguerite, So sorry for all you have been going through! And welcome to this excellent support group! I am sure you will find the much needed support on this group. I wish you all the Best for this New Year, and that it will be the beginning of a new life, that of your recovery! Hang in there, there are solutions. I will write in more details later on when I go back home (I am now visiting my family.) Best regards. Take good care, Fran Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2006 Report Share Posted January 1, 2006 Hi Marguerite! Welcome to our group. You have come to the right place my friend. Everything turned into sinus problems and bronchitis for me too and at first it was very hard. I kept up with the diet and found that when I eliminated dairy my bacterial problems seemed to lessen. I took extra vitamin C daily and would also take a lot of garlic and sleep alot when I was ill. I have had one sinus infection in the past year which is a miracle because I normally had one every other month. Getting off the antibiotics will really help and that might take awhile. Are you taking coconut oil? I use it on my skin and also take my make up off with it. I think that really helped to ward of the infections as I would put some inside my nose and rubbed in around my eyelids as well (remember that is where viruses easily come in contact with us is through those areas.) Anyway........hang in there. We are hear to help you. Go through the files too. Jeanne otn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 Hi To you both, thanks so much for taking the time to reply, it has really lifted my spirits speaking to real people who actually know what I'm talking about,I'm sure you all know that desperate feeling that comes when you feel so ill, but because some doctor in the past has labelled you as " depressive " because he didnt know what else to say, makes sure that no other doctor will ever take you seriously ever again. I remember 3 years ago I kept going to the doctor with crippling stomache pains,each time I was told to go away and relax it was depression, I was eventually admitted to hospital for an emergency hysterectomy after they found that many fibroids on the outside of the womb had attached to my bowel and intestines and had ruptured, but I give up trying to tell them anything nowadays. On the whole though my main problem is my sinuses and ears, I have had 4 surgeries to drain them and to drill drainage holes,and put grommets in my ears, but they only helped for a short while, It starts with a kind of burning searing pain in my nostrils then within a few hours the pressure in my head becomes intolerable with a foul taste in my mouth, I do have a nasal irrigator that I use regularly with salts, but this never relieves the pressure in my head and ears, only antibiotics clear it. As soon as I take them, within a day, my ears start to pop and whistle and I feel the immense relief, (like when your on a plane and your ears pop)but until then I feel like I have the worst kind of flu, strange really, because when friends have sinus infections they just carry on as normal with just a headache? I would really like to do something positive about all this but am very afraid to do so, in the past when Ive taken supplements or changed things Ive become very very ill for a long time and cannot carry out my responsibilities to my son, my partner is no help whatsover and I need to be able to take care of him myself, so I give up on them. There are also so many different things that people advise that I'm confused with it all. Thanks so much for replying, it really has made me feel not so alone, God Bless you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 Hello Back! & Hopefully you'll have a happier New Year in 2006! >From: " xinte42 " <xinte42@...> Subject: Hello from the UK >I have been ill for as long as I can remember but quite severly after the birth of my son 14 years ago, My immune system is so shot that I pick up absolutely any infection and a simple cold will usually turn to bronchitis and pleurisy. I know my white cell count is so low because of continued and prolonged use of antibiotics from being a small child but am now in a catch 22 of having to take them (even though they make me more ill than the infection), simply because whatever infection I get my body cannot fight. Yeah, ditto. I've gotten much better since I found Bee's group. >Here in the UK if a test doesnt prove you have something physical, therefore you dont have it, you must be mentally ill! Same thing here in the US. The attitude is that it is 'healthy' to take psychotropics. >I have damaged him terribly with my illness as he doesnt understand. My son never understood my illness either but he did get over the dissappointments of earlier on and is building his own life now. >I think I probably have had candida for a very long time, but it is not something the doctors here recognize, Amazing how Doctors as an educated group can go through life with hospital colored glasses on. >necessary antibiotics just constantly put me back to square one. You can stop the cycle by switching to Coconut Oil, garlic, pau de arco tea, cloves and Oil of Oragano instead. Start on the lower doses and build up. >I really, really dont want to become a victim of this but often find myself in despair, such as now, when Ive spoilt christmas and New Year (and my birthday today) for everyone around me yet again, and everything has had to be cancelled. There will be other Christmas'. You will be well enough to enjoy them. >How can I expect my family and friends to be understanding when what ails me nobody knows. We understand! My phylosophy is that it is ok if my friends and family don't understand, just as long as they don't try to mess up my diet! >God Bless Marguerite x Blessings to you too! I join in agreement with you that by this time next year you'll be feeling better. --nh __________________________________________ DSL – Something to write home about. Just $16.99/mo. or less. dsl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 Hello Back! & Hopefully you'll have a happier New Year in 2006! >From: " xinte42 " <xinte42@...> Subject: Hello from the UK >I have been ill for as long as I can remember but quite severly after the birth of my son 14 years ago, My immune system is so shot that I pick up absolutely any infection and a simple cold will usually turn to bronchitis and pleurisy. I know my white cell count is so low because of continued and prolonged use of antibiotics from being a small child but am now in a catch 22 of having to take them (even though they make me more ill than the infection), simply because whatever infection I get my body cannot fight. Yeah, ditto. I've gotten much better since I found Bee's group. >Here in the UK if a test doesnt prove you have something physical, therefore you dont have it, you must be mentally ill! Same thing here in the US. The attitude is that it is 'healthy' to take psychotropics. >I have damaged him terribly with my illness as he doesnt understand. My son never understood my illness either but he did get over the dissappointments of earlier on and is building his own life now. >I think I probably have had candida for a very long time, but it is not something the doctors here recognize, Amazing how Doctors as an educated group can go through life with hospital colored glasses on. >necessary antibiotics just constantly put me back to square one. You can stop the cycle by switching to Coconut Oil, garlic, pau de arco tea, cloves and Oil of Oragano instead. Start on the lower doses and build up. >I really, really dont want to become a victim of this but often find myself in despair, such as now, when Ive spoilt christmas and New Year (and my birthday today) for everyone around me yet again, and everything has had to be cancelled. There will be other Christmas'. You will be well enough to enjoy them. >How can I expect my family and friends to be understanding when what ails me nobody knows. We understand! My phylosophy is that it is ok if my friends and family don't understand, just as long as they don't try to mess up my diet! >God Bless Marguerite x Blessings to you too! I join in agreement with you that by this time next year you'll be feeling better. --nh __________________________________ for Good - Make a difference this year. http://brand./cybergivingweek2005/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Hi Marguerite! Welcome to our group. That's great you are reading the files. Education is so very important to understanding what you must do to get healthy and stay healthy. Thanks so much for sharing your story with us. My heart goes out to you for your suffering. Please read Bee's Personal Candida Story in the files too so you know what I went through and why I want you and others to benefit from my experience and research. I'm so glad you found us my friend. It's all good news for you and your family from here on if you follow the principles written in our files. Lotsa hugs, Bee > > Hi All, Ive been a member of the group for just a short while and > have been reading the files, but decided I'd better introduce > myself.My name is Marguerite and I live in Lincolnshire with my > teenage son and partner.I have been ill for as long as I can remember > but quite severly after the birth of my son 14 years ago, My immune > system is so shot that I pick up absolutely any infection and a > simple cold will usually turn to bronchitis and pleurisy. I know my > white cell count is so low because of continued and prolonged use of > antibiotics from being a small child but am now in a catch 22 of > having to take them (even though they make me more ill than the > infection), simply because whatever infection I get my body cannot > fight.I have had many, many unneccessary surgeries and tests that > have built my hopes up that they would find out what was wrong, only > to eventually be sent away at the end of it being labelled as a > depressive and put in a mental hospital and given ect after their > drugs didnt work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 > > Hi To you both, > thanks so much for taking the time to reply, it has really lifted my > spirits speaking to real people who actually know what I'm talking > about,I'm sure you all know that desperate feeling that comes when > you feel so ill, but because some doctor in the past has labelled you > as " depressive " because he didnt know what else to say, makes sure > that no other doctor will ever take you seriously ever again. I > remember 3 years ago I kept going to the doctor with crippling > stomache pains,each time I was told to go away and relax it was > depression, I was eventually admitted to hospital for an emergency > hysterectomy after they found that many fibroids on the outside of > the womb had attached to my bowel and intestines and had ruptured, > but I give up trying to tell them anything nowadays. ==>We are here for you my friend! We all have many similar experiences with doctors like you've had. I knew a lady in my Candida Support Group back in the mid 1980s that was diagnosed with brain lesions and they too labelled her as mentally ill. But she wouldn't give in to it, and instead did the candida program. Two years later her brain scans showed no lesions! I trully believe that candida caused your fibroids as well. > On the whole though my main problem is my sinuses and ears, I have > had 4 surgeries to drain them and to drill drainage holes,and put > grommets in my ears, but they only helped for a short while, It > starts with a kind of burning searing pain in my nostrils then within a few hours the pressure in my head becomes intolerable with a foul taste in my mouth, I do have a nasal irrigator that I use regularly with salts, but this never relieves the pressure in my head and ears, only antibiotics clear it. As soon as I take them, within a day, my ears start to pop and whistle and I feel the immense relief, (like when your on a plane and your ears pop)but until then I feel like I have the worst kind of flu, strange really, because when friends have sinus infections they just carry on as normal with just a headache? I would really like to do something positive about all this but am very afraid to do so, in the past when Ive taken supplements or changed things Ive become very very ill for a long time and cannot carry out my responsibilities to my son, my partner is no help whatsover and I need to be able to take care of him myself, so I give up on them. There are also so many different things that people advise that I'm confused with it all. ==>It is extremely important to make any changes gradually, otherwise you overwhelm your body and yourself. Take one step at a time - see the Folder " How to Get Started Treating Candida " for tips to help you. > Thanks so much for replying, it really has made me feel not so alone, God Bless you ==>God bless you too! You are not alone. We've all " been there, done that " . At one point in time I could only eat 9 foods in the whole world (I had no choice because everything else came back up). Do read " Bee's Personal Candida Story " so you understand what I went through. You can't go wrong on my candida program, IF you do it one step at a time, allowing your body time to adjust to each change. " More is not better " , and it only makes you sicker and more discouraged. When you are successful in changing your diet do reward yourself with something non-food related, i.e. a new plant for your home, a beautiful scarf, a new book, etc. You deserve to treat yourself for a job well done. Lotsa hugs, Bee Quote Link to comment Share on other sites More sharing options...
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